Liabilities / Assets
63rd percentile
Higher debt load relative to assets than 63% of similar nonprofits.
EIN 27-2417202 • 501(c)3 • New York, NY
Profile
The jackson gabriel silver foundation was founded with the mission to find treatments and cures for epidermolysis bullosa (eb), a group of incruable and devastating blistering disorders that affect children from birth. By funding scientific research, jgsf can help children with eb who lack critical proteins that act like velcro, binding their layers of skin together when these children move. Thier skin slides apart, blisters and shears off, leading to severe pain, disfigurement and in too many cases, a premature death
Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.
Liabilities / Assets
63rd percentile
Higher debt load relative to assets than 63% of similar nonprofits.
Liabilities / Revenue
84th percentile
Higher debt load relative to revenue than 84% of similar nonprofits.
Net Margin
9th percentile
Higher net margin than 9% of similar nonprofits.
Top Officer Pay
90th percentile
Higher top officer pay than 90% of similar nonprofits.
Top officer pay equals 8.5% of source-year revenue.
Asset Growth
15th percentile
Faster asset growth than 15% of similar nonprofits.
Revenue Growth
10th percentile
Faster revenue growth than 10% of similar nonprofits.
Assets
Down$22,929,761
Down $1,738,258 (-7.0%) from 2023
Liabilities
Down$6,840,598
Down $61,963 (-0.9%) from 2023
Net Assets
Down$16,089,163
Down $1,676,295 (-9.4%) from 2023
Revenue
Down$5,518,236
Down $1,912,389 (-26%) from 2023
Expenses
Down$7,194,531
Down $457,773 (-6.0%) from 2023
Net Income
Down-$1,676,295
Down $1,454,616 (-656%) from 2023
Most recent year
2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.
Eb research partnership is the largest organization dedicated to funding research for treatments and a cure for epidermolysis bullosa, a group of devastating and life threatening genetic skin disorders that affect children from birth.
To fund research for treatments and a cure for epidermolysis bullosa.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Investments Other Securities | $9,370,293 | $9,705,968 | ▲ $335,675 |
| Savings and Temporary Cash Investments | $6,772,805 | $4,899,083 | ▼ $1,873,722 |
| Other Notes and Loans Receivable, Net | $3,577,000 | $3,577,000 | → $0 |
| Pledges and Grants Receivable | $2,940,832 | $1,595,019 | ▼ $1,345,813 |
| Cash and Non-Interest-Bearing Accounts | $1,177,720 | $1,272,575 | ▲ $94,855 |
| Intangible Assets | $15,231 | $819,932 | ▲ $804,701 |
| Prepaid Expenses and Deferred Charges | $66,964 | $72,804 | ▲ $5,840 |
| Land, Buildings, and Equipment, Net | $1,578 | $46,245 | ▲ $44,667 |
| Total Assets | $24,668,019 | $22,929,761 | ▼ $1,738,258 |
| Other Assets Total | $745,596 | $941,135 | ▲ $195,539 |
| Liabilities | |||
| Grants Payable | $6,774,846 | $6,346,469 | ▼ $428,377 |
| Accounts Payable and Accrued Expenses | $127,715 | $440,010 | ▲ $312,295 |
| Deferred Revenue | - | $54,119 | - |
| Total Liabilities | $6,902,561 | $6,840,598 | ▼ $61,963 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $14,847,882 | $14,295,644 | ▼ $552,238 |
| Net Assets With Donor Restrictions | $2,917,576 | $1,793,519 | ▼ $1,124,057 |
| Total Net Assets Fund Balance | $17,765,458 | $16,089,163 | ▼ $1,676,295 |
| Total Liabilities and Net Assets / Fund Balance | $24,668,019 | $22,929,761 | ▼ $1,738,258 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Other Land Buildings | $43,000 | - | $43,000 |
| Equipment | $3,245 | $5,566 | $8,811 |
| Other Securities | $9,667,086 | - | - |
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Michael Patrick Hund | CEO | FT | $325,731 | $140,600 | $466,331 |
| Imani Ribadeneyra | Chief Marketing Officer | FT | $218,812 | $13,732 | $232,544 |
| Allison Mcgettigan | Communications & Operations Director | FT | $117,138 | - | $117,138 |
| Name | Title |
|---|---|
| Jill Vedder | Chairperson |
| Ari Deshe | Vice Chairman |
| Chad Ceretto | Director |
| Corey Gray | Director |
| Daniel Deshe | Director |
| Ed Vedder | Director |
| Faye Dilgen | Director |
| Greg Licholai | Director |
| Marc Seidner | Director |
| Michael Sacks | Director |
| Nathan Burmeister | Director |
