Civic Intelligence

Foundation for Prader-Willi Researchinc

990 • Fiscal year 2020 • EIN 31-1763110

Jan 01, 2020 to Dec 31, 2020 • Filed on Nov 12, 2021

340 S Lemon Ave No 3620Walnut, CA 91789-2706

(888) 322-5487

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

63rd percentile

0.30x

Higher debt load relative to assets than 63% of similar nonprofits.

2020 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2020

Liabilities / Revenue

71st percentile

0.52x

Higher debt load relative to revenue than 71% of similar nonprofits.

2020 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2020

Net Margin

72nd percentile

16%

Higher net margin than 72% of similar nonprofits.

2020 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2020

Top Officer Pay

87th percentile

$287,441

Higher top officer pay than 87% of similar nonprofits.

Top officer pay equals 7.9% of source-year revenue.

2020 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2020

Asset Growth

59th percentile

10%

Faster asset growth than 59% of similar nonprofits.

2020 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2019 to 2020

Revenue Growth

29th percentile

-10%

Faster revenue growth than 29% of similar nonprofits.

2020 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2019 to 2020

Assets

Up

$6,285,928

Up $573,519 (+10%) from 2019

Net Assets

Up

$4,378,816

Up $775,136 (+22%) from 2019

Liabilities

Down

$1,907,112

Down $201,617 (-9.6%) from 2019

Revenue

Down

$3,655,364

Down $406,961 (-10%) from 2019

Expenses

Down

$3,053,653

Down $1,440,353 (-32%) from 2019

Net Income

Up

$601,711

Up $1,033,392 (+239%) from 2019

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$10M$5.0M$0Assets 2010: $627,589Liabilities 2010: $191,396Net Assets 2010: $436,1932010Assets 2011: $1,545,653Liabilities 2011: $380,355Net Assets 2011: $1,165,2982011Assets 2012: $1,895,712Liabilities 2012: $194,897Net Assets 2012: $1,700,8152012Assets 2013: $2,336,935Liabilities 2013: $650,556Net Assets 2013: $1,686,3792013Assets 2014: $3,824,434Liabilities 2014: $882,416Net Assets 2014: $2,942,0182014Assets 2015: $5,051,231Liabilities 2015: $1,979,286Net Assets 2015: $3,071,9452015Assets 2016: $4,877,823Liabilities 2016: $1,518,397Net Assets 2016: $3,359,4262016Assets 2018: $5,481,978Liabilities 2018: $1,299,792Net Assets 2018: $4,182,1862018Assets 2019: $5,712,409Liabilities 2019: $2,108,729Net Assets 2019: $3,603,6802019Assets 2020: $6,285,928Liabilities 2020: $1,907,112Net Assets 2020: $4,378,8162020Assets 2021: $6,744,610Liabilities 2021: $1,473,233Net Assets 2021: $5,271,3772021Assets 2022: $8,344,580Liabilities 2022: $3,233,878Net Assets 2022: $5,110,7022022Assets 2024: $8,871,895Liabilities 2024: $3,480,573Net Assets 2024: $5,391,3222024

Highlighted filing

2020

Assets$6,285,928
Liabilities$1,907,112
Net Assets$4,378,816

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$8.0M$6.0M$4.0M$2.0M$0-$2.0MExpenses 2010: $488,5832010Expenses 2011: $693,6712011Expenses 2012: $692,1552012Revenue 2013: $1,404,365Expenses 2013: $1,417,383Net Income 2013: -$13,0182013Revenue 2014: $3,032,815Expenses 2014: $1,777,176Net Income 2014: $1,255,6392014Revenue 2015: $2,989,838Expenses 2015: $2,859,911Net Income 2015: $129,9272015Revenue 2016: $3,277,707Expenses 2016: $3,102,558Net Income 2016: $175,1492016Revenue 2018: $4,152,623Expenses 2018: $3,593,919Net Income 2018: $558,7042018Revenue 2019: $4,062,325Expenses 2019: $4,494,006Net Income 2019: -$431,6812019Revenue 2020: $3,655,364Expenses 2020: $3,053,653Net Income 2020: $601,7112020Revenue 2021: $3,838,959Expenses 2021: $3,149,610Net Income 2021: $689,3492021Revenue 2022: $5,083,937Expenses 2022: $5,088,497Net Income 2022: -$4,5602022Revenue 2024: $6,173,660Expenses 2024: $6,062,339Net Income 2024: $111,3212024

Highlighted filing

2020

Revenue$3,655,364
Expenses$3,053,653
Net Income$601,711
Jump To
Filing Snapshot
Filing Period
Jan 1, 2020 to Dec 31, 2020
Signed
Nov 12, 2021
Return Version
2020v4.1
Gross Receipts
$3,692,946
Mission and Program Overview

Mission

The Foundation for Prader-Willi Research is dedicated to supporting research to advance the understanding and treatment of Prader-Willi Syndrome.

