Civic Intelligence

Scleroderma Foundation New England Inc.

990 • Fiscal year 2020 • EIN 22-2603572

Jan 01, 2020 to Dec 31, 2020 • Filed on May 04, 2021

Organization Profilewww.scleroderma.org
462 Boston StreetTopsfield, MA 01983-1200

(978) 887-0658

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

61st percentile

0.12x

Higher debt load relative to assets than 61% of similar nonprofits.

2020 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2020

Liabilities / Revenue

85th percentile

0.57x

Higher debt load relative to revenue than 85% of similar nonprofits.

2020 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2020

Net Margin

21st percentile

-12%

Higher net margin than 21% of similar nonprofits.

2020 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2020

Top Officer Pay

81st percentile

$79,569

Higher top officer pay than 81% of similar nonprofits.

Top officer pay equals 46.3% of source-year revenue.

2020 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2020

Asset Growth

35th percentile

0.5%

Faster asset growth than 35% of similar nonprofits.

2020 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2019 to 2020

Revenue Growth

9th percentile

-51%

Faster revenue growth than 9% of similar nonprofits.

2020 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2019 to 2020

Balance Sheet
Liabilities / Assets61st percentile

Assets

Up

$842,101

Up $4,112 (+0.5%) from 2019

Net Assets

Up

$743,616

Up $14,284 (+2.0%) from 2019

Liabilities

Down

$98,485

Down $10,172 (-9.4%) from 2019

Revenue And Expenses
Liabilities / Revenue85th percentileNet Margin21st percentile

Revenue

Down

$171,878

Down $181,032 (-51%) from 2019

Expenses

Down

$193,132

Down $127,632 (-40%) from 2019

Net Income

Down

-$21,254

Down $53,400 (-166%) from 2019

Historical Trend

Balance Sheet Trend

Asset Growth35th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.0M$500K$0Assets 2010: $599,022Liabilities 2010: $0Net Assets 2010: $599,0222010Assets 2011: $754,745Liabilities 2011: $0Net Assets 2011: $754,7452011Assets 2012: $671,985Liabilities 2012: $96,065Net Assets 2012: $575,9202012Assets 2013: $778,262Liabilities 2013: $155,362Net Assets 2013: $622,9002013Assets 2014: $755,658Liabilities 2014: $111,285Net Assets 2014: $644,3732014Assets 2015: $778,703Liabilities 2015: $112,732Net Assets 2015: $665,9712015Assets 2016: $828,869Liabilities 2016: $159,589Net Assets 2016: $669,2802016Assets 2017: $861,135Liabilities 2017: $153,288Net Assets 2017: $707,8472017Assets 2018: $710,223Liabilities 2018: $72,996Net Assets 2018: $637,2272018Assets 2019: $837,989Liabilities 2019: $108,657Net Assets 2019: $729,3322019Assets 2020: $842,101Liabilities 2020: $98,485Net Assets 2020: $743,6162020Assets 2021: $981,565Liabilities 2021: $90,005Net Assets 2021: $891,5602021Assets 2022: $941,134Liabilities 2022: $87,782Net Assets 2022: $853,3522022Assets 2023: $0Liabilities 2023: $0Net Assets 2023: $02023

Highlighted filing

2020

Assets$842,101
Liabilities$98,485
Net Assets$743,616
Open 2020 Filing

Operations Trend

Revenue Growth9th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$600K$400K$200K$0-$200KRevenue 2010: $344,258Expenses 2010: $338,119Net Income 2010: $6,1392010Expenses 2011: $144,0512011Expenses 2012: $377,4682012Revenue 2013: $413,924Expenses 2013: $355,473Net Income 2013: $58,4512013Revenue 2014: $316,702Expenses 2014: $302,157Net Income 2014: $14,5452014Revenue 2015: $378,749Expenses 2015: $320,023Net Income 2015: $58,7262015Revenue 2016: $343,809Expenses 2016: $375,381Net Income 2016: -$31,5722016Revenue 2017: $340,772Expenses 2017: $361,234Net Income 2017: -$20,4622017Revenue 2018: $350,335Expenses 2018: $347,506Net Income 2018: $2,8292018Revenue 2019: $352,910Expenses 2019: $320,764Net Income 2019: $32,1462019Revenue 2020: $171,878Expenses 2020: $193,132Net Income 2020: -$21,2542020Revenue 2021: $295,424Expenses 2021: $182,782Net Income 2021: $112,6422021Revenue 2022: $216,536Expenses 2022: $163,041Net Income 2022: $53,4952022Revenue 2023: $16,749Expenses 2023: $11,040Net Income 2023: $5,7092023

