Civic Intelligence

Hereditary Angioedema Association Inc.

990 • Fiscal year 2014 • EIN 25-1852548

Jan 01, 2014 to Dec 31, 2014 • Filed on Nov 15, 2015

Organization ProfileHAEA.ORG

View Organization Page

500 Ala Moana Blvd Suite 400Honolulu, HI 96813

(866) 580-8178

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

44th percentile

0.14x

Higher debt load relative to assets than 44% of similar nonprofits.

2014 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2014

Liabilities / Revenue

62nd percentile

0.32x

Higher debt load relative to revenue than 62% of similar nonprofits.

2014 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2014

Net Margin

21st percentile

-6.4%

Higher net margin than 21% of similar nonprofits.

2014 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2014

Top Officer Pay

73rd percentile

$179,604

Higher top officer pay than 73% of similar nonprofits.

Top officer pay equals 7.3% of source-year revenue.

2014 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2014

Asset Growth

74th percentile

12%

Faster asset growth than 74% of similar nonprofits.

2014 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2013 to 2014

Revenue Growth

9th percentile

-29%

Faster revenue growth than 9% of similar nonprofits.

2014 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2013 to 2014

Balance Sheet
Liabilities / Assets44th percentile

Assets

Up

$5,724,870

Up $600,761 (+12%) from 2013

Net Assets

Down

$4,928,659

Down $158,434 (-3.1%) from 2013

Liabilities

Up

$796,211

Up $759,195 (+2051%) from 2013

Revenue And Expenses
Liabilities / Revenue62nd percentileNet Margin21st percentile

Revenue

Down

$2,459,518

Down $999,847 (-29%) from 2013

Expenses

Down

$2,617,952

Down $48,402 (-1.8%) from 2013

Net Income

Down

-$158,434

Down $951,445 (-120%) from 2013

Historical Trend

Balance Sheet Trend

Asset Growth74th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$30M$20M$10M$0Assets 2010: $3,239,234Liabilities 2010: $0Net Assets 2010: $3,239,2342010Assets 2011: $4,905,503Liabilities 2011: $0Net Assets 2011: $4,905,5032011Assets 2012: $4,201,972Liabilities 2012: $0Net Assets 2012: $4,201,9722012Assets 2013: $5,124,109Liabilities 2013: $37,016Net Assets 2013: $5,087,0932013Assets 2014: $5,724,870Liabilities 2014: $796,211Net Assets 2014: $4,928,6592014Assets 2015: $6,266,333Liabilities 2015: $743,677Net Assets 2015: $5,522,6562015Assets 2016: $6,062,433Liabilities 2016: $2,000,421Net Assets 2016: $4,062,0122016Assets 2018: $4,652,710Liabilities 2018: $1,185,374Net Assets 2018: $3,467,3362018Assets 2019: $5,488,598Liabilities 2019: $1,153,566Net Assets 2019: $4,335,0322019Assets 2021: $9,129,787Liabilities 2021: $490,118Net Assets 2021: $8,639,6692021Assets 2022: $11,968,085Liabilities 2022: $161,707Net Assets 2022: $11,806,3782022Assets 2024: $21,869,496Liabilities 2024: $654,083Net Assets 2024: $21,215,4132024

Highlighted filing

2014

Assets$5,724,870
Liabilities$796,211
Net Assets$4,928,659
Open 2014 Filing

Operations Trend

Revenue Growth9th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$10M$5.0M$0-$5.0MExpenses 2010: $1,753,8262010Expenses 2011: $2,182,2862011Expenses 2012: $4,099,7932012Revenue 2013: $3,459,365Expenses 2013: $2,666,354Net Income 2013: $793,0112013Revenue 2014: $2,459,518Expenses 2014: $2,617,952Net Income 2014: -$158,4342014Revenue 2015: $5,409,526Expenses 2015: $4,815,529Net Income 2015: $593,9972015Revenue 2016: $3,830,386Expenses 2016: $5,291,030Net Income 2016: -$1,460,6442016Revenue 2018: $5,254,430Expenses 2018: $4,722,804Net Income 2018: $531,6262018Revenue 2019: $7,037,726Expenses 2019: $6,170,030Net Income 2019: $867,6962019Revenue 2021: $7,202,295Expenses 2021: $4,691,232Net Income 2021: $2,511,0632021Revenue 2022: $7,898,783Expenses 2022: $4,828,602Net Income 2022: $3,070,1812022Revenue 2024: $9,963,196Expenses 2024: $5,527,827Net Income 2024: $4,435,3692024

