Liabilities / Assets
97th percentile
Higher debt load relative to assets than 97% of similar nonprofits.
Als Hope Foundation
990 • Fiscal year 2017 • EIN 23-3010389
Siviq Scores
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
2.26x
Liabilities / Revenue
94th percentile
Higher debt load relative to revenue than 94% of similar nonprofits.
Net Margin
52nd percentile
Higher net margin than 52% of similar nonprofits.
Top Officer Pay
76th percentile
Higher top officer pay than 76% of similar nonprofits.
Top officer pay equals 0.0% of source-year revenue.
Asset Growth
19th percentile
Faster asset growth than 19% of similar nonprofits.
Revenue Growth
65th percentile
Faster revenue growth than 65% of similar nonprofits.
Balance Sheet
Assets
Down$92,632
Down $27,042 (-23%) from 2016
Net Assets
Up-$116,480
Up $13,261 (+10%) from 2016
Liabilities
Down$209,112
Down $40,303 (-16%) from 2016
Revenue And Expenses
Revenue
Up$331,871
Up $35,235 (+12%) from 2016
Expenses
Down$317,917
Down $30,755 (-8.8%) from 2016
Net Income
Up$13,954
Up $65,990 (+127%) from 2016
Historical Trend
Jump To
Filing Snapshot
- Filing Period
- Jul 1, 2016 to Jun 30, 2017
- Signed
- Apr 4, 2018
- Return Version
- 2016v3.0
- Gross Receipts
- $394,111
Mission and Program Overview
Mission
To provide long-term support to 1) basic and clinical research programs leading to a cure, 2) clinical centers of excellence for the care and treatment of patients with als, 3) support programs for patients and care-givers that optimize care and promote independence of the patient, and 4) programs that promote patient and physician education about the diagnosis, treatment and caring for the patient with als. The als hope foundation is working to:- establish a team of talented and imaginative scientists who will work cooperatively to accelerate als research.- provide these researchers with stable funding to ensure that als research continues uninterrupted- provide funding for innovative, ground-breaking research across the country where traditional funding sources are not forthcoming.
Organization's mission or most significant activities are to provide long-term support to 1) basic and clinical research programs leading to a cure, 2) clinical centers of excellence for the care and treatment of patients with ALS, 3) support programs for patients and care-givers that optimize care and promote independence of the patient., and 4) programs that promote patient and physician education about the diagnosis, treatment and caring for the patient with ALS. The ALS Hope Foundation is working to -establish a team of talented and imaginative scientists who will work cooperatively to accelerate ALS research -provide these researchers with stable funding to ensure that ALS research continues uninterrupted -provide funding for innovative, groundbreaking research across the country where traditional funding sources are not forthcoming.
Balance Sheet Detail
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $26,016 | $35,442 | ▲ $9,426 |
| Land, Buildings, and Equipment, Net | $34,452 | $28,503 | ▼ $5,949 |
| Investments in Publicly Traded Securities | $28,184 | $19,319 | ▼ $8,865 |
| Pledges and Grants Receivable | $10,000 | $0 | ▼ $10,000 |
| Prepaid Expenses and Deferred Charges | $17,010 | $7,449 | ▼ $9,561 |
| Intangible Assets | $4,012 | $1,919 | ▼ $2,093 |
| Total Assets | $119,674 | $92,632 | ▼ $27,042 |
| Liabilities | |||
| Grants Payable | $206,173 | $189,690 | ▼ $16,483 |
| Accounts Payable and Accrued Expenses | $18,786 | $17,061 | ▼ $1,725 |
| Other Liabilities | $15,014 | $0 | ▼ $15,014 |
| Unsecured Notes Loans Payable | $9,442 | $2,361 | ▼ $7,081 |
| Total Liabilities | $249,415 | $209,112 | ▼ $40,303 |
| Net Assets / Fund Balance | |||
| Temporarily Rstr Net Assets | $4,224 | $4,224 | → $0 |
| Unrestricted Net Assets | $-133,965 | $-120,704 | ▲ $13,261 |
| Total Net Assets Fund Balance | $-129,741 | $-116,480 | ▲ $13,261 |
