Civic Intelligence

Williams Syndrome Association Inc

EIN 22-3305007 • 501(c)3 • Newark, NJ

Profile

To help individuals with williams syndrome to reach their full potential by disseminating resource materials to families and professionals and supporting research in all aspects of the syndrome.

243 Broadway 9188Newark, NJ 07104

www.williams-syndrome.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

38th percentile

0.02x

Higher debt load relative to assets than 38% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Liabilities / Revenue

37th percentile

0.03x

Higher debt load relative to revenue than 37% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Net Margin

27th percentile

-6.3%

Higher net margin than 27% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

36th percentile

-0.4%

Faster asset growth than 36% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Revenue Growth

65th percentile

17%

Faster revenue growth than 65% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Assets

Down

$2,831,149

Down $10,608 (-0.4%) from 2023

Liabilities

Down

$60,643

Down $44,883 (-43%) from 2023

Net Assets

Up

$2,770,506

Up $34,275 (+1.3%) from 2023

Revenue

Up

$2,016,743

Up $294,971 (+17%) from 2023

Expenses

Up

$2,143,132

Up $202,761 (+10%) from 2023

Net Income

Up

-$126,389

Up $92,210 (+42%) from 2023

Trend Graphs

Balance Sheet Trend

Grouped bars show assets, liabilities, and net assets across loaded filings.

$4.0M$3.0M$2.0M$1.0M$0Assets 2010: $1,557,797Liabilities 2010: $27,563Net Assets 2010: $1,530,2342010Assets 2011: $1,770,939Liabilities 2011: $19,478Net Assets 2011: $1,751,4612011Assets 2012: $2,265,510Liabilities 2012: $38,649Net Assets 2012: $2,226,8612012Assets 2013: $2,558,432Liabilities 2013: $45,681Net Assets 2013: $2,512,7512013Assets 2014: $2,712,416Liabilities 2014: $16,242Net Assets 2014: $2,696,1742014Assets 2015: $2,838,437Liabilities 2015: $190,950Net Assets 2015: $2,647,4872015Assets 2016: $2,700,635Liabilities 2016: $151,771Net Assets 2016: $2,548,8642016Assets 2017: $2,889,914Liabilities 2017: $849,310Net Assets 2017: $2,040,6042017Assets 2018: $2,092,938Liabilities 2018: $452,392Net Assets 2018: $1,640,5462018Assets 2019: $2,349,384Liabilities 2019: $506,707Net Assets 2019: $1,842,6772019Assets 2020: $2,830,051Liabilities 2020: $218,030Net Assets 2020: $2,612,0212020Assets 2021: $3,106,665Liabilities 2021: $143,133Net Assets 2021: $2,963,5322021Assets 2022: $2,892,153Liabilities 2022: $268,814Net Assets 2022: $2,623,3392022Assets 2023: $2,841,757Liabilities 2023: $105,526Net Assets 2023: $2,736,2312023Assets 2024: $2,831,149Liabilities 2024: $60,643Net Assets 2024: $2,770,5062024

Highlighted filing

2024

Assets$2,831,149
Liabilities$60,643
Net Assets$2,770,506

Operations Trend

Revenue, expenses, and net income by year, with the latest filing highlighted.

$3.0M$2.0M$1.0M$0-$1.0MExpenses 2010: $1,174,2262010Expenses 2011: $748,2942011Expenses 2012: $1,152,7472012Revenue 2013: $1,042,706Expenses 2013: $903,866Net Income 2013: $138,8402013Revenue 2014: $1,527,038Expenses 2014: $1,352,598Net Income 2014: $174,4402014Revenue 2015: $1,069,811Expenses 2015: $1,023,153Net Income 2015: $46,6582015Revenue 2016: $1,561,820Expenses 2016: $1,628,644Net Income 2016: -$66,8242016Revenue 2017: $1,553,403Expenses 2017: $2,303,746Net Income 2017: -$750,3432017Revenue 2018: $1,721,623Expenses 2018: $1,815,665Net Income 2018: -$94,0422018Revenue 2019: $1,918,427Expenses 2019: $1,924,976Net Income 2019: -$6,5492019Revenue 2020: $1,646,364Expenses 2020: $1,007,372Net Income 2020: $638,9922020Revenue 2021: $1,472,394Expenses 2021: $1,309,219Net Income 2021: $163,1752021Revenue 2022: $2,421,502Expenses 2022: $2,351,418Net Income 2022: $70,0842022Revenue 2023: $1,721,772Expenses 2023: $1,940,371Net Income 2023: -$218,5992023Revenue 2024: $2,016,743Expenses 2024: $2,143,132Net Income 2024: -$126,3892024

