Civic Intelligence

Scleroderma Foundation New England Inc.

990 • Fiscal year 2021 • EIN 22-2603572

Jan 01, 2021 to Dec 31, 2021 • Filed on May 03, 2022

Organization Profilewww.scleroderma.org
462 Boston StreetTopsfield, MA 01983-1200

(978) 887-0658

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

64th percentile

0.09x

Higher debt load relative to assets than 64% of similar nonprofits.

2021 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2021

Liabilities / Revenue

79th percentile

0.30x

Higher debt load relative to revenue than 79% of similar nonprofits.

2021 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2021

Net Margin

80th percentile

38%

Higher net margin than 80% of similar nonprofits.

2021 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2021

Top Officer Pay

66th percentile

$45,905

Higher top officer pay than 66% of similar nonprofits.

Top officer pay equals 15.5% of source-year revenue.

2021 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2021

Asset Growth

61st percentile

17%

Faster asset growth than 61% of similar nonprofits.

2021 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2020 to 2021

Revenue Growth

81st percentile

72%

Faster revenue growth than 81% of similar nonprofits.

2021 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2020 to 2021

Balance Sheet
Liabilities / Assets64th percentile

Assets

Up

$981,565

Up $139,464 (+17%) from 2020

Net Assets

Up

$891,560

Up $147,944 (+20%) from 2020

Liabilities

Down

$90,005

Down $8,480 (-8.6%) from 2020

Revenue And Expenses
Liabilities / Revenue79th percentileNet Margin80th percentile

Revenue

Up

$295,424

Up $123,546 (+72%) from 2020

Expenses

Down

$182,782

Down $10,350 (-5.4%) from 2020

Net Income

Up

$112,642

Up $133,896 (+630%) from 2020

Historical Trend

Balance Sheet Trend

Asset Growth61st percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.0M$500K$0Assets 2010: $599,022Liabilities 2010: $0Net Assets 2010: $599,0222010Assets 2011: $754,745Liabilities 2011: $0Net Assets 2011: $754,7452011Assets 2012: $671,985Liabilities 2012: $96,065Net Assets 2012: $575,9202012Assets 2013: $778,262Liabilities 2013: $155,362Net Assets 2013: $622,9002013Assets 2014: $755,658Liabilities 2014: $111,285Net Assets 2014: $644,3732014Assets 2015: $778,703Liabilities 2015: $112,732Net Assets 2015: $665,9712015Assets 2016: $828,869Liabilities 2016: $159,589Net Assets 2016: $669,2802016Assets 2017: $861,135Liabilities 2017: $153,288Net Assets 2017: $707,8472017Assets 2018: $710,223Liabilities 2018: $72,996Net Assets 2018: $637,2272018Assets 2019: $837,989Liabilities 2019: $108,657Net Assets 2019: $729,3322019Assets 2020: $842,101Liabilities 2020: $98,485Net Assets 2020: $743,6162020Assets 2021: $981,565Liabilities 2021: $90,005Net Assets 2021: $891,5602021Assets 2022: $941,134Liabilities 2022: $87,782Net Assets 2022: $853,3522022Assets 2023: $0Liabilities 2023: $0Net Assets 2023: $02023

Highlighted filing

2021

Assets$981,565
Liabilities$90,005
Net Assets$891,560
Open 2021 Filing

Operations Trend

Revenue Growth81st percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$600K$400K$200K$0-$200KRevenue 2010: $344,258Expenses 2010: $338,119Net Income 2010: $6,1392010Expenses 2011: $144,0512011Expenses 2012: $377,4682012Revenue 2013: $413,924Expenses 2013: $355,473Net Income 2013: $58,4512013Revenue 2014: $316,702Expenses 2014: $302,157Net Income 2014: $14,5452014Revenue 2015: $378,749Expenses 2015: $320,023Net Income 2015: $58,7262015Revenue 2016: $343,809Expenses 2016: $375,381Net Income 2016: -$31,5722016Revenue 2017: $340,772Expenses 2017: $361,234Net Income 2017: -$20,4622017Revenue 2018: $350,335Expenses 2018: $347,506Net Income 2018: $2,8292018Revenue 2019: $352,910Expenses 2019: $320,764Net Income 2019: $32,1462019Revenue 2020: $171,878Expenses 2020: $193,132Net Income 2020: -$21,2542020Revenue 2021: $295,424Expenses 2021: $182,782Net Income 2021: $112,6422021Revenue 2022: $216,536Expenses 2022: $163,041Net Income 2022: $53,4952022Revenue 2023: $16,749Expenses 2023: $11,040Net Income 2023: $5,7092023

