Civic Intelligence

Global Foundation for Peroxisomal Disorders

990 • Fiscal year 2013 • EIN 27-3646193

Jan 01, 2013 to Dec 31, 2013 • Filed on May 05, 2014

Organization Profilewww.thegfpd.org
5147 S Harvard Ave Suite 18174135

(918) 230-7713

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

55th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2013 filings • 501(c)3 • <$500k nonprofits • Source year 2013

Liabilities / Revenue

56th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2013 filings • 501(c)3 • <$500k nonprofits • Source year 2013

Net Margin

79th percentile

22%

Higher net margin than 79% of similar nonprofits.

2013 filings • 501(c)3 • <$500k nonprofits • Source year 2013

Top Officer Pay

73rd percentile

$0

Higher top officer pay than 73% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2013 filings • 501(c)3 • <$500k nonprofits • Source year 2013

Asset Growth

74th percentile

23%

Faster asset growth than 74% of similar nonprofits.

2013 filings • 501(c)3 • <$500k nonprofits • Annualized from 2012 to 2013

Revenue Growth

Score unavailable

No value available

No earlier valid filing was available within the previous three public years.

Source year 2013

Balance Sheet
Liabilities / Assets55th percentile

Assets

Up

$257,173

Up $48,439 (+23%) from 2012

Net Assets

Up

$257,173

Up $48,439 (+23%) from 2012

Liabilities

Flat

$0

Flat from 2012

Revenue And Expenses
Liabilities / Revenue56th percentileNet Margin79th percentile

Revenue

$219,593

No earlier filing loaded for comparison.

Expenses

Up

$171,455

Up $98,074 (+134%) from 2012

Net Income

$48,138

No earlier filing loaded for comparison.

Historical Trend

Balance Sheet Trend

Asset Growth74th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.5M$1.0M$500K$0Assets 2012: $208,734Liabilities 2012: $0Net Assets 2012: $208,7342012Assets 2013: $257,173Liabilities 2013: $0Net Assets 2013: $257,1732013Assets 2014: $328,709Liabilities 2014: $0Net Assets 2014: $328,7092014Assets 2015: $523,921Liabilities 2015: $0Net Assets 2015: $523,9212015Assets 2016: $753,282Liabilities 2016: $12,390Net Assets 2016: $740,8922016Assets 2017: $814,597Liabilities 2017: $64,550Net Assets 2017: $750,0472017Assets 2018: $864,504Liabilities 2018: $116,188Net Assets 2018: $748,3162018Assets 2019: $772,198Liabilities 2019: $81,984Net Assets 2019: $690,2142019Assets 2020: $948,061Liabilities 2020: $26,026Net Assets 2020: $922,0352020Assets 2021: $1,176,716Liabilities 2021: $32,922Net Assets 2021: $1,143,7942021Assets 2022: $851,736Liabilities 2022: $47,958Net Assets 2022: $803,7782022Assets 2023: $680,018Liabilities 2023: $39,939Net Assets 2023: $640,0792023Assets 2024: $254,047Liabilities 2024: $78,424Net Assets 2024: $175,6232024

Highlighted filing

2013

Assets$257,173
Liabilities$0
Net Assets$257,173
Open 2013 Filing

Operations Trend

Revenue GrowthScore unavailable

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.5M$1.0M$500K$0-$500KExpenses 2012: $73,3812012Revenue 2013: $219,593Expenses 2013: $171,455Net Income 2013: $48,1382013Revenue 2014: $128,192Expenses 2014: $64,956Net Income 2014: $63,2362014Revenue 2015: $290,487Expenses 2015: $95,275Net Income 2015: $195,2122015Revenue 2016: $317,064Expenses 2016: $100,093Net Income 2016: $216,9712016Revenue 2017: $432,070Expenses 2017: $422,915Net Income 2017: $9,1552017Revenue 2018: $533,082Expenses 2018: $534,813Net Income 2018: -$1,7312018Revenue 2019: $607,592Expenses 2019: $665,694Net Income 2019: -$58,1022019Revenue 2020: $474,220Expenses 2020: $242,399Net Income 2020: $231,8212020Revenue 2021: $685,552Expenses 2021: $463,793Net Income 2021: $221,7592021Revenue 2022: $815,854Expenses 2022: $1,150,024Net Income 2022: -$334,1702022Revenue 2023: $660,533Expenses 2023: $840,138Net Income 2023: -$179,6052023Revenue 2024: $722,979Expenses 2024: $1,194,522Net Income 2024: -$471,5432024