| Total Liabilities and Net Assets / Fund Balance | $119,674 | $92,632 | ▼ $27,042 |
Asset Categories
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Equipment | $28,503 | $55,202 | $83,705 |
| Other Land Buildings | $0 | - | - |
Endowment Activity
| Period | Beginning | Contrib. | Gain/Loss | Other Uses | End |
|---|---|---|---|---|---|
| 2016 | $4,224 | - | - | - | $4,224 |
| 2015 | $4,224 | - | - | - | $4,224 |
| 2014 | - | $10,104 | - | $5,880 | $4,224 |
| 2013 | $19,631 | - | - | $19,631 | - |
| 2012 | $37,878 | - | ▲ $19,631 | $37,878 | $19,631 |
Compensation and Service Providers
Board Members and Trustees
| Name | Title |
|---|---|
| Terry Heiman-Patterson MD | President |
| Lawrence Corrigan | Vice President |
| Barry Tishgart | Director |
| Deborah Santarpio Stanfa | Director |
| Fannette Segal | Director |
| Gary Romano MD PhD | Director |
| Gordon Lutz PhD | Director |
| Honey Tishgart | Director |
| Mary Kay Turner | Director |
| Ronald J Patterson Esq | Director |
| Walter Korn | Director |
| Mike McCool CPA | Treasurer |
Revenue and Support
Revenue Composition
- Contributions and Grants
- $308,332
- Program Service Revenue
- $0
- Investment Income
- $3,929
- Other Revenue
- $19,610
- All Other Contributions
- $236,506
- Change in Net Assets
- $13,954
Expenses and Functional Allocation
Major Expense Lines
| Line Item | Amount |
|---|---|
| Other Expenses | $214,324 |
| Salaries, Compensation, and Employee Benefits | $103,593 |
| Total Fundraising Expense | $50,932 |
| Grants and Similar Amounts Paid | $0 |
| Professional Fundraising Fees | $0 |
Functional Expense Allocation
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $61,070 | $9,082 | $11,180 | $81,332 |
| Fees for Services Management | $2,106 | $38,674 | $386 | $41,166 |
| Information Technology | - | - | $20,802 | $20,802 |
| Other Employee Benefits | $9,110 | $1,355 | $1,668 | $12,133 |
| Payroll Taxes | $7,605 | $1,131 | $1,392 | $10,128 |
| Depreciation Depletion | $4,021 | $1,689 | $2,332 | $8,042 |
| Travel | $3,740 | $255 | $420 | $4,415 |
| Office Expenses | - | $4,226 | - | $4,226 |
| Other Expenses | $4,164 | $236 | $4,970 | $4,164 |
| Insurance | - | $3,903 | - | $3,903 |
| Interest | - | $3,280 | - | $3,280 |
| Occupancy | - | $2,285 | - | $2,285 |
| All Other Expenses | - | $1,397 | $246 | $1,643 |
| Advertising | - | - | $93 | $93 |
| Total Functional Expenses | $199,472 | $67,513 | $50,932 | $317,917 |
Fundraising, Events, and Gaming
- Fundraising activities
- Yes
- Gaming activities
- No
- Professional fundraiser used
- No
Fundraising and Gaming Totals
| Line Item | Amount |
|---|---|
| Fundraising Gross Income | $45,624 |
| Fundraising Direct Expenses | $26,014 |
| Professional Fundraising Fees | $0 |
Fundraising Events
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Gal for Hope | $71,850 | $27,831 | $3,288 | $24,543 |
| Hope Walks for ALS | $45,600 | $17,793 | $1,800 | $15,993 |
| Total Events | $117,450 | $45,624 | $26,014 | $19,610 |
Political and Lobbying Activity
- Political campaign activity
- No
- Lobbying activity
- No
- Subject to proxy tax
- No
Governance and Compliance
Governance Checklist
- Compiled or reviewed by an accountant
- Yes
- Annual disclosure for covered persons
- Yes
- Audit committee
- Yes
- Business relationship with family members
- No
- Business relationship with organization members
- No
- Material changes to governing documents
- No
- Compensation from other sources disclosed
- No
- CEO compensation reviewed
- No
- Other officer compensation reviewed
- No
- Conflict-of-interest policy
- Yes
- Audited financial statements prepared
- No
- Key decisions subject to board approval
- No
- Management duties delegated
- No
Governance Explanations
Form 990, Part VI, Section B, line 11B
“The Finance Committee performs a detailed review of the Form 990 and then provides the form to the remainder of the Board.”