Highlighted filing

2021

Revenue$295,424
Expenses$182,782
Net Income$112,642
Open 2021 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2021 to Dec 31, 2021
Signed
May 3, 2022
Return Version
2021v4.1
Gross Receipts
$349,261
Mission and Program Overview

Mission

Provide educational and emotional support to people with scleroderma and their families; to stimulate and support research designed to identify the cause and cure of scleroderma; and to

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$609,645$652,832▲ $43,187
Cash and Non-Interest-Bearing Accounts$209,022$296,236▲ $87,214
Pledges and Grants Receivable$10,561$16,650▲ $6,089
Prepaid Expenses and Deferred Charges$6,014$9,476▲ $3,462
Savings and Temporary Cash Investments$5,005$5,005→ $0
Land, Buildings, and Equipment, Net$1,854$1,366▼ $488
Total Assets$842,101$981,565▲ $139,464
Liabilities
Unsecured Notes Loans Payable$35,232--
Grants Payable$21,582$31,006▲ $9,424
Other Liabilities$25,000$25,000→ $0
Accounts Payable and Accrued Expenses$16,671$17,930▲ $1,259
Deferred Revenue-$16,069-
Total Liabilities$98,485$90,005▼ $8,480
Net Assets / Fund Balance
Net Assets With Donor Restrictions$411,712$453,730▲ $42,018
Net Assets Without Donor Restrictions$331,904$437,830▲ $105,926
Total Net Assets Fund Balance$743,616$891,560▲ $147,944
Total Liabilities and Net Assets / Fund Balance$842,101$981,565▲ $139,464

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$1,366$12,673$14,039
Land$0--

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2021$426,914-▲ $42,018-$448,725
2020$414,096-▲ $32,538-$426,914
2019$371,451-▲ $61,345-$414,096
2018$413,629-▼ $28,169-$371,451
2017$372,372-▲ $51,257-$413,629
Compensation and Service Providers
Top Officer Pay66th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Anne SweeneyExecutive DirectorFT$44,756$1,149$45,905
Lindsay De SantisFormer Executive DirectorFT$39,452$1,170$40,622
Lindsay De Santis--$39,452$1,170$40,622

Board Members and Trustees

NameTitle
Jane LadasPresident
Andrea MahoneyVice President
Anthony CappellucciDirector
Carla KingDirector
David RosenbergDirector
Elyssia CappellucciDirector
Scott WinslowDirector
Zak KarsanDirector
Steve LangClerk
Chris SimmsTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$240,770
Program Service Revenue
$0
Investment Income
$32,946
Other Revenue
$21,708
All Other Contributions
$176,702
Change in Net Assets
$112,642
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$93,718
Other Expenses$69,219
Total Fundraising Expense$40,481
Grants and Similar Amounts Paid$19,845
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Current Officers, Directors, Trustees, and Key Employees$34,472$23,290$26,446$84,208
Payments to Affiliates$0$25,000$0$25,000
Grants to Domestic Orgs$19,845--$19,845
Occupancy$6,187$4,180$4,746$15,113
Office Expenses$3,800$2,568$2,916$9,284
Fees for Services Accounting$0$8,585$0$8,585
Payroll Taxes$2,944$1,989$2,258$7,191
Fees for Service Investment Mgmnt Fees$0$4,784$0$4,784
Other Expenses$0$0$1,983$1,983
Pension Plan Contributions$500$338$384$1,222
Other Employee Benefits$449$303$345$1,097
Depreciation Depletion$0$488$0$488
Fees for Services Other$0$475$0$475
Total Functional Expenses$69,600$72,701$40,481$182,782
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Scleroderma Foundation IncDanvers, MA501(c)(3)Research$19,845
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$24,806
Fundraising Direct Expenses$3,098
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Southie Swims$12,954$12,954-$12,954
Stepping Out$10,267$10,267-$10,267
Total Events$23,221$23,221-$23,221
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
-National ChapterNational Office SupportNo$25,000
-National ChapterResearch GrantNo$19,845
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Accrued Affiliate Support$25,000
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
Yes
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No
Filing and Contact Details

