Liabilities / Assets
24th percentile
Higher debt load relative to assets than 24% of similar nonprofits.
Hereditary Angioedema Association Inc
EIN 25-1852548 • 501(c)3 • Fairfax, VA
Profile
To provide a variety of services to help patients cope with hereditary angioedema, and foster research, patient education, and access to and reimbursement for new therapies.
Siviq Scores
Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.
0.03x
Liabilities / Revenue
24th percentile
Higher debt load relative to revenue than 24% of similar nonprofits.
Net Margin
87th percentile
Higher net margin than 87% of similar nonprofits.
Top Officer Pay
85th percentile
Higher top officer pay than 85% of similar nonprofits.
Top officer pay equals 2.9% of source-year revenue.
Asset Growth
89th percentile
Faster asset growth than 89% of similar nonprofits.
Revenue Growth
61st percentile
Faster revenue growth than 61% of similar nonprofits.
Balance Sheet
Assets
Up$21,869,496
Up $9,901,411 (+83%) from 2022
Liabilities
Up$654,083
Up $492,376 (+304%) from 2022
Net Assets
Up$21,215,413
Up $9,409,035 (+80%) from 2022
Revenue
Up$9,963,196
Up $2,064,413 (+26%) from 2022
Expenses
Up$5,527,827
Up $699,225 (+14%) from 2022
Net Income
Up$4,435,369
Up $1,365,188 (+44%) from 2022
Trend Graphs
Filings
Most recent year
2024 • Form 990XML pending. An XML filing is linked for this year, but detailed extraction is still pending.
- Assets
- $21,869,496
- Liabilities
- $654,083
- Net assets
- $21,215,413
- Revenue
- $9,963,196
- Expenses
- $5,527,827
- Net income
- $4,435,369
Latest Detailed Filing
The latest 2024 filing currently has linked XML that has not been fully parsed yet. Showing the latest detailed filing from 2022 below.
Jump To
Filing Snapshot
- Filing Period
- Jan 1, 2022 to Dec 31, 2022
- Signed
- Nov 14, 2023
- Return Version
- 2022v5.0
- Gross Receipts
- $7,898,783
Mission and Program Overview
Mission
To provide a variety of services to help patients cope with hereditary angioedema, and foster research, patient education, and access to and reimbursement for new therapies.
SEE SCHEDULE O COMMENT.
Balance Sheet Detail
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Investments in Publicly Traded Securities | $994,844 | $8,740,446 | ▲ $7,745,602 |
| Savings and Temporary Cash Investments | $8,134,943 | $3,227,639 | ▼ $4,907,304 |
| Total Assets | $9,129,787 | $11,968,085 | ▲ $2,838,298 |
| Liabilities | |||
| Other Liabilities | $354,935 | - | - |
| Accounts Payable and Accrued Expenses | $135,183 | $161,707 | ▲ $26,524 |
| Total Liabilities | $490,118 | $161,707 | ▼ $328,411 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $7,372,665 | $11,087,539 | ▲ $3,714,874 |
| Net Assets With Donor Restrictions | $1,267,004 | $718,839 | ▼ $548,165 |
| Total Net Assets Fund Balance | $8,639,669 | $11,806,378 | ▲ $3,166,709 |
| Total Liabilities and Net Assets / Fund Balance | $9,129,787 | $11,968,085 | ▲ $2,838,298 |
Asset Categories
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Equipment | - | $27,594 | $27,594 |
Endowment Activity
| Period | Beginning | Contrib. | Gain/Loss | Other Uses | End |
|---|---|---|---|---|---|
| 2022 | - | $8,737,455 | ▲ $2,991 | - | $8,740,446 |
Compensation and Service Providers
Employees
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Michelle Cuevas | Senior Executive Vpcoo | FT | $227,149 | $227,149 |
| Anthony Castaldo | President | FT | $224,861 | $224,861 |
| Leigh Farrar | Executive Vpcfo | FT | $152,278 | $152,278 |
| Christine Selva | Senior Director Health & Rese | FT | $147,719 | $147,719 |
| Lois Perry | Retired Director of Health Se | FT | $138,425 | $138,425 |
| David Mallory | Community Engagement Manager | FT | $126,548 | $126,548 |
| Larry Salus | Chief Compliance Officer | PT | $67,712 | $67,712 |
Board Members and Trustees
| Name | Title |
|---|---|
| Dr Eric Phillips | Director |
| Henrik Balle Boysen | Director |
