Civic Intelligence

Autism Speaks Inc.

990 • Fiscal year 2013 • EIN 20-2329938

Jan 01, 2013 to Dec 31, 2013 • Filed on Nov 13, 2014

1 East 33rd Street 4th FloorSuite10016

(212) 252-8584

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

67th percentile

0.51x

Higher debt load relative to assets than 67% of similar nonprofits.

2013 filings • 501(c)3 • $50M-$100M nonprofits • Source year 2013

Liabilities / Revenue

24th percentile

0.16x

Higher debt load relative to revenue than 24% of similar nonprofits.

2013 filings • 501(c)3 • $50M-$100M nonprofits • Source year 2013

Net Margin

43rd percentile

2.2%

Higher net margin than 43% of similar nonprofits.

2013 filings • 501(c)3 • $50M-$100M nonprofits • Source year 2013

Top Officer Pay

55th percentile

$371,719

Higher top officer pay than 55% of similar nonprofits.

Top officer pay equals 0.6% of source-year revenue.

2013 filings • 501(c)3 • $50M-$100M nonprofits • Source year 2013

Asset Growth

90th percentile

25%

Faster asset growth than 90% of similar nonprofits.

2013 filings • 501(c)3 • $50M-$100M nonprofits • Annualized from 2012 to 2013

Revenue Growth

55th percentile

7.2%

Faster revenue growth than 55% of similar nonprofits.

2013 filings • 501(c)3 • $50M-$100M nonprofits • Annualized from 2011 to 2013

Assets

Up

$19,677,425

Up $3,893,942 (+25%) from 2012

Net Assets

Up

$9,708,324

Up $3,893,217 (+67%) from 2012

Liabilities

Up

$9,969,101

Up $725 (+0.0%) from 2012

Revenue

$63,786,909

No earlier filing loaded for comparison.

Expenses

Up

$62,401,349

Up $3,681,093 (+6.3%) from 2012

Net Income

$1,385,560

No earlier filing loaded for comparison.

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$60M$40M$20M$0Assets 2010: $19,092,550Liabilities 2010: $6,622,621Net Assets 2010: $12,469,9292010Assets 2011: $22,705,993Liabilities 2011: $11,471,752Net Assets 2011: $11,234,2412011Assets 2012: $15,783,483Liabilities 2012: $9,968,376Net Assets 2012: $5,815,1072012Assets 2013: $19,677,425Liabilities 2013: $9,969,101Net Assets 2013: $9,708,3242013Assets 2014: $16,027,902Liabilities 2014: $7,342,084Net Assets 2014: $8,685,8182014Assets 2015: $18,248,413Liabilities 2015: $12,041,734Net Assets 2015: $6,206,6792015Assets 2016: $15,392,508Liabilities 2016: $8,369,003Net Assets 2016: $7,023,5052016Assets 2017: $20,577,061Liabilities 2017: $5,977,780Net Assets 2017: $14,599,2812017Assets 2018: $37,840,172Liabilities 2018: $3,326,543Net Assets 2018: $34,513,6292018Assets 2019: $38,992,178Liabilities 2019: $3,779,693Net Assets 2019: $35,212,4852019Assets 2020: $46,226,879Liabilities 2020: $5,438,704Net Assets 2020: $40,788,1752020Assets 2021: $48,207,079Liabilities 2021: $6,502,112Net Assets 2021: $41,704,9672021Assets 2022: $47,834,408Liabilities 2022: $3,480,430Net Assets 2022: $44,353,9782022Assets 2023: $41,380,468Liabilities 2023: $3,538,397Net Assets 2023: $37,842,0712023Assets 2025: $29,672,783Liabilities 2025: $2,759,793Net Assets 2025: $26,912,9902025

