Civic Intelligence

Foundation for Prader-Willi Researchinc

990 • Fiscal year 2021 • EIN 31-1763110

Jan 01, 2021 to Dec 31, 2021 • Filed on Oct 24, 2022

340 S Lemon Ave 3620Walnut, CA 91789-2706

(888) 322-5487

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

61st percentile

0.22x

Higher debt load relative to assets than 61% of similar nonprofits.

2021 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2021

Liabilities / Revenue

69th percentile

0.38x

Higher debt load relative to revenue than 69% of similar nonprofits.

2021 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2021

Net Margin

60th percentile

18%

Higher net margin than 60% of similar nonprofits.

2021 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2021

Top Officer Pay

88th percentile

$286,400

Higher top officer pay than 88% of similar nonprofits.

Top officer pay equals 7.5% of source-year revenue.

2021 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2021

Asset Growth

44th percentile

7.3%

Faster asset growth than 44% of similar nonprofits.

2021 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2020 to 2021

Revenue Growth

40th percentile

5.0%

Faster revenue growth than 40% of similar nonprofits.

2021 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2020 to 2021

Assets

Up

$6,744,610

Up $458,682 (+7.3%) from 2020

Net Assets

Up

$5,271,377

Up $892,561 (+20%) from 2020

Liabilities

Down

$1,473,233

Down $433,879 (-23%) from 2020

Revenue

Up

$3,838,959

Up $183,595 (+5.0%) from 2020

Expenses

Up

$3,149,610

Up $95,957 (+3.1%) from 2020

Net Income

Up

$689,349

Up $87,638 (+15%) from 2020

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$10M$5.0M$0Assets 2010: $627,589Liabilities 2010: $191,396Net Assets 2010: $436,1932010Assets 2011: $1,545,653Liabilities 2011: $380,355Net Assets 2011: $1,165,2982011Assets 2012: $1,895,712Liabilities 2012: $194,897Net Assets 2012: $1,700,8152012Assets 2013: $2,336,935Liabilities 2013: $650,556Net Assets 2013: $1,686,3792013Assets 2014: $3,824,434Liabilities 2014: $882,416Net Assets 2014: $2,942,0182014Assets 2015: $5,051,231Liabilities 2015: $1,979,286Net Assets 2015: $3,071,9452015Assets 2016: $4,877,823Liabilities 2016: $1,518,397Net Assets 2016: $3,359,4262016Assets 2018: $5,481,978Liabilities 2018: $1,299,792Net Assets 2018: $4,182,1862018Assets 2019: $5,712,409Liabilities 2019: $2,108,729Net Assets 2019: $3,603,6802019Assets 2020: $6,285,928Liabilities 2020: $1,907,112Net Assets 2020: $4,378,8162020Assets 2021: $6,744,610Liabilities 2021: $1,473,233Net Assets 2021: $5,271,3772021Assets 2022: $8,344,580Liabilities 2022: $3,233,878Net Assets 2022: $5,110,7022022Assets 2024: $8,871,895Liabilities 2024: $3,480,573Net Assets 2024: $5,391,3222024

Highlighted filing

2021

Assets$6,744,610
Liabilities$1,473,233
Net Assets$5,271,377

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$8.0M$6.0M$4.0M$2.0M$0-$2.0MExpenses 2010: $488,5832010Expenses 2011: $693,6712011Expenses 2012: $692,1552012Revenue 2013: $1,404,365Expenses 2013: $1,417,383Net Income 2013: -$13,0182013Revenue 2014: $3,032,815Expenses 2014: $1,777,176Net Income 2014: $1,255,6392014Revenue 2015: $2,989,838Expenses 2015: $2,859,911Net Income 2015: $129,9272015Revenue 2016: $3,277,707Expenses 2016: $3,102,558Net Income 2016: $175,1492016Revenue 2018: $4,152,623Expenses 2018: $3,593,919Net Income 2018: $558,7042018Revenue 2019: $4,062,325Expenses 2019: $4,494,006Net Income 2019: -$431,6812019Revenue 2020: $3,655,364Expenses 2020: $3,053,653Net Income 2020: $601,7112020Revenue 2021: $3,838,959Expenses 2021: $3,149,610Net Income 2021: $689,3492021Revenue 2022: $5,083,937Expenses 2022: $5,088,497Net Income 2022: -$4,5602022Revenue 2024: $6,173,660Expenses 2024: $6,062,339Net Income 2024: $111,3212024