| Karen Baird | Director |
Revenue and Support
Revenue Composition
- Contributions and Grants
- $7,891,572
- Program Service Revenue
- $0
- Investment Income
- $3,029
- Other Revenue
- $4,182
- All Other Contributions
- $7,891,572
- Change in Net Assets
- $3,070,181
Audited Revenue Reconciliation
- Revenue per Audited Statements
- $7,898,783
- Revenue Not Reported on Form 990
- $96,528
- Total Revenue per Audited Statements
- $7,995,311
- Total Revenue per Form 990
- $7,898,783
Expenses and Functional Allocation
Major Expense Lines
| Line Item | Amount |
|---|---|
| Salaries, Compensation, and Employee Benefits | $2,342,163 |
| Other Expenses | $1,520,559 |
| Grants and Similar Amounts Paid | $965,880 |
| Total Fundraising Expense | $32,549 |
| Professional Fundraising Fees | $0 |
Functional Expense Allocation
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $1,380,454 | $5,572 | $6,965 | $1,392,991 |
| Grants to Domestic Orgs | $965,880 | - | - | $965,880 |
| Current Officers, Directors, Trustees, and Key Employees | $556,134 | $97,150 | $18,716 | $672,000 |
| Travel | $183,595 | $484 | - | $184,079 |
| Payroll Taxes | $139,795 | $7,415 | $1,854 | $149,064 |
| Other Expenses | $117,520 | $271 | $54 | $117,520 |
| Advertising | $116,024 | - | - | $116,024 |
| Pension Plan Contributions | $109,004 | $3,042 | $1,014 | $113,060 |
| Office Expenses | $23,142 | $47,751 | $716 | $71,609 |
| All Other Expenses | $45,217 | $8,895 | $871 | $54,983 |
| Fees for Services Other | - | $50,958 | - | $50,958 |
| Fees for Services Accounting | - | $22,327 | - | $22,327 |
| Occupancy | $19,551 | $1,040 | $208 | $20,799 |
| Insurance | $14,699 | $4,395 | $439 | $19,533 |
| Other Employee Benefits | $12,111 | $2,203 | $734 | $15,048 |
| Fees for Services Legal | - | $1,350 | - | $1,350 |
| Total Functional Expenses | $4,538,311 | $257,742 | $32,549 | $4,828,602 |
Audited Expense Reconciliation
| Line Item | Amount |
|---|---|
| Expenses per Audited Statements | $4,828,602 |
| Total Expenses per Audited Statements | $4,828,602 |
| Total Expenses per Form 990 | $4,828,602 |
International Activity
Grant and Assistance Recipients
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Uc San Diego Foundation | La Jolla, CA | 501c3 | Research & Medicine | $354,935 |
Fundraising, Events, and Gaming
- Fundraising activities
- No
- Gaming activities
- No
- Professional fundraiser used
- No
Fundraising and Gaming Totals
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
Political and Lobbying Activity
- Political campaign activity
- No
- Lobbying activity
- No
- Subject to proxy tax
- No
Governance and Compliance
Governance Checklist
- Compiled or reviewed by an accountant
- No
- Annual disclosure for covered persons
- Yes
- Audit committee
- Yes
- Backup withholding compliance
- Yes
- Business relationship with 35% controlled entity
- No
- Business relationship with family members
- No
- Business relationship with organization members
- No
- Material changes to governing documents
- No
- Compensation from other sources disclosed
- No
- CEO compensation reviewed
- Yes
- Other officer compensation reviewed
- Yes
- Conflict-of-interest policy
- Yes
- Audited financial statements prepared
- No
- Key decisions subject to board approval
- No
- Management duties delegated
- No
Governance Explanations
Officer directors etc family relationship Part VI line 2
“The president of the board of directors and chief executive officer is related to the senior vice president/cfo. The board of directors reviewed and approved this promotion in advance and evaluates this relationship on an annual basis to affirm its continued appropriateness.”
Form 990 governing body review Part VI line 11
“The president and chief executive officer and senior vice president/cfo are assigned responsibility for review and approval of the federal form 990. The board of directors affirms the filing provided.”
