Foundation for Prader-Willi Researchinc

“The organization uses an outside management company, trinet, a professional employer organization ("peo") as a co-employer. Trinet was paid $18,704 during fiscal year 2018 for their services. The three individuals listed in part vii, susan headstrom, nathalie kayadjanian and hannah berger are paid by the peo. Their calendar year 2018 compensation is reported in part vii, section a, and schedule j, part ii, as required. Their 2018 w-2 compensation as well as deferred compensation and non-taxable benefits were as follows: - susan headstorm: $87,299 base compensation, $0 deferred compensation and $1,125 non-taxable benefits. - nathalie kayadjanian: $178,257 base compensation, $0 deferred compensation and $2,037 non-taxable benefits. - theresa strong: $139,015 base compensation, $0 deferred compensation and $965 non-taxable benefits. - john walter: $276,320 base compensation, $0 deferred compensation, and $29,755 non-taxable benefits.”

“Foundation for prader-willi research inc. Has its form 990 prepared by an outside accounting firm and has established the following review process to ensure that the information reported is complete and accurate. When the form 990 has been prepared, reviewed by management and is ready to be filed with the internal revenue service, it is circulated among board members with an explicit deadline for which any comments must be submitted by. After all comments are addressed, the form 990 is electronically filed with the irs.”

“The board members review and discuss the conflict of interest policy annually at a board meeting. Board members are required to self disclose and the board has an additional governance committee. Each member is then required to sign the disclosure form at the meeting noting conflicts. An interested person may make a presentation at the governing board or committee meeting, but after the presentation, he/she shall leave the meeting during the discussion of, and the vote on, the transaction or arrangement involving the possible conflict of interest.”

“On an annual basis goals are set for the ceo by the exceutive committee of the board and reviewed during and at the completion of the fiscal year. The executive committee then meets with the ceo, provides feedback and informs as to any additional compensation. Meirt increases are set to cpi for all employees, including the ceo. Additional compensation for all other staff is recomended by the ceo to the executive committee of the board and once approved by them distribtued. This process was documented in the board minutes and this process was last completed in 2018.”

“The organization's 990 is made public on the website guidestar (www.guidestar.org). All governing documents and financial information are maintained by jones & associates, and can be provided upon request.”

“Write-off of uncollectible pledge -22,500.”

“The organization has a committee that assumes responsibility for oversight of the audit of its financial statements and selection of an independent accountant. This process did not change from the prior year.”