Liabilities / Assets
67th percentile
Higher debt load relative to assets than 67% of similar nonprofits.
990 • Fiscal year 2019 • EIN 22-2603572
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
67th percentile
Higher debt load relative to assets than 67% of similar nonprofits.
Liabilities / Revenue
81st percentile
Higher debt load relative to revenue than 81% of similar nonprofits.
Net Margin
62nd percentile
Higher net margin than 62% of similar nonprofits.
Top Officer Pay
89th percentile
Higher top officer pay than 89% of similar nonprofits.
Top officer pay equals 30.3% of source-year revenue.
Asset Growth
75th percentile
Faster asset growth than 75% of similar nonprofits.
Revenue Growth
42nd percentile
Faster revenue growth than 42% of similar nonprofits.
Assets
Up$837,989
Up $127,766 (+18%) from 2018
Net Assets
Up$729,332
Up $92,105 (+14%) from 2018
Liabilities
Up$108,657
Up $35,661 (+49%) from 2018
Revenue
Up$352,910
Up $2,575 (+0.7%) from 2018
Expenses
Down$320,764
Down $26,742 (-7.7%) from 2018
Net Income
Up$32,146
Up $29,317 (+1036%) from 2018
Provide educational and emotional support to people with scleroderma and their families; to stimulate and support research designed to identify the cause and cure of scleroderma; and to
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Investments in Publicly Traded Securities | $520,218 | $587,046 | ▲ $66,828 |
| Cash and Non-Interest-Bearing Accounts | $140,634 | $239,216 | ▲ $98,582 |
| Savings and Temporary Cash Investments | $30,885 | $0 | ▼ $30,885 |
| Pledges and Grants Receivable | $10,833 | $5,500 | ▼ $5,333 |
| Prepaid Expenses and Deferred Charges | $5,000 | $5,000 | → $0 |
| Land, Buildings, and Equipment, Net | $2,653 | $1,227 | ▼ $1,426 |
| Total Assets | $710,223 | $837,989 | ▲ $127,766 |
| Liabilities | |||
| Grants Payable | $19,432 | $51,375 | ▲ $31,943 |
| Accounts Payable and Accrued Expenses | $28,564 | $32,282 | ▲ $3,718 |
| Other Liabilities | $25,000 | $25,000 | → $0 |
| Total Liabilities | $72,996 | $108,657 | ▲ $35,661 |
| Net Assets / Fund Balance | |||
| Net Assets With Donor Restrictions | $357,872 | $399,379 | ▲ $41,507 |
| Net Assets Without Donor Restrictions | $279,355 | $329,953 | ▲ $50,598 |
| Total Net Assets Fund Balance | $637,227 | $729,332 | ▲ $92,105 |
| Total Liabilities and Net Assets / Fund Balance | $710,223 | $837,989 | ▲ $127,766 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Equipment | $1,227 | $11,228 | $12,455 |
| Land | $0 | - | - |
| Period | Beginning | Contrib. | Gain/Loss | Other Uses | End |
|---|---|---|---|---|---|
| 2019 | $371,451 | - | ▲ $61,345 | - | $414,096 |
| 2018 | $413,629 | - | ▼ $28,169 | - | $371,451 |
| 2017 | $372,372 | - | ▲ $51,257 | - | $413,629 |
| 2016 | $351,518 | - | ▲ $20,854 | - | $372,372 |
| 2015 | $362,529 | - | ▼ $11,011 | - | $351,518 |
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Jack Armitage | Former Executive Director | FT | $95,285 | $11,725 | $107,010 |
| Lindsay De Santis | Executive Director | FT | $7,601 | - | $7,601 |
| Name | Title |
|---|---|
| Don Legere | President |
| Jane Ladas | Vice President |
| Andrea Mahoney | Director |
| Anthony Cappellucci | Director |
| Brenda Brown | Director |
| Chris Simms | Director |
| Joan Meissner | Director |
| Zak Karsan | Director |
| Steve Lang | Clerk |
| Jeff Daddio | Treasurer |
| Line Item | Amount |
|---|---|
| Salaries, Compensation, and Employee Benefits | $169,199 |
| Other Expenses | $101,565 |
| Total Fundraising Expense | $86,179 |
| Grants and Similar Amounts Paid | $50,000 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Current Officers, Directors, Trustees, and Key Employees | $43,212 | $25,721 | $33,952 | $102,885 |
| Grants to Domestic Orgs | $50,000 | - | - | $50,000 |
| Other Salaries and Wages | $9,769 | $9,770 | $19,539 | $39,078 |
| Payments to Affiliates | $0 | $25,000 | $0 | $25,000 |
| Office Expenses | $6,594 | $4,417 | $6,659 | $17,670 |
| Occupancy | $6,122 | $4,102 | $6,180 | $16,404 |
| Payroll Taxes | $4,606 | $3,086 | $4,651 | $12,343 |
| Other Employee Benefits | $4,357 | $2,918 | $4,399 | $11,674 |
| Other Expenses | $2,744 | $2,744 | $5,487 | $10,975 |
| Fees for Services Accounting | $0 | $5,751 | $0 | $5,751 |
| Fees for Service Investment Mgmnt Fees | $0 | $4,181 | $0 | $4,181 |
| Pension Plan Contributions | $1,201 | $805 | $1,213 | $3,219 |
| Conferences and Meetings | $1,936 | $85 | $0 | $2,021 |
| Depreciation Depletion | $0 | $1,426 | $0 | $1,426 |
| Fees for Services Other | $0 | $325 | $0 | $325 |
| Total Functional Expenses | $134,640 | $99,945 | $86,179 | $320,764 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Scleroderma Foundation Inc | Danvers, MA | 501(c)(3) | Research | $50,000 |
| Line Item | Amount |
|---|---|
| Fundraising Gross Income | $324,171 |
| Fundraising Direct Expenses | $78,349 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Sfne Golf Tournament | $177,884 | $177,884 | $12,558 | $165,326 |
| Walk Worcester | $47,837 | $47,837 | $666 | $47,171 |
| Total Events | $264,384 | $264,384 | $79,609 | $184,775 |
| Interested Party | Relationship | Description | Shared Revenue | Amount |
|---|---|---|---|---|
| - | National Chapter | Research Grant | No | $50,000 |
| - | National Chapter | National Office Support | No | $25,000 |
| Liability | Amount |
|---|---|
| Accrued Affiliate Support | $25,000 |
“The board of directors are provided a draft copy of the federal form 990 prior to finalization. The form 990 is reviewed and approved by the executive director and board treasurer. The preparer of the form 990 is notified the return has been approved and may be finalized.”
