Civic Intelligence

Soft Bones Incthe Us Hypophosphatsia Foundation

990 • Fiscal year 2023 • EIN 26-4619055

Jan 01, 2023 to Dec 31, 2023 • Filed on Aug 26, 2024

Organization ProfileSOFTBONES.ORG
141 Hawkins Place 267Boonton, NJ 07005

(908) 377-8700

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

49th percentile

0.01x

Higher debt load relative to assets than 49% of similar nonprofits.

2023 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2023

Liabilities / Revenue

46th percentile

0.01x

Higher debt load relative to revenue than 46% of similar nonprofits.

2023 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2023

Net Margin

11th percentile

-32%

Higher net margin than 11% of similar nonprofits.

2023 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2023

Top Officer Pay

92nd percentile

$125,000

Higher top officer pay than 92% of similar nonprofits.

Top officer pay equals 21.4% of source-year revenue.

2023 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2023

Asset Growth

9th percentile

-26%

Faster asset growth than 9% of similar nonprofits.

2023 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2022 to 2023

Revenue Growth

40th percentile

1.3%

Faster revenue growth than 40% of similar nonprofits.

2023 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2022 to 2023

Balance Sheet
Liabilities / Assets49th percentile

Assets

Down

$534,980

Down $183,833 (-26%) from 2022

Net Assets

Down

$527,327

Down $189,303 (-26%) from 2022

Liabilities

Up

$7,653

Up $5,470 (+251%) from 2022

Revenue And Expenses
Liabilities / Revenue46th percentileNet Margin11th percentile

Revenue

Up

$585,208

Up $7,323 (+1.3%) from 2022

Expenses

Up

$774,511

Up $202,647 (+35%) from 2022

Net Income

Down

-$189,303

Down $195,324 (-3244%) from 2022

Historical Trend

Balance Sheet Trend

Asset Growth9th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$800K$600K$400K$200K$0Assets 2011: $196,445Liabilities 2011: $0Net Assets 2011: $196,4452011Assets 2012: $261,774Liabilities 2012: $0Net Assets 2012: $261,7742012Assets 2013: $292,328Net Assets 2013: $292,3282013Assets 2014: $347,185Liabilities 2014: $163Net Assets 2014: $347,0222014Assets 2015: $437,160Liabilities 2015: $27Net Assets 2015: $437,1332015Assets 2016: $447,774Liabilities 2016: $508Net Assets 2016: $447,2662016Assets 2017: $344,061Liabilities 2017: $0Net Assets 2017: $344,0612017Assets 2018: $233,614Liabilities 2018: $0Net Assets 2018: $233,6142018Assets 2019: $337,484Liabilities 2019: $2,185Net Assets 2019: $335,2992019Assets 2020: $522,379Liabilities 2020: $26,688Net Assets 2020: $495,6912020Assets 2021: $714,186Liabilities 2021: $3,577Net Assets 2021: $710,6092021Assets 2022: $718,813Liabilities 2022: $2,183Net Assets 2022: $716,6302022Assets 2023: $534,980Liabilities 2023: $7,653Net Assets 2023: $527,3272023Assets 2024: $581,577Liabilities 2024: $39,798Net Assets 2024: $541,7792024

