Civic Intelligence

The Cholangiocarcinoma Foundation

EIN 20-5776861 • 501(c)3 • Salt Lake City, UT

Profile

To find a cure and improve the quality of life for those affected by cholangiocarcinoma.

5526 West 13400 South Ste 510Salt Lake City, UT 84096

www.cholangiocarcinoma.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

60th percentile

0.21x

Higher debt load relative to assets than 60% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2025

Liabilities / Revenue

52nd percentile

0.17x

Higher debt load relative to revenue than 52% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2025

Net Margin

34th percentile

-0.9%

Higher net margin than 34% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2025

Top Officer Pay

81st percentile

$243,039

Higher top officer pay than 81% of similar nonprofits.

Top officer pay equals 3.4% of source-year revenue.

501(c)3 • $5M-$10M nonprofits • Source year 2025

Asset Growth

23rd percentile

-3.6%

Faster asset growth than 23% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Annualized from 2024 to 2025

Revenue Growth

42nd percentile

3.1%

Faster revenue growth than 42% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Annualized from 2024 to 2025

Balance Sheet
Liabilities / Assets60th percentile

Assets

Up

$5,767,836

Up $1,143,671 (+25%) from 2023

Liabilities

Up

$1,220,153

Up $226,739 (+23%) from 2023

Net Assets

Up

$4,547,683

Up $916,932 (+25%) from 2023

Operations
Liabilities / Revenue52nd percentileNet Margin34th percentile

Revenue

Up

$7,130,406

Up $2,047,756 (+40%) from 2023

Expenses

Up

$7,195,778

Up $1,929,751 (+37%) from 2023

Net Income

Up

-$65,372

Up $118,005 (+64%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth23rd percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$6.0M$4.0M$2.0M$0Assets 2011: $185,664Liabilities 2011: $208Net Assets 2011: $185,4562011Assets 2012: $166,908Liabilities 2012: $374Net Assets 2012: $166,5342012Assets 2013: $254,097Liabilities 2013: $5,916Net Assets 2013: $248,1812013Assets 2014: $309,684Liabilities 2014: $29,170Net Assets 2014: $280,5142014Assets 2015: $423,222Liabilities 2015: $79,234Net Assets 2015: $343,9882015Assets 2016: $394,042Liabilities 2016: $66,036Net Assets 2016: $328,0062016Assets 2018: $699,116Liabilities 2018: $266,865Net Assets 2018: $432,2512018Assets 2019: $815,602Liabilities 2019: $105,904Net Assets 2019: $709,6982019Assets 2020: $1,219,709Liabilities 2020: $404,683Net Assets 2020: $815,0262020Assets 2021: $2,743,945Liabilities 2021: $306,380Net Assets 2021: $2,437,5652021Assets 2022: $4,018,118Liabilities 2022: $265,340Net Assets 2022: $3,752,7782022Assets 2023: $4,624,165Liabilities 2023: $993,414Net Assets 2023: $3,630,7512023Assets 2025: $5,767,836Liabilities 2025: $1,220,153Net Assets 2025: $4,547,6832025

Highlighted filing

2025

Assets$5,767,836
Liabilities$1,220,153
Net Assets$4,547,683
Open 2025 Filing

Operations Trend

Revenue Growth42nd percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$8.0M$6.0M$4.0M$2.0M$0-$2.0MExpenses 2011: $130,3372011Expenses 2012: $268,7672012Revenue 2013: $326,189Expenses 2013: $244,542Net Income 2013: $81,6472013Revenue 2014: $561,179Expenses 2014: $528,845Net Income 2014: $32,3342014Revenue 2015: $841,454Expenses 2015: $777,980Net Income 2015: $63,4742015Revenue 2016: $904,493Expenses 2016: $923,885Net Income 2016: -$19,3922016Revenue 2018: $1,527,321Expenses 2018: $1,289,062Net Income 2018: $238,2592018Revenue 2019: $2,209,603Expenses 2019: $1,933,077Net Income 2019: $276,5262019Revenue 2020: $1,887,741Expenses 2020: $1,782,307Net Income 2020: $105,4342020Revenue 2021: $3,901,961Expenses 2021: $2,279,422Net Income 2021: $1,622,5392021Revenue 2022: $4,935,665Expenses 2022: $3,620,452Net Income 2022: $1,315,2132022Revenue 2023: $5,082,650Expenses 2023: $5,266,027Net Income 2023: -$183,3772023Revenue 2025: $7,130,406Expenses 2025: $7,195,778Net Income 2025: -$65,3722025

