Liabilities / Assets
69th percentile
Higher debt load relative to assets than 69% of similar nonprofits.
EIN 31-1763110 • 501(c)3 • Covina, CA
Profile
The Foundation for Prader-Willi Research is dedicated to supporting research to advance the understanding and treatment of Prader-Willi Syndrome.
Refreshing map…
Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.
Liabilities / Assets
69th percentile
Higher debt load relative to assets than 69% of similar nonprofits.
Liabilities / Revenue
71st percentile
Higher debt load relative to revenue than 71% of similar nonprofits.
Net Margin
42nd percentile
Higher net margin than 42% of similar nonprofits.
Top Officer Pay
53rd percentile
Higher top officer pay than 53% of similar nonprofits.
Top officer pay equals 2.8% of source-year revenue.
Asset Growth
43rd percentile
Faster asset growth than 43% of similar nonprofits.
Revenue Growth
57th percentile
Faster revenue growth than 57% of similar nonprofits.
Assets
Up$8,871,895
Up $527,315 (+6.3%) from 2022
Liabilities
Up$3,480,573
Up $246,695 (+7.6%) from 2022
Net Assets
Up$5,391,322
Up $280,620 (+5.5%) from 2022
Revenue
Up$6,173,660
Up $1,089,723 (+21%) from 2022
Expenses
Up$6,062,339
Up $973,842 (+19%) from 2022
Net Income
Up$111,321
Up $115,881 (+2541%) from 2022
Most recent year
2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.
The Foundation for Prader-Willi Research is dedicated to supporting research to advance the understanding and treatment of Prader-Willi Syndrome.
Supports research to advance the understanding and treatment of prader-willi syndrome.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Savings and Temporary Cash Investments | $8,885,256 | $7,637,715 | ▼ $1,247,541 |
| Pledges and Grants Receivable | $164,138 | $618,795 | ▲ $454,657 |
| Investments Program Related | $350,000 | $500,000 | ▲ $150,000 |
| Prepaid Expenses and Deferred Charges | $55,784 | $109,268 | ▲ $53,484 |
| Cash and Non-Interest-Bearing Accounts | $32,336 | $0 | ▼ $32,336 |
| Land, Buildings, and Equipment, Net | $3,932 | $4,850 | ▲ $918 |
| Investments in Publicly Traded Securities | $28,011 | $1,267 | ▼ $26,744 |
| Total Assets | $9,519,457 | $8,871,895 | ▼ $647,562 |
| Liabilities | |||
| Grants Payable | $3,532,275 | $3,279,084 | ▼ $253,191 |
| Accounts Payable and Accrued Expenses | $694,953 | $201,489 | ▼ $493,464 |
| Total Liabilities | $4,227,228 | $3,480,573 | ▼ $746,655 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $5,292,229 | $5,391,322 | ▲ $99,093 |
| Total Net Assets Fund Balance | $5,292,229 | $5,391,322 | ▲ $99,093 |
| Total Liabilities and Net Assets / Fund Balance | $9,519,457 | $8,871,895 | ▼ $647,562 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Equipment | $4,850 | $8,711 | $13,561 |
| Investment Program Related Org | $150,000 | - | - |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Theresa Strong | Director of Research Progr | FT | $173,430 | $173,430 |
| Susan Hedstrom | Executive Director | FT | $132,351 | $132,351 |
| Name | Title |
|---|---|
| Paul Wissman | Chairperson |
| Justin Nelson | Vice Chairperson |
| Annamarie Huttunen | Director |
| Karine Kabundi | Director |
| Kristin White | Director |
| Mark Joseph | Director |
| Matt Blickley | Director |
| Renee Snyder | Director |
| Scott Arant | Director |
| Amber Roberson | Secretary |
| Brian Carucci | Treasurer |
| Line Item | Amount |
|---|---|
| Grants and Similar Amounts Paid | $3,413,154 |
| Other Expenses | $1,468,006 |
| Salaries, Compensation, and Employee Benefits | $1,181,179 |
| Total Fundraising Expense | $362,394 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Grants to Domestic Orgs | $2,597,065 | - | - | $2,597,065 |
| Other Salaries and Wages | $679,618 | $84,644 | $188,098 | $952,360 |
| Foreign Grants | $816,089 | - | - | $816,089 |