Highlighted filing

2013

Revenue$219,593
Expenses$171,455
Net Income$48,138
Open 2013 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2013 to Dec 31, 2013
Signed
May 5, 2014
Return Version
2013v3.0
Gross Receipts
$219,593
Mission and Program Overview

Mission

The mission of The Global Foundation for Peroxisomal Disorders is to help children and families faced with a Peroxisome Biogenesis Disorder-Zellweger Spectrum Disorder (PBD-ZSD) diagnosis and to assist family members and professionals through educational programs, research, and support services.

The mission of The Global Foundation for Peroxisomal Disorders is to help children and families faced with a diagnosis of a Peroxisomal Biogenesis Disorder-Zellweger Spectrum Disorder and to assist family members and professionals through educational programs, research, and support services.

Balance Sheet Detail
LineBeginningEndChange
Assets
Rtn Earn Endowment Incm Other Fnds$0$257,173▲ $257,173
Cap Stk Tr Prin Current Funds$209,035$0▼ $209,035
Savings and Temporary Cash Investments-$201,276-
Cash and Non-Interest-Bearing Accounts$209,035$55,897▼ $153,138
Pd in Cap Srpls Land Bldg Eqp Fund$0$0→ $0
Total Assets$209,035$257,173▲ $48,138
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Total Net Assets Fund Balance$209,035$257,173▲ $48,138
Total Liabilities and Net Assets / Fund Balance$209,035$257,173▲ $48,138
Compensation and Service Providers
Top Officer Pay73rd percentile

Board Members and Trustees

NameTitle
Shannon ButallaPresident
Anne Park HopkinsVice President
Daniel WoodburyTrustee
Heidi HarrisCommunications Coordinator
Mousumi BoseMedical/Scientific Liason
Pamela MarshallRegistry and Family Support Coordinator
Geoff EdgarSecretary
Melissa GambleTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$219,178
Program Service Revenue
$0
Investment Income
$415
Other Revenue
$0
All Other Contributions
$219,178
Change in Net Assets
$48,138
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$85,875
Other Expenses$85,580
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$75,000--$75,000
Conferences and Meetings$54,144--$54,144
Foreign Grants$10,875--$10,875
Other Expenses$10,580$0$0$10,580
Office Expenses$6,671--$6,671
Insurance$1,908--$1,908
Advertising$1,215--$1,215
Information Technology$707--$707
Travel$29--$29
Total Functional Expenses$171,455$0$0$171,455
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
47-0785575--A Pilot, Open-Label Field Trial assessing the use of Betaine in patients with a PEX 1 mutation.$25,000
95-1642394--Neural Cell Resources for PBD-ZSD Drug Testing$25,000
52-1524967--A Study of the flavonoid Diosmetin on PEX 1 Transgenic Mice.$25,000

International Compliance

Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The officers were given a draft copy of the 990 form to review prior to filing.”

Form 990, Part VI, Section B, Line 12C

“At the annual meeting of the Board of Directors, board members reviewed the conflict of interest policy and required to disclose any conflicts of interest that they may have.”

Form 990, Part VI, Section C, Line 19

“All governing documents, conflict of interest policy, and financial statements are available during our annual Family and Scientific Conference.”