Highlighted filing

2024

Revenue$2,016,743
Expenses$2,143,132
Net Income-$126,389

Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.83$0.06$2.77$2.02$2.14$0.13
2023Summary only. Only limited summary data is available for this year.$2.84$0.11$2.74$1.72$1.94$0.22
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.89$0.27$2.62$2.42$2.35$0.07
2021Summary only. Only limited summary data is available for this year.$3.11$0.14$2.96$1.47$1.31$0.16
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.83$0.22$2.61$1.65$1.01$0.64
2019Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.35$0.51$1.84$1.92$1.92$0.01
2018Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.09$0.45$1.64$1.72$1.82$0.09
2017Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.89$0.85$2.04$1.55$2.30$0.75
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.70$0.15$2.55$1.56$1.63$0.07
2015Detailed filing. Detailed filing data is available for this year.$2.84$0.19$2.65$1.07$1.02$0.05
2014Detailed filing. Detailed filing data is available for this year.$2.71$0.02$2.70$1.53$1.35$0.17
2013Summary only. Only limited summary data is available for this year.$2.56$0.05$2.51$1.04$0.90$0.14
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.27$0.04$2.23$1.15
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.77$0.02$1.75$0.75
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.56$0.03$1.53$1.17
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Nov 16, 2025
Return Version
2024v5.2
Gross Receipts
$2,063,856
Mission and Program Overview

Mission

To help individuals with williams syndrome to reach their full potential by disseminating resource materials to families and professionals and supporting research in all aspects of the syndrome.

Advancing the interests of individuals with williams syndrome by supporting research, providing family services and raising community awareness.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$2,327,309$2,116,590▼ $210,719
Cash and Non-Interest-Bearing Accounts$384,827$370,192▼ $14,635
Savings and Temporary Cash Investments$6,763$297,904▲ $291,141
Land, Buildings, and Equipment, Net$27,582$17,148▼ $10,434
Pledges and Grants Receivable$25,970$15,000▼ $10,970
Prepaid Expenses and Deferred Charges$60,769$13,635▼ $47,134
Total Assets$2,841,757$2,831,149▼ $10,608
Other Assets Total$8,537$680▼ $7,857
Liabilities
Grants Payable$42,500$42,500→ $0
Accounts Payable and Accrued Expenses$58,827$18,143▼ $40,684
Other Liabilities$4,199$0▼ $4,199
Total Liabilities$105,526$60,643▼ $44,883
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$1,625,869$1,690,469▲ $64,600
Net Assets With Donor Restrictions$1,110,362$1,080,037▼ $30,325
Total Net Assets Fund Balance$2,736,231$2,770,506▲ $34,275
Total Liabilities and Net Assets / Fund Balance$2,841,757$2,831,149▼ $10,608

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$17,148$86,342$103,490

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2024$1,075,637---$1,075,637
2023$1,075,637---$1,075,637
2022$1,075,637---$1,075,637
2021$1,075,637-▲ $126,183$126,183$1,075,637
2020$1,075,637-▲ $120,208$120,208$1,075,637
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Sarah SchaeferEXECUTIVE DIRECTOR AS OF JUL'24FT$143,000$18,534$161,534
Mary Van HaneghanEXECUTIVE DIRECTOR THROUGH JUL'24FT$112,811$11,700$124,511

Board Members and Trustees

Highest Paid Contractors

ContractorServicesLocationCompensation
Hyatt RegencyConvention Space And Catering122 N 2ND ST, Phoenix, AZ 85004$271,727
Technology Express INCConvention Audio Visual Services820 MIDPOINT DRIVE, Ofallon, MO 63366$116,220
Revenue and Support

Revenue Composition

Contributions and Grants
$1,188,175
Program Service Revenue
$678,960
Investment Income
$76,521
Other Revenue
$73,087
All Other Contributions
$1,188,175
Change in Net Assets
$-126,389