| Fees for Services Other | $435,380 | $88,667 | $19,406 | $543,453 |
| Current Officers, Directors, Trustees, and Key Employees | $94,448 | $11,763 | $26,140 | $132,351 |
| All Other Expenses | $17,729 | $10,554 | $59,117 | $87,400 |
| Payroll Taxes | $61,711 | $4,635 | $17,567 | $83,913 |
| Fees for Services Accounting | - | $82,596 | - | $82,596 |
| Travel | $60,791 | $5,053 | $8,540 | $74,384 |
| Other Expenses | $102 | $55,920 | $4,170 | $60,192 |
| Occupancy | $47,651 | - | $6,150 | $53,801 |
| Insurance | $20,131 | $9,062 | - | $29,193 |
| Other Employee Benefits | $3,564 | $926 | $8,065 | $12,555 |
| Fees for Services Legal | $2,475 | - | - | $2,475 |
| Depreciation Depletion | - | $2,047 | - | $2,047 |
| Advertising | $680 | - | $560 | $1,240 |
| Total Functional Expenses | $5,303,789 | $396,156 | $362,394 | $6,062,339 |
| Line Item | Amount |
|---|---|
| Total Expenses per Form 990 | $6,062,339 |
| Expenses per Audited Statements | $6,061,924 |
| Total Expenses per Audited Statements | $5,989,534 |
| Expenses Not Reported on Financial Statements | $415 |
| Other Expense Adjustments | $415 |
| Expenses Not Reported on Form 990 | $-72,390 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Emory University | Atlanta, GA | 501(c)(3) | Research | $300,000 |
| Saint Louis University School of Medicine | St Louis, MO | 501(c)(3) | Research | $222,156 |
| Albert Einstein College of Medicine | Bronx, NY | 501(c)(3) | Research | $162,000 |
| Duke University | Charlotte, NC | 501(c)(3) | Research | $162,000 |
| Rockefeller University | New York, NY | 501(c)(3) | Research | $162,000 |
| Sanford Burnham Prebys Medical Discovery Institute | La Jolla, CA | 501(c)(3) | Research | $162,000 |
| University of Nebraska | Lincoln, NE | 501(c)(3) | Research | $162,000 |
| Yale University | New Haven, CT | 501(c)(3) | Research | $162,000 |
| University of Pittsburgh | Pittsburgh, PA | 501(c)(3) | Research | $161,999 |
| Carnegie Mellon University | Pittsburgh, PA | 501(c)(3) | Research | $161,998 |
| University of Connecticut Health Center | Farmington, CT | 501(c)(3) | Research | $137,700 |
| Duke University | Durham, NC | 501(c)(3) | Research | $108,000 |
| Tulane University | New Orleans, LA | 501(c)(3) | Research | $95,591 |
| John Hopkins University School of Medicine | Chicago, IL | 501(c)(3) | Research | $86,400 |
| Medical University of South Carolina | Charleston, SC | 501(c)(3) | Research | $86,400 |
| University of Alabama at Birmingham | Birmingham, AL | 501(c)(3) | Research | $83,621 |
| Vanderbilt University | Nashville, TN | 501(c)(3) | Research | $75,639 |
| Bucknell University | Lewisburg, PA | 501(c)(3) | Research | $72,984 |
| Columbia University | New York, NY | 501(c)(3) | Research | $27,174 |
| University of Connecticut | Storrs, CT | 501(c)(3) | Research | $5,400 |
| Region | Activity | Services | Offices | Employees | Spending |
|---|---|---|---|---|---|
| Europe (including Iceland & Greenland) | Grants to Recipients in Region for Research | - | 0 | 0 | $610,093 |
| North America - Canada and Mexico, But Not the United States | Grants to Recipients in Region for Research | - | 0 | 0 | $126,508 |
| East Asia and the Pacific | Grants to Recipients in Region for Research | - | 0 | 0 | $79,488 |
| Line Item | Amount |
|---|---|
| Fundraising Gross Income | $235,075 |
| Fundraising Direct Expenses | $156,132 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Pars for Peyton | $245,325 | $127,630 | $19,410 | $108,220 |
| Iggs Festival | $245,416 | $46,950 | $19,096 | $27,854 |
| Total Events | $1,118,617 | $235,075 | $156,130 | $78,945 |
“The organization has its form 990 prepared by an outside accounting firm. It is reviewed by the executive director and a complete copy is provided to all members of the governing body for their review prior to filing.”
