Civic Intelligence

The Cholangiocarcinoma Foundation

990 • Fiscal year 2018 • EIN 20-5776861

Jul 01, 2017 to Jun 30, 2018 • Filed on Nov 30, 2018

5526 West 13400 South Ste 510Herriman, UT 84096

(888) 936-6731

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

76th percentile

0.38x

Higher debt load relative to assets than 76% of similar nonprofits.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2018

Liabilities / Revenue

62nd percentile

0.17x

Higher debt load relative to revenue than 62% of similar nonprofits.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2018

Net Margin

73rd percentile

16%

Higher net margin than 73% of similar nonprofits.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2018

Top Officer Pay

63rd percentile

$88,659

Higher top officer pay than 63% of similar nonprofits.

Top officer pay equals 5.8% of source-year revenue.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2018

Asset Growth

88th percentile

33%

Faster asset growth than 88% of similar nonprofits.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2016 to 2018

Revenue Growth

81st percentile

30%

Faster revenue growth than 81% of similar nonprofits.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2016 to 2018

Assets

Up

$699,116

Up $305,074 (+77%) from 2016

Net Assets

Up

$432,251

Up $104,245 (+32%) from 2016

Liabilities

Up

$266,865

Up $200,829 (+304%) from 2016

Revenue

Up

$1,527,321

Up $622,828 (+69%) from 2016

Expenses

Up

$1,289,062

Up $365,177 (+40%) from 2016

Net Income

Up

$238,259

Up $257,651 (+1329%) from 2016

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$6.0M$4.0M$2.0M$0Assets 2011: $185,664Liabilities 2011: $208Net Assets 2011: $185,4562011Assets 2012: $166,908Liabilities 2012: $374Net Assets 2012: $166,5342012Assets 2013: $254,097Liabilities 2013: $5,916Net Assets 2013: $248,1812013Assets 2014: $309,684Liabilities 2014: $29,170Net Assets 2014: $280,5142014Assets 2015: $423,222Liabilities 2015: $79,234Net Assets 2015: $343,9882015Assets 2016: $394,042Liabilities 2016: $66,036Net Assets 2016: $328,0062016Assets 2018: $699,116Liabilities 2018: $266,865Net Assets 2018: $432,2512018Assets 2019: $815,602Liabilities 2019: $105,904Net Assets 2019: $709,6982019Assets 2020: $1,219,709Liabilities 2020: $404,683Net Assets 2020: $815,0262020Assets 2021: $2,743,945Liabilities 2021: $306,380Net Assets 2021: $2,437,5652021Assets 2022: $4,018,118Liabilities 2022: $265,340Net Assets 2022: $3,752,7782022Assets 2023: $4,624,165Liabilities 2023: $993,414Net Assets 2023: $3,630,7512023Assets 2025: $5,767,836Liabilities 2025: $1,220,153Net Assets 2025: $4,547,6832025

Highlighted filing

2018

Assets$699,116
Liabilities$266,865
Net Assets$432,251

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$8.0M$6.0M$4.0M$2.0M$0-$2.0MExpenses 2011: $130,3372011Expenses 2012: $268,7672012Revenue 2013: $326,189Expenses 2013: $244,542Net Income 2013: $81,6472013Revenue 2014: $561,179Expenses 2014: $528,845Net Income 2014: $32,3342014Revenue 2015: $841,454Expenses 2015: $777,980Net Income 2015: $63,4742015Revenue 2016: $904,493Expenses 2016: $923,885Net Income 2016: -$19,3922016Revenue 2018: $1,527,321Expenses 2018: $1,289,062Net Income 2018: $238,2592018Revenue 2019: $2,209,603Expenses 2019: $1,933,077Net Income 2019: $276,5262019Revenue 2020: $1,887,741Expenses 2020: $1,782,307Net Income 2020: $105,4342020Revenue 2021: $3,901,961Expenses 2021: $2,279,422Net Income 2021: $1,622,5392021Revenue 2022: $4,935,665Expenses 2022: $3,620,452Net Income 2022: $1,315,2132022Revenue 2023: $5,082,650Expenses 2023: $5,266,027Net Income 2023: -$183,3772023Revenue 2025: $7,130,406Expenses 2025: $7,195,778Net Income 2025: -$65,3722025

Highlighted filing

2018

Revenue$1,527,321
Expenses$1,289,062
Net Income$238,259
Jump To
Filing Snapshot
Filing Period
Jul 1, 2017 to Jun 30, 2018
Signed
Nov 30, 2018
Return Version
2017v2.3
Gross Receipts
$1,556,385
Mission and Program Overview

Mission

The organization's mission is to find a cure and improve the quality of life for cholangiocarcinoma patients.

