Civic Intelligence

Soft Bones Incthe Us

EIN 26-4619055 • 501(c)3 • Boonton, NJ

Profile

To build awareness of the disease of hypophosphatasia by providing educational materials, a support network, a sharing of information regarding research and treatment options to people diagnosed with hypophosphatasia, their families, and to the treating doctors.

141 Hawkins Place 267Boonton, NJ 07005

softbones.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

64th percentile

0.07x

Higher debt load relative to assets than 64% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Liabilities / Revenue

67th percentile

0.08x

Higher debt load relative to revenue than 67% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Net Margin

47th percentile

2.7%

Higher net margin than 47% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Top Officer Pay

91st percentile

$125,000

Higher top officer pay than 91% of similar nonprofits.

Top officer pay equals 23.7% of source-year revenue.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Asset Growth

62nd percentile

8.7%

Faster asset growth than 62% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Annualized from 2023 to 2024

Revenue Growth

26th percentile

-10%

Faster revenue growth than 26% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets64th percentile

Assets

Down

$581,577

Down $137,236 (-19%) from 2022

Liabilities

Up

$39,798

Up $37,615 (+1723%) from 2022

Net Assets

Down

$541,779

Down $174,851 (-24%) from 2022

Operations
Liabilities / Revenue67th percentileNet Margin47th percentile

Revenue

Down

$526,669

Down $51,216 (-8.9%) from 2022

Expenses

Down

$512,217

Down $59,647 (-10%) from 2022

Net Income

Up

$14,452

Up $8,431 (+140%) from 2022

Trend Graphs

Balance Sheet Trend

Asset Growth62nd percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$800K$600K$400K$200K$0Assets 2011: $196,445Liabilities 2011: $0Net Assets 2011: $196,4452011Assets 2012: $261,774Liabilities 2012: $0Net Assets 2012: $261,7742012Assets 2013: $292,328Net Assets 2013: $292,3282013Assets 2014: $347,185Liabilities 2014: $163Net Assets 2014: $347,0222014Assets 2015: $437,160Liabilities 2015: $27Net Assets 2015: $437,1332015Assets 2016: $447,774Liabilities 2016: $508Net Assets 2016: $447,2662016Assets 2017: $344,061Liabilities 2017: $0Net Assets 2017: $344,0612017Assets 2018: $233,614Liabilities 2018: $0Net Assets 2018: $233,6142018Assets 2019: $337,484Liabilities 2019: $2,185Net Assets 2019: $335,2992019Assets 2020: $522,379Liabilities 2020: $26,688Net Assets 2020: $495,6912020Assets 2021: $714,186Liabilities 2021: $3,577Net Assets 2021: $710,6092021Assets 2022: $718,813Liabilities 2022: $2,183Net Assets 2022: $716,6302022Assets 2024: $581,577Liabilities 2024: $39,798Net Assets 2024: $541,7792024

Highlighted filing

2024

Assets$581,577
Liabilities$39,798
Net Assets$541,779
Open 2024 Filing

Operations Trend

Revenue Growth26th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$800K$600K$400K$200K$0-$200KRevenue 2011: $133,839Expenses 2011: $72,761Net Income 2011: $61,0782011Revenue 2012: $141,021Expenses 2012: $75,692Net Income 2012: $65,3292012Revenue 2013: $136,478Expenses 2013: $105,393Net Income 2013: $31,0852013Revenue 2014: $169,815Expenses 2014: $115,121Net Income 2014: $54,6942014Revenue 2015: $348,620Expenses 2015: $258,509Net Income 2015: $90,1112015Revenue 2016: $278,926Expenses 2016: $268,793Net Income 2016: $10,1332016Revenue 2017: $217,960Expenses 2017: $321,165Net Income 2017: -$103,2052017Revenue 2018: $381,353Expenses 2018: $491,800Net Income 2018: -$110,4472018Revenue 2019: $442,909Expenses 2019: $341,224Net Income 2019: $101,6852019Revenue 2020: $506,737Expenses 2020: $346,345Net Income 2020: $160,3922020Revenue 2021: $603,592Expenses 2021: $388,674Net Income 2021: $214,9182021Revenue 2022: $577,885Expenses 2022: $571,864Net Income 2022: $6,0212022Revenue 2024: $526,669Expenses 2024: $512,217Net Income 2024: $14,4522024

