Liabilities / Assets
42nd percentile
Higher debt load relative to assets than 42% of similar nonprofits.
990 • Fiscal year 2016 • EIN 27-2417202
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
42nd percentile
Higher debt load relative to assets than 42% of similar nonprofits.
Liabilities / Revenue
50th percentile
Higher debt load relative to revenue than 50% of similar nonprofits.
Net Margin
91st percentile
Higher net margin than 91% of similar nonprofits.
Top Officer Pay
66th percentile
Higher top officer pay than 66% of similar nonprofits.
Top officer pay equals 2.9% of source-year revenue.
Asset Growth
95th percentile
Faster asset growth than 95% of similar nonprofits.
Revenue Growth
62nd percentile
Faster revenue growth than 62% of similar nonprofits.
Assets
Up$8,911,298
Up $3,653,358 (+69%) from 2015
Net Assets
Up$7,924,013
Up $3,304,904 (+72%) from 2015
Liabilities
Up$987,285
Up $348,454 (+55%) from 2015
Revenue
Up$5,433,776
Up $353,716 (+7.0%) from 2015
Expenses
Up$2,890,122
Up $495,631 (+21%) from 2015
Net Income
Down$2,543,654
Down $141,915 (-5.3%) from 2015
Eb research partnership is the largest organization dedicated to funding research for treatments and a cure for epidermolysis bullosa, a group of devastating and life threatening genetic skin disorders that affect children from birth.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Savings and Temporary Cash Investments | $1,316,259 | $3,421,915 | ▲ $2,105,656 |
| Investments in Publicly Traded Securities | $97,450 | $1,978,750 | ▲ $1,881,300 |
| Cash and Non-Interest-Bearing Accounts | $1,793,135 | $1,830,185 | ▲ $37,050 |
| Pledges and Grants Receivable | $2,039,132 | $1,667,794 | ▼ $371,338 |
| Prepaid Expenses and Deferred Charges | $11,964 | $12,654 | ▲ $690 |
| Land, Buildings, and Equipment, Net | $0 | $0 | → $0 |
| Total Assets | $5,257,940 | $8,911,298 | ▲ $3,653,358 |
| Liabilities | |||
| Grants Payable | $606,645 | $929,712 | ▲ $323,067 |
| Deferred Revenue | - | $30,000 | - |
| Accounts Payable and Accrued Expenses | $32,186 | $27,573 | ▼ $4,613 |
| Total Liabilities | $638,831 | $987,285 | ▲ $348,454 |
| Net Assets / Fund Balance | |||
| Unrestricted Net Assets | $2,626,060 | $6,874,013 | ▲ $4,247,953 |
| Temporarily Rstr Net Assets | $1,993,049 | $1,050,000 | ▼ $943,049 |
| Total Net Assets Fund Balance | $4,619,109 | $7,924,013 | ▲ $3,304,904 |
| Total Liabilities and Net Assets / Fund Balance | $5,257,940 | $8,911,298 | ▲ $3,653,358 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Equipment | $0 | $4,676 | $4,676 |
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Jessica Scheer | Executive Director | FT | $113,300 | $44,554 | $157,854 |
| Name | Title |
|---|---|
| Alexander J Silver | Chairman |
| Jill Vedder | Vice Chairman |
| Abbie Levine | Director |
| Ari Deshe | Director |
| Chad Ceretto | Director |
| Daniel Deshe | Director |
| David Silver | Director |
| Eddie Vedder | Director |
| Eleanor Dehoney | Director |
| Elizabeth Morano | Director |
| Faye Dilgen | Director |
| Giacomo Picco | Director |
| Jared Stern | Director |
| Jeffrey Berger | Director |
| Jennifer Kauf | dIRECTOR |
| Joshua Paulsen | Director |
| Kate Lee | Director |
| Margaret Silver | Director |
| Mark Bomback | Director |
| Matthew Holmes | Director |
| Michael Kahn | Director |
| Monique Sock | Director |
| Nicole Vandenberg | Director |
| Richard Grossmann | Director |
| Stephen Evans | Director |
| Ryan Fullmer | Chief Financial Officer |
| Heather Fullmer | Chief Operations Officer, west coast |
| Jamie G Silver | Secretary |
| Edward Grossmann | Treasurer |
| Contribution Type | Contribution Count | Reported Amount | Valuation Method |
|---|---|---|---|
| Securities Publicly Traded | 1 | $1,062,003 | Fair Market Value (FMV) |
| Cars and Other Vehicles | 1 | $75,000 | mrsp |
