Civic Intelligence

Soft Bones Incthe Us Hypophosphatsia Foundation

990 • Fiscal year 2022 • EIN 26-4619055

Jan 01, 2022 to Dec 31, 2022 • Filed on May 12, 2023

Organization ProfileSOFTBONES.ORG
141 Hawkins Place 267Boonton, NJ 07005

(908) 377-8700

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

38th percentile

0.00x

Higher debt load relative to assets than 38% of similar nonprofits.

2022 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2022

Liabilities / Revenue

37th percentile

0.00x

Higher debt load relative to revenue than 37% of similar nonprofits.

2022 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2022

Net Margin

39th percentile

1.0%

Higher net margin than 39% of similar nonprofits.

2022 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2022

Top Officer Pay

53rd percentile

$0

Higher top officer pay than 53% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2022 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2022

Asset Growth

47th percentile

0.6%

Faster asset growth than 47% of similar nonprofits.

2022 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2021 to 2022

Revenue Growth

33rd percentile

-4.3%

Faster revenue growth than 33% of similar nonprofits.

2022 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2021 to 2022

Balance Sheet
Liabilities / Assets38th percentile

Assets

Up

$718,813

Up $4,627 (+0.6%) from 2021

Net Assets

Up

$716,630

Up $6,021 (+0.8%) from 2021

Liabilities

Down

$2,183

Down $1,394 (-39%) from 2021

Revenue And Expenses
Liabilities / Revenue37th percentileNet Margin39th percentile

Revenue

Down

$577,885

Down $25,707 (-4.3%) from 2021

Expenses

Up

$571,864

Up $183,190 (+47%) from 2021

Net Income

Down

$6,021

Down $208,897 (-97%) from 2021

Historical Trend

Balance Sheet Trend

Asset Growth47th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$800K$600K$400K$200K$0Assets 2011: $196,445Liabilities 2011: $0Net Assets 2011: $196,4452011Assets 2012: $261,774Liabilities 2012: $0Net Assets 2012: $261,7742012Assets 2013: $292,328Net Assets 2013: $292,3282013Assets 2014: $347,185Liabilities 2014: $163Net Assets 2014: $347,0222014Assets 2015: $437,160Liabilities 2015: $27Net Assets 2015: $437,1332015Assets 2016: $447,774Liabilities 2016: $508Net Assets 2016: $447,2662016Assets 2017: $344,061Liabilities 2017: $0Net Assets 2017: $344,0612017Assets 2018: $233,614Liabilities 2018: $0Net Assets 2018: $233,6142018Assets 2019: $337,484Liabilities 2019: $2,185Net Assets 2019: $335,2992019Assets 2020: $522,379Liabilities 2020: $26,688Net Assets 2020: $495,6912020Assets 2021: $714,186Liabilities 2021: $3,577Net Assets 2021: $710,6092021Assets 2022: $718,813Liabilities 2022: $2,183Net Assets 2022: $716,6302022Assets 2024: $581,577Liabilities 2024: $39,798Net Assets 2024: $541,7792024

Highlighted filing

2022

Assets$718,813
Liabilities$2,183
Net Assets$716,630
Open 2022 Filing

Operations Trend

Revenue Growth33rd percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$800K$600K$400K$200K$0-$200KRevenue 2011: $133,839Expenses 2011: $72,761Net Income 2011: $61,0782011Revenue 2012: $141,021Expenses 2012: $75,692Net Income 2012: $65,3292012Revenue 2013: $136,478Expenses 2013: $105,393Net Income 2013: $31,0852013Revenue 2014: $169,815Expenses 2014: $115,121Net Income 2014: $54,6942014Revenue 2015: $348,620Expenses 2015: $258,509Net Income 2015: $90,1112015Revenue 2016: $278,926Expenses 2016: $268,793Net Income 2016: $10,1332016Revenue 2017: $217,960Expenses 2017: $321,165Net Income 2017: -$103,2052017Revenue 2018: $381,353Expenses 2018: $491,800Net Income 2018: -$110,4472018Revenue 2019: $442,909Expenses 2019: $341,224Net Income 2019: $101,6852019Revenue 2020: $506,737Expenses 2020: $346,345Net Income 2020: $160,3922020Revenue 2021: $603,592Expenses 2021: $388,674Net Income 2021: $214,9182021Revenue 2022: $577,885Expenses 2022: $571,864Net Income 2022: $6,0212022Revenue 2024: $526,669Expenses 2024: $512,217Net Income 2024: $14,4522024

