Civic Intelligence

Williams Syndrome Association Inc.

990 • Fiscal year 2019 • EIN 22-3305007

Jan 01, 2019 to Dec 31, 2019 • Filed on Jul 06, 2020

Organization ProfileWWW.WILLIAMS-SYNDROME.ORG
570 KirtsTroy, MI 48084

(248) 244-2229

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

69th percentile

0.22x

Higher debt load relative to assets than 69% of similar nonprofits.

2019 filings • NTEE G • $1M-$5M nonprofits • Source year 2019

Liabilities / Revenue

79th percentile

0.26x

Higher debt load relative to revenue than 79% of similar nonprofits.

2019 filings • NTEE G • $1M-$5M nonprofits • Source year 2019

Net Margin

36th percentile

-0.3%

Higher net margin than 36% of similar nonprofits.

2019 filings • NTEE G • $1M-$5M nonprofits • Source year 2019

Top Officer Pay

69th percentile

$123,545

Higher top officer pay than 69% of similar nonprofits.

Top officer pay equals 6.4% of source-year revenue.

2019 filings • NTEE G • $1M-$5M nonprofits • Source year 2019

Asset Growth

58th percentile

12%

Faster asset growth than 58% of similar nonprofits.

2019 filings • NTEE G • $1M-$5M nonprofits • Annualized from 2018 to 2019

Revenue Growth

57th percentile

11%

Faster revenue growth than 57% of similar nonprofits.

2019 filings • NTEE G • $1M-$5M nonprofits • Annualized from 2018 to 2019

Balance Sheet
Liabilities / Assets69th percentile

Assets

Up

$2,349,384

Up $256,446 (+12%) from 2018

Net Assets

Up

$1,842,677

Up $202,131 (+12%) from 2018

Liabilities

Up

$506,707

Up $54,315 (+12%) from 2018

Revenue And Expenses
Liabilities / Revenue79th percentileNet Margin36th percentile

Revenue

Up

$1,918,427

Up $196,804 (+11%) from 2018

Expenses

Up

$1,924,976

Up $109,311 (+6.0%) from 2018

Net Income

Up

-$6,549

Up $87,493 (+93%) from 2018

Historical Trend

Balance Sheet Trend

Asset Growth58th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$4.0M$3.0M$2.0M$1.0M$0Assets 2010: $1,557,797Liabilities 2010: $27,563Net Assets 2010: $1,530,2342010Assets 2011: $1,770,939Liabilities 2011: $19,478Net Assets 2011: $1,751,4612011Assets 2012: $2,265,510Liabilities 2012: $38,649Net Assets 2012: $2,226,8612012Assets 2013: $2,558,432Liabilities 2013: $45,681Net Assets 2013: $2,512,7512013Assets 2014: $2,712,416Liabilities 2014: $16,242Net Assets 2014: $2,696,1742014Assets 2015: $2,838,437Liabilities 2015: $190,950Net Assets 2015: $2,647,4872015Assets 2016: $2,700,635Liabilities 2016: $151,771Net Assets 2016: $2,548,8642016Assets 2017: $2,889,914Liabilities 2017: $849,310Net Assets 2017: $2,040,6042017Assets 2018: $2,092,938Liabilities 2018: $452,392Net Assets 2018: $1,640,5462018Assets 2019: $2,349,384Liabilities 2019: $506,707Net Assets 2019: $1,842,6772019Assets 2020: $2,830,051Liabilities 2020: $218,030Net Assets 2020: $2,612,0212020Assets 2021: $3,106,665Liabilities 2021: $143,133Net Assets 2021: $2,963,5322021Assets 2022: $2,892,153Liabilities 2022: $268,814Net Assets 2022: $2,623,3392022Assets 2023: $2,841,757Liabilities 2023: $105,526Net Assets 2023: $2,736,2312023Assets 2024: $2,831,149Liabilities 2024: $60,643Net Assets 2024: $2,770,5062024

