Civic Intelligence

Global Foundation for Peroxisomal Disorders

EIN 27-3646193 • 501(c)3 • Tulsa, OK

Profile

The mission of The Global Foundation for Peroxisomal Disorders is to help children and families faced with a Peroxisome Biogenesis Disorder-Zellweger Spectrum Disorder (PBD-ZSD) diagnosis and to assist family members and professionals through educational programs, research, and support services.

PO Box 33238Tulsa, OK 74153

www.thegfpd.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

80th percentile

0.31x

Higher debt load relative to assets than 80% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Liabilities / Revenue

70th percentile

0.11x

Higher debt load relative to revenue than 70% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Net Margin

6th percentile

-65%

Higher net margin than 6% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

6th percentile

-45%

Faster asset growth than 6% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Annualized from 2022 to 2024

Revenue Growth

29th percentile

-5.9%

Faster revenue growth than 29% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Annualized from 2022 to 2024

Balance Sheet
Liabilities / Assets80th percentile

Assets

Down

$254,047

Down $425,971 (-63%) from 2023

Liabilities

Up

$78,424

Up $38,485 (+96%) from 2023

Net Assets

Down

$175,623

Down $464,456 (-73%) from 2023

Operations
Liabilities / Revenue70th percentileNet Margin6th percentile

Revenue

Up

$722,979

Up $62,446 (+9.5%) from 2023

Expenses

Up

$1,194,522

Up $354,384 (+42%) from 2023

Net Income

Down

-$471,543

Down $291,938 (-163%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth6th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$1.5M$1.0M$500K$0Assets 2012: $208,734Liabilities 2012: $0Net Assets 2012: $208,7342012Assets 2013: $257,173Liabilities 2013: $0Net Assets 2013: $257,1732013Assets 2014: $328,709Liabilities 2014: $0Net Assets 2014: $328,7092014Assets 2015: $523,921Liabilities 2015: $0Net Assets 2015: $523,9212015Assets 2016: $753,282Liabilities 2016: $12,390Net Assets 2016: $740,8922016Assets 2017: $814,597Liabilities 2017: $64,550Net Assets 2017: $750,0472017Assets 2018: $864,504Liabilities 2018: $116,188Net Assets 2018: $748,3162018Assets 2019: $772,198Liabilities 2019: $81,984Net Assets 2019: $690,2142019Assets 2020: $948,061Liabilities 2020: $26,026Net Assets 2020: $922,0352020Assets 2021: $1,176,716Liabilities 2021: $32,922Net Assets 2021: $1,143,7942021Assets 2022: $851,736Liabilities 2022: $47,958Net Assets 2022: $803,7782022Assets 2023: $680,018Liabilities 2023: $39,939Net Assets 2023: $640,0792023Assets 2024: $254,047Liabilities 2024: $78,424Net Assets 2024: $175,6232024

Highlighted filing

2024

Assets$254,047
Liabilities$78,424
Net Assets$175,623
Open 2024 Filing

Operations Trend

Revenue Growth29th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$1.5M$1.0M$500K$0-$500KExpenses 2012: $73,3812012Revenue 2013: $219,593Expenses 2013: $171,455Net Income 2013: $48,1382013Revenue 2014: $128,192Expenses 2014: $64,956Net Income 2014: $63,2362014Revenue 2015: $290,487Expenses 2015: $95,275Net Income 2015: $195,2122015Revenue 2016: $317,064Expenses 2016: $100,093Net Income 2016: $216,9712016Revenue 2017: $432,070Expenses 2017: $422,915Net Income 2017: $9,1552017Revenue 2018: $533,082Expenses 2018: $534,813Net Income 2018: -$1,7312018Revenue 2019: $607,592Expenses 2019: $665,694Net Income 2019: -$58,1022019Revenue 2020: $474,220Expenses 2020: $242,399Net Income 2020: $231,8212020Revenue 2021: $685,552Expenses 2021: $463,793Net Income 2021: $221,7592021Revenue 2022: $815,854Expenses 2022: $1,150,024Net Income 2022: -$334,1702022Revenue 2023: $660,533Expenses 2023: $840,138Net Income 2023: -$179,6052023Revenue 2024: $722,979Expenses 2024: $1,194,522Net Income 2024: -$471,5432024

