Civic Intelligence

Global Foundation for Peroxisomal Disorders

990 • Fiscal year 2021 • EIN 27-3646193

Jan 01, 2021 to Dec 31, 2021 • Filed on Nov 14, 2022

5272 S Lewis Ave 207Tulsa, OK 74105

(918) 230-7713

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

39th percentile

0.03x

Higher debt load relative to assets than 39% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2021

Liabilities / Revenue

40th percentile

0.05x

Higher debt load relative to revenue than 40% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2021

Net Margin

76th percentile

32%

Higher net margin than 76% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2021

Top Officer Pay

48th percentile

$49,619

Higher top officer pay than 48% of similar nonprofits.

Top officer pay equals 7.2% of source-year revenue.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2021

Asset Growth

72nd percentile

24%

Faster asset growth than 72% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2020 to 2021

Revenue Growth

74th percentile

45%

Faster revenue growth than 74% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2020 to 2021

Assets

Up

$1,176,716

Up $228,655 (+24%) from 2020

Net Assets

Up

$1,143,794

Up $221,759 (+24%) from 2020

Liabilities

Up

$32,922

Up $6,896 (+26%) from 2020

Revenue

Up

$685,552

Up $211,332 (+45%) from 2020

Expenses

Up

$463,793

Up $221,394 (+91%) from 2020

Net Income

Down

$221,759

Down $10,062 (-4.3%) from 2020

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.5M$1.0M$500K$0Assets 2012: $208,734Liabilities 2012: $0Net Assets 2012: $208,7342012Assets 2013: $257,173Liabilities 2013: $0Net Assets 2013: $257,1732013Assets 2014: $328,709Liabilities 2014: $0Net Assets 2014: $328,7092014Assets 2015: $523,921Liabilities 2015: $0Net Assets 2015: $523,9212015Assets 2016: $753,282Liabilities 2016: $12,390Net Assets 2016: $740,8922016Assets 2017: $814,597Liabilities 2017: $64,550Net Assets 2017: $750,0472017Assets 2018: $864,504Liabilities 2018: $116,188Net Assets 2018: $748,3162018Assets 2019: $772,198Liabilities 2019: $81,984Net Assets 2019: $690,2142019Assets 2020: $948,061Liabilities 2020: $26,026Net Assets 2020: $922,0352020Assets 2021: $1,176,716Liabilities 2021: $32,922Net Assets 2021: $1,143,7942021Assets 2022: $851,736Liabilities 2022: $47,958Net Assets 2022: $803,7782022Assets 2023: $680,018Liabilities 2023: $39,939Net Assets 2023: $640,0792023Assets 2024: $254,047Liabilities 2024: $78,424Net Assets 2024: $175,6232024

Highlighted filing

2021

Assets$1,176,716
Liabilities$32,922
Net Assets$1,143,794

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.5M$1.0M$500K$0-$500KExpenses 2012: $73,3812012Revenue 2013: $219,593Expenses 2013: $171,455Net Income 2013: $48,1382013Revenue 2014: $128,192Expenses 2014: $64,956Net Income 2014: $63,2362014Revenue 2015: $290,487Expenses 2015: $95,275Net Income 2015: $195,2122015Revenue 2016: $317,064Expenses 2016: $100,093Net Income 2016: $216,9712016Revenue 2017: $432,070Expenses 2017: $422,915Net Income 2017: $9,1552017Revenue 2018: $533,082Expenses 2018: $534,813Net Income 2018: -$1,7312018Revenue 2019: $607,592Expenses 2019: $665,694Net Income 2019: -$58,1022019Revenue 2020: $474,220Expenses 2020: $242,399Net Income 2020: $231,8212020Revenue 2021: $685,552Expenses 2021: $463,793Net Income 2021: $221,7592021Revenue 2022: $815,854Expenses 2022: $1,150,024Net Income 2022: -$334,1702022Revenue 2023: $660,533Expenses 2023: $840,138Net Income 2023: -$179,6052023Revenue 2024: $722,979Expenses 2024: $1,194,522Net Income 2024: -$471,5432024

Highlighted filing

2021

Revenue$685,552
Expenses$463,793
Net Income$221,759
Jump To
Filing Snapshot
Filing Period
Jan 1, 2021 to Dec 31, 2021
Signed
Nov 14, 2022
Return Version
2021v4.2
Gross Receipts
$729,838
Mission and Program Overview

Mission

The mission of The Global Foundation for Peroxisomal Disorders is to help children and families faced with a Peroxisome Biogenesis Disorder-Zellweger Spectrum Disorder (PBD-ZSD) diagnosis and to assist family members and professionals through educational programs, research, and support services.