Highlighted filing

2024

Revenue$526,669
Expenses$512,217
Net Income$14,452
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$581,577
Liabilities
$39,798
Net assets
$541,779
Revenue
$526,669
Expenses
$512,217
Net income
$14,452
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.82$0.40$5.42$5.27$5.12$0.14
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$7.19$0.02$7.17$5.78$5.72$0.06
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$7.14$0.04$7.11$6.04$3.89$2.15
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$5.22$0.27$4.96$5.07$3.46$1.60
2019Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.37$0.02$3.35$4.43$3.41$1.02
2018Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.34$0.00$2.34$3.81$4.92$1.10
2017Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.44$0.00$3.44$2.18$3.21$1.03
2016Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.48$0.01$4.47$2.79$2.69$0.10
2015Detailed filing. Detailed filing data is available for this year.$4.37$0.00$4.37$3.49$2.59$0.90
2014Detailed filing. Detailed filing data is available for this year.$3.47$0.00$3.47$1.70$1.15$0.55
2013Detailed filing. Detailed filing data is available for this year.$2.92$2.92$1.36$1.05$0.31
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.62$0.00$2.62$1.41$0.76$0.65
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.96$0.00$1.96$1.34$0.73$0.61
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Sep 8, 2025
Return Version
2024v5.0
Gross Receipts
$589,084
Mission and Program Overview

Mission

To build awareness of the disease of hypophosphatasia by providing educational materials, a support network, a sharing of information regarding research and treatment options to people diagnosed with hypophosphatasia, their families, and to the treating doctors.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$463,829$426,418▼ $37,411
Cash and Non-Interest-Bearing Accounts$62,729$155,159▲ $92,430
Other Notes and Loans Receivable, Net$6,333--
Investments in Publicly Traded Securities$2,089--
Total Assets$534,980$581,577▲ $46,597
Liabilities
Grants Payable-$25,000-
Other Liabilities$4,960$11,970▲ $7,010
Accounts Payable and Accrued Expenses$2,693$2,828▲ $135
Total Liabilities$7,653$39,798▲ $32,145
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$527,327$541,779▲ $14,452
Total Net Assets Fund Balance$527,327$541,779▲ $14,452
Total Liabilities and Net Assets / Fund Balance$534,980$581,577▲ $46,597
Compensation and Service Providers
Top Officer Pay91st percentile

Employees

NameTitleFull / Part TimeBaseTotal
Denise M GoodbarExecutive DiFT$125,000$125,000

Board Members and Trustees

NameTitle
Deborah FowlerPresident
Adam Grenker EsqDirector
Dr Brenda ZieglerDirector
Rob MoskowDirector
Scott NettuneDirector
Heidi FloydSecretary
Michelle LabrunoTreasurer
Karen CarolonzaVice Preside
Revenue and Support

Revenue Composition

Contributions and Grants
$437,138
Program Service Revenue
$0
Investment Income
$25,565
Other Revenue
$63,966
All Other Contributions
$356,309
Change in Net Assets
$14,452
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$294,295
Other Expenses$187,622
Grants and Similar Amounts Paid$30,300
Total Fundraising Expense$20,922
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$122,868$14,455$7,227$144,550
Current Officers, Directors, Trustees, and Key Employees$106,250$12,500$6,250$125,000
Fees for Services Other$33,333--$33,333
Grants to Domestic Orgs$25,000--$25,000
Payroll Taxes$21,033$2,475$1,237$24,745
Office Expenses-$13,730-$13,730
Travel$11,554--$11,554
Grants to Domestic Individuals$5,300--$5,300
Fees for Services Accounting-$4,435-$4,435
Insurance-$4,388-$4,388
Advertising$3,109--$3,109
All Other Expenses$2,814$188-$3,002
Information Technology$2,414--$2,414
Other Expenses$2,245-$6,208$2,245
Fees for Services Legal-$1,625-$1,625
Total Functional Expenses$437,499$53,796$20,922$512,217
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Sanford Burnham Prebys MedicalLa Jolla, CA-Research$25,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$124,141
Fundraising Direct Expenses$60,175
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Annual Golf Out$176,567$111,071$51,727$59,344
Denim & Diamond$14,845$13,070$8,448$4,622
Total Events$191,412$124,141$60,175$63,966
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Credit Cards Payable$11,970
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 11B

“Form 990 is prepared by an outside accounting firm and given to the executive director, president, and treasurer for review and approval before it is filed with the irs.”

