Liabilities / Assets
62nd percentile
Higher debt load relative to assets than 62% of similar nonprofits.
990 • Fiscal year 2019 • EIN 31-1438001
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
62nd percentile
Higher debt load relative to assets than 62% of similar nonprofits.
Liabilities / Revenue
71st percentile
Higher debt load relative to revenue than 71% of similar nonprofits.
Net Margin
21st percentile
Higher net margin than 21% of similar nonprofits.
Top Officer Pay
88th percentile
Higher top officer pay than 88% of similar nonprofits.
Top officer pay equals 13.3% of source-year revenue.
Asset Growth
18th percentile
Faster asset growth than 18% of similar nonprofits.
Revenue Growth
12th percentile
Faster revenue growth than 12% of similar nonprofits.
Assets
Down$2,217,979
Down $132,933 (-5.7%) from 2018
Net Assets
Down$1,831,637
Down $136,579 (-6.9%) from 2018
Liabilities
Up$386,342
Up $3,646 (+1.0%) from 2018
Revenue
Down$1,389,662
Down $459,647 (-25%) from 2018
Expenses
Down$1,524,952
Down $220,048 (-13%) from 2018
Net Income
Down-$135,290
Down $239,599 (-230%) from 2018
The LAM Foundation urgently seeks safe and effective treatments and ultimately a cure for LAM.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Savings and Temporary Cash Investments | $1,877,693 | $1,877,157 | ▼ $536 |
| Cash and Non-Interest-Bearing Accounts | $426,264 | $253,448 | ▼ $172,816 |
| Prepaid Expenses and Deferred Charges | $25,038 | $46,884 | ▲ $21,846 |
| Pledges and Grants Receivable | $2,500 | $19,500 | ▲ $17,000 |
| Accounts Receivable | $17,285 | $19,343 | ▲ $2,058 |
| Intangible Assets | $1,277 | $1,006 | ▼ $271 |
| Land, Buildings, and Equipment, Net | $855 | $641 | ▼ $214 |
| Other Notes and Loans Receivable, Net | - | $0 | - |
| Receivable From Disqualified Prsn | - | $0 | - |
| Receivables From Officers Etc | - | $0 | - |
| Investments Other Securities | - | $0 | - |
| Investments Program Related | - | $0 | - |
| Investments in Publicly Traded Securities | - | $0 | - |
| Inventories for Sale or Use | - | $0 | - |
| Total Assets | $2,350,912 | $2,217,979 | ▼ $132,933 |
| Other Assets Total | - | $0 | - |
| Liabilities | |||
| Grants Payable | $256,470 | $215,000 | ▼ $41,470 |
| Accounts Payable and Accrued Expenses | $64,018 | $141,346 | ▲ $77,328 |
| Other Liabilities | $62,208 | $29,996 | ▼ $32,212 |
| Total Liabilities | $382,696 | $386,342 | ▲ $3,646 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $1,577,407 | $1,445,247 | ▼ $132,160 |
| Net Assets With Donor Restrictions | $390,809 | $386,390 | ▼ $4,419 |
| Total Net Assets Fund Balance | $1,968,216 | $1,831,637 | ▼ $136,579 |
| Total Liabilities and Net Assets / Fund Balance | $2,350,912 | $2,217,979 | ▼ $132,933 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Equipment | $641 | $38,628 | $39,269 |
| Leasehold Improvements | - | $11,560 | $11,560 |
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Susan Sherman | CEO | FT | $158,204 | $26,310 | $184,514 |
| Name | Title |
|---|---|
| Christina Hamilton | Chairman |
| Frank McCormack | Scientific Director |
| Chuck Young | Trustee |
| Dan Dilling | Trustee |
| Jilly Evans | Trustee |
| Lisa Henske | Trustee |
| Stephanie Nemser-Dreyer | Trustee |
| Stephen Ruoss | Trustee |
| Teri Dungan | Trustee |
| Vera Krymskaya | Trustee |
| Patti Bebien-Aronoff | Secretary |
| Jenny Jostworth | Treasurer |
| Line Item | Amount |
|---|---|
| Salaries, Compensation, and Employee Benefits | $560,586 |
| Grants and Similar Amounts Paid | $526,777 |
| Other Expenses | $437,589 |
| Total Fundraising Expense | $213,670 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Grants to Domestic Orgs | $426,777 | - | - | $426,777 |
| Other Salaries and Wages | $216,789 | $31,859 | $127,424 | $376,072 |
| Current Officers, Directors, Trustees, and Key Employees | $119,934 | $55,354 | $9,226 | $184,514 |
| Fees for Services Other | $53,467 | $12,485 | $37,540 | $103,492 |
| Foreign Grants | $100,000 | - | - | $100,000 |
| Fees for Services Accounting | $29,757 | $42,527 | - | $72,284 |
| Conferences and Meetings | $24,189 | $11,282 | $1,547 | $37,018 |
| Occupancy | $20,133 | $5,617 | $8,913 | $34,663 |
| Advertising | $29,666 | - | $1,087 | $30,753 |
| Travel | $21,066 | $117 | $3,214 | $24,397 |
| All Other Expenses | $11,091 | $4,271 | $2,761 | $18,123 |
| Office Expenses | $7,036 | $1,358 | $1,713 | $10,107 |
| Other Expenses | $3,815 | $1,791 | $4,192 | $9,798 |
| Depreciation Depletion | - | $485 | - | $485 |
| Total Functional Expenses | $1,144,131 | $167,151 | $213,670 | $1,524,952 |
| Line Item | Amount |
|---|---|
| Total Expenses per Audited Statements | $1,566,952 |
| Expenses per Audited Statements | $1,524,952 |
| Total Expenses per Form 990 | $1,524,952 |
| Expenses Not Reported on Form 990 | $42,000 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Brigham & Womens Hospital | Boston, MA | - | Research | $84,720 |
| Cincinnati Childrens Med Cen | Cincinnati, OH | - | Research | $66,666 |
| Northwestern University | Chicago, IL | - | Research | $60,000 |
| University of Cincinnati | Cincinnati, OH | - | Research | $47,500 |
| University of Washington | Seattle, WA | - | Research | $47,250 |
| University of Pennsylvania | Philadelphia, PA | - | Resarch | $37,500 |
| Region | Activity | Services | Offices | Employees | Spending |
|---|---|---|---|---|---|
| United Kingdom | Grants made to Research Org's | Grants | 0 | 0 | $50,000 |
| Canada | Grants made to Research Org's | Grants | 0 | 0 | $50,000 |
| Line Item | Amount |
|---|---|
| Fundraising Gross Income | $151,672 |
| Fundraising Direct Expenses | $15,374 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| LAM Community Event | $151,672 | $151,672 | $15,374 | $136,298 |
| Total Events | $151,672 | $151,672 | $15,374 | $136,298 |
| Line Item | Beginning | End | Change |
|---|---|---|---|
| Receivables from Disqualified Persons | - | $0 | - |
| Receivables from Officers, Directors, Trustees, and Key Employees | - | $0 | - |
| Liability | Amount |
|---|---|
| Funds held for others | $29,996 |
“The Form 990 is provided electronically to all Board members prior to its filing. The Board Chair and Board Treasurer meet with the CEO and Finance Director to review Form 990 in detail and to approve.”
