Civic Intelligence

Autism Speaks Inc.

990 • Fiscal year 2023 • EIN 20-2329938

Apr 01, 2022 to Mar 31, 2023 • Filed on Jan 24, 2024

Organization ProfileWWW.AUTISMSPEAKS.ORG

View Organization Page

50 F Street NW 360Washington, DC 20001

(646) 385-8500

Siviq Scores

Scores are not available for this record yet.

Balance Sheet

Assets

Flat

$41,380,468

Flat from 2023

Net Assets

Flat

$37,842,071

Flat from 2023

Liabilities

Flat

$3,538,397

Flat from 2023

Revenue And Expenses

Revenue

Flat

$36,262,685

Flat from 2023

Expenses

Flat

$42,911,083

Flat from 2023

Net Income

Flat

-$6,648,398

Flat from 2023

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$60M$40M$20M$0Assets 2010: $19,092,550Liabilities 2010: $6,622,621Net Assets 2010: $12,469,9292010Assets 2011: $22,705,993Liabilities 2011: $11,471,752Net Assets 2011: $11,234,2412011Assets 2012: $15,783,483Liabilities 2012: $9,968,376Net Assets 2012: $5,815,1072012Assets 2013: $19,677,425Liabilities 2013: $9,969,101Net Assets 2013: $9,708,3242013Assets 2014: $16,027,902Liabilities 2014: $7,342,084Net Assets 2014: $8,685,8182014Assets 2015: $18,248,413Liabilities 2015: $12,041,734Net Assets 2015: $6,206,6792015Assets 2016: $15,392,508Liabilities 2016: $8,369,003Net Assets 2016: $7,023,5052016Assets 2017: $20,577,061Liabilities 2017: $5,977,780Net Assets 2017: $14,599,2812017Assets 2018: $37,840,172Liabilities 2018: $3,326,543Net Assets 2018: $34,513,6292018Assets 2019: $38,992,178Liabilities 2019: $3,779,693Net Assets 2019: $35,212,4852019Assets 2020: $46,226,879Liabilities 2020: $5,438,704Net Assets 2020: $40,788,1752020Assets 2021: $48,207,079Liabilities 2021: $6,502,112Net Assets 2021: $41,704,9672021Assets 2022: $47,834,408Liabilities 2022: $3,480,430Net Assets 2022: $44,353,9782022Assets 2023: $41,380,468Liabilities 2023: $3,538,397Net Assets 2023: $37,842,0712023Assets 2023: $41,380,468Liabilities 2023: $3,538,397Net Assets 2023: $37,842,0712023Assets 2025: $29,672,783Liabilities 2025: $2,759,793Net Assets 2025: $26,912,9902025

Highlighted filing

2023

Assets$41,380,468
Liabilities$3,538,397
Net Assets$37,842,071
Open 2023 Filing

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$80M$60M$40M$20M$0-$20MExpenses 2010: $48,657,4802010Revenue 2011: $55,487,475Expenses 2011: $56,711,411Net Income 2011: -$1,223,9362011Expenses 2012: $58,720,2562012Revenue 2013: $63,786,909Expenses 2013: $62,401,349Net Income 2013: $1,385,5602013Revenue 2014: $57,567,046Expenses 2014: $58,589,552Net Income 2014: -$1,022,5062014Revenue 2015: $58,138,267Expenses 2015: $60,617,406Net Income 2015: -$2,479,1392015Revenue 2016: $47,556,499Expenses 2016: $46,739,673Net Income 2016: $816,8262016Revenue 2017: $50,437,078Expenses 2017: $42,861,302Net Income 2017: $7,575,7762017Revenue 2018: $60,008,376Expenses 2018: $40,094,028Net Income 2018: $19,914,3482018Revenue 2019: $9,656,943Expenses 2019: $8,939,165Net Income 2019: $717,7782019Revenue 2020: $53,701,450Expenses 2020: $48,144,682Net Income 2020: $5,556,7682020Revenue 2021: $42,083,296Expenses 2021: $41,166,504Net Income 2021: $916,7922021Revenue 2022: $46,771,653Expenses 2022: $44,122,642Net Income 2022: $2,649,0112022Revenue 2023: $36,262,685Expenses 2023: $42,911,083Net Income 2023: -$6,648,3982023Revenue 2023: $36,262,685Expenses 2023: $42,911,083Net Income 2023: -$6,648,3982023Revenue 2025: $28,799,237Expenses 2025: $34,172,414Net Income 2025: -$5,373,1772025