Highlighted filing

2023

Assets$534,980
Liabilities$7,653
Net Assets$527,327
Open 2023 Filing

Operations Trend

Revenue Growth40th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.0M$500K$0-$500KRevenue 2011: $133,839Expenses 2011: $72,761Net Income 2011: $61,0782011Revenue 2012: $141,021Expenses 2012: $75,692Net Income 2012: $65,3292012Revenue 2013: $136,478Expenses 2013: $105,393Net Income 2013: $31,0852013Revenue 2014: $169,815Expenses 2014: $115,121Net Income 2014: $54,6942014Revenue 2015: $348,620Expenses 2015: $258,509Net Income 2015: $90,1112015Revenue 2016: $278,926Expenses 2016: $268,793Net Income 2016: $10,1332016Revenue 2017: $217,960Expenses 2017: $321,165Net Income 2017: -$103,2052017Revenue 2018: $381,353Expenses 2018: $491,800Net Income 2018: -$110,4472018Revenue 2019: $442,909Expenses 2019: $341,224Net Income 2019: $101,6852019Revenue 2020: $506,737Expenses 2020: $346,345Net Income 2020: $160,3922020Revenue 2021: $603,592Expenses 2021: $388,674Net Income 2021: $214,9182021Revenue 2022: $577,885Expenses 2022: $571,864Net Income 2022: $6,0212022Revenue 2023: $585,208Expenses 2023: $774,511Net Income 2023: -$189,3032023Revenue 2024: $526,669Expenses 2024: $512,217Net Income 2024: $14,4522024

Highlighted filing

2023

Revenue$585,208
Expenses$774,511
Net Income-$189,303
Open 2023 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2023 to Dec 31, 2023
Signed
Aug 26, 2024
Return Version
2023v5.0
Gross Receipts
$642,585
Mission and Program Overview

Mission

To build awareness of the disease of hypophosphatasia by providing educational materials, a support network, a sharing of information regarding research and treatment options to people diagnosed with hypophosphatasia, their families, and to the treating doctors.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$659,309$463,829▼ $195,480
Cash and Non-Interest-Bearing Accounts$58,298$62,729▲ $4,431
Other Notes and Loans Receivable, Net-$6,333-
Investments in Publicly Traded Securities$1,206$2,089▲ $883
Total Assets$718,813$534,980▼ $183,833
Liabilities
Other Liabilities-$4,960-
Accounts Payable and Accrued Expenses$2,183$2,693▲ $510
Total Liabilities$2,183$7,653▲ $5,470
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$716,630$527,327▼ $189,303
Total Net Assets Fund Balance$716,630$527,327▼ $189,303
Total Liabilities and Net Assets / Fund Balance$718,813$534,980▼ $183,833
Compensation and Service Providers
Top Officer Pay92nd percentile

Employees

NameTitleFull / Part TimeBaseTotal
Denise M GoodbarExecutive DiFT$125,000$125,000

Board Members and Trustees

NameTitle
Deborah FowlerPresident
Adam Grenker EsqDirector
Dr Brenda ZieglerDirector
Rob MoskowDirector
Scott NettuneDirector
Heidi FloydSecretary
Michelle LabrunoTreasurer
Karen CarolonzaVice Preside
Revenue and Support

Revenue Composition

Contributions and Grants
$489,663
Program Service Revenue
$0
Investment Income
$24,807
Other Revenue
$70,738
All Other Contributions
$422,700
Change in Net Assets
$-189,303
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$486,796
Salaries, Compensation, and Employee Benefits$235,458
Grants and Similar Amounts Paid$52,257
Total Fundraising Expense$19,312
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$184,060$21,654$10,827$216,541
Fees for Services Other$117,544$21,827$7,276$146,647
Information Technology$75,000--$75,000
Grants to Domestic Individuals$27,257--$27,257
Grants to Domestic Orgs$25,000--$25,000
Office Expenses-$24,295-$24,295
Travel$19,446--$19,446
Payroll Taxes$18,917--$18,917
Other Expenses$15,951--$15,951
Insurance-$6,397-$6,397
All Other Expenses$4,581$419$1,209$6,209
Advertising$3,768--$3,768
Fees for Services Accounting-$3,080-$3,080
Fees for Services Legal-$2,980-$2,980
Total Functional Expenses$674,547$80,652$19,312$774,511
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
University of PennsylvaniaPhiladelphia, PA-Research$25,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$128,115
Fundraising Direct Expenses$57,377
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Annual Golf Out$173,744$113,489$48,311$65,178
Denim & Diamond$15,001$14,626$9,066$5,560
Total Events$188,745$128,115$57,377$70,738
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Credit Cards Payable$4,960
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 11B

“Form 990 is prepared by an outside accounting firm and given to the executive director, president, and treasurer for review and approval before it is filed with the irs.”