Filing and Contact Details

Filer

EIN
27-3646193
Phone
9182307713

Signing Officer

Name
Melissa Gamble
Title
treasurer
Phone
9182307713
Signed
2014-05-05

Organization Details

Principal Officer
Melissa Gamble
Formed
2010
Legal Domicile
Ok
Voting Board Members
8
Independent Board Members
8
Employees
0
Volunteers
25
Raw XML AppendixShowing 400 of 448 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd00
IRS990/ActivitiesConductedPrtshpInd00
IRS990/ActivityOrMissionDesc0The mission of The Global Foundation for Peroxisomal Disorders is to help children and families faced with a diagnosis of a Peroxisomal Biogenesis Disorder-Zellweger Spectrum Disorder and to assist family members and professionals through educational programs, research, and support services.
IRS990/AdvertisingGrp/ProgramServicesAmt01215
IRS990/AdvertisingGrp/TotalAmt01215
IRS990/AllOtherContributionsAmt0219178
IRS990/AnnualDisclosureCoveredPrsnInd01
IRS990/BackupWthldComplianceInd01
IRS990/BooksInCareOfDetail/PersonNm0Melissa Gamble
IRS990/BooksInCareOfDetail/PhoneNum09182307713
IRS990/BooksInCareOfDetail/USAddress/AddressLine105147 S Harvard Ave Suite 181
IRS990/BooksInCareOfDetail/USAddress/City0Tulsa
IRS990/BooksInCareOfDetail/USAddress/State0OK
IRS990/BooksInCareOfDetail/USAddress/ZIPCode074135
IRS990/BusinessRlnWithFamMemInd00
IRS990/BusinessRlnWithOfficerEntInd00
IRS990/BusinessRlnWithOrgMemInd00
IRS990/CapStkTrPrinCurrentFundsGrp/BOYAmt0209035
IRS990/CapStkTrPrinCurrentFundsGrp/EOYAmt00
IRS990/CashNonInterestBearingGrp/BOYAmt0209035
IRS990/CashNonInterestBearingGrp/EOYAmt055897
IRS990/ChangeToOrgDocumentsInd00
IRS990/CntrctRcvdGreaterThan100KCnt00
IRS990/CollectionsOfArtInd00
IRS990/CompensationFromOtherSrcsInd00
IRS990/CompensationProcessCEOInd00
IRS990/CompensationProcessOtherInd00
IRS990/ConferencesMeetingsGrp/ProgramServicesAmt054144
IRS990/ConferencesMeetingsGrp/TotalAmt054144
IRS990/ConflictOfInterestPolicyInd01
IRS990/ConservationEasementsInd00
IRS990/ConsolidatedAuditFinclStmtInd00
IRS990/ContriRptFundraisingEventAmt00
IRS990/CreditCounselingInd00
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt0219178
IRS990/CYGrantsAndSimilarPaidAmt085875
IRS990/CYInvestmentIncomeAmt0415
IRS990/CYOtherExpensesAmt085580
IRS990/CYOtherRevenueAmt00
IRS990/CYProgramServiceRevenueAmt00
IRS990/CYRevenuesLessExpensesAmt048138
IRS990/CYSalariesCompEmpBnftPaidAmt00
IRS990/CYTotalExpensesAmt0171455
IRS990/CYTotalFundraisingExpenseAmt00
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt0219593
IRS990/DecisionsSubjectToApprovaInd00
IRS990/DeductibleArtContributionInd00
IRS990/DeductibleNonCashContriInd00
IRS990/DelegationOfMgmtDutiesInd00
IRS990/Desc02013 GFPD Family and Scientific Conference- gathering of scientists, physicians, and families affected by Peroxisomal Biogenesis Disorders to discuss treatments.
IRS990/DescribedInSection501c3Ind01
IRS990/DisregardedEntityInd00
IRS990/DocumentRetentionPolicyInd00
IRS990/DonatedServicesAndUseFcltsAmt00
IRS990/DonorAdvisedFundInd00
IRS990/ElectionOfBoardMembersInd00
IRS990/EmployeeCnt00
IRS990/EngagedInExcessBenefitTransInd00
IRS990/ExpenseAmt054144
IRS990/FamilyOrBusinessRlnInd00
IRS990/FederalGrantAuditRequiredInd00
IRS990/FederatedCampaignsAmt00
IRS990/ForeignActivitiesInd00
IRS990/ForeignFinancialAccountInd00
IRS990/ForeignGrantsGrp/ProgramServicesAmt010875
IRS990/ForeignGrantsGrp/TotalAmt010875
IRS990/ForeignOfficeInd00
IRS990/Form1098CFiledInd01
IRS990/Form8282PropertyDisposedOfInd00
IRS990/Form8899Filedind00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt10
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt20
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt30
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt40
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt60
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt015
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt11
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt21
