Civic Intelligence

The Cholangiocarcinoma Foundation

990 • Fiscal year 2015 • EIN 20-5776861

Jan 01, 2015 to Dec 31, 2015 • Filed on May 15, 2016

Organization Profilewww.cholangiocarcinoma.org
5526 West 13400 SouthHerriman, UT 84096

(801) 999-0455

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

69th percentile

0.19x

Higher debt load relative to assets than 69% of similar nonprofits.

2015 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2015

Liabilities / Revenue

62nd percentile

0.09x

Higher debt load relative to revenue than 62% of similar nonprofits.

2015 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2015

Net Margin

61st percentile

7.5%

Higher net margin than 61% of similar nonprofits.

2015 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2015

Top Officer Pay

78th percentile

$71,567

Higher top officer pay than 78% of similar nonprofits.

Top officer pay equals 8.5% of source-year revenue.

2015 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2015

Asset Growth

86th percentile

37%

Faster asset growth than 86% of similar nonprofits.

2015 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2014 to 2015

Revenue Growth

87th percentile

50%

Faster revenue growth than 87% of similar nonprofits.

2015 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2014 to 2015

Balance Sheet
Liabilities / Assets69th percentile

Assets

Up

$423,222

Up $113,538 (+37%) from 2014

Net Assets

Up

$343,988

Up $63,474 (+23%) from 2014

Liabilities

Up

$79,234

Up $50,064 (+172%) from 2014

Revenue And Expenses
Liabilities / Revenue62nd percentileNet Margin61st percentile

Revenue

Up

$841,454

Up $280,275 (+50%) from 2014

Expenses

Up

$777,980

Up $249,135 (+47%) from 2014

Net Income

Up

$63,474

Up $31,140 (+96%) from 2014

Historical Trend

Balance Sheet Trend

Asset Growth86th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$6.0M$4.0M$2.0M$0Assets 2011: $185,664Liabilities 2011: $208Net Assets 2011: $185,4562011Assets 2012: $166,908Liabilities 2012: $374Net Assets 2012: $166,5342012Assets 2013: $254,097Liabilities 2013: $5,916Net Assets 2013: $248,1812013Assets 2014: $309,684Liabilities 2014: $29,170Net Assets 2014: $280,5142014Assets 2015: $423,222Liabilities 2015: $79,234Net Assets 2015: $343,9882015Assets 2016: $394,042Liabilities 2016: $66,036Net Assets 2016: $328,0062016Assets 2018: $699,116Liabilities 2018: $266,865Net Assets 2018: $432,2512018Assets 2019: $815,602Liabilities 2019: $105,904Net Assets 2019: $709,6982019Assets 2020: $1,219,709Liabilities 2020: $404,683Net Assets 2020: $815,0262020Assets 2021: $2,743,945Liabilities 2021: $306,380Net Assets 2021: $2,437,5652021Assets 2022: $4,018,118Liabilities 2022: $265,340Net Assets 2022: $3,752,7782022Assets 2023: $4,624,165Liabilities 2023: $993,414Net Assets 2023: $3,630,7512023Assets 2025: $5,767,836Liabilities 2025: $1,220,153Net Assets 2025: $4,547,6832025

Highlighted filing

2015

Assets$423,222
Liabilities$79,234
Net Assets$343,988
Open 2015 Filing

Operations Trend

Revenue Growth87th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$8.0M$6.0M$4.0M$2.0M$0-$2.0MExpenses 2011: $130,3372011Expenses 2012: $268,7672012Revenue 2013: $326,189Expenses 2013: $244,542Net Income 2013: $81,6472013Revenue 2014: $561,179Expenses 2014: $528,845Net Income 2014: $32,3342014Revenue 2015: $841,454Expenses 2015: $777,980Net Income 2015: $63,4742015Revenue 2016: $904,493Expenses 2016: $923,885Net Income 2016: -$19,3922016Revenue 2018: $1,527,321Expenses 2018: $1,289,062Net Income 2018: $238,2592018Revenue 2019: $2,209,603Expenses 2019: $1,933,077Net Income 2019: $276,5262019Revenue 2020: $1,887,741Expenses 2020: $1,782,307Net Income 2020: $105,4342020Revenue 2021: $3,901,961Expenses 2021: $2,279,422Net Income 2021: $1,622,5392021Revenue 2022: $4,935,665Expenses 2022: $3,620,452Net Income 2022: $1,315,2132022Revenue 2023: $5,082,650Expenses 2023: $5,266,027Net Income 2023: -$183,3772023Revenue 2025: $7,130,406Expenses 2025: $7,195,778Net Income 2025: -$65,3722025