Highlighted filing

2013

Assets$19,677,425
Liabilities$9,969,101
Net Assets$9,708,324

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$80M$60M$40M$20M$0-$20MExpenses 2010: $48,657,4802010Revenue 2011: $55,487,475Expenses 2011: $56,711,411Net Income 2011: -$1,223,9362011Expenses 2012: $58,720,2562012Revenue 2013: $63,786,909Expenses 2013: $62,401,349Net Income 2013: $1,385,5602013Revenue 2014: $57,567,046Expenses 2014: $58,589,552Net Income 2014: -$1,022,5062014Revenue 2015: $58,138,267Expenses 2015: $60,617,406Net Income 2015: -$2,479,1392015Revenue 2016: $47,556,499Expenses 2016: $46,739,673Net Income 2016: $816,8262016Revenue 2017: $50,437,078Expenses 2017: $42,861,302Net Income 2017: $7,575,7762017Revenue 2018: $60,008,376Expenses 2018: $40,094,028Net Income 2018: $19,914,3482018Revenue 2019: $9,656,943Expenses 2019: $8,939,165Net Income 2019: $717,7782019Revenue 2020: $53,701,450Expenses 2020: $48,144,682Net Income 2020: $5,556,7682020Revenue 2021: $42,083,296Expenses 2021: $41,166,504Net Income 2021: $916,7922021Revenue 2022: $46,771,653Expenses 2022: $44,122,642Net Income 2022: $2,649,0112022Revenue 2023: $36,262,685Expenses 2023: $42,911,083Net Income 2023: -$6,648,3982023Revenue 2025: $28,799,237Expenses 2025: $34,172,414Net Income 2025: -$5,373,1772025

Highlighted filing

2013

Revenue$63,786,909
Expenses$62,401,349
Net Income$1,385,560
Jump To
Filing Snapshot
Filing Period
Jan 1, 2013 to Dec 31, 2013
Signed
Nov 13, 2014
Return Version
2013v3.1
Gross Receipts
$65,992,738
Mission and Program Overview

Mission

See schedule owe achieve our organizational mission by ensuring access to reliable information and services across the lifespan; supporting research and innovation that drives toward improved quality of life and well-being for individuals with autism throughout their lives; through advocacy, partnerships and collaboration, leveraging our assets to support, extend, and convene the work of service providers; accelerating delivery of solutions for adult quality of life needs, including transition, employment, housing, and health and wellness; and living and promoting principles of diversity, equity, access and inclusion both in and outside the organization.

At autism speaks, our goal is it to change the future for all who struggle with autism spectrum disorder.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$10,762,515$8,620,189▼ $2,142,326
Cash and Non-Interest-Bearing Accounts$1,629,540$4,176,893▲ $2,547,353
Accounts Receivable$977,793$3,155,492▲ $2,177,699
Pledges and Grants Receivable$462,503$1,768,037▲ $1,305,534
Land, Buildings, and Equipment, Net$1,288,188$1,278,147▼ $10,041
Prepaid Expenses and Deferred Charges$301,845$311,293▲ $9,448
Investments in Publicly Traded Securities$44,593$18,394▼ $26,199
Other Notes and Loans Receivable, Net$0$0→ $0
Receivable From Disqualified Prsn$0$0→ $0
Receivables From Officers Etc$0$0→ $0
Investments Other Securities$0$0→ $0
Investments Program Related$0$0→ $0
Intangible Assets$0$0→ $0
Inventories for Sale or Use$0$0→ $0
Loans From Officers Directors$0$0→ $0
Total Assets$15,783,483$19,677,425▲ $3,893,942
Other Assets Total$316,506$348,980▲ $32,474
Liabilities
Accounts Payable and Accrued Expenses$4,471,612$5,278,046▲ $806,434
Grants Payable$5,496,764$4,691,055▼ $805,709
Mortgage Notes Payable Secured by Investment Property$0$0→ $0
Unsecured Notes Loans Payable$0$0→ $0
Other Liabilities$0$0→ $0
Deferred Revenue$0$0→ $0
Escrow Account Liability$0$0→ $0
Tax Exempt Bond Liabilities$0$0→ $0
Total Liabilities$9,968,376$9,969,101▲ $725
Net Assets / Fund Balance
Temporarily Rstr Net Assets$6,211,912$6,866,025▲ $654,113
Unrestricted Net Assets$-396,805$2,842,299▲ $3,239,104
Permanently Rstr Net Assets$0$0→ $0
Total Net Assets Fund Balance$5,815,107$9,708,324▲ $3,893,217
Total Liabilities and Net Assets / Fund Balance$15,783,483$19,677,425▲ $3,893,942