Form 990, Part VI, Section C, line 19
“No documents available to the public.”
Filing and Contact Details
Filer
- Filer Name
- ALS Hope Foundation
- EIN
- 23-3010389
- Phone
- 2155682426
- Address
- P O Box 40777, Philadelphia, PA 19107-0777
Signing Officer
- Name
- Terry Heiman-Patterson MD
- Title
- President
- Phone
- 2155682426
- Signed
- 2018-04-04
- Discuss with paid preparer
- Yes
Organization Details
- Principal Officer
- Terry Heiman-Patterson M
- Formed
- 1999
- Legal Domicile
- Pa
- Voting Board Members
- 12
- Independent Board Members
- 12
- Employees
- 5
- Volunteers
- 50
Preparer
- Firm
- Woolard Krajnik Masciangelo Llp
- Address
- 211 Limestone Road, Oxford, PA 19363
- Preparer
- Stephen J Cavanagh CPA
- Phone
- 6109324225
Supplemental Narrative
Additional Explanations
Form 990, Line 4A
“First accomplishment: The ALS Hope Foundation continues to support the MDA/ALS Center of Hope at Temple University College of Medicine, Philadelphia, PA. This clinic serves 110-125 people living with ALS at any given time and is actively involved in clinical research to better understand the disease, improve patient care and test promising therapeutics aimed at slowing or stopping the progressive neurodegeneration. Our support provides salary support for the staff of this multidisciplinary clinic. In addition, the ALS Hope Foundation supported the Northeast ALS Consortum to design and coordinate new trials of potienial therapeutics for ALS in research. The ALS Hope Foundation supported research projects in several departments at Temple University College of Medicine. Projects include 'Identification of modifying genetics in murine mouse models of ALS.', 'Targeting AMPA receptors with neuroprotective oligomers as therapeutics for ALS.', 'Neurapthology in mice expressing a very low copy number of the mutant human G93A S0D1 gene associated with Lou Gehrig's Disease(ALS).', 'Maintenance of colony transgenic mice for ALS research.'. The ALS Hope Foundation also began to organize The Philadelphia Institute of Neurodegenerative Disorder (PHIND) and held research meetings. The research supported by the ALS Hope Foundation benefits all of more than 30,000 people in the United States, and 300,000 people worldwide, at the time who are living with ALS. Since more than half of the people diagnosed with ALS die within 3 years, these numbers represent far more people than are tallied at this moment in time. In education, the ALS Hope Foundation supported the International Alliance of ALS/MND Associations and sponsored the Alliend Professionals Forum at the international symposium on ALS/MND. This forum trains clinic professionals on how to take the latest research and apply it to clinical care and improving lives for people living with ALS/MND. Typically 250-500 professionals have attended from around the globe.”
Form 990, Line 2C
“The Treasurer oversees the reviewed financial statement services.”
