Liabilities / Assets
57th percentile
Higher debt load relative to assets than 57% of similar nonprofits.
990 • Fiscal year 2022 • EIN 31-1438001
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
57th percentile
Higher debt load relative to assets than 57% of similar nonprofits.
Liabilities / Revenue
65th percentile
Higher debt load relative to revenue than 65% of similar nonprofits.
Net Margin
15th percentile
Higher net margin than 15% of similar nonprofits.
Top Officer Pay
91st percentile
Higher top officer pay than 91% of similar nonprofits.
Top officer pay equals 13.3% of source-year revenue.
Asset Growth
20th percentile
Faster asset growth than 20% of similar nonprofits.
Revenue Growth
14th percentile
Faster revenue growth than 14% of similar nonprofits.
Assets
Down$2,903,030
Down $315,978 (-9.8%) from 2021
Net Assets
Down$2,596,696
Down $301,737 (-10%) from 2021
Liabilities
Down$306,334
Down $14,241 (-4.4%) from 2021
Revenue
Down$1,571,673
Down $637,912 (-29%) from 2021
Expenses
Up$1,873,408
Up $526,893 (+39%) from 2021
Net Income
Down-$301,735
Down $1,164,805 (-135%) from 2021
The LAM Foundation urgently seeks safe and effective treatments and ultimately a cure for LAM.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Savings and Temporary Cash Investments | $2,828,280 | $2,558,985 | ▼ $269,295 |
| Cash and Non-Interest-Bearing Accounts | $347,065 | $277,275 | ▼ $69,790 |
| Accounts Receivable | $5,615 | $34,736 | ▲ $29,121 |
| Prepaid Expenses and Deferred Charges | $31,864 | $30,334 | ▼ $1,530 |
| Pledges and Grants Receivable | $5,500 | $1,500 | ▼ $4,000 |
| Land, Buildings, and Equipment, Net | $214 | $0 | ▼ $214 |
| Intangible Assets | $470 | $200 | ▼ $270 |
| Other Notes and Loans Receivable, Net | - | $0 | - |
| Receivable From Disqualified Prsn | - | $0 | - |
| Receivables From Officers Etc | - | $0 | - |
| Investments Other Securities | - | $0 | - |
| Investments Program Related | - | $0 | - |
| Investments in Publicly Traded Securities | - | $0 | - |
| Inventories for Sale or Use | - | $0 | - |
| Total Assets | $3,219,008 | $2,903,030 | ▼ $315,978 |
| Other Assets Total | - | $0 | - |
| Liabilities | |||
| Grants Payable | $255,000 | $210,000 | ▼ $45,000 |
| Accounts Payable and Accrued Expenses | $36,788 | $73,011 | ▲ $36,223 |
| Other Liabilities | $28,787 | $23,323 | ▼ $5,464 |
| Total Liabilities | $320,575 | $306,334 | ▼ $14,241 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $2,562,840 | $2,401,680 | ▼ $161,160 |
| Net Assets With Donor Restrictions | $335,593 | $195,016 | ▼ $140,577 |
| Total Net Assets Fund Balance | $2,898,433 | $2,596,696 | ▼ $301,737 |
| Total Liabilities and Net Assets / Fund Balance | $3,219,008 | $2,903,030 | ▼ $315,978 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Equipment | - | $39,269 | $39,269 |
| Leasehold Improvements | - | $11,560 | $11,560 |
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Susan Sherman | CEO | FT | $180,693 | $28,265 | $208,958 |
| Name | Title |
|---|---|
| Chuck Wehland | Chairman |
| Nishant Gupta MD | Scientific Director |
| Andrea Slattery | Trustee |
| Dan Dilling MD | Trustee |
| Dr Lyndsay Hoy | Trustee |
| Eden Pontz | Trustee |
| Jilly Evans PhD | Trustee |
| Lisa Henske MD | Trustee |
| Pat Venters | Trustee |
| Patti Bebien-Aronoff | Trustee |
| Stephanie Nemser-Dreyer | Trustee |
| Vera Krymskaya PhD | Trustee |
| Chuck Young | Secretary |
| Andrew Romanosky | Treasurer |
| Line Item | Amount |
|---|---|
| Other Expenses | $838,820 |
| Salaries, Compensation, and Employee Benefits | $603,077 |
| Grants and Similar Amounts Paid | $431,511 |
| Total Fundraising Expense | $235,844 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Grants to Domestic Orgs | $431,511 | - | - | $431,511 |
| Other Salaries and Wages | $259,746 | $28,146 | $106,227 | $394,119 |
| Conferences and Meetings | $369,214 | $212 | $9,502 | $378,928 |
| Fees for Services Other | $142,387 | $58,009 | $67,632 | $268,028 |
| Current Officers, Directors, Trustees, and Key Employees | $135,823 | $52,239 | $20,896 | $208,958 |
| Occupancy | $20,421 | $5,697 | $9,041 | $35,159 |
| All Other Expenses | $11,575 | $4,079 | $4,331 | $19,985 |
| Travel | $6,471 | $5,011 | $1,725 | $13,207 |
| Other Expenses | $4,873 | $3,974 | $12,932 | $8,847 |
| Office Expenses | $5,057 | $761 | $536 | $6,354 |
| Depreciation Depletion | - | $485 | - | $485 |
| Total Functional Expenses | $1,478,925 | $158,639 | $235,844 | $1,873,408 |
| Line Item | Amount |
|---|---|
| Total Expenses per Audited Statements | $1,915,408 |
| Expenses per Audited Statements | $1,873,408 |
| Total Expenses per Form 990 | $1,873,408 |
| Expenses Not Reported on Form 990 | $42,000 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Brigham & Womens Hospital | Boston, MA | - | Research | $151,500 |
| Cincinnati Childrens Med Cen | Cincinnati, OH | - | Research | $139,933 |
| University of Maryland | College Park, MD | - | Research | $60,000 |
| Northwestern University | Chicago, IL | - | Research | $50,000 |
| University of Iowa | Iowa City, IA | - | Research | $10,000 |
| Line Item | Amount |
|---|---|
| Fundraising Gross Income | $535,860 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| LAMposium | $535,860 | $535,860 | - | $535,860 |
| Total Events | $535,860 | $535,860 | - | $535,860 |
| Line Item | Beginning | End | Change |
|---|---|---|---|
| Receivables from Disqualified Persons | - | $0 | - |
| Receivables from Officers, Directors, Trustees, and Key Employees | - | $0 | - |
| Liability | Amount |
|---|---|
| Funds held for others | $23,323 |
“The Form 990 is provided electronically to all Board members prior to its filing. The Board Chair and Board Treasurer meet with the CEO and Finance Director to review Form 990 in detail and to approve.”
“Each director and principal officer and a member of a committtee with governing board delegated powers annually signs a statement which affirms their understanding and compliance with the conflict policy.”
“The Executive Board Members are responsible for hiring the CEO. A salary range is established based on salary surveys and comparable data.”