“Each director and principal officer and a member of a committtee with governing board delegated powers annually signs a statement which affirms their understanding and compliance with the conflict policy.”
“The Executive Board Members are responsible for hiring the CEO. A salary range is established based on salary surveys and comparable data.”
“The salaries of all personnel are compared to studies conducted both locally and nationally.”
“The Foundation makes governing documents, the conflict of interest policy and financial statements available upon request.”
“The Foundation is exempt from income taxes under Section 501(c)(3)of the Internal Revenue Code and a similar provision of Ohio law. However, the Foundation is subject to federal income tax on any unrelated business taxable income.The Foundation's IRS Form 990 is subject to review and examination by federal and state authorities. The Foundation believes it has appropriate support for any tax positions taken, and therefore, does not have any uncertain income tax positions that are material to the financial statements.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 64018 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 141346 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 17285 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 19343 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | The LAM Foundation urgently seeks safe and effective treatments and ultimately a cure for LAM. |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 1087 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 29666 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 30753 |
| IRS990/AllOtherContributionsAmt | 0 | 1103372 |
| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 2761 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 4271 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 11091 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 18123 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/AuditCommitteeInd | 0 | true |
| IRS990/BackupWthldComplianceInd | 0 | true |
| IRS990/BenefitsToMembersGrp/TotalAmt | 0 | 0 |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | Susan Sherman |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 5137776889 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 4520 Cooper Road Suite 300 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | Cincinnati |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | OH |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 45242 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | false |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 426264 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 253448 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 9226 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 55354 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 119934 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 184514 |
| IRS990/CompDisqualPersonsGrp/TotalAmt | 0 | 0 |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | true |
| IRS990/CompensationProcessOtherInd | 0 | true |
| IRS990/ConferencesMeetingsGrp/FundraisingAmt | 0 | 1547 |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 11282 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 24189 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 37018 |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 1103372 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 526777 |
| IRS990/CYInvestmentIncomeAmt | 0 | 33209 |
| IRS990/CYOtherExpensesAmt | 0 | 437589 |
| IRS990/CYOtherRevenueAmt | 0 | 155081 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 98000 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -135290 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 560586 |
| IRS990/CYTotalExpensesAmt | 0 | 1524952 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 213670 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 1389662 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 485 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 485 |
| IRS990/Desc | 0 | Research Costs - The Foundation hosted the annual grant study section in Phoenix, Arizona; during these 1.5 days the committee reviewed and approved grant distributions for the year. At this meeting, the Foundation approved funding to support 6 researchers studying LAM. The Foundation also distributed $34,457 in funds to assist patients with their travel for MILED clinical trial research. The Foundation also distributed $7,751 to patients to assist with their first-time travel to the National Insitutes of Health. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | true |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/DonorRestrictionNetAssetsGrp/BOYAmt | 0 | 390809 |
| IRS990/DonorRestrictionNetAssetsGrp/EOYAmt | 0 | 386390 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 14 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | true |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 754092 |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 42527 |
| IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt | 0 | 29757 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 72284 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesLobbyingGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesManagementGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 37540 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 12485 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 53467 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 103492 |
| IRS990/FeesForServicesProfFundraising/TotalAmt | 0 | 0 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt | 0 | 0 |
| IRS990/ForeignActivitiesInd | 0 | true |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignGrantsGrp/ProgramServicesAmt | 0 | 100000 |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 100000 |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form1098CFiledInd | 0 | false |