| Ric Firth | Director |
| Tracy Baldwin | Director |
| Jennifer Kauf | Secretary |
| Emily Kubik | Treasurer |
| Line Item | Amount |
|---|---|
| Grants and Similar Amounts Paid | $4,699,297 |
| Other Expenses | $1,500,044 |
| Total Fundraising Expense | $1,493,358 |
| Salaries, Compensation, and Employee Benefits | $995,190 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Grants to Domestic Orgs | $4,105,896 | - | - | $4,105,896 |
| Foreign Grants | $593,401 | - | - | $593,401 |
| Current Officers, Directors, Trustees, and Key Employees | $46,573 | $23,287 | $395,871 | $465,731 |
| Other Salaries and Wages | $140,905 | $3,652 | $302,818 | $447,375 |
| Office Expenses | $134,891 | $37,754 | $226,798 | $399,443 |
| Fees for Services Other | $24,849 | $20,000 | $206,763 | $251,612 |
| Fees for Services Accounting | - | $221,679 | - | $221,679 |
| Fees for Services Legal | $101,159 | $56,330 | $12,768 | $170,257 |
| Travel | $70,486 | $5,111 | $88,004 | $163,601 |
| Occupancy | $21,338 | $3,201 | $103,487 | $128,026 |
| Payroll Taxes | $12,246 | $1,242 | $40,512 | $54,000 |
| Other Expenses | - | $50,000 | $79,609 | $50,000 |
| Information Technology | $79 | $13,105 | $18,489 | $31,673 |
| Other Employee Benefits | $9,320 | $525 | $18,239 | $28,084 |
| Insurance | - | $4,144 | - | $4,144 |
| Total Functional Expenses | $5,261,143 | $440,030 | $1,493,358 | $7,194,531 |
| Line Item | Amount |
|---|---|
| Total Expenses per Audited Statements | $7,307,862 |
| Expenses per Audited Statements | $7,194,531 |
| Total Expenses per Form 990 | $7,194,531 |
| Expenses Not Reported on Form 990 | $113,331 |
| Expenses Not Reported on Financial Statements | $0 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| University of Colorado | Aurora, CO | 501(c)(3) | To Fund Research to Find a Cure for Eb | $951,243 |
| Northwestern University | Evanston, IL | 501(c)(3) | To Fund Research to Find a Cure for Eb | $948,217 |
| CHILDREN'S HOSPITAL OF PHILADELPHIA | Philadelphia, PA | 501(c)(3) | To Fund Research to Find a Cure for Eb | $385,482 |
| CINCINNATI CHILDREN'S HOSPITAL MEDICAL CENTER | Cincinnati, OH | 501(c)(3) | To Fund Research to Find a Cure for Eb | $346,734 |
| Thomas Jefferson University | Philadelphia, PA | 501(c)(3) | To Fund Research to Find a Cure for Eb | $298,449 |
| University of Southern California | Los Angeles, CA | - | To Fund Research to Find a Cure for Eb | $265,650 |
| Eliksa Therapeutics | Doylestown, PA | - | To Fund Research to Find a Cure for Eb | $250,000 |
| Onconova Therapeutics Inc | Newtown, PA | - | To Fund Research to Find a Cure for Eb | $200,000 |
| Stanford University | Palo Alto, CA | 501(c)(3) | To Fund Research to Find a Cure for Eb | $149,150 |
| Aws | Seattle, WA | 501(c)(3) | To Fund Research to Find a Cure for Eb | $64,071 |
| University of Massachusetts Medical School | Worcester, MA | - | To Fund Research to Find a Cure for Eb | $46,340 |
| PHOENIX CHILDREN'S HOSPITAL | Phoenix, AZ | 501(c)(3) | To Fund Research to Find a Cure for Eb | $12,500 |
| Ascension Seton Medical Center | Austin, TX | 501(c)(3) | To Fund Research to Find a Cure for Eb | $7,035 |
| Columbia University | New York, NY | 501(c)(3) | To Fund Research to Find a Cure for Eb | $6,829 |
| Region | Activity | Services | Offices | Employees | Spending |
|---|---|---|---|---|---|
| Europe (including Iceland & Greenland) - Albania, Andorra, Austria, Belgium | Program Services | Grants to Recipients Located in the Region | - | - | $398,026 |
| East Asia and the Pacific - Australia, Brunei, Burma, Cambodia, | Program Services | Grants to Recipients Located in the Region | - | - | $176,167 |
| North America - Canada and Mexico, But Not the United States | Program Services | Grants to Recipients Located in the Region | - | - | $19,208 |
| Line Item | Amount |
|---|---|
| Fundraising Direct Expenses | $719,181 |
| Fundraising Gross Income | $0 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| REPORTIN' FOR DUTY | $712,372 | - | $475,402 | - |
| Plunge for Elodie | $475,106 | - | $80,088 | - |
| Total Events | $1,599,763 | - | $719,181 | $-719,181 |
“Ed vedder and jill vedder have a family relationship. Ari deshe and daniel deshe have a family relationship.”
