Civic Intelligence

Eb Research Partnership Inc.

990 • Fiscal year 2016 • EIN 27-2417202

Jan 01, 2016 to Dec 31, 2016 • Filed on Jun 12, 2017

132 East 43Rd St No 432New York, NY 10017

(212) 554-1467

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

42nd percentile

0.11x

Higher debt load relative to assets than 42% of similar nonprofits.

2016 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2016

Liabilities / Revenue

50th percentile

0.18x

Higher debt load relative to revenue than 50% of similar nonprofits.

2016 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2016

Net Margin

91st percentile

47%

Higher net margin than 91% of similar nonprofits.

2016 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2016

Top Officer Pay

66th percentile

$157,854

Higher top officer pay than 66% of similar nonprofits.

Top officer pay equals 2.9% of source-year revenue.

2016 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2016

Asset Growth

95th percentile

69%

Faster asset growth than 95% of similar nonprofits.

2016 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2015 to 2016

Revenue Growth

62nd percentile

7.0%

Faster revenue growth than 62% of similar nonprofits.

2016 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2015 to 2016

Assets

Up

$8,911,298

Up $3,653,358 (+69%) from 2015

Net Assets

Up

$7,924,013

Up $3,304,904 (+72%) from 2015

Liabilities

Up

$987,285

Up $348,454 (+55%) from 2015

Revenue

Up

$5,433,776

Up $353,716 (+7.0%) from 2015

Expenses

Up

$2,890,122

Up $495,631 (+21%) from 2015

Net Income

Down

$2,543,654

Down $141,915 (-5.3%) from 2015

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$30M$20M$10M$0Assets 2011: $383,254Liabilities 2011: $0Net Assets 2011: $383,2542011Assets 2012: $549,507Liabilities 2012: $0Net Assets 2012: $549,5072012Assets 2013: $938,242Liabilities 2013: $0Net Assets 2013: $938,2422013Assets 2015: $5,257,940Liabilities 2015: $638,831Net Assets 2015: $4,619,1092015Assets 2016: $8,911,298Liabilities 2016: $987,285Net Assets 2016: $7,924,0132016Assets 2017: $12,400,046Liabilities 2017: $381,272Net Assets 2017: $12,018,7742017Assets 2018: $11,185,681Liabilities 2018: $830,846Net Assets 2018: $10,354,8352018Assets 2019: $16,108,085Liabilities 2019: $1,475,842Net Assets 2019: $14,632,2432019Assets 2020: $16,447,931Liabilities 2020: $1,663,773Net Assets 2020: $14,784,1582020Assets 2021: $20,862,871Liabilities 2021: $2,304,352Net Assets 2021: $18,558,5192021Assets 2022: $22,585,702Liabilities 2022: $4,598,565Net Assets 2022: $17,987,1372022Assets 2023: $24,668,019Liabilities 2023: $6,902,561Net Assets 2023: $17,765,4582023Assets 2024: $22,929,761Liabilities 2024: $6,840,598Net Assets 2024: $16,089,1632024

Highlighted filing

2016

Assets$8,911,298
Liabilities$987,285
Net Assets$7,924,013

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$10M$5.0M$0-$5.0MExpenses 2011: $159,2142011Expenses 2012: $404,2692012Revenue 2013: $852,604Expenses 2013: $463,869Net Income 2013: $388,7352013Revenue 2015: $5,080,060Expenses 2015: $2,394,491Net Income 2015: $2,685,5692015Revenue 2016: $5,433,776Expenses 2016: $2,890,122Net Income 2016: $2,543,6542016Revenue 2017: $3,338,867Expenses 2017: $2,312,044Net Income 2017: $1,026,8232017Revenue 2018: $5,363,294Expenses 2018: $3,388,586Net Income 2018: $1,974,7082018Revenue 2019: $8,107,482Expenses 2019: $3,811,980Net Income 2019: $4,295,5022019Revenue 2020: $4,844,748Expenses 2020: $4,608,812Net Income 2020: $235,9362020Revenue 2021: $7,736,054Expenses 2021: $4,062,520Net Income 2021: $3,673,5342021Revenue 2022: $6,450,445Expenses 2022: $7,021,827Net Income 2022: -$571,3822022Revenue 2023: $7,430,625Expenses 2023: $7,652,304Net Income 2023: -$221,6792023Revenue 2024: $5,518,236Expenses 2024: $7,194,531Net Income 2024: -$1,676,2952024