Highlighted filing

2024

Revenue$722,979
Expenses$1,194,522
Net Income-$471,543
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$254,047
Liabilities
$78,424
Net assets
$175,623
Revenue
$722,979
Expenses
$1,194,522
Net income
-$471,543
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.25$0.08$0.18$0.72$1.19$0.47
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.68$0.04$0.64$0.66$0.84$0.18
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.85$0.05$0.80$0.82$1.15$0.33
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.18$0.03$1.14$0.69$0.46$0.22
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.95$0.03$0.92$0.47$0.24$0.23
2019Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.77$0.08$0.69$0.61$0.67$0.06
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.86$0.12$0.75$0.53$0.53$0.00
2017Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.81$0.06$0.75$0.43$0.42$0.01
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.75$0.01$0.74$0.32$0.10$0.22
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.52$0.00$0.52$0.29$0.10$0.20
2014Detailed filing. Detailed filing data is available for this year.$0.33$0.00$0.33$0.13$0.06$0.06
2013Detailed filing. Detailed filing data is available for this year.$0.26$0.00$0.26$0.22$0.17$0.05
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.21$0.00$0.21$0.07
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Nov 12, 2025
Return Version
2024v5.2
Gross Receipts
$745,845
Mission and Program Overview

Mission

The mission of The Global Foundation for Peroxisomal Disorders is to help children and families faced with a Peroxisome Biogenesis Disorder-Zellweger Spectrum Disorder (PBD-ZSD) diagnosis and to assist family members and professionals through educational programs, research, and support services.

The global foundation for peroxisomal disorders is dedicated to improving the lives of individuals with peroxisomal disorders by funding research, championing scientific collaboration, and empowering families and professionals through educational programs and support services.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$386,910--
Cash and Non-Interest-Bearing Accounts$138,265$192,324▲ $54,059
Savings and Temporary Cash Investments$78,956--
Prepaid Expenses and Deferred Charges$40,684$45,784▲ $5,100
Accounts Receivable$24,076$7,503▼ $16,573
Land, Buildings, and Equipment, Net$8,966$6,275▼ $2,691
Inventories for Sale or Use$2,161$2,161→ $0
Total Assets$680,018$254,047▼ $425,971
Liabilities
Accounts Payable and Accrued Expenses$39,939$78,424▲ $38,485
Total Liabilities$39,939$78,424▲ $38,485
Net Assets / Fund Balance
Net Assets With Donor Restrictions$297,520$0▼ $297,520
Net Assets Without Donor Restrictions$342,559$175,623▼ $166,936
Total Net Assets Fund Balance$640,079$175,623▼ $464,456
Total Liabilities and Net Assets / Fund Balance$680,018$254,047▼ $425,971

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$6,275$14,088$20,363
Compensation and Service Providers
Top Officer PayScore unavailable

Employees

NameTitleFull / Part TimeBaseTotal
Madeleine BryceDirector of DevelopmentFT$76,923$76,923
Melissa BryceExecutive Director 1/1-8/31FT$62,115$62,115
Ryan MapleExecutive Director 9/1-12/31FT$28,442$28,442

Board Members and Trustees

NameTitle
Chris OstertagChair
Corin ChapmanVice Chair
Andrew LongeneckerDirector
Brian TimsDirector
Charina RamirezDirector
Christine QuinnDirector
Dan BurnsDirector
David LapidusDirector
Isabella PinaDirector
Julie GacnikDirector
Kelly Dauer-hubschmittDirector
Kim MartinelliDirector
Lauren DraperDirector
Madeline CorriganDirector
Meghan MeyersDirector
Natalie ClouseDirector
Melissa BryceDirector 9/1 - 12/31
Chad JohnsonSecretary
Ryan MapleTreasurer 1/1 - 8/31
Sara KearTreasurer 9/1-12/31
Revenue and Support

Revenue Composition

Contributions and Grants
$671,239
Program Service Revenue
$16,050
Investment Income
$3,049
Other Revenue
$32,641
All Other Contributions
$420,948
Change in Net Assets
$-471,543