To find a cure for and improve the quality of life of those affected by cholangiocarcinoma.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$170,410$466,952▲ $296,542
Pledges and Grants Receivable-$125,000-
Savings and Temporary Cash Investments$56,522$84,238▲ $27,716
Prepaid Expenses and Deferred Charges$9,009$10,396▲ $1,387
Land, Buildings, and Equipment, Net$5,135$5,468▲ $333
Inventories for Sale or Use$3,634$4,531▲ $897
Accounts Receivable-$2,531-
Total Assets$244,710$699,116▲ $454,406
Liabilities
Grants Payable-$200,000-
Other Liabilities$29,721$34,577▲ $4,856
Accounts Payable and Accrued Expenses$20,997$32,288▲ $11,291
Total Liabilities$50,718$266,865▲ $216,147
Net Assets / Fund Balance
Unrestricted Net Assets$193,992$304,751▲ $110,759
Temporarily Rstr Net Assets-$127,500-
Total Net Assets Fund Balance$193,992$432,251▲ $238,259
Total Liabilities and Net Assets / Fund Balance$244,710$699,116▲ $454,406

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$5,468$3,620$9,088
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseTotal
Donna MayerExecutive DiFT$88,659$88,659
Stacie LindseyPresidentFT$46,638$46,638

Board Members and Trustees

NameTitle
Jason ScottChair
Patricia MaxinBoard Member
Ross GreenBoard Member
Sara HinkleyBoard Member
Sean TurbevilleBoard Member
Barbara DupontSecretary
Daniel BlumTreasurer
Lawrence a Goodfield JrTreasurer
Bruce CoppockVice Preside
Revenue and Support

Revenue Composition

Contributions and Grants
$1,526,930
Program Service Revenue
$0
Investment Income
$-289
Other Revenue
$680
All Other Contributions
$1,526,930
Change in Net Assets
$238,259

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded1$23,855Quoted Price When Donated
Other Non Cash Contri Table4$7,089Estimated Fair Market Value (FMV)
Total Noncash Contributions5$30,944-

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,527,065
Revenue Not Reported on Financial Statements
$256
Revenue Not Reported on Form 990
$3,818
Other Revenue Adjustments
$256
Total Revenue per Audited Statements
$1,530,883
Total Revenue per Form 990
$1,527,321
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$526,779
Grants and Similar Amounts Paid$400,454
Salaries, Compensation, and Employee Benefits$361,829
Total Fundraising Expense$110,093
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$340,654--$340,654
Other Salaries and Wages$108,827$24,324$66,436$199,587
Travel$186,363--$186,363
Current Officers, Directors, Trustees, and Key Employees$90,692$26,385$17,786$134,863
Information Technology$53,518$16,041$12,299$81,858
Foreign Grants$59,800--$59,800
Occupancy$29,753$3,881-$33,634
Payroll Taxes$16,333$4,151$6,895$27,379
Office Expenses$20,738$1,488$2,294$24,520
Fees for Services Other$7,185$16,383-$23,568
Fees for Services Accounting-$17,280-$17,280
Conferences and Meetings$7,916--$7,916
Other Expenses$118,143$4,572$3,255$4,572
Advertising$2,778-$695$3,473
Insurance-$1,851-$1,851
Depreciation Depletion$1,024$261$433$1,718
All Other Expenses$468$1,085-$1,553
Fees for Services Legal-$1,298-$1,298
Total Functional Expenses$1,044,192$134,777$110,093$1,289,062