Highlighted filing

2025

Revenue$7,130,406
Expenses$7,195,778
Net Income-$65,372
Open 2025 Filing

Filings

Most recent year

2025 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$5,767,836
Liabilities
$1,220,153
Net assets
$4,547,683
Revenue
$7,130,406
Expenses
$7,195,778
Net income
-$65,372
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.77$1.22$4.55$7.13$7.20$0.07
2023Summary only. Only limited summary data is available for this year.$4.62$0.99$3.63$5.08$5.27$0.18
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.02$0.27$3.75$4.94$3.62$1.32
2021Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.74$0.31$2.44$3.90$2.28$1.62
2020Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.22$0.40$0.82$1.89$1.78$0.11
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.82$0.11$0.71$2.21$1.93$0.28
2018Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.70$0.27$0.43$1.53$1.29$0.24
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.39$0.07$0.33$0.90$0.92$0.02
2015Detailed filing. Detailed filing data is available for this year.$0.42$0.08$0.34$0.84$0.78$0.06
2014Detailed filing. Detailed filing data is available for this year.$0.31$0.03$0.28$0.56$0.53$0.03
2013Detailed filing. Detailed filing data is available for this year.$0.25$0.01$0.25$0.33$0.24$0.08
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.17$0.00$0.17$0.27
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.19$0.00$0.19$0.13
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jul 1, 2024 to Jun 30, 2025
Signed
Jan 23, 2026
Return Version
2024v5.0
Gross Receipts
$7,229,349
Mission and Program Overview

Mission

The organization's mission is to find a cure and improve the quality of life for cholangiocarcinoma patients.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$3,488,616$2,225,774▼ $1,262,842
Investments in Publicly Traded Securities$1,260,098$1,671,892▲ $411,794
Pledges and Grants Receivable$443,034$1,232,500▲ $789,466
Cash and Non-Interest-Bearing Accounts$346,565$274,904▼ $71,661
Prepaid Expenses and Deferred Charges$239,926$264,817▲ $24,891
Land, Buildings, and Equipment, Net$92,792$62,483▼ $30,309
Inventories for Sale or Use$88,631$32,654▼ $55,977
Accounts Receivable$21,291$2,812▼ $18,479
Total Assets$5,980,953$5,767,836▼ $213,117
Liabilities
Grants Payable$1,104,773$536,699▼ $568,074
Accounts Payable and Accrued Expenses$333,395$423,454▲ $90,059
Deferred Revenue$60,000$260,000▲ $200,000
Total Liabilities$1,498,168$1,220,153▼ $278,015
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$3,464,154$2,444,157▼ $1,019,997
Net Assets With Donor Restrictions$1,018,631$2,103,526▲ $1,084,895
Total Net Assets Fund Balance$4,482,785$4,547,683▲ $64,898
Total Liabilities and Net Assets / Fund Balance$5,980,953$5,767,836▼ $213,117

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$36,604$38,996$75,600
Equipment$25,879$47,517$73,396

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2024$12,046-▲ $1,498-$13,544
2023$10,256-▲ $1,790-$12,046
2022-$10,000▲ $256-$10,256
Compensation and Service Providers
Top Officer Pay81st percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Juan ValleChief MedicaFT$227,510$15,529$243,039
Juan ValleChief Medical Office-$227,510$18,750$243,039
Stacie LindseyCEO/founderFT$178,524$7,884$186,408
Alli WardCOOFT$143,957$403$147,581
Melinda BachiniCPOFT$132,967$6,063$139,030
Lily ZhangCFOFT$56,219$4,463$60,682