“The board of directors and the governance committee are responsible for determing and reviewing conflicts of interest. All board members and officers are required to self-disclose conflicts as they arise as well as annually sign a disclosure form noting any potential conflicts of interest. Such persons may make a presentation at the governing board or committee meeting, but after the presentation, they must leave during the discussion of, and the vote on, the transaction or arrangement.”
“The process for determining the compensation of the ceo included the use of comparability data, review and approval by the executive committe of the board, and contemporaneous documentation.”
“The organization makes its governing documents, conflict of interest policy, and financial statements available to the public upon request.”
“The organization contracted with a professional employer organization (peo) for services, including but not limited to, payroll, timekeeping, employee benefits, hr administration, and workforce regulatory compliance needs. As the employer of record for tax purposes, forms w-2 and w-3 are issued by the peo and filed under the peo's federal ein. In this co-employment arrangement, the organization is the common law employer and, accordingly, compensation is reported on form 990, part vii, section a and part ix, lines 5-10.”
“Return of prior year grant expense 37,493. Depreciation adjustment 416.”
“The organization has a committee that assumes responsibility for the oversight of the audit of its financial statements and the selection of an independent accountant. This process did not change from the prior year.”
“The foundation recognizes the effect of income tax positions only if those positions are more likely than not to be sustained. Management has determined that the foundation had no uncertain positions that would require financial statement recognition or disclosure. The foundation is no longer subject to examinations by the applicable taxing jurisdictions for periods prior to 2020.”
“Direct benefits to donors -191,029. Direct fundraising expenses 156,132.”
“Direct benefits to donors -191,029. Return of prior year grants -37,493. Direct fundraising expenses 156,132.”
“Depreciation expense 415.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 694953 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 201489 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | SUPPORTS RESEARCH TO ADVANCE THE UNDERSTANDING AND TREATMENT OF PRADER-WILLI SYNDROME. |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 560 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 680 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 1240 |
| IRS990/AllOtherContributionsAmt | 0 | 4529161 |
| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 59117 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 10554 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 17729 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 87400 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/AuditCommitteeInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt | 0 | SPRCHRGR |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 3106256262 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 8605 SANTA MONICA BLVD |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | WEST HOLLYWOOD |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | CA |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 90069 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | 0 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 32336 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 0 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 26140 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 11763 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 94448 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 132351 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 1 |
| IRS990/CompensationProcessOtherInd | 0 | 0 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/ContriRptFundraisingEventAmt | 0 | 883542 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 5412703 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 3413154 |
| IRS990/CYInvestmentIncomeAmt | 0 | 495956 |
| IRS990/CYOtherExpensesAmt | 0 | 1468006 |
| IRS990/CYOtherRevenueAmt | 0 | 78943 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 186058 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 111321 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 1181179 |
| IRS990/CYTotalExpensesAmt | 0 | 6062339 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 362394 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 6173660 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 0 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 2047 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 2047 |
| IRS990/Desc | 0 | THROUGH THE IMPLEMENTATION OF TRANSLATIONAL RESEARCH PROGRAMS, THE MANAGEMENT OF A WORLD-CLASS GRANTS PROGRAM, AND THE DEVELOPMENT OF PRADER WILLI SYNDROME (PWS) RESEARCH TOOLS, THE FOUNDATION FOR PRADER-WILLI RESEARCH (FPWR) ADVANCES RESEARCH IN ORDER TO DEVELOP NEW TREATMENTS FOR PWS AND IMPROVE THE HEALTH AND WELL-BEING OF THOSE WITH PWS. UNDER THE GUIDANCE OF OUR SCIENTIFIC ADVISORY BOARD THROUGH A CAREFULLY MANAGED GRANTS PROCESS, FPWR SELECTS RESEARCH PROJECTS BASED ON THE COLLABORATIVE INPUT OF RESEARCHERS AND PARENTS, CHOOSING PROJECTS THAT ARE BOTH SCIENTIFICALLY MERITORIOUS AND HIGHLY RELEVANT FOR INDIVIDUALS WITH PWS AND THEIR FAMILIES. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 1 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 13 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | 1 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 5303789 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 0 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 82596 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 82596 |
| IRS990/FeesForServicesLegalGrp/ProgramServicesAmt | 0 | 2475 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 2475 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 19406 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 88667 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 435380 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 543453 |