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt315
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt415
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt515
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt615
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt71
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/PersonNm0Shannon Butalla
IRS990/Form990PartVIISectionAGrp/PersonNm1Anne Park Hopkins
IRS990/Form990PartVIISectionAGrp/PersonNm2Geoff Edgar
IRS990/Form990PartVIISectionAGrp/PersonNm3Melissa Gamble
IRS990/Form990PartVIISectionAGrp/PersonNm4Mousumi Bose
IRS990/Form990PartVIISectionAGrp/PersonNm5Pamela Marshall
IRS990/Form990PartVIISectionAGrp/PersonNm6Heidi Harris
IRS990/Form990PartVIISectionAGrp/PersonNm7Daniel Woodbury
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/TitleTxt0President
IRS990/Form990PartVIISectionAGrp/TitleTxt1Vice President
IRS990/Form990PartVIISectionAGrp/TitleTxt2Secretary
IRS990/Form990PartVIISectionAGrp/TitleTxt3Treasurer
IRS990/Form990PartVIISectionAGrp/TitleTxt4Medical/Scientific Liason
IRS990/Form990PartVIISectionAGrp/TitleTxt5Registry and Family Support Coordinator
IRS990/Form990PartVIISectionAGrp/TitleTxt6Communications Coordinator
IRS990/Form990PartVIISectionAGrp/TitleTxt7Trustee
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr02010
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedInd00
IRS990/FundraisingActivitiesInd00
IRS990/FundraisingAmt00
IRS990/GainOrLossGrp/OtherAmt00
IRS990/GainOrLossGrp/SecuritiesAmt00
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt08
IRS990/GovernmentGrantsAmt00
IRS990/GrantAmt00
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt075000
IRS990/GrantsToDomesticOrgsGrp/TotalAmt075000
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt0219593
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd00
IRS990/IncmFromInvestBondProceedsGrp/ExclusionAmt00
IRS990/IncmFromInvestBondProceedsGrp/RelatedOrExemptFuncIncomeAmt00
IRS990/IncmFromInvestBondProceedsGrp/TotalRevenueColumnAmt00
IRS990/IncmFromInvestBondProceedsGrp/UnrelatedBusinessRevenueAmt00
IRS990/IndependentAuditFinclStmtInd00
IRS990/IndependentVotingMemberCnt08
IRS990/IndivRcvdGreaterThan100KCnt00
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InformationTechnologyGrp/ProgramServicesAmt0707
IRS990/InformationTechnologyGrp/TotalAmt0707
IRS990/InsuranceGrp/ProgramServicesAmt01908
IRS990/InsuranceGrp/TotalAmt01908
IRS990/InvestmentExpenseAmt00
IRS990/InvestmentIncomeGrp/ExclusionAmt0415
IRS990/InvestmentIncomeGrp/RelatedOrExemptFuncIncomeAmt00
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt0415
IRS990/InvestmentIncomeGrp/UnrelatedBusinessRevenueAmt00
IRS990/InvestmentInJointVentureInd00
IRS990/IRPDocumentCnt00
IRS990/IRPDocumentW2GCnt00
IRS990/LegalDomicileStateCd0OK
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembershipDuesAmt00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0The mission of the Global Foundation for Peroxisomal Disorders is to help children and families faced with a diagnosis of a Peroxisomal Biogenesis Disorder (in the Zellweger Spectrum of Disordres) and to assist family members and professionals through educational programs, research, and support services.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd01
IRS990/NetAssetsOrFundBalancesBOYAmt0209035
IRS990/NetAssetsOrFundBalancesEOYAmt0257173
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt00
IRS990/NoncashContributionsAmt00
IRS990/NondeductibleContributionsInd01
IRS990/NondeductibleContriDisclInd01
IRS990/OfficeExpensesGrp/ProgramServicesAmt06671
IRS990/OfficeExpensesGrp/TotalAmt06671
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrgDoesNotFollowSFAS117Ind0X
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherExpensesGrp/Desc0Family Support- General
IRS990/OtherExpensesGrp/Desc1Equipment Exchange
IRS990/OtherExpensesGrp/Desc2Fundraising Expenses