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$809,477$166,421$975,898
Equipment$152,587$400,229$552,816
Leasehold Improvements$316,083$211,216$527,299
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Elizabeth N FeldPresidentFT$314,374$57,345$371,719
Geraldine DawsonChief Science (thru 7/13)FT$252,618$64,213$316,831
Robert H RingChief Science (as of 8/13)FT$278,293$32,766$311,059
Alec M ElbertChief Strategy & DevelopmentFT$217,356$47,097$264,453
Peter BellEvp Programs&servcs Thru 9/13FT$174,906$85,054$259,960
Andy ShihVP Scientific AffairsFT$205,874$41,818$247,692
Gary D JaworskiSVP of DevelopmentFT$207,793$18,622$226,415
Anita S MillerVP Scientific Review Thru 9/13FT$172,572$52,993$225,565
Clara M LajonchereVP Clinical ProgramsFT$193,987$25,264$219,251
Daniel G SmithSr Director, Research DiscoverFT$174,818$19,630$194,448
Scott D NewmanCFO as of 5/13FT$176,955$6,026$182,981
Michael J RosenEvp Strategic CommunicationsFT$163,908$13,372$177,280
Lisa GoringVP Family ServicesFT$151,660$13,753$165,413
Thomas G HetzelCFO Thru 1/13FT$97,997$2,517$100,514

Board Members and Trustees

NameTitle
Robert WrightChairman
Bernard MarcusVice Chairman
Suzanne WrightVice Chairman
Adrian M JonesDirector
Alison NiederauerDirector
Andrew RobertsonDirector
Artie KempnerDirector
Billy MannDirector
Brian KellyDirector
Chuck SaftlerDirector
Curtis ArledgeDirector
Dan SchulmanDirector
David M WittelsDirector
Dee HilfigerDirector
Gary MayersonDirector
Gary W Goldstein MdDirector
Herbert Pardes MdDirector
Holly Robinson PeeteDirector
Jim BroderDirector
John B WilsonDirector
Kevin MurrayDirector
Laura SlatkinDirector
Mark LaneveDirector
Mel KarmazinDirector
Nanci FredkinDirector
Philip H Geier JrDirector
Sallie BernardDirector
Shawn MatthewsDirector
Stuart SavitzDirector
Tim JonesDirector
Tommy HilfigerDirector
Cuong DoDirector as of 12/13
Matthew HigginsDirector as of 9/13

Highest Paid Contractors

ContractorServicesLocationCompensation
Manatt Phelps Phillips LLPLegal & Advocacy-$426,007
Civitas Public Affairs GroupAdvocacy Consulting-$395,000
The O TeamAdvocacy-$300,000
Gc Ballroom Operator LLCVenue Rental-$114,636
Revenue and Support

Revenue Composition

Contributions and Grants
$63,725,069
Program Service Revenue
$0
Investment Income
$20,220
Other Revenue
$41,620
All Other Contributions
$52,611,758
Change in Net Assets
$1,385,560

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
Yes

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded25$280,097Selling Price
Total Noncash Contributions25$280,097-
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$23,043,010
Other Expenses$20,356,254
Grants and Similar Amounts Paid$18,934,366
Total Fundraising Expense$14,486,073
Professional Fundraising Fees$67,719