| Total Noncash Contributions | 2 | $1,137,003 | - |
| Line Item | Amount |
|---|---|
| Grants and Similar Amounts Paid | $2,400,639 |
| Other Expenses | $289,909 |
| Total Fundraising Expense | $288,379 |
| Salaries, Compensation, and Employee Benefits | $199,574 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Grants to Domestic Orgs | $2,288,824 | - | - | $2,288,824 |
| Current Officers, Directors, Trustees, and Key Employees | $15,785 | $22,100 | $119,969 | $157,854 |
| Foreign Grants | $111,815 | - | - | $111,815 |
| Fees for Services Other | $22,075 | $5,880 | $51,895 | $79,850 |
| Fees for Services Accounting | - | $68,001 | - | $68,001 |
| Fees for Services Legal | $46,290 | - | - | $46,290 |
| Other Expenses | - | - | $30,753 | $30,753 |
| Other Salaries and Wages | $519 | $353 | $28,051 | $28,923 |
| Information Technology | $3,000 | $6,868 | $17,817 | $27,685 |
| Conferences and Meetings | $1,056 | $104 | $13,370 | $14,530 |
| Travel | $992 | $1,870 | $10,161 | $13,023 |
| Payroll Taxes | $1,090 | $1,562 | $10,145 | $12,797 |
| Office Expenses | $63 | $1,350 | $5,303 | $6,716 |
| Insurance | - | $2,146 | $915 | $3,061 |
| Total Functional Expenses | $2,491,509 | $110,234 | $288,379 | $2,890,122 |
| Line Item | Amount |
|---|---|
| Total Expenses per Audited Statements | $2,950,581 |
| Expenses per Audited Statements | $2,890,122 |
| Total Expenses per Form 990 | $2,890,122 |
| Expenses Not Reported on Form 990 | $60,459 |
| Expenses Not Reported on Financial Statements | $0 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| sTANFORD UNIVERSITY | pALO ALTO, CA | 501(c)(3) | To fund research to find a cure for EB | $1,055,384 |
| University of Minnesota | Minneapolis, MN | 501(c)(3) | To fund research to find a cure for EB | $279,667 |
| University of Colorado | Aurora, CO | 501(c)(3) | To fund an EB clinical research consortium | $169,401 |
| thomas jefferson university | seattle, WA | 501(c)(3) | to fund research to find a cure for eb | $148,028 |
| tufts university | boston, MA | 501(c)(3) | to fund research to find a cure for eb | $145,835 |
| Trustees of Columbia University | New York, NY | 501(c)(3) | To fund an EB clinical research consortium | $140,943 |
| UNIVERSITY OF SOuthern California | LOS Angeles, CA | 501(c)(3) | To fund research to find a cure for EB | $130,410 |
| regents of the university of california | philadelphia, PA | 501(c)(3) | to fund research to find a cure for eb | $112,913 |
| seattle children's hospital | Cincinnati, OH | 501(c)(3) | To fund an EB clinical research consortium | $69,737 |
| Cincinnati Children's Hospital Medical Center | Chicago, IL | 501(c)(3) | To fund an EB clinical research consortium | $19,763 |
| Northwestern University | - | 501(c)(3) | To fund an EB clinical research consortium | $6,000 |
| Region | Activity | Services | Offices | Employees | Spending |
|---|---|---|---|---|---|
| North America | Grants to Recipients Located in the Region | - | 0 | 0 | $111,815 |
| Line Item | Amount |
|---|---|
| Fundraising Direct Expenses | $219,849 |
| Fundraising Gross Income | $219,849 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Action for Jackson | $1,112,673 | $135,945 | $135,945 | $0 |
| Marathons | $275,274 | $32,326 | $32,326 | $0 |
| Total Events | $1,770,401 | $219,849 | $219,849 | $0 |
“Alexander and jamie silver are spouses edward grossmann is jamie silver's father margaret silver & david silver are parents to alexander silver richard grossmann is a brother to jamie silver and the son of edward grossmann mark bomback is a cousin to jamie silver and richard grossmann heather fullmer and ryan fullmer are spouses chad ceretto is a cousin to ryan fullmer eddie vedder and jill vedder are spouses”
“The organization has provided a complete copy of form 990 for their review and approval.”
