Civic Intelligence

Melorheostosis Association

EIN 30-0215842 • 501(c)3 • New York, NY

Profile

Organization strives to promote awareness of melorheostosis and it's treatment and to provide support for patients and their families.

410 E 50th StNew York, NY 10022

melorheostosis.com

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

59th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • <$500k nonprofits • Source year 2022

Liabilities / Revenue

61st percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • <$500k nonprofits • Source year 2022

Net Margin

31st percentile

-9.9%

Higher net margin than 31% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2022

Top Officer Pay

84th percentile

$0

Higher top officer pay than 84% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

501(c)3 • <$500k nonprofits • Source year 2018

Asset Growth

52nd percentile

-0.4%

Faster asset growth than 52% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2021 to 2022

Revenue Growth

14th percentile

-59%

Faster revenue growth than 14% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2021 to 2022

Balance Sheet
Liabilities / Assets59th percentile

Assets

Up

$77,507

Up $17,611 (+29%) from 2023

Liabilities

Flat

$0

Flat from 2023

Net Assets

Up

$77,507

Up $17,611 (+29%) from 2023

Operations
Liabilities / Revenue61st percentileNet Margin31st percentile

Revenue

Down

$22,447

Down $3,305 (-13%) from 2023

Expenses

Down

$4,836

Down $24,912 (-84%) from 2023

Net Income

Up

$17,611

Up $21,607 (+541%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth52nd percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$100K$50K$0Assets 2011: $46,829Net Assets 2011: $46,8292011Assets 2012: $33,563Net Assets 2012: $33,5632012Assets 2013: $37,665Net Assets 2013: $37,6652013Assets 2014: $61,694Net Assets 2014: $61,6942014Assets 2015: $36,670Net Assets 2015: $36,6702015Assets 2016: $87,040Net Assets 2016: $86,9352016Assets 2017: $76,935Net Assets 2017: $76,9352017Assets 2018: $60,784Net Assets 2018: $53,5972018Assets 2020: $93,119Net Assets 2020: $93,1192020Assets 2021: $64,160Net Assets 2021: $64,1602021Assets 2022: $63,892Liabilities 2022: $0Net Assets 2022: $63,8922022Assets 2023: $59,896Liabilities 2023: $0Net Assets 2023: $59,8962023Assets 2024: $77,507Liabilities 2024: $0Net Assets 2024: $77,5072024

Highlighted filing

2024

Assets$77,507
Liabilities$0
Net Assets$77,507
Open 2024 Filing

Operations Trend

Revenue Growth14th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$100K$50K$0-$50KRevenue 2011: $31,222Expenses 2011: $11,835Net Income 2011: $19,3872011Revenue 2012: $4,232Expenses 2012: $17,498Net Income 2012: -$13,2662012Revenue 2013: $6,181Expenses 2013: $2,079Net Income 2013: $4,1022013Revenue 2014: $40,863Expenses 2014: $16,833Net Income 2014: $24,0302014Revenue 2015: $4,977Expenses 2015: $30,001Net Income 2015: -$25,0242015Revenue 2016: $60,463Expenses 2016: $10,198Net Income 2016: $50,2652016Revenue 2017: $11,702Expenses 2017: $21,807Net Income 2017: -$10,1052017Revenue 2018: $3,564Expenses 2018: $26,902Net Income 2018: -$23,3382018Revenue 2020: $6,545Expenses 2020: $1,608Net Income 2020: $4,9372020Revenue 2021: $6,670Expenses 2021: $35,629Net Income 2021: -$28,9592021Revenue 2022: $2,706Expenses 2022: $2,974Net Income 2022: -$2682022Revenue 2023: $25,752Expenses 2023: $29,748Net Income 2023: -$3,9962023Revenue 2024: $22,447Expenses 2024: $4,836Net Income 2024: $17,6112024

Highlighted filing

2024

Revenue$22,447
Expenses$4,836
Net Income$17,611
Open 2024 Filing

Filings

Most recent year

2024 • Form 990EZDetailed filing. Detailed filing data is available for this year.