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| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 19319 |
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| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 83705 |
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| IRS990/LobbyingActivitiesInd | 0 | 0 |
| IRS990/LocalChaptersInd | 0 | 0 |
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| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | See Schedule O |
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| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 19610 |
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| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | -693 |
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| IRS990/OccupancyGrp/TotalAmt | 0 | 2285 |
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| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 4226 |
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| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 1355 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 9110 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 12133 |
| IRS990/OtherExpensesGrp/Desc | 0 | Research and clinic sup |
| IRS990/OtherExpensesGrp/Desc | 1 | Special events |
| IRS990/OtherExpensesGrp/Desc | 2 | Printing and publicatio |
| IRS990/OtherExpensesGrp/Desc | 3 | Patient support |
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| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 4970 |
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| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 4164 |
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| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 81332 |
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| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 7605 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 10128 |
| IRS990/PledgesAndGrantsReceivableGrp/BOYAmt | 0 | 10000 |
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| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 7449 |
| IRS990/PrincipalOfficerNm | 0 | Terry Heiman-Patterson M |
| IRS990/ProfessionalFundraisingInd | 0 | 0 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 294729 |
| IRS990/PYExcessBenefitTransInd | 0 | 0 |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 0 |
| IRS990/PYInvestmentIncomeAmt | 0 | 1907 |
| IRS990/PYOtherExpensesAmt | 0 | 219094 |
| IRS990/PYOtherRevenueAmt | 0 | 0 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | -52036 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 129578 |
| IRS990/PYTotalExpensesAmt | 0 | 348672 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 0 |
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| IRS990/ReconcilationRevenueExpnssAmt | 0 | 13954 |
| IRS990/RegularMonitoringEnfrcInd | 0 | 0 |
| IRS990/RelatedEntityInd | 0 | 1 |
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| IRS990/ReportLandBuildingEquipmentInd | 0 | 1 |
| IRS990/ReportOtherAssetsInd | 0 | 0 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 0 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 0 |
| IRS990/RevenueAmt | 0 | 353956 |
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| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 294729 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 481450 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 309959 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 372174 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 1812268 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt | 0 | 3234 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 0 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 4181 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 4580 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 1061 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 13056 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.99280 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 1812268 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 353956 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 294729 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 481450 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 309959 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 372174 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 1812268 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 1825324 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | 1 |
| IRS990ScheduleD/BoardDesignatedBalanceEOYPct | 0 | 0.00000 |
| IRS990ScheduleD/CYEndwmtFundGrp/BeginningYearBalanceAmt | 0 | 4224 |
| IRS990ScheduleD/CYEndwmtFundGrp/EndYearBalanceAmt | 0 | 4224 |
| IRS990ScheduleD/CYMinus1YrEndwmtFundGrp/BeginningYearBalanceAmt | 0 | 4224 |
| IRS990ScheduleD/CYMinus1YrEndwmtFundGrp/EndYearBalanceAmt | 0 | 4224 |
| IRS990ScheduleD/CYMinus2YrEndwmtFundGrp/ContributionsAmt | 0 | 10104 |
| IRS990ScheduleD/CYMinus2YrEndwmtFundGrp/EndYearBalanceAmt | 0 | 4224 |
| IRS990ScheduleD/CYMinus2YrEndwmtFundGrp/OtherExpendituresAmt | 0 | 5880 |
| IRS990ScheduleD/CYMinus3YrEndwmtFundGrp/BeginningYearBalanceAmt | 0 | 19631 |
| IRS990ScheduleD/CYMinus3YrEndwmtFundGrp/OtherExpendituresAmt | 0 | 19631 |
| IRS990ScheduleD/CYMinus4YrEndwmtFundGrp/BeginningYearBalanceAmt | 0 | 37878 |
| IRS990ScheduleD/CYMinus4YrEndwmtFundGrp/EndYearBalanceAmt | 0 | 19631 |
| IRS990ScheduleD/CYMinus4YrEndwmtFundGrp/InvestmentEarningsOrLossesAmt | 0 | 19631 |
| IRS990ScheduleD/CYMinus4YrEndwmtFundGrp/OtherExpendituresAmt | 0 | 37878 |
| IRS990ScheduleD/EndowmentsHeldRelatedOrgInd | 0 | 0 |
| IRS990ScheduleD/EndowmentsHeldUnrelatedOrgInd | 0 | 0 |
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| IRS990ScheduleD/EquipmentGrp/DepreciationAmt | 0 | 55202 |
| IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt | 0 | 83705 |
| IRS990ScheduleD/OtherLandBuildingsGrp/BookValueAmt | 0 | 0 |
| IRS990ScheduleD/TermEndowmentBalanceEOYPct | 0 | 1.00000 |
| IRS990ScheduleD/TotalBookValueLandBuildingsAmt | 0 | 28503 |
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| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt | 0 | 44019 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent2Amt | 0 | 27807 |
| IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt | 0 | 26014 |
| IRS990ScheduleG/FundraisingEventInformationGrp/EntertainmentEvent1Amt | 0 | 643 |
| IRS990ScheduleG/FundraisingEventInformationGrp/EntertainmentEvent2Amt | 0 | 500 |
| IRS990ScheduleG/FundraisingEventInformationGrp/EntertainmentTotalEventsAmt | 0 | 1143 |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm | 0 | Gal for Hope |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event2Nm | 0 | Hope Walks for ALS |
| IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageEvent2Amt | 0 | 200 |
| IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageTotalEventsAmt | 0 | 200 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt | 0 | 71850 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent2Amt | 0 | 45600 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt | 0 | 117450 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt | 0 | 27831 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent2Amt | 0 | 17793 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt | 0 | 45624 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt | 0 | 19610 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NonCashPrizesEvent1Amt | 0 | 200 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NonCashPrizesEvent2Amt | 0 | 2000 |
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| IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt | 0 | 3288 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent2Amt | 0 | 1800 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFacilityCostsEvent1Amt | 0 | 16783 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFacilityCostsEvent2Amt | 0 | 600 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFcltyCostsTotalEventsAmt | 0 | 17383 |
| IRS990/ScheduleJRequiredInd | 0 | 0 |
| IRS990/ScheduleORequiredInd | 0 | 1 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | First accomplishment: The ALS Hope Foundation continues to support the MDA/ALS Center of Hope at Temple University College of Medicine, Philadelphia, PA. This clinic serves 110-125 people living with ALS at any given time and is actively involved in clinical research to better understand the disease, improve patient care and test promising therapeutics aimed at slowing or stopping the progressive neurodegeneration. Our support provides salary support for the staff of this multidisciplinary clinic. In addition, the ALS Hope Foundation supported the Northeast ALS Consortum to design and coordinate new trials of potienial therapeutics for ALS in research. The ALS Hope Foundation supported research projects in several departments at Temple University College of Medicine. Projects include 'Identification of modifying genetics in murine mouse models of ALS.', 'Targeting AMPA receptors with neuroprotective oligomers as therapeutics for ALS.', 'Neurapthology in mice expressing a very low copy number of the mutant human G93A S0D1 gene associated with Lou Gehrig's Disease(ALS).', 'Maintenance of colony transgenic mice for ALS research.'. The ALS Hope Foundation also began to organize The Philadelphia Institute of Neurodegenerative Disorder (PHIND) and held research meetings. The research supported by the ALS Hope Foundation benefits all of more than 30,000 people in the United States, and 300,000 people worldwide, at the time who are living with ALS. Since more than half of the people diagnosed with ALS die within 3 years, these numbers represent far more people than are tallied at this moment in time. In education, the ALS Hope Foundation supported the International Alliance of ALS/MND Associations and sponsored the Alliend Professionals Forum at the international symposium on ALS/MND. This forum trains clinic professionals on how to take the latest research and apply it to clinical care and improving lives for people living with ALS/MND. Typically 250-500 professionals have attended from around the globe. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | The Finance Committee performs a detailed review of the Form 990 and then provides the form to the remainder of the Board. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | No documents available to the public. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | The Treasurer oversees the reviewed financial statement services. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Form 990, Line 4a |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | Form 990, Part VI, Section B, line 11b |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | Form 990, Part VI, Section C, line 19 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | Form 990, Line 2c |
| IRS990ScheduleR/AssetExchangeInd | 0 | 0 |
| IRS990ScheduleR/AssetPurchaseFromOtherOrgInd | 0 | 0 |
| IRS990ScheduleR/AssetSaleToOtherOrgInd | 0 | 0 |
| IRS990ScheduleR/DivRelatedOrganizationInd | 0 | 0 |
| IRS990ScheduleR/GiftGrntCapContriFromOthOrgInd | 0 | 0 |
| IRS990ScheduleR/GiftGrntOrCapContriToOthOrgInd | 0 | 0 |
Document Assets
No mirrored PDF or thumbnail assets are attached yet.
Filings
Displayed year
2017 • Form 990Detailed filing. Detailed filing data is available for this year.
- Assets
- $92,632
- Liabilities
- $209,112
- Net assets
- -$116,480
- Revenue
- $331,871
- Expenses
- $317,917
- Net income
- $13,954