Audited Revenue Reconciliation

Revenue per Audited Statements
$722,628
Revenue Not Reported on Financial Statements
$351
Revenue Not Reported on Form 990
$7,085
Total Revenue per Audited Statements
$729,713
Total Revenue per Form 990
$722,979
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$724,614
Salaries, Compensation, and Employee Benefits$377,140
Total Fundraising Expense$167,132
Grants and Similar Amounts Paid$92,768
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Travel$326,890$4,141$7,734$338,765
Other Salaries and Wages$155,204$5,866$17,149$178,219
Current Officers, Directors, Trustees, and Key Employees$107,743$16,748$42,989$167,480
Office Expenses$106,867$1,674$19,969$128,510
Grants to Domestic Orgs$92,768--$92,768
Information Technology$57,105$492$17,379$74,976
Fees for Services Accounting-$55,671-$55,671
Fees for Services Other$21,500-$17,059$38,559
All Other Expenses$8,541$8,188$3,025$19,754
Other Employee Benefits$13,990$1,203$3,200$18,393
Occupancy$11,917$1,355$4,750$18,022
Advertising-$330$16,001$16,331
Payroll Taxes$9,924$854$2,270$13,048
Other Expenses$5,251$376$1,007$5,251
Conferences and Meetings$1,126$1,777$57$2,960
Insurance$1,846$292$783$2,921
Depreciation Depletion$1,700$269$722$2,691
Fees for Service Investment Mgmnt Fees-$351-$351
Total Functional Expenses$927,803$99,587$167,132$1,194,522

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Form 990$1,194,522
Expenses per Audited Statements$1,194,169
Total Expenses per Audited Statements$1,194,169
Expenses Not Reported on Financial Statements$353
Other Expense Adjustments$2
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Montclair State UniversityMontclair, NJ-Patient - Focused Drug Development in Peroxisomal Disorders$92,768
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$47,405
Fundraising Direct Expenses$22,866
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Tee It Up$215,557$39,645$2,491$37,154
Hope With Lo 5k$54,424$7,760-$7,760
Total Events$297,696$47,405$22,866$24,539
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 8B

“The organization does not have a committee with authority to act on behalf of the governing body.”

Form 990, Part VI, Section B, Line 11B

“Financial statements were prepared by the gfpd cfo and audited by an independent auditor. These financial statements were reviewed by the board and the finance committee and used to prepare the 990. The 990 is prepared by an outside firm and then reviewed by the executive director and finance committee, which is then submitted to the board for final review and approval before the 990 is filed.”

Form 990, Part VI, Section B, Line 12C

“Board members are given an annual conflict of interest statement that they review and sign. The gfpd cfo reviews any conflicts and any potential conflicts as invoices are paid and business is being transacted.”

Form 990, Part VI, Section B, Line 15A

“Process for determining compensation is based on the nonprofit salary survey published by the national council of nonprofits.”

Form 990, Part VI, Section C, Line 19

“Documents are available upon request.”

Filing and Contact Details

Filer

Filer Name
Global Foundation for Peroxisomal
EIN
27-3646193
Phone
9189985798
Address
PO BOX 33238, TULSA, OK 74153

Signing Officer

Name
Ryan Maple
Title
Executive Director
Phone
9182307713
Signed
2025-11-12
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Ryan Maple
Formed
2010
Legal Domicile
Ok
Voting Board Members
19
Independent Board Members
19
Employees
3
Volunteers
120

Preparer

Firm
Eide Bailly Llp
Address
810 S CINCINNATI AVE STE 600, TULSA, OK 74119-1623
Preparer
Chandra Venable CPA
Phone
9187485000
Supplemental Narrative

Additional Explanations

FORM 990, PART XI, LINE 9:

“ROUNDING 3.”

Financial Statement Notes

PART X, LINE 2:

“The foundation has evaluated if there are any uncertain tax positions. No uncertain tax positions were identified. The foundation had no accrued interest or penalties relating to any tax contingencies. Any tax, penalty, or interest which might result from an examination will be included in operating expense, if incurred. Generally, the foundation's tax information forms remain open for three years for examinzation by taxing authorities.”

PART XI, LINE 2D - OTHER ADJUSTMENTS:

“ROUNDING 1.”

PART XII, LINE 4B - OTHER ADJUSTMENTS:

“ROUNDING 2.”