The global foundation for peroxisomal disorders is dedicated to improving the lives of individuals with peroxisomal disorders by funding research, championing scientific collaboration, and empowering families and professionals through educational programs and support services.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$668,964$667,850▼ $1,114
Cash and Non-Interest-Bearing Accounts$257,324$458,992▲ $201,668
Prepaid Expenses and Deferred Charges$9,652$42,786▲ $33,134
Land, Buildings, and Equipment, Net$2,615$2,798▲ $183
Inventories for Sale or Use$3,058$2,609▼ $449
Accounts Receivable$6,448$1,681▼ $4,767
Total Assets$948,061$1,176,716▲ $228,655
Liabilities
Accounts Payable and Accrued Expenses$24,080$32,922▲ $8,842
Unsecured Notes Loans Payable$1,946--
Total Liabilities$26,026$32,922▲ $6,896
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$770,512$784,325▲ $13,813
Net Assets With Donor Restrictions$151,523$359,469▲ $207,946
Total Net Assets Fund Balance$922,035$1,143,794▲ $221,759
Total Liabilities and Net Assets / Fund Balance$948,061$1,176,716▲ $228,655

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$2,798$7,234$10,032
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseTotal
Melissa BryceExecutive DirectorFT$49,619$49,619

Board Members and Trustees

Revenue and Support

Revenue Composition

Contributions and Grants
$688,588
Program Service Revenue
$0
Investment Income
$2,090
Other Revenue
$-5,126
All Other Contributions
$347,868
Change in Net Assets
$221,759

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
Yes
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Other Non Cash Contri Table6$31,699Products
Total Noncash Contributions6$31,699-

Audited Revenue Reconciliation

Revenue per Audited Statements
$685,552
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$0
Total Revenue per Audited Statements
$685,552
Total Revenue per Form 990
$685,552
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$353,526
Total Fundraising Expense$129,225
Salaries, Compensation, and Employee Benefits$92,292
Grants and Similar Amounts Paid$17,975
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Fees for Services Other$89,592$8,833$11,830$110,255
Advertising$22,987$2,494$63,197$88,678
Current Officers, Directors, Trustees, and Key Employees$42,176$4,962$2,481$49,619
Fees for Services Accounting-$38,398-$38,398
Other Salaries and Wages$23,235$5,455$7,355$36,045
Travel$10,538$1,568$16,352$28,458
Information Technology$14,034$2,183$4,689$20,906
Occupancy$5,272$840$12,235$18,347
Grants to Domestic Orgs$17,975--$17,975
Conferences and Meetings$6,823$982$927$8,732
Fees for Services Legal$2,301$6,396-$8,697
Payroll Taxes$5,061$806$761$6,628
Insurance$2,984$475$449$3,908
All Other Expenses$1,360$246$205$1,811
Depreciation Depletion$1,212$193$182$1,587
Other Expenses$2,610$169$988$1,157
Total Functional Expenses$258,307$76,261$129,225$463,793

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$463,793
Total Expenses per Audited Statements$463,793
Total Expenses per Form 990$463,793
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
University of Nebraska LincolnLincoln, NE501(c)(3)Research$17,975
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$43,644
Fundraising Gross Income$36,615
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Tee It Up$196,025$26,875$1,279$25,596
Hues for Hope$123,520$6,975$3,059$3,916
Total Events$362,657$36,615$43,644$-7,029
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 8B

The organization does not have a committee with authority to act on behalf of the governing body.

Form 990, Part VI, Section B, Line 11B

Financial statements were prepared by the gfpd cfo and audited by an independent auditor. These financial statements were reviewed by the board and the finance committee and used to prepare the 990. The 990 is prepared by an outside firm and then reviewed by the executive director and finance committee, which is then submitted to the board for final review and approval before the 990 is filed.

Form 990, Part VI, Section B, Line 12C

Board members are given an annual conflict of interest statement that they review and sign. The gfpd cfo reviews any conflicts and any potential conflicts as invoices are paid and business is being transacted.

Form 990, Part VI, Section B, Line 15A

Process for determining compensation is based on the nonprofit salary survey published by the national council of nonprofits.

Form 990, Part VI, Section C, Line 19

Documents are available upon request.