“Board members, committee members and employees are required annually to disclose actual or potential conflicts of interest. Identified conflicts are resolved by action of the board president and executive director.”
“The executive director is hired through a rigorous board approval process.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | true |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 28564 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 32282 |
| IRS990/AcctCompileOrReviewBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | PROVIDE EDUCATIONAL AND EMOTIONAL SUPPORT TO PEOPLE WITH SCLERODERMA AND THEIR FAMILIES; TO STIMULATE AND SUPPORT RESEARCH DESIGNED TO IDENTIFY THE CAUSE AND CURE OF SCLERODERMA; AND TO |
| IRS990/AllOtherContributionsAmt | 0 | 64048 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/AuditCommitteeInd | 0 | true |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | LINDSAY DESANTIS |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 9788870658 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 462 BOSTON STREET |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | TOPSFIELD |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | MA |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 01983 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | false |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 140634 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 239216 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 33952 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 25721 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 43212 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 102885 |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | true |
| IRS990/CompensationProcessOtherInd | 0 | false |
| IRS990/ConferencesMeetingsGrp/FundraisingAmt | 0 | 0 |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 85 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 1936 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 2021 |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 66123 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 50000 |
| IRS990/CYInvestmentIncomeAmt | 0 | 29965 |
| IRS990/CYOtherExpensesAmt | 0 | 101565 |
| IRS990/CYOtherRevenueAmt | 0 | 245822 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 11000 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 32146 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 169199 |
| IRS990/CYTotalExpensesAmt | 0 | 320764 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 86179 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 352910 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/DepreciationDepletionGrp/FundraisingAmt | 0 | 0 |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 1426 |
| IRS990/DepreciationDepletionGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 1426 |
| IRS990/Desc | 0 | PROVIDE COUNSELING TO PATIENTS AND FAMILY MEMBERS WITH SCLERODERMA. ADDITIONALLY THE ORGANIZATION DONATES FUNDS TO THE NATIONAL SCLERODERMA FOUNDATION TO FUND RESEARCH. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | true |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/DonorRestrictionNetAssetsGrp/BOYAmt | 0 | 357872 |
| IRS990/DonorRestrictionNetAssetsGrp/EOYAmt | 0 | 399379 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | true |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 5 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | true |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 134640 |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/FundraisingAmt | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 5751 |
| IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 5751 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 0 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 325 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 325 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/FundraisingAmt | 0 | 0 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/ManagementAndGeneralAmt | 0 | 4181 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt | 0 | 4181 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 11725 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | DON LEGERE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | JEFF DADDIO |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | JANE LADAS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | STEVE LANG |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | BRENDA BROWN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | ANDREA MAHONEY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | CHRIS SIMMS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | JOAN MEISSNER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | ANTHONY CAPPELLUCCI |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | ZAK KARSAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | LINDSAY DE SANTIS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | JACK ARMITAGE |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 7601 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 95285 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | PRESIDENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | VICE PRESIDENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | CLERK |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | EXECUTIVE DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | FORMER EXECUTIVE DIRECTOR |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/FormationYr | 0 | 1985 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedInd | 0 | false |
