Civic Intelligence

Melorheostosis Association

990EZ • Fiscal year 2025 • EIN 30-0215842

Jan 01, 2025 to Dec 31, 2025

Organization ProfileMELORHEOSTOSIS.COM
410 E 50th StNew York, NY 10022

(717) 419-6092

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

Score unavailable

No value available

Liabilities-to-assets requires both liabilities and assets on this filing.

Source year 2025

Liabilities / Revenue

Score unavailable

No value available

Liabilities-to-revenue requires both liabilities and revenue on this filing.

Source year 2025

Net Margin

5th percentile

-122%

Higher net margin than 5% of similar nonprofits.

2025 filings • NTEE G • <$500k nonprofits • Source year 2025

Top Officer Pay

84th percentile

$0

Higher top officer pay than 84% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2025 filings • NTEE G • <$500k nonprofits • Source year 2025

Asset Growth

24th percentile

-24%

Faster asset growth than 24% of similar nonprofits.

2025 filings • NTEE G • <$500k nonprofits • Annualized from 2024 to 2025

Revenue Growth

16th percentile

-31%

Faster revenue growth than 16% of similar nonprofits.

2025 filings • NTEE G • <$500k nonprofits • Annualized from 2024 to 2025

Balance Sheet
Liabilities / AssetsScore unavailable

Assets

Down

$58,700

Down $18,807 (-24%) from 2024

Net Assets

Down

$58,700

Down $18,807 (-24%) from 2024

Liabilities

-

No earlier filing loaded for comparison.

Revenue And Expenses
Liabilities / RevenueScore unavailableNet Margin5th percentile

Revenue

Down

$15,446

Down $7,001 (-31%) from 2024

Expenses

Up

$34,253

Up $29,417 (+608%) from 2024

Net Income

Down

-$18,807

Down $36,418 (-207%) from 2024

Historical Trend

Balance Sheet Trend

Asset Growth24th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$100K$50K$0Assets 2011: $46,829Net Assets 2011: $46,8292011Assets 2012: $33,563Net Assets 2012: $33,5632012Assets 2013: $37,665Net Assets 2013: $37,6652013Assets 2014: $61,694Net Assets 2014: $61,6942014Assets 2015: $36,670Net Assets 2015: $36,6702015Assets 2016: $87,040Net Assets 2016: $86,9352016Assets 2017: $76,935Net Assets 2017: $76,9352017Assets 2018: $60,784Net Assets 2018: $53,5972018Assets 2020: $93,119Net Assets 2020: $93,1192020Assets 2021: $64,160Net Assets 2021: $64,1602021Assets 2022: $63,892Liabilities 2022: $0Net Assets 2022: $63,8922022Assets 2023: $59,896Liabilities 2023: $0Net Assets 2023: $59,8962023Assets 2024: $77,507Liabilities 2024: $0Net Assets 2024: $77,5072024Assets 2025: $58,700Net Assets 2025: $58,7002025

Highlighted filing

2025

Assets$58,700
Liabilities-
Net Assets$58,700
Open 2025 Filing

Operations Trend

Revenue Growth16th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$100K$50K$0-$50KRevenue 2011: $31,222Expenses 2011: $11,835Net Income 2011: $19,3872011Revenue 2012: $4,232Expenses 2012: $17,498Net Income 2012: -$13,2662012Revenue 2013: $6,181Expenses 2013: $2,079Net Income 2013: $4,1022013Revenue 2014: $40,863Expenses 2014: $16,833Net Income 2014: $24,0302014Revenue 2015: $4,977Expenses 2015: $30,001Net Income 2015: -$25,0242015Revenue 2016: $60,463Expenses 2016: $10,198Net Income 2016: $50,2652016Revenue 2017: $11,702Expenses 2017: $21,807Net Income 2017: -$10,1052017Revenue 2018: $3,564Expenses 2018: $26,902Net Income 2018: -$23,3382018Revenue 2020: $6,545Expenses 2020: $1,608Net Income 2020: $4,9372020Revenue 2021: $6,670Expenses 2021: $35,629Net Income 2021: -$28,9592021Revenue 2022: $2,706Expenses 2022: $2,974Net Income 2022: -$2682022Revenue 2023: $25,752Expenses 2023: $29,748Net Income 2023: -$3,9962023Revenue 2024: $22,447Expenses 2024: $4,836Net Income 2024: $17,6112024Revenue 2025: $15,446Expenses 2025: $34,253Net Income 2025: -$18,8072025

Highlighted filing

2025

Revenue$15,446
Expenses$34,253
Net Income-$18,807
Open 2025 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2025 to Dec 31, 2025
Signed
Apr 16, 2026
Return Version
2025v4.0
Gross Receipts
$15,446
Mission and Program Overview

Mission

Organization strives to promote awareness of melorheostosis and its treatment and to provide support for patients and their families.