Board Members and Trustees

NameTitle
Teresa Delcorso-ellmannChair
Jack CallawayBoard Member
Jason ScottBoard Member
Jerry HuangBoard Member
Kris HighBoard Member
Liz WarnerBoard Member
Ross GreenBoard Member
Tyler BrideganBoard Member
Daniel BlumTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Encore Group USA LLCAudio Visual23918 NETWORK PLACE, SALT PALACE CONVENTION CENTER, Chicago, IL 60673$215,490
SodexoCatering100 S WEST TEMPLE STREET, Salt Lake City, UT 84101$191,312
Komodo Health INCAnalytics257 PARK AVE 2ND FLOOR, New York, NY 10010$155,917
IplanitEvent Mngmt1332 CUMBERLAND DRIVE, Longmont, CO 80504$114,860
Revenue and Support

Revenue Composition

Contributions and Grants
$6,634,735
Program Service Revenue
$357,617
Investment Income
$143,869
Other Revenue
$-5,815
All Other Contributions
$6,634,735
Change in Net Assets
$-65,372

Audited Revenue Reconciliation

Revenue per Audited Statements
$7,163,432
Revenue Not Reported on Financial Statements
$-33,026
Revenue Not Reported on Form 990
$130,270
Other Revenue Adjustments
$-33,026
Total Revenue per Audited Statements
$7,293,702
Total Revenue per Form 990
$7,130,406
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$3,515,927
Other Expenses$2,664,851
Total Fundraising Expense$1,326,070
Grants and Similar Amounts Paid$1,015,000
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$1,860,334$111,055$716,123$2,687,512
Fees for Services Other$608,217$69,812$145,333$823,362
Grants to Domestic Orgs$820,000--$820,000
Travel$504,627$11,721$18,801$535,149
Information Technology$245,755$30,342$145,232$421,329
Current Officers, Directors, Trustees, and Key Employees$134,679$190,540$22,487$347,706
Payroll Taxes$168,808$24,911$63,186$256,905
Foreign Grants$195,000--$195,000
Other Employee Benefits$97,811$7,320$48,426$153,557
Advertising$120,815-$19,852$140,667
Office Expenses$95,808$531$32,681$129,020
Conferences and Meetings$66,751$2,012$3,752$72,515
Pension Plan Contributions$48,215$858$21,174$70,247
Occupancy$48,629$1,470$3,816$53,915
Depreciation Depletion$29,132$4,407$11,145$44,684
Other Expenses$22,391$1,221$22,332$23,553
All Other Expenses$14,550$3,274$3,475$21,299
Insurance$11,432$3,777$1,550$16,759
Fees for Services Accounting-$11,100-$11,100
Fees for Services Legal-$523-$523
Total Functional Expenses$5,376,715$492,993$1,326,070$7,195,778

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$7,228,804
Expenses per Audited Statements$7,195,778
Total Expenses per Form 990$7,195,778
Expenses Not Reported on Form 990$33,026
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Mayo ClinicRochester, MN501c3Cancer Research$245,000
UcsfSan Francisco, CAGovCancer Research$185,000
VanderbiltNashville, TN501c3Cancer Research$130,000
Beth Israel Deaconess Medical CenteBoston, MA501c3Cancer Research$65,000
Mass General HospitalBoston, MA501c3Cancer Research$65,000
Md Anderson Cancer CenterHouston, TXGovCancer Research$65,000
National Cancer InstituteBethesda, MDGovCancer Research$65,000

International Summary

Spending
$195,000

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
EuropeGrantmakingCancer Research--$130,000
North AmericaGrantmakingCancer Research--$65,000
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 11B

“The organization's 990 is prepared by an independent accounting firm. The 990 is reviewed by the organization's accountant, treasurer, cfo, and ceo for accuracy and completeness. The 990 is provided to all members of the board of directors prior to filing for their review.”