| IRS990/ForeignActivitiesInd | 0 | 1 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignGrantsGrp/ProgramServicesAmt | 0 | 816089 |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 816089 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 0.50 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 0.50 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 0.50 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 0.50 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 0.50 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 0.50 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 0.50 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 0.50 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 0.50 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 0.50 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 35.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 12 | 40.00 |
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| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 10 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | PAUL WISSMAN |
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| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | AMBER ROBERSON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | BRIAN CARUCCI |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | ANNAMARIE HUTTUNEN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | KARINE KABUNDI |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | KRISTIN WHITE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | MARK JOSEPH |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | MATT BLICKLEY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | RENEE SNYDER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | SCOTT ARANT |
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| IRS990/Form990PartVIISectionAGrp/PersonNm | 12 | THERESA STRONG |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
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| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 12 | 173430 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
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| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | CHAIRPERSON |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | VICE CHAIRPERSON |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | EXECUTIVE DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 12 | DIRECTOR OF RESEARCH PROGR |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/FormationYr | 0 | 2001 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 1 |
| IRS990/FundraisingAmt | 0 | 883542 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 156132 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 235075 |
| IRS990/GainOrLossGrp/SecuritiesAmt | 0 | 36062 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 11 |
| IRS990/GrantAmt | 0 | 3413154 |
| IRS990/GrantsPayableGrp/BOYAmt | 0 | 3532275 |
| IRS990/GrantsPayableGrp/EOYAmt | 0 | 3279084 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 2597065 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 2597065 |
| IRS990/GrantsToIndividualsInd | 0 | 0 |
| IRS990/GrantsToOrganizationsInd | 0 | 1 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt | 0 | 4104035 |
| IRS990/GrossReceiptsAmt | 0 | 10397765 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 1 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 1 |
| IRS990/IndependentVotingMemberCnt | 0 | 11 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 5 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InfoInScheduleOPartVInd | 0 | X |
| IRS990/InfoInScheduleOPartXIIInd | 0 | X |
| IRS990/InfoInScheduleOPartXIInd | 0 | X |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 9062 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 20131 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 29193 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 459894 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 459894 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/InvestmentsProgramRelatedGrp/BOYAmt | 0 | 350000 |
| IRS990/InvestmentsProgramRelatedGrp/EOYAmt | 0 | 500000 |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 28011 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 1267 |
| IRS990/IRPDocumentCnt | 0 | 0 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 8711 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 3932 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 4850 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 13561 |
| IRS990/LegalDomicileStateCd | 0 | NY |
| IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt | 0 | 4067973 |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 0 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | TO ELIMINATE THE CHALLENGES OF PRADER WILLI SYNDROME THROUGH THE ADVANCEMENT OF RESEARCH AND THERAPEUTIC DEVELOPMENT. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 1 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 5292229 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 5391322 |
| IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt | 0 | 36062 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | 36062 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | 78943 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 78943 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | -50137 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 5292229 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 5391322 |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 6150 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 47651 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 53801 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 37909 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 8065 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 926 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 3564 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 12555 |
| IRS990/OtherExpensesGrp/Desc | 0 | CATERING |
| IRS990/OtherExpensesGrp/Desc | 1 | RESEARCH |
| IRS990/OtherExpensesGrp/Desc | 2 | DUES & SUBSCRIPTIONS |