Highlighted filing

2023

Revenue$36,262,685
Expenses$42,911,083
Net Income-$6,648,398
Open 2023 Filing
Jump To
Filing Snapshot
Filing Period
Apr 1, 2022 to Mar 31, 2023
Signed
Jan 24, 2024
Return Version
2022v5.0
Gross Receipts
$37,595,924
Mission and Program Overview

Mission

See schedule owe achieve our organizational mission by ensuring access to reliable information and services across the lifespan; supporting research and innovation that drives toward improved quality of life and well-being for individuals with autism throughout their lives; through advocacy, partnerships and collaboration, leveraging our assets to support, extend, and convene the work of service providers; accelerating delivery of solutions for adult quality of life needs, including transition, employment, housing, and health and wellness; and living and promoting principles of diversity, equity, access and inclusion both in and outside the organization.

See schedule o.autism speaks is dedicated to creating an inclusive world for all individuals with autism throughout their lifespan. We do this through advocacy, services, supports, research and innovation, and advances in care for autistic individuals and their families.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$21,952,383$22,419,775▲ $467,392
Pledges and Grants Receivable$3,550,666$7,108,288▲ $3,557,622
Savings and Temporary Cash Investments$5,927,480$5,410,238▼ $517,242
Accounts Receivable$4,323,693$3,192,661▼ $1,131,032
Cash and Non-Interest-Bearing Accounts$10,389,162$1,383,227▼ $9,005,935
Prepaid Expenses and Deferred Charges$470,710$947,296▲ $476,586
Land, Buildings, and Equipment, Net$726,684$454,069▼ $272,615
Other Notes and Loans Receivable, Net$0$0→ $0
Receivable From Disqualified Prsn$0$0→ $0
Receivables From Officers Etc$0$0→ $0
Investments Other Securities$0$0→ $0
Investments Program Related$0$0→ $0
Inventories for Sale or Use$0$0→ $0
Loans From Officers Directors$0$0→ $0
Total Assets$47,834,408$41,380,468▼ $6,453,940
Other Assets Total$493,630$464,914▼ $28,716
Liabilities
Accounts Payable and Accrued Expenses$2,882,095$3,211,178▲ $329,083
Other Liabilities$208,090$0▼ $208,090
Grants Payable$286,669$168,243▼ $118,426
Deferred Revenue$103,576$158,976▲ $55,400
Mortgage Notes Payable Secured by Investment Property$0$0→ $0
Unsecured Notes Loans Payable$0$0→ $0
Escrow Account Liability$0$0→ $0
Tax Exempt Bond Liabilities$0$0→ $0
Total Liabilities$3,480,430$3,538,397▲ $57,967
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$29,257,024$21,408,452▼ $7,848,572
Net Assets With Donor Restrictions$15,096,954$16,433,619▲ $1,336,665
Total Net Assets Fund Balance$44,353,978$37,842,071▼ $6,511,907
Total Liabilities and Net Assets / Fund Balance$47,834,408$41,380,468▼ $6,453,940

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$410,904$1,959,243$2,370,147
Equipment$42,256$732,160$774,416
Leasehold Improvements$909$561,421$562,330
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Keith WargoPresident/CEOFT$440,786$186,708$627,494
Andy ShihChief Science OfficerFT$293,290$71,508$364,798
Joseph VanyoChief Operating OfficerFT$320,642$26,981$347,623
Jennifer PodollSVP, Constituent EngagementFT$228,017$46,708$274,725
Donna S MurrayVP, Head Cl. Prgm (thru 11/2022)FT$192,320$77,482$269,802
Lynn HappelSVP, It & Data SupportFT$226,167$41,443$267,610
Melanie AkinsVP, Corp. Initiatives (thru 01/2023)FT$210,148$50,882$261,030
Stuart SpielmanSVP, AdvocacyFT$237,681$13,620$251,301
Angela GeigerFormer CEO & PresidentFT$160,811$76,542$237,353
Kelli SeelyChief Marketing Officer (beg. 05/2022)FT$207,766$20,477$228,243
Kelli SeelyChief Marketing Officer (beg. 05/202-$207,014$21,229$228,243
Claudine LarocqueVP, Individual/foundation RelationsFT$198,823$23,813$222,636