“The salaries of all personnel are compared to studies conducted both locally and nationally.”
“The Foundation makes governing documents, the conflict of interest policy and financial statements available upon request.”
“Rounding = -$2”
“The Foundation is exempt from income taxes under Section 501(c)(3)of the Internal Revenue Code and a similar provision of Ohio law. However, the Foundation is subject to federal income tax on any unrelated business taxable income.The Foundation's IRS Form 990 is subject to review and examination by federal and state authorities. The Foundation believes it has appropriate support for any tax positions taken, and therefore, does not have any uncertain income tax positions that are material to the financial statements.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 36788 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 73011 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 5615 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 34736 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | The LAM Foundation urgently seeks safe and effective treatments and ultimately a cure for LAM. |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 0 |
| IRS990/AllOtherContributionsAmt | 0 | 871488 |
| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 4331 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 4079 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 11575 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 19985 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/AuditCommitteeInd | 0 | true |
| IRS990/BackupWthldComplianceInd | 0 | true |
| IRS990/BenefitsToMembersGrp/TotalAmt | 0 | 0 |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | Susan Sherman |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 5137776889 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 4520 Cooper Road Suite 300 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | Cincinnati |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | OH |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 45242 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | false |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 347065 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 277275 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 20896 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 52239 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 135823 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 208958 |
| IRS990/CompDisqualPersonsGrp/TotalAmt | 0 | 0 |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | true |
| IRS990/CompensationProcessOtherInd | 0 | true |
| IRS990/ConferencesMeetingsGrp/FundraisingAmt | 0 | 9502 |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 212 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 369214 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 378928 |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 871488 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 431511 |
| IRS990/CYInvestmentIncomeAmt | 0 | 5832 |
| IRS990/CYOtherExpensesAmt | 0 | 838820 |
| IRS990/CYOtherRevenueAmt | 0 | 537726 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 156627 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -301735 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 603077 |
| IRS990/CYTotalExpensesAmt | 0 | 1873408 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 235844 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 1571673 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 485 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 485 |
| IRS990/Desc | 0 | Research CostsThe LAM Foundation awarded $410,000 to fund five new research projects in 2022. The International LAM Research Conference presented the latest innovations in LAM science, with 102 leading-edge scientists, early career researchers, and clinicians. A research poster reception at the Conference exhibited 39 posters. The LAM Foundation Early Career Network (TEN) was established as an independent platform for young investigators to discuss their LAM research and career goals. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | true |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/DonorRestrictionNetAssetsGrp/BOYAmt | 0 | 335593 |
| IRS990/DonorRestrictionNetAssetsGrp/EOYAmt | 0 | 195016 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 7 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | true |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 891242 |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesLobbyingGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesManagementGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 67632 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 58009 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 142387 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 268028 |
| IRS990/FeesForServicesProfFundraising/TotalAmt | 0 | 0 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt | 0 | 0 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form1098CFiledInd | 0 | false |
| IRS990/Form8282FiledCnt | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form8899Filedind | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 0 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 1 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 2 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 3 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 4 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 5 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 6 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 7 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 8 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 9 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 10 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 11 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 12 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 13 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 14 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 