Civic Intelligence

Eb Research Partnership Inc

EIN 27-2417202 • 501(c)3 • New York, NY

Profile

The jackson gabriel silver foundation was founded with the mission to find treatments and cures for epidermolysis bullosa (eb), a group of incruable and devastating blistering disorders that affect children from birth. By funding scientific research, jgsf can help children with eb who lack critical proteins that act like velcro, binding their layers of skin together when these children move. Thier skin slides apart, blisters and shears off, leading to severe pain, disfigurement and in too many cases, a premature death

244 Madison Avenue 104New York, NY 10016

www.jgsf.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

63rd percentile

0.30x

Higher debt load relative to assets than 63% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Source year 2024

Liabilities / Revenue

84th percentile

1.24x

Higher debt load relative to revenue than 84% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Source year 2024

Net Margin

9th percentile

-30%

Higher net margin than 9% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Source year 2024

Top Officer Pay

90th percentile

$466,331

Higher top officer pay than 90% of similar nonprofits.

Top officer pay equals 8.5% of source-year revenue.

501(c)3 • $10M-$25M nonprofits • Source year 2024

Asset Growth

15th percentile

-7.0%

Faster asset growth than 15% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Annualized from 2023 to 2024

Revenue Growth

10th percentile

-26%

Faster revenue growth than 10% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Annualized from 2023 to 2024

Assets

Down

$22,929,761

Down $1,738,258 (-7.0%) from 2023

Liabilities

Down

$6,840,598

Down $61,963 (-0.9%) from 2023

Net Assets

Down

$16,089,163

Down $1,676,295 (-9.4%) from 2023

Revenue

Down

$5,518,236

Down $1,912,389 (-26%) from 2023

Expenses

Down

$7,194,531

Down $457,773 (-6.0%) from 2023

Net Income

Down

-$1,676,295

Down $1,454,616 (-656%) from 2023

Trend Graphs

Balance Sheet Trend

Grouped bars show assets, liabilities, and net assets across loaded filings.

$30M$20M$10M$0Assets 2011: $383,254Liabilities 2011: $0Net Assets 2011: $383,2542011Assets 2012: $549,507Liabilities 2012: $0Net Assets 2012: $549,5072012Assets 2013: $938,242Liabilities 2013: $0Net Assets 2013: $938,2422013Assets 2015: $5,257,940Liabilities 2015: $638,831Net Assets 2015: $4,619,1092015Assets 2016: $8,911,298Liabilities 2016: $987,285Net Assets 2016: $7,924,0132016Assets 2017: $12,400,046Liabilities 2017: $381,272Net Assets 2017: $12,018,7742017Assets 2018: $11,185,681Liabilities 2018: $830,846Net Assets 2018: $10,354,8352018Assets 2019: $16,108,085Liabilities 2019: $1,475,842Net Assets 2019: $14,632,2432019Assets 2020: $16,447,931Liabilities 2020: $1,663,773Net Assets 2020: $14,784,1582020Assets 2021: $20,862,871Liabilities 2021: $2,304,352Net Assets 2021: $18,558,5192021Assets 2022: $22,585,702Liabilities 2022: $4,598,565Net Assets 2022: $17,987,1372022Assets 2023: $24,668,019Liabilities 2023: $6,902,561Net Assets 2023: $17,765,4582023Assets 2024: $22,929,761Liabilities 2024: $6,840,598Net Assets 2024: $16,089,1632024

Highlighted filing

2024

Assets$22,929,761
Liabilities$6,840,598
Net Assets$16,089,163

Operations Trend

Revenue, expenses, and net income by year, with the latest filing highlighted.

$10M$5.0M$0-$5.0MExpenses 2011: $159,2142011Expenses 2012: $404,2692012Revenue 2013: $852,604Expenses 2013: $463,869Net Income 2013: $388,7352013Revenue 2015: $5,080,060Expenses 2015: $2,394,491Net Income 2015: $2,685,5692015Revenue 2016: $5,433,776Expenses 2016: $2,890,122Net Income 2016: $2,543,6542016Revenue 2017: $3,338,867Expenses 2017: $2,312,044Net Income 2017: $1,026,8232017Revenue 2018: $5,363,294Expenses 2018: $3,388,586Net Income 2018: $1,974,7082018Revenue 2019: $8,107,482Expenses 2019: $3,811,980Net Income 2019: $4,295,5022019Revenue 2020: $4,844,748Expenses 2020: $4,608,812Net Income 2020: $235,9362020Revenue 2021: $7,736,054Expenses 2021: $4,062,520Net Income 2021: $3,673,5342021Revenue 2022: $6,450,445Expenses 2022: $7,021,827Net Income 2022: -$571,3822022Revenue 2023: $7,430,625Expenses 2023: $7,652,304Net Income 2023: -$221,6792023Revenue 2024: $5,518,236Expenses 2024: $7,194,531Net Income 2024: -$1,676,2952024