Program Services

DescriptionGrantsExpenses
Plan patient and medical professional conference for US international patients and researchers to advance research mission - conference held in 2025 for over 100 participants. Next conference in 2027.$0$31,568
NORD Membership - participate in advancing the position of rare diseases$0$0
Communicate with patient community on a regular basis regarding rare disease community research studies updates on medical breakthroughs and patient advocacy events. Support online community of over 800 and create online resources for patients doctors and researchers interested in supporting treatments cures.$0$0
Compensation and Service Providers
Top Officer Pay84th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Jen GordyPresident-$0--
Kathleen HarperChairman-$0--
Amanda ShapiroSecretary-$0--
Katrina WellsTreasurer-$0--
Filing and Contact Details

Filer

Filer Name
Melorheostosis Association
EIN
30-0215842
Address
410 E 50TH ST, NEW YORK, NY 10022

Signing Officer

Name
Katrina Wells
Title
Treasurer
Phone
7174196092
Signed
2026-04-16
Supplemental Narrative

Additional Explanations

Part I, line 16

“| Other Expenses:, Amount:| 2025 Conference - hotel meeting and event space food beverage fees event supplies and materials and A V equipment, $31568|”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0| Other Expenses:, Amount:| 2025 Conference - hotel meeting and event space food beverage fees event supplies and materials and A V equipment, $31568|
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Part I, line 16
ReturnHeader/BuildTS02025-03-06 01:10:19Z
ReturnHeader/BusinessOfficerGrp/PersonNm0Katrina Wells
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0Treasurer
ReturnHeader/BusinessOfficerGrp/PhoneNum07174196092
ReturnHeader/BusinessOfficerGrp/SignatureDt02026-04-16
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0MELORHEOSTOSIS ASSOCIATION
ReturnHeader/Filer/BusinessNameControlTxt0MELO
ReturnHeader/Filer/EIN0300215842
ReturnHeader/Filer/ForeignPhoneNum09178853832
ReturnHeader/Filer/USAddress/AddressLine1Txt0410 E 50TH ST
ReturnHeader/Filer/USAddress/CityNm0NEW YORK
ReturnHeader/Filer/USAddress/StateAbbreviationCd0NY
ReturnHeader/Filer/USAddress/ZIPCd010022
ReturnHeader/ReturnTs02026-04-15T20:34:02-04:00
ReturnHeader/ReturnTypeCd0990EZ
ReturnHeader/TaxPeriodBeginDt02025-01-01
ReturnHeader/TaxPeriodEndDt02025-12-31
ReturnHeader/TaxYr02025

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2025 • Form 990EZDetailed filing. Detailed filing data is available for this year.

Open filing
Assets
$58,700
Liabilities
-
Net assets
$58,700
Revenue
$15,446
Expenses
$34,253
Net income
-$18,807
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Detailed filing. Detailed filing data is available for this year.$58.7$58.7$15.4$34.3$18.8
2024Detailed filing. Detailed filing data is available for this year.$77.5$0.00$77.5$22.4$4.84$17.6
2023Detailed filing. Detailed filing data is available for this year.$59.9$0.00$59.9$25.8$29.7$4.00
2022Detailed filing. Detailed filing data is available for this year.$63.9$0.00$63.9$2.71$2.97$0.27
2021Detailed filing. Detailed filing data is available for this year.$64.2$64.2$6.67$35.6$29.0
2020Detailed filing. Detailed filing data is available for this year.$93.1$93.1$6.55$1.61$4.94
2018Detailed filing. Detailed filing data is available for this year.$60.8$53.6$3.56$26.9$23.3
2017Detailed filing. Detailed filing data is available for this year.$76.9$76.9$11.7$21.8$10.1
2016Detailed filing. Detailed filing data is available for this year.$87.0$86.9$60.5$10.2$50.3
2015Detailed filing. Detailed filing data is available for this year.$36.7$36.7$4.98$30.0$25.0
2014Detailed filing. Detailed filing data is available for this year.$61.7$61.7$40.9$16.8$24.0
2013Detailed filing. Detailed filing data is available for this year.$37.7$37.7$6.18$2.08$4.10
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$33.6$33.6$4.23$17.5$13.3
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$46.8$46.8$31.2$11.8$19.4