Highlighted filing

2022

Revenue$577,885
Expenses$571,864
Net Income$6,021
Open 2022 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2022 to Dec 31, 2022
Signed
May 12, 2023
Return Version
2022v5.0
Gross Receipts
$629,526
Mission and Program Overview

Mission

To build awareness of the disease of hypophosphatasia by providing educational materials, a support network, a sharing of information regarding research and treatment options to people diagnosed with hypophosphatasia, their families, and to the treating doctors.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$671,084$659,309▼ $11,775
Cash and Non-Interest-Bearing Accounts$43,102$58,298▲ $15,196
Investments in Publicly Traded Securities-$1,206-
Total Assets$714,186$718,813▲ $4,627
Liabilities
Accounts Payable and Accrued Expenses$3,577$2,183▼ $1,394
Total Liabilities$3,577$2,183▼ $1,394
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$710,609$716,630▲ $6,021
Total Net Assets Fund Balance$710,609$716,630▲ $6,021
Total Liabilities and Net Assets / Fund Balance$714,186$718,813▲ $4,627
Compensation and Service Providers
Top Officer Pay53rd percentile

Board Members and Trustees

NameTitle
Deborah FowlerPresident
Adam Grenker EsqDirector
Dr Brenda ZieglerDirector
Heidi FloydSecretary
Michelle LabrunoTreasurer
Karen CarolonzaVice Preside
Revenue and Support

Revenue Composition

Contributions and Grants
$505,212
Program Service Revenue
$0
Investment Income
$4,573
Other Revenue
$68,100
All Other Contributions
$436,241
Change in Net Assets
$6,021
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$267,505
Salaries, Compensation, and Employee Benefits$236,804
Grants and Similar Amounts Paid$67,555
Professional Fundraising Fees$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$218,609--$218,609
Fees for Services Other$104,921--$104,921
Grants to Domestic Orgs$59,328--$59,328
Payroll Taxes$18,195--$18,195
Travel$15,381--$15,381
All Other Expenses$12,842--$12,842
Office Expenses$10,611--$10,611
Other Expenses$10,328--$10,328
Grants to Domestic Individuals$8,227--$8,227
Insurance$3,056--$3,056
Fees for Services Accounting$2,590--$2,590
Advertising$1,745--$1,745
Total Functional Expenses$571,864$0$0$571,864
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Ohio State University---$25,000
University of Michigan---$25,000
Hyman Phelps & Mcnamara---$7,328
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$119,741
Fundraising Direct Expenses$51,641
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Annual Golf Out$188,712$119,741$51,641$68,100
Total Events$188,712$119,741$51,641$68,100
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 11B

“No review was or will be conducted.”

Form 990, Page 6, Part VI, Line 12C

“The organization enforces its conflicts of interest policy by requiring all board members, officers, and employees to disclose any financial interest they or their family members have in any company that does business with the organization. This is a continuing obligation and is renewed annually for compliance.”

Form 990, Page 6, Part VI, Line 19

“No documents available to the public”

Filing and Contact Details

Filer

Filer Name
Soft Bones Incthe US
EIN
26-4619055
Phone
9083778700
Address
141 HAWKINS PLACE 267, BOONTON, NJ 07005

Signing Officer

Name
Deborah Fowler
Title
President
Phone
9734533093
Signed
2023-05-12
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Deborah Fowler
Voting Board Members
6
Independent Board Members
5
Employees
7

Preparer

Firm
Odell & Critchley Pc
Address
127 MAIN STREET, CHATHAM, NJ 07928
Preparer
E Michael Odell CPA
Phone
9733770805
Supplemental Narrative

Additional Explanations

FORM 990 - ORGANIZATION'S MISSION

“To build awareness of the disease of hypophosphatasia by providing educational materials, a support network, a sharing of information regarding research and treatment options to people diagnosed with hypophosphatasia, their families, and to the treating doctors.”