| IRS990/OtherExpensesGrp/Desc | 3 | BANK FEES |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 18681 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 5900 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 2 | 4170 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 40289 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 2 | 55920 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 225732 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 209154 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 31469 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 3 | 102 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 244413 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 209154 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 77658 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 60192 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 188098 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 84644 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 679618 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 952360 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 17567 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 4635 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 61711 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 83913 |
| IRS990/PledgesAndGrantsReceivableGrp/BOYAmt | 0 | 164138 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 618795 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 55784 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 109268 |
| IRS990/PrincipalOfficerNm | 0 | SUSAN HEDSTROM |
| IRS990/ProfessionalFundraisingInd | 0 | 0 |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 0 | 900099 |
| IRS990/ProgramServiceRevenueGrp/Desc | 0 | CONFERENCE REVENUE |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 186058 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 0 | 186058 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 5653599 |
| IRS990/PYExcessBenefitTransInd | 0 | 0 |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 3877623 |
| IRS990/PYInvestmentIncomeAmt | 0 | 294425 |
| IRS990/PYOtherExpensesAmt | 0 | 1347431 |
| IRS990/PYOtherRevenueAmt | 0 | 358367 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 229189 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 183438 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 1127088 |
| IRS990/PYTotalExpensesAmt | 0 | 6352142 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/PYTotalRevenueAmt | 0 | 6535580 |
| IRS990/QuidProQuoContributionsInd | 0 | 1 |
| IRS990/QuidProQuoContriDisclInd | 0 | 1 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 111321 |
| IRS990/RegularMonitoringEnfrcInd | 0 | 1 |
| IRS990/RelatedEntityInd | 0 | 0 |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | 0 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 1 |
| IRS990/ReportOtherAssetsInd | 0 | 0 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 0 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 1 |
| IRS990/RevenueAmt | 0 | 186058 |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 8885256 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 7637715 |
| IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt | 0 | OTHER INCOME - 2022 AMOUNT: $ 116. 2023 AMOUNT: $ 8,407. 2024 AMOUNT: $ 0. |
| IRS990ScheduleA/Form990ScheduleAPartVIGrp/FormAndLineReferenceDesc | 0 | SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 5412703 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 5653599 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 4654934 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 3612120 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 3495770 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 22829126 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt | 0 | 459894 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 219505 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 83302 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 1677 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 26556 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 790934 |
| IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt | 0 | 1143450 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 8407 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 116 |
| IRS990ScheduleA/OtherIncome170Grp/TotalAmt | 0 | 8523 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.64180 |
| IRS990ScheduleA/PublicSupportPY170Pct | 0 | 0.69970 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 15512793 |
| IRS990ScheduleA/SubstantialContributorsTotAmt | 0 | 7316333 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 5412703 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 5653599 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 4654934 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 3612120 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 3495770 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 22829126 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 24171854 |
| IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearAmt | 0 | 78943 |
| IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus1YearAmt | 0 | 349960 |
| IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 114368 |
| IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/TotalAmt | 0 | 543271 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | 1 |
| IRS990ScheduleD/EquipmentGrp/BookValueAmt | 0 | 4850 |
| IRS990ScheduleD/EquipmentGrp/DepreciationAmt | 0 | 8711 |
| IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt | 0 | 13561 |
| IRS990ScheduleD/ExpensesNotReportedAmt | 0 | -72390 |
| IRS990ScheduleD/ExpensesNotRptFinclStmtAmt | 0 | 415 |
| IRS990ScheduleD/ExpensesSubtotalAmt | 0 | 6061924 |
| IRS990ScheduleD/FootnoteTextInd | 0 | X |
| IRS990ScheduleD/InvstProgramRelatedOrgGrp/BookValueAmt | 0 | 100000 |
| IRS990ScheduleD/InvstProgramRelatedOrgGrp/BookValueAmt | 1 | 100000 |
| IRS990ScheduleD/InvstProgramRelatedOrgGrp/BookValueAmt | 2 | 150000 |
| IRS990ScheduleD/InvstProgramRelatedOrgGrp/BookValueAmt | 3 | 150000 |
| IRS990ScheduleD/InvstProgramRelatedOrgGrp/Desc | 0 | CONVERTIBLE NOTE-PALOBIOFARMA |
| IRS990ScheduleD/InvstProgramRelatedOrgGrp/Desc | 1 | PREFERRED SERIES A-LIPIDIO PHARMACEUTICALS |
| IRS990ScheduleD/InvstProgramRelatedOrgGrp/Desc | 2 | PREFERRED SERIES B-AARDVARK THERAPEUTICS |
| IRS990ScheduleD/InvstProgramRelatedOrgGrp/Desc | 3 | PREFERRED SERIES C-AARDVARK THERAPEUTICS |
| IRS990ScheduleD/InvstProgramRelatedOrgGrp/MethodValuationCd | 0 | C |
| IRS990ScheduleD/InvstProgramRelatedOrgGrp/MethodValuationCd | 1 | C |
| IRS990ScheduleD/InvstProgramRelatedOrgGrp/MethodValuationCd | 2 | C |
| IRS990ScheduleD/InvstProgramRelatedOrgGrp/MethodValuationCd | 3 | C |
| IRS990ScheduleD/NetUnrealizedGainsInvstAmt | 0 | -50136 |
| IRS990ScheduleD/OtherExpensesIncludedAmt | 0 | -72390 |
| IRS990ScheduleD/OtherExpensesNotIncludedAmt | 0 | 415 |
| IRS990ScheduleD/OtherRevenueAmt | 0 | -34897 |
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