Conflict of interest policy compliance Part VI line 12C
“The board of directors provide self-declarations of possible conflicts of interest as part of the annual meeting responsibilities. Key employees also provide an annual self-declaration. Potential conflicts identified are reviewed and approved if appropriate as part of the board of directors routine responsibilities.”
CEO executive director top management comp Part VI line 15A
“The board of directors performs an informal review of the president and chief executive officers salary for comparable responsibilities of like-size and type organizations with recognition of the national and international infuence of the services provided. Discussions and conclusions are documented as part of the recording of the minutes of the board of directors including the formal approval of the adjusted compensation and benefit.”
Other officer or key employee compensation Part VI line 15B
“The president and chief executive officer, with support of the board of directors, performs an informal review of key manager salaries for comparable responsibilities of like-sized and type organizations with recognition of the national and international influence of the services provided. Discussions and conclusions are documented as part of the recording of the minutes of the board of directors including their formal approval of the adjusted compensation and benefit.”
Governing documents etc available to public Part VI line 19
“The organization makes all federal information filings available upon request. Various companies make the federal filings available via the internet.”
Filing and Contact Details
Filer
- Filer Name
- Hereditary Angioedema Association Inc
- EIN
- 25-1852548
- Address
- 10560 MAIN STREET STE PS40, FAIRFAX, VA 22030
Signing Officer
- Name
- Leigh Farrar
- Title
- Evp & CFO
- Phone
- 8665808178
- Signed
- 2023-11-14
- Discuss with paid preparer
- Yes
Organization Details
- Principal Officer
- Anthony Castaldo
- Formed
- 2005
- Legal Domicile
- Va
- Voting Board Members
- 5
- Independent Board Members
- 3
- Employees
- 21
- Volunteers
- 1,000
Preparer
- Firm
- Allan Smith and Company CPAs PC
- Address
- Two Cabot Place Suite 8, Stoughton, MA 02072
- Preparer
- Allan Smith CPA
- Phone
- 7742065553
Supplemental Narrative
Additional Explanations
List of other expenses Part IX line 24E
“The organization holds a bi-annual patient summit intended to bring together individuals with hereditary angioedema, experts in the clinical, research and academia fields, hereditary angiodema association staff as well as those pharmaceutical companies that offer successful therapies (and hopeful future therapies) intended to minimize the impact of symptoms of hereditary angioedema.”
General explanation attachment
“Part iii: briefly describe the organizations mission:the hereditary angeoedema associations (haea) overall goal is to be the force behind (1) thwarting the potentially fatal and debilitating nature of hae, and (2) enabling our patient community to achieve life long health. We are a national patient advocacy association that focuses on: increasing hae awareness and education; driving progress in clinical care; helping patients gain access to and reimbursement for optimal treatment; maintaining a strong presence in the health legislative and regulatory environments; and fostering molecular level and translational research that features searching for a cure.”
Raw XML AppendixShowing 400 of 488 raw XML fields
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
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| IRS990/Desc | 0 | THE HAE ASSOCIATIONS OVERALL OBJECTIVE IS TO SAVE LIVES AND RAISE THE QUALITY OF LIFE FOR PATIENTS WITH THE RARE, DEBILITATING, AND POTENTIALLY FATAL RARE DISEASE HEREDITARY ANGEODEMA. WE PROVIDE PATIENTS AND PHYSICIANS WITH ESSENTIAL, AUTHORITATIVE INFORMATION AIMED AT INCREASING DIAGNOSIS RATES AND HELPING PATIENTS FIND AN APPROPRIATE TREATMENT. WE OFFER AN ARRAY OF PROGRAMS, SERVICES, AND ACTIVITIES THAT INCLUDE CONTINUING MEDICAL EDUCATION, IN PERSON AND WEB BASED SEMINARS, PATIENT AND SCIENTIFIC CONFERENCES, SUPPORT GROUPS, AND INDIVIDUAL COUNSELING. THE HAEA WEBSITE AND EXTENSIVE SOCIAL MEDIA PRESENSE ENHANCES OUR ABILITY TO REACH AND DISSEMINATE INFORMATION TO THE PATIENT AND PHYSICIAN COMMUNITIES. WE ARE STAUNCH ADVOCATES FOR (1) PATIENT ACCESS TO AND SUFFICIENT INSURANCE REIMBURSEMENT FOR CURRENTLY AVAILABLE THERAPIES, AND (2) RESEARCH DIRECTED TOWARDS HELPING PATIENTS IMPROVE THEIR QUALITY OF LIFE AND, ULTIMATELY, FINDING A CURE. THE HAEA ALSO CONDUCTS NATIONAL PATIENT AND PHYSICIAN MEETINGS, AND OFFERS A VARIETY OF SERVICES TO INDIVIDUALS AND FAMILIES THAT INCLUDE PHYSICIAN AND CLINICAL TRIAL REFERRALS AND ASSISTANCE IN DEALING WITH DISEASE-RELATED EMERGENCIES. |