| IRS990/FundraisingActivitiesInd | 0 | true |
| IRS990/FundraisingDirectExpensesAmt | 0 | 78349 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 324171 |
| IRS990/GainOrLossGrp/OtherAmt | 0 | 15174 |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 10 |
| IRS990/GrantAmt | 0 | 50000 |
| IRS990/GrantsPayableGrp/BOYAmt | 0 | 19432 |
| IRS990/GrantsPayableGrp/EOYAmt | 0 | 51375 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 50000 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 50000 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | true |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossAmountSalesAssetsGrp/OtherAmt | 0 | 387645 |
| IRS990/GrossReceiptsAmt | 0 | 803730 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | true |
| IRS990/IndependentAuditFinclStmtInd | 0 | false |
| IRS990/IndependentVotingMemberCnt | 0 | 10 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 14791 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 14791 |
| IRS990/InvestmentIncomeGrp/UnrelatedBusinessRevenueAmt | 0 | 0 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 520218 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 587046 |
| IRS990/IRPDocumentCnt | 0 | 1 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 11228 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 2653 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 1227 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 12455 |
| IRS990/LegalDomicileStateCd | 0 | MA |
| IRS990/LessCostOthBasisSalesExpnssGrp/OtherAmt | 0 | 372471 |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembershipDuesAmt | 0 | 2075 |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | PROVIDE EDUCATIONAL AND EMOTIONAL SUPPORT TO PEOPLE WITH SCLERODERMA AND THEIR FAMILIES; TO STIMULATE AND SUPPORT RESEARCH DESIGNED TO IDENTIFY THE CAUSE AND CURE OF SCLERODERMA; AND TO |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 637227 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 729332 |
| IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt | 0 | 15174 |
| IRS990/NetGainOrLossInvestmentsGrp/RelatedOrExemptFuncIncomeAmt | 0 | 0 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | 15174 |
| IRS990/NetGainOrLossInvestmentsGrp/UnrelatedBusinessRevenueAmt | 0 | 0 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | 245822 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 245822 |
| IRS990/NetIncmFromFundraisingEvtGrp/UnrelatedBusinessRevenueAmt | 0 | 0 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | 59959 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 279355 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 329953 |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 6180 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 4102 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 6122 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 16404 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 6659 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 4417 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 6594 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 17670 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 4399 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 2918 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 4357 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 11674 |
| IRS990/OtherExpensesGrp/Desc | 0 | PRINTING AND POSTAGE |
| IRS990/OtherExpensesGrp/Desc | 1 | CONTRACT SERVICES |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 4099 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 5487 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 9614 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 2744 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 4099 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 2744 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 17812 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 10975 |
| IRS990/OtherLiabilitiesGrp/BOYAmt | 0 | 25000 |
| IRS990/OtherLiabilitiesGrp/EOYAmt | 0 | 25000 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 19539 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 9770 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 9769 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 39078 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/OwnWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PaymentsToAffiliatesGrp/FundraisingAmt | 0 | 0 |
| IRS990/PaymentsToAffiliatesGrp/ManagementAndGeneralAmt | 0 | 25000 |
| IRS990/PaymentsToAffiliatesGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/PaymentsToAffiliatesGrp/TotalAmt | 0 | 25000 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 4651 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 3086 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 4606 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 12343 |
| IRS990/PensionPlanContributionsGrp/FundraisingAmt | 0 | 1213 |
| IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt | 0 | 805 |
| IRS990/PensionPlanContributionsGrp/ProgramServicesAmt | 0 | 1201 |
| IRS990/PensionPlanContributionsGrp/TotalAmt | 0 | 3219 |
| IRS990/PledgesAndGrantsReceivableGrp/BOYAmt | 0 | 10833 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 5500 |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 5000 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 5000 |
| IRS990/PrincipalOfficerNm | 0 | LINDSAY DESANTIS |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 0 | 813212 |