Highlighted filing

2016

Revenue$5,433,776
Expenses$2,890,122
Net Income$2,543,654
Jump To
Filing Snapshot
Filing Period
Jan 1, 2016 to Dec 31, 2016
Signed
Jun 12, 2017
Return Version
2016v3.0
Gross Receipts
$6,749,848
Mission and Program Overview

Mission

Eb research partnership is the largest organization dedicated to funding research for treatments and a cure for epidermolysis bullosa, a group of devastating and life threatening genetic skin disorders that affect children from birth.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$1,316,259$3,421,915▲ $2,105,656
Investments in Publicly Traded Securities$97,450$1,978,750▲ $1,881,300
Cash and Non-Interest-Bearing Accounts$1,793,135$1,830,185▲ $37,050
Pledges and Grants Receivable$2,039,132$1,667,794▼ $371,338
Prepaid Expenses and Deferred Charges$11,964$12,654▲ $690
Land, Buildings, and Equipment, Net$0$0→ $0
Total Assets$5,257,940$8,911,298▲ $3,653,358
Liabilities
Grants Payable$606,645$929,712▲ $323,067
Deferred Revenue-$30,000-
Accounts Payable and Accrued Expenses$32,186$27,573▼ $4,613
Total Liabilities$638,831$987,285▲ $348,454
Net Assets / Fund Balance
Unrestricted Net Assets$2,626,060$6,874,013▲ $4,247,953
Temporarily Rstr Net Assets$1,993,049$1,050,000▼ $943,049
Total Net Assets Fund Balance$4,619,109$7,924,013▲ $3,304,904
Total Liabilities and Net Assets / Fund Balance$5,257,940$8,911,298▲ $3,653,358

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$0$4,676$4,676
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Jessica ScheerExecutive DirectorFT$113,300$44,554$157,854

Board Members and Trustees

NameTitle
Alexander J SilverChairman
Jill VedderVice Chairman
Abbie LevineDirector
Ari DesheDirector
Chad CerettoDirector
Daniel DesheDirector
David SilverDirector
Eddie VedderDirector
Eleanor DehoneyDirector
Elizabeth MoranoDirector
Faye DilgenDirector
Giacomo PiccoDirector
Jared SternDirector
Jeffrey BergerDirector
Jennifer KaufdIRECTOR
Joshua PaulsenDirector
Kate LeeDirector
Margaret SilverDirector
Mark BombackDirector
Matthew HolmesDirector
Michael KahnDirector
Monique SockDirector
Nicole VandenbergDirector
Richard GrossmannDirector
Stephen EvansDirector
Ryan FullmerChief Financial Officer
Heather FullmerChief Operations Officer, west coast
Jamie G SilverSecretary
Edward GrossmannTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$5,434,187
Program Service Revenue
$0
Investment Income
$-411
Other Revenue
$0
All Other Contributions
$3,883,635
Change in Net Assets
$2,543,654

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded1$1,062,003Fair Market Value (FMV)
Cars and Other Vehicles1$75,000mrsp
Total Noncash Contributions2$1,137,003-

Audited Revenue Reconciliation

Revenue per Audited Statements
$5,433,776
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$821,709
Total Revenue per Audited Statements
$6,255,485
Total Revenue per Form 990
$5,433,776
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$2,400,639
Other Expenses$289,909
Total Fundraising Expense$288,379
Salaries, Compensation, and Employee Benefits$199,574
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$2,288,824--$2,288,824
Current Officers, Directors, Trustees, and Key Employees$15,785$22,100$119,969$157,854
Foreign Grants$111,815--$111,815
Fees for Services Other$22,075$5,880$51,895$79,850
Fees for Services Accounting-$68,001-$68,001
Fees for Services Legal$46,290--$46,290
Other Expenses--$30,753$30,753
Other Salaries and Wages$519$353$28,051$28,923
Information Technology$3,000$6,868$17,817$27,685
Conferences and Meetings$1,056$104$13,370$14,530
Travel$992$1,870$10,161$13,023
Payroll Taxes$1,090$1,562$10,145$12,797
Office Expenses$63$1,350$5,303$6,716
Insurance-$2,146$915$3,061
Total Functional Expenses$2,491,509$110,234$288,379$2,890,122