Highlighted filing

2015

Revenue$841,454
Expenses$777,980
Net Income$63,474
Open 2015 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2015 to Dec 31, 2015
Signed
May 15, 2016
Return Version
2015v2.1
Gross Receipts
$849,043
Mission and Program Overview

Mission

The organization's mission is to find a cure and improve the quality of life for cholangiocarcinoma patients.

To find a cure and improve the quality of life for those affected by cholangiocarcinoma.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$216,905$268,788▲ $51,883
Savings and Temporary Cash Investments$87,577$127,704▲ $40,127
Pledges and Grants Receivable-$20,000-
Land, Buildings, and Equipment, Net$4,498$5,974▲ $1,476
Prepaid Expenses and Deferred Charges$704$706▲ $2
Accounts Receivable-$50-
Total Assets$309,684$423,222▲ $113,538
Liabilities
Other Liabilities$26,919$51,523▲ $24,604
Accounts Payable and Accrued Expenses$2,251$27,711▲ $25,460
Total Liabilities$29,170$79,234▲ $50,064
Net Assets / Fund Balance
Unrestricted Net Assets$280,514$323,988▲ $43,474
Temporarily Rstr Net Assets-$20,000-
Total Net Assets Fund Balance$280,514$343,988▲ $63,474
Total Liabilities and Net Assets / Fund Balance$309,684$423,222▲ $113,538

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$5,974$2,694$8,668
Compensation and Service Providers
Top Officer Pay78th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Donna MayerExecutive DirectorFT$71,567$71,567
Stacie LindseyPresidentFT$31,024$31,024
Marion SchwartzAdvocacy DirectorPT$24,000$24,000

Board Members and Trustees

NameTitle
Dawn LyonVice President
Jason ScottBoard Member
Lillie ChenBoard Member
Sean TurbevilleBoard Member
Lawrence GoodfieldTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$834,567
Program Service Revenue
$1,436
Investment Income
$-1,921
Other Revenue
$7,372
All Other Contributions
$834,567
Change in Net Assets
$63,474

Audited Revenue Reconciliation

Revenue per Audited Statements
$841,454
Revenue Not Reported on Form 990
$4,812
Total Revenue per Audited Statements
$846,266
Total Revenue per Form 990
$841,454
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$314,210
Other Expenses$293,569
Salaries, Compensation, and Employee Benefits$170,201
Total Fundraising Expense$49,934
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$314,210--$314,210
Travel$127,089--$127,089
Other Salaries and Wages$62,306$33,233$28,646$124,185
Information Technology$43,557$8,055$2,935$54,547
Current Officers, Directors, Trustees, and Key Employees$26,779$3,348$3,347$33,474
Office Expenses$19,682$2,432$3,272$25,386
Fees for Services Management$15,600$5,250$3,600$24,450
Conferences and Meetings$12,725--$12,725
Payroll Taxes$7,087$2,910$2,545$12,542
Fees for Services Accounting-$8,460-$8,460
Advertising$2,513$1,257$2,513$6,283
Other Expenses$3,042$1,824$1,216$6,082
Insurance-$4,141-$4,141
Occupancy$100$2,100$1,575$3,775
Depreciation Depletion$793$325$285$1,403
All Other Expenses-$410-$410
Total Functional Expenses$645,711$82,335$49,934$777,980

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$782,792
Expenses per Audited Statements$777,980
Total Expenses per Form 990$777,980
Expenses Not Reported on Form 990$4,812
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Mayo ClinicRochester, MN501c3Research$130,000
Brigham and Womens HospitalBoston, MA501c3Research$60,000
Icahn School of MedicineNew York, NY501c3Research$50,000
University of PennsylvaniaPhiladelphia, PA501c3Research$50,000
Washington Univ in St LouisSaint Louis, MO501c3-$24,210
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$9,615
Fundraising Direct Expenses$4,812
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
Rick PollockFormer Board MemberWebsite Maintenance Printing It ConsultantNo$40,009
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Credit Card Liability$34,408
Payroll Liabilities$17,115
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
Yes
Business relationship with organization members
Yes
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Officer directors etc family relationship Part VI line 2

“Our Advocacy Director has a son who is a board member.”