Filing and Contact Details

Filer

Filer Name
Global Foundation for Peroxisomal
EIN
27-3646193
Phone
9182307713
Address
5272 S LEWIS AVE 207, TULSA, OK 74105

Signing Officer

Name
Melissa Bryce
Title
Executive Director
Phone
9182307713
Signed
2022-11-14
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Melissa Bryce
Formed
2010
Legal Domicile
Ok
Voting Board Members
13
Independent Board Members
13
Employees
3
Volunteers
25

Preparer

Firm
Eide Bailly Llp
Address
810 S CINCINNATI AVE STE 600, TULSA, OK 74119-1623
Preparer
Chandra Foster CPA
Phone
9187485000
Supplemental Narrative

Additional Explanations

Form 990, Part IX, Line 11G

Professional services: program service expenses 89,592. Management and general expenses 8,833. Fundraising expenses 11,830. Total expenses 110,255.

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IRS990/Desc0FAMILY SUPPORT PROGRAM: THE PRIMARY PROGRAMMATIC IMPACT AND PRIORITIES FOR THE GLOBAL FOUNDATION FOR PEROXISOMAL DISORDERS IS TO CONVENE FAMILIES OF DIAGNOSED PATIENTS (PREDOMINANTLY NEWBORNS, INFANTS AND YOUNG CHILDREN) FOR EDUCATIONAL, SUPPORT AND LINKAGE SERVICES. THIS WORK IS SUPPORTED THROUGH A DYNAMIC WEBSITE (REDESIGNED IN LATE 2021) WITH CONTENT REGULARLY VETTED AND UPDATED BY GFPD VOLUNTEERS AND STAFF TO GIVE PARENTS AND CAREGIVERS THE LATEST INFORMATION ABOUT DIAGNOSIS, IMMEDIATE CARE AND DISORDER MITIGATION, SCIENTIFIC AND MEDICAL RESEARCH GEARED TOWARD A CAREGIVER AUDIENCE, BEST AND EMERGING PRACTICES IN CARE, AND RESOURCES FOR FAMILIES AND CAREGIVERS TO INCREASE POTENTIAL IN PATIENTS. THE GFPD ALSO PROVIDES RESOURCES FOR SUPPORT THROUGH ONLINE FORUMS, WEBINARS, CONVENINGS FOR CAREGIVERS AND EDUCATIONAL PRESENTATIONS ON MEDICAL CARE, SERVICE PROVISION AND LINKAGE TO OTHER RESOURCES. BECAUSE OF THE PANDEMIC, ALMOST ALL OF THE PROGRAMMING WAS MOVED ONLINE AND VIRTUAL. THIS ACTUALLY CREATED GREATER ACCESS TO THE VIRTUAL MEET-UPS FOR FAMILIES AND CAREGIVERS AND GREATER USAGE OF SERVICES BY EXPONENTIALLY MORE FAMILIES. FINALLY, OUR PROGRAMS ARE DESIGNED TO LINK CAREGIVERS AND FAMILIES WITH ONE ANOTHER ALONG WITH OTHER MEDICAL, SCIENTIFIC AND PROFESSIONAL PERSONNEL TO BEST CARE FOR THEIR PATIENTS WITH PEROXISOMAL DISORDERS. IN 2021, THE GFPD POSTPONED A CONFERENCE IT HOSTS EACH TWO YEARS FOR FAMILIES AND PRACTITIONERS, OPTING TO RESERVE A SIGNIFICANT AMOUNT OF FUNDS TO PROVIDE DIRECT STIPENDS AND SUPPORT TO FAMILIES FOR A CONFERENCE SCHEDULED IN 2022.
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IRS990/Form990PartVIISectionAGrp/TitleTxt2TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt3SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13EXECUTIVE DIRECTOR
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr02010
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt0326042
IRS990/FundraisingDirectExpensesAmt043644
IRS990/FundraisingGrossIncomeAmt036615
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt013
IRS990/GovernmentGrantsAmt014678
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt017975
IRS990/GrantsToDomesticOrgsGrp/TotalAmt017975
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt0729838
IRS990/GrossSalesOfInventoryAmt02545
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd00
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt013
IRS990/IndivRcvdGreaterThan100KCnt00
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartIXInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt04689
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt02183
IRS990/InformationTechnologyGrp/ProgramServicesAmt014034
IRS990/InformationTechnologyGrp/TotalAmt020906
IRS990/InsuranceGrp/FundraisingAmt0449
IRS990/InsuranceGrp/ManagementAndGeneralAmt0475
IRS990/InsuranceGrp/ProgramServicesAmt02984
IRS990/InsuranceGrp/TotalAmt03908
IRS990/InventoriesForSaleOrUseGrp/BOYAmt03058
IRS990/InventoriesForSaleOrUseGrp/EOYAmt02609
IRS990/InvestmentIncomeGrp/ExclusionAmt02090
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt02090
IRS990/InvestmentInJointVentureInd00
IRS990/IRPDocumentCnt019
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt07234
IRS990/LandBldgEquipBasisNetGrp/BOYAmt02615
IRS990/LandBldgEquipBasisNetGrp/EOYAmt02798
IRS990/LandBldgEquipCostOrOtherBssAmt010032
IRS990/LegalDomicileStateCd0OK
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd00