Filer

Filer Name
Scleroderma Foundationnew England Inc
EIN
22-2603572
Phone
9788870658
Address
462 BOSTON STREET, TOPSFIELD, MA 01983-1200

Signing Officer

Name
Jane Ladas
Title
President
Phone
9788870658
Signed
2022-05-03
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Anne Sweeney
Formed
1985
Legal Domicile
Ma
Voting Board Members
10
Independent Board Members
10
Employees
2
Volunteers
30

Preparer

Firm
Bernard Johnson & Company Pc
Address
15 MAIN STREET, TOPSFIELD, MA 01983
Preparer
Julie A Couto CPA
Phone
9788872220
Supplemental Narrative

Additional Explanations

Pt VI, Line 11B

“The board of directors are provided a draft copy of the federal form 990 prior to finalization. The form 990 is reviewed and approved by the executive director and board treasurer. The preparer of the form 990 is notified the return has been approved and may be finalized.”

Pt VI, Line 12C

“Board members, committee members and employees are required annually to disclose actual or potential conflicts of interest. Identified conflicts are resolved by action of the board president and executive director.”

Pt VI, Line 15A

“The executive director is hired through a rigorous board approval process.”

Raw XML AppendixShowing 400 of 593 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd0true
IRS990/AccountsPayableAccrExpnssGrp/BOYAmt016671
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt017930
IRS990/AcctCompileOrReviewBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/ActivitiesConductedPrtshpInd0false
IRS990/ActivityOrMissionDesc0PROVIDE EDUCATIONAL AND EMOTIONAL SUPPORT TO PEOPLE WITH SCLERODERMA AND THEIR FAMILIES; TO STIMULATE AND SUPPORT RESEARCH DESIGNED TO IDENTIFY THE CAUSE AND CURE OF SCLERODERMA; AND TO
IRS990/AllOtherContributionsAmt0176702
IRS990/AnnualDisclosureCoveredPrsnInd0true
IRS990/AuditCommitteeInd0true
IRS990/BooksInCareOfDetail/PersonNm0ANNE SWEENEY
IRS990/BooksInCareOfDetail/PhoneNum09788870658
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt0462 BOSTON STREET
IRS990/BooksInCareOfDetail/USAddress/CityNm0TOPSFIELD
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0MA
IRS990/BooksInCareOfDetail/USAddress/ZIPCd001983
IRS990/BusinessRlnWith35CtrlEntInd0false
IRS990/BusinessRlnWithFamMemInd0false
IRS990/BusinessRlnWithOrgMemInd0false
IRS990/CashNonInterestBearingGrp/BOYAmt0209022
IRS990/CashNonInterestBearingGrp/EOYAmt0296236
IRS990/ChangeToOrgDocumentsInd0false
IRS990/CollectionsOfArtInd0false
IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt026446
IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt023290
IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt034472
IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt084208
IRS990/CompensationFromOtherSrcsInd0false
IRS990/CompensationProcessCEOInd0true
IRS990/CompensationProcessOtherInd0false
IRS990/ConflictOfInterestPolicyInd0true
IRS990/ConservationEasementsInd0false
IRS990/ConsolidatedAuditFinclStmtInd0false
IRS990/CreditCounselingInd0false
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt0240770
IRS990/CYGrantsAndSimilarPaidAmt019845
IRS990/CYInvestmentIncomeAmt032946
IRS990/CYOtherExpensesAmt069219
IRS990/CYOtherRevenueAmt021708
IRS990/CYProgramServiceRevenueAmt00
IRS990/CYRevenuesLessExpensesAmt0112642
IRS990/CYSalariesCompEmpBnftPaidAmt093718
IRS990/CYTotalExpensesAmt0182782
IRS990/CYTotalFundraisingExpenseAmt040481
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt0295424
IRS990/DecisionsSubjectToApprovaInd0false
IRS990/DeductibleArtContributionInd0false
IRS990/DeductibleNonCashContriInd0false
IRS990/DeferredRevenueGrp/EOYAmt016069
IRS990/DelegationOfMgmtDutiesInd0false
IRS990/DepreciationDepletionGrp/FundraisingAmt00
IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt0488
IRS990/DepreciationDepletionGrp/ProgramServicesAmt00
IRS990/DepreciationDepletionGrp/TotalAmt0488
IRS990/Desc0PROVIDE COUNSELING TO PATIENTS AND FAMILY MEMBERS WITH SCLERODERMA. ADDITIONALLY THE ORGANIZATION DONATES FUNDS TO THE NATIONAL SCLERODERMA FOUNDATION TO FUND RESEARCH.
IRS990/DescribedInSection501c3Ind0true
IRS990/DisregardedEntityInd0false
IRS990/DocumentRetentionPolicyInd0true
IRS990/DonorAdvisedFundInd0false
IRS990/DonorRestrictionNetAssetsGrp/BOYAmt0411712
IRS990/DonorRestrictionNetAssetsGrp/EOYAmt0453730
IRS990/DonorRstrOrQuasiEndowmentsInd0true
IRS990/ElectionOfBoardMembersInd0false
IRS990/EmployeeCnt02
IRS990/EmploymentTaxReturnsFiledInd0true
IRS990/EngagedInExcessBenefitTransInd0false
IRS990/ExpenseAmt069600
IRS990/FamilyOrBusinessRlnInd0false
IRS990/FederalGrantAuditRequiredInd0false
IRS990/FeesForServicesAccountingGrp/FundraisingAmt00
IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt08585
IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt00
IRS990/FeesForServicesAccountingGrp/TotalAmt08585
IRS990/FeesForServicesOtherGrp/FundraisingAmt00
IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt0475
IRS990/FeesForServicesOtherGrp/ProgramServicesAmt00
IRS990/FeesForServicesOtherGrp/TotalAmt0475
IRS990/FeesForSrvcInvstMgmntFeesGrp/FundraisingAmt00
IRS990/FeesForSrvcInvstMgmntFeesGrp/ManagementAndGeneralAmt04784
IRS990/FeesForSrvcInvstMgmntFeesGrp/ProgramServicesAmt00
IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt04784
IRS990/ForeignActivitiesInd0false
IRS990/ForeignFinancialAccountInd0false
IRS990/ForeignOfficeInd0false
IRS990/Form8282PropertyDisposedOfInd0false
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt010.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt11.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt21.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt31.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt41.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt51.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt61.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt71.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt81.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt91.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1040.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1140.00
IRS990/Form990PartVIISectionAGrp/FormerOfcrDirectorTrusteeInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd8X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd9X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OfficerInd4X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt101149
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt111170
IRS990/Form990PartVIISectionAGrp/PersonNm0JANE LADAS
IRS990/Form990PartVIISectionAGrp/PersonNm1ANDREA MAHONEY
IRS990/Form990PartVIISectionAGrp/PersonNm2CHRIS SIMMS
IRS990/Form990PartVIISectionAGrp/PersonNm3STEVE LANG
IRS990/Form990PartVIISectionAGrp/PersonNm4ANTHONY CAPPELLUCCI
IRS990/Form990PartVIISectionAGrp/PersonNm5ELYSSIA CAPPELLUCCI
IRS990/Form990PartVIISectionAGrp/PersonNm6ZAK KARSAN
IRS990/Form990PartVIISectionAGrp/PersonNm7SCOTT WINSLOW
IRS990/Form990PartVIISectionAGrp/PersonNm8CARLA KING
IRS990/Form990PartVIISectionAGrp/PersonNm9DAVID ROSENBERG
IRS990/Form990PartVIISectionAGrp/PersonNm10ANNE SWEENEY
IRS990/Form990PartVIISectionAGrp/PersonNm11LINDSAY DE SANTIS
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt1044756
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt1139452
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/TitleTxt0PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt1VICE PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt2TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt3CLERK
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10EXECUTIVE DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11FORMER EXECUTIVE DIRECTOR
IRS990/Form990ProvidedToGvrnBodyInd0true
IRS990/FormationYr01985
IRS990/FormerOfcrEmployeesListedInd0true
IRS990/FSAuditedInd0false
IRS990/FundraisingActivitiesInd0true
IRS990/FundraisingDirectExpensesAmt03098
IRS990/FundraisingGrossIncomeAmt024806
IRS990/GainOrLossGrp/SecuritiesAmt022175
IRS990/GamingActivitiesInd0false
IRS990/GoverningBodyVotingMembersCnt010
IRS990/GovernmentGrantsAmt058623
IRS990/GrantAmt019845
IRS990/GrantsPayableGrp/BOYAmt021582
IRS990/GrantsPayableGrp/EOYAmt031006
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt019845
IRS990/GrantsToDomesticOrgsGrp/TotalAmt019845
IRS990/GrantsToIndividualsInd0false
IRS990/GrantsToOrganizationsInd0true
IRS990/GrantToRelatedPersonInd0false
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt072914
IRS990/GrossReceiptsAmt0349261
IRS990/GroupReturnForAffiliatesInd0false
IRS990/IncludeFIN48FootnoteInd0true
IRS990/IndependentAuditFinclStmtInd0false
IRS990/IndependentVotingMemberCnt010
IRS990/IndoorTanningServicesInd0false
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InvestmentIncomeGrp/ExclusionAmt010771
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt010771
IRS990/InvestmentIncomeGrp/UnrelatedBusinessRevenueAmt00
IRS990/InvestmentInJointVentureInd0false
IRS990/InvestmentsPubTradedSecGrp/BOYAmt0609645
IRS990/InvestmentsPubTradedSecGrp/EOYAmt0652832
IRS990/IRPDocumentCnt02
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt012673
IRS990/LandBldgEquipBasisNetGrp/BOYAmt01854
IRS990/LandBldgEquipBasisNetGrp/EOYAmt01366
IRS990/LandBldgEquipCostOrOtherBssAmt014039
IRS990/LegalDomicileStateCd0MA