Form 990 governing body review Part VI line 11

“The Board reviewed Form 990 at a Board Meeting.”

Conflict of interest policy compliance Part VI line 12C

“Periodic reviews are conducted by the board to ensure there is no conflict of interest issues.”

CEO executive director top management comp Part VI line 15A

“Compensation of the President was discussed and evaluated and approved by the Board, The President was not not included in the discussion and vote of approval.”

Governing documents etc available to public Part VI line 19

“The Foundation will provide any documents required to be available to the public upon request.”

Filing and Contact Details

Filer

Filer Name
The Cholangiocarcinoma Foundation
EIN
20-5776861
Address
5526 WEST 13400 SOUTH, Herriman, UT 84096

Signing Officer

Name
Stacie Lindsey
Title
President
Phone
8019990455
Signed
2016-05-15
Discuss with paid preparer
Yes

Organization Details

Formed
2006
Legal Domicile
Ut
Voting Board Members
7
Independent Board Members
5
Employees
4
Volunteers
100

Preparer

Firm
Chet Nichols & Associates PLLC
Address
1585 W Gaylawood Circle, Salt Lake City, UT 84123
Preparer
Chet Nichols
Phone
8012622856
Supplemental Narrative

Financial Statement Notes

Other revenues not included on Form 990 (Part XI, line 2D)

“Net direct fundraising expense against fundraising revenue on Part VIII”

Other expenses not included on Form 990 (Part XII, line 2D)

“Net direct fundraising expense against fundraising revenue on Part VIII”