Highlighted filing

2020

Revenue$171,878
Expenses$193,132
Net Income-$21,254
Open 2020 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2020 to Dec 31, 2020
Signed
May 4, 2021
Return Version
2020v4.1
Gross Receipts
$224,137
Mission and Program Overview

Mission

Provide educational and emotional support to people with scleroderma and their families; to stimulate and support research designed to identify the cause and cure of scleroderma; and to

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$587,046$614,650▲ $27,604
Cash and Non-Interest-Bearing Accounts$239,216$209,022▼ $30,194
Pledges and Grants Receivable$5,500$10,561▲ $5,061
Prepaid Expenses and Deferred Charges$5,000$6,014▲ $1,014
Land, Buildings, and Equipment, Net$1,227$1,854▲ $627
Total Assets$837,989$842,101▲ $4,112
Liabilities
Unsecured Notes Loans Payable$0$35,232▲ $35,232
Other Liabilities$25,000$25,000→ $0
Grants Payable$51,375$21,582▼ $29,793
Accounts Payable and Accrued Expenses$32,282$16,671▼ $15,611
Total Liabilities$108,657$98,485▼ $10,172
Net Assets / Fund Balance
Net Assets With Donor Restrictions$399,379$411,712▲ $12,333
Net Assets Without Donor Restrictions$329,953$331,904▲ $1,951
Total Net Assets Fund Balance$729,332$743,616▲ $14,284
Total Liabilities and Net Assets / Fund Balance$837,989$842,101▲ $4,112

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$1,854$12,185$14,039
Land$0--

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2020$414,096-▲ $32,538-$426,914
2019$371,451-▲ $61,345-$414,096
2018$413,629-▼ $28,169-$371,451
2017$372,372-▲ $51,257-$413,629
2016$351,518-▲ $20,854-$372,372
Compensation and Service Providers
Top Officer Pay81st percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Lindsay De SantisExecutive DirectorFT$76,449$3,120$79,569

Board Members and Trustees

NameTitle
Don LegerePresident
Jane LadasVice President
Andrea MahoneyDirector
Anthony CappellucciDirector
Brenda BrownDirector
Carla KingDirector
Chris SimmsDirector
David RosenbergDirector
Elysia CappellucciDirector
Scott WinslowDirector
Zak KarsanDirector
Steve LangClerk
Revenue and Support

Revenue Composition

Contributions and Grants
$90,188
Program Service Revenue
$1,561
Investment Income
$16,054
Other Revenue
$64,075
All Other Contributions
$83,290
Change in Net Assets
$-21,254
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$100,229
Other Expenses$72,696
Total Fundraising Expense$44,511
Grants and Similar Amounts Paid$20,207
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Current Officers, Directors, Trustees, and Key Employees$32,667$19,445$25,667$77,779
Payments to Affiliates$0$25,000$0$25,000
Grants to Domestic Orgs$20,207--$20,207
Occupancy$6,829$4,065$5,365$16,259
Office Expenses$4,556$2,712$3,580$10,848
Comp Disqual Persons$3,675$2,187$2,888$8,750
Payroll Taxes$3,517$2,094$2,764$8,375
Fees for Services Accounting$0$7,748$0$7,748
Other Expenses$2,490$1,259$2,490$6,239
Fees for Service Investment Mgmnt Fees$0$4,128$0$4,128
Other Employee Benefits$1,434$853$1,126$3,413
Pension Plan Contributions$803$478$631$1,912
Conferences and Meetings$97$1,420$0$1,517
Depreciation Depletion$0$957$0$957
Total Functional Expenses$76,275$72,346$44,511$193,132
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Scleroderma Foundation IncDanvers, MA501(c)(3)Research$20,207
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$64,475
Fundraising Direct Expenses$400
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Southie Swims$18,705$18,705-$18,705
Walk Boston$10,790$10,790-$10,790
Total Events$50,944$50,944-$50,944
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
-National ChapterNational Office SupportNo$25,000
-National ChapterResearch GrantNo$20,207
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Accrued Affiliate Support$25,000
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
Yes
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No
Filing and Contact Details