“The draft of the form 990 is reviewed by the ceo and then provided to the full board of directors and executive leadership for review, feedback, and approval before it is filed with the irs.”
“The corporation has authorized the executive committee to oversee all aspects of this policy, except (i) if a related party transaction would otherwise require full board approval, the executive committee shall submit the related party transaction to the board for consideration, providing its recommendation as to whether or not to approve it, and (ii) ratification of a related party transaction that was entered into without requisite approval shall require ratification by action of the board. If at any time any covered person believes that he or she may have an interest in a related party transaction, such covered person shall disclose in good faith the material facts regarding such interest to the executive committee. In addition, at any time, the corporation may circulate a conflict disclosure questionnaire to all covered persons requiring them to disclose any interests they have or may have in related party tranactions and reminding them to properly disclose any that may evolve in the future. A conflict disclosure questionnaire may also be furnished to any new director prior to his or her initial election and to any person who assumes a position as an office or may become a key person of the corporation at that time. Copies of any completed and signed conflict disclosure questionnaires shall be submitted to the secretary of the board who shall provide a copy of them to the chairperson of the board. When an actual or possible conflict of interest exists, the material facts regarding the transaction or arrangement and the interest shall be presented to the executive committee for a determination as to whether the transaction is fair, reasonable and in the corporaton's best interest at the time of the discussion, taking into account all the relevant circumstances, including the specific related party transaction and whether in the good faith determination of the executive committee the corporation could, with reasonable efforts, obtain a more advantageous transaction or arrangement from an entity or indivudual that would not give rise to a conflict. If a related party transaction has been entered into without being approved as a related party transaction, the corporation may, pursuant to the following requirements, vote to ratify such a transaction. If such ratification occurs prior to receipt of any request for information by the new york state attorney general regarding the transaction, such ratification shall act as a defense to an action by the new york state attorney general regarding such transaction.”
“The ceo's compensation includes a review and approval by the organization's governing body. Comparability data for similarly qualified persons in functionally comparable positions at similarly situated organization is used to determine the ceo's compensation. Any decisions involving the ceo's compensation arrangement are documented.”
“All organizational documents and form 990 are available for inspection upon prior written request.”
“The 2024 audit reflects the average exchange rate for each month, however the 990 uses the same rate used for converting auds to usds for the balance sheet which is the exchange rate as of december 31, 2024. As a result, us dollars per the 990 for the eb research australia income statement differ slightly from the audited financial statements. The balance sheet numbers per the 990 are the same as the audited financial statements.”