Form 990, Page 6, Part VI, Line 12C

“The organization enforces its conflicts of interest policy by requiring all board members, officers, and employees to disclose any financial interest they or their family members have in any company that does business with the organization. This is a continuing obligation and is renewed annually for compliance.”

Form 990, Page 6, Part VI, Line 15A

“Compensation of the organization's executive director is determined by the board of directors, which considers individual accomplishments, organizational performance, and comparable compensation data. Yearly compensation is reviewed and approved by the board of directors through a vote.”

Form 990, Page 6, Part VI, Line 19

“Consistent with its obligations under statutory law, rules and regulations, as applicable, the organization makes its documents, such as its application for tax exemption, annual information returns, conflict of interest policy, and governing documents, available through public filings and/or on written request, either by providing copies or making them available for inspection at the offices of the organization.”

Filing and Contact Details

Filer

Filer Name
Soft Bones Incthe US
EIN
26-4619055
Phone
9083778700
Address
141 HAWKINS PLACE 267, BOONTON, NJ 07005

Signing Officer

Name
Deborah Fowler
Title
President
Phone
9734533093
Signed
2024-08-26
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Deborah Fowler
Voting Board Members
8
Independent Board Members
7
Employees
7

Preparer

Firm
Odell & Critchley Pc
Address
127 MAIN STREET, CHATHAM, NJ 07928
Preparer
E Michael Odell CPA
Phone
9733770805
Supplemental Narrative

Additional Explanations

FORM 990 - ORGANIZATION'S MISSION

“To build awareness of the disease of hypophosphatasia by providing educational materials, a support network, a sharing of information regarding research and treatment options to people diagnosed with hypophosphatasia, their families, and to the treating doctors.”

Form 990, Part IX, Line 11G

“Outside services 117,544 21,827 7,276”