Supports research to advance the understanding and treatment of prader-willi syndrome

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$5,301,292$5,426,783▲ $125,491
Pledges and Grants Receivable$183,738$298,149▲ $114,411
Investments Program Related$150,000$265,000▲ $115,000
Cash and Non-Interest-Bearing Accounts$431$160,062▲ $159,631
Prepaid Expenses and Deferred Charges$64,235$131,011▲ $66,776
Land, Buildings, and Equipment, Net$6,193$3,870▼ $2,323
Investments in Publicly Traded Securities$6,520$1,053▼ $5,467
Total Assets$5,712,409$6,285,928▲ $573,519
Liabilities
Grants Payable$2,018,768$1,690,517▼ $328,251
Other Liabilities$0$159,300▲ $159,300
Accounts Payable and Accrued Expenses$89,961$50,920▼ $39,041
Deferred Revenue$0$6,375▲ $6,375
Total Liabilities$2,108,729$1,907,112▼ $201,617
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$3,205,976$3,964,396▲ $758,420
Net Assets With Donor Restrictions$397,704$414,420▲ $16,716
Total Net Assets Fund Balance$3,603,680$4,378,816▲ $775,136
Total Liabilities and Net Assets / Fund Balance$5,712,409$6,285,928▲ $573,519

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$3,870$3,097$6,967
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
John WalterCEOFT$210,693$76,748$287,441
Theresa StrongDirector of Research ProgramsFT$135,085$60$135,145
Nathalie KayadjanianDirector of Translational Research Through 6/30FT$120,916$3,916$124,832
Susan HedstromExecutive DirectorFT$73,132-$73,132

Board Members and Trustees

NameTitle
Jeannine KowalPresident
Brent SnyderVice President
Alicia SecorBoard Member
Amber RobersonBoard Member
Brian DulaBoard Member
David PfiefferBoard Member
Drew HarmanBoard Member
Guy NiedorkomBoard Member
Ian AlbergBoard Member
Jack JonesBoard Member
Jason WaldropBoard Member
Karen ShahinianBoard Member
Paul WissmanBoard Member
Scott ArantBoard Member
Daniel ChorneyTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$3,495,770
Program Service Revenue
$149,555
Investment Income
$26,556
Other Revenue
$-16,517
All Other Contributions
$3,212,092
Change in Net Assets
$601,711

Audited Revenue Reconciliation

Revenue per Audited Statements
$3,655,364
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$1,616
Total Revenue per Audited Statements
$3,656,980
Total Revenue per Form 990
$3,655,364
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$1,572,725
Salaries, Compensation, and Employee Benefits$1,011,633
Other Expenses$469,295
Total Fundraising Expense$256,663
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$994,721--$994,721
Foreign Grants$578,004--$578,004
Other Salaries and Wages$387,735$58,042$112,860$558,637
Current Officers, Directors, Trustees, and Key Employees$250,263$37,463$72,845$360,571
Fees for Services Other$52,236$74,349$17,152$143,737
Office Expenses$20,107$57,065$14,861$92,033
Payroll Taxes$50,355$7,538$14,657$72,550
Fees for Services Accounting-$59,126-$59,126
Information Technology$188$25,805-$25,993
Fees for Services Management$16,265$2,435$4,735$23,435
Other Expenses$20,086$1,300$12,482$21,386
Other Employee Benefits$13,795$2,065$4,015$19,875
Insurance-$12,826-$12,826
Travel$918$4,631$543$6,092
Advertising-$213$2,513$2,726
Depreciation Depletion-$2,323-$2,323
Conferences and Meetings-$1,579-$1,579
Fees for Services Legal-$900-$900
Total Functional Expenses$2,445,859$351,131$256,663$3,053,653