“Management evaluated ebrp's tax positions and concluded that the ebrp has not taken any uncertain tax positions that would require adjustment to the financial statements to comply with the provisions of fasb asc no. 740.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
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| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 440010 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | TO FUND RESEARCH FOR TREATMENTS AND A CURE FOR EPIDERMOLYSIS BULLOSA. |
| IRS990/AllOtherContributionsAmt | 0 | 3724353 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/AuditCommitteeInd | 0 | 1 |
| IRS990/BackupWthldComplianceInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt | 0 | THE ORGANIZATION |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 6468440902 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 244 MADISON AVENUE 104 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | NEW YORK |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | NY |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 10016 |
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| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 1177720 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 1272575 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 395871 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 23287 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 46573 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 465731 |
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| IRS990/CompensationProcessOtherInd | 0 | 0 |
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| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 1 |
| IRS990/ContriRptFundraisingEventAmt | 0 | 1599763 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 5491713 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 4699297 |
| IRS990/CYInvestmentIncomeAmt | 0 | 468161 |
| IRS990/CYOtherExpensesAmt | 0 | 1500044 |
| IRS990/CYOtherRevenueAmt | 0 | -441638 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -1676295 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 995190 |
| IRS990/CYTotalExpensesAmt | 0 | 7194531 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 1493358 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 5518236 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 0 |
| IRS990/DeferredRevenueGrp/EOYAmt | 0 | 54119 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/Desc | 0 | GRANTS AND MONEY AWARDED FOR FURTHER RESEARCH. EB RESEARCH PARTNERSHIP FUNDS THE MOST PROMISING, INNOVATIVE AND POTENTIALLY COMMERCIALLY VIABLE TREATMENTS AND POTENTIAL CURES FOR EB. OUR RESEARCH GRANTS INCORPORATE ADVANCES THROUGH THE FIELD OF BIOMEDICINE FOR BETTER TREATMENTS FOR ALL EB SUBTYPES. OUR SCIENTIFIC ADVISORY BOARD REVIEWS ALL GRANT APPLICATIONS SO THAT WE ARE ASSURED THAT GRANTS ARE RELEVANT, INNOVATIVE AND COULD MEANINGFULLY IMPROVE THE QUALITY OF LIFE FOR THOSE LIVING WITH EB. |
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| IRS990/DisregardedEntityInd | 0 | 0 |
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| IRS990/DonorRestrictionNetAssetsGrp/EOYAmt | 0 | 1793519 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 5 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | 1 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 5261143 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 1 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
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| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 221679 |
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| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 170257 |
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| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 24849 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 251612 |
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| IRS990/ForeignCountryCd | 0 | AS |
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| IRS990/ForeignGrantsGrp/ProgramServicesAmt | 0 | 593401 |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 593401 |
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| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 17 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | JILL VEDDER |
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| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | ARI DESHE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | CHAD CERETTO |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | DANIEL DESHE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | RIC FIRTH |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | COREY GRAY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | JENNIFER KAUF |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | EMILY KUBIK |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | FAYE DILGEN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | GREG LICHOLAI |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | ED VEDDER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 12 | TRACY BALDWIN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 13 | MICHAEL SACKS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 14 | MARC SEIDNER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 15 | MICHAEL PATRICK HUND |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 16 | IMANI RIBADENEYRA |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 17 | ALLISON MCGETTIGAN |
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| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
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| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 15 | 466331 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 16 | 218812 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 17 | 117138 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 16 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 17 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | CHAIRPERSON |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | VICE CHAIRMAN |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 12 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 13 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 14 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 15 | CEO |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 16 | CHIEF MARKETING OFFICER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 17 | COMMUNICATIONS & OPERATIONS DIRECTOR |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/FormationYr | 0 | 2010 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedBasisGrp/ConsolidatedBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 1 |
| IRS990/FundraisingAmt | 0 | 1599763 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 719181 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 0 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 15 |
| IRS990/GrantAmt | 0 | 4699297 |
| IRS990/GrantsPayableGrp/BOYAmt | 0 | 6774846 |
| IRS990/GrantsPayableGrp/EOYAmt | 0 | 6346469 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 4105896 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 4105896 |
| IRS990/GrantsToIndividualsInd | 0 | 0 |
| IRS990/GrantsToOrganizationsInd | 0 | 1 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossReceiptsAmt | 0 | 6237417 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 1 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 0 |