Audited Revenue Reconciliation

Revenue per Audited Statements
$2,007,254
Revenue Not Reported on Financial Statements
$9,489
Revenue Not Reported on Form 990
$100,871
Other Revenue Adjustments
$-2,111
Total Revenue per Audited Statements
$2,108,125
Total Revenue per Form 990
$2,016,743
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$1,187,376
Salaries, Compensation, and Employee Benefits$876,167
Total Fundraising Expense$200,164
Grants and Similar Amounts Paid$79,589
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Conferences and Meetings$652,672$1,079-$653,751
Other Salaries and Wages$382,467$73,983$82,583$539,033
Current Officers, Directors, Trustees, and Key Employees$136,767$42,083$31,561$210,411
Grants to Domestic Individuals$79,589--$79,589
All Other Expenses$30,775$24,966$20,037$75,778
Payroll Taxes$42,892$8,360$11,048$62,300
Other Employee Benefits$36,079$11,025$7,996$55,100
Fees for Services Accounting-$53,572-$53,572
Fees for Services Other$2,329$38,959$9,273$50,561
Information Technology$774$37,187-$37,961
Other Expenses$16$31,528$30$31,574
Advertising$588$19,231$4,341$24,160
Travel$12,014$3,380$504$15,898
Insurance-$14,239-$14,239
Depreciation Depletion$1,161$9,737$1,674$12,572
Fees for Service Investment Mgmnt Fees-$11,600-$11,600
Pension Plan Contributions$4,811$2,159$2,353$9,323
Fees for Services Legal-$1,483$2,000$3,483
Occupancy-$2,240-$2,240
Office Expenses-$75-$75
Total Functional Expenses$1,520,913$422,055$200,164$2,143,132

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Form 990$2,143,132
Total Expenses per Audited Statements$2,073,850
Expenses per Audited Statements$2,071,739
Expenses Not Reported on Financial Statements$71,393
Other Expense Adjustments$59,793
Expenses Not Reported on Form 990$2,111
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$114,998
Fundraising Direct Expenses$45,002
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Golf$114,998$114,998$13,660$101,338
Total Events$114,998$114,998$45,002$69,996
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
No
Audit committee
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

The 990 is reviewed by the executive director and provided to the board of directors prior to filing.

Form 990, Part VI, Section B, Line 15A

Compensation for the executive director is determined by the board of directors, based on benchmarks for similar organizations and the organization's budget.

Form 990, Part VI, Section C, Line 19

All required documents are available upon request.

Filing and Contact Details

Filer

Filer Name
Williams Syndrome Association
EIN
22-3305007
Phone
2485090060
Address
243 BROADWAY 9188, NEWARK, NJ 07104

Signing Officer

Name
Sarah Schaefer
Title
Executive Director
Phone
2486600454
Signed
2025-11-16
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Sarah Schaefer
Formed
1993
Legal Domicile
Nj
Voting Board Members
15
Independent Board Members
15
Employees
10
Volunteers
100

Preparer

Firm
Avenson Hamann Cpas Llp
Address
7421 BURNET ROAD 522, AUSTIN, TX 78757
Preparer
Catherine Avenson
Phone
5126939131
Supplemental Narrative

Financial Statement Notes

PART XI, LINE 2D - OTHER ADJUSTMENTS:

EVENT EXPENSES -59,793.

PART XI, LINE 4B - OTHER ADJUSTMENTS:

Cost of goods sold -2,111.

PART XII, LINE 2D - OTHER ADJUSTMENTS:

Cost of goods sold 2,111.

PART XII, LINE 4B - OTHER ADJUSTMENTS:

EVENT EXPENSES 59,793.