Highlighted filing

2021

Revenue$3,838,959
Expenses$3,149,610
Net Income$689,349
Jump To
Filing Snapshot
Filing Period
Jan 1, 2021 to Dec 31, 2021
Signed
Oct 24, 2022
Return Version
2021v4.2
Gross Receipts
$3,904,492
Mission and Program Overview

Mission

The Foundation for Prader-Willi Research is dedicated to supporting research to advance the understanding and treatment of Prader-Willi Syndrome.

Supports research to advance the understanding and treatment of prader-willi syndrome

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$5,426,783$5,717,225▲ $290,442
Pledges and Grants Receivable$298,149$459,250▲ $161,101
Investments Program Related$265,000$430,000▲ $165,000
Prepaid Expenses and Deferred Charges$131,011$130,629▼ $382
Investments in Publicly Traded Securities$1,053$5,542▲ $4,489
Land, Buildings, and Equipment, Net$3,870$1,548▼ $2,322
Cash and Non-Interest-Bearing Accounts$160,062$416▼ $159,646
Total Assets$6,285,928$6,744,610▲ $458,682
Liabilities
Grants Payable$1,690,517$1,409,874▼ $280,643
Other Liabilities$159,300$0▼ $159,300
Accounts Payable and Accrued Expenses$50,920$61,609▲ $10,689
Deferred Revenue$6,375$1,750▼ $4,625
Total Liabilities$1,907,112$1,473,233▼ $433,879
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$3,964,396$4,990,690▲ $1,026,294
Net Assets With Donor Restrictions$414,420$280,687▼ $133,733
Total Net Assets Fund Balance$4,378,816$5,271,377▲ $892,561
Total Liabilities and Net Assets / Fund Balance$6,285,928$6,744,610▲ $458,682

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$1,548$5,419$6,967
Investment Program Related Org$430,000--
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
John WalterCEO Thru 12/17/21FT$226,687$59,713$286,400
Theresa StrongDirector of Research ProgramsFT$146,847$92$146,939
Susan HedstromExecutive DirectorFT$64,433$407$64,840

Board Members and Trustees

NameTitle
Jeannine KowalPresident
Drew HarmanVice President Eff. 3/21
Alicia SecorDirector
David PfiefferDirector
Guy NiedorkomDirector
Ian AlbergDirector
Jack JonesDirector
Jason WaldropDirector
Karen ShahinianDirector
Scott ArantDirector
Brian Dula MdDirector Thru 3/21
Daniel ChorneyDirector, Treas. Thru 3/21
Brent SnyderDirector, Vice Pres Thru 3/21
Amber RobersonSecretary
Paul WissmanTreasurer Eff. 3/21
Revenue and Support

Revenue Composition

Contributions and Grants
$3,612,120
Program Service Revenue
$235,036
Investment Income
$16,585
Other Revenue
$-24,782
All Other Contributions
$3,029,947
Change in Net Assets
$689,349

Audited Revenue Reconciliation

Revenue per Audited Statements
$3,548,949
Revenue Not Reported on Financial Statements
$290,010
Revenue Not Reported on Form 990
$193
Other Revenue Adjustments
$290,010
Total Revenue per Audited Statements
$3,549,142
Total Revenue per Form 990
$3,838,959
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$1,757,456
Salaries, Compensation, and Employee Benefits$939,676
Other Expenses$452,478
Total Fundraising Expense$277,546
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$1,108,251--$1,108,251
Foreign Grants$649,205--$649,205
Other Salaries and Wages$400,729$8,267$111,807$520,803
Current Officers, Directors, Trustees, and Key Employees$204,260$55,928$91,052$351,240
Fees for Services Other$63,553$70,750$15,563$149,866
Office Expenses$20,018$38,622$39,080$97,720
Fees for Services Accounting-$71,311-$71,311
Payroll Taxes$43,343$4,310$14,369$62,022
Information Technology$455$30,241-$30,696
Other Expenses$21,444$844-$22,288
Insurance-$13,202-$13,202
Advertising-$573$5,080$5,653
Other Employee Benefits$4,874$271$466$5,611
Travel$783$1,753$129$2,665
Depreciation Depletion-$2,322-$2,322
Fees for Services Legal-$1,200-$1,200
Total Functional Expenses$2,570,158$301,906$277,546$3,149,610