Highlighted filing

2024

Revenue$5,518,236
Expenses$7,194,531
Net Income-$1,676,295

Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$22.9$6.84$16.1$5.52$7.19$1.68
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$24.7$6.90$17.8$7.43$7.65$0.22
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$22.6$4.60$18.0$6.45$7.02$0.57
2021Facts available. Structured filing facts are available, but richer extracted sections are limited.$20.9$2.30$18.6$7.74$4.06$3.67
2020Facts available. Structured filing facts are available, but richer extracted sections are limited.$16.4$1.66$14.8$4.84$4.61$0.24
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$16.1$1.48$14.6$8.11$3.81$4.30
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$11.2$0.83$10.4$5.36$3.39$1.97
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$12.4$0.38$12.0$3.34$2.31$1.03
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$8.91$0.99$7.92$5.43$2.89$2.54
2015Detailed filing. Detailed filing data is available for this year.$5.26$0.64$4.62$5.08$2.39$2.69
2013Detailed filing. Detailed filing data is available for this year.$0.94$0.00$0.94$0.85$0.46$0.39
2012XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.55$0.00$0.55$0.40
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.38$0.00$0.38$0.16
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Aug 26, 2025
Return Version
2024v5.2
Gross Receipts
$6,237,417
Mission and Program Overview

Mission

Eb research partnership is the largest organization dedicated to funding research for treatments and a cure for epidermolysis bullosa, a group of devastating and life threatening genetic skin disorders that affect children from birth.

To fund research for treatments and a cure for epidermolysis bullosa.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments Other Securities$9,370,293$9,705,968▲ $335,675
Savings and Temporary Cash Investments$6,772,805$4,899,083▼ $1,873,722
Other Notes and Loans Receivable, Net$3,577,000$3,577,000→ $0
Pledges and Grants Receivable$2,940,832$1,595,019▼ $1,345,813
Cash and Non-Interest-Bearing Accounts$1,177,720$1,272,575▲ $94,855
Intangible Assets$15,231$819,932▲ $804,701
Prepaid Expenses and Deferred Charges$66,964$72,804▲ $5,840
Land, Buildings, and Equipment, Net$1,578$46,245▲ $44,667
Total Assets$24,668,019$22,929,761▼ $1,738,258
Other Assets Total$745,596$941,135▲ $195,539
Liabilities
Grants Payable$6,774,846$6,346,469▼ $428,377
Accounts Payable and Accrued Expenses$127,715$440,010▲ $312,295
Deferred Revenue-$54,119-
Total Liabilities$6,902,561$6,840,598▼ $61,963
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$14,847,882$14,295,644▼ $552,238
Net Assets With Donor Restrictions$2,917,576$1,793,519▼ $1,124,057
Total Net Assets Fund Balance$17,765,458$16,089,163▼ $1,676,295
Total Liabilities and Net Assets / Fund Balance$24,668,019$22,929,761▼ $1,738,258

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$43,000-$43,000
Equipment$3,245$5,566$8,811
Other Securities$9,667,086--
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Michael Patrick HundCEOFT$325,731$140,600$466,331
Imani RibadeneyraChief Marketing OfficerFT$218,812$13,732$232,544
Allison McgettiganCommunications & Operations DirectorFT$117,138-$117,138

Board Members and Trustees

NameTitle
Jill VedderChairperson
Ari DesheVice Chairman
Chad CerettoDirector
Corey GrayDirector
Daniel DesheDirector
Ed VedderDirector
Faye DilgenDirector
Greg LicholaiDirector
Marc SeidnerDirector
Michael SacksDirector
Nathan BurmeisterDirector
Ric FirthDirector
Tracy BaldwinDirector
Jennifer KaufSecretary
Emily KubikTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$5,491,713
Program Service Revenue
$0
Investment Income
$468,161
Other Revenue
$-441,638
All Other Contributions
$3,724,353
Change in Net Assets
$-1,676,295