Form 990, Page 6, Part VI, Line 12C

“The organization enforces its conflicts of interest policy by requiring all board members, officers, and employees to disclose any financial interest they or their family members have in any company that does business with the organization. This is a continuing obligation and is renewed annually for compliance.”

Form 990, Page 6, Part VI, Line 15A

“Compensation of the organization's executive director is determined by the board of directors, which considers individual accomplishments, organizational performance, and comparable compensation data. Yearly compensation is reviewed and approved by the board of directors through a vote.”

Form 990, Page 6, Part VI, Line 19

“Consistent with its obligations under statutory law, rules and regulations, as applicable, the organization makes its documents, such as its application for tax exemption, annual information returns, conflict of interest policy, and governing documents, available through public filings and/or on written request, either by providing copies or making them available for inspection at the offices of the organization.”

Filing and Contact Details

Filer

Filer Name
Soft Bones Incthe US
EIN
26-4619055
Phone
9083778700
Address
141 HAWKINS PLACE 267, BOONTON, NJ 07005

Signing Officer

Name
Deborah Fowler
Title
President
Phone
9734533093
Signed
2025-09-08
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Deborah Fowler
Voting Board Members
8
Independent Board Members
7
Employees
5

Preparer

Firm
Odell & Critchley Pc
Address
127 MAIN STREET, CHATHAM, NJ 07928
Preparer
E Michael Odell CPA
Phone
9733770805
Supplemental Narrative

Additional Explanations

FORM 990 - ORGANIZATION'S MISSION

“To build awareness of the disease of hypophosphatasia by providing educational materials, a support network, a sharing of information regarding research and treatment options to people diagnosed with hypophosphatasia, their families, and to the treating doctors.”