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt050739
IRS990/LoanOutstandingInd0false
IRS990/LobbyingActivitiesInd0false
IRS990/LocalChaptersInd0false
IRS990/MaterialDiversionOrMisuseInd0false
IRS990/MembershipDuesAmt0325
IRS990/MembersOrStockholdersInd0false
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd0true
IRS990/MinutesOfGoverningBodyInd0true
IRS990/MissionDesc0PROVIDE EDUCATIONAL AND EMOTIONAL SUPPORT TO PEOPLE WITH SCLERODERMA AND THEIR FAMILIES; TO STIMULATE AND SUPPORT RESEARCH DESIGNED TO IDENTIFY THE CAUSE AND CURE OF SCLERODERMA; AND TO
IRS990/MoreThan5000KToIndividualsInd0false
IRS990/MoreThan5000KToOrgInd0false
IRS990/NetAssetsOrFundBalancesBOYAmt0743616
IRS990/NetAssetsOrFundBalancesEOYAmt0891560
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt022175
IRS990/NetGainOrLossInvestmentsGrp/RelatedOrExemptFuncIncomeAmt00
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt022175
IRS990/NetGainOrLossInvestmentsGrp/UnrelatedBusinessRevenueAmt00
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt021708
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt021708
IRS990/NetIncmFromFundraisingEvtGrp/UnrelatedBusinessRevenueAmt00
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt035302
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt0331904
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt0437830
IRS990/NondeductibleContributionsInd0false
IRS990/OccupancyGrp/FundraisingAmt04746
IRS990/OccupancyGrp/ManagementAndGeneralAmt04180
IRS990/OccupancyGrp/ProgramServicesAmt06187
IRS990/OccupancyGrp/TotalAmt015113
IRS990/OfficeExpensesGrp/FundraisingAmt02916
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt02568
IRS990/OfficeExpensesGrp/ProgramServicesAmt03800
IRS990/OfficeExpensesGrp/TotalAmt09284
IRS990/OfficerMailingAddressInd0false
IRS990/OperateHospitalInd0false
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt0345
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt0303
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt0449
IRS990/OtherEmployeeBenefitsGrp/TotalAmt01097
IRS990/OtherExpensesGrp/Desc0PRINTING AND POSTAGE
IRS990/OtherExpensesGrp/Desc1CONTRACT SERVICES
IRS990/OtherExpensesGrp/FundraisingAmt01403
IRS990/OtherExpensesGrp/FundraisingAmt11983
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt0701
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt10
IRS990/OtherExpensesGrp/ProgramServicesAmt01403
IRS990/OtherExpensesGrp/ProgramServicesAmt10
IRS990/OtherExpensesGrp/TotalAmt03507
IRS990/OtherExpensesGrp/TotalAmt11983
IRS990/OtherLiabilitiesGrp/BOYAmt025000
IRS990/OtherLiabilitiesGrp/EOYAmt025000
IRS990/OtherWebsiteInd0X
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd0false
IRS990/PaymentsToAffiliatesGrp/FundraisingAmt00
IRS990/PaymentsToAffiliatesGrp/ManagementAndGeneralAmt025000
IRS990/PaymentsToAffiliatesGrp/ProgramServicesAmt00
IRS990/PaymentsToAffiliatesGrp/TotalAmt025000
IRS990/PayPremiumsPrsnlBnftCntrctInd0false
IRS990/PayrollTaxesGrp/FundraisingAmt02258
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt01989
IRS990/PayrollTaxesGrp/ProgramServicesAmt02944
IRS990/PayrollTaxesGrp/TotalAmt07191
IRS990/PensionPlanContributionsGrp/FundraisingAmt0384
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt0338
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt0500
IRS990/PensionPlanContributionsGrp/TotalAmt01222
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt010561
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt016650
IRS990/PoliticalCampaignActyInd0false
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt06014
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt09476
IRS990/PrincipalOfficerNm0ANNE SWEENEY
IRS990/ProfessionalFundraisingInd0false
IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYContributionsGrantsAmt090188
IRS990/PYExcessBenefitTransInd0false
IRS990/PYGrantsAndSimilarPaidAmt020207
IRS990/PYInvestmentIncomeAmt016054
IRS990/PYOtherExpensesAmt072696
IRS990/PYOtherRevenueAmt064075
IRS990/PYProgramServiceRevenueAmt01561
IRS990/PYRevenuesLessExpensesAmt0-21254
IRS990/PYSalariesCompEmpBnftPaidAmt0100229
IRS990/PYTotalExpensesAmt0193132
IRS990/PYTotalRevenueAmt0171878
IRS990/QuidProQuoContributionsInd0true
IRS990/QuidProQuoContriDisclInd0true
IRS990/RcvFndsToPayPrsnlBnftCntrctInd0false
IRS990/ReconcilationRevenueExpnssAmt0112642
IRS990/RegularMonitoringEnfrcInd0true
IRS990/RelatedEntityInd0true
IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/RelatedOrganizationsAmt05120
IRS990/ReportInvestmentsOtherSecInd0false
IRS990/ReportLandBuildingEquipmentInd0true
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0true