Form 990, Part IX, Line 11G

“Outside services 104,921 0 0”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0TO BUILD AWARENESS OF THE DISEASE OF HYPOPHOSPHATASIA BY PROVIDING EDUCATIONAL MATERIALS, A SUPPORT NETWORK, A SHARING OF INFORMATION REGARDING RESEARCH AND TREATMENT OPTIONS TO PEOPLE DIAGNOSED WITH HYPOPHOSPHATASIA, THEIR FAMILIES, AND TO THE TREATING DOCTORS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1NO REVIEW WAS OR WILL BE CONDUCTED.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2THE ORGANIZATION ENFORCES ITS CONFLICTS OF INTEREST POLICY BY REQUIRING ALL BOARD MEMBERS, OFFICERS, AND EMPLOYEES TO DISCLOSE ANY FINANCIAL INTEREST THEY OR THEIR FAMILY MEMBERS HAVE IN ANY COMPANY THAT DOES BUSINESS WITH THE ORGANIZATION. THIS IS A CONTINUING OBLIGATION AND IS RENEWED ANNUALLY FOR COMPLIANCE.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3NO DOCUMENTS AVAILABLE TO THE PUBLIC
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4OUTSIDE SERVICES 104,921 0 0
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990 - ORGANIZATION'S MISSION
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PAGE 6, PART VI, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PAGE 6, PART VI, LINE 12C
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990, PAGE 6, PART VI, LINE 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4FORM 990, PART IX, LINE 11G
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ReturnHeader/BuildTS02023-04-26 12:10:37Z
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ReturnHeader/BusinessOfficerGrp/PersonNm0DEBORAH FOWLER
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0PRESIDENT
ReturnHeader/BusinessOfficerGrp/PhoneNum09734533093
ReturnHeader/BusinessOfficerGrp/SignatureDt02023-05-12
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ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd007928
ReturnHeader/PreparerPersonGrp/PhoneNum09733770805
ReturnHeader/PreparerPersonGrp/PreparationDt02023-05-12
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0E MICHAEL ODELL CPA
ReturnHeader/ReturnTs02023-05-15T16:04:30-04:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/SigningOfficerGrp/PersonFullName/PersonFirstNm0DEBORAH
ReturnHeader/SigningOfficerGrp/PersonFullName/PersonLastNm0FOWLER
ReturnHeader/TaxPeriodBeginDt02022-01-01
ReturnHeader/TaxPeriodEndDt02022-12-31
ReturnHeader/TaxYr02022

Document Assets

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Filings

Displayed year

2022 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$718,813
Liabilities
$2,183
Net assets
$716,630
Revenue
$577,885
Expenses
$571,864
Net income
$6,021
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.82$0.40$5.42$5.27$5.12$0.14
2022Detailed filing. Detailed filing data is available for this year.$7.19$0.02$7.17$5.78$5.72$0.06
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$7.14$0.04$7.11$6.04$3.89$2.15
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$5.22$0.27$4.96$5.07$3.46$1.60
2019Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.37$0.02$3.35$4.43$3.41$1.02
2018Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.34$0.00$2.34$3.81$4.92$1.10
2017Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.44$0.00$3.44$2.18$3.21$1.03
2016Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.48$0.01$4.47$2.79$2.69$0.10
2015Detailed filing. Detailed filing data is available for this year.$4.37$0.00$4.37$3.49$2.59$0.90
2014Detailed filing. Detailed filing data is available for this year.$3.47$0.00$3.47$1.70$1.15$0.55
2013Detailed filing. Detailed filing data is available for this year.$2.92$2.92$1.36$1.05$0.31
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.62$0.00$2.62$1.41$0.76$0.65
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.96$0.00$1.96$1.34$0.73$0.61