12 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 13 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 14 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 10 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 11 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 12 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 13 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 5988 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | Susan Sherman |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | Vera Krymskaya PhD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | Andrew Romanosky |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | Nishant Gupta MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | Dan Dilling MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | Pat Venters |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | Stephanie Nemser-Dreyer |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | Chuck Wehland |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | Dr Lyndsay Hoy |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | Eden Pontz |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | Andrea Slattery |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | Lisa Henske MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 12 | Jilly Evans PhD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 13 | Chuck Young |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 14 | Patti Bebien-Aronoff |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 202970 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | CEO |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | Trustee |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | Treasurer |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | Scientific Dir |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | Trustee |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | Trustee |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | Trustee |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | Chairman |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | Trustee |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | Trustee |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | Trustee |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | Trustee |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 12 | Trustee |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 13 | Secretary |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 14 | Trustee |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/FormationYr | 0 | 1995 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | true |
| IRS990/FundraisingActivitiesInd | 0 | true |
| IRS990/FundraisingGrossIncomeAmt | 0 | 535860 |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 13 |
| IRS990/GrantAmt | 0 | 431511 |
| IRS990/GrantsPayableGrp/BOYAmt | 0 | 255000 |
| IRS990/GrantsPayableGrp/EOYAmt | 0 | 210000 |
| IRS990/GrantsToDomesticIndividualsGrp/TotalAmt | 0 | 0 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 431511 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 431511 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | true |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 1571673 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | true |
| IRS990/IncmFromInvestBondProceedsGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | true |
| IRS990/IndependentVotingMemberCnt | 0 | 13 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 1 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartIXInd | 0 | X |
| IRS990/InfoInScheduleOPartVIIInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InfoInScheduleOPartXIInd | 0 | X |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 0 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 0 |
| IRS990/IntangibleAssetsGrp/BOYAmt | 0 | 470 |
| IRS990/IntangibleAssetsGrp/EOYAmt | 0 | 200 |
| IRS990/InterestGrp/TotalAmt | 0 | 0 |
| IRS990/InventoriesForSaleOrUseGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 5832 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 5832 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentsProgramRelatedGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 0 |
| IRS990/IRPDocumentCnt | 0 | 16 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 50829 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 214 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 0 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 50829 |
| IRS990/LegalDomicileStateCd | 0 | OH |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | The LAM Foundation urgently seeks safe and effective treatments and ultimately a cure for LAM. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 2898433 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 2596696 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | 535860 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 535860 |
| IRS990/NetIncomeFromGamingGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetRentalIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 2562840 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 2401680 |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 9041 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 5697 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 20421 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 35159 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 536 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 761 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 5057 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 6354 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 0 |
| IRS990/OtherChangesInNetAssetsAmt | 0 | -2 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/Desc | 0 | Clinical Research Support |
| IRS990/OtherExpensesGrp/Desc | 1 | Publicity and communications |
| IRS990/OtherExpensesGrp/Desc | 2 | Printing and Publications |