| IRS990/ProgramServiceRevenueGrp/Desc | 0 | PATIENT SEMINARS |
| IRS990/ProgramServiceRevenueGrp/ExclusionAmt | 0 | 0 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 0 | 11000 |
| IRS990/ProgramServiceRevenueGrp/UnrelatedBusinessRevenueAmt | 0 | 0 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 100420 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 25000 |
| IRS990/PYInvestmentIncomeAmt | 0 | 42627 |
| IRS990/PYOtherExpensesAmt | 0 | 114867 |
| IRS990/PYOtherRevenueAmt | 0 | 199319 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 7969 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 2829 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 207639 |
| IRS990/PYTotalExpensesAmt | 0 | 347506 |
| IRS990/PYTotalRevenueAmt | 0 | 350335 |
| IRS990/QuidProQuoContributionsInd | 0 | true |
| IRS990/QuidProQuoContriDisclInd | 0 | true |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | false |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 32146 |
| IRS990/RegularMonitoringEnfrcInd | 0 | true |
| IRS990/RelatedEntityInd | 0 | true |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | false |
| IRS990/ReportLandBuildingEquipmentInd | 0 | true |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | true |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990/RevenueAmt | 0 | 352910 |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 30885 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 0 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt | 0 | 72285 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt | 0 | 108389 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 105451 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 106710 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 117639 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt | 0 | 510474 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt | 0 | 28464 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt | 0 | 29105 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 19166 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 5121 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 28208 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt | 0 | 110064 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearAmt | 0 | 324171 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus1YearAmt | 0 | 276984 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus2YearsAmt | 0 | 293869 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus3YearsAmt | 0 | 303261 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus4YearsAmt | 0 | 312431 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt | 0 | 1510716 |
| IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt | 0 | 28464 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt | 0 | 29105 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt | 0 | 19166 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt | 0 | 5121 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt | 0 | 28208 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt | 0 | 110064 |
| IRS990ScheduleA/InvestmentIncomeCYPct | 0 | 0.05160 |
| IRS990ScheduleA/InvestmentIncomePYPct | 0 | 0.04580 |
| IRS990ScheduleA/OtherSupportSumAmt | 0 | 0 |
| IRS990ScheduleA/PubliclySupportedOrg509a2Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0 |
| IRS990ScheduleA/PublicSupportCY509Pct | 0 | 0.94840 |
| IRS990ScheduleA/PublicSupportPY509Pct | 0 | 0.95420 |
| IRS990ScheduleA/PublicSupportTotal509Amt | 0 | 2021190 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft509Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind | 0 | X |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt | 0 | 396456 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt | 0 | 385373 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 399320 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 409971 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 430070 |
| IRS990ScheduleA/Total509Grp/TotalAmt | 0 | 2021190 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt | 0 | 2131254 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | true |
| IRS990ScheduleD/CYEndwmtFundGrp/BeginningYearBalanceAmt | 0 | 371451 |
| IRS990ScheduleD/CYEndwmtFundGrp/EndYearBalanceAmt | 0 | 414096 |
| IRS990ScheduleD/CYEndwmtFundGrp/GrantsOrScholarshipsAmt | 0 | 18700 |
| IRS990ScheduleD/CYEndwmtFundGrp/InvestmentEarningsOrLossesAmt | 0 | 61345 |
| IRS990ScheduleD/CYMinus1YrEndwmtFundGrp/BeginningYearBalanceAmt | 0 | 413629 |
| IRS990ScheduleD/CYMinus1YrEndwmtFundGrp/EndYearBalanceAmt | 0 | 371451 |
| IRS990ScheduleD/CYMinus1YrEndwmtFundGrp/GrantsOrScholarshipsAmt | 0 | 14009 |
| IRS990ScheduleD/CYMinus1YrEndwmtFundGrp/InvestmentEarningsOrLossesAmt | 0 | -28169 |
| IRS990ScheduleD/CYMinus2YrEndwmtFundGrp/BeginningYearBalanceAmt | 0 | 372372 |
| IRS990ScheduleD/CYMinus2YrEndwmtFundGrp/EndYearBalanceAmt | 0 | 413629 |
| IRS990ScheduleD/CYMinus2YrEndwmtFundGrp/GrantsOrScholarshipsAmt | 0 | 10000 |
| IRS990ScheduleD/CYMinus2YrEndwmtFundGrp/InvestmentEarningsOrLossesAmt | 0 | 51257 |
| IRS990ScheduleD/CYMinus3YrEndwmtFundGrp/BeginningYearBalanceAmt | 0 | 351518 |
| IRS990ScheduleD/CYMinus3YrEndwmtFundGrp/EndYearBalanceAmt | 0 | 372372 |
| IRS990ScheduleD/CYMinus3YrEndwmtFundGrp/InvestmentEarningsOrLossesAmt | 0 | 20854 |
| IRS990ScheduleD/CYMinus4YrEndwmtFundGrp/BeginningYearBalanceAmt | 0 | 362529 |
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Displayed year
2019 • Form 990Detailed filing. Detailed filing data is available for this year.