IRS990/ReportProgramRelatedInvstInd0false
IRS990/RevenueAmt0295424
IRS990/SavingsAndTempCashInvstGrp/BOYAmt05005
IRS990/SavingsAndTempCashInvstGrp/EOYAmt05005
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt00
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt0182147
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt091749
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt072285
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt0108389
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt0105451
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt0560021
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt032946
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt016054
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt028464
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt029105
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt019166
IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt0125735
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearAmt024806
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus1YearAmt064475
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus2YearsAmt0324171
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus3YearsAmt0276984
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus4YearsAmt0293869
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt0984305
IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/TotalAmt00
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt032946
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt016054
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt028464
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt029105
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt019166
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt0125735
IRS990ScheduleA/InvestmentIncomeCYPct00.07530
IRS990ScheduleA/InvestmentIncomePYPct00.05300
IRS990ScheduleA/OtherSupportSumAmt00
IRS990ScheduleA/PubliclySupportedOrg509a2Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00
IRS990ScheduleA/PublicSupportCY509Pct00.92470
IRS990ScheduleA/PublicSupportPY509Pct00.94700
IRS990ScheduleA/PublicSupportTotal509Amt01544326
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/TotalAmt00
IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt00
IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft509Grp/TotalAmt00
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind0X
IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt0206953
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt0156224
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt0396456
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt0385373
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt0399320
IRS990ScheduleA/Total509Grp/TotalAmt01544326
IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt01670061
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd0true
IRS990ScheduleD/CYEndwmtFundGrp/BeginningYearBalanceAmt0426914
IRS990ScheduleD/CYEndwmtFundGrp/EndYearBalanceAmt0448725
IRS990ScheduleD/CYEndwmtFundGrp/GrantsOrScholarshipsAmt020207
IRS990ScheduleD/CYEndwmtFundGrp/InvestmentEarningsOrLossesAmt042018
IRS990ScheduleD/CYMinus1YrEndwmtFundGrp/BeginningYearBalanceAmt0414096
IRS990ScheduleD/CYMinus1YrEndwmtFundGrp/EndYearBalanceAmt0426914
IRS990ScheduleD/CYMinus1YrEndwmtFundGrp/GrantsOrScholarshipsAmt019720
IRS990ScheduleD/CYMinus1YrEndwmtFundGrp/InvestmentEarningsOrLossesAmt032538
IRS990ScheduleD/CYMinus2YrEndwmtFundGrp/BeginningYearBalanceAmt0371451
IRS990ScheduleD/CYMinus2YrEndwmtFundGrp/EndYearBalanceAmt0414096
IRS990ScheduleD/CYMinus2YrEndwmtFundGrp/GrantsOrScholarshipsAmt018700
IRS990ScheduleD/CYMinus2YrEndwmtFundGrp/InvestmentEarningsOrLossesAmt061345
IRS990ScheduleD/CYMinus3YrEndwmtFundGrp/BeginningYearBalanceAmt0413629
IRS990ScheduleD/CYMinus3YrEndwmtFundGrp/EndYearBalanceAmt0371451
IRS990ScheduleD/CYMinus3YrEndwmtFundGrp/GrantsOrScholarshipsAmt014009
IRS990ScheduleD/CYMinus3YrEndwmtFundGrp/InvestmentEarningsOrLossesAmt0-28169
IRS990ScheduleD/CYMinus4YrEndwmtFundGrp/BeginningYearBalanceAmt0372372
IRS990ScheduleD/CYMinus4YrEndwmtFundGrp/EndYearBalanceAmt0413629
IRS990ScheduleD/CYMinus4YrEndwmtFundGrp/GrantsOrScholarshipsAmt010000
IRS990ScheduleD/CYMinus4YrEndwmtFundGrp/InvestmentEarningsOrLossesAmt051257
IRS990ScheduleD/EndowmentsHeldRelatedOrgInd0false
IRS990ScheduleD/EndowmentsHeldUnrelatedOrgInd0false
IRS990ScheduleD/EquipmentGrp/BookValueAmt01366
IRS990ScheduleD/EquipmentGrp/DepreciationAmt012673
IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt014039
IRS990ScheduleD/LandGrp/BookValueAmt00