| IRS990/IndependentVotingMemberCnt | 0 | 15 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 3 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 18489 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 13105 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 79 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 31673 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 4144 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 4144 |
| IRS990/IntangibleAssetsGrp/BOYAmt | 0 | 15231 |
| IRS990/IntangibleAssetsGrp/EOYAmt | 0 | 819932 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 468161 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 468161 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/InvestmentsOtherSecuritiesGrp/BOYAmt | 0 | 9370293 |
| IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt | 0 | 9705968 |
| IRS990/IRPDocumentCnt | 0 | 15 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 5566 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 1578 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 46245 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 51811 |
| IRS990/LegalDomicileStateCd | 0 | NY |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 0 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | EB RESEARCH PARTNERSHIP IS THE LARGEST ORGANIZAION DEDICATED TO FUNDING RESEARCH FOR TREATMENTS AND A CURE FOR EPIDERMOLYSIS BULLOSA, A GROUP OF DEVASTATING AND LIFE THREATENING GENETIC SKIN DISORDERS THAT AFFECT CHILDREN FROM BIRTH. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 1 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 17765458 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 16089163 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | -719181 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | -719181 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 14847882 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 14295644 |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 103487 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 3201 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 21338 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 128026 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 226798 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 37754 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 134891 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 399443 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherAssetsTotalGrp/BOYAmt | 0 | 745596 |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 941135 |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 18239 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 525 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 9320 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 28084 |
| IRS990/OtherExpensesGrp/Desc | 0 | PAYMENT PROCESSOR FEES |
| IRS990/OtherExpensesGrp/Desc | 1 | BAD DEBT EXPENSE |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 79609 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 50000 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 79609 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 50000 |
| IRS990/OtherRevenueMiscGrp/BusinessCd | 0 | 900099 |
| IRS990/OtherRevenueMiscGrp/BusinessCd | 1 | 900099 |
| IRS990/OtherRevenueMiscGrp/Desc | 0 | OTHER INCOME |
| IRS990/OtherRevenueMiscGrp/Desc | 1 | LOSS FROM AFFILIATE |
| IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt | 0 | 335675 |
| IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt | 1 | -58132 |
| IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt | 0 | 335675 |
| IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt | 1 | -58132 |
| IRS990/OtherRevenueTotalAmt | 0 | 277543 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 302818 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 3652 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 140905 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 447375 |
| IRS990/OthNotesLoansReceivableNetGrp/BOYAmt | 0 | 3577000 |
| IRS990/OthNotesLoansReceivableNetGrp/EOYAmt | 0 | 3577000 |
| IRS990/OwnWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 40512 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 1242 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 12246 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 54000 |
| IRS990/PledgesAndGrantsReceivableGrp/BOYAmt | 0 | 2940832 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 1595019 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 66964 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 72804 |
| IRS990/PrincipalOfficerNm | 0 | MICHAEL HUND |
| IRS990/ProfessionalFundraisingInd | 0 | 0 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 7112051 |
| IRS990/PYExcessBenefitTransInd | 0 | 0 |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 5456354 |
| IRS990/PYInvestmentIncomeAmt | 0 | 552333 |
| IRS990/PYOtherExpensesAmt | 0 | 1177363 |
| IRS990/PYOtherRevenueAmt | 0 | -233759 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | -221679 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 1018587 |
| IRS990/PYTotalExpensesAmt | 0 | 7652304 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/PYTotalRevenueAmt | 0 | 7430625 |
| IRS990/QuidProQuoContributionsInd | 0 | 0 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | -1676295 |
| IRS990/RegularMonitoringEnfrcInd | 0 | 1 |
| IRS990/RelatedEntityInd | 0 | 1 |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | 1 |
| IRS990/RelatedOrganizationsAmt | 0 | 167597 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | 1 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 1 |
| IRS990/ReportOtherAssetsInd | 0 | 0 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 0 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 0 |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 6772805 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 4899083 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 5491713 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 7112051 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 6106138 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 7177252 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 4963857 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 30851011 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt | 0 | 468161 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 552333 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 283333 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 9574 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 32398 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 1345799 |
| IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt | 0 | 250000 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearAmt | 0 | 277543 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | -207123 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 271763 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 466835 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 10928 |
| IRS990ScheduleA/OtherIncome170Grp/TotalAmt | 0 | 819946 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.66950 |
| IRS990ScheduleA/PublicSupportPY170Pct | 0 | 0.64840 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 22103380 |
| IRS990ScheduleA/SubstantialContributorsTotAmt | 0 | 8747631 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 5491713 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 7112051 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 6106138 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 7177252 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 4963857 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 30851011 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 33016756 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
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