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$1,292,624
Total Expenses per Form 990$1,289,062
Expenses per Audited Statements$1,288,806
Expenses Not Reported on Form 990$3,818
Expenses Not Reported on Financial Statements$256
Other Expense Adjustments$256
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Mass General HospitalBoston, MA501c3Cancer Research$100,000
Dana-farber Cancer InstituteBoston, MA501c3Cancer Research$50,000
Fred Hutchinson Cancer Research CenSeattle, WA501c3Cancer Research$50,000
Providence Portland Medical CenterPortland, OR501c3Cancer Research$50,000
Regents of University of CaliforniaSan Fransisco, CA501c3Cancer Research$50,000
Mayo ClinicMinneapolis, MN501c3Icrn Biorepository$17,200
Md Anderson Cancer CenterHouston, TXGovCancer Research$15,245
Conquer CancerAlexandria, VA501c3Cancer Research$8,209

International Compliance

Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Credit Card Payable$34,577
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 11B

The organization's 990 is prepared by an independent accounting firm. The 990 is reviewed by the organization's accountant, treasurer, executive director, and board president for accuracy and completeness. The 990 is provided to all members of the board of directors prior to filing for their review.

Form 990, Page 6, Part VI, Line 12C

The organization's conflict of interest policy requires annual disclosure of potential conflicts by all members of management and the board of directors. The organization's executive committee is responsible for reviewing all disclosures and assessing how potential conflicts disclosed should be addressed. If a real or perceived conflict is determined to exist, any affected board members will be recused from voting on any issues related to the conflict.

Form 990, Page 6, Part VI, Line 15A

Compensation for the executive director and board president is determined by individuals independent of the executive director and board president. In determining a reasonable level of compensation, the board considers comparability data such as salary surveys and indicating comparable wages paid by other organizations of similar size and complexity. The deliberation and determination of compensation for the executive director and board president is contemporaneously documented.

Form 990, Page 6, Part VI, Line 15B

Compensation for other officers is determined by individuals independent of the other officers. In determining a reasonable level of compensation, the board considers comparability data such as salary surveys and indicating comparable wages paid by other organizations of similar size and complexity. The deliberation and determination of compensation for other officers is contemporaneously documented.

Form 990, Page 6, Part VI, Line 17

Maryland, maine, michigan, minnesota, mississippi, north carolina, north dakota, new hampshire, new jersey, new mexico, nevada, new york, ohio, oklahoma, oregon, pennsylvania, rhode island, south carolina, tennessee, texas, utah, virginia, wisconsin, west virginia

Form 990, Page 6, Part VI, Line 19

The organization's governing documents, conflict of interest policy, and financial statements are available to the public upon written request to the organization's address.

Filing and Contact Details

Filer

Filer Name
The Cholangiocarcinoma Foundation
EIN
20-5776861
Phone
8889366731
Address
5526 WEST 13400 SOUTH STE 510, HERRIMAN, UT 84096

Signing Officer

Name
Stacie Lindsey
Title
President
Phone
8019990455
Signed
2018-11-30
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Stacie Lindsey
Formed
2006
Legal Domicile
Ut
Voting Board Members
8
Independent Board Members
7
Employees
7
Volunteers
376

Preparer

Firm
Shaw & Co Pc
Address
1564 SOUTH 500 WEST SUITE 201, BOUNTIFUL, UT 84010-7400
Preparer
Shalaun T Howell CPA
Phone
8012943155
Supplemental Narrative

Additional Explanations

Form 990

Effective january 1, 2017, the organization changed its year end for financial accounting and tax purposes from a calendar year to a fiscal year, ending june 30. Due to this change, the organization's prior 990 covered a six-month period from january 1, 2017 to june 30, 2017. The current year 990 covers a 12 month period from july 1, 2017 through june 30, 2018.

Form 990, Page 2, Part III, Line 4A

-asco conquer cancer young investigator award to provide funding to a promising early career investigator during the transition from a fellowship program to a faculty appointment. This award was funded in collaboration with three of the organization's not-for-profit partners. This model of funding is a first for conquer cancer. -mayo clinic for the international cholangiocarcinoma research network biorepository (icrn) to develop a network of collaborating institutions pooling information for studies on the risks and outcomes of cholangiocarcinoma. -md anderson cancer center to help scientists uncover associations between individuals and disorders that are passed from one generation to the next. -ucl genomics to accelerate research through the power of combining large amounts of data about genetic variations.