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0THE MISSION OF THE GLOBAL FOUNDATION FOR PEROXISOMAL DISORDERS IS TO IMPROVE THE LIVES OF INDIVIDUALS WITH PEROXISOMAL DISORDERS BY FUNDING RESEARCH, CHAMPIONING SCIENTIFIC COLLABORATION, AND EMPOWERING FAMILIES AND PROFESSIONALS THROUGH EDUCATIONAL PROGRAMS AND SUPPORT SERVICES.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt0922035
IRS990/NetAssetsOrFundBalancesEOYAmt01143794
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0-7029
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0-7029
IRS990/NetIncomeOrLossGrp/ExclusionAmt01903
IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt01903
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt0770512
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt0784325
IRS990/NoncashContributionsAmt031699
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt012235
IRS990/OccupancyGrp/ManagementAndGeneralAmt0840
IRS990/OccupancyGrp/ProgramServicesAmt05272
IRS990/OccupancyGrp/TotalAmt018347
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherExpensesGrp/Desc0SUPPLIES
IRS990/OtherExpensesGrp/Desc1POSTAGE & MAILING
IRS990/OtherExpensesGrp/Desc2STATE REGISTRATION FEES
IRS990/OtherExpensesGrp/Desc3PRINTING & COPYING
IRS990/OtherExpensesGrp/FundraisingAmt06334
IRS990/OtherExpensesGrp/FundraisingAmt1847
IRS990/OtherExpensesGrp/FundraisingAmt2393
IRS990/OtherExpensesGrp/FundraisingAmt3988
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt0398
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt11447
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt2416
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt3169
IRS990/OtherExpensesGrp/ProgramServicesAmt05922
IRS990/OtherExpensesGrp/ProgramServicesAmt14225
IRS990/OtherExpensesGrp/ProgramServicesAmt22610
IRS990/OtherExpensesGrp/TotalAmt012654
IRS990/OtherExpensesGrp/TotalAmt16519
IRS990/OtherExpensesGrp/TotalAmt23419
IRS990/OtherExpensesGrp/TotalAmt31157
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt07355
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt05455
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt023235
IRS990/OtherSalariesAndWagesGrp/TotalAmt036045
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt0761
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt0806
IRS990/PayrollTaxesGrp/ProgramServicesAmt05061
IRS990/PayrollTaxesGrp/TotalAmt06628
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt09652
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt042786
IRS990/PrincipalOfficerNm0MELISSA BRYCE
IRS990/ProfessionalFundraisingInd00
IRS990/ProgSrvcAccomActy2Grp/Desc0RESEARCH:MEDICAL AND SCIENTIFIC PROGRAMS: THE GFPD CONTINUES TO FUND RESEARCH AND MEDICAL CARE BEST PRACTICES FOR PATIENTS WITH PEROXISOMAL DISORDERS. CURRENTLY, THE GFPD FUNDS RESEARCH THROUGH A NUMBER OF ACADEMIC AND PROFESSIONAL INSTITUTIONS INCLUDING THE UNIVERSITY OF SOUTHERN CALIFORNIA, BAYLOR COLLEGE OF MEDICINE, THE KENNEDY KRIEGER INSTITUTE, JACKSON LABORATORIES AND MCGILL UNIVERSITY IN MONTREAL. ADDITIONALLY, THE GFPD SUPPORTS A GROUP OF MEDICAL AND SCIENTIFIC ADVISORS FROM AROUND THE WORK DEDICATED TO RESEARCH AND DEVELOPMENT OF TREATMENTS AND BEST PRACTICES. THE MOST SIGNIFICANT STUDY THE GFPD HAS SUPPORTED AND PARTICIPATED IN IS A FULL-SCALE NATURAL HISTORY STUDY OF PEROXISOMAL DISORDER PATIENTS THROUGH MCGILL UNIVERSITY. THIS STUDY IS A CONTINUAL PROCESS TO UNDERSTAND THE SYMPTOMS AND SEVERITY OF THE DISORDERS IN VARIOUS PATIENTS FROM AROUND THE WORLD. THE GFPD HAS HELPED TO ENROLL MORE THAN 200 IN THE STUDY. FINALLY, THE GFPD REGULARLY GIVES RESEARCH GRANTS IN COMBINATION WITH LARGER GRANTS THROUGH A PARTNERSHIP FROM THE NATIONAL INSTITUTE OF HEALTH AND OTHER VARIOUS NATIONAL RESEARCH GRANT PROGRAMS. PATIENT ADVOCACY AND NEWBORN SCREENING: THE GFPD ADVOCATES AND EDUCATES FOR ADVANCEMENTS IN NEWBORN SCREENING FOR GENETIC DISORDERS INCLUDING PEROXISOMAL DISORDERS. AT THE TIME OF THE FILING OF THIS DOCUMENT, 20 STATES HAVE ENACTED POLICIES FOR NEWBORN SCREENING. THE ORGANIZATION WILL CONTINUE INVESTING TIME AND RESOURCES INTO ENSURING FAMILIES HAVE THE BEST OPTIONS AVAILABLE TO MITIGATE LONG DIAGNOSTIC JOURNEYS WHEN NEWBORN SCREENING IS NOT READILY AVAILABLE.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt025552
IRS990/ProgSrvcAccomActy2Grp/GrantAmt017975
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt0456523