Highlighted filing

2014

Revenue$2,459,518
Expenses$2,617,952
Net Income-$158,434
Open 2014 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2014 to Dec 31, 2014
Signed
Nov 15, 2015
Return Version
2014v6.0
Gross Receipts
$2,459,518
Mission and Program Overview

Mission

To provide a variety of services to help patients cope with hereditary angioedema, and foster research, patient education, and access to and reimbursement for new therapies.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$3,779,521$4,835,900▲ $1,056,379
Cash and Non-Interest-Bearing Accounts$893,838$528,637▼ $365,201
Accounts Receivable$442,860$354,000▼ $88,860
Land, Buildings, and Equipment, Net$7,890$6,333▼ $1,557
Total Assets$5,124,109$5,724,870▲ $600,761
Liabilities
Deferred Revenue-$375,000-
Other Liabilities-$360,000-
Accounts Payable and Accrued Expenses$37,016$61,211▲ $24,195
Total Liabilities$37,016$796,211▲ $759,195
Net Assets / Fund Balance
Unrestricted Net Assets$5,087,093$4,928,659▼ $158,434
Total Net Assets Fund Balance$5,087,093$4,928,659▼ $158,434
Total Liabilities and Net Assets / Fund Balance$5,124,109$5,724,870▲ $600,761

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$6,333$21,261$27,594
Compensation and Service Providers
Top Officer Pay73rd percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Anthony CastaldoPresidentFT$172,600$7,004$179,604
Janet LongExecutive Vice PresidentFT$164,800$6,592$171,392
Donna DavisAsst VP Patient & ClinicalFT$124,979$4,999$129,978
Darla WilliamsonPatient ServicesFT$100,414$4,016$104,430
Larry SalusFinancial DirectorPT$36,123-$36,123

Board Members and Trustees

NameTitle
Christopher WhalenDirector
Dr Eric PhillipsDirector
Herick Balle BoysenDirector
Karen BairdDirector
Revenue and Support

Revenue Composition

Contributions and Grants
$2,445,918
Program Service Revenue
$0
Investment Income
$13,600
Other Revenue
$0
All Other Contributions
$2,445,918
Change in Net Assets
$-158,434

Audited Revenue Reconciliation

Revenue per Audited Statements
$2,459,518
Total Revenue per Audited Statements
$2,459,518
Total Revenue per Form 990
$2,459,518
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$1,314,651
Other Expenses$1,183,301
Grants and Similar Amounts Paid$120,000
Professional Fundraising Fees$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$758,746$20,474-$779,220
Other Expenses$372,101$2,586-$372,101
Current Officers, Directors, Trustees, and Key Employees$308,578$61,422-$370,000
Travel$155,259$8,172-$163,431
Grants to Domestic Orgs$120,000--$120,000
Conferences and Meetings$93,265--$93,265
Payroll Taxes$83,107$6,377-$89,484
Advertising$78,857--$78,857
Other Employee Benefits$70,535$5,412-$75,947
Fees for Services Other$46,681$23,500-$70,181
All Other Expenses$20,334$8,214-$28,548
Information Technology$21,456$1,130-$22,586
Office Expenses-$20,371-$20,371
Insurance$5,376$597-$5,973
Depreciation Depletion$3,307$584-$3,891
Occupancy$1,768$312-$2,080
Fees for Services Legal-$950-$950
Total Functional Expenses$2,457,851$160,101$0$2,617,952

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$2,617,952
Total Expenses per Audited Statements$2,617,952
Total Expenses per Form 990$2,617,952
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Uc San Diego FoundationLa Jolla, CA501c3Research & Medicine$120,000
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Pledge to Uc San Diego$360,000
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
No
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990 governing body review Part VI line 11

“The president and exec. Vp are assigned responsibility for review and approval of the federal form 990 with the support of the directors. The board of directors affirms the filing provided.”

Conflict of interest policy compliance Part VI line 12C

“The board of directors provide self-declarations of possible conflicts of interest as part of the annual meeting responsibilites. Key employees also provide an annual self-declaration. Potential conflicts identified are reviewed and approved if appropriate as a part of the board of directors routine responsibilties.”

CEO executive director top management comp Part VI line 15A

“The president, with support of the board of directors, performs an informal review of key manager salaries for comparable responsibilties of like-size and type organizations with recognition of the national and international influence of the services provided. Discussions and conclusions are documented as part of the recording of the minutes of the board of directors including their formal approval of the adjusted compensation and benefits.”

