Civic Intelligence

Foundation for Prader-Willi Researchinc

EIN 31-1763110 • 501(c)3 • Covina, CA

Profile

The Foundation for Prader-Willi Research is dedicated to supporting research to advance the understanding and treatment of Prader-Willi Syndrome.

Refreshing map…

440 N Barranca Ave 3620Covina, CA 91723

www.fpwr.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

69th percentile

0.39x

Higher debt load relative to assets than 69% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Source year 2024

Liabilities / Revenue

71st percentile

0.56x

Higher debt load relative to revenue than 71% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Source year 2024

Net Margin

42nd percentile

1.8%

Higher net margin than 42% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Source year 2024

Top Officer Pay

53rd percentile

$173,430

Higher top officer pay than 53% of similar nonprofits.

Top officer pay equals 2.8% of source-year revenue.

501(c)3 • $10M-$25M nonprofits • Source year 2024

Asset Growth

43rd percentile

3.1%

Faster asset growth than 43% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Annualized from 2022 to 2024

Revenue Growth

57th percentile

10%

Faster revenue growth than 57% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Annualized from 2022 to 2024

Assets

Up

$8,871,895

Up $527,315 (+6.3%) from 2022

Liabilities

Up

$3,480,573

Up $246,695 (+7.6%) from 2022

Net Assets

Up

$5,391,322

Up $280,620 (+5.5%) from 2022

Revenue

Up

$6,173,660

Up $1,089,723 (+21%) from 2022

Expenses

Up

$6,062,339

Up $973,842 (+19%) from 2022

Net Income

Up

$111,321

Up $115,881 (+2541%) from 2022

Trend Graphs

Balance Sheet Trend

Grouped bars show assets, liabilities, and net assets across loaded filings.

$10M$5.0M$0Assets 2010: $627,589Liabilities 2010: $191,396Net Assets 2010: $436,1932010Assets 2011: $1,545,653Liabilities 2011: $380,355Net Assets 2011: $1,165,2982011Assets 2012: $1,895,712Liabilities 2012: $194,897Net Assets 2012: $1,700,8152012Assets 2013: $2,336,935Liabilities 2013: $650,556Net Assets 2013: $1,686,3792013Assets 2014: $3,824,434Liabilities 2014: $882,416Net Assets 2014: $2,942,0182014Assets 2015: $5,051,231Liabilities 2015: $1,979,286Net Assets 2015: $3,071,9452015Assets 2016: $4,877,823Liabilities 2016: $1,518,397Net Assets 2016: $3,359,4262016Assets 2018: $5,481,978Liabilities 2018: $1,299,792Net Assets 2018: $4,182,1862018Assets 2019: $5,712,409Liabilities 2019: $2,108,729Net Assets 2019: $3,603,6802019Assets 2020: $6,285,928Liabilities 2020: $1,907,112Net Assets 2020: $4,378,8162020Assets 2021: $6,744,610Liabilities 2021: $1,473,233Net Assets 2021: $5,271,3772021Assets 2022: $8,344,580Liabilities 2022: $3,233,878Net Assets 2022: $5,110,7022022Assets 2024: $8,871,895Liabilities 2024: $3,480,573Net Assets 2024: $5,391,3222024

Highlighted filing

2024

Assets$8,871,895
Liabilities$3,480,573
Net Assets$5,391,322

Operations Trend

Revenue, expenses, and net income by year, with the latest filing highlighted.

$8.0M$6.0M$4.0M$2.0M$0-$2.0MExpenses 2010: $488,5832010Expenses 2011: $693,6712011Expenses 2012: $692,1552012Revenue 2013: $1,404,365Expenses 2013: $1,417,383Net Income 2013: -$13,0182013Revenue 2014: $3,032,815Expenses 2014: $1,777,176Net Income 2014: $1,255,6392014Revenue 2015: $2,989,838Expenses 2015: $2,859,911Net Income 2015: $129,9272015Revenue 2016: $3,277,707Expenses 2016: $3,102,558Net Income 2016: $175,1492016Revenue 2018: $4,152,623Expenses 2018: $3,593,919Net Income 2018: $558,7042018Revenue 2019: $4,062,325Expenses 2019: $4,494,006Net Income 2019: -$431,6812019Revenue 2020: $3,655,364Expenses 2020: $3,053,653Net Income 2020: $601,7112020Revenue 2021: $3,838,959Expenses 2021: $3,149,610Net Income 2021: $689,3492021Revenue 2022: $5,083,937Expenses 2022: $5,088,497Net Income 2022: -$4,5602022Revenue 2024: $6,173,660Expenses 2024: $6,062,339Net Income 2024: $111,3212024