Raw XML AppendixShowing 400 of 635 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd00
IRS990/AccountsPayableAccrExpnssGrp/BOYAmt058827
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt018143
IRS990/ActivitiesConductedPrtshpInd00
IRS990/ActivityOrMissionDesc0ADVANCING THE INTERESTS OF INDIVIDUALS WITH WILLIAMS SYNDROME BY SUPPORTING RESEARCH, PROVIDING FAMILY SERVICES AND RAISING COMMUNITY AWARENESS.
IRS990/AdvertisingGrp/FundraisingAmt04341
IRS990/AdvertisingGrp/ManagementAndGeneralAmt019231
IRS990/AdvertisingGrp/ProgramServicesAmt0588
IRS990/AdvertisingGrp/TotalAmt024160
IRS990/AllOtherContributionsAmt01188175
IRS990/AllOtherExpensesGrp/FundraisingAmt020037
IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt024966
IRS990/AllOtherExpensesGrp/ProgramServicesAmt030775
IRS990/AllOtherExpensesGrp/TotalAmt075778
IRS990/AnnualDisclosureCoveredPrsnInd00
IRS990/AuditCommitteeInd01
IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt0THE ORGANIZATION
IRS990/BooksInCareOfDetail/PhoneNum02485090060
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt0243 BROADWAY 9188
IRS990/BooksInCareOfDetail/USAddress/CityNm0NEWARK
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0NJ
IRS990/BooksInCareOfDetail/USAddress/ZIPCd007104
IRS990/BusinessRlnWith35CtrlEntInd00
IRS990/BusinessRlnWithFamMemInd00
IRS990/BusinessRlnWithOrgMemInd00
IRS990/CashNonInterestBearingGrp/BOYAmt0384827
IRS990/CashNonInterestBearingGrp/EOYAmt0370192
IRS990/ChangeToOrgDocumentsInd00
IRS990/CntrctRcvdGreaterThan100KCnt02
IRS990/CollectionsOfArtInd00
IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt031561
IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt042083
IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt0136767
IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt0210411
IRS990/CompensationFromOtherSrcsInd00
IRS990/CompensationProcessCEOInd01
IRS990/CompensationProcessOtherInd00
IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt01079
IRS990/ConferencesMeetingsGrp/ProgramServicesAmt0652672
IRS990/ConferencesMeetingsGrp/TotalAmt0653751
IRS990/ConflictOfInterestPolicyInd01
IRS990/ConservationEasementsInd00
IRS990/ConsolidatedAuditFinclStmtInd00
IRS990/ContractorCompensationGrp/CompensationAmt0271727
IRS990/ContractorCompensationGrp/CompensationAmt1116220
IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt0122 N 2ND ST
IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt1820 MIDPOINT DRIVE
IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm0PHOENIX
IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm1OFALLON
IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd0AZ
IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd1MO
IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd085004
IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd163366
IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt0HYATT REGENCY
IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt1TECHNOLOGY EXPRESS INC
IRS990/ContractorCompensationGrp/ServicesDesc0CONVENTION SPACE AND CATERING
IRS990/ContractorCompensationGrp/ServicesDesc1CONVENTION AUDIO VISUAL SERVICES
IRS990/CostOfGoodsSoldAmt02111
IRS990/CreditCounselingInd00
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt01188175
IRS990/CYGrantsAndSimilarPaidAmt079589
IRS990/CYInvestmentIncomeAmt076521
IRS990/CYOtherExpensesAmt01187376
IRS990/CYOtherRevenueAmt073087
IRS990/CYProgramServiceRevenueAmt0678960
IRS990/CYRevenuesLessExpensesAmt0-126389
IRS990/CYSalariesCompEmpBnftPaidAmt0876167
IRS990/CYTotalExpensesAmt02143132
IRS990/CYTotalFundraisingExpenseAmt0200164
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt02016743
IRS990/DecisionsSubjectToApprovaInd00
IRS990/DeductibleArtContributionInd00
IRS990/DeductibleNonCashContriInd00
IRS990/DelegationOfMgmtDutiesInd00
IRS990/DepreciationDepletionGrp/FundraisingAmt01674
IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt09737
IRS990/DepreciationDepletionGrp/ProgramServicesAmt01161
IRS990/DepreciationDepletionGrp/TotalAmt012572
IRS990/Desc0WE SUPPORT OUR MISSION BY:- PROVIDING INFORMATION AND EMOTIONAL SUPPORT TO INDIVIDUALS WITH CHARACTERISTICS OF WILLIAMS SYNDROME, THEIR FAMILIES, AND THE PROFESSIONALS WHO WORK WITH THEM- DEVELOPING PROGRAMS AND SERVICES TO HELP BUILD STRENGTHS AND MEET CHALLENGES FROM EARLY CHILDHOOD THROUGH ADULTHOOD- INCREASING PUBLIC AWARENESS AND UNDERSTANDING OF WILLIAMS SYNDROME, AND- ENCOURAGING AND SUPPORTING RESEARCH INTO A WIDE RANGE OF ISSUES RELATED TO WILLIAMS SYNDROME
IRS990/DescribedInSection501c3Ind01
IRS990/DisregardedEntityInd00
IRS990/DocumentRetentionPolicyInd01
IRS990/DonorAdvisedFundInd00
IRS990/DonorRestrictionNetAssetsGrp/BOYAmt01110362
IRS990/DonorRestrictionNetAssetsGrp/EOYAmt01080037
IRS990/DonorRstrOrQuasiEndowmentsInd01
IRS990/ElectionOfBoardMembersInd00
IRS990/EmployeeCnt010
IRS990/EmploymentTaxReturnsFiledInd01
IRS990/EngagedInExcessBenefitTransInd00
IRS990/ExpenseAmt01520913
IRS990/FamilyOrBusinessRlnInd00
IRS990/FederalGrantAuditRequiredInd00
IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt053572
IRS990/FeesForServicesAccountingGrp/TotalAmt053572
IRS990/FeesForServicesLegalGrp/FundraisingAmt02000
IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt01483
IRS990/FeesForServicesLegalGrp/TotalAmt03483
IRS990/FeesForServicesOtherGrp/FundraisingAmt09273
IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt038959