| IRS990/Form8282FiledCnt | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form8899Filedind | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 0 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 1 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 2 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 3 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 4 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 5 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 6 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 7 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 8 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 9 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 10 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 11 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 12 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 12 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 10 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 4800 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | Susan Sherman |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | Vera Krymskaya |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | Teri Dungan |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | Dan Dilling |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | Stephen Ruoss |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | Stephanie Nemser-Dreyer |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | Christina Hamilton |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | Frank McCormack |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | Lisa Henske |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | Jilly Evans |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | Chuck Young |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | Patti Bebien-Aronoff |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 12 | Jenny Jostworth |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 179714 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | CEO |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | Trustee |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | Trustee |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | Trustee |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | Trustee |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | Trustee |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | Chairman |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | Scientific Dir. |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | Trustee |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | Trustee |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | Trustee |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | Secretary |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 12 | Treasurer |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/FormationYr | 0 | 1995 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | true |
| IRS990/FundraisingActivitiesInd | 0 | true |
| IRS990/FundraisingDirectExpensesAmt | 0 | 15374 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 151672 |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 11 |
| IRS990/GrantAmt | 0 | 526777 |
| IRS990/GrantsPayableGrp/BOYAmt | 0 | 256470 |
| IRS990/GrantsPayableGrp/EOYAmt | 0 | 215000 |
| IRS990/GrantsToDomesticIndividualsGrp/TotalAmt | 0 | 0 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 426777 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 426777 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | true |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 1405036 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | true |
| IRS990/IncmFromInvestBondProceedsGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | true |
| IRS990/IndependentVotingMemberCnt | 0 | 11 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 1 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartVIIInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 0 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 0 |
| IRS990/IntangibleAssetsGrp/BOYAmt | 0 | 1277 |
| IRS990/IntangibleAssetsGrp/EOYAmt | 0 | 1006 |
| IRS990/InterestGrp/TotalAmt | 0 | 0 |
| IRS990/InventoriesForSaleOrUseGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 33209 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 33209 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentsProgramRelatedGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 0 |
| IRS990/IRPDocumentCnt | 0 | 17 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 50188 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 855 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 641 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 50829 |
| IRS990/LegalDomicileStateCd | 0 | OH |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | The LAM Foundation urgently seeks safe and effective treatments and ultimately a cure for LAM. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | true |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 1968216 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 1831637 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | 136298 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 136298 |
| IRS990/NetIncomeFromGamingGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetRentalIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | -1289 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 1577407 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 1445247 |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 8913 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 5617 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 20133 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 34663 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 1713 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 1358 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 7036 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 10107 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/Desc | 0 | Clinical Research Support |
| IRS990/OtherExpensesGrp/Desc | 1 | Printing and Publications |
| IRS990/OtherExpensesGrp/Desc | 2 | LAM Patient Network Support |