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2021 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$981,565
Liabilities
$90,005
Net assets
$891,560
Revenue
$295,424
Expenses
$182,782
Net income
$112,642
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2023Detailed filing. Detailed filing data is available for this year.$0.00$0.00$0.00$0.17$0.11$0.06
2022Detailed filing. Detailed filing data is available for this year.$9.41$0.88$8.53$2.17$1.63$0.53
2021Detailed filing. Detailed filing data is available for this year.$9.82$0.90$8.92$2.95$1.83$1.13
2020Detailed filing. Detailed filing data is available for this year.$8.42$0.98$7.44$1.72$1.93$0.21
2019Detailed filing. Detailed filing data is available for this year.$8.38$1.09$7.29$3.53$3.21$0.32
2018Detailed filing. Detailed filing data is available for this year.$7.10$0.73$6.37$3.50$3.48$0.03
2017Detailed filing. Detailed filing data is available for this year.$8.61$1.53$7.08$3.41$3.61$0.20
2016Detailed filing. Detailed filing data is available for this year.$8.29$1.60$6.69$3.44$3.75$0.32
2015Detailed filing. Detailed filing data is available for this year.$7.79$1.13$6.66$3.79$3.20$0.59
2014Detailed filing. Detailed filing data is available for this year.$7.56$1.11$6.44$3.17$3.02$0.15
2013Detailed filing. Detailed filing data is available for this year.$7.78$1.55$6.23$4.14$3.55$0.58
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$6.72$0.96$5.76$3.77
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$7.55$0.00$7.55$1.44
2010Summary only. Only limited summary data is available for this year.$5.99$0.00$5.99$3.44$3.38$0.06