Raw XML AppendixShowing 400 of 414 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
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IRS990/OtherExpensesGrp/Desc1DUES & SUBSCRIPTIONS
IRS990/OtherExpensesGrp/Desc2MISCELLANEOUS
IRS990/OtherExpensesGrp/Desc3PATIENT GIFTS
IRS990/OtherExpensesGrp/FundraisingAmt06208
IRS990/OtherExpensesGrp/ProgramServicesAmt080390
IRS990/OtherExpensesGrp/ProgramServicesAmt121189
IRS990/OtherExpensesGrp/ProgramServicesAmt22245
IRS990/OtherExpensesGrp/TotalAmt080390
IRS990/OtherExpensesGrp/TotalAmt121189
IRS990/OtherExpensesGrp/TotalAmt26208
IRS990/OtherExpensesGrp/TotalAmt32245
IRS990/OtherLiabilitiesGrp/BOYAmt04960
IRS990/OtherLiabilitiesGrp/EOYAmt011970
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt07227
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt014455
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0122868
IRS990/OtherSalariesAndWagesGrp/TotalAmt0144550
IRS990/OthNotesLoansReceivableNetGrp/BOYAmt06333
IRS990/PartialLiquidationInd0false
IRS990/PayrollTaxesGrp/FundraisingAmt01237
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt02475
IRS990/PayrollTaxesGrp/ProgramServicesAmt021033
IRS990/PayrollTaxesGrp/TotalAmt024745
IRS990/PoliticalCampaignActyInd0false
IRS990/PrincipalOfficerNm0DEBORAH FOWLER
IRS990/ProfessionalFundraisingInd0false
IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYContributionsGrantsAmt0489663
IRS990/PYExcessBenefitTransInd0false
IRS990/PYGrantsAndSimilarPaidAmt052257
IRS990/PYInvestmentIncomeAmt024807
IRS990/PYOtherExpensesAmt0486796
IRS990/PYOtherRevenueAmt070738
IRS990/PYRevenuesLessExpensesAmt0-189303
IRS990/PYSalariesCompEmpBnftPaidAmt0235458
IRS990/PYTotalExpensesAmt0774511
IRS990/PYTotalRevenueAmt0585208
IRS990/ReconcilationRevenueExpnssAmt014452
IRS990/RegularMonitoringEnfrcInd0true
IRS990/RelatedEntityInd0false
IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/ReportInvestmentsOtherSecInd0false
IRS990/ReportLandBuildingEquipmentInd0false
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0true
IRS990/ReportProgramRelatedInvstInd0false
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0463829
IRS990/SavingsAndTempCashInvstGrp/EOYAmt0426418
IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt0SEE SUPPLEMENTAL INFORMATION 0
IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt1CAPITAL GAINS 3,427
IRS990ScheduleA/Form990ScheduleAPartVIGrp/FormAndLineReferenceDesc0PART II, LINE 10
IRS990ScheduleA/Form990ScheduleAPartVIGrp/FormAndLineReferenceDesc1SUPPLEMENTAL INFORMATION
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt0437138
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0489663
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0505212
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0490511
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0441067
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt02363591
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt022138
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt024807
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt04573
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt093
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt0175
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt051786
IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt0647042
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.96050
IRS990ScheduleA/PublicSupportPY170Pct00.91870
IRS990ScheduleA/PublicSupportTotal170Amt02363591
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt0437138
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0489663
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0505212
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0490511
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0441067
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt02363591
IRS990ScheduleA/TotalSupportAmt02460834
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus3YearsAmt045457
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/TotalAmt045457
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd0true
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt011970
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc0CREDIT CARDS PAYABLE
IRS990ScheduleD/TotalLiabilityAmt011970
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt067271
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt065496
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent2Amt01775
IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt060175
IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0ANNUAL GOLF OUT
IRS990ScheduleG/FundraisingEventInformationGrp/Event2Nm0DENIM & DIAMOND
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt0176567
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent2Amt014845
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt0191412
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt0111071
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent2Amt013070
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt0124141
IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt063966
IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt060175
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt051727
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent2Amt08448
IRS990ScheduleI/GrantRecordsMaintainedInd0true
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/CashGrantAmt05300
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/GrantTypeTxt0TRAVEL ASSIST TO PATIENTS
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/RecipientCnt017
IRS990ScheduleI/RecipientTable/CashGrantAmt025000
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0RESEARCH