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Form 990$3,053,653
Expenses per Audited Statements$2,881,844
Total Expenses per Audited Statements$2,881,844
Expenses Not Reported on Financial Statements$171,809
Other Expense Adjustments$171,809
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Duke UniversityDurham, NC501(c)(3)Research$108,000
Maimonides Medical CenterBrooklyn, NY501(c)(3)Research$108,000
Yale UniversityNew Haven, CT501(c)(3)Research$108,000
Ohio State UniversityColombus, OHState of OhResearch$107,447
State University of New York at BuffaloAlbany, NY501(c)(3)Research$102,600
University of FloridaGainesville, FLState of FlResearch$97,907
University of TennesseeMemphis, TNState of TnResearch$97,200
Sanford Burnham Prebys Medical Discovery InstituteLa Jolla, CA501(c)(3)Research$81,037
SHRINER'S HOSPITAL FOR CHILDRENPhiladelphia, PA501(c)(3)Research$71,820
Albert Einstein College of Medicine and Montefiore Medical CenterBronx, NY501(c)(3)Research$54,000
Massachusetts General HospitalBoston, MA501(c)(3)Research$54,000

International Summary

Offices
0
Employees
0
Spending
$578,004

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
Europe (including Iceland & Greenland)Grants to Recipients in Region for Research---$470,004
East Asia and the PacificGrants to Recipients in Region for Research---$108,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$37,582
Fundraising Gross Income$21,065
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Hh5k$43,993$13,940$12,274$1,666
Iggsf$129,945$2,300-$2,300
Total Events$304,743$21,065$37,582$-16,517
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Paycheck Protection Program Loan$159,300
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
Yes

Governance Explanations

Form 990, Part VI, Section A, Line 3

The organization uses trinet hr corporation ("trinet"), a professional employer organization ("peo"), which provides professional employer services. In the peo relationship, trinet and the organization share certain responsibilities and allocate other employer responsibilities individually. The organization remains an employer of the organization's employees, and trinet is a co-employer. The organization has direction and control over employees as is necessary to: conduct its business; discharge any fiduciary responsibility it may have; and comply with any applicable licensure, regulatory or statutory requirement of solar one. In addition, the organization has control over the day-to-day job duties of employees and over the job sites at which or from which employees perform services. Trinet reserves a right of direction and control over employees as is necessary to fulfill its obligations and provide its services under an agreement between the organization and trinet. Trinet and the organization have a right to hire, discipline, and terminate employees as to each one's employment relationship with the employees. Fee paid to trinet in 2019 was $23,435.

Form 990, Part VI, Section B, Line 11B

Foundation for prader-willi research inc. Has its form 990 prepared by an outside accounting firm and has established the following review process to ensure that the information reported is complete and accurate. When the form 990 has been prepared, reviewed by management and is ready to be filed with the internal revenue service, it is circulated among board members with an explicit deadline for which any comments must be submitted by. After all comments are addressed, the form 990 is electronically filed with the irs.

Form 990, Part VI, Section B, Line 12C

The board members review and discuss the conflict of interest policy annually at a board meeting. The governing board or delegated committee is responsible for determining and reviewing conflicts of interest. Board members and principal officers are required to self disclose and the board has an additional governance committee. Each member and principal officer is then required to sign the disclosure form at the meeting noting conflicts. An interested person may make a presentation at the governing board or committee meeting, but after the presentation, he/she shall leave the meeting during the discussion of, and the vote on, the transaction or arrangement involving the possible conflict of interest.

Form 990, Part VI, Section B, Line 15A

The process for determining the compensation of the ceo included the use of comparability data, and included review and approval by the executive committee of the board. The process was documented and last undertaken in 2019. Compensation increases for other staff are recommended by the ceo to the executive committee, who reviews and approves these increases.

Form 990, Part VI, Section C, Line 19

The organization makes its governing documents, conflict of interest policy, and financial statements available to the public upon request. The form 990 is available at www.guidestar.org.

Filing and Contact Details

Filer

Filer Name
Foundation for Prader-willi
EIN
31-1763110
Phone
8883225487
Address
340 S LEMON AVE NO 3620, WALNUT, CA 91789-2706

Signing Officer

Name
John Walter
Title
CEO
Phone
8883225487
Signed
2021-11-12
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Susan Hedstrom
Formed
2001
Legal Domicile
Ny
Voting Board Members
15
Independent Board Members
15
Employees
11
Volunteers
100

Preparer

Firm
PKF O'CONNOR DAVIES LLP
Address
665 FIFTH AVENUE, NEW YORK, NY 10022
Preparer
Garrett M Higgins
Phone
9143818900
Supplemental Narrative

Additional Explanations

FORM 990, PART XI, LINE 9:

Refund of grant expense 171,809.

FORM 990, PART XII, LINE 2C:

The organization has a committee that assumes responsibility for oversight of the audit of its financial statements and selection of an independent accountant. This process did not change from the prior year.