Form 990, Page 2, Part III, Line 4B

Through initiatives such as the patient registry, action alerts, and the biliary information card, patients and their caregivers are given the opportunity to participate in research efforts while being empowered to take part in their own healthcare. The organization also partners with similar organizations to spread awareness about the challenges faced by the rare disease community.

Form 990, Part XI, Line 9

Cost of goods sold 3,818 grants returned -256 cost of goods sold -3,818 grants returned 256

Financial Statement Notes

Schedule D, Page 3, Part X

The organization is exempt from federal income taxes under section 501(c) (3) of the internal revenue code and therefore has made no provision for federal income taxes in the accompanying financial statements. In addition, the organization has been determined by the internal revenue service not to be a "private foundation" within the meaning of section 509 (a) of the internal revenue code. There was no unrelated business income for the year ended june 30, 2018. The organization's forms 990, return of organization exempt from income tax, for the year ending june 30, 2018, the six months ending june 30, 2017, and the years ending december 31, 2016 and 2015 are subject to examination by the irs, generally for three years after they were filed. Generally accepted accounting principles require tax effects from an uncertain tax position to be recognized in the financial statements only if the position is more likely than not to be sustained if the position were to be challenged by a taxing authority. The assessment of the tax position is based solely on the technical merits of the position, without regard to the likelihood that the tax position may be challenged. If an uncertain tax position meets the more-likely-than-not threshold, the largest amount of tax benefit that is greater than 50% likely to be recognized upon ultimate settlement with the taxing authority is recorded. The organization's primary tax positions relate to its status as a not-for-profit entity exempt from income taxes and classification of activities related to its exempt purpose. Management has evaluated the tax positions reflected in the organization's tax filings and does not believe that any material uncertain tax positions exist.