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$17,221,946--$17,221,946
Other Salaries and Wages$10,311,372$909,740$5,381,414$16,602,526
Office Expenses$2,298,034$102,778$2,322,992$4,723,804
Fees for Services Other$2,211,704$62,138$1,152,623$3,426,465
Current Officers, Directors, Trustees, and Key Employees$1,460,363$360,948$328,895$2,150,206
Other Employee Benefits$1,271,075$141,228$720,882$2,133,185
Occupancy$1,120,416$223,095$728,293$2,071,804
Advertising$1,447,929$11,597$563,550$2,023,076
Information Technology$708,764$215,613$640,291$1,564,668
Payroll Taxes$855,708$87,026$439,859$1,382,593
Travel$964,581$29,092$347,441$1,341,114
Foreign Grants$1,161,666--$1,161,666
Fees for Services Lobbying$994,244--$994,244
Conferences and Meetings$773,551$4,101$47,230$824,882
Pension Plan Contributions$530,343$34,587$209,570$774,500
Other Expenses$429,131$34,780$233,727$697,638
Grants to Domestic Individuals$550,754--$550,754
Fees for Services Legal$286,593$50,974$111,578$449,145
Depreciation Depletion$211,808$57,836$115,461$385,105
Fees for Services Accounting$44,713$134,140$44,713$223,566
Insurance$88,724$21,605$43,497$153,826
Fees for Services Professional Fundraising--$67,719$67,719
Total Functional Expenses$8,386,025$0$10,926,445$19,312,470
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
57-1136147-501(c)(3)Family Srvcs$1,340,803
56-6001393-501(c)(3)Research$851,386
04-2697983-170(c)(1)Research$834,970
31-1496646-501(c)(3)Research$777,164
94-6036494-501(c)(3)Research$734,718
04-2774441-501(c)(3)Research$634,158
95-6006143-501(c)(3)Research$608,824
52-0595110-501(c)(3)Research$560,990
74-1613878-501(c)(3)Research$547,847
13-3676916-501(c)(3)Family Srvcs$489,707
23-1352630-501(c)(3)Research$377,351
62-0476822-501(c)(3)Research$347,632
13-3794889-501(c)(3)Research$337,779
52-1524967-501(c)(3)Research$331,887
57-6000722-501(c)(3)Research$331,606
94-1105628-501(c)(3)Research$299,999
84-6000555-501(c)(3)Research$298,000
26-2809380-501(c)(3)Research$271,042
06-0646973-501(c)(3)Research$257,402
91-6001537-501(c)(3)Research$256,981
13-3160356-501(c)(3)Research$245,186
06-0772160-501(c)(3)Research$219,948
95-1643307-501(c)(3)Research$206,900
93-1176100-501(c)(3)Research$199,107
13-1623978-501(c)(3)Research$191,420
13-6171190-501(c)(3)Research$186,437
58-0566256-501(c)(3)Research$179,499
58-6002050-501(c)(3)Research$179,499
39-1805963-501(c)(3)Research$179,360
13-5598093-501(c)(3)Research$175,000
25-0965591-501(c)(3)Research$172,874
94-1156365-501(c)(3)Research$168,625
54-6001758-501(c)(3)Family Srvcs$150,000
14-6013200-501(c)(3)Research$149,986
14-1368361-501(c)(3)Research$149,755
31-0833936-501(c)(3)Research$145,333
23-1352166-501(c)(3)Research$143,908
34-1018992-501(c)(3)Research$141,976
95-1690977-501(c)(3)Research$140,000
31-6056230-501(c)(3)Research$140,000
16-0743209-501(c)(3)Research$140,000
43-6003859-501(c)(3)Research$136,664
75-6002868-501(c)(3)Research$118,900
71-0568795-501(c)(3)Research$113,416
94-1156628-501(c)(3)Research$113,000
95-1642394-501(c)(3)Research$109,348
73-6017987-501(c)(3)Research$100,000
20-3822912-501(c)(3)Research$95,480
04-2103580-501(c)(3)Research$83,551
23-1352685-501(c)(3)Research$79,680
95-2548452--Family Srvcs$74,800
56-2237463-501(c)(3)Research$67,250
48-1278529-501(c)(3)Research$59,997
04-2103547-501(c)(3)Research$58,900
43-0653611-501(c)(3)Research$56,900
05-0258937-501(c)(3)Research$53,500
91-1156519-501(c)(3)Research$51,400
04-2103881-501(c)(3)Research$50,600
52-0858115-501(c)(3)Research$49,300
39-1805963-501(c)(3)Research$46,254
59-1961248-501(c)(3)Research$29,500
53-0196603-501(c)(3)Research$29,500
95-6006145-501(c)(3)Research$29,500
36-2167817-501(c)(3)Research$29,474
33-0373293-501(c)(3)Research$28,600
95-6006144-501(c)(3)Research$28,580
20-8695829-501(c)(3)Family Srvcs$28,000
71-6056774-501(c)(3)Family Srvcs$25,000
59-1083502-501(c)(3)Family Srvcs$25,000
56-6086393-501(c)(3)Family Srvcs$25,000
23-7034345-501(c)(3)Family Srvcs$25,000
48-0896520-501(c)(3)Family Srvcs$25,000
11-2594790-501(c)(3)Family Srvcs$25,000
13-5562314-501(c)(3)Family Srvcs$25,000
51-6000297-501(c)(3)Family Srvcs$25,000
59-1208322-501(c)(3)Family Srvcs$25,000
22-3106714-501(c)(3)Family Srvcs$25,000
26-3351005-501(c)(3)Family Srvcs$25,000
23-2525528--Family Srvcs$25,000
20-0738248--Family Srvcs$25,000
26-1680108-501(c)(3)Family Srvcs$24,997
38-6028429-501(c)(3)Family Srvcs$24,906
92-0117008-501(c)(3)Family Srvcs$24,850
39-0816849--Family Srvcs$24,718
74-6000203-501(c)(3)Family Srvcs$24,643
36-3699084-501(c)(3)Family Srvcs$24,435
55-0897732-501(c)(3)Family Srvcs$23,500
36-4078008-501(c)(3)Family Srvcs$22,127
84-6049811-501(c)(3)Family Srvcs$20,784
36-2608742-501(c)(3)Family Srvcs$20,074
31-1496646-501(c)(3)Family Srvcs$20,000
27-1830644-501(c)(3)Family Srvcs$14,550
33-0100208-501(c)(3)Research$14,370
16-0743140-501(c)(3)Family Srvcs$14,291
88-0145134-501(c)(3)Family Srvcs$12,000
27-0293554-501(c)(3)Family Srvcs$12,000
95-1643992-501(c)(3)Family Srvcs$9,963
52-2226573-501(c)(3)Family Srvcs$7,500