Financial Statement Notes

PART X, LINE 2:

The foundation recognizes the effect of income tax positions only if those positions are more likely not to be sustained. Management has determined that the foundation had no uncertain positions that would require financial statement recognition or disclosure. The foundation is no longer subject to examinations by the applicable taxing jurisdictions for periods prior to 2017.

PART XII, LINE 4B - OTHER ADJUSTMENTS:

Refund of grant expense reported on part xi, line 9 171,809.

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IRS990/Form990PartVIISectionAGrp/PersonNm1THERESA STRONG
IRS990/Form990PartVIISectionAGrp/PersonNm2NATHALIE KAYADJANIAN
IRS990/Form990PartVIISectionAGrp/PersonNm3SUSAN HEDSTROM
IRS990/Form990PartVIISectionAGrp/PersonNm4JEANNINE KOWAL
IRS990/Form990PartVIISectionAGrp/PersonNm5BRENT SNYDER
IRS990/Form990PartVIISectionAGrp/PersonNm6DANIEL CHORNEY
IRS990/Form990PartVIISectionAGrp/PersonNm7IAN ALBERG
IRS990/Form990PartVIISectionAGrp/PersonNm8SCOTT ARANT
IRS990/Form990PartVIISectionAGrp/PersonNm9ALICIA SECOR
IRS990/Form990PartVIISectionAGrp/PersonNm10BRIAN DULA
IRS990/Form990PartVIISectionAGrp/PersonNm11AMBER ROBERSON
IRS990/Form990PartVIISectionAGrp/PersonNm12DREW HARMAN
IRS990/Form990PartVIISectionAGrp/PersonNm13JACK JONES
IRS990/Form990PartVIISectionAGrp/PersonNm14GUY NIEDORKOM
IRS990/Form990PartVIISectionAGrp/PersonNm15DAVID PFIEFFER
IRS990/Form990PartVIISectionAGrp/PersonNm16JASON WALDROP
IRS990/Form990PartVIISectionAGrp/PersonNm17PAUL WISSMAN
IRS990/Form990PartVIISectionAGrp/PersonNm18KAREN SHAHINIAN
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt0251636
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt1135085
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt2120916
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt373132
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/TitleTxt0CEO
IRS990/Form990PartVIISectionAGrp/TitleTxt1DIRECTOR OF RESEARCH PROGRAMS
IRS990/Form990PartVIISectionAGrp/TitleTxt2DIRECTOR OF TRANSLATIONAL RESEARCH THROUGH 6/30
IRS990/Form990PartVIISectionAGrp/TitleTxt3EXECUTIVE DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt5VICE PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt6TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt7BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt8BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt9BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt10BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt11BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt12BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt13BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt14BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt15BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt16BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt17BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt18BOARD MEMBER
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr02001
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt0283678
IRS990/FundraisingDirectExpensesAmt037582
IRS990/FundraisingGrossIncomeAmt021065
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt015
IRS990/GrantAmt01572725
IRS990/GrantsPayableGrp/BOYAmt02018768
IRS990/GrantsPayableGrp/EOYAmt01690517
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt0994721
IRS990/GrantsToDomesticOrgsGrp/TotalAmt0994721
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt03692946
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt015
IRS990/IndivRcvdGreaterThan100KCnt03
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InfoInScheduleOPartXIInd0X
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt025805
IRS990/InformationTechnologyGrp/ProgramServicesAmt0188
IRS990/InformationTechnologyGrp/TotalAmt025993
IRS990/InsuranceGrp/ManagementAndGeneralAmt012826
IRS990/InsuranceGrp/TotalAmt012826
IRS990/InvestmentIncomeGrp/ExclusionAmt026556
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt026556
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsProgramRelatedGrp/BOYAmt0150000
IRS990/InvestmentsProgramRelatedGrp/EOYAmt0265000
IRS990/InvestmentsPubTradedSecGrp/BOYAmt06520
IRS990/InvestmentsPubTradedSecGrp/EOYAmt01053
IRS990/IRPDocumentCnt08
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt03097
IRS990/LandBldgEquipBasisNetGrp/BOYAmt06193
IRS990/LandBldgEquipBasisNetGrp/EOYAmt03870
IRS990/LandBldgEquipCostOrOtherBssAmt06967
IRS990/LegalDomicileStateCd0NY
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0TO ELIMINATE THE CHALLENGES OF PRADER WILLI SYNDROME THROUGH THE ADVANCEMENT OF RESEARCH AND THERAPEUTIC DEVELOPMENT.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd01
IRS990/NetAssetsOrFundBalancesBOYAmt03603680
IRS990/NetAssetsOrFundBalancesEOYAmt04378816
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0-16517
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0-16517
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt01616
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt03205976
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt03964396
IRS990/NoncashContributionsAmt010639
IRS990/NondeductibleContributionsInd00
IRS990/OfficeExpensesGrp/FundraisingAmt014861
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt057065
IRS990/OfficeExpensesGrp/ProgramServicesAmt020107