Highlighted filing

2024

Revenue$6,173,660
Expenses$6,062,339
Net Income$111,321

Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$8.87$3.48$5.39$6.17$6.06$0.11
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$8.34$3.23$5.11$5.08$5.09$0.00
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$6.74$1.47$5.27$3.84$3.15$0.69
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$6.29$1.91$4.38$3.66$3.05$0.60
2019Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.71$2.11$3.60$4.06$4.49$0.43
2018Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.48$1.30$4.18$4.15$3.59$0.56
2016Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.88$1.52$3.36$3.28$3.10$0.18
2015Detailed filing. Detailed filing data is available for this year.$5.05$1.98$3.07$2.99$2.86$0.13
2014Detailed filing. Detailed filing data is available for this year.$3.82$0.88$2.94$3.03$1.78$1.26
2013Detailed filing. Detailed filing data is available for this year.$2.34$0.65$1.69$1.40$1.42$0.01
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.90$0.19$1.70$0.69
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.55$0.38$1.17$0.69
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.63$0.19$0.44$0.49
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Oct 20, 2025
Return Version
2024v5.2
Gross Receipts
$10,397,765
Mission and Program Overview

Mission

The Foundation for Prader-Willi Research is dedicated to supporting research to advance the understanding and treatment of Prader-Willi Syndrome.

Supports research to advance the understanding and treatment of prader-willi syndrome.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$8,885,256$7,637,715▼ $1,247,541
Pledges and Grants Receivable$164,138$618,795▲ $454,657
Investments Program Related$350,000$500,000▲ $150,000
Prepaid Expenses and Deferred Charges$55,784$109,268▲ $53,484
Cash and Non-Interest-Bearing Accounts$32,336$0▼ $32,336
Land, Buildings, and Equipment, Net$3,932$4,850▲ $918
Investments in Publicly Traded Securities$28,011$1,267▼ $26,744
Total Assets$9,519,457$8,871,895▼ $647,562
Liabilities
Grants Payable$3,532,275$3,279,084▼ $253,191
Accounts Payable and Accrued Expenses$694,953$201,489▼ $493,464
Total Liabilities$4,227,228$3,480,573▼ $746,655
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$5,292,229$5,391,322▲ $99,093
Total Net Assets Fund Balance$5,292,229$5,391,322▲ $99,093
Total Liabilities and Net Assets / Fund Balance$9,519,457$8,871,895▼ $647,562

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$4,850$8,711$13,561
Investment Program Related Org$150,000--
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseTotal
Theresa StrongDirector of Research ProgrFT$173,430$173,430
Susan HedstromExecutive DirectorFT$132,351$132,351

Board Members and Trustees

NameTitle
Paul WissmanChairperson
Justin NelsonVice Chairperson
Annamarie HuttunenDirector
Karine KabundiDirector
Kristin WhiteDirector
Mark JosephDirector
Matt BlickleyDirector
Renee SnyderDirector
Scott ArantDirector
Amber RobersonSecretary
Brian CarucciTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$5,412,703
Program Service Revenue
$186,058
Investment Income
$495,956
Other Revenue
$78,943
All Other Contributions
$4,529,161
Change in Net Assets
$111,321