Filer

Filer Name
Scleroderma Foundationnew England Inc
EIN
22-2603572
Phone
9788870658
Address
462 BOSTON STREET, TOPSFIELD, MA 01983-1200

Signing Officer

Name
Jane Ladas
Title
President
Phone
9788870658
Signed
2021-05-04
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Lindsay Desantis
Formed
1985
Legal Domicile
Ma
Voting Board Members
12
Independent Board Members
12
Employees
2
Volunteers
30

Preparer

Firm
Bernard Johnson & Company Pc
Address
15 MAIN STREET, TOPSFIELD, MA 01983
Preparer
Julie A Couto CPA
Phone
9788872220
Supplemental Narrative

Additional Explanations

Pt VI, Line 11B

“The board of directors are provided a draft copy of the federal form 990 prior to finalization. The form 990 is reviewed and approved by the executive director and board treasurer. The preparer of the form 990 is notified the return has been approved and may be finalized.”

Pt VI, Line 12C

“Board members, committee members and employees are required annually to disclose actual or potential conflicts of interest. Identified conflicts are resolved by action of the board president and executive director.”

Pt VI, Line 15A

“The executive director is hired through a rigorous board approval process.”

Raw XML AppendixShowing 400 of 580 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/OfficeExpensesGrp/FundraisingAmt03580
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IRS990/OperateHospitalInd0false
IRS990/Organization501c3Ind0X
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IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt0853
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IRS990/OtherExpensesGrp/Desc0PRINTING AND POSTAGE
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IRS990/OtherWebsiteInd0X
IRS990/OwnWebsiteInd0X
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IRS990/PayPremiumsPrsnlBnftCntrctInd0false
IRS990/PayrollTaxesGrp/FundraisingAmt02764
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IRS990/PayrollTaxesGrp/TotalAmt08375
IRS990/PensionPlanContributionsGrp/FundraisingAmt0631
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt0478
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IRS990/PoliticalCampaignActyInd0false
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt05000
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt06014
IRS990/PrincipalOfficerNm0LINDSAY DESANTIS
IRS990/ProfessionalFundraisingInd0false
IRS990/ProgramServiceRevenueGrp/BusinessCd0813212
IRS990/ProgramServiceRevenueGrp/Desc0PATIENT SEMINARS
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IRS990/PYOtherExpensesAmt0101565
IRS990/PYOtherRevenueAmt0245822
IRS990/PYProgramServiceRevenueAmt011000
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IRS990/PYSalariesCompEmpBnftPaidAmt0169199
IRS990/PYTotalExpensesAmt0320764
IRS990/PYTotalRevenueAmt0352910
IRS990/QuidProQuoContributionsInd0true
IRS990/QuidProQuoContriDisclInd0true
IRS990/RcvFndsToPayPrsnlBnftCntrctInd0false
IRS990/ReconcilationRevenueExpnssAmt0-21254
IRS990/RegularMonitoringEnfrcInd0true
IRS990/RelatedEntityInd0true
IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/RelatedOrganizationsAmt06098
IRS990/ReportInvestmentsOtherSecInd0false
IRS990/ReportLandBuildingEquipmentInd0true
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0true
IRS990/ReportProgramRelatedInvstInd0false
IRS990/RevenueAmt0171879
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt00
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt092442
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IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt0108389
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt0105451
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt0106710
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IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt016054
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt028464
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt029105
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt019166
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt05121
IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt097910
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearAmt064475
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus1YearAmt0324171
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus2YearsAmt0276984
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus3YearsAmt0293869
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus4YearsAmt0303261
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt01262760
IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/TotalAmt00
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt016054
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt028464
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt029105
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt019166
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt05121
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt097910
IRS990ScheduleA/InvestmentIncomeCYPct00.05300
IRS990ScheduleA/InvestmentIncomePYPct00.05160
IRS990ScheduleA/OtherSupportSumAmt00
IRS990ScheduleA/PubliclySupportedOrg509a2Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00
IRS990ScheduleA/PublicSupportCY509Pct00.94700
IRS990ScheduleA/PublicSupportPY509Pct00.94840
IRS990ScheduleA/PublicSupportTotal509Amt01748037
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/TotalAmt00
IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt00
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IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt0409971
IRS990ScheduleA/Total509Grp/TotalAmt01748037
IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt01845947
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IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
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IRS990/ScheduleBRequiredInd0true
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IRS990ScheduleD/CYEndwmtFundGrp/EndYearBalanceAmt0426914
IRS990ScheduleD/CYEndwmtFundGrp/GrantsOrScholarshipsAmt019720
IRS990ScheduleD/CYEndwmtFundGrp/InvestmentEarningsOrLossesAmt032538
IRS990ScheduleD/CYMinus1YrEndwmtFundGrp/BeginningYearBalanceAmt0371451
IRS990ScheduleD/CYMinus1YrEndwmtFundGrp/EndYearBalanceAmt0414096
IRS990ScheduleD/CYMinus1YrEndwmtFundGrp/GrantsOrScholarshipsAmt018700
IRS990ScheduleD/CYMinus1YrEndwmtFundGrp/InvestmentEarningsOrLossesAmt061345
IRS990ScheduleD/CYMinus2YrEndwmtFundGrp/BeginningYearBalanceAmt0413629
IRS990ScheduleD/CYMinus2YrEndwmtFundGrp/EndYearBalanceAmt0371451
IRS990ScheduleD/CYMinus2YrEndwmtFundGrp/GrantsOrScholarshipsAmt014009
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IRS990ScheduleD/CYMinus3YrEndwmtFundGrp/BeginningYearBalanceAmt0372372
IRS990ScheduleD/CYMinus3YrEndwmtFundGrp/EndYearBalanceAmt0413629
IRS990ScheduleD/CYMinus3YrEndwmtFundGrp/GrantsOrScholarshipsAmt010000
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IRS990ScheduleD/CYMinus4YrEndwmtFundGrp/BeginningYearBalanceAmt0351518
IRS990ScheduleD/CYMinus4YrEndwmtFundGrp/EndYearBalanceAmt0372372
IRS990ScheduleD/CYMinus4YrEndwmtFundGrp/InvestmentEarningsOrLossesAmt020854
IRS990ScheduleD/EndowmentsHeldRelatedOrgInd0false