IRS990/OfficeExpensesGrp/TotalAmt092033
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherChangesInNetAssetsAmt0171809
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt04015
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt02065
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt013795
IRS990/OtherEmployeeBenefitsGrp/TotalAmt019875
IRS990/OtherExpensesGrp/Desc0OTHER EXPENSES
IRS990/OtherExpensesGrp/Desc1AUDIO VISUAL EXPENSES
IRS990/OtherExpensesGrp/FundraisingAmt012482
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt03471
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt11300
IRS990/OtherExpensesGrp/ProgramServicesAmt061186
IRS990/OtherExpensesGrp/ProgramServicesAmt120086
IRS990/OtherExpensesGrp/TotalAmt077139
IRS990/OtherExpensesGrp/TotalAmt121386
IRS990/OtherLiabilitiesGrp/BOYAmt00
IRS990/OtherLiabilitiesGrp/EOYAmt0159300
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt0112860
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt058042
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0387735
IRS990/OtherSalariesAndWagesGrp/TotalAmt0558637
IRS990/OtherWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt014657
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt07538
IRS990/PayrollTaxesGrp/ProgramServicesAmt050355
IRS990/PayrollTaxesGrp/TotalAmt072550
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt0183738
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt0298149
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt064235
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt0131011
IRS990/PrincipalOfficerNm0SUSAN HEDSTROM
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0900099
IRS990/ProgramServiceRevenueGrp/Desc0CONFERENCE REVENUE
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt0149555
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt0149555
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt03863432
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt02534954
IRS990/PYInvestmentIncomeAmt054246
IRS990/PYOtherExpensesAmt0777292
IRS990/PYOtherRevenueAmt0-79297
IRS990/PYProgramServiceRevenueAmt0223944
IRS990/PYRevenuesLessExpensesAmt0-431681
IRS990/PYSalariesCompEmpBnftPaidAmt01173370
IRS990/PYTotalExpensesAmt04494006
IRS990/PYTotalProfFndrsngExpnsAmt08390
IRS990/PYTotalRevenueAmt04062325
IRS990/QuidProQuoContributionsInd01
IRS990/QuidProQuoContriDisclInd01
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt0601711
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd01
IRS990/ReportProgramRelatedInvstInd00
IRS990/RevenueAmt0149555
IRS990/SavingsAndTempCashInvstGrp/BOYAmt05301292
IRS990/SavingsAndTempCashInvstGrp/EOYAmt05426783
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt03495770
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt03863432
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt03950192
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt03245876
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt03359978
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt017915248
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt026556
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt054246
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt040045
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt025649
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt017552
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt0164048
IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt0533296
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.82940
IRS990ScheduleA/PublicSupportPY170Pct00.84170
IRS990ScheduleA/PublicSupportTotal170Amt014996559
IRS990ScheduleA/SubstantialContributorsTotAmt02918689
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt03495770
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt03863432
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt03950192
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt03245876
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt03359978
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt017915248
IRS990ScheduleA/TotalSupportAmt018081885
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus2YearsAmt02589

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Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$8.87$3.48$5.39$6.17$6.06$0.11
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$8.34$3.23$5.11$5.08$5.09$0.00
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$6.74$1.47$5.27$3.84$3.15$0.69
2020Detailed filing. Detailed filing data is available for this year.$6.29$1.91$4.38$3.66$3.05$0.60
2019Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.71$2.11$3.60$4.06$4.49$0.43
2018Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.48$1.30$4.18$4.15$3.59$0.56
2016Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.88$1.52$3.36$3.28$3.10$0.18
2015Detailed filing. Detailed filing data is available for this year.$5.05$1.98$3.07$2.99$2.86$0.13
2014Detailed filing. Detailed filing data is available for this year.$3.82$0.88$2.94$3.03$1.78$1.26
2013Detailed filing. Detailed filing data is available for this year.$2.34$0.65$1.69$1.40$1.42$0.01
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.90$0.19$1.70$0.69
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.55$0.38$1.17$0.69
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.63$0.19$0.44$0.49