Board Members and Trustees

NameTitle
Brian L HarperChair
Adrian M JonesVice Chairman
Jamie T RichardsonVice Chairman
Adam FrazierDirector
Aidan KehoeDirector
Barry R FeirsteinDirector
Bob SchwenkelDirector
Cheryl VitaliDirector
Darren GoodeDirector
Herbert Pardes MdDirector
Jacquelyn NanceDirector
Jennifer CasertaDirector
Jennifer SeidelDirector
Kevin J MurrayDirector
Matthew HigginsDirector
Scott R CarpenterDirector
Stephen Shore EddDirector
Steven P StanbrookDirector
Stuart SavitzDirector
Subriana PierceDirector
Tim JonesDirector
Tom BernardDirector
Tom FrazierDirector
WILLIAM O'CONNORDirector
Curtis ArledgeSecretary/treasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Craft & Commerce LLPCreative/advertising222 BROADWAY, New York, NY 10038$3,383,799
Southwest Publishing & Mailing CorpDirect Mail Svcs4000 SE ADAMS ST STE 2, Topeka, KS 66609$2,459,174
The Advertising Council INCAdvertising815 2ND AVE FL 9, New York, NY 10017-4500$580,615
Thompson Habib & Denison INCDirect Mail Svcs55 OLD BEDFORD RD 201, Lincoln, MA 01773$551,706
Rbo PrintlogistixPrinting Services2463 SCHUETZ ROAD, Maryland Heights, MO 63043$376,487
Revenue and Support

Revenue Composition

Contributions and Grants
$35,557,820
Program Service Revenue
$0
Investment Income
$636,469
Other Revenue
$68,396
All Other Contributions
$31,386,084
Change in Net Assets
$-6,648,398

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
Yes
Third parties used for noncash contributions
Yes

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Miscellaneous26$51,858Fair Market Value (FMV)
Total Noncash Contributions26$51,858-
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$19,584,676
Other Expenses$16,369,821
Total Fundraising Expense$6,625,300
Grants and Similar Amounts Paid$6,594,373
Professional Fundraising Fees$362,213

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$9,935,945$1,633,181$2,727,347$14,296,473
Grants to Domestic Orgs$5,051,935--$5,051,935
Advertising$4,088,343$398$159,413$4,248,154
Office Expenses$1,567,011$51,460$1,096,451$2,714,922
Other Employee Benefits$1,440,253$214,981$342,676$1,997,910
Fees for Services Other$1,507,659$38,515$372,114$1,918,288
Information Technology$1,280,712$149,156$300,536$1,730,404
Current Officers, Directors, Trustees, and Key Employees$1,149,526$322,972$136,308$1,608,806
Payroll Taxes$803,980$151,908$206,061$1,161,949
Foreign Grants$829,015--$829,015
Grants to Domestic Individuals$713,423--$713,423
Travel$563,459$16,678$113,087$693,224
Fees for Services Lobbying$563,540--$563,540
All Other Expenses$521,666$16,698$20,170$558,534
Pension Plan Contributions$363,664$62,276$93,598$519,538
Occupancy$355,806$39,057$91,347$486,210
Fees for Services Professional Fundraising--$362,213$362,213
Fees for Services Legal$253,371$39,984-$293,355
Depreciation Depletion$221,861$23,555$33,898$279,314
Other Expenses$138,574$310,502$138,574$277,148
Insurance$90,486$32,430$12,514$135,430
Fees for Services Accounting$48,502$21,343-$69,845
Total Functional Expenses$8,279,282$1,145,006$4,636,031$14,060,319
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
PHOENIX CHILDREN'S HOSPITALPhoenix, AZ501(c)(3)Science Grant$358,082
University of PittsburghPittsburgh, PA-Science Grant$343,569
Regents University of California Los AngelesLos Angeles, CA501(c)(3)Science Grant$300,478
CINCINNATI CHILDREN'S HOSPITAL MEDICAL CENTERCincinnati, OH501(c)(3)Science Grant$265,697
Regents of the University of California at IrvineIrvine, CA501(c)(3)Science Grant$258,513
THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITALColumbus, OH-Science Grant$250,288
The Board of Trustees of the Leland Stanford Junior UniversityRedfwood City, CA501(c)(3)Science Grant$246,267
University of RochesterRochester, NY-Science Grant$234,458
Rutgers the State University of NjPiscataway, NJ501(c)(3)Science Grant$200,000
THE CHILDREN'S HOSPITAL OF PHILADELPHIAPhiladelphia, PA501(c)(3)Science Grant$194,942
University of Massachusetts WorcesterWorcester, MA-Science Grant$172,088
Prisma Health-upstateGreenville, SC501(c)(3)Science Grant$144,563
The Rector & Visitors of the University of VirginiaCharlottesville, VA-Science Grant$132,302
Research Foundation for State University of New YorkAlbany, NY501(c)(3)Science Grant$132,111
The Metrohealth SystemCleveland, OH501(c)(3)Science Grant$131,964
CHILDREN'S HOSPITAL CORPORATIONBoston, MA501(c)(3)Science Grant$131,733
University of Nebraska Board of RegentsOmaha, NE-Science Grant$130,000
Baylor College of MedicineHouston, TX501(c)(3)Science Grant$116,770
Childrens Healthcare of Atlanta IncAtlanta, GA501(c)(3)Science Grant$114,610
CHILDREN'S HOSPITAL LOS ANGELESLos Angeles, CA501(c)(3)Science Grant$97,755
The General Hospital CorporationBoston, MA501(c)(3)Science Grant$96,287
SEATTLE CHILDREN'S HOSPITALSeattle, WA501(c)(3)Science Grant$81,969
Emory UniversityAtlanta, GA501(c)(3)Science Grant$79,591
Board of Regents of the University of Wisconsin SystemMadison, WI501(c)(3)Science Grant$68,895
The Curators of the University of Missouri-columbiaColumbia, MO501(c)(3)Science Grant$64,667
Vanderbilt University Medical CenterNashville, TN-Science Grant$57,500
Raun D Melmed MdScottsdale, AZ501(c)(3)Science Grant$50,142
The Ohio State University FoundationColumbus, OH-Science Grant$45,141
Hive NetworksCincinnati, OH501(c)(3)Science Grant$44,800
Merakey MidwestLafayette Hill, PA501(c)(3)Science Grant$32,000
Hospital for Special Care IncNew Britain, CT501(c)(3)Science Grant$30,000
John Carroll UniversityUniversity Heights, OH501(c)(3)Science Grant$29,750
Marcus Autism CenterAtlanta, GA501(c)(3)Science Grant$28,653
Institute for Healthcare ImprovementCambridge, MA501(c)(3)Science Grant$22,917
Drexel UniversityPhiladelphia, PA501(c)(3)Science Grant$19,102
MainehealthPortland, ME501(c)(3)Science Grant$17,500