IRS990/OtherExpensesGrp/FundraisingAmt00
IRS990/OtherExpensesGrp/FundraisingAmt10
IRS990/OtherExpensesGrp/FundraisingAmt20
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt00
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt10
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt20
IRS990/OtherExpensesGrp/ProgramServicesAmt010206
IRS990/OtherExpensesGrp/ProgramServicesAmt1120
IRS990/OtherExpensesGrp/ProgramServicesAmt210580
IRS990/OtherExpensesGrp/TotalAmt010206
IRS990/OtherExpensesGrp/TotalAmt1120
IRS990/OtherExpensesGrp/TotalAmt210580
IRS990/OtherRevenueTotalAmt00
IRS990/OtherWebsiteInd0X
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PdInCapSrplsLandBldgEqpFundGrp/BOYAmt00
IRS990/PdInCapSrplsLandBldgEqpFundGrp/EOYAmt00
IRS990/PoliticalCampaignActyInd00
IRS990/PrincipalOfficerNm0Melissa Gamble
IRS990/PriorPeriodAdjustmentsAmt00
IRS990/ProfessionalFundraisingInd00
IRS990/ProgSrvcAccomActy2Grp/Desc0Family Support Services- Included grants for travel expenses for families to attend the 2013 GFPD Family and Scientific Conference as well as bereavement gifts to families whose children have died of the effects of Peroxisomal Biogenesis Disorders.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt010206
IRS990/ProgSrvcAccomActy2Grp/GrantAmt00
IRS990/ProgSrvcAccomActy2Grp/RevenueAmt00
IRS990/ProgSrvcAccomActy3Grp/Desc0Medical and Scientific Research Grants
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt085875
IRS990/ProgSrvcAccomActy3Grp/GrantAmt085875
IRS990/ProgSrvcAccomActy3Grp/RevenueAmt00
IRS990/ProgSrvcAccomActyOtherGrp/Desc0Equipment Exchange Program- provided shipping costs for families exchanging medical equipment
IRS990/ProgSrvcAccomActyOtherGrp/Desc1Miscellaneous expenses: Advertising, Office Expenses, Information Technology, Insurance, and Fundraising Expenses
IRS990/ProgSrvcAccomActyOtherGrp/ExpenseAmt0120
IRS990/ProgSrvcAccomActyOtherGrp/ExpenseAmt121110
IRS990/ProgSrvcAccomActyOtherGrp/GrantAmt00
IRS990/ProgSrvcAccomActyOtherGrp/GrantAmt10
IRS990/ProgSrvcAccomActyOtherGrp/RevenueAmt00
IRS990/ProgSrvcAccomActyOtherGrp/RevenueAmt10
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt0208091
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt015549
IRS990/PYInvestmentIncomeAmt00
IRS990/PYOtherExpensesAmt057832
IRS990/PYOtherRevenueAmt00
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt0134710
IRS990/PYSalariesCompEmpBnftPaidAmt00
IRS990/PYTotalExpensesAmt073381
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt0208091
IRS990/QuidProQuoContributionsInd00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt048138
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/RelatedOrganizationsAmt00
IRS990/RentalIncomeOrLossGrp/PersonalAmt00
IRS990/RentalIncomeOrLossGrp/RealAmt00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd00
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990/RevenueAmt00
IRS990/RoyaltiesRevenueGrp/ExclusionAmt00
IRS990/RoyaltiesRevenueGrp/RelatedOrExemptFuncIncomeAmt00
IRS990/RoyaltiesRevenueGrp/TotalRevenueColumnAmt00
IRS990/RoyaltiesRevenueGrp/UnrelatedBusinessRevenueAmt00
IRS990/RtnEarnEndowmentIncmOthFndsGrp/BOYAmt00
IRS990/RtnEarnEndowmentIncmOthFndsGrp/EOYAmt0257173
IRS990/SavingsAndTempCashInvstGrp/EOYAmt0201276
IRS990ScheduleA/First5Years170Ind0X
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt0219178
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0208091
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt076391
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt035108
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt0538768
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt0415
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt00
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt00
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt00
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt0415
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus1YearAmt00