Form 990, Page 6, Part VI, Line 12C

“The organization's conflict of interest policy requires annual disclosure of potential conflicts by all members of management and the board of directors. The organization's executive committee is responsible for reviewing all disclosures and assessing how potential conflicts disclosed should be addressed. If a real or perceived conflict is determined to exist, any affected board members will be recused from voting on any issues related to the conflict.”

Form 990, Page 6, Part VI, Line 15A

“Compensation for the executive director and board president is determined by individuals independent of the ceo. In determining a reasonable level of compensation, the board considers comparability data such as salary surveys and indicating comparable wages paid by other organizations of similar size and complexity. The deliberation and determination of compensation for the ceo is contemporaneously documented.”

Form 990, Page 6, Part VI, Line 15B

“Compensation for the cfo is determined by individuals independent of the cfo. In determining a reasonable level of compensation, the board considers comparability data such as salary surveys and indicating comparable wages paid by other organizations of similar size and complexity. The deliberation and determination of compensation for the coo is contemporaneously documented.”

Form 990, Page 6, Part VI, Line 17

“Louisiana, massachusetts, maryland, maine, michigan, minnesota, missouri, mississippi, north carolina, north dakota, new hampshire, new jersey, new mexico, nevada, new york, ohio, oklahoma, oregon, pennsylvania, rhode island, south carolina, tennessee, utah, virginia, washington, wisconsin, west virginia”

Form 990, Page 6, Part VI, Line 19

“The organization's governing documents, conflict of interest policy, and financial statements are available to the public upon written request to the organization's address.”

Filing and Contact Details

Filer

Filer Name
The Cholangiocarcinoma Foundation
EIN
20-5776861
Phone
8889366731
Address
5526 WEST 13400 SOUTH STE 510, SALT LAKE CITY, UT 84096

Signing Officer

Name
Lily Zhang
Title
CFO
Phone
8019990455
Signed
2026-01-23
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Stacie Lindsey
Formed
2006
Legal Domicile
Ut
Voting Board Members
10
Independent Board Members
9
Employees
32
Volunteers
250

Preparer

Firm
Bountiful Peak Advisors
Address
1564 SOUTH 500 WEST SUITE 201, BOUNTIFUL, UT 84010-7400
Preparer
Shalaun T Howell CPA
Phone
8012943155
Supplemental Narrative

Additional Explanations

Form 990, Part IX, Line 11G

“Audio visual 239,032 0 0 honorarium 2,450 0 0 outside contract services 103,604 53,004 110,343 event planning 114,835 0 0 physician awareness 60,000 0 0 human resource consulting 42,331 8,058 16,775 consulting 45,965 8,750 18,215 total 608,217 69,812 145,333”

Form 990, Part XI, Line 9

“Cost of goods sold 22,047 store maintenance 13,629 return of grant funds -2,650 cost of goods sold -22,047 store maintenance -13,629 return of grant funds 2,650”

Financial Statement Notes

Schedule D, Page 2, Part V, Line 4

“The organization's endowment was established to provide ongoing funding for patient support, research, and other mission-based programs.”

Schedule D, Page 3, Part X

“The organization has been recognized by the internal revenue service (irs) as exempt from federal income taxes under section 501(c)(3), qualifying for the charitable contribution deduction under section 170(b)(1)(a)(vi) and has been determined not to be a private foundation under section 509(a). The organization is annually required to file a return of organization exempt from income tax (form 990) and is subject to income tax on net income that is derived from business activities that are unrelated to their exempt purposes. Management has determined that the organization is not subject to unrelated business income tax. Management believes that the organization has appropriate support for any tax positions taken in its annual filing and does not have any uncertain tax positions that are material to the financial statements. The organization's forms 990 are no longer subject to tax examination for years before 2021.”

Schedule D, Page 4, Part XI, Line 4B

“Cost of goods sold -22,047 store maintenance -13,629 return of grant funds 2,650”

Schedule D, Page 4, Part XII, Line 2D

“Cost of goods sold 22,047 store maintenance 13,629 return of grant funds -2,650”

Raw XML AppendixShowing 400 of 766 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
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IRS990/AccountantCompileOrReviewInd0false
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