Schedule D, Page 4, Part XI, Line 2D

COST OF GOODS SOLD 3,818

Schedule D, Page 4, Part XI, Line 4B

GRANTS RETURNED 256

Schedule D, Page 4, Part XII, Line 2D

COST OF GOODS SOLD 3,818

Schedule D, Page 4, Part XII, Line 4B

GRANTS RETURNED 256

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IRS990/Desc0THE CHOLANGIOCARCINOMA FOUNDATION CONTINUES TO FOCUS ON COLLABORATIVE RESEARCH EFFORTS WITH MEDICAL, SCIENTIFIC, ACADEMIC, REGULATORY, AND NOT- FOR-PROFIT PARTNERS. DURING THE YEAR ENDED JUNE 30, 2018, THE ORGANIZATION AWARDED THE FOLLOWING RESEARCH GRANTS: -RESEARCH FELLOWSHIP AWARDS (FOUR) TO YOUNG INVESTIGATORS TO RAISE AWARENESS ABOUT CHOLANGIOCARCINOMA AND INSPIRE INNOVATIVE, QUALITY RESEARCH. CONTINUED ON SCHEDULE O -ASCO CONQUER CANCER YOUNG INVESTIGATOR AWARD TO PROVIDE FUNDING TO A PROMISING EARLY CAREER INVESTIGATOR DURING THE TRANSITION FROM A FELLOWSHIP PROGRAM TO A FACULTY APPOINTMENT. THIS AWARD WAS FUNDED IN COLLABORATION WITH THREE OF THE ORGANIZATION'S NOT-FOR-PROFIT PARTNERS. THIS MODEL OF FUNDING IS A FIRST FOR CONQUER CANCER. -MAYO CLINIC FOR THE INTERNATIONAL CHOLANGIOCARCINOMA RESEARCH NETWORK BIOREPOSITORY (ICRN) TO DEVELOP A NETWORK OF COLLABORATING INSTITUTIONS POOLING INFORMATION FOR STUDIES ON THE RISKS AND OUTCOMES OF CHOLANGIOCARCINOMA. -MD ANDERSON CANCER CENTER TO HELP SCIENTISTS UNCOVER ASSOCIATIONS BETWEEN INDIVIDUALS AND DISORDERS THAT ARE PASSED FROM ONE GENERATION TO THE NEXT. -UCL GENOMICS TO ACCELERATE RESEARCH THROUGH THE POWER OF COMBINING LARGE AMOUNTS OF DATA ABOUT GENETIC VARIATIONS.
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
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IRS990/Form990PartVIISectionAGrp/TitleTxt0PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt1VICE PRESIDE
IRS990/Form990PartVIISectionAGrp/TitleTxt2SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt3TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt4BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt5BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt6CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt7BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt8TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt9BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt10EXECUTIVE DI
IRS990/Form990ProvidedToGvrnBodyInd0true
IRS990/FormationYr02006
IRS990/FormerOfcrEmployeesListedInd0false
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IRS990/FSAuditedInd0true
IRS990/FundraisingActivitiesInd0false
IRS990/GainOrLossGrp/OtherAmt0-1411
IRS990/GainOrLossGrp/SecuritiesAmt0523
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IRS990/GrantsPayableGrp/EOYAmt0200000
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt0340654
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IRS990/InfoInScheduleOPartVIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt012299
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt016041
IRS990/InformationTechnologyGrp/ProgramServicesAmt053518
IRS990/InformationTechnologyGrp/TotalAmt081858
IRS990/InsuranceGrp/ManagementAndGeneralAmt01851
IRS990/InsuranceGrp/TotalAmt01851
IRS990/InventoriesForSaleOrUseGrp/BOYAmt03634
IRS990/InventoriesForSaleOrUseGrp/EOYAmt04531
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IRS990/IRPDocumentCnt04
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IRS990/LandBldgEquipBasisNetGrp/BOYAmt05135
IRS990/LandBldgEquipBasisNetGrp/EOYAmt05468
IRS990/LandBldgEquipCostOrOtherBssAmt09088
IRS990/LegalDomicileStateCd0UT
IRS990/LessCostOthBasisSalesExpnssGrp/OtherAmt01411
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt023835
IRS990/LoanOutstandingInd0false
IRS990/LobbyingActivitiesInd0false
IRS990/LocalChaptersInd0false
IRS990/MaterialDiversionOrMisuseInd0false
IRS990/MembersOrStockholdersInd0false
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd0true
IRS990/MinutesOfGoverningBodyInd0true
IRS990/MissionDesc0TO FIND A CURE FOR AND IMPROVE THE QUALITY OF LIFE OF THOSE AFFECTED BY CHOLANGIOCARCINOMA.
IRS990/MoreThan5000KToIndividualsInd0false
IRS990/MoreThan5000KToOrgInd0true