| IRS990/OtherExpensesGrp/Desc | 3 | Postage and Shipping |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 16053 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 4192 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 5 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 1791 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 43902 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 12049 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 24460 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 3 | 3815 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 43902 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 28107 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 24460 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 9798 |
| IRS990/OtherLiabilitiesGrp/BOYAmt | 0 | 62208 |
| IRS990/OtherLiabilitiesGrp/EOYAmt | 0 | 29996 |
| IRS990/OtherRevenueMiscGrp/BusinessCd | 0 | 900099 |
| IRS990/OtherRevenueMiscGrp/BusinessCd | 1 | 561499 |
| IRS990/OtherRevenueMiscGrp/Desc | 0 | Administrative Fee |
| IRS990/OtherRevenueMiscGrp/Desc | 1 | Miscellaneous |
| IRS990/OtherRevenueMiscGrp/ExclusionAmt | 0 | 3783 |
| IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt | 0 | 15000 |
| IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt | 0 | 15000 |
| IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt | 1 | 3783 |
| IRS990/OtherRevenueTotalAmt | 0 | 18783 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 127424 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 31859 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 216789 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 376072 |
| IRS990/OthNotesLoansReceivableNetGrp/EOYAmt | 0 | 0 |
| IRS990/OwnWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PaymentsToAffiliatesGrp/TotalAmt | 0 | 0 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 0 |
| IRS990/PensionPlanContributionsGrp/TotalAmt | 0 | 0 |
| IRS990/PledgesAndGrantsReceivableGrp/BOYAmt | 0 | 2500 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 19500 |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 25038 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 46884 |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 0 | 541700 |
| IRS990/ProgramServiceRevenueGrp/Desc | 0 | LAM ATS Regional Meetings |
| IRS990/ProgramServiceRevenueGrp/ExclusionAmt | 0 | 98000 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 0 | 98000 |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | Patient Services - The Foundation co-sponsored 5 regional meetings with the TS Alliance. The Foundation sponsored 23 LAM Regional Educational Meetings in partnership with 15 LAM Clinics, educating more than 700 attendees across the country. The Foundation also produced "Journeys", a publication which provides updates on clinical research and how to live with LAM. The Foundation registered 199 new patients in 2019. We supported the Circle of Hope Transplant Support Program which provided support to 19 participants, 3 of whom received transplants in 2019 and successfully facilitated the procurement of 16 tissue samples that were shipped to LAM investigators. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 296861 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | Clinical - The Foundation supported its 64-member global LAM Clinic and Research Network via two hosted webinars and an in-peron SAB and Clinic Director meeting at the American Thoracic Society Annual Meeting in Dallas, TX in May. The Foundation supported LAM Clinic site participation in the MIDAS trial via coordination of the clinical site agreements and payments. |
| IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt | 0 | 93178 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 668805 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 568566 |
| IRS990/PYInvestmentIncomeAmt | 0 | 9740 |
| IRS990/PymtTravelEntrtnmntPubOfclGrp/TotalAmt | 0 | 0 |
| IRS990/PYOtherExpensesAmt | 0 | 673387 |
| IRS990/PYOtherRevenueAmt | 0 | 797570 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 373194 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 104309 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 503047 |
| IRS990/PYTotalExpensesAmt | 0 | 1745000 |
| IRS990/PYTotalRevenueAmt | 0 | 1849309 |
| IRS990/QuidProQuoContributionsInd | 0 | true |
| IRS990/QuidProQuoContriDisclInd | 0 | true |
| IRS990/RcvblFromDisqualifiedPrsnGrp/EOYAmt | 0 | 0 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | false |
| IRS990/ReceivablesFromOfficersEtcGrp/EOYAmt | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | -135290 |
| IRS990/RegularMonitoringEnfrcInd | 0 | true |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | false |
| IRS990/ReportLandBuildingEquipmentInd | 0 | true |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | true |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990/RoyaltiesGrp/TotalAmt | 0 | 0 |
| IRS990/RoyaltiesRevenueGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 1877693 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 1877157 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 1201372 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 668805 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 668093 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 694714 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 1556144 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 4789128 |
| IRS990ScheduleA/GovtFurnSrvcFcltsVl170Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt | 0 | 32209 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 9740 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 2497 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 1945 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 586 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 46977 |
| IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt | 0 | 2555788 |
| IRS990ScheduleA/OtherIncome170Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.70850 |
| IRS990ScheduleA/PublicSupportPY170Pct | 0 | 0.71430 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 3426477 |
| IRS990ScheduleA/SubstantialContributorsTotAmt | 0 | 1362651 |
| IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft170Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
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Displayed year
2019 • Form 990Detailed filing. Detailed filing data is available for this year.