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus2YearsAmt00
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus3YearsAmt00
IRS990ScheduleA/OtherIncome170Grp/TotalAmt00
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportTotal170Amt0538768
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt0219178
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0208091
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt076391
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt035108
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt00
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt0538768
IRS990ScheduleA/TotalSupportAmt0539183
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus1YearAmt00
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus2YearsAmt00
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus3YearsAmt00
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/TotalAmt00
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleF/BoycottCountriesInd00
IRS990ScheduleF/ForeignCorpOwnershipInd00
IRS990ScheduleF/ForeignPartnershipInd00
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt010875
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/MannerOfCashDisbursementTxt0wire draft
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/NonCashAssistanceAmt00
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt0Institution: Research Institute of the McGill University Health Center (MUHC). Braverman, Nancy Elise, MD Address: 4060 Ste Catherine West, PT 406, Montreal, Quebec, Canada H3Z 2Z3 "A Pilot Open-Label trial of Betaine in Patients with a PEX 1 mutation"
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt0North America (including Canada and Mexico, but not the United States)
IRS990ScheduleF/InterestInForeignTrustInd00
IRS990ScheduleF/PassiveForeignInvestmestCoInd00
IRS990ScheduleF/SupplementalInformationDetail/ExplanationTxt0GFPD requires a 6 month progress report detailing the expenditures of grant funding and grant progress.
IRS990ScheduleF/SupplementalInformationDetail/ExplanationTxt1GFPD requires a 6 month progress report detailing grant expenditure and progress.
IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc0Schedule F, Part I, Line 1
IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc1Schedule F, Part I, Line 3
IRS990ScheduleF/Total501c3OrgCnt01
IRS990ScheduleF/TotalOtherOrgCnt00
IRS990ScheduleF/TransferToForeignCorpInd00
IRS990ScheduleI/GrantRecordsMaintainedInd01
IRS990ScheduleI/RecipientTable/CashGrantAmt025000
IRS990ScheduleI/RecipientTable/CashGrantAmt125000
IRS990ScheduleI/RecipientTable/CashGrantAmt225000
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0A Pilot, Open-Label Field Trial assessing the use of Betaine in patients with a PEX 1 mutation.
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt1Neural Cell Resources for PBD-ZSD Drug Testing
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt2A Study of the flavonoid Diosmetin on PEX 1 Transgenic Mice.
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine10University of Nebraska Medical Center
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine11University of Southern California Keck School of Medicine
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine12The Hugo Moser Research Institute at Kennedy Krieger Institute
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine20Dr Bill Rizzo
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine21Dr Joseph Hacia PhD
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine22Dr Steven Steinberg
IRS990ScheduleI/RecipientTable/RecipientEIN0470785575
IRS990ScheduleI/RecipientTable/RecipientEIN1951642394
IRS990ScheduleI/RecipientTable/RecipientEIN2521524967
IRS990ScheduleI/RecipientTable/USAddress/AddressLine104400 Emile St
IRS990ScheduleI/RecipientTable/USAddress/AddressLine11NEED
IRS990ScheduleI/RecipientTable/USAddress/AddressLine12Need
IRS990ScheduleI/RecipientTable/USAddress/City0Omaha