IRS990/FeesForServicesOtherGrp/ProgramServicesAmt02329
IRS990/FeesForServicesOtherGrp/TotalAmt050561
IRS990/FeesForSrvcInvstMgmntFeesGrp/ManagementAndGeneralAmt011600
IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt011600
IRS990/ForeignActivitiesInd00
IRS990/ForeignFinancialAccountInd00
IRS990/ForeignOfficeInd00
IRS990/Form8282PropertyDisposedOfInd00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt05.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt15.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt25.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt31.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt41.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt51.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt61.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt71.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt81.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt95.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt101.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt111.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt121.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt131.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt141.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1540.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1640.00
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd8X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd9X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd10X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd11X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd12X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd13X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd14X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OfficerInd4X
IRS990/Form990PartVIISectionAGrp/OfficerInd5X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt140
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1511700
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1616534
IRS990/Form990PartVIISectionAGrp/PersonNm0BILL PALMER
IRS990/Form990PartVIISectionAGrp/PersonNm1MEREDITH GREENE
IRS990/Form990PartVIISectionAGrp/PersonNm2JANETRICKS CHEBUKATI OKEYO
IRS990/Form990PartVIISectionAGrp/PersonNm3GIANNA MORELLO
IRS990/Form990PartVIISectionAGrp/PersonNm4KELLY WEI
IRS990/Form990PartVIISectionAGrp/PersonNm5BRENDAN LEMIEUX
IRS990/Form990PartVIISectionAGrp/PersonNm6ELLEN HOCH
IRS990/Form990PartVIISectionAGrp/PersonNm7CLANCEY HOPPER
IRS990/Form990PartVIISectionAGrp/PersonNm8AMY NUSSBAUM
IRS990/Form990PartVIISectionAGrp/PersonNm9REBEKAH PAGIS
IRS990/Form990PartVIISectionAGrp/PersonNm10DANIELLE SHOCKEY
IRS990/Form990PartVIISectionAGrp/PersonNm11BEN SAMELSON-JONES
IRS990/Form990PartVIISectionAGrp/PersonNm12AARON LOMBARD
IRS990/Form990PartVIISectionAGrp/PersonNm13MARIE GLEASON
IRS990/Form990PartVIISectionAGrp/PersonNm14LISETTE ENGEL
IRS990/Form990PartVIISectionAGrp/PersonNm15MARY VAN HANEGHAN
IRS990/Form990PartVIISectionAGrp/PersonNm16SARAH SCHAEFER
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt15112811
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt16145000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/TitleTxt0PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt1TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt2SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt3TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt4TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt5TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt6TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt7TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt8TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt9VICE PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt10TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt11TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt12TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt13TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt14TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt15EXECUTIVE DIRECTOR THROUGH JUL'24
IRS990/Form990PartVIISectionAGrp/TitleTxt16EXECUTIVE DIRECTOR AS OF JUL'24
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr01993
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingDirectExpensesAmt045002
IRS990/FundraisingGrossIncomeAmt0114998
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt015
IRS990/GrantAmt079589
IRS990/GrantsPayableGrp/BOYAmt042500
IRS990/GrantsPayableGrp/EOYAmt042500
IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt079589
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt079589
IRS990/GrantsToIndividualsInd01
IRS990/GrantsToOrganizationsInd00
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt02063856
IRS990/GrossSalesOfInventoryAmt05202
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd00
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt015
IRS990/IndivRcvdGreaterThan100KCnt02
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt037187
IRS990/InformationTechnologyGrp/ProgramServicesAmt0774
IRS990/InformationTechnologyGrp/TotalAmt037961
IRS990/InsuranceGrp/ManagementAndGeneralAmt014239
IRS990/InsuranceGrp/TotalAmt014239
IRS990/InvestmentIncomeGrp/ExclusionAmt076521
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt076521