Raw XML AppendixShowing 400 of 513 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd0false
IRS990/AccountsPayableAccrExpnssGrp/BOYAmt02251
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt027711
IRS990/AccountsReceivableGrp/EOYAmt050
IRS990/ActivitiesConductedPrtshpInd0false
IRS990/ActivityOrMissionDesc0To find a cure and improve the quality of life for those affected by cholangiocarcinoma.
IRS990/AdvertisingGrp/FundraisingAmt02513
IRS990/AdvertisingGrp/ManagementAndGeneralAmt01257
IRS990/AdvertisingGrp/ProgramServicesAmt02513
IRS990/AdvertisingGrp/TotalAmt06283
IRS990/AllOtherContributionsAmt0834567
IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt0410
IRS990/AllOtherExpensesGrp/TotalAmt0410
IRS990/AnnualDisclosureCoveredPrsnInd0true
IRS990/AuditCommitteeInd0true
IRS990/BackupWthldComplianceInd0true
IRS990/BooksInCareOfDetail/PersonNm0STACIE LINDSEY
IRS990/BooksInCareOfDetail/PhoneNum08019990455
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt05965 W FRAGRANT LANE
IRS990/BooksInCareOfDetail/USAddress/CityNm0Herriman
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0UT
IRS990/BooksInCareOfDetail/USAddress/ZIPCd084096
IRS990/BusinessRlnWithFamMemInd0true
IRS990/BusinessRlnWithOfficerEntInd0false
IRS990/BusinessRlnWithOrgMemInd0true
IRS990/CashNonInterestBearingGrp/BOYAmt0216905
IRS990/CashNonInterestBearingGrp/EOYAmt0268788
IRS990/ChangeToOrgDocumentsInd0false
IRS990/CollectionsOfArtInd0false
IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt03347
IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt03348
IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt026779
IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt033474
IRS990/CompensationFromOtherSrcsInd0false
IRS990/CompensationProcessCEOInd0true
IRS990/CompensationProcessOtherInd0false
IRS990/ConferencesMeetingsGrp/ProgramServicesAmt012725
IRS990/ConferencesMeetingsGrp/TotalAmt012725
IRS990/ConflictOfInterestPolicyInd0true
IRS990/ConservationEasementsInd0false
IRS990/ConsolidatedAuditFinclStmtInd0false
IRS990/CreditCounselingInd0false
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt0834567
IRS990/CYGrantsAndSimilarPaidAmt0314210
IRS990/CYInvestmentIncomeAmt0-1921
IRS990/CYOtherExpensesAmt0293569
IRS990/CYOtherRevenueAmt07372
IRS990/CYProgramServiceRevenueAmt01436
IRS990/CYRevenuesLessExpensesAmt063474
IRS990/CYSalariesCompEmpBnftPaidAmt0170201
IRS990/CYTotalExpensesAmt0777980
IRS990/CYTotalFundraisingExpenseAmt049934
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt0841454
IRS990/DAFExcessBusinessHoldingsInd0false
IRS990/DecisionsSubjectToApprovaInd0false
IRS990/DeductibleArtContributionInd0false
IRS990/DeductibleNonCashContriInd0false
IRS990/DelegationOfMgmtDutiesInd0false
IRS990/DepreciationDepletionGrp/FundraisingAmt0285
IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt0325
IRS990/DepreciationDepletionGrp/ProgramServicesAmt0793
IRS990/DepreciationDepletionGrp/TotalAmt01403
IRS990/Desc0Our purpose is to find a cure and improve the quality of life for those affected by Cholangiocarcinoma. In 2015 we provided $314,210 in grants for research tied directly to Cholangiocarcinoma. We also provided patient education services and held our 2015 Annual Conference. This annual conference seeks to develop sustainable participation of the medical and research communities in the field of cholangiocarcinoma by providing a forum to: 1. Increase the knowledge of attendees about key issues central to the prevention, diagnosis, treatment, and cure for cholangiocarcinoma.2. Present a diversity of perspectives focused on clinical, basic, and translational research.3. Stimulate multi-disciplinary, cross-institutional collaborations.4. Foster dialogue and inspire innovation.
IRS990/DescribedInSection501c3Ind0true
IRS990/DisregardedEntityInd0false
IRS990/DistributionToDonorInd0false
IRS990/DocumentRetentionPolicyInd0true
IRS990/DonorAdvisedFundInd0false
IRS990/ElectionOfBoardMembersInd0false
IRS990/EmployeeCnt04
IRS990/EmploymentTaxReturnsFiledInd0true
IRS990/EngagedInExcessBenefitTransInd0false
IRS990/ExpenseAmt0645711
IRS990/FamilyOrBusinessRlnInd0true
IRS990/FederalGrantAuditRequiredInd0false
IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt08460
IRS990/FeesForServicesAccountingGrp/TotalAmt08460
IRS990/FeesForServicesManagementGrp/FundraisingAmt03600
IRS990/FeesForServicesManagementGrp/ManagementAndGeneralAmt05250
IRS990/FeesForServicesManagementGrp/ProgramServicesAmt015600
IRS990/FeesForServicesManagementGrp/TotalAmt024450
IRS990/ForeignActivitiesInd0false
IRS990/ForeignFinancialAccountInd0false
IRS990/ForeignOfficeInd0false
IRS990/Form1098CFiledInd0false
IRS990/Form8282PropertyDisposedOfInd0false
IRS990/Form8899Filedind0false