Raw XML AppendixShowing 400 of 687 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd00
IRS990/AccountsPayableAccrExpnssGrp/BOYAmt039939
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt078424
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IRS990/AccountsReceivableGrp/EOYAmt07503
IRS990/ActivitiesConductedPrtshpInd00
IRS990/ActivityOrMissionDesc0THE GLOBAL FOUNDATION FOR PEROXISOMAL DISORDERS IS DEDICATED TO IMPROVING THE LIVES OF INDIVIDUALS WITH PEROXISOMAL DISORDERS BY FUNDING RESEARCH, CHAMPIONING SCIENTIFIC COLLABORATION, AND EMPOWERING FAMILIES AND PROFESSIONALS THROUGH EDUCATIONAL PROGRAMS AND SUPPORT SERVICES.
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IRS990/AdvertisingGrp/TotalAmt016331
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IRS990/AllOtherExpensesGrp/TotalAmt019754
IRS990/AnnualDisclosureCoveredPrsnInd01
IRS990/AuditCommitteeInd01
IRS990/BackupWthldComplianceInd01
IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt0JACKIE BROOKS
IRS990/BooksInCareOfDetail/PhoneNum09187485000
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt0810 S CINCINNATI AVE STE 600
IRS990/BooksInCareOfDetail/USAddress/CityNm0TULSA
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0OK
IRS990/BooksInCareOfDetail/USAddress/ZIPCd0741191623
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IRS990/CollectionsOfArtInd00
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IRS990/CompensationProcessOtherInd00
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IRS990/CostOfGoodsSoldAmt00
IRS990/CreditCounselingInd00
IRS990/CYBenefitsPaidToMembersAmt00
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IRS990/CYTotalExpensesAmt01194522
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IRS990/CYTotalProfFndrsngExpnsAmt00
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IRS990/DeductibleArtContributionInd00
IRS990/DeductibleNonCashContriInd00
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IRS990/DepreciationDepletionGrp/TotalAmt02691
IRS990/Desc0FAMILY AND SCIENTIFIC CONFERENCETHE 2024 FAMILY AND SCIENTIFIC CONFERENCE WAS HELD IN WASHINGTON, D.C., WHERE THE GFPD HOSTED THE FDA FOR AN EXTERNALLY-LED PATIENT-FOCUSED DRUG DEVELOPMENT (EL-PFDD) MEETING. THE MEETING WAS ATTENDED BY 281 INDIVIDUALS, INCLUDING 35 DIAGNOSED PATIENTS, 82 PRIMARY CAREGIVERS, AND OTHER ADVOCATES AND PROFESSIONALS. THIS MEETING WAS THE FOCAL POINT OF THE CONFERENCE AND UNDERSCORED THE NEED FOR BETTER TREATMENTS THAT ADDRESS THE BROAD SYMPTOMS AND IMPACTS OF PEROXISOMAL DISORDERS. A FINAL VOICE OF THE PATIENT REPORT WILL BE PUBLISHED IN 2025 AS AN ANALYSIS OF THE EL-PFDD MEETING. THE CONFERENCE ALSO PROVIDED FAMILIES WITH MEDICAL AND RESEARCH UPDATES FROM OUR MEDICAL AND SCIENTIFIC ADVISORY BOARD (MSAB), AS WELL AS ONE-ON-ONE PROFESSIONAL POP-INS WITH MANY OF THE MSAB MEMBERS.
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IRS990/EmployeeCnt03
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IRS990/FamilyOrBusinessRlnInd00
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IRS990/Form990PartVIISectionAGrp/TitleTxt2VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt3TREASURER 1/1 - 8/31
IRS990/Form990PartVIISectionAGrp/TitleTxt4TREASURER 9/1-12/31
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
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IRS990/Form990PartVIISectionAGrp/TitleTxt19DIRECTOR 9/1 - 12/31
IRS990/Form990PartVIISectionAGrp/TitleTxt20DIRECTOR OF DEVELOPMENT
IRS990/Form990PartVIISectionAGrp/TitleTxt21EXECUTIVE DIRECTOR 1/1-8/31