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IRS990/NetAssetsOrFundBalancesEOYAmt0432251
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IRS990/NoncashContributionsAmt030944
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IRS990/OccupancyGrp/ManagementAndGeneralAmt03881
IRS990/OccupancyGrp/ProgramServicesAmt029753
IRS990/OccupancyGrp/TotalAmt033634
IRS990/OfficeExpensesGrp/FundraisingAmt02294
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt01488
IRS990/OfficeExpensesGrp/ProgramServicesAmt020738
IRS990/OfficeExpensesGrp/TotalAmt024520
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IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OtherExpensesGrp/Desc0MEALS & CATERING
IRS990/OtherExpensesGrp/Desc1BANK FEES
IRS990/OtherExpensesGrp/Desc2DUES & MEMBERSHIP
IRS990/OtherExpensesGrp/Desc3MISCELLANEOUS
IRS990/OtherExpensesGrp/FundraisingAmt03255
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IRS990/OtherExpensesGrp/ManagementAndGeneralAmt11937
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt24572
IRS990/OtherExpensesGrp/ProgramServicesAmt0118143
IRS990/OtherExpensesGrp/TotalAmt0118143
IRS990/OtherExpensesGrp/TotalAmt113840
IRS990/OtherExpensesGrp/TotalAmt25192
IRS990/OtherExpensesGrp/TotalAmt34572
IRS990/OtherLiabilitiesGrp/BOYAmt029721
IRS990/OtherLiabilitiesGrp/EOYAmt034577
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt066436
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt024324
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0108827
IRS990/OtherSalariesAndWagesGrp/TotalAmt0199587
IRS990/OtherWebsiteInd0X
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd0false
IRS990/PayPremiumsPrsnlBnftCntrctInd0false
IRS990/PayrollTaxesGrp/FundraisingAmt06895
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt04151
IRS990/PayrollTaxesGrp/ProgramServicesAmt016333
IRS990/PayrollTaxesGrp/TotalAmt027379
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IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt09009
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt010396
IRS990/PrincipalOfficerNm0STACIE LINDSEY
IRS990/ProfessionalFundraisingInd0false
IRS990/ProgSrvcAccomActy2Grp/Desc0THE CHOLANGIOCARCINOMA FOUNDATION IS COMMITTED TO PROVIDING SERVICES TO PATIENTS AND THEIR FAMILIES AFFECTED BY THIS DEVASTATING DISEASE. BOTH PATIENTS AND THE PROFESSIONAL COMMUNITY ARE EDUCATED THROUGH THE ORGANIZATION'S ANNUAL CONFERENCE, WEBSITE, AND BOOK, 100 QUESTIONS AND ANSWERS ABOUT CHOLANGIOCARCINOMA. THE ORGANIZATION ALSO PROVIDES DISEASE EDUCATION, EMOTIONAL SUPPORT, AND A MULTITUDE OF RESOURCES THROUGH A DISCUSSION BOARD, SOCIAL MEDIA SITES, AND RESPONSES TO DAILY CALLS AND EMAILS. CONTINUED ON SCHEDULE O THROUGH INITIATIVES SUCH AS THE PATIENT REGISTRY, ACTION ALERTS, AND THE BILIARY INFORMATION CARD, PATIENTS AND THEIR CAREGIVERS ARE GIVEN THE OPPORTUNITY TO PARTICIPATE IN RESEARCH EFFORTS WHILE BEING EMPOWERED TO TAKE PART IN THEIR OWN HEALTHCARE. THE ORGANIZATION ALSO PARTNERS WITH SIMILAR ORGANIZATIONS TO SPREAD AWARENESS ABOUT THE CHALLENGES FACED BY THE RARE DISEASE COMMUNITY.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0566762
IRS990/ProgSrvcAccomActy2Grp/RevenueAmt0680
IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYContributionsGrantsAmt0337479
IRS990/PYExcessBenefitTransInd0false
IRS990/PYGrantsAndSimilarPaidAmt025500
IRS990/PYInvestmentIncomeAmt027
IRS990/PYOtherExpensesAmt0289495
IRS990/PYProgramServiceRevenueAmt01431
IRS990/PYRevenuesLessExpensesAmt0-134014
IRS990/PYSalariesCompEmpBnftPaidAmt0157956
IRS990/PYTotalExpensesAmt0472951
IRS990/PYTotalRevenueAmt0338937
IRS990/QuidProQuoContributionsInd0false
IRS990/RcvFndsToPayPrsnlBnftCntrctInd0false
IRS990/ReconcilationRevenueExpnssAmt0238259
IRS990/RegularMonitoringEnfrcInd0true
IRS990/RelatedEntityInd0false
IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/ReportInvestmentsOtherSecInd0false
IRS990/ReportLandBuildingEquipmentInd0true
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0true
IRS990/ReportProgramRelatedInvstInd0false
IRS990/SavingsAndTempCashInvstGrp/BOYAmt056522
IRS990/SavingsAndTempCashInvstGrp/EOYAmt084238