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2020 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$842,101
Liabilities
$98,485
Net assets
$743,616
Revenue
$171,878
Expenses
$193,132
Net income
-$21,254
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2023Detailed filing. Detailed filing data is available for this year.$0.00$0.00$0.00$0.17$0.11$0.06
2022Detailed filing. Detailed filing data is available for this year.$9.41$0.88$8.53$2.17$1.63$0.53
2021Detailed filing. Detailed filing data is available for this year.$9.82$0.90$8.92$2.95$1.83$1.13
2020Detailed filing. Detailed filing data is available for this year.$8.42$0.98$7.44$1.72$1.93$0.21
2019Detailed filing. Detailed filing data is available for this year.$8.38$1.09$7.29$3.53$3.21$0.32
2018Detailed filing. Detailed filing data is available for this year.$7.10$0.73$6.37$3.50$3.48$0.03
2017Detailed filing. Detailed filing data is available for this year.$8.61$1.53$7.08$3.41$3.61$0.20
2016Detailed filing. Detailed filing data is available for this year.$8.29$1.60$6.69$3.44$3.75$0.32
2015Detailed filing. Detailed filing data is available for this year.$7.79$1.13$6.66$3.79$3.20$0.59
2014Detailed filing. Detailed filing data is available for this year.$7.56$1.11$6.44$3.17$3.02$0.15
2013Detailed filing. Detailed filing data is available for this year.$7.78$1.55$6.23$4.14$3.55$0.58
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$6.72$0.96$5.76$3.77
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$7.55$0.00$7.55$1.44
2010Summary only. Only limited summary data is available for this year.$5.99$0.00$5.99$3.44$3.38$0.06