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| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 5 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 965880 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 965880 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | true |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 7898783 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IndependentAuditFinclStmtInd | 0 | true |
| IRS990/IndependentVotingMemberCnt | 0 | 3 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 6 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartIXInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 439 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 4395 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 14699 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 19533 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 3029 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 3029 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 994844 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 8740446 |
| IRS990/IRPDocumentCnt | 0 | 15 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 27594 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 27594 |
| IRS990/LegalDomicileStateCd | 0 | VA |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | SEE SCHEDULE O COMMENT. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 8639669 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 11806378 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | 96528 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 7372665 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 11087539 |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 208 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 1040 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 19551 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 20799 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 716 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 47751 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 23142 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 71609 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 734 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 2203 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 12111 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 15048 |
| IRS990/OtherExpensesGrp/Desc | 0 | STAFF DEVELOPMENT AND TRAINI |
| IRS990/OtherExpensesGrp/Desc | 1 | ADVOCACY EVENTS |
| IRS990/OtherExpensesGrp/Desc | 2 | WEB PRESENCE AND OUTREACH |
| IRS990/OtherExpensesGrp/Desc | 3 | PATIENT SURVEY AND SUPPORTS |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 978 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 54 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 4889 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 271 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 91911 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 758164 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 5110 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 3 | 117520 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 97778 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 758164 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 5435 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 117520 |
| IRS990/OtherLiabilitiesGrp/BOYAmt | 0 | 354935 |
| IRS990/OtherRevenueMiscGrp/BusinessCd | 0 | 541900 |
| IRS990/OtherRevenueMiscGrp/Desc | 0 | OTHER INCOME |
| IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt | 0 | 4182 |
| IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt | 0 | 4182 |