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt01526930
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0337479
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0842813
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0834567
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0555393
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt04097182
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt0599
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt027
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt0117
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt0127
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt088
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt0958
IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt05929
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.88850
IRS990ScheduleA/PublicSupportPY170Pct00.83300
IRS990ScheduleA/PublicSupportTotal170Amt03641084
IRS990ScheduleA/SubstantialContributorsTotAmt0456098
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt01526930
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0337479
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0842813
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0834567
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0555393
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt04097182
IRS990ScheduleA/TotalSupportAmt04098140
IRS990/ScheduleBRequiredInd0true
IRS990ScheduleD/EquipmentGrp/BookValueAmt05468
IRS990ScheduleD/EquipmentGrp/DepreciationAmt03620
IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt09088
IRS990ScheduleD/ExpensesNotReportedAmt03818
IRS990ScheduleD/ExpensesNotRptFinclStmtAmt0256
IRS990ScheduleD/ExpensesSubtotalAmt01288806
IRS990ScheduleD/FootnoteTextInd0X
IRS990ScheduleD/OtherExpensesIncludedAmt03818
IRS990ScheduleD/OtherExpensesNotIncludedAmt0256
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt034577
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc0CREDIT CARD PAYABLE
IRS990ScheduleD/OtherRevenueAmt03818
IRS990ScheduleD/OtherRevenuesNotIncludedAmt0256
IRS990ScheduleD/RevenueNotReportedAmt03818
IRS990ScheduleD/RevenueNotReportedFinclStmtAmt0256
IRS990ScheduleD/RevenueSubtotalAmt01527065
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0THE ORGANIZATION IS EXEMPT FROM FEDERAL INCOME TAXES UNDER SECTION 501(C) (3) OF THE INTERNAL REVENUE CODE AND THEREFORE HAS MADE NO PROVISION FOR FEDERAL INCOME TAXES IN THE ACCOMPANYING FINANCIAL STATEMENTS. IN ADDITION, THE ORGANIZATION HAS BEEN DETERMINED BY THE INTERNAL REVENUE SERVICE NOT TO BE A "PRIVATE FOUNDATION" WITHIN THE MEANING OF SECTION 509 (A) OF THE INTERNAL REVENUE CODE. THERE WAS NO UNRELATED BUSINESS INCOME FOR THE YEAR ENDED JUNE 30, 2018. THE ORGANIZATION'S FORMS 990, RETURN OF ORGANIZATION EXEMPT FROM INCOME TAX, FOR THE YEAR ENDING JUNE 30, 2018, THE SIX MONTHS ENDING JUNE 30, 2017, AND THE YEARS ENDING DECEMBER 31, 2016 AND 2015 ARE SUBJECT TO EXAMINATION BY THE IRS, GENERALLY FOR THREE YEARS AFTER THEY WERE FILED. GENERALLY ACCEPTED ACCOUNTING PRINCIPLES REQUIRE TAX EFFECTS FROM AN UNCERTAIN TAX POSITION TO BE RECOGNIZED IN THE FINANCIAL STATEMENTS ONLY IF THE POSITION IS MORE LIKELY THAN NOT TO BE SUSTAINED IF THE POSITION WERE TO BE CHALLENGED BY A TAXING AUTHORITY. THE ASSESSMENT OF THE TAX POSITION IS BASED SOLELY ON THE TECHNICAL MERITS OF THE POSITION, WITHOUT REGARD TO THE LIKELIHOOD THAT THE TAX POSITION MAY BE CHALLENGED. IF AN UNCERTAIN TAX POSITION MEETS THE MORE-LIKELY-THAN-NOT THRESHOLD, THE LARGEST AMOUNT OF TAX BENEFIT THAT IS GREATER THAN 50% LIKELY TO BE RECOGNIZED UPON ULTIMATE SETTLEMENT WITH THE TAXING AUTHORITY IS RECORDED. THE ORGANIZATION'S PRIMARY TAX POSITIONS RELATE TO ITS STATUS AS A NOT-FOR-PROFIT ENTITY EXEMPT FROM INCOME TAXES AND CLASSIFICATION OF ACTIVITIES RELATED TO ITS EXEMPT PURPOSE. MANAGEMENT HAS EVALUATED THE TAX POSITIONS REFLECTED IN THE ORGANIZATION'S TAX FILINGS AND DOES NOT BELIEVE THAT ANY MATERIAL UNCERTAIN TAX POSITIONS EXIST.
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt1COST OF GOODS SOLD 3,818
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt2GRANTS RETURNED 256