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt00
IRS990/PYInvestmentIncomeAmt03109
IRS990/PYOtherExpensesAmt0174796
IRS990/PYOtherRevenueAmt014588
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt0231821
IRS990/PYSalariesCompEmpBnftPaidAmt067603
IRS990/PYTotalExpensesAmt0242399
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt0474220
IRS990/QuidProQuoContributionsInd00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt0221759
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0668964
IRS990/SavingsAndTempCashInvstGrp/EOYAmt0667850
IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt0OTHER INCOME
IRS990ScheduleA/Form990ScheduleAPartVIGrp/FormAndLineReferenceDesc0SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME:
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt0688588
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0467235
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0583884
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0521673
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0385316
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt02646696
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt02090
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt03109
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt011885
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt08591
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt01235
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt026910
IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt03307
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus2YearsAmt01595
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus3YearsAmt02350
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus4YearsAmt042831
IRS990ScheduleA/OtherIncome170Grp/TotalAmt046776
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.83660
IRS990ScheduleA/PublicSupportPY170Pct00.86540
IRS990ScheduleA/PublicSupportTotal170Amt02275996
IRS990ScheduleA/SubstantialContributorsTotAmt0370700
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt0688588
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0467235
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0583884
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0521673
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0385316
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt02646696
IRS990ScheduleA/TotalSupportAmt02720382
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/EquipmentGrp/BookValueAmt02798
IRS990ScheduleD/EquipmentGrp/DepreciationAmt07234
IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt010032
IRS990ScheduleD/ExpensesNotReportedAmt00
IRS990ScheduleD/ExpensesNotRptFinclStmtAmt00
IRS990ScheduleD/ExpensesSubtotalAmt0463793
IRS990ScheduleD/RevenueNotReportedAmt00
IRS990ScheduleD/RevenueNotReportedFinclStmtAmt00
IRS990ScheduleD/RevenueSubtotalAmt0685552
IRS990ScheduleD/TotalBookValueLandBuildingsAmt02798
IRS990ScheduleD/TotalExpensesPerForm990Amt0463793
IRS990ScheduleD/TotalRevenuePerForm990Amt0685552
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt0685552
IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt0463793

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Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.25$0.08$0.18$0.72$1.19$0.47
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.68$0.04$0.64$0.66$0.84$0.18
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.85$0.05$0.80$0.82$1.15$0.33
2021Detailed filing. Detailed filing data is available for this year.$1.18$0.03$1.14$0.69$0.46$0.22
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.95$0.03$0.92$0.47$0.24$0.23
2019Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.77$0.08$0.69$0.61$0.67$0.06
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.86$0.12$0.75$0.53$0.53$0.00
2017Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.81$0.06$0.75$0.43$0.42$0.01
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.75$0.01$0.74$0.32$0.10$0.22
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.52$0.00$0.52$0.29$0.10$0.20
2014Detailed filing. Detailed filing data is available for this year.$0.33$0.00$0.33$0.13$0.06$0.06
2013Detailed filing. Detailed filing data is available for this year.$0.26$0.00$0.26$0.22$0.17$0.05
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.21$0.00$0.21$0.07