Other officer or key employee compensation Part VI line 15B

“The president, with support of the board of directors, performs an informal review of key manager salaries for comparable responsibilties of like-size and type organizations with recognition of the national and international influence of the services provided. Discussions and conclusions are documented as part of the recording of the minutes of the board of directors including their formal approval of the adjusted compensation and benefits.”

Governing documents etc available to public Part VI line 19

“The organization makes all federal information filings available upon request. Various companies make the federal filings available via the internet.”

Filing and Contact Details

Filer

Filer Name
Hereditary Angioedema Association Inc
EIN
25-1852548
Address
500 ALA MOANA BLVD SUITE 400, Honolulu, HI 96813

Signing Officer

Name
Janet Long
Title
Executive Vice
Phone
8665808178
Signed
2015-11-15
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Larry Salus
Formed
2005
Legal Domicile
Hi
Voting Board Members
6
Independent Board Members
3
Employees
16
Volunteers
600

Preparer

Firm
Allan Smith CPA
Address
Two Cabot Place Suite 8, Stoughton, MA 02072
Preparer
Allan Smith
Phone
7742065553
Supplemental Narrative

Additional Explanations

Amended return infomation

“The principal officer on page 1 of the return was listed in error. A correction was made to list the correct principal officer.”

Financial Statement Notes

Footnote for uncertain tax position under FIN 48 (Part X)

“The Organization is generally exempt from federal income taxes under Section 501(c)(3) of the Internal Revenue Code and has been determined not to be a private foundation. The Organization is also exempt from income tax in the states in which it operates. Therefore, no provision for income taxes has been made in the accompanying financial statements. Contributions to the Organization qualify for the fifty percent (50%) charitable contribution deduction. The Organization will file not-for-profit tax returns in the U.S. federal jurisdiction and the respective states, where they operate and solicit funds. The Internal Revenue Service (IRS) and the various states have not requested examination of open tax years of 2013, 2012 and 2011. The various states of operation typically have statutes of limitations of three (3) years. The OrganizationS U.S. federal and various state income tax returns prior to December 31, 2011 are closed (generally). At December 31, 2014, the Organization believes that it has no significant uncertain tax positions within any of its open tax years.”