Audited Revenue Reconciliation

Revenue per Audited Statements
$6,173,660
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$-85,033
Total Revenue per Audited Statements
$6,088,627
Total Revenue per Form 990
$6,173,660
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$3,413,154
Other Expenses$1,468,006
Salaries, Compensation, and Employee Benefits$1,181,179
Total Fundraising Expense$362,394
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$2,597,065--$2,597,065
Other Salaries and Wages$679,618$84,644$188,098$952,360
Foreign Grants$816,089--$816,089
Fees for Services Other$435,380$88,667$19,406$543,453
Current Officers, Directors, Trustees, and Key Employees$94,448$11,763$26,140$132,351
All Other Expenses$17,729$10,554$59,117$87,400
Payroll Taxes$61,711$4,635$17,567$83,913
Fees for Services Accounting-$82,596-$82,596
Travel$60,791$5,053$8,540$74,384
Other Expenses$102$55,920$4,170$60,192
Occupancy$47,651-$6,150$53,801
Insurance$20,131$9,062-$29,193
Other Employee Benefits$3,564$926$8,065$12,555
Fees for Services Legal$2,475--$2,475
Depreciation Depletion-$2,047-$2,047
Advertising$680-$560$1,240
Total Functional Expenses$5,303,789$396,156$362,394$6,062,339

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Form 990$6,062,339
Expenses per Audited Statements$6,061,924
Total Expenses per Audited Statements$5,989,534
Expenses Not Reported on Financial Statements$415
Other Expense Adjustments$415
Expenses Not Reported on Form 990$-72,390
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Emory UniversityAtlanta, GA501(c)(3)Research$300,000
Saint Louis University School of MedicineSt Louis, MO501(c)(3)Research$222,156
Albert Einstein College of MedicineBronx, NY501(c)(3)Research$162,000
Duke UniversityCharlotte, NC501(c)(3)Research$162,000
Rockefeller UniversityNew York, NY501(c)(3)Research$162,000
Sanford Burnham Prebys Medical Discovery InstituteLa Jolla, CA501(c)(3)Research$162,000
University of NebraskaLincoln, NE501(c)(3)Research$162,000
Yale UniversityNew Haven, CT501(c)(3)Research$162,000
University of PittsburghPittsburgh, PA501(c)(3)Research$161,999
Carnegie Mellon UniversityPittsburgh, PA501(c)(3)Research$161,998
University of Connecticut Health CenterFarmington, CT501(c)(3)Research$137,700
Duke UniversityDurham, NC501(c)(3)Research$108,000
Tulane UniversityNew Orleans, LA501(c)(3)Research$95,591
John Hopkins University School of MedicineChicago, IL501(c)(3)Research$86,400
Medical University of South CarolinaCharleston, SC501(c)(3)Research$86,400
University of Alabama at BirminghamBirmingham, AL501(c)(3)Research$83,621
Vanderbilt UniversityNashville, TN501(c)(3)Research$75,639
Bucknell UniversityLewisburg, PA501(c)(3)Research$72,984
Columbia UniversityNew York, NY501(c)(3)Research$27,174
University of ConnecticutStorrs, CT501(c)(3)Research$5,400

International Summary

Offices
0
Employees
0
Spending
$816,089

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
Europe (including Iceland & Greenland)Grants to Recipients in Region for Research-00$610,093
North America - Canada and Mexico, But Not the United StatesGrants to Recipients in Region for Research-00$126,508
East Asia and the PacificGrants to Recipients in Region for Research-00$79,488
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$235,075
Fundraising Direct Expenses$156,132
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Pars for Peyton$245,325$127,630$19,410$108,220
Iggs Festival$245,416$46,950$19,096$27,854
Total Events$1,118,617$235,075$156,130$78,945
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

The organization has its form 990 prepared by an outside accounting firm. It is reviewed by the executive director and a complete copy is provided to all members of the governing body for their review prior to filing.

Form 990, Part VI, Section B, Line 12C

The board of directors and the governance committee are responsible for determing and reviewing conflicts of interest. All board members and officers are required to self-disclose conflicts as they arise as well as annually sign a disclosure form noting any potential conflicts of interest. Such persons may make a presentation at the governing board or committee meeting, but after the presentation, they must leave during the discussion of, and the vote on, the transaction or arrangement.