Raw XML AppendixShowing 400 of 405 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt060255
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent2Amt0375
IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt057377
IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0ANNUAL GOLF OUT
IRS990ScheduleG/FundraisingEventInformationGrp/Event2Nm0DENIM & DIAMOND
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt0173744
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent2Amt015001
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IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt0113489
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent2Amt014626
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt0128115
IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt070738
IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt057377
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt048311
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent2Amt09066
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IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/CashGrantAmt027257
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/GrantTypeTxt0TRAVEL ASSIST TO PATIENTS
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/RecipientCnt045
IRS990ScheduleI/RecipientTable/CashGrantAmt025000
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0RESEARCH
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0UNIVERSITY OF PENNSYLVANIA
IRS990ScheduleI/RecipientTable/RecipientEIN0231352685
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt03101 WALNUT STREET
IRS990ScheduleI/RecipientTable/USAddress/CityNm0PHILADELPHIA
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0PA
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IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt0APPLICATIONS ARE RECEIVED BY THE ORGANIZATION IN RESPONSE TO GRANTS MADE AVAILABLE TO OTHER ORGANIZATIONS. THE APPLICATION IS REVIEWED BY DENISE GOODBAR TO AUTHORIZE THE ONE TIME GRANT WITHOUT GRANT MONITORING. GRANT FUNDS ARE PAID DIRECTLY TO THE GRANT AWARDEE.
IRS990ScheduleI/SupplementalInformationDetail/FormAndLineReferenceDesc0SCHEDULE I, PAGE 1, PART I, LINE 2
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0TO BUILD AWARENESS OF THE DISEASE OF HYPOPHOSPHATASIA BY PROVIDING EDUCATIONAL MATERIALS, A SUPPORT NETWORK, A SHARING OF INFORMATION REGARDING RESEARCH AND TREATMENT OPTIONS TO PEOPLE DIAGNOSED WITH HYPOPHOSPHATASIA, THEIR FAMILIES, AND TO THE TREATING DOCTORS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1FORM 990 IS PREPARED BY AN OUTSIDE ACCOUNTING FIRM AND GIVEN TO THE EXECUTIVE DIRECTOR, PRESIDENT, AND TREASURER FOR REVIEW AND APPROVAL BEFORE IT IS FILED WITH THE IRS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2THE ORGANIZATION ENFORCES ITS CONFLICTS OF INTEREST POLICY BY REQUIRING ALL BOARD MEMBERS, OFFICERS, AND EMPLOYEES TO DISCLOSE ANY FINANCIAL INTEREST THEY OR THEIR FAMILY MEMBERS HAVE IN ANY COMPANY THAT DOES BUSINESS WITH THE ORGANIZATION. THIS IS A CONTINUING OBLIGATION AND IS RENEWED ANNUALLY FOR COMPLIANCE.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3COMPENSATION OF THE ORGANIZATION'S EXECUTIVE DIRECTOR IS DETERMINED BY THE BOARD OF DIRECTORS, WHICH CONSIDERS INDIVIDUAL ACCOMPLISHMENTS, ORGANIZATIONAL PERFORMANCE, AND COMPARABLE COMPENSATION DATA. YEARLY COMPENSATION IS REVIEWED AND APPROVED BY THE BOARD OF DIRECTORS THROUGH A VOTE.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4CONSISTENT WITH ITS OBLIGATIONS UNDER STATUTORY LAW, RULES AND REGULATIONS, AS APPLICABLE, THE ORGANIZATION MAKES ITS DOCUMENTS, SUCH AS ITS APPLICATION FOR TAX EXEMPTION, ANNUAL INFORMATION RETURNS, CONFLICT OF INTEREST POLICY, AND GOVERNING DOCUMENTS, AVAILABLE THROUGH PUBLIC FILINGS AND/OR ON WRITTEN REQUEST, EITHER BY PROVIDING COPIES OR MAKING THEM AVAILABLE FOR INSPECTION AT THE OFFICES OF THE ORGANIZATION.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5OUTSIDE SERVICES 117,544 21,827 7,276
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990 - ORGANIZATION'S MISSION
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PAGE 6, PART VI, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PAGE 6, PART VI, LINE 12C
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990, PAGE 6, PART VI, LINE 15A
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4FORM 990, PAGE 6, PART VI, LINE 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5FORM 990, PART IX, LINE 11G
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ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0CHATHAM
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0NJ
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd007928
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ReturnHeader/PreparerPersonGrp/PreparationDt02024-08-26
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0E MICHAEL ODELL CPA

Document Assets

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Filings

Displayed year

2023 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$534,980
Liabilities
$7,653
Net assets
$527,327
Revenue
$585,208
Expenses
$774,511
Net income
-$189,303
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.82$0.40$5.42$5.27$5.12$0.14
2023Detailed filing. Detailed filing data is available for this year.$5.35$0.08$5.27$5.85$7.75$1.89
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$7.19$0.02$7.17$5.78$5.72$0.06
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$7.14$0.04$7.11$6.04$3.89$2.15
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$5.22$0.27$4.96$5.07$3.46$1.60
2019Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.37$0.02$3.35$4.43$3.41$1.02
2018Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.34$0.00$2.34$3.81$4.92$1.10
2017Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.44$0.00$3.44$2.18$3.21$1.03
2016Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.48$0.01$4.47$2.79$2.69$0.10
2015Detailed filing. Detailed filing data is available for this year.$4.37$0.00$4.37$3.49$2.59$0.90
2014Detailed filing. Detailed filing data is available for this year.$3.47$0.00$3.47$1.70$1.15$0.55
2013Detailed filing. Detailed filing data is available for this year.$2.92$2.92$1.36$1.05$0.31
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.62$0.00$2.62$1.41$0.76$0.65
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.96$0.00$1.96$1.34$0.73$0.61