Open filing
Assets
$77,507
Liabilities
$0
Net assets
$77,507
Revenue
$22,447
Expenses
$4,836
Net income
$17,611
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$77.5$0.00$77.5$22.4$4.84$17.6
2023Detailed filing. Detailed filing data is available for this year.$59.9$0.00$59.9$25.8$29.7$4.00
2022Detailed filing. Detailed filing data is available for this year.$63.9$0.00$63.9$2.71$2.97$0.27
2021Detailed filing. Detailed filing data is available for this year.$64.2$64.2$6.67$35.6$29.0
2020Detailed filing. Detailed filing data is available for this year.$93.1$93.1$6.55$1.61$4.94
2018Detailed filing. Detailed filing data is available for this year.$60.8$53.6$3.56$26.9$23.3
2017Detailed filing. Detailed filing data is available for this year.$76.9$76.9$11.7$21.8$10.1
2016Detailed filing. Detailed filing data is available for this year.$87.0$86.9$60.5$10.2$50.3
2015Detailed filing. Detailed filing data is available for this year.$36.7$36.7$4.98$30.0$25.0
2014Detailed filing. Detailed filing data is available for this year.$61.7$61.7$40.9$16.8$24.0
2013Detailed filing. Detailed filing data is available for this year.$37.7$37.7$6.18$2.08$4.10
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$33.6$33.6$4.23$17.5$13.3
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$46.8$46.8$31.2$11.8$19.4
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Apr 16, 2025
Return Version
2024v5.1
Gross Receipts
$22,447
Mission and Program Overview

Mission

Organization strives to promote awareness of melorheostosis and it's treatment and to provide support for patients and their families.

Organization strives to promote awareness of melorheostosis and its treatment and to provide support for patients and their families.

Program Services

DescriptionGrantsExpenses
Plan patient and medical professional conference for US international patients and researchers to advance research mission - next conference in 2025.$0$3,000
Communicate with patient community on a regular basis regarding rare disease community research studies updates on medical breakthroughs and patient advocacy events.$0$652
NORD Membership - participate in advancing the position of rare diseases$0$50
Compensation and Service Providers
Top Officer Pay84th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Jen GordyPresident-$0--
Kathleen HarperChairman-$0--
Amanda ShapiroSecretary-$0--
Katrina WellsTreasurer-$0--
Filing and Contact Details

Filer

Filer Name
Melorheostosis Association
EIN
30-0215842
In Care Of
% Kathleen Harper
Address
410 E 50TH ST, NEW YORK, NY 10022

Signing Officer

Name
Katrina Wells
Title
Treasurer
Signed
2025-04-16
Supplemental Narrative

Additional Explanations

Part I, line 16

“| Other Expenses:, Amount:| 2025 Conference Deposit, $3000|”

Part II, line 24

“| Explanation:, BOYAmount:, EOYAmount:| Other assets, $0, $0|”

Part II, line 26

“| Explanation:, BOYAmount:, EOYAmount:| Other assets, $0, $0|”

Raw XML Appendix235 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0| Other Expenses:, Amount:| 2025 Conference Deposit, $3000|
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2| Explanation:, BOYAmount:, EOYAmount:| Other assets, $0, $0|
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Part I, line 16
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Part II, line 24
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Part II, line 26
ReturnHeader/BuildTS02025-03-06 01:10:19Z
ReturnHeader/BusinessOfficerGrp/PersonNm0Katrina Wells
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0Treasurer
ReturnHeader/BusinessOfficerGrp/SignatureDt02025-04-16
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0MELORHEOSTOSIS ASSOCIATION
ReturnHeader/Filer/BusinessNameControlTxt0MELO
ReturnHeader/Filer/EIN0300215842
ReturnHeader/Filer/ForeignPhoneNum09178853832
ReturnHeader/Filer/InCareOfNm0% Kathleen Harper
ReturnHeader/Filer/USAddress/AddressLine1Txt0410 E 50TH ST
ReturnHeader/Filer/USAddress/CityNm0NEW YORK
ReturnHeader/Filer/USAddress/StateAbbreviationCd0NY
ReturnHeader/Filer/USAddress/ZIPCd010022
ReturnHeader/ReturnTs02025-04-15T21:35:47-04:00
ReturnHeader/ReturnTypeCd0990EZ
ReturnHeader/TaxPeriodBeginDt02024-01-01
ReturnHeader/TaxPeriodEndDt02024-12-31
ReturnHeader/TaxYr02024

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