International Summary

Offices
0
Employees
0
Spending
$1,047,562

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
North AmericaGrantmakingMssng Project00$428,387
Europe (including Iceland & Greenland)Grantmaking-00$375,000
North AmericaProgram Service-00$218,547
Sub-saharan AfricaGrantmaking-00$17,233
South AsiaGrantmaking-00$8,395
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
Yes

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$1,333,085
Fundraising Gross Income$1,333,085
Professional Fundraising Fees$362,213

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Winged Foot$597,182$279,894$16,580$263,314
Chip in for Autism - Chicago Gala$913,634$126,342$12,463$113,879
Total Events$5,423,864$1,333,085$1,333,085$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Loans from Officers, Directors, Trustees, and Key Employees$0$0→ $0
Receivables from Disqualified Persons$0$0→ $0
Receivables from Officers, Directors, Trustees, and Key Employees$0$0→ $0
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
Yes
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The form 990 is prepared by finance department staff members and reviewed by external independent certified public accountants. Once completed, the form 990 is presented to the board of directors in advance of filing with the irs.”

Form 990, Part VI, Section B, Line 12C

“Board members, key executives, and all staff are required to review and sign the conflict of interest policy on an annual basis and disclose any business entity which provided services to autism speaks or to which autism speaks provided grants or services that they or their spouse have an interest. The organization's ceo, coo, and hr team review the completed conflict of interest reports. Any exceptions are shared with the executive committee of the board for approval. Also required to be listed is any entity, whether business, institution, or non-profit organization, with which they are currently affiliated with in any working capacity. Every business entity reported by board members or staff with which a working relationship outside of autism speaks exists is investigated for a potential conflict of interest. Autism speaks may impose sanctions on a covered person for non-compliance, including termination.”

Form 990, Part VI, Section B, Line 15

“The compensation committee of the board is comprised of independent persons. The committee reviews ceo compensation of several national non-profits of similar size and scope when determining appropriate and reasonable compensation for autism speaks' president and other senior executives. Additionally, autism speaks has a formal compensation structure based on market data of similarly sized national organizations, which determines a salary range by job. Autism speaks' aims to pay individuals at competitive market rates targeted to the median. The independent persons, after considering the comparability data, document their decisions in a written consent signed by each compensation committee member.”