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$2,950,581
Expenses per Audited Statements$2,890,122
Total Expenses per Form 990$2,890,122
Expenses Not Reported on Form 990$60,459
Expenses Not Reported on Financial Statements$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
sTANFORD UNIVERSITYpALO ALTO, CA501(c)(3)To fund research to find a cure for EB$1,055,384
University of MinnesotaMinneapolis, MN501(c)(3)To fund research to find a cure for EB$279,667
University of ColoradoAurora, CO501(c)(3)To fund an EB clinical research consortium$169,401
thomas jefferson universityseattle, WA501(c)(3)to fund research to find a cure for eb$148,028
tufts universityboston, MA501(c)(3)to fund research to find a cure for eb$145,835
Trustees of Columbia UniversityNew York, NY501(c)(3)To fund an EB clinical research consortium$140,943
UNIVERSITY OF SOuthern CaliforniaLOS Angeles, CA501(c)(3)To fund research to find a cure for EB$130,410
regents of the university of californiaphiladelphia, PA501(c)(3)to fund research to find a cure for eb$112,913
seattle children's hospitalCincinnati, OH501(c)(3)To fund an EB clinical research consortium$69,737
Cincinnati Children's Hospital Medical CenterChicago, IL501(c)(3)To fund an EB clinical research consortium$19,763
Northwestern University-501(c)(3)To fund an EB clinical research consortium$6,000

International Summary

Offices
0
Employees
0
Spending
$111,815

International Compliance

Foreign grant records maintained
No
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
North AmericaGrants to Recipients Located in the Region-00$111,815
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$219,849
Fundraising Gross Income$219,849
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Action for Jackson$1,112,673$135,945$135,945$0
Marathons$275,274$32,326$32,326$0
Total Events$1,770,401$219,849$219,849$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, line 2

Alexander and jamie silver are spouses edward grossmann is jamie silver's father margaret silver & david silver are parents to alexander silver richard grossmann is a brother to jamie silver and the son of edward grossmann mark bomback is a cousin to jamie silver and richard grossmann heather fullmer and ryan fullmer are spouses chad ceretto is a cousin to ryan fullmer eddie vedder and jill vedder are spouses

Form 990, Part VI, Section B, line 11B

The organization has provided a complete copy of form 990 for their review and approval.

Form 990, Part VI, Section B, line 12C

There is regular monitoring of the conflict of interest policy and compliance with the board of directors.

Form 990, Part VI, Section C, line 19

All organizational documents and form 990 are available for inspection upon prior written request of the chairman.

Filing and Contact Details

Filer

Filer Name
Eb Research Partnership Inc
EIN
27-2417202
Phone
2125541467
Address
132 East 43Rd St No 432, New York, NY 10017

Signing Officer

Name
Alexander J Silver
Title
Chairman
Phone
2125541467
Signed
2017-06-12
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Alexander J Silver
Formed
2010
Legal Domicile
Ny
Voting Board Members
29
Independent Board Members
29
Employees
2
Volunteers
40

Preparer

Firm
Baker Tilly Virchow Krause LLP
Address
125 Baylis Road Suite 300, Melville, NY 11747
Preparer
Gordon Siess CPA
Phone
6317527400
Supplemental Narrative

Financial Statement Notes

Part X, Line 2:

Management evaluated EBRP's tax positions and concluded that the EBRP has not taken any uncertain tax positions that would require adjustment to the financial statements to comply with the provisions of FASB ASC No. 740.