“There is regular monitoring of the conflict of interest policy and compliance with the board of directors.”
“All organizational documents and form 990 are available for inspection upon prior written request of the chairman.”
“Management evaluated EBRP's tax positions and concluded that the EBRP has not taken any uncertain tax positions that would require adjustment to the financial statements to comply with the provisions of FASB ASC No. 740.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 32186 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 27573 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | EB RESEARCH PARTNERSHIP IS THE LARGEST ORGANIZATION DEDICATED TO FUNDING RESEARCH FOR TREATMENTS AND A CURE FOR EPIDERMOLYSIS BULLOSA, A GROUP OF DEVASTATING AND LIFE THREATENING GENETIC SKIN DISORDERS THAT AFFECT CHILDREN FROM BIRTH. |
| IRS990/AllOtherContributionsAmt | 0 | 3883635 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/AuditCommitteeInd | 0 | 1 |
| IRS990/BackupWthldComplianceInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt | 0 | RYAN FULLMER |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 2125541467 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 132 East 43Rd St No 432 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | New York |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | NY |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 10017 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 1793135 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 1830185 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 119969 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 22100 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 15785 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 157854 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 0 |
| IRS990/CompensationProcessOtherInd | 0 | 0 |
| IRS990/ConferencesMeetingsGrp/FundraisingAmt | 0 | 13370 |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 104 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 1056 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 14530 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/ContriRptFundraisingEventAmt | 0 | 1550552 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 5434187 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 2400639 |
| IRS990/CYInvestmentIncomeAmt | 0 | -411 |
| IRS990/CYOtherExpensesAmt | 0 | 289909 |
| IRS990/CYOtherRevenueAmt | 0 | 0 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 2543654 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 199574 |
| IRS990/CYTotalExpensesAmt | 0 | 2890122 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 288379 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 5433776 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 1 |
| IRS990/DeferredRevenueGrp/EOYAmt | 0 | 30000 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/Desc | 0 | GRANTS AND MONEY AWARDED FOR FURTHER RESEARCH. EB RESEARCH PARNTERSHIP FUNDS THE MOST PROMISING INNOVATIVE AND POTENTIALLY COMMERCIALLY VIABLE TREATMENTS AND POTENTIAL CURES FOR EB. OUR RESEARCH GRANTS INCORPORATE ADVANCES THROUGH THE FIELD OF BIOMEDICINE FOR BETTER TREATMENTS FOR ALL EB SUBTYPES. OUR SCIENTIFIC ADVISORY BOARD REVIEWS ALL GRANT APPLICATIONS SO THAT WE ARE ASSURED THAT GRANTS ARE RELEVANT, INNOVATIVE AND COULD MEANINGFULLY IMPROVE THE QUALITY OF LIFE FOR THOSE LIVING WITH EB. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 1 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 2 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | 1 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 2491509 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 1 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 68001 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 68001 |
| IRS990/FeesForServicesLegalGrp/ProgramServicesAmt | 0 | 46290 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 46290 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 51895 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 5880 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 22075 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 79850 |
| IRS990/ForeignActivitiesInd | 0 | 1 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignGrantsGrp/ProgramServicesAmt | 0 | 111815 |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 111815 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 0 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 1 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 2 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 3 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 4 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 5 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 6 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 7 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 8 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 9 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 10 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 11 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 12 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 13 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 14 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 15 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 16 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 17 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 18 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 19 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 20 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 21 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 22 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 23 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 24 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 25 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 26 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 27 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 28 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 29 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 3.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 1.00 |
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| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 1.00 |
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| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 14 | 2.00 |
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| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 16 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 17 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 18 | 3.00 |
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| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 21 | 1.00 |
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| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 23 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 24 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 25 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 26 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 27 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 28 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 29 | 45.00 |
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| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
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| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 10 | X |