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt00.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt10.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt20.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt30.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt40.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt50.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt60.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt70.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt040.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt15.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt25.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt315.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt41.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt51.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt61.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt740.00
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/PersonNm0STACIE LINDSEY
IRS990/Form990PartVIISectionAGrp/PersonNm1DAWN LYON
IRS990/Form990PartVIISectionAGrp/PersonNm2LAWRENCE GOODFIELD
IRS990/Form990PartVIISectionAGrp/PersonNm3MARION SCHWARTZ
IRS990/Form990PartVIISectionAGrp/PersonNm4SEAN TURBEVILLE
IRS990/Form990PartVIISectionAGrp/PersonNm5LILLIE CHEN
IRS990/Form990PartVIISectionAGrp/PersonNm6JASON SCOTT
IRS990/Form990PartVIISectionAGrp/PersonNm7DONNA MAYER
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt031024
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt324000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt771567
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/TitleTxt0PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt1VICE PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt2TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt3ADVOCACY DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt5BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt6BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt7EXECUTIVE DIRECTOR
IRS990/Form990ProvidedToGvrnBodyInd0true
IRS990/FormationYr02006
IRS990/FormerOfcrEmployeesListedInd0false
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd0true
IRS990/FundraisingActivitiesInd0false
IRS990/FundraisingDirectExpensesAmt04812
IRS990/FundraisingGrossIncomeAmt09615
IRS990/GainOrLossGrp/OtherAmt0-2036
IRS990/GainOrLossGrp/SecuritiesAmt0-12
IRS990/GamingActivitiesInd0false
IRS990/GoverningBodyVotingMembersCnt07
IRS990/GrantAmt0314210
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt0314210
IRS990/GrantsToDomesticOrgsGrp/TotalAmt0314210
IRS990/GrantsToIndividualsInd0false
IRS990/GrantsToOrganizationsInd0true
IRS990/GrantToRelatedPersonInd0false
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt0729
IRS990/GrossReceiptsAmt0849043
IRS990/GrossSalesOfInventoryAmt02569
IRS990/GroupReturnForAffiliatesInd0false
IRS990/IncludeFIN48FootnoteInd0false
IRS990/IndependentAuditFinclStmtInd0true
IRS990/IndependentVotingMemberCnt05
IRS990/IndivRcvdGreaterThan100KCnt00
IRS990/IndoorTanningServicesInd0false
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt02935
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt08055
IRS990/InformationTechnologyGrp/ProgramServicesAmt043557
IRS990/InformationTechnologyGrp/TotalAmt054547
IRS990/InsuranceGrp/ManagementAndGeneralAmt04141
IRS990/InsuranceGrp/TotalAmt04141
IRS990/InvestmentIncomeGrp/RelatedOrExemptFuncIncomeAmt0127
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt0127
IRS990/InvestmentInJointVentureInd0false
IRS990/IRPDocumentCnt05
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt02694
IRS990/LandBldgEquipBasisNetGrp/BOYAmt04498
IRS990/LandBldgEquipBasisNetGrp/EOYAmt05974
IRS990/LandBldgEquipCostOrOtherBssAmt08668
IRS990/LegalDomicileStateCd0UT
IRS990/LessCostOthBasisSalesExpnssGrp/OtherAmt02036
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt0741
IRS990/LoanOutstandingInd0false
IRS990/LobbyingActivitiesInd0false
IRS990/LocalChaptersInd0false
IRS990/MaterialDiversionOrMisuseInd0false
IRS990/MembersOrStockholdersInd0false
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd0true
IRS990/MinutesOfGoverningBodyInd0true
IRS990/MissionDesc0To find a cure and improve the quality of life for those affected by cholangiocarcinoma.
IRS990/MoreThan5000KToIndividualsInd0false
IRS990/MoreThan5000KToOrgInd0false
IRS990/NetAssetsOrFundBalancesBOYAmt0280514
IRS990/NetAssetsOrFundBalancesEOYAmt0343988
IRS990/NetGainOrLossInvestmentsGrp/RelatedOrExemptFuncIncomeAmt0-2048
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt0-2048
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt04803
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt04803
IRS990/NetIncomeOrLossGrp/RelatedOrExemptFuncIncomeAmt02569
IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt02569
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NondeductibleContributionsInd0false
IRS990/OccupancyGrp/FundraisingAmt01575
IRS990/OccupancyGrp/ManagementAndGeneralAmt02100
IRS990/OccupancyGrp/ProgramServicesAmt0100
IRS990/OccupancyGrp/TotalAmt03775