Raw XML AppendixShowing 400 of 807 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0EB RESEARCH PARTNERSHIP IS THE LARGEST ORGANIZATION DEDICATED TO FUNDING RESEARCH FOR TREATMENTS AND A CURE FOR EPIDERMOLYSIS BULLOSA, A GROUP OF DEVASTATING AND LIFE THREATENING GENETIC SKIN DISORDERS THAT AFFECT CHILDREN FROM BIRTH.
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IRS990/Desc0GRANTS AND MONEY AWARDED FOR FURTHER RESEARCH. EB RESEARCH PARNTERSHIP FUNDS THE MOST PROMISING INNOVATIVE AND POTENTIALLY COMMERCIALLY VIABLE TREATMENTS AND POTENTIAL CURES FOR EB. OUR RESEARCH GRANTS INCORPORATE ADVANCES THROUGH THE FIELD OF BIOMEDICINE FOR BETTER TREATMENTS FOR ALL EB SUBTYPES. OUR SCIENTIFIC ADVISORY BOARD REVIEWS ALL GRANT APPLICATIONS SO THAT WE ARE ASSURED THAT GRANTS ARE RELEVANT, INNOVATIVE AND COULD MEANINGFULLY IMPROVE THE QUALITY OF LIFE FOR THOSE LIVING WITH EB.
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IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd22X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd23X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd24X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd25X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd26X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd27X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd28X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OfficerInd4X
IRS990/Form990PartVIISectionAGrp/OfficerInd5X
IRS990/Form990PartVIISectionAGrp/OfficerInd6X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt140
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt150
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt160
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt170
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt180
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt190
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt200
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt210
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt220
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt230
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt240
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt250
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt260
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt270
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt280
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt294554
IRS990/Form990PartVIISectionAGrp/PersonNm0ALEXANDER J SILVER
IRS990/Form990PartVIISectionAGrp/PersonNm1JILL VEDDER
IRS990/Form990PartVIISectionAGrp/PersonNm2JAMIE G SILVER
IRS990/Form990PartVIISectionAGrp/PersonNm3EDWARD GROSSMANN
IRS990/Form990PartVIISectionAGrp/PersonNm4JEFFREY BERGER
IRS990/Form990PartVIISectionAGrp/PersonNm5MARK BOMBACK
IRS990/Form990PartVIISectionAGrp/PersonNm6CHAD CERETTO
IRS990/Form990PartVIISectionAGrp/PersonNm7ELEANOR DEHONEY
IRS990/Form990PartVIISectionAGrp/PersonNm8ARI DESHE
IRS990/Form990PartVIISectionAGrp/PersonNm9DANIEL DESHE
IRS990/Form990PartVIISectionAGrp/PersonNm10FAYE DILGEN
IRS990/Form990PartVIISectionAGrp/PersonNm11STEPHEN EVANS
IRS990/Form990PartVIISectionAGrp/PersonNm12RYAN FULLMER
IRS990/Form990PartVIISectionAGrp/PersonNm13HEATHER FULLMER
IRS990/Form990PartVIISectionAGrp/PersonNm14RICHARD GROSSMANN
IRS990/Form990PartVIISectionAGrp/PersonNm15MATTHEW HOLMES
IRS990/Form990PartVIISectionAGrp/PersonNm16MICHAEL KAHN
IRS990/Form990PartVIISectionAGrp/PersonNm17KATE LEE
IRS990/Form990PartVIISectionAGrp/PersonNm18ABBIE LEVINE
IRS990/Form990PartVIISectionAGrp/PersonNm19ELIZABETH MORANO
IRS990/Form990PartVIISectionAGrp/PersonNm20JOSHUA PAULSEN
IRS990/Form990PartVIISectionAGrp/PersonNm21GIACOMO PICCO
IRS990/Form990PartVIISectionAGrp/PersonNm22MARGARET SILVER
IRS990/Form990PartVIISectionAGrp/PersonNm23DAVID SILVER
IRS990/Form990PartVIISectionAGrp/PersonNm24MONIQUE SOCK
IRS990/Form990PartVIISectionAGrp/PersonNm25JARED STERN
IRS990/Form990PartVIISectionAGrp/PersonNm26NICOLE VANDENBERG
IRS990/Form990PartVIISectionAGrp/PersonNm27EDDIE VEDDER
IRS990/Form990PartVIISectionAGrp/PersonNm28Jennifer Kauf
IRS990/Form990PartVIISectionAGrp/PersonNm29JESSICA SCHEER
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt210
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt220
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt230
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt240
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt250
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt260
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt270
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt280
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt29153300
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt210
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt220
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt230
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt240
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt250
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt260