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Form 990$3,149,610
Expenses per Audited Statements$2,946,591
Total Expenses per Audited Statements$2,946,591
Expenses Not Reported on Financial Statements$203,019
Other Expense Adjustments$203,019
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Foundation of Angelman SyndromeAurora, IL501(c)(3)Research$154,000
Baylor College of MedicineDallas, TX501(c)(3)Research$108,000
Saint Louis UniversitySt Louis, MO501(c)(3)Research$108,000
Ohio State UniversityColumbus, OHState of OhResearch$107,950
University of TennesseMemphis, TNState of TnResearch$102,600
The Salk Institute for Biological StudiesLa Jolla, CA501(c)(3)Research$100,000
University of Texas Health Science CenterSan Antonio, TX501(c)(3)Research$89,100
Case Western Reserve UniversityCleveland, OH501(c)(3)Research$70,801
University of ConnecticutStorrs, CTState of CtResearch$64,800
University of PittsburghPittsburgh, PAState of PaResearch$64,800
Purdue UniversityWest Lafayette, IN501(c)(3)Research$56,700
Albert Einstein CollegeBronx, NY501(c)(3)Research$10,800

International Summary

Offices
0
Employees
0
Spending
$649,206

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
Europe (including Iceland & Greenland)Grants to Recipients in Region for Research-00$636,506
North AmericaGrants to Recipients in Region for Research-00$12,700
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$60,422
Fundraising Gross Income$35,640
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Harvesting Hope$45,221$23,525$4,962$18,563
Iggs Festival$177,832$3,500$22,500$-19,000
Total Events$327,803$35,640$60,422$-24,782
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

Foundation for prader-willi research inc. Has its form 990 prepared by an outside accounting firm and has established the following review process to ensure that the information reported is complete and accurate. When the form 990 has been prepared, reviewed by management and is ready to be filed with the internal revenue service, it is circulated among board members with an explicit deadline for which any comments must be submitted by. After all comments are addressed, the form 990 is electronically filed with the irs.

Form 990, Part VI, Section B, Line 12C

The board members review and discuss the conflict of interest policy annually at a board meeting. The governing board or delegated committee is responsible for determining and reviewing conflicts of interest. Board members and principal officers are required to self disclose and the board has an additional governance committee. Each member and principal officer is then required to sign the disclosure form at the meeting noting conflicts. An interested person may make a presentation at the governing board or committee meeting, but after the presentation, he/she shall leave the meeting during the discussion of, and the vote on, the transaction or arrangement involving the possible conflict of interest.

Form 990, Part VI, Section B, Line 15A

The process for determining the compensation of the ceo included the use of comparability data, and included review and approval by the executive committee of the board. The process was documented and last undertaken in 2019. Compensation increases for other staff are recommended by the ceo to the executive committee, who reviews and approves these increases.

Form 990, Part VI, Section C, Line 19

The organization makes its governing documents, conflict of interest policy, and financial statements available to the public upon request. The form 990 is available at www.guidestar.org.

Filing and Contact Details

Filer

Filer Name
Foundation for Prader-willi
EIN
31-1763110
Phone
8883225487
Address
340 S LEMON AVE 3620, WALNUT, CA 91789-2706

Signing Officer

Name
Susan Hedstrom
Title
Executive Director
Phone
8883225487
Signed
2022-10-24
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Susan Hedstrom
Formed
2001
Legal Domicile
Ny
Voting Board Members
14
Independent Board Members
14
Employees
11
Volunteers
50

Preparer

Firm
PKF O'CONNOR DAVIES LLP
Address
245 PARK AVENUE 12TH FLOOR, NEW YORK, NY 10167
Preparer
Eva Mruk
Phone
9143818900
Supplemental Narrative

Additional Explanations

FORM 990, PART XI, LINE 9:

Refund of grant expense 203,019.

Form 990, Part XII, Line 2C

The organization has a committee that assumes responsibility for the oversight of the audit of its financial statements and the selection of an independent accountant. This process did not change from the prior year.