| IRS990/OtherRevenueTotalAmt | 0 | 4182 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 6965 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 5572 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 1380454 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 1392991 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 1854 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 7415 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 139795 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 149064 |
| IRS990/PensionPlanContributionsGrp/FundraisingAmt | 0 | 1014 |
| IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt | 0 | 3042 |
| IRS990/PensionPlanContributionsGrp/ProgramServicesAmt | 0 | 109004 |
| IRS990/PensionPlanContributionsGrp/TotalAmt | 0 | 113060 |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrincipalOfficerNm | 0 | ANTHONY CASTALDO |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 7197362 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 882964 |
| IRS990/PYInvestmentIncomeAmt | 0 | 4536 |
| IRS990/PYOtherExpensesAmt | 0 | 1428329 |
| IRS990/PYOtherRevenueAmt | 0 | 397 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 2511063 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 2379939 |
| IRS990/PYTotalExpensesAmt | 0 | 4691232 |
| IRS990/PYTotalRevenueAmt | 0 | 7202295 |
| IRS990/QuidProQuoContributionsInd | 0 | false |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | false |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 3070181 |
| IRS990/RegularMonitoringEnfrcInd | 0 | true |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | false |
| IRS990/ReportLandBuildingEquipmentInd | 0 | true |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990/RevenueAmt | 0 | 7891572 |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 8134943 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 3227639 |
| IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt | 0 | IN ACCORDANCE WITH THE BOARD OF DIRECTORS ENDORSED MANDATE (AND ASSOCIATED OPERATIONAL PROCEDURES), THE HAEA CONTINUOUSLY SOLICITS BROAD PUBLIC SUPPORT FOR ITS LIFE-SAVING AND LIFE-GIVING MISSION. NOTWITHSTANDING THE FACT THAT HAE IS AN ULTRA-ORPHAN RARE DISEASE, THE HAEA RECEIVES A SURPRISINGLY LARGE PERCENTAGE OF ITS FUNDING FROM PUBLIC SOURCES. GIVEN THE FACT THAT HAE IS AN ULTRA-ORPHAN RARE DISEASE WITH AN EXTREMELY SMALL NUMBER OF PATIENTS RESIDING IN THE UNITED STATES, THE TARGET POPULATION FOR SOLICITING FINANCIAL SUPPORT IS EXCEPTIONALLY LIMITED. DESPITE THESE INHERENT LIMITATIONS, THE HAEA HAS BECOME A HIGHLY EFFECTIVE RARE DISEASE PATIENT ADVOCACY ORGANIZATION THAT IS DIRECTLY RESPONSIBLE FOR SAVING COUNTLESS LIVES AND DRAMATICALLY IMPROVING PATIENT QUALITY OF LIFE, YEAR IN AND YEAR OUT. THE HAEAS SUCCESS IS DUE IN LARGE PART TO (1) THE BOARD OF DIRECTORS AND SENIOR MANAGEMENTS COMMITMENT TO MAXIMIZING PUBLIC FUNDRAISING, AND (2) A LASER-LIKE FOCUS ON DESIGNING AND IMPLEMENTING PROGRAMS AND ACTIVITIES THAT ARE OF MAXIMUM BENEFITS TO THE HAE PATIENT POPULATION.IT IS IMPORTANT TO NOTE THAT HAEAS BOARD OF DIRECTORS AND LEADERSHIP TEAM IS CONSTANTLY SEARCHING FOR INNOVATIVE APPROACHES TO INCREASING GENERAL SUPPORT. INDEED, WHEN IT COMES TO FUNDRAISING, WE DEVOTE AN EXTRAORDINARY AMOUNT OF TIME, ATTENTION AND RESOURCES TO EDUCATING, ENGAGING, AND EMPOWERING PATIENTS, THEIR RELATIVES, AND EMPLOYERS, AND ANY INTERESTED INDIVIDUAL OR ENTITY. PUBLIC FUNDRAISING EFFORTS WE SPONSOR INCLUDE OUR PATIENT MEET AND GREET, 5K WALK/RUN EVENTS, HAE DAY EVENTS HEL CITIES THROUGHOUT THE USA (CERTAIN OF THESE EVENTS WERE CURTAILED OR ADJUSTED TO VIRTUAL ENGAGEMENT DURING THE PANDEMIC AND SHORTLY THEREAFTER), AND SOCIAL MEDIA FUNDRAISING CAMPAIGNS TARGETING DONATIONS FOR OUR HAEA SCHOLARSHIP PROGRAM AND PATIENT BENEVOLENCE FUND. |
| IRS990ScheduleA/Form990ScheduleAPartVIGrp/FormAndLineReferenceDesc | 0 | 10 Facts and Circumstances Test Part II line 17a or 17b |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 7891572 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 7197362 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 6124808 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 6965801 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 5218780 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 33398323 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt | 0 | 3029 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 4536 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 25582 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 44572 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 35650 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 113369 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.17950 |