| IRS990/OtherExpensesGrp/Desc | 3 | Misc |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 3022 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 12932 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 26 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 3974 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 53913 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 34641 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 3293 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 3 | 4873 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 53913 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 37689 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 16225 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 8847 |
| IRS990/OtherLiabilitiesGrp/BOYAmt | 0 | 28787 |
| IRS990/OtherLiabilitiesGrp/EOYAmt | 0 | 23323 |
| IRS990/OtherRevenueMiscGrp/BusinessCd | 0 | 561499 |
| IRS990/OtherRevenueMiscGrp/Desc | 0 | Miscellaneous |
| IRS990/OtherRevenueMiscGrp/ExclusionAmt | 0 | 1866 |
| IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt | 0 | 1866 |
| IRS990/OtherRevenueTotalAmt | 0 | 1866 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 106227 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 28146 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 259746 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 394119 |
| IRS990/OthNotesLoansReceivableNetGrp/EOYAmt | 0 | 0 |
| IRS990/OwnWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PaymentsToAffiliatesGrp/TotalAmt | 0 | 0 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 0 |
| IRS990/PensionPlanContributionsGrp/TotalAmt | 0 | 0 |
| IRS990/PledgesAndGrantsReceivableGrp/BOYAmt | 0 | 5500 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 1500 |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 31864 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 30334 |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 0 | 541700 |
| IRS990/ProgramServiceRevenueGrp/Desc | 0 | Conference Registration |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 156627 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 0 | 156627 |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | Patient ServicesIn collaboration with our LAM clinic directors, liaisons and scientists we offered 25 virtual events, including LAMposium in Your Living Room webinars, education meetings, and social gatherings. More than 820 members of our global community attended our virtual events, and the recorded presentation received over 880 viewings, further spreading LAM education and awareness around the globe. More than 225 individuals registered with the Foundation: 150 + from the United States and more than 70 from other countries. Six Circle of Hope Transplant Support Program participants received lung transplants this year, resulting in nearly a dozen tissue samples to further LAM research. More than 200 women with LAM, family, and friends attended LAMposium, with 60% attending their first LAMposium. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 482215 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | ClinicalThe LAM Clinic & Research Network continues to expand and provide locally based, expert care for women with LAM around the world. We added 4 clinics in 2022: University of North Carolina; Yale University; Aahus University, Denmark; Rigshospitalet, Denmark. More than 38 Clinic Directors and staff took part in the first Clinic Director Congress in four years, focusing on challenging cases, clinical practice guidelines, and priorities for LAM clinical care and diagnostic methods. In partnership with five Worldwide LAM Patient Coalition members and the CHEST Foundation, we have translated the LAM Clinical Practice Guidelines infographic into Portuguese, French, Spanish, Swedish, and Hindi. |
| IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt | 0 | 105468 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 1693658 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 457700 |
| IRS990/PymtTravelEntrtnmntPubOfclGrp/TotalAmt | 0 | 0 |
| IRS990/PYOtherExpensesAmt | 0 | 347787 |
| IRS990/PYOtherRevenueAmt | 0 | 515927 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 863070 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 541028 |
| IRS990/PYTotalExpensesAmt | 0 | 1346515 |
| IRS990/PYTotalRevenueAmt | 0 | 2209585 |
| IRS990/QuidProQuoContributionsInd | 0 | false |
| IRS990/RcvblFromDisqualifiedPrsnGrp/EOYAmt | 0 | 0 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | false |
| IRS990/ReceivablesFromOfficersEtcGrp/EOYAmt | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | -301735 |
| IRS990/RegularMonitoringEnfrcInd | 0 | true |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | false |
| IRS990/ReportLandBuildingEquipmentInd | 0 | true |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | true |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990/RoyaltiesGrp/TotalAmt | 0 | 0 |
| IRS990/RoyaltiesRevenueGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 2828280 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 2558985 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 1563975 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 2207809 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1306396 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 1201372 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 668805 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 6948357 |
| IRS990ScheduleA/GovtFurnSrvcFcltsVl170Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt | 0 | 5832 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 3134 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 32209 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 9740 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 50915 |
| IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt | 0 | 1894165 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearAmt | 0 | 1866 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 1776 |
| IRS990ScheduleA/OtherIncome170Grp/TotalAmt | 0 | 3642 |
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Displayed year
2022 • Form 990Detailed filing. Detailed filing data is available for this year.