Form 990, Part VI, Section C, Line 19

“Autism speaks' audited financial statements and form 990 are available on its website -autismspeaks.org and are available upon request. Autism speaks' form 1023, conflict of interests policy and by-laws are available upon request.”

Filing and Contact Details

Filer

Filer Name
Autism Speaks Inc
EIN
20-2329938
Phone
6463858500
Address
50 F STREET NW 360, WASHINGTON, DC 20001

Signing Officer

Name
Joseph T Vanyo
Title
COO
Phone
6092287339
Signed
2024-01-24
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Keith Wargo
Formed
2005
Legal Domicile
De
Voting Board Members
25
Independent Board Members
25
Employees
194
Volunteers
33,000

Preparer

Firm
Grant Thornton Llp
Address
2001 MARKET STREET SUITE 700, PHILADELPHIA, PA 19103
Preparer
Alycia Solecki
Phone
2155614200
Supplemental Narrative

Additional Explanations

FORM 990, PART XI, LINE 9:

“Change in npv of contributions 136,491.”

Financial Statement Notes

PART X, LINE 2:

“Autism speaks has determined that there are no material uncertain tax positions that require recognition or disclosure in the consolidated financial statements.”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Desc0WE INCREASE KNOWLEDGE THROUGH RESEARCH TO DEEPEN OUR UNDERSTANDING OF AUTISM AND LEAD TO ADVANCEMENTS IN AUTISM DIAGNOSIS, EARLY INTERVETNION, AND PERSONALIZED HEALTHCARE. CONNECTED FAMILIES IN 50 STATES AND 37 COUNTRIES WITH RESOURCES AND ACCESS TO AUTISM EXPERTS. LAUNCHED TWO RESEARCH STUDIES TO IMPROVE PRECISION AUTISM CARE AND EARLY IDENTIFICATION. HOSTED A THOUGHT LEADERSHIP SUMMIT ON AUTISM AND AGING TO DEVELOP PROGRAMS AND POLICIES FOR BETTER SYSTEMS OF CARE FOR OLDER AUTISTIC PEOPLE AND THEIR CAREGIVERS. RELEASED THE VERY FIRST AUTISM BY THE NUMBERS REPORT TO SUPPORT INDIVIDUAL, FAMILY AND COMMUNITY DECISION-MAKING.
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IRS990/Form990PartVIISectionAGrp/TitleTxt0CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt1VICE CHAIRMAN

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Filings

Displayed year

2023 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$41,380,468
Liabilities
$3,538,397
Net assets
$37,842,071
Revenue
$36,262,685
Expenses
$42,911,083
Net income
-$6,648,398
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Facts available. Structured filing facts are available, but richer extracted sections are limited.$29.7$2.76$26.9$28.8$34.2$5.37
2023Detailed filing. Detailed filing data is available for this year.$41.4$3.54$37.8$36.3$42.9$6.65
2023Summary only. Only limited summary data is available for this year.$41.4$3.54$37.8$36.3$42.9$6.65
2022Detailed filing. Detailed filing data is available for this year.$47.8$3.48$44.4$46.8$44.1$2.65
2021Detailed filing. Detailed filing data is available for this year.$48.2$6.50$41.7$42.1$41.2$0.92
2020Detailed filing. Detailed filing data is available for this year.$46.2$5.44$40.8$53.7$48.1$5.56
2019Summary only. Only limited summary data is available for this year.$39.0$3.78$35.2$9.66$8.94$0.72
2018Summary only. Only limited summary data is available for this year.$37.8$3.33$34.5$60.0$40.1$19.9
2017Facts available. Structured filing facts are available, but richer extracted sections are limited.$20.6$5.98$14.6$50.4$42.9$7.58
2016Detailed filing. Detailed filing data is available for this year.$15.4$8.37$7.02$47.6$46.7$0.82
2015Detailed filing. Detailed filing data is available for this year.$18.2$12.0$6.21$58.1$60.6$2.48
2014Detailed filing. Detailed filing data is available for this year.$16.0$7.34$8.69$57.6$58.6$1.02
2013Detailed filing. Detailed filing data is available for this year.$19.7$9.97$9.71$63.8$62.4$1.39
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$15.8$9.97$5.82$58.7
2011Summary only. Only limited summary data is available for this year.$22.7$11.5$11.2$55.5$56.7$1.22
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$19.1$6.62$12.5$48.7