Audited Revenue Reconciliation

Revenue per Audited Statements
$5,518,236
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$113,331
Total Revenue per Audited Statements
$5,631,567
Total Revenue per Form 990
$5,518,236
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$4,699,297
Other Expenses$1,500,044
Total Fundraising Expense$1,493,358
Salaries, Compensation, and Employee Benefits$995,190
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$4,105,896--$4,105,896
Foreign Grants$593,401--$593,401
Current Officers, Directors, Trustees, and Key Employees$46,573$23,287$395,871$465,731
Other Salaries and Wages$140,905$3,652$302,818$447,375
Office Expenses$134,891$37,754$226,798$399,443
Fees for Services Other$24,849$20,000$206,763$251,612
Fees for Services Accounting-$221,679-$221,679
Fees for Services Legal$101,159$56,330$12,768$170,257
Travel$70,486$5,111$88,004$163,601
Occupancy$21,338$3,201$103,487$128,026
Payroll Taxes$12,246$1,242$40,512$54,000
Other Expenses-$50,000$79,609$50,000
Information Technology$79$13,105$18,489$31,673
Other Employee Benefits$9,320$525$18,239$28,084
Insurance-$4,144-$4,144
Total Functional Expenses$5,261,143$440,030$1,493,358$7,194,531

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$7,307,862
Expenses per Audited Statements$7,194,531
Total Expenses per Form 990$7,194,531
Expenses Not Reported on Form 990$113,331
Expenses Not Reported on Financial Statements$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
University of ColoradoAurora, CO501(c)(3)To Fund Research to Find a Cure for Eb$951,243
Northwestern UniversityEvanston, IL501(c)(3)To Fund Research to Find a Cure for Eb$948,217
CHILDREN'S HOSPITAL OF PHILADELPHIAPhiladelphia, PA501(c)(3)To Fund Research to Find a Cure for Eb$385,482
CINCINNATI CHILDREN'S HOSPITAL MEDICAL CENTERCincinnati, OH501(c)(3)To Fund Research to Find a Cure for Eb$346,734
Thomas Jefferson UniversityPhiladelphia, PA501(c)(3)To Fund Research to Find a Cure for Eb$298,449
University of Southern CaliforniaLos Angeles, CA-To Fund Research to Find a Cure for Eb$265,650
Eliksa TherapeuticsDoylestown, PA-To Fund Research to Find a Cure for Eb$250,000
Onconova Therapeutics IncNewtown, PA-To Fund Research to Find a Cure for Eb$200,000
Stanford UniversityPalo Alto, CA501(c)(3)To Fund Research to Find a Cure for Eb$149,150
AwsSeattle, WA501(c)(3)To Fund Research to Find a Cure for Eb$64,071
University of Massachusetts Medical SchoolWorcester, MA-To Fund Research to Find a Cure for Eb$46,340
PHOENIX CHILDREN'S HOSPITALPhoenix, AZ501(c)(3)To Fund Research to Find a Cure for Eb$12,500
Ascension Seton Medical CenterAustin, TX501(c)(3)To Fund Research to Find a Cure for Eb$7,035
Columbia UniversityNew York, NY501(c)(3)To Fund Research to Find a Cure for Eb$6,829

International Summary

Offices
0
Employees
0
Spending
$593,401

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
Yes
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
Europe (including Iceland & Greenland) - Albania, Andorra, Austria, BelgiumProgram ServicesGrants to Recipients Located in the Region--$398,026
East Asia and the Pacific - Australia, Brunei, Burma, Cambodia,Program ServicesGrants to Recipients Located in the Region--$176,167
North America - Canada and Mexico, But Not the United StatesProgram ServicesGrants to Recipients Located in the Region--$19,208
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$719,181
Fundraising Gross Income$0
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
REPORTIN' FOR DUTY$712,372-$475,402-
Plunge for Elodie$475,106-$80,088-
Total Events$1,599,763-$719,181$-719,181
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
Yes
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

Ed vedder and jill vedder have a family relationship. Ari deshe and daniel deshe have a family relationship.

Form 990, Part VI, Section B, Line 11B

The draft of the form 990 is reviewed by the ceo and then provided to the full board of directors and executive leadership for review, feedback, and approval before it is filed with the irs.