IRS990/Form990PartVIISectionAGrp/TitleTxt22EXECUTIVE DIRECTOR 9/1-12/31
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IRS990/MissionDesc0THE MISSION OF THE GLOBAL FOUNDATION FOR PEROXISOMAL DISORDERS IS TO IMPROVE THE LIVES OF INDIVIDUALS WITH PEROXISOMAL DISORDERS BY FUNDING RESEARCH, CHAMPIONING SCIENTIFIC COLLABORATION, AND EMPOWERING FAMILIES AND PROFESSIONALS THROUGH EDUCATIONAL PROGRAMS AND SUPPORT SERVICES.
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IRS990/ProgramServiceRevenueGrp/Desc0FAMILY AND SCIENTIFIC
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IRS990/ProgSrvcAccomActy2Grp/Desc0RESEARCH AND MEDICINETHE GFPD CONTINUES TO MAINTAIN AND GROW A STRONG COMMITTEE OF PHYSICIANS AND SCIENTISTS AS PART OF OUR MSAB. THESE INDIVIDUALS CURRENTLY COMPRISE RESEARCHERS, CLINICIANS, AND EXPERTS FROM NORTH AMERICA AND EUROPE WHO TREAT AND ASSIST PEROXISOMAL PATIENTS THROUGH CLINICAL MEDICINE AND RESEARCH. PRIMARY RESEARCH PARTNERS INCLUDE MCGILL UNIVERSITY, BAYLOR COLLEGE OF MEDICINE, UNIVERSITY OF SOUTHERN CALIFORNIA, UNIVERSITY OF AMSTERDAM, THE KENNEDY KRIEGER INSTITUTE, AND MONTCLAIR STATE UNIVERSITY. ADDITIONALLY, THE GFPD HAS CLINICAL ADVISORS FROM A NUMBER OF CHILDREN'S HOSPITALS THROUGHOUT NORTH AMERICA. TO FURTHER GFPD AWARENESS AND NETWORKING, REPRESENTATIVES HELD MEETINGS WITH THE NATIONAL ORGANIZATION FOR RARE DISORDERS, GLOBAL GENES, THE AMERICAN COLLEGE OF MEDICAL GENETICS, THE NOTRE DAME RARE DISEASE SYMPOSIUM, THE WORLD ORPHAN DRUG CONGRESS, AND THE AMERICAN ASSOCIATION FOR THE STUDY OF LIVER DISEASE.
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IRS990/ProgSrvcAccomActy3Grp/Desc0WEBINAR AND VIRTUAL EVENT SERIESTHE GFPD IS THE PREMIER RESOURCE FOR INFORMATION, CLINICAL DIRECTION, TREATMENT GUIDELINES, NETWORKING, MEDICAL LINKAGE, AND ONLINE LEARNING FOR PATIENTS, FAMILIES, CAREGIVERS, CLINICIANS, PHYSICIANS, AND SCIENTIFIC PROFESSIONALS WITH A RANGE OF FAMILIARITY AND EXPERTISE IN PEROXISOMAL DISORDERS AND THEIR CO-MORBIDITIES. ONE OF THE GFPD'S FLAGSHIP PROGRAMS IS ITS WEBINAR AND VIRTUAL EVENT SERIES. THIS PROGRAM PROVIDES YEAR-ROUND EVENTS FOR PATIENTS, FAMILIES, AND PROFESSIONALS. THE PROGRAM IS OFFERED AT NO COST TO PATIENTS, FAMILIES, AND CAREGIVERS, AND PROVIDES CRUCIAL SUPPORT, EDUCATION, ADVOCACY TOOLS, AND RESOURCES. THE VIRTUAL ENVIRONMENT ENABLES MORE FLEXIBILITY IN SCHEDULING, RECORDING, AND DISSEMINATING INFORMATION TO PATIENTS, FAMILIES, AND CAREGIVERS, WHICH INCREASES ACCESS TO OUR COMMUNITY. THE GFPD WEBINAR AND VIRTUAL EVENT SERIES PROVIDES OPPORTUNITIES FOR CONSISTENT AND DIRECT ENGAGEMENT WITH THE COMMUNITY WE SERVE, AND SHAPES OUR STRATEGY FOR IMPROVING WEBINARS, OTHER FAMILY PROGRAMS, AND RESEARCH COLLABORATIONS. IN OCTOBER, A FIRST-TIME EVENT PROVED THE PERFECT EXAMPLE OF THE IMPACT OF VIRTUAL WEBINARS AND EVENTS. A "RELAX AND RELATE" VIRTUAL GATHERING WAS HOSTED FOR OUR EXTREMELY SMALL ADULT PATIENT COMMUNITY, IN WHICH EIGHT INDIVIDUALS MET, MANY FOR THE FIRST TIME. THE PATIENTS SHARED THAT THEY HOPED TO GAIN A CONNECTION TO OTHERS, TO NOT FEEL ALONE," TO LEARN FROM ONE ANOTHER ABOUT THEIR EXPERIENCES, AND WHAT HAS AND HAS NOT HELPED WITH SYMPTOM MANAGEMENT. THERE WAS UNANIMOUS INTEREST IN PARTICIPATING IN FUTURE SIMILAR GATHERINGS, AS WELL AS HAVING THEMED TOPICS AND GUEST PRESENTERS ON VARIOUS SUBJECTS. OVERALL, IN 2024, THE GFPD HOSTED 28 EVENTS AND HAD AN AVERAGE NET PROMOTER SCORE OF 89.2.
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