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0SANFORD BURNHAM PREBYS MEDICAL
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine2Txt0DISCOVERY INSTITUTE
IRS990ScheduleI/RecipientTable/RecipientEIN0510197108
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt010901 NORTH TORREY PINES RD
IRS990ScheduleI/RecipientTable/USAddress/CityNm0LA JOLLA
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0CA
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd092037
IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt0APPLICATIONS ARE RECEIVED BY THE ORGANIZATION IN RESPONSE TO GRANTS MADE AVAILABLE TO OTHER ORGANIZATIONS. THE APPLICATION IS REVIEWED BY DENISE GOODBAR TO AUTHORIZE THE ONE TIME GRANT WITHOUT GRANT MONITORING. GRANT FUNDS ARE PAID DIRECTLY TO THE GRANT AWARDEE.
IRS990ScheduleI/SupplementalInformationDetail/FormAndLineReferenceDesc0SCHEDULE I, PAGE 1, PART I, LINE 2
IRS990/ScheduleJRequiredInd0false
IRS990/ScheduleORequiredInd0true
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0TO BUILD AWARENESS OF THE DISEASE OF HYPOPHOSPHATASIA BY PROVIDING EDUCATIONAL MATERIALS, A SUPPORT NETWORK, A SHARING OF INFORMATION REGARDING RESEARCH AND TREATMENT OPTIONS TO PEOPLE DIAGNOSED WITH HYPOPHOSPHATASIA, THEIR FAMILIES, AND TO THE TREATING DOCTORS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1FORM 990 IS PREPARED BY AN OUTSIDE ACCOUNTING FIRM AND GIVEN TO THE EXECUTIVE DIRECTOR, PRESIDENT, AND TREASURER FOR REVIEW AND APPROVAL BEFORE IT IS FILED WITH THE IRS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2THE ORGANIZATION ENFORCES ITS CONFLICTS OF INTEREST POLICY BY REQUIRING ALL BOARD MEMBERS, OFFICERS, AND EMPLOYEES TO DISCLOSE ANY FINANCIAL INTEREST THEY OR THEIR FAMILY MEMBERS HAVE IN ANY COMPANY THAT DOES BUSINESS WITH THE ORGANIZATION. THIS IS A CONTINUING OBLIGATION AND IS RENEWED ANNUALLY FOR COMPLIANCE.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3COMPENSATION OF THE ORGANIZATION'S EXECUTIVE DIRECTOR IS DETERMINED BY THE BOARD OF DIRECTORS, WHICH CONSIDERS INDIVIDUAL ACCOMPLISHMENTS, ORGANIZATIONAL PERFORMANCE, AND COMPARABLE COMPENSATION DATA. YEARLY COMPENSATION IS REVIEWED AND APPROVED BY THE BOARD OF DIRECTORS THROUGH A VOTE.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4CONSISTENT WITH ITS OBLIGATIONS UNDER STATUTORY LAW, RULES AND REGULATIONS, AS APPLICABLE, THE ORGANIZATION MAKES ITS DOCUMENTS, SUCH AS ITS APPLICATION FOR TAX EXEMPTION, ANNUAL INFORMATION RETURNS, CONFLICT OF INTEREST POLICY, AND GOVERNING DOCUMENTS, AVAILABLE THROUGH PUBLIC FILINGS AND/OR ON WRITTEN REQUEST, EITHER BY PROVIDING COPIES OR MAKING THEM AVAILABLE FOR INSPECTION AT THE OFFICES OF THE ORGANIZATION.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990 - ORGANIZATION'S MISSION
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PAGE 6, PART VI, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PAGE 6, PART VI, LINE 12C
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990, PAGE 6, PART VI, LINE 15A
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4FORM 990, PAGE 6, PART VI, LINE 19
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IRS990/SignificantChangeInd0false
IRS990/SignificantNewProgramSrvcInd0false
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IRS990/SubjectToExcsTaxNetInvstIncInd0false
IRS990/SubjectToProxyTaxInd0false
IRS990/SubjToTaxRmnrtnExPrchtPymtInd0false
IRS990/TaxablePartyNotificationInd0false
IRS990/TaxExemptBondsInd0false
IRS990/TerminateOperationsInd0false
IRS990/TotalAssetsBOYAmt0534980
IRS990/TotalAssetsEOYAmt0581577
IRS990/TotalAssetsGrp/BOYAmt0534980
IRS990/TotalAssetsGrp/EOYAmt0581577
IRS990/TotalCompGreaterThan150KInd0false
IRS990/TotalContributionsAmt0437138
IRS990/TotalEmployeeCnt05
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt020922
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt053796
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0437499
IRS990/TotalFunctionalExpensesGrp/TotalAmt0512217
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt07653
IRS990/TotalLiabilitiesEOYAmt039798
IRS990/TotalLiabilitiesGrp/BOYAmt07653
IRS990/TotalLiabilitiesGrp/EOYAmt039798
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt0527327
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt0541779
IRS990/TotalProgramServiceExpensesAmt0437499
IRS990/TotalReportableCompFromOrgAmt0125000
IRS990/TotalRevenueGrp/ExclusionAmt089531
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0526669
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt0534980
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt0581577
IRS990/TravelGrp/ProgramServicesAmt011554
IRS990/TravelGrp/TotalAmt011554
IRS990/TrnsfrExmptNonChrtblRltdOrgInd0false
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd0false
IRS990/UponRequestInd0X
IRS990/VotingMembersGoverningBodyCnt08
IRS990/VotingMembersIndependentCnt07
IRS990/WebsiteAddressTxt0SOFTBONES.ORG
IRS990/WhistleblowerPolicyInd0true
ReturnHeader/BuildTS02025-03-06 01:10:19Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd0true
ReturnHeader/BusinessOfficerGrp/PersonNm0DEBORAH FOWLER
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0PRESIDENT
ReturnHeader/BusinessOfficerGrp/PhoneNum09734533093
ReturnHeader/BusinessOfficerGrp/SignatureDt02025-09-08
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0SOFT BONES INCTHE US
ReturnHeader/Filer/BusinessNameControlTxt0SOFT
ReturnHeader/Filer/EIN0264619055
ReturnHeader/Filer/PhoneNum09083778700
ReturnHeader/Filer/USAddress/AddressLine1Txt0141 HAWKINS PLACE 267
ReturnHeader/Filer/USAddress/CityNm0BOONTON
ReturnHeader/Filer/USAddress/StateAbbreviationCd0NJ
ReturnHeader/Filer/USAddress/ZIPCd007005
ReturnHeader/IRSResponsiblePrtyInfoCurrInd0true

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