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IRS990/OtherEmployeeBenefitsGrp/TotalAmt075947
IRS990/OtherExpensesGrp/Desc0COMMUNICATIONS
IRS990/OtherExpensesGrp/Desc1ADVOCACY EVENTS
IRS990/OtherExpensesGrp/Desc2PATIENT REGISTRY
IRS990/OtherExpensesGrp/Desc3UNIVERSITY RESEARCH
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IRS990/OtherExpensesGrp/ProgramServicesAmt12016
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IRS990/OtherExpensesGrp/TotalAmt12016
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IRS990/OtherSalariesAndWagesGrp/TotalAmt0779220
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IRS990/PrincipalOfficerNm0LARRY SALUS
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IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt0IN ACCORDANCE WITH A BOARD OF DIRECTORS-ENDORSED PLAN (AND ASSOCIATED OPERATIONAL PROCEDURES) THE HAEA CONTINUOUSLY SOLICTS BOARD PUBLIC SUPPORT FOR ITS LIFE SAVING MISSION. GIVEN THE FACT THAT HAE IS A MICRO-ORPHAN DISEASE WITH AN EXTREMELY SMALL NUMBER OF PATIENTS RESIDING IN THE UNITED STATES, THE TARGET POPULATION FOR SOLICITING FINANCIAL SUPPORT IS EXCEPTIONALLY SMALL. NOTWITHSTANDING THIS INHERENT LIMITATION, THE HAEA RECEIVES A SURPRISINGLY LARGE PERCENTAGE OF ITS FUNDING FROM PUBLIC SOURCES. IT IS IMPORTANT TO NOTE THAT THE HAEAS DIVERSE AND SOPHISTICATED BOARD OF DIRECTORS IS CONSTANTLY SEARCHING FOR INNOVATIVE APPROACHES TO INCREASING GENERAL PUBLIC SUPPORT FOR THE HAEAS VITAL, LIFE SAVING MISSION. INDEED, DEATH ASSOCIATED WITH AN HAE ATTACK IS COMPLETELY PREVENTABLE, AND THE HAEA PROVIDES THE PATIENT COMMUNITY WITH 24 HOUR AVAILABILITY. AS A RESULT, A TRAINED HAEA STAFF MEMBER IS ALWAYS AVAILABLE TO INTERVENE DURING EMERGENCIES AND PROVIDE PATIENTS AND PHYSICIANS WITH THE INFORMATION REQUIRED TO PREVENT DEATH AND ENSURE A POSITIVE OUTCOME. THE HAEA ALSO RELIES HEAVILY ON PUBLIC SUPPORT IN DEVELOPING ITS SCIENTIFIC PATIENT REGISTRY. THE REGISTRY IS DESIGNED TO PROVIDE RESEARCHERS WITH THE DATA NEEDED TO UNLOCK SOME OF THE MEDICAL MYSTERIES THAT WILL LEAD TO BETTER TREATMENTS AND ULTIMATELY A CURE FOR THE DISEASE. DESPITE THE SMALL NUMBER OF PATIENTS IN THE HAE POPULATION, THE HAEA HAS BECOME A HIGHLY EFFECTIVE RARE DISEASE PATIENT ADVOCACY ORGANIZATION THAT IS DIRECTLY RESPONSIBLE FOR SAVING COUNTLESS LIVES YEAR IN AND YEAR OUT. THE HAE SUCCESS IS DUE IN LARGE PART TO THE BOARD OF DIRECTORS AND SENIOR MANAGEMENTS COMMITMENT TO FOCUSING AVAILABLE RESOURCES ON ACTIVITIES AND PROGRAMS THAT ARE OF MAXIMUM BENEFIT TO THE HAE PATIENT POPULATION. IN ADDITION TO PROVIDING PATIENTS WITH 24 HOUR ASSISTANCE, THE HAEA ALSO, AMONG OTHER THINGS: DESIGNS AND DISSEMINATES ONGOING PATIENT/PHYSICIAN EDUCATION PROGRAMS THROUGH THE PRINT AND BROADCAST MEDIA; OFFERS ASSISTANCE TO PATIENTS WHO NEED GUIDANCE ON NAVIGATING THE COMPLEXITIES OF OBTAINING INSURANCE COVERAGE; AND SPONSORS PATIENT CONFERENCES THAT FEATURE WORLD CLASS PHYSICIAN/RESEARCHERS WHO PROVIDE INSIGHT INTO HOW PATIENTS CAN DEAL WITH POTENTIALLY FATAL EMERGENCY SITUATIONS AND EMPOWER THEMSELVES TO CHOOSE A TREATMENT REGIMEN THAT WILL INCREASE QUALITY OF LIFE.
IRS990ScheduleA/Form990ScheduleAPartVIGrp/FormAndLineReferenceDesc010 Facts and Circumstances Test Part II line 17a or 17b
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt02445918
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt03453512
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt03492068
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt03834079
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt02089972
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt015315549
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt013600
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt012119
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt014961
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt014476
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt013678
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt068834
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.25510
IRS990ScheduleA/PublicSupportPY170Pct00.11200
IRS990ScheduleA/PublicSupportTotal170Amt03924721
IRS990ScheduleA/SubstantialContributorsTotAmt011390828
IRS990ScheduleA/TenPctFactsCrcmstncsTestCYInd0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt02445918
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt03453512
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt03492068
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt03834079
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt02089972
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt015315549
IRS990ScheduleA/TotalSupportAmt015384383
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd0true