IRS990ScheduleI/RecipientTable/USAddress/City1Los Angeles
IRS990ScheduleI/RecipientTable/USAddress/City2Baltimore
IRS990ScheduleI/RecipientTable/USAddress/State0NE
IRS990ScheduleI/RecipientTable/USAddress/State1CA
IRS990ScheduleI/RecipientTable/USAddress/State2MD
IRS990ScheduleI/RecipientTable/USAddress/ZIPCode068198
IRS990ScheduleI/RecipientTable/USAddress/ZIPCode190089
IRS990ScheduleI/RecipientTable/USAddress/ZIPCode221205
IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt0The GFPD requires a 6 month progress report and a final progress report for all funds granted to any medical/scientific institution.
IRS990ScheduleI/SupplementalInformationDetail/FormAndLineReferenceDesc0Schedule I, Part I, Line 2
IRS990ScheduleI/Total501c3OrgCnt03
IRS990ScheduleI/TotalOtherOrgCnt00
IRS990/ScheduleJRequiredInd00
IRS990/ScheduleORequiredInd01
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0The officers were given a draft copy of the 990 form to review prior to filing.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1At the annual meeting of the Board of Directors, board members reviewed the conflict of interest policy and required to disclose any conflicts of interest that they may have.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2All governing documents, conflict of interest policy, and financial statements are available during our annual Family and Scientific Conference.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990, Part VI, Section B, Line 11b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990, Part VI, Section B, Line 12c
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Form 990, Part VI, Section C, Line 19
IRS990/SchoolOperatingInd00
IRS990/SignificantChangeInd00
IRS990/SignificantNewProgramSrvcInd00
IRS990/SubjectToProxyTaxInd00
IRS990/TaxablePartyNotificationInd00
IRS990/TaxExemptBondsInd00
IRS990/TempOrPermanentEndowmentsInd00
IRS990/TerminateOperationsInd00
IRS990/TotalAssetsBOYAmt0209035
IRS990/TotalAssetsEOYAmt0257173
IRS990/TotalAssetsGrp/BOYAmt0209035
IRS990/TotalAssetsGrp/EOYAmt0257173
IRS990/TotalCompGreaterThan150KInd00
IRS990/TotalContributionsAmt0219178
IRS990/TotalEmployeeCnt00
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt00
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt00
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0171455
IRS990/TotalFunctionalExpensesGrp/TotalAmt0171455
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt00
IRS990/TotalLiabilitiesEOYAmt00
IRS990/TotalLiabilitiesGrp/BOYAmt00
IRS990/TotalLiabilitiesGrp/EOYAmt00
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt0209035

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2013 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$257,173
Liabilities
$0
Net assets
$257,173
Revenue
$219,593
Expenses
$171,455
Net income
$48,138
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.25$0.08$0.18$0.72$1.19$0.47
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.68$0.04$0.64$0.66$0.84$0.18
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.85$0.05$0.80$0.82$1.15$0.33
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.18$0.03$1.14$0.69$0.46$0.22
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.95$0.03$0.92$0.47$0.24$0.23
2019Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.77$0.08$0.69$0.61$0.67$0.06
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.86$0.12$0.75$0.53$0.53$0.00
2017Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.81$0.06$0.75$0.43$0.42$0.01
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.75$0.01$0.74$0.32$0.10$0.22
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.52$0.00$0.52$0.29$0.10$0.20
2014Detailed filing. Detailed filing data is available for this year.$0.33$0.00$0.33$0.13$0.06$0.06
2013Detailed filing. Detailed filing data is available for this year.$0.26$0.00$0.26$0.22$0.17$0.05
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.21$0.00$0.21$0.07