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt270
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt280
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt290
IRS990/Form990PartVIISectionAGrp/TitleTxt0CHAIRMAN
IRS990/Form990PartVIISectionAGrp/TitleTxt1VICE CHAIRMAN
IRS990/Form990PartVIISectionAGrp/TitleTxt2SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt3TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12Chief Financial Officer
IRS990/Form990PartVIISectionAGrp/TitleTxt13Chief Operations Officer, west coast
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt17DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt18DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt19DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt20DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt21DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt22DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt23DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt24DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt25DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt26DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt27DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt28dIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt29EXECUTIVE DIRECTOR
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr02010
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt01550552
IRS990/FundraisingDirectExpensesAmt0219849
IRS990/FundraisingGrossIncomeAmt0219849
IRS990/GainOrLossGrp/SecuritiesAmt0-1531
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt029
IRS990/GrantAmt02400639
IRS990/GrantsPayableGrp/BOYAmt0606645
IRS990/GrantsPayableGrp/EOYAmt0929712
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt02288824
IRS990/GrantsToDomesticOrgsGrp/TotalAmt02288824
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt01094692
IRS990/GrossReceiptsAmt06749848
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt029
IRS990/IndivRcvdGreaterThan100KCnt01
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt017817
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt06868
IRS990/InformationTechnologyGrp/ProgramServicesAmt03000
IRS990/InformationTechnologyGrp/TotalAmt027685
IRS990/InsuranceGrp/FundraisingAmt0915
IRS990/InsuranceGrp/ManagementAndGeneralAmt02146
IRS990/InsuranceGrp/TotalAmt03061
IRS990/InvestmentIncomeGrp/ExclusionAmt01120
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt01120
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt097450
IRS990/InvestmentsPubTradedSecGrp/EOYAmt01978750
IRS990/IRPDocumentCnt021
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt04676
IRS990/LandBldgEquipBasisNetGrp/BOYAmt00
IRS990/LandBldgEquipBasisNetGrp/EOYAmt00
IRS990/LandBldgEquipCostOrOtherBssAmt04676
IRS990/LegalDomicileStateCd0NY
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt01096223
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0EB RESEARCH PARTNERSHIP IS THE LARGEST ORGANIZATION DEDICATED TO FUNDING RESEARCH FOR TREATMENTS AND A CURE FOR EPIDERMOLYSIS BULLOSA, A GROUP OF DEVASTATING AND LIFE THREATENING GENETIC SKIN DISORDERS THAT AFFECT CHILDREN FROM BIRTH.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd01
IRS990/NetAssetsOrFundBalancesBOYAmt04619109
IRS990/NetAssetsOrFundBalancesEOYAmt07924013
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt0-1531
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt0-1531
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt00
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt0761250
IRS990/NoncashContributionsAmt01137003
IRS990/NondeductibleContributionsInd00
IRS990/OfficeExpensesGrp/FundraisingAmt05303
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt01350

Document Assets

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Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$22.9$6.84$16.1$5.52$7.19$1.68
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$24.7$6.90$17.8$7.43$7.65$0.22
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$22.6$4.60$18.0$6.45$7.02$0.57
2021Facts available. Structured filing facts are available, but richer extracted sections are limited.$20.9$2.30$18.6$7.74$4.06$3.67
2020Facts available. Structured filing facts are available, but richer extracted sections are limited.$16.4$1.66$14.8$4.84$4.61$0.24
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$16.1$1.48$14.6$8.11$3.81$4.30
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$11.2$0.83$10.4$5.36$3.39$1.97
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$12.4$0.38$12.0$3.34$2.31$1.03
2016Detailed filing. Detailed filing data is available for this year.$8.91$0.99$7.92$5.43$2.89$2.54
2015Detailed filing. Detailed filing data is available for this year.$5.26$0.64$4.62$5.08$2.39$2.69
2013Detailed filing. Detailed filing data is available for this year.$0.94$0.00$0.94$0.85$0.46$0.39
2012XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.55$0.00$0.55$0.40
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.38$0.00$0.38$0.16