IRS990ScheduleC/DirectContactLegislatorsInd0false
IRS990ScheduleC/Form4720FiledSection4955TaxInd0false
IRS990ScheduleC/GrantsOtherOrganizationsInd0false
IRS990ScheduleC/MailingsMembersInd0false
IRS990ScheduleC/MediaAdvertisementsInd0false
IRS990ScheduleC/NotDescribedSection501c3Ind0false
IRS990ScheduleC/OtherActivitiesInd0false
IRS990ScheduleC/PaidStaffOrManagementInd0false
IRS990ScheduleC/PublicationsOrBroadcastInd0false
IRS990ScheduleC/RalliesDemonstrationsInd0false
IRS990ScheduleC/SupplementalInformationDetail/ExplanationTxt0THE ORGANIZATION WORKS TOWARDS INCREASING AWARENESS OF THE HEREDITARY ANGIOEDEMA DISEASE THROUGH EDUCATION AND ADVOCACY IN SUPPORT OF EXPANDED RESEARCH, PATIENT EDUCATION AND ACCESS TO AND REIMBURSEMENT FOR NEW THERAPIES. POLITICAL ADVOCACY EFFORTS ARE CENTERED AROUND THIS MISSION.
IRS990ScheduleC/SupplementalInformationDetail/FormAndLineReferenceDesc0Direct and indirect political campaign activities (Part I-A, line 1)
IRS990ScheduleC/VolunteersInd0false
IRS990ScheduleD/EquipmentGrp/BookValueAmt06333
IRS990ScheduleD/EquipmentGrp/DepreciationAmt021261
IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt027594
IRS990ScheduleD/ExpensesSubtotalAmt02617952
IRS990ScheduleD/FootnoteTextInd0X
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt0360000
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc0PLEDGE TO UC SAN DIEGO
IRS990ScheduleD/RevenueSubtotalAmt02459518
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0The Organization is generally exempt from federal income taxes under Section 501(c)(3) of the Internal Revenue Code and has been determined not to be a private foundation. The Organization is also exempt from income tax in the states in which it operates. Therefore, no provision for income taxes has been made in the accompanying financial statements. Contributions to the Organization qualify for the fifty percent (50%) charitable contribution deduction. The Organization will file not-for-profit tax returns in the U.S. federal jurisdiction and the respective states, where they operate and solicit funds. The Internal Revenue Service (IRS) and the various states have not requested examination of open tax years of 2013, 2012 and 2011. The various states of operation typically have statutes of limitations of three (3) years. The OrganizationS U.S. federal and various state income tax returns prior to December 31, 2011 are closed (generally). At December 31, 2014, the Organization believes that it has no significant uncertain tax positions within any of its open tax years.
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0Footnote for uncertain tax position under FIN 48 (Part X)
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IRS990ScheduleD/TotalExpensesPerForm990Amt02617952
IRS990ScheduleD/TotalLiabilityAmt0360000
IRS990ScheduleD/TotalRevenuePerForm990Amt02459518
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt02459518
IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt02617952
IRS990ScheduleI/GrantRecordsMaintainedInd0true
IRS990ScheduleI/RecipientTable/CashGrantAmt0120000
IRS990ScheduleI/RecipientTable/IRCSectionDesc0501C3
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0RESEARCH & MEDICINE
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0UC SAN DIEGO FOUNDATION
IRS990ScheduleI/RecipientTable/RecipientEIN0952872494
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt09500 GILMAN DRIVE SUITE 0940
IRS990ScheduleI/RecipientTable/USAddress/CityNm0La Jolla
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0CA
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd092093
IRS990ScheduleI/RecipientTable/ValuationMethodUsedDesc0BOOK
IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt0THE GRANT IS AWARDED TO THE INSTITUTION WHOSE PRINCIPAL INVESTIGATOR IS CONSIDERED A LEADING EXPERT IN THE RESEARCH FOR A CURE FOR HEREDITARY ANGIOEDEMA.
IRS990ScheduleI/SupplementalInformationDetail/FormAndLineReferenceDesc0Monitoring procedures (Part I, line 2)
IRS990ScheduleI/Total501c3OrgCnt01
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IRS990ScheduleJ/BoardOrCommitteeApprovalInd0X
IRS990ScheduleJ/CompBasedOnRevenueOfFlngOrgInd0false
IRS990ScheduleJ/CompBsdNetEarnsFlngOrgInd0false
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IRS990ScheduleJ/CompBsdOnRevRelatedOrgsInd0false
IRS990ScheduleJ/CompensationSurveyInd0X
IRS990ScheduleJ/EquityBasedCompArrngmInd0false
IRS990ScheduleJ/Form990OfOtherOrganizationsInd0X
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IRS990/ScheduleJRequiredInd0true
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IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/BaseCompensationFilingOrgAmt1164800
IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/NontaxableBenefitsFilingOrgAmt07004
IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/NontaxableBenefitsFilingOrgAmt16592
IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/PersonNm0ANTHONY CASTALDO
IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/PersonNm1JANET LONG
IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/TitleTxt0PRESIDENT
IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/TitleTxt1EXECUTIVE VICE PRESIDENT
IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/TotalCompensationFilingOrgAmt0179604
IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/TotalCompensationFilingOrgAmt1171392
IRS990ScheduleJ/SeverancePaymentInd0false
IRS990ScheduleJ/SupplementalNonqualRtrPlanInd0false
IRS990/ScheduleORequiredInd0true
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0THE PRINCIPAL OFFICER ON PAGE 1 OF THE RETURN WAS LISTED IN ERROR. A CORRECTION WAS MADE TO LIST THE CORRECT PRINCIPAL OFFICER.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1THE PRESIDENT AND EXEC. VP ARE ASSIGNED RESPONSIBILITY FOR REVIEW AND APPROVAL OF THE FEDERAL FORM 990 WITH THE SUPPORT OF THE DIRECTORS. THE BOARD OF DIRECTORS AFFIRMS THE FILING PROVIDED.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2THE BOARD OF DIRECTORS PROVIDE SELF-DECLARATIONS OF POSSIBLE CONFLICTS OF INTEREST AS PART OF THE ANNUAL MEETING RESPONSIBILITES. KEY EMPLOYEES ALSO PROVIDE AN ANNUAL SELF-DECLARATION. POTENTIAL CONFLICTS IDENTIFIED ARE REVIEWED AND APPROVED IF APPROPRIATE AS A PART OF THE BOARD OF DIRECTORS ROUTINE RESPONSIBILTIES.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3THE PRESIDENT, WITH SUPPORT OF THE BOARD OF DIRECTORS, PERFORMS AN INFORMAL REVIEW OF KEY MANAGER SALARIES FOR COMPARABLE RESPONSIBILTIES OF LIKE-SIZE AND TYPE ORGANIZATIONS WITH RECOGNITION OF THE NATIONAL AND INTERNATIONAL INFLUENCE OF THE SERVICES PROVIDED. DISCUSSIONS AND CONCLUSIONS ARE DOCUMENTED AS PART OF THE RECORDING OF THE MINUTES OF THE BOARD OF DIRECTORS INCLUDING THEIR FORMAL APPROVAL OF THE ADJUSTED COMPENSATION AND BENEFITS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4THE PRESIDENT, WITH SUPPORT OF THE BOARD OF DIRECTORS, PERFORMS AN INFORMAL REVIEW OF KEY MANAGER SALARIES FOR COMPARABLE RESPONSIBILTIES OF LIKE-SIZE AND TYPE ORGANIZATIONS WITH RECOGNITION OF THE NATIONAL AND INTERNATIONAL INFLUENCE OF THE SERVICES PROVIDED. DISCUSSIONS AND CONCLUSIONS ARE DOCUMENTED AS PART OF THE RECORDING OF THE MINUTES OF THE BOARD OF DIRECTORS INCLUDING THEIR FORMAL APPROVAL OF THE ADJUSTED COMPENSATION AND BENEFITS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5THE ORGANIZATION MAKES ALL FEDERAL INFORMATION FILINGS AVAILABLE UPON REQUEST. VARIOUS COMPANIES MAKE THE FEDERAL FILINGS AVAILABLE VIA THE INTERNET.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Amended return infomation
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990 governing body review Part VI line 11
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Conflict of interest policy compliance Part VI line 12c
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3CEO executive director top management comp Part VI line 15a
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4Other officer or key employee compensation Part VI line 15b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5Governing documents etc available to public Part VI line 19
IRS990/SchoolOperatingInd0false
IRS990/SignificantChangeInd0false
IRS990/SignificantNewProgramSrvcInd0false
IRS990/StatesWhereCopyOfReturnIsFldCd0IL
IRS990/SubjectToProxyTaxInd0false

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2014 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$5,724,870
Liabilities
$796,211
Net assets
$4,928,659
Revenue
$2,459,518
Expenses
$2,617,952
Net income
-$158,434
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$21.9$0.65$21.2$9.96$5.53$4.44
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$12.0$0.16$11.8$7.90$4.83$3.07
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$9.13$0.49$8.64$7.20$4.69$2.51
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$5.49$1.15$4.34$7.04$6.17$0.87
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$4.65$1.19$3.47$5.25$4.72$0.53
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$6.06$2.00$4.06$3.83$5.29$1.46
2015Detailed filing. Detailed filing data is available for this year.$6.27$0.74$5.52$5.41$4.82$0.59
2014Detailed filing. Detailed filing data is available for this year.$5.72$0.80$4.93$2.46$2.62$0.16
2013Detailed filing. Detailed filing data is available for this year.$5.12$0.04$5.09$3.46$2.67$0.79
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.20$0.00$4.20$4.10
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.91$0.00$4.91$2.18
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.24$0.00$3.24$1.75