Part V, Line 2A

The organization contracted with a professional employer organization (peo) for services, including but not limited to, payroll, timekeeping, employee benefits, hr administration and workforce regulatory compliance needs. As the employer of record for tax purposes, forms w-2 and w-3 are issued by the peo and filed under the peo's federal ein. In this co-employment arrangement, the organization is the common law employer and, accordingly, compensation is reported on form 990, part vii, section a and part ix, lines 5-10.

Financial Statement Notes

PART X, LINE 2:

The foundation recognizes the effect of income tax positions only if those positions are more likely not to be sustained. Management has determined that the foundation had no uncertain positions that would require financial statement recognition or disclosure. The foundation is no longer subject to examinations by the applicable taxing jurisdictions for periods prior to 2018.

PART XI, LINE 4B - OTHER ADJUSTMENTS:

Cares act stimulus 290,010.

PART XII, LINE 4B - OTHER ADJUSTMENTS:

Refund of grant expense reported on part xi, line 9 203,019.

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IRS990/Form990PartVIISectionAGrp/PersonNm12ALICIA SECOR
IRS990/Form990PartVIISectionAGrp/PersonNm13KAREN SHAHINIAN
IRS990/Form990PartVIISectionAGrp/PersonNm14JASON WALDROP
IRS990/Form990PartVIISectionAGrp/PersonNm15JOHN WALTER
IRS990/Form990PartVIISectionAGrp/PersonNm16SUSAN HEDSTROM
IRS990/Form990PartVIISectionAGrp/PersonNm17THERESA STRONG
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt15242434
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt1664433
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt17146847
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/TitleTxt0PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt1VICE PRESIDENT EFF. 3/21
IRS990/Form990PartVIISectionAGrp/TitleTxt2DIRECTOR, VICE PRES THRU 3/21
IRS990/Form990PartVIISectionAGrp/TitleTxt3SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt4TREASURER EFF. 3/21
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR, TREAS. THRU 3/21
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR THRU 3/21
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15CEO THRU 12/17/21
IRS990/Form990PartVIISectionAGrp/TitleTxt16EXECUTIVE DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt17DIRECTOR OF RESEARCH PROGRAMS
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr02001
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt0292163
IRS990/FundraisingDirectExpensesAmt060422
IRS990/FundraisingGrossIncomeAmt035640
IRS990/GainOrLossGrp/SecuritiesAmt0-92
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt014
IRS990/GovernmentGrantsAmt0290010
IRS990/GrantAmt01757456
IRS990/GrantsPayableGrp/BOYAmt01690517
IRS990/GrantsPayableGrp/EOYAmt01409874
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt01108251
IRS990/GrantsToDomesticOrgsGrp/TotalAmt01108251
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt05019
IRS990/GrossReceiptsAmt03904492
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt014
IRS990/IndivRcvdGreaterThan100KCnt02
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InfoInScheduleOPartXIInd0X
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt030241
IRS990/InformationTechnologyGrp/ProgramServicesAmt0455
IRS990/InformationTechnologyGrp/TotalAmt030696
IRS990/InsuranceGrp/ManagementAndGeneralAmt013202
IRS990/InsuranceGrp/TotalAmt013202
IRS990/InvestmentIncomeGrp/ExclusionAmt01677
IRS990/InvestmentIncomeGrp/RelatedOrExemptFuncIncomeAmt015000
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt016677
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsProgramRelatedGrp/BOYAmt0265000
IRS990/InvestmentsProgramRelatedGrp/EOYAmt0430000
IRS990/InvestmentsPubTradedSecGrp/BOYAmt01053
IRS990/InvestmentsPubTradedSecGrp/EOYAmt05542
IRS990/IRPDocumentCnt07
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt05419
IRS990/LandBldgEquipBasisNetGrp/BOYAmt03870
IRS990/LandBldgEquipBasisNetGrp/EOYAmt01548
IRS990/LandBldgEquipCostOrOtherBssAmt06967
IRS990/LegalDomicileStateCd0NY
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt05111
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0TO ELIMINATE THE CHALLENGES OF PRADER WILLI SYNDROME THROUGH THE ADVANCEMENT OF RESEARCH AND THERAPEUTIC DEVELOPMENT.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd01
IRS990/NetAssetsOrFundBalancesBOYAmt04378816
IRS990/NetAssetsOrFundBalancesEOYAmt05271377
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt0-92
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt0-92
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0-24782
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0-24782
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt0193
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt03964396
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt04990690
IRS990/NondeductibleContributionsInd00
IRS990/OfficeExpensesGrp/FundraisingAmt039080
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt038622
IRS990/OfficeExpensesGrp/ProgramServicesAmt020018
IRS990/OfficeExpensesGrp/TotalAmt097720
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherChangesInNetAssetsAmt0203019
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt0466
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt0271
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt04874
IRS990/OtherEmployeeBenefitsGrp/TotalAmt05611
IRS990/OtherExpensesGrp/Desc0PARTICIPANT INCENTIVES
IRS990/OtherExpensesGrp/Desc1AUDIO VISUAL EXPENSES
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt02312
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt1844
IRS990/OtherExpensesGrp/ProgramServicesAmt053243
IRS990/OtherExpensesGrp/ProgramServicesAmt121444
IRS990/OtherExpensesGrp/TotalAmt055555
IRS990/OtherExpensesGrp/TotalAmt122288
IRS990/OtherLiabilitiesGrp/BOYAmt0159300
IRS990/OtherLiabilitiesGrp/EOYAmt00
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt0111807
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt08267
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0400729
IRS990/OtherSalariesAndWagesGrp/TotalAmt0520803
IRS990/OtherWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt014369
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt04310
IRS990/PayrollTaxesGrp/ProgramServicesAmt043343
IRS990/PayrollTaxesGrp/TotalAmt062022
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt0298149
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt0459250
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt0131011
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt0130629
IRS990/PrincipalOfficerNm0SUSAN HEDSTROM
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0900099
IRS990/ProgramServiceRevenueGrp/Desc0CONFERENCE REVENUE
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt0235036
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt0235036
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt03495770
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt01572725
IRS990/PYInvestmentIncomeAmt026556
IRS990/PYOtherExpensesAmt0469295
IRS990/PYOtherRevenueAmt0-16517
IRS990/PYProgramServiceRevenueAmt0149555
IRS990/PYRevenuesLessExpensesAmt0601711
IRS990/PYSalariesCompEmpBnftPaidAmt01011633
IRS990/PYTotalExpensesAmt03053653
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt03655364
IRS990/QuidProQuoContributionsInd01
IRS990/QuidProQuoContriDisclInd01
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt0689349
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd01
IRS990/RevenueAmt0250036
IRS990/SavingsAndTempCashInvstGrp/BOYAmt05426783
IRS990/SavingsAndTempCashInvstGrp/EOYAmt05717225
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt03612120
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt03495770
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt03863432
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt03950192
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt03245876
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt018167390
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt01677
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt026556
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt054246
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt040045
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt025649
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt0148173
IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt0783970
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.81730
IRS990ScheduleA/PublicSupportPY170Pct00.82940
IRS990ScheduleA/PublicSupportTotal170Amt014971680
IRS990ScheduleA/SubstantialContributorsTotAmt03195710
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt03612120
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt03495770
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt03863432
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt03950192
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt03245876
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt018167390
IRS990ScheduleA/TotalSupportAmt018318152
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus3YearsAmt02589
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/TotalAmt02589
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED

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Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$8.87$3.48$5.39$6.17$6.06$0.11
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$8.34$3.23$5.11$5.08$5.09$0.00
2021Detailed filing. Detailed filing data is available for this year.$6.74$1.47$5.27$3.84$3.15$0.69
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$6.29$1.91$4.38$3.66$3.05$0.60
2019Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.71$2.11$3.60$4.06$4.49$0.43
2018Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.48$1.30$4.18$4.15$3.59$0.56
2016Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.88$1.52$3.36$3.28$3.10$0.18
2015Detailed filing. Detailed filing data is available for this year.$5.05$1.98$3.07$2.99$2.86$0.13
2014Detailed filing. Detailed filing data is available for this year.$3.82$0.88$2.94$3.03$1.78$1.26
2013Detailed filing. Detailed filing data is available for this year.$2.34$0.65$1.69$1.40$1.42$0.01
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.90$0.19$1.70$0.69
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.55$0.38$1.17$0.69
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.63$0.19$0.44$0.49