International Summary

Offices
0
Employees
0
Spending
$1,161,666

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
Europe (Including Iceland and Greenland)Grantmaking-00$1,132,166
Middle East and North AfricaGrantmaking-00$29,500
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
Yes
Professional fundraiser used
Yes

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$2,198,304
Fundraising Gross Income$2,198,304
Professional Fundraising Fees$67,719
Gaming Gross Income$49,145
Gaming Direct Expenses$7,525

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Event 1$1,229,199$412,905$35,416$377,489
Event 2$3,156,034$211,772$50,335$161,437
Total Events$10,835,262$2,198,304$2,198,304-
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
The Advertising CouncilCommon Board MemberAwareness Campaign FeesNo$755,867
Karma 41135% CONTROLLED ENTITYWeb Fundraising ServicesNo$222,248

Loans and Receivables

Line ItemBeginningEndChange
Loans from Officers, Directors, Trustees, and Key Employees$0$0→ $0
Receivables from Disqualified Persons$0$0→ $0
Receivables from Officers, Directors, Trustees, and Key Employees$0$0→ $0
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
Yes
Business relationship with organization members
Yes
Material changes to governing documents
No
Compensation from other sources disclosed
Yes
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
Yes
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

Robert wright (chair) and suzanne wright (co-chair) are husband and wife. Tommy hilfiger, (director) and dee hilfiger (director) are husband and wife.

Form 990, Part VI, Section B, Line 11

The form is prepared by external tax preparers and reviewed by management. Once completed, the complete form 990 is presented to and reviewed by autism speaks