Highlighted filing

2019

Assets$2,349,384
Liabilities$506,707
Net Assets$1,842,677
Open 2019 Filing

Operations Trend

Revenue Growth57th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$3.0M$2.0M$1.0M$0-$1.0MExpenses 2010: $1,174,2262010Expenses 2011: $748,2942011Expenses 2012: $1,152,7472012Revenue 2013: $1,042,706Expenses 2013: $903,866Net Income 2013: $138,8402013Revenue 2014: $1,527,038Expenses 2014: $1,352,598Net Income 2014: $174,4402014Revenue 2015: $1,069,811Expenses 2015: $1,023,153Net Income 2015: $46,6582015Revenue 2016: $1,561,820Expenses 2016: $1,628,644Net Income 2016: -$66,8242016Revenue 2017: $1,553,403Expenses 2017: $2,303,746Net Income 2017: -$750,3432017Revenue 2018: $1,721,623Expenses 2018: $1,815,665Net Income 2018: -$94,0422018Revenue 2019: $1,918,427Expenses 2019: $1,924,976Net Income 2019: -$6,5492019Revenue 2020: $1,646,364Expenses 2020: $1,007,372Net Income 2020: $638,9922020Revenue 2021: $1,472,394Expenses 2021: $1,309,219Net Income 2021: $163,1752021Revenue 2022: $2,421,502Expenses 2022: $2,351,418Net Income 2022: $70,0842022Revenue 2023: $1,721,772Expenses 2023: $1,940,371Net Income 2023: -$218,5992023Revenue 2024: $2,016,743Expenses 2024: $2,143,132Net Income 2024: -$126,3892024

Highlighted filing

2019

Revenue$1,918,427
Expenses$1,924,976
Net Income-$6,549
Open 2019 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2019 to Dec 31, 2019
Signed
Jul 6, 2020
Return Version
2019v5.0
Gross Receipts
$2,559,983
Mission and Program Overview

Mission

To help individuals with williams syndrome to reach their full potential by disseminating resource materials to families and professionals and supporting research in all aspects of the syndrome.

To advance the interests of all individuals with williams syndrome throughout their lifespan by providing programming and resources, supporting research, promoting partnerships and connections, and ensuring that the infrastructure of the organization has the capacity to lead our community toward its goals.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$1,994,450$2,155,357▲ $160,907
Savings and Temporary Cash Investments$46,669$120,108▲ $73,439
Prepaid Expenses and Deferred Charges$33,452$62,050▲ $28,598
Land, Buildings, and Equipment, Net$13,667$7,013▼ $6,654
Cash and Non-Interest-Bearing Accounts$300$300→ $0
Accounts Receivable-$156-
Total Assets$2,092,938$2,349,384▲ $256,446
Other Assets Total$4,400$4,400→ $0
Liabilities
Grants Payable$399,442$482,500▲ $83,058
Accounts Payable and Accrued Expenses$48,441$20,207▼ $28,234
Deferred Revenue$4,509$4,000▼ $509
Total Liabilities$452,392$506,707▲ $54,315
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$1,512,971$1,655,577▲ $142,606
Net Assets With Donor Restrictions$127,575$187,100▲ $59,525
Total Net Assets Fund Balance$1,640,546$1,842,677▲ $202,131
Total Liabilities and Net Assets / Fund Balance$2,092,938$2,349,384▲ $256,446

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$7,013$64,318$71,331

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2019$1,067,252-▲ $159,471$-151,086$1,075,637
2018$1,075,637$35,021▼ $37,670$-5,736$1,067,252
2017$1,075,637-▲ $140,171$-140,171$1,075,637
2016$1,075,637-▲ $74,870$-74,870$1,075,637
2015$1,075,637---$1,075,637
Compensation and Service Providers
Top Officer Pay69th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Terry MonkabaExecutive DiFT$123,545$123,545

Board Members and Trustees

NameTitle
Jocelyn KrebsPresident
Judy Van HandelTrustee
Laurel RossiTrustee
Marella HolmesTrustee
Marty LevinsonTrustee
Matthew BartowTrustee
Melissa MurphyTrustee
Ryan CordryTrustee
Alex StreitTrustee/ws a
Maegan MillerTrustee/ws a
Tara MomplaisirSecretary
Scott OttenheimerTreasurer
Cyndra ColeVice Preside
Revenue and Support

Revenue Composition

Contributions and Grants
$1,906,948
Program Service Revenue
$112,832
Investment Income
$87,037
Other Revenue
$-188,390
All Other Contributions
$837,515
Change in Net Assets
$-6,549

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,918,427
Revenue Not Reported on Form 990
$208,680
Total Revenue per Audited Statements
$2,127,107
Total Revenue per Form 990
$1,918,427
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$752,500
Salaries, Compensation, and Employee Benefits$721,154
Other Expenses$451,322
Total Fundraising Expense$197,993
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$752,500--$752,500
Other Salaries and Wages$320,692$45,890$130,416$496,998
Current Officers, Directors, Trustees, and Key Employees$86,482$18,532$18,532$123,546
All Other Expenses$32,439$36,663$5,510$74,612
Payroll Taxes$30,315$5,293$12,511$48,119
Occupancy$37,564$2,348$7,043$46,955
Other Employee Benefits$27,239$4,653$12,346$44,238
Other Expenses$26,542$4,320-$30,862
Fees for Services Other-$30,111-$30,111
Office Expenses$18,936$2,229$2,229$23,394
Travel$10,041$7,597$5,051$22,689
Fees for Service Investment Mgmnt Fees-$19,278-$19,278
Insurance$12,749$1,594$1,594$15,937
Fees for Services Accounting-$15,440-$15,440
Information Technology$13,596--$13,596
Conferences and Meetings-$11,809-$11,809
Depreciation Depletion$7,090$887$886$8,863
Pension Plan Contributions$5,361$1,017$1,875$8,253
Advertising-$5,388-$5,388
Fees for Services Legal-$4,121-$4,121
Total Functional Expenses$1,506,738$220,245$197,993$1,924,976