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| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 15 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 16 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 17 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 18 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 19 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 20 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 21 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 22 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 23 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 24 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 25 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 26 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 27 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 28 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 16 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 17 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 18 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 19 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 20 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 21 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 22 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 23 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 24 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 25 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 26 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 27 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 28 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 29 | 4554 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | ALEXANDER J SILVER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | JILL VEDDER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | JAMIE G SILVER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | EDWARD GROSSMANN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | JEFFREY BERGER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | MARK BOMBACK |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | CHAD CERETTO |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | ELEANOR DEHONEY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | ARI DESHE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | DANIEL DESHE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | FAYE DILGEN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | STEPHEN EVANS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 12 | RYAN FULLMER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 13 | HEATHER FULLMER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 14 | RICHARD GROSSMANN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 15 | MATTHEW HOLMES |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 16 | MICHAEL KAHN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 17 | KATE LEE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 18 | ABBIE LEVINE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 19 | ELIZABETH MORANO |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 20 | JOSHUA PAULSEN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 21 | GIACOMO PICCO |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 22 | MARGARET SILVER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 23 | DAVID SILVER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 24 | MONIQUE SOCK |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 25 | JARED STERN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 26 | NICOLE VANDENBERG |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 27 | EDDIE VEDDER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 28 | Jennifer Kauf |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 29 | JESSICA SCHEER |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 16 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 17 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 18 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 19 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 20 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 21 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 22 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 23 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 24 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 25 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 26 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 27 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 28 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 29 | 153300 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 16 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 17 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 18 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 19 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 20 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 21 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 22 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 23 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 24 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 25 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 26 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 27 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 28 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 29 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | CHAIRMAN |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | VICE CHAIRMAN |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 12 | Chief Financial Officer |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 13 | Chief Operations Officer, west coast |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 14 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 15 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 16 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 17 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 18 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 19 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 20 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 21 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 22 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 23 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 24 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 25 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 26 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 27 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 28 | dIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 29 | EXECUTIVE DIRECTOR |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/FormationYr | 0 | 2010 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 1 |
| IRS990/FundraisingAmt | 0 | 1550552 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 219849 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 219849 |
| IRS990/GainOrLossGrp/SecuritiesAmt | 0 | -1531 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 29 |
| IRS990/GrantAmt | 0 | 2400639 |
| IRS990/GrantsPayableGrp/BOYAmt | 0 | 606645 |
| IRS990/GrantsPayableGrp/EOYAmt | 0 | 929712 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 2288824 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 2288824 |
| IRS990/GrantsToIndividualsInd | 0 | 0 |
| IRS990/GrantsToOrganizationsInd | 0 | 1 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt | 0 | 1094692 |
| IRS990/GrossReceiptsAmt | 0 | 6749848 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 1 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 1 |
| IRS990/IndependentVotingMemberCnt | 0 | 29 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 1 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 17817 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 6868 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 3000 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 27685 |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 915 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 2146 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 3061 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 1120 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 1120 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 97450 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 1978750 |
| IRS990/IRPDocumentCnt | 0 | 21 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 4676 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 0 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 0 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 4676 |
| IRS990/LegalDomicileStateCd | 0 | NY |
| IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt | 0 | 1096223 |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 0 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | EB RESEARCH PARTNERSHIP IS THE LARGEST ORGANIZATION DEDICATED TO FUNDING RESEARCH FOR TREATMENTS AND A CURE FOR EPIDERMOLYSIS BULLOSA, A GROUP OF DEVASTATING AND LIFE THREATENING GENETIC SKIN DISORDERS THAT AFFECT CHILDREN FROM BIRTH. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 1 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 4619109 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 7924013 |
| IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt | 0 | -1531 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | -1531 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | 761250 |
| IRS990/NoncashContributionsAmt | 0 | 1137003 |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 5303 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 1350 |
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Displayed year
2016 • Form 990Detailed filing. Detailed filing data is available for this year.