IRS990/OfficeExpensesGrp/FundraisingAmt03272
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt02432
IRS990/OfficeExpensesGrp/ProgramServicesAmt019682
IRS990/OfficeExpensesGrp/TotalAmt025386
IRS990/OfficerMailingAddressInd0false
IRS990/OperateHospitalInd0false
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherExpensesGrp/Desc0DUES AND MEMBERSHIP
IRS990/OtherExpensesGrp/Desc1BANK AND MERCHANT FEES
IRS990/OtherExpensesGrp/Desc2MEALS
IRS990/OtherExpensesGrp/Desc3PHONE
IRS990/OtherExpensesGrp/FundraisingAmt01216
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt01616
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt16504
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt2470
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt31824
IRS990/OtherExpensesGrp/ProgramServicesAmt050
IRS990/OtherExpensesGrp/ProgramServicesAmt110178
IRS990/OtherExpensesGrp/ProgramServicesAmt23042
IRS990/OtherExpensesGrp/TotalAmt01666
IRS990/OtherExpensesGrp/TotalAmt16504
IRS990/OtherExpensesGrp/TotalAmt210648
IRS990/OtherExpensesGrp/TotalAmt36082
IRS990/OtherLiabilitiesGrp/BOYAmt026919
IRS990/OtherLiabilitiesGrp/EOYAmt051523
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt028646
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt033233
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt062306
IRS990/OtherSalariesAndWagesGrp/TotalAmt0124185
IRS990/OtherWebsiteInd0X
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd0false
IRS990/PayPremiumsPrsnlBnftCntrctInd0false
IRS990/PayrollTaxesGrp/FundraisingAmt02545
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt02910
IRS990/PayrollTaxesGrp/ProgramServicesAmt07087
IRS990/PayrollTaxesGrp/TotalAmt012542
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt020000
IRS990/PoliticalCampaignActyInd0false
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt0704
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt0706
IRS990/ProfessionalFundraisingInd0false
IRS990/ProgramServiceRevenueGrp/BusinessCd0900099
IRS990/ProgramServiceRevenueGrp/Desc0Other service revenue
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt01436
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt01436
IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYContributionsGrantsAmt0555393
IRS990/PYExcessBenefitTransInd0false
IRS990/PYGrantsAndSimilarPaidAmt0233825
IRS990/PYInvestmentIncomeAmt088
IRS990/PYOtherExpensesAmt0251525
IRS990/PYOtherRevenueAmt05698
IRS990/PYRevenuesLessExpensesAmt032334
IRS990/PYSalariesCompEmpBnftPaidAmt043495
IRS990/PYTotalExpensesAmt0528845
IRS990/PYTotalRevenueAmt0561179
IRS990/QuidProQuoContributionsInd0false
IRS990/RcvFndsToPayPrsnlBnftCntrctInd0false
IRS990/ReconcilationRevenueExpnssAmt063474
IRS990/RegularMonitoringEnfrcInd0true
IRS990/RelatedEntityInd0false
IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/ReportInvestmentsOtherSecInd0false
IRS990/ReportLandBuildingEquipmentInd0true
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0true
IRS990/ReportProgramRelatedInvstInd0false
IRS990/RevenueAmt01436
IRS990/SavingsAndTempCashInvstGrp/BOYAmt087577
IRS990/SavingsAndTempCashInvstGrp/EOYAmt0127704
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt0834567
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0555393
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0315190
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0236029
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0156293
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt02097472
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt0127
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt088
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt088
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt0128
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt0145
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt0576
IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt049071
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.85740
IRS990ScheduleA/PublicSupportPY170Pct00.87000
IRS990ScheduleA/PublicSupportTotal170Amt01798958
IRS990ScheduleA/SubstantialContributorsTotAmt0298514
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt0834567
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0555393
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0315190
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0236029
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0156293
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt02097472
IRS990ScheduleA/TotalSupportAmt02098048
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd0true
IRS990ScheduleC/DirectContactLegislatorsInd0false
IRS990ScheduleC/GrantsOtherOrganizationsInd0false
IRS990ScheduleC/MailingsMembersInd0false
IRS990ScheduleC/MediaAdvertisementsInd0false
IRS990ScheduleC/NotDescribedSection501c3Ind0false
IRS990ScheduleC/OtherActivitiesInd0false