Form 990, Part VI, Section B, Line 12C

The corporation has authorized the executive committee to oversee all aspects of this policy, except (i) if a related party transaction would otherwise require full board approval, the executive committee shall submit the related party transaction to the board for consideration, providing its recommendation as to whether or not to approve it, and (ii) ratification of a related party transaction that was entered into without requisite approval shall require ratification by action of the board. If at any time any covered person believes that he or she may have an interest in a related party transaction, such covered person shall disclose in good faith the material facts regarding such interest to the executive committee. In addition, at any time, the corporation may circulate a conflict disclosure questionnaire to all covered persons requiring them to disclose any interests they have or may have in related party tranactions and reminding them to properly disclose any that may evolve in the future. A conflict disclosure questionnaire may also be furnished to any new director prior to his or her initial election and to any person who assumes a position as an office or may become a key person of the corporation at that time. Copies of any completed and signed conflict disclosure questionnaires shall be submitted to the secretary of the board who shall provide a copy of them to the chairperson of the board. When an actual or possible conflict of interest exists, the material facts regarding the transaction or arrangement and the interest shall be presented to the executive committee for a determination as to whether the transaction is fair, reasonable and in the corporaton's best interest at the time of the discussion, taking into account all the relevant circumstances, including the specific related party transaction and whether in the good faith determination of the executive committee the corporation could, with reasonable efforts, obtain a more advantageous transaction or arrangement from an entity or indivudual that would not give rise to a conflict. If a related party transaction has been entered into without being approved as a related party transaction, the corporation may, pursuant to the following requirements, vote to ratify such a transaction. If such ratification occurs prior to receipt of any request for information by the new york state attorney general regarding the transaction, such ratification shall act as a defense to an action by the new york state attorney general regarding such transaction.

Form 990, Part VI, Section B, Line 15A

The ceo's compensation includes a review and approval by the organization's governing body. Comparability data for similarly qualified persons in functionally comparable positions at similarly situated organization is used to determine the ceo's compensation. Any decisions involving the ceo's compensation arrangement are documented.

Form 990, Part VI, Section C, Line 19

All organizational documents and form 990 are available for inspection upon prior written request.

Filing and Contact Details

Filer

Filer Name
Eb Research Partnership Inc
EIN
27-2417202
Phone
6468440902
Address
244 MADISON AVENUE 104, NEW YORK, NY 10016

Signing Officer

Name
Michael Hund
Title
CEO
Phone
6468440902
Signed
2025-08-26
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Michael Hund
Formed
2010
Legal Domicile
Ny
Voting Board Members
15
Independent Board Members
15
Employees
5
Volunteers
52

Preparer

Firm
Cerini & Associates Llp
Address
3340 VETERANS MEMORIAL HWY, BOHEMIA, NY 11716
Preparer
Tania Quigley
Phone
6315821600
Supplemental Narrative

Additional Explanations

Form 5471 Schedule C

The 2024 audit reflects the average exchange rate for each month, however the 990 uses the same rate used for converting auds to usds for the balance sheet which is the exchange rate as of december 31, 2024. As a result, us dollars per the 990 for the eb research australia income statement differ slightly from the audited financial statements. The balance sheet numbers per the 990 are the same as the audited financial statements.

Financial Statement Notes

PART X, LINE 2:

Management evaluated ebrp's tax positions and concluded that the ebrp has not taken any uncertain tax positions that would require adjustment to the financial statements to comply with the provisions of fasb asc no. 740.

Raw XML AppendixShowing 400 of 855 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
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IRS990/ActivityOrMissionDesc0TO FUND RESEARCH FOR TREATMENTS AND A CURE FOR EPIDERMOLYSIS BULLOSA.
IRS990/AllOtherContributionsAmt03724353
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IRS990/Desc0GRANTS AND MONEY AWARDED FOR FURTHER RESEARCH. EB RESEARCH PARTNERSHIP FUNDS THE MOST PROMISING, INNOVATIVE AND POTENTIALLY COMMERCIALLY VIABLE TREATMENTS AND POTENTIAL CURES FOR EB. OUR RESEARCH GRANTS INCORPORATE ADVANCES THROUGH THE FIELD OF BIOMEDICINE FOR BETTER TREATMENTS FOR ALL EB SUBTYPES. OUR SCIENTIFIC ADVISORY BOARD REVIEWS ALL GRANT APPLICATIONS SO THAT WE ARE ASSURED THAT GRANTS ARE RELEVANT, INNOVATIVE AND COULD MEANINGFULLY IMPROVE THE QUALITY OF LIFE FOR THOSE LIVING WITH EB.
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