Foundation for Prader-Willi Researchinc

“Tanya and keegan johnson have a family relationship.”

“The organization uses an outside management company, trinet, a professional employer organization ("peo") as a co-employer. Trinet was paid $16,302 during fiscal year 2017 for their services. The three individuals listed in part vii, susan headstrom, nathalie kayadjanian and hannah berger are paid by the peo. Their calendar year 2017 compensation is reported in part vii, section a, and schedule j, part ii, as required. Their 2017 w-2 compensation as well as deferred compensation and non-taxable benefits were as follows: - susan headstorm: $89,213 base compensation, $0 deferred compensation and $0 non-taxable benefits - nathalie kayadjanian: $171,154 base compensation, $0 deferred compensation and $5,637 non-taxable benefits - theresa strong: $130,000 base compensation, $0 deferred compensation and $0 non-taxable benefits”

“Foundation for prader-willi research inc. Has its form 990 prepared by an outside accounting firm and has established the following review process to ensure that the information reported is complete and accurate. When the form 990 has been prepared, reviewed by management and is ready to be filed with the internal revenue service, it is circulated among board members with an explicit deadline for which any comments must be submitted by. After all comments are addressed, the form 990 is electronically filed with the irs.”

“The board members review and discuss the conflict of interest policy annually at a board meeting. Board members are required to self disclose and the board has an additional governance committee. Each member is then required to sign the disclosure form at the meeting noting conflicts. An interested person may make a presentation at the governing board or committee meeting, but after the presentation, he/she shall leave the meeting during the discussion of, and the vote on, the transaction or arrangement involving the possible conflict of interest.”

“The board of directors determines and approves the salary awarded to the executive director. The board uses comparable data to determine the salary. This process was documented in the board minutes and this process was last completed in 2017.”

“The organization's 990 is made public on the website guidestar (www.guidestar.org). All governing documents and financial information are maintained by jones & associates, and can be provided upon request.”

“Prior year grant reversal 50,000.”

“The organization has a committee that assumes responsibility for oversight of the audit of its financial statements and selection of an independent accountant. This process did not change from the prior year.”