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$1,924,976
Total Expenses per Audited Statements$1,924,976
Total Expenses per Form 990$1,924,976
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
University of LouisvilleLouisville, KY-Ws Child Development$600,000
Massachusetts General HospitalBoston, MA-Ws Registry$87,500
Michigan State UniversityEast Lansing, MI-Ws Skills Developmen$65,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$253,165
Fundraising Gross Income$64,775
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Awareness Walks$733,077-$113,604-
Filippazzo Even$309,580$48,720$78,756$-30,036
Total Events$1,116,018$64,775$253,165$-188,390
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
No
Audit committee
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 11B

“Form 990 is reviewed and approved for filing by the executive director and the board treasurer. The form 990 is made available to the entire board of directors for review.”

Form 990, Page 6, Part VI, Line 15A

“Compensation for the executive diretor is determined by the board of directors. Compensation amounts are benchmarked to similar not-for-profit organizations and are in alignment with the association's annual budget.”

Form 990, Page 6, Part VI, Line 17

“VIRGINIA, WISCONSIN”

Form 990, Page 6, Part VI, Line 19

“AVAILABLE UPON REQUEST”

Filing and Contact Details

Filer

Filer Name
Williams Syndrome Association Inc
EIN
22-3305007
Phone
2482442229
Address
570 KIRTS, TROY, MI 48084

Signing Officer

Name
Scott Ottenheimer
Title
Treasurer
Phone
2482442229
Signed
2020-07-06
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Terry Monkaba
Formed
1993
Legal Domicile
Nj
Voting Board Members
13
Independent Board Members
13
Employees
11
Volunteers
464

Preparer

Firm
Collins Buri & Mcconkey Llp
Address
5700 CROOKS STE 420, TROY, MI 48098
Preparer
Jeffrey C Jablonski CPA
Phone
2486467440
Supplemental Narrative

Additional Explanations

FORM 990 - ORGANIZATION'S MISSION

“To advance the interests of all individuals with williams syndrome throughout their lifespan by providing programming and resources, supporting research, promoting partnerships and connections, and ensuring that the infrastructure of the organization has the capacity to lead our community toward its goals.”

Financial Statement Notes

Schedule D, Page 3, Part X

“The association is recognized by the irs as a charitable organization exempt from federal income tax under irc section 501(c)(3). It is required to annually file a return of organization exempt from income tax (form 990) with the irs and could be subject to income tax on net income derived from business activity that is unrelated to its exempt purpose. Management has determined that the association is not subject to unrelated business income tax. Accordingly, no provision for income tax is required.”

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Filings

Displayed year

2019 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$2,349,384
Liabilities
$506,707
Net assets
$1,842,677
Revenue
$1,918,427
Expenses
$1,924,976
Net income
-$6,549
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.83$0.06$2.77$2.02$2.14$0.13
2023Summary only. Only limited summary data is available for this year.$2.84$0.11$2.74$1.72$1.94$0.22
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.89$0.27$2.62$2.42$2.35$0.07
2021Summary only. Only limited summary data is available for this year.$3.11$0.14$2.96$1.47$1.31$0.16
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.83$0.22$2.61$1.65$1.01$0.64
2019Detailed filing. Detailed filing data is available for this year.$2.35$0.51$1.84$1.92$1.92$0.01
2018Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.09$0.45$1.64$1.72$1.82$0.09
2017Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.89$0.85$2.04$1.55$2.30$0.75
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.70$0.15$2.55$1.56$1.63$0.07
2015Detailed filing. Detailed filing data is available for this year.$2.84$0.19$2.65$1.07$1.02$0.05
2014Detailed filing. Detailed filing data is available for this year.$2.71$0.02$2.70$1.53$1.35$0.17
2013Summary only. Only limited summary data is available for this year.$2.56$0.05$2.51$1.04$0.90$0.14
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.27$0.04$2.23$1.15
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.77$0.02$1.75$0.75
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.56$0.03$1.53$1.17
Peer Organizations

Similar nonprofits based on the same Siviq industry and scale cohort. 2019 filings • 501(c)3 • $1M-$5M nonprofits