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt3COST OF GOODS SOLD 3,818
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt4GRANTS RETURNED 256
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0SCHEDULE D, PAGE 3, PART X
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc1SCHEDULE D, PAGE 4, PART XI, LINE 2D
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc2SCHEDULE D, PAGE 4, PART XI, LINE 4B
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc3SCHEDULE D, PAGE 4, PART XII, LINE 2D
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc4SCHEDULE D, PAGE 4, PART XII, LINE 4B
IRS990ScheduleD/TotalBookValueLandBuildingsAmt05468
IRS990ScheduleD/TotalExpensesPerForm990Amt01289062
IRS990ScheduleD/TotalLiabilityAmt034577
IRS990ScheduleD/TotalRevenuePerForm990Amt01527321
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IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt01292624
IRS990ScheduleF/BoycottCountriesInd0false
IRS990ScheduleF/ForeignCorpOwnershipInd0false
IRS990ScheduleF/ForeignPartnershipInd0false
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt050000
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt19800
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/MannerOfCashDisbursementTxt0CHECK
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/MannerOfCashDisbursementTxt1WIRE
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt0CANCER RESEARCH
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt1ICRN BIOREPOSITORY
IRS990ScheduleF/InterestInForeignTrustInd0false
IRS990ScheduleF/PassiveForeignInvestmestCoInd0false
IRS990ScheduleF/SupplementalInformationDetail/ExplanationTxt0THE ORGANIZATION PROVIDES GRANTS FOR SPECIFIC RESEARCH PROJECTS FOCUSED ON CHOLANGIOCARCINOMA. THE ORGANIZATION MONITORS SUMMARIES OF HOW THE FUNDING IS EXPENDED AND REQUIRES REPORTS OF RESEARCH PROGRESS AND RESULTS.
IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc0SCHEDULE F, PAGE 1, PART I, LINE 2
IRS990ScheduleF/TotalOtherOrgCnt02
IRS990ScheduleF/TransferToForeignCorpInd0false
IRS990ScheduleI/GrantRecordsMaintainedInd0true
IRS990ScheduleI/RecipientTable/CashGrantAmt050000
IRS990ScheduleI/RecipientTable/CashGrantAmt150000
IRS990ScheduleI/RecipientTable/CashGrantAmt215245
IRS990ScheduleI/RecipientTable/CashGrantAmt317200
IRS990ScheduleI/RecipientTable/CashGrantAmt4100000
IRS990ScheduleI/RecipientTable/CashGrantAmt550000
IRS990ScheduleI/RecipientTable/CashGrantAmt650000
IRS990ScheduleI/RecipientTable/CashGrantAmt78209
IRS990ScheduleI/RecipientTable/IRCSectionDesc0501C3
IRS990ScheduleI/RecipientTable/IRCSectionDesc1501C3
IRS990ScheduleI/RecipientTable/IRCSectionDesc2GOV
IRS990ScheduleI/RecipientTable/IRCSectionDesc3501C3
IRS990ScheduleI/RecipientTable/IRCSectionDesc4501C3
IRS990ScheduleI/RecipientTable/IRCSectionDesc5501C3
IRS990ScheduleI/RecipientTable/IRCSectionDesc6501C3
IRS990ScheduleI/RecipientTable/IRCSectionDesc7501C3

Document Assets

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Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.77$1.22$4.55$7.13$7.20$0.07
2023Summary only. Only limited summary data is available for this year.$4.62$0.99$3.63$5.08$5.27$0.18
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.02$0.27$3.75$4.94$3.62$1.32
2021Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.74$0.31$2.44$3.90$2.28$1.62
2020Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.22$0.40$0.82$1.89$1.78$0.11
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.82$0.11$0.71$2.21$1.93$0.28
2018Detailed filing. Detailed filing data is available for this year.$0.70$0.27$0.43$1.53$1.29$0.24
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.39$0.07$0.33$0.90$0.92$0.02
2015Detailed filing. Detailed filing data is available for this year.$0.42$0.08$0.34$0.84$0.78$0.06
2014Detailed filing. Detailed filing data is available for this year.$0.31$0.03$0.28$0.56$0.53$0.03
2013Detailed filing. Detailed filing data is available for this year.$0.25$0.01$0.25$0.33$0.24$0.08
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.17$0.00$0.17$0.27
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.19$0.00$0.19$0.13