IRS990ScheduleC/PaidStaffOrManagementInd0false
IRS990ScheduleC/PublicationsOrBroadcastInd0false
IRS990ScheduleC/RalliesDemonstrationsInd0false
IRS990ScheduleC/VolunteersInd0false
IRS990ScheduleD/EquipmentGrp/BookValueAmt05974
IRS990ScheduleD/EquipmentGrp/DepreciationAmt02694
IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt08668
IRS990ScheduleD/ExpensesNotReportedAmt04812
IRS990ScheduleD/ExpensesSubtotalAmt0777980
IRS990ScheduleD/OtherExpensesIncludedAmt04812
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt017115
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt134408
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc0PAYROLL LIABILITIES
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc1CREDIT CARD LIABILITY
IRS990ScheduleD/OtherRevenueAmt04812
IRS990ScheduleD/RevenueNotReportedAmt04812
IRS990ScheduleD/RevenueSubtotalAmt0841454
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0Net direct fundraising expense against fundraising revenue on Part VIII
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt1Net direct fundraising expense against fundraising revenue on Part VIII
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0Other revenues not included on Form 990 (Part XI, line 2d)
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc1Other expenses not included on Form 990 (Part XII, line 2d)
IRS990ScheduleD/TotalBookValueLandBuildingsAmt05974
IRS990ScheduleD/TotalExpensesPerForm990Amt0777980
IRS990ScheduleD/TotalLiabilityAmt051523
IRS990ScheduleD/TotalRevenuePerForm990Amt0841454
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt0846266
IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt0782792
IRS990ScheduleI/GrantRecordsMaintainedInd0true
IRS990ScheduleI/RecipientTable/CashGrantAmt0130000
IRS990ScheduleI/RecipientTable/CashGrantAmt150000
IRS990ScheduleI/RecipientTable/CashGrantAmt250000
IRS990ScheduleI/RecipientTable/CashGrantAmt360000
IRS990ScheduleI/RecipientTable/CashGrantAmt424210
IRS990ScheduleI/RecipientTable/IRCSectionDesc0501C3
IRS990ScheduleI/RecipientTable/IRCSectionDesc1501C3
IRS990ScheduleI/RecipientTable/IRCSectionDesc2501c3
IRS990ScheduleI/RecipientTable/IRCSectionDesc3501C3
IRS990ScheduleI/RecipientTable/IRCSectionDesc4501C3
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt1RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt2RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt3RESEARCH
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0MAYO CLINIC
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1ICAHN SCHOOL OF MEDICINE
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt2UNIVERSITY OF PENNSYLVANIA
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt3BRIGHAM AND WOMENS HOSPITAL
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt4WASHINGTON UNIV IN ST LOUIS
IRS990ScheduleI/RecipientTable/RecipientEIN0416011702
IRS990ScheduleI/RecipientTable/RecipientEIN1136171197
IRS990ScheduleI/RecipientTable/RecipientEIN2231352685
IRS990ScheduleI/RecipientTable/RecipientEIN3042768256
IRS990ScheduleI/RecipientTable/RecipientEIN4430653611
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt0200 FIRST STREET SW
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt11425 MADISON AVE
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt23451 WALNUT STREET
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt3PO BOX 3149
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt4FOREST PARK BLVD
IRS990ScheduleI/RecipientTable/USAddress/CityNm0Rochester
IRS990ScheduleI/RecipientTable/USAddress/CityNm1New York

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2015 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$423,222
Liabilities
$79,234
Net assets
$343,988
Revenue
$841,454
Expenses
$777,980
Net income
$63,474
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.77$1.22$4.55$7.13$7.20$0.07
2023Summary only. Only limited summary data is available for this year.$4.62$0.99$3.63$5.08$5.27$0.18
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.02$0.27$3.75$4.94$3.62$1.32
2021Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.74$0.31$2.44$3.90$2.28$1.62
2020Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.22$0.40$0.82$1.89$1.78$0.11
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.82$0.11$0.71$2.21$1.93$0.28
2018Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.70$0.27$0.43$1.53$1.29$0.24
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.39$0.07$0.33$0.90$0.92$0.02
2015Detailed filing. Detailed filing data is available for this year.$0.42$0.08$0.34$0.84$0.78$0.06
2014Detailed filing. Detailed filing data is available for this year.$0.31$0.03$0.28$0.56$0.53$0.03
2013Detailed filing. Detailed filing data is available for this year.$0.25$0.01$0.25$0.33$0.24$0.08
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.17$0.00$0.17$0.27
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.19$0.00$0.19$0.13