| IRS990ScheduleA/PublicSupportPY170Pct | 0 | 0.17710 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 6014686 |
| IRS990ScheduleA/SubstantialContributorsTotAmt | 0 | 27383637 |
| IRS990ScheduleA/TenPctFactsCrcmstncsTestCYInd | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 7891572 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 7197362 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 6124808 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 6965801 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 5218780 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 33398323 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 33511692 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | true |
| IRS990ScheduleD/BoardDesignatedBalanceEOYPct | 0 | 1.00000 |
| IRS990ScheduleD/CYEndwmtFundGrp/ContributionsAmt | 0 | 8737455 |
| IRS990ScheduleD/CYEndwmtFundGrp/EndYearBalanceAmt | 0 | 8740446 |
| IRS990ScheduleD/CYEndwmtFundGrp/InvestmentEarningsOrLossesAmt | 0 | 2991 |
| IRS990ScheduleD/EndowmentsHeldRelatedOrgInd | 0 | false |
| IRS990ScheduleD/EndowmentsHeldUnrelatedOrgInd | 0 | false |
| IRS990ScheduleD/EquipmentGrp/DepreciationAmt | 0 | 27594 |
| IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt | 0 | 27594 |
| IRS990ScheduleD/ExpensesSubtotalAmt | 0 | 4828602 |
| IRS990ScheduleD/NetUnrealizedGainsInvstAmt | 0 | 96528 |
| IRS990ScheduleD/RelatedOrgListSchRInd | 0 | false |
| IRS990ScheduleD/RevenueNotReportedAmt | 0 | 96528 |
| IRS990ScheduleD/RevenueSubtotalAmt | 0 | 7898783 |
| IRS990ScheduleD/TotalExpensesPerForm990Amt | 0 | 4828602 |
| IRS990ScheduleD/TotalRevenuePerForm990Amt | 0 | 7898783 |
| IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt | 0 | 7995311 |
| IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt | 0 | 4828602 |
| IRS990ScheduleI/GrantRecordsMaintainedInd | 0 | true |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 0 | 354935 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 0 | 501C3 |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 0 | RESEARCH & MEDICINE |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 0 | UC SAN DIEGO FOUNDATION |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 0 | 952872494 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 0 | 9500 GILMAN DRIVE SUITE 094 |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 0 | La Jolla |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 0 | CA |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 0 | 92093 |
| IRS990ScheduleI/RecipientTable/ValuationMethodUsedDesc | 0 | BOOK |
| IRS990ScheduleJ/AnyNonFixedPaymentsInd | 0 | false |
| IRS990ScheduleJ/BoardOrCommitteeApprovalInd | 0 | X |
| IRS990ScheduleJ/CompBasedOnRevenueOfFlngOrgInd | 0 | false |
| IRS990ScheduleJ/CompBsdNetEarnsFlngOrgInd | 0 | false |
| IRS990ScheduleJ/CompBsdNetEarnsRltdOrgsInd | 0 | false |
| IRS990ScheduleJ/CompBsdOnRevRelatedOrgsInd | 0 | false |
| IRS990ScheduleJ/CompensationSurveyInd | 0 | X |
| IRS990ScheduleJ/EquityBasedCompArrngmInd | 0 | false |
| IRS990ScheduleJ/Form990OfOtherOrganizationsInd | 0 | X |
| IRS990ScheduleJ/InitialContractExceptionInd | 0 | false |
| IRS990/ScheduleJRequiredInd | 0 | true |
| IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/BaseCompensationFilingOrgAmt | 0 | 227149 |
| IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/BaseCompensationFilingOrgAmt | 1 | 224861 |
| IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/BaseCompensationFilingOrgAmt | 2 | 152278 |
| IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/PersonNm | 0 | MICHELLE CUEVAS |
| IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/PersonNm | 1 | ANTHONY CASTALDO |
| IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/PersonNm | 2 | LEIGH FARRAR |
| IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/TitleTxt | 0 | SENIOR EXECUTIVE VPCOO |
| IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/TitleTxt | 1 | PRESIDENT |
| IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/TitleTxt | 2 | EXECUTIVE VPCFO |
| IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/TotalCompensationFilingOrgAmt | 0 | 227149 |
| IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/TotalCompensationFilingOrgAmt | 1 | 224861 |
| IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/TotalCompensationFilingOrgAmt | 2 | 152278 |
| IRS990ScheduleJ/SeverancePaymentInd | 0 | false |
| IRS990ScheduleJ/SupplementalNonqualRtrPlanInd | 0 | false |
| IRS990/ScheduleORequiredInd | 0 | true |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | THE PRESIDENT OF THE BOARD OF DIRECTORS AND CHIEF EXECUTIVE OFFICER IS RELATED TO THE SENIOR VICE PRESIDENT/CFO. THE BOARD OF DIRECTORS REVIEWED AND APPROVED THIS PROMOTION IN ADVANCE AND EVALUATES THIS RELATIONSHIP ON AN ANNUAL BASIS TO AFFIRM ITS CONTINUED APPROPRIATENESS. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | THE PRESIDENT AND CHIEF EXECUTIVE OFFICER AND SENIOR VICE PRESIDENT/CFO ARE ASSIGNED RESPONSIBILITY FOR REVIEW AND APPROVAL OF THE FEDERAL FORM 990. THE BOARD OF DIRECTORS AFFIRMS THE FILING PROVIDED. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | THE BOARD OF DIRECTORS PROVIDE SELF-DECLARATIONS OF POSSIBLE CONFLICTS OF INTEREST AS PART OF THE ANNUAL MEETING RESPONSIBILITIES. KEY EMPLOYEES ALSO PROVIDE AN ANNUAL SELF-DECLARATION. POTENTIAL CONFLICTS IDENTIFIED ARE REVIEWED AND APPROVED IF APPROPRIATE AS PART OF THE BOARD OF DIRECTORS ROUTINE RESPONSIBILITIES. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | THE BOARD OF DIRECTORS PERFORMS AN INFORMAL REVIEW OF THE PRESIDENT AND CHIEF EXECUTIVE OFFICERS SALARY FOR COMPARABLE RESPONSIBILITIES OF LIKE-SIZE AND TYPE ORGANIZATIONS WITH RECOGNITION OF THE NATIONAL AND INTERNATIONAL INFUENCE OF THE SERVICES PROVIDED. DISCUSSIONS AND CONCLUSIONS ARE DOCUMENTED AS PART OF THE RECORDING OF THE MINUTES OF THE BOARD OF DIRECTORS INCLUDING THE FORMAL APPROVAL OF THE ADJUSTED COMPENSATION AND BENEFIT. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 4 | THE PRESIDENT AND CHIEF EXECUTIVE OFFICER, WITH SUPPORT OF THE BOARD OF DIRECTORS, PERFORMS AN INFORMAL REVIEW OF KEY MANAGER SALARIES FOR COMPARABLE RESPONSIBILITIES OF LIKE-SIZED AND TYPE ORGANIZATIONS WITH RECOGNITION OF THE NATIONAL AND INTERNATIONAL INFLUENCE OF THE SERVICES PROVIDED. DISCUSSIONS AND CONCLUSIONS ARE DOCUMENTED AS PART OF THE RECORDING OF THE MINUTES OF THE BOARD OF DIRECTORS INCLUDING THEIR FORMAL APPROVAL OF THE ADJUSTED COMPENSATION AND BENEFIT. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 5 | THE ORGANIZATION MAKES ALL FEDERAL INFORMATION FILINGS AVAILABLE UPON REQUEST. VARIOUS COMPANIES MAKE THE FEDERAL FILINGS AVAILABLE VIA THE INTERNET. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 6 | THE ORGANIZATION HOLDS A BI-ANNUAL PATIENT SUMMIT INTENDED TO BRING TOGETHER INDIVIDUALS WITH HEREDITARY ANGIOEDEMA, EXPERTS IN THE CLINICAL, RESEARCH AND ACADEMIA FIELDS, HEREDITARY ANGIODEMA ASSOCIATION STAFF AS WELL AS THOSE PHARMACEUTICAL COMPANIES THAT OFFER SUCCESSFUL THERAPIES (AND HOPEFUL FUTURE THERAPIES) INTENDED TO MINIMIZE THE IMPACT OF SYMPTOMS OF HEREDITARY ANGIOEDEMA. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 7 | PART III: BRIEFLY DESCRIBE THE ORGANIZATIONS MISSION:THE HEREDITARY ANGEOEDEMA ASSOCIATIONS (HAEA) OVERALL GOAL IS TO BE THE FORCE BEHIND (1) THWARTING THE POTENTIALLY FATAL AND DEBILITATING NATURE OF HAE, AND (2) ENABLING OUR PATIENT COMMUNITY TO ACHIEVE LIFE LONG HEALTH. WE ARE A NATIONAL PATIENT ADVOCACY ASSOCIATION THAT FOCUSES ON: INCREASING HAE AWARENESS AND EDUCATION; DRIVING PROGRESS IN CLINICAL CARE; HELPING PATIENTS GAIN ACCESS TO AND REIMBURSEMENT FOR OPTIMAL TREATMENT; MAINTAINING A STRONG PRESENCE IN THE HEALTH LEGISLATIVE AND REGULATORY ENVIRONMENTS; AND FOSTERING MOLECULAR LEVEL AND TRANSLATIONAL RESEARCH THAT FEATURES SEARCHING FOR A CURE. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Officer directors etc family relationship Part VI line 2 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | Form 990 governing body review Part VI line 11 |
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