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt02327309
IRS990/InvestmentsPubTradedSecGrp/EOYAmt02116590
IRS990/IRPDocumentCnt014
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt086342
IRS990/LandBldgEquipBasisNetGrp/BOYAmt027582
IRS990/LandBldgEquipBasisNetGrp/EOYAmt017148
IRS990/LandBldgEquipCostOrOtherBssAmt0103490
IRS990/LegalDomicileStateCd0NJ
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0TO ADVANCE THE INTERESTS OF ALL INDIVIDUALS WITH WILLIAMS SYNDROME THROUGHOUT THEIR LIFESPAN BY PROVIDING PROGRAMMING AND RESOURCES, SUPPORTING RESEARCH, PROMOTING PARTNERSHIPS AND CONNECTIONS, AND ENSURING THAT THE INFRASTRUCTURE OF THE ORGANIZATION HAS THE CAPACITY TO LEAD OUR COMMUNITY TOWARD ITS GOALS.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt02736231
IRS990/NetAssetsOrFundBalancesEOYAmt02770506
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt069996
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt069996
IRS990/NetIncomeOrLossGrp/ExclusionAmt03091
IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt03091
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt0160664
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt01625869
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt01690469
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/ManagementAndGeneralAmt02240
IRS990/OccupancyGrp/TotalAmt02240
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt075
IRS990/OfficeExpensesGrp/TotalAmt075
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt08537
IRS990/OtherAssetsTotalGrp/EOYAmt0680
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt07996
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt011025
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt036079
IRS990/OtherEmployeeBenefitsGrp/TotalAmt055100
IRS990/OtherExpensesGrp/Desc0CAMP EXPENSES
IRS990/OtherExpensesGrp/Desc1BANK FEES
IRS990/OtherExpensesGrp/Desc2EVENTS
IRS990/OtherExpensesGrp/Desc3STAFF TRAINING
IRS990/OtherExpensesGrp/FundraisingAmt017044
IRS990/OtherExpensesGrp/FundraisingAmt19720
IRS990/OtherExpensesGrp/FundraisingAmt230
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt035169
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt131528
IRS990/OtherExpensesGrp/ProgramServicesAmt078040
IRS990/OtherExpensesGrp/ProgramServicesAmt19995
IRS990/OtherExpensesGrp/ProgramServicesAmt249944
IRS990/OtherExpensesGrp/ProgramServicesAmt316
IRS990/OtherExpensesGrp/TotalAmt078040
IRS990/OtherExpensesGrp/TotalAmt162208
IRS990/OtherExpensesGrp/TotalAmt259664
IRS990/OtherExpensesGrp/TotalAmt331574
IRS990/OtherLiabilitiesGrp/BOYAmt04199
IRS990/OtherLiabilitiesGrp/EOYAmt00
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt082583
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt073983
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0382467
IRS990/OtherSalariesAndWagesGrp/TotalAmt0539033
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt011048
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt08360
IRS990/PayrollTaxesGrp/ProgramServicesAmt042892
IRS990/PayrollTaxesGrp/TotalAmt062300
IRS990/PensionPlanContributionsGrp/FundraisingAmt02353
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt02159
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt04811
IRS990/PensionPlanContributionsGrp/TotalAmt09323
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt025970
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt015000
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt060769
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt013635
IRS990/PrincipalOfficerNm0SARAH SCHAEFER
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0900099
IRS990/ProgramServiceRevenueGrp/BusinessCd1900099
IRS990/ProgramServiceRevenueGrp/Desc0CONVENTION
IRS990/ProgramServiceRevenueGrp/Desc1CAMPS
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt0622548
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt156412
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt0622548
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt156412
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt01697193
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt0131205
IRS990/PYInvestmentIncomeAmt0-63057
IRS990/PYOtherExpensesAmt0765266
IRS990/PYOtherRevenueAmt031949
IRS990/PYProgramServiceRevenueAmt055687
IRS990/PYRevenuesLessExpensesAmt0-218599
IRS990/PYSalariesCompEmpBnftPaidAmt01043900
IRS990/PYTotalExpensesAmt01940371
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt01721772
IRS990/QuidProQuoContributionsInd01
IRS990/QuidProQuoContriDisclInd01
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt0-126389
IRS990/RegularMonitoringEnfrcInd00
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990/RevenueAmt0678960
IRS990/SavingsAndTempCashInvstGrp/BOYAmt06763
IRS990/SavingsAndTempCashInvstGrp/EOYAmt0297904
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt01188175
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt01697193
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt01924528
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt01213658
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt01548029
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt07571583
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt076521
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt060433

Document Assets

No mirrored PDF or thumbnail assets are attached yet.