Form 990, Part VI, Section B, Line 15A

The process for determining the compensation of the ceo included the use of comparability data, review and approval by the executive committe of the board, and contemporaneous documentation.

Form 990, Part VI, Section C, Line 19

The organization makes its governing documents, conflict of interest policy, and financial statements available to the public upon request.

Filing and Contact Details

Filer

Filer Name
Foundation for Prader-willi
EIN
31-1763110
Phone
8883225487
Address
440 N BARRANCA AVE 3620, COVINA, CA 91723

Signing Officer

Name
Susan Hedstrom
Title
Executive Director
Phone
8883225487
Signed
2025-10-20
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Susan Hedstrom
Formed
2001
Legal Domicile
Ny
Voting Board Members
11
Independent Board Members
11
Employees
13
Volunteers
50

Preparer

Firm
Katz Cassidy an Accountancy Corporation
Address
11400 W OLYMPIC BLVD SUITE 1050, LOS ANGELES, CA 90064
Preparer
Neal Katz
Phone
3104776300
Supplemental Narrative

Additional Explanations

FORM 990, PART V, LINE 2B:

The organization contracted with a professional employer organization (peo) for services, including but not limited to, payroll, timekeeping, employee benefits, hr administration, and workforce regulatory compliance needs. As the employer of record for tax purposes, forms w-2 and w-3 are issued by the peo and filed under the peo's federal ein. In this co-employment arrangement, the organization is the common law employer and, accordingly, compensation is reported on form 990, part vii, section a and part ix, lines 5-10.

FORM 990, PART XI, LINE 9:

Return of prior year grant expense 37,493. Depreciation adjustment 416.

FORM 990, PART XII, LINE 2C:

The organization has a committee that assumes responsibility for the oversight of the audit of its financial statements and the selection of an independent accountant. This process did not change from the prior year.

Financial Statement Notes

PART X, LINE 2:

The foundation recognizes the effect of income tax positions only if those positions are more likely than not to be sustained. Management has determined that the foundation had no uncertain positions that would require financial statement recognition or disclosure. The foundation is no longer subject to examinations by the applicable taxing jurisdictions for periods prior to 2020.

PART XI, LINE 2D - OTHER ADJUSTMENTS:

Direct benefits to donors -191,029. Direct fundraising expenses 156,132.

PART XII, LINE 2D - OTHER ADJUSTMENTS:

Direct benefits to donors -191,029. Return of prior year grants -37,493. Direct fundraising expenses 156,132.

PART XII, LINE 4B - OTHER ADJUSTMENTS:

Depreciation expense 415.

Raw XML AppendixShowing 400 of 888 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/PersonNm2AMBER ROBERSON
IRS990/Form990PartVIISectionAGrp/PersonNm3BRIAN CARUCCI
IRS990/Form990PartVIISectionAGrp/PersonNm4ANNAMARIE HUTTUNEN
IRS990/Form990PartVIISectionAGrp/PersonNm5KARINE KABUNDI
IRS990/Form990PartVIISectionAGrp/PersonNm6KRISTIN WHITE
IRS990/Form990PartVIISectionAGrp/PersonNm7MARK JOSEPH
IRS990/Form990PartVIISectionAGrp/PersonNm8MATT BLICKLEY
IRS990/Form990PartVIISectionAGrp/PersonNm9RENEE SNYDER
IRS990/Form990PartVIISectionAGrp/PersonNm10SCOTT ARANT
IRS990/Form990PartVIISectionAGrp/PersonNm11SUSAN HEDSTROM
IRS990/Form990PartVIISectionAGrp/PersonNm12THERESA STRONG
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt11132351
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt12173430
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/TitleTxt0CHAIRPERSON
IRS990/Form990PartVIISectionAGrp/TitleTxt1VICE CHAIRPERSON
IRS990/Form990PartVIISectionAGrp/TitleTxt2SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt3TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11EXECUTIVE DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR OF RESEARCH PROGR
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr02001
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt0883542
IRS990/FundraisingDirectExpensesAmt0156132
IRS990/FundraisingGrossIncomeAmt0235075
IRS990/GainOrLossGrp/SecuritiesAmt036062
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt011
IRS990/GrantAmt03413154
IRS990/GrantsPayableGrp/BOYAmt03532275
IRS990/GrantsPayableGrp/EOYAmt03279084
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt02597065
IRS990/GrantsToDomesticOrgsGrp/TotalAmt02597065
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt04104035
IRS990/GrossReceiptsAmt010397765
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt011
IRS990/IndivRcvdGreaterThan100KCnt05
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartVInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InfoInScheduleOPartXIInd0X
IRS990/InsuranceGrp/ManagementAndGeneralAmt09062
IRS990/InsuranceGrp/ProgramServicesAmt020131
IRS990/InsuranceGrp/TotalAmt029193
IRS990/InvestmentIncomeGrp/ExclusionAmt0459894
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt0459894
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsProgramRelatedGrp/BOYAmt0350000
IRS990/InvestmentsProgramRelatedGrp/EOYAmt0500000
IRS990/InvestmentsPubTradedSecGrp/BOYAmt028011
IRS990/InvestmentsPubTradedSecGrp/EOYAmt01267
IRS990/IRPDocumentCnt00
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt08711
IRS990/LandBldgEquipBasisNetGrp/BOYAmt03932
IRS990/LandBldgEquipBasisNetGrp/EOYAmt04850
IRS990/LandBldgEquipCostOrOtherBssAmt013561
IRS990/LegalDomicileStateCd0NY
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt04067973
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0TO ELIMINATE THE CHALLENGES OF PRADER WILLI SYNDROME THROUGH THE ADVANCEMENT OF RESEARCH AND THERAPEUTIC DEVELOPMENT.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd01
IRS990/NetAssetsOrFundBalancesBOYAmt05292229
IRS990/NetAssetsOrFundBalancesEOYAmt05391322
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt036062
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt036062
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt078943
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt078943
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt0-50137
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt05292229
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt05391322
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt06150
IRS990/OccupancyGrp/ProgramServicesAmt047651
IRS990/OccupancyGrp/TotalAmt053801
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherChangesInNetAssetsAmt037909
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt08065
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt0926
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt03564
IRS990/OtherEmployeeBenefitsGrp/TotalAmt012555
IRS990/OtherExpensesGrp/Desc0CATERING
IRS990/OtherExpensesGrp/Desc1RESEARCH
IRS990/OtherExpensesGrp/Desc2DUES & SUBSCRIPTIONS
IRS990/OtherExpensesGrp/Desc3BANK FEES
IRS990/OtherExpensesGrp/FundraisingAmt018681
IRS990/OtherExpensesGrp/FundraisingAmt15900
IRS990/OtherExpensesGrp/FundraisingAmt24170
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt00
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt140289
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt255920
IRS990/OtherExpensesGrp/ProgramServicesAmt0225732
IRS990/OtherExpensesGrp/ProgramServicesAmt1209154
IRS990/OtherExpensesGrp/ProgramServicesAmt231469
IRS990/OtherExpensesGrp/ProgramServicesAmt3102
IRS990/OtherExpensesGrp/TotalAmt0244413
IRS990/OtherExpensesGrp/TotalAmt1209154
IRS990/OtherExpensesGrp/TotalAmt277658
IRS990/OtherExpensesGrp/TotalAmt360192
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt0188098
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt084644
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0679618
IRS990/OtherSalariesAndWagesGrp/TotalAmt0952360
IRS990/OtherWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayrollTaxesGrp/FundraisingAmt017567
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt04635
IRS990/PayrollTaxesGrp/ProgramServicesAmt061711
IRS990/PayrollTaxesGrp/TotalAmt083913
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt0164138
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt0618795
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt055784
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt0109268
IRS990/PrincipalOfficerNm0SUSAN HEDSTROM
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0900099
IRS990/ProgramServiceRevenueGrp/Desc0CONFERENCE REVENUE
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt0186058
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt0186058
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt05653599
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt03877623
IRS990/PYInvestmentIncomeAmt0294425
IRS990/PYOtherExpensesAmt01347431
IRS990/PYOtherRevenueAmt0358367
IRS990/PYProgramServiceRevenueAmt0229189
IRS990/PYRevenuesLessExpensesAmt0183438
IRS990/PYSalariesCompEmpBnftPaidAmt01127088
IRS990/PYTotalExpensesAmt06352142
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt06535580
IRS990/QuidProQuoContributionsInd01
IRS990/QuidProQuoContriDisclInd01
IRS990/ReconcilationRevenueExpnssAmt0111321
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd01
IRS990/RevenueAmt0186058
IRS990/SavingsAndTempCashInvstGrp/BOYAmt08885256
IRS990/SavingsAndTempCashInvstGrp/EOYAmt07637715
IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt0OTHER INCOME - 2022 AMOUNT: $ 116. 2023 AMOUNT: $ 8,407. 2024 AMOUNT: $ 0.
IRS990ScheduleA/Form990ScheduleAPartVIGrp/FormAndLineReferenceDesc0SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME:
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt05412703
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt05653599
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt04654934
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt03612120
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt03495770
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt022829126
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt0459894
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt0219505
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt083302
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt01677
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt026556
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt0790934
IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt01143450
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus1YearAmt08407
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus2YearsAmt0116
IRS990ScheduleA/OtherIncome170Grp/TotalAmt08523
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.64180
IRS990ScheduleA/PublicSupportPY170Pct00.69970
IRS990ScheduleA/PublicSupportTotal170Amt015512793
IRS990ScheduleA/SubstantialContributorsTotAmt07316333
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt05412703
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt05653599
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt04654934
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt03612120
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt03495770
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt022829126
IRS990ScheduleA/TotalSupportAmt024171854
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearAmt078943
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus1YearAmt0349960
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus2YearsAmt0114368
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/TotalAmt0543271
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/EquipmentGrp/BookValueAmt04850
IRS990ScheduleD/EquipmentGrp/DepreciationAmt08711
IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt013561
IRS990ScheduleD/ExpensesNotReportedAmt0-72390
IRS990ScheduleD/ExpensesNotRptFinclStmtAmt0415
IRS990ScheduleD/ExpensesSubtotalAmt06061924
IRS990ScheduleD/FootnoteTextInd0X
IRS990ScheduleD/InvstProgramRelatedOrgGrp/BookValueAmt0100000
IRS990ScheduleD/InvstProgramRelatedOrgGrp/BookValueAmt1100000
IRS990ScheduleD/InvstProgramRelatedOrgGrp/BookValueAmt2150000
IRS990ScheduleD/InvstProgramRelatedOrgGrp/BookValueAmt3150000
IRS990ScheduleD/InvstProgramRelatedOrgGrp/Desc0CONVERTIBLE NOTE-PALOBIOFARMA
IRS990ScheduleD/InvstProgramRelatedOrgGrp/Desc1PREFERRED SERIES A-LIPIDIO PHARMACEUTICALS
IRS990ScheduleD/InvstProgramRelatedOrgGrp/Desc2PREFERRED SERIES B-AARDVARK THERAPEUTICS
IRS990ScheduleD/InvstProgramRelatedOrgGrp/Desc3PREFERRED SERIES C-AARDVARK THERAPEUTICS
IRS990ScheduleD/InvstProgramRelatedOrgGrp/MethodValuationCd0C
IRS990ScheduleD/InvstProgramRelatedOrgGrp/MethodValuationCd1C
IRS990ScheduleD/InvstProgramRelatedOrgGrp/MethodValuationCd2C
IRS990ScheduleD/InvstProgramRelatedOrgGrp/MethodValuationCd3C
IRS990ScheduleD/NetUnrealizedGainsInvstAmt0-50136
IRS990ScheduleD/OtherExpensesIncludedAmt0-72390
IRS990ScheduleD/OtherExpensesNotIncludedAmt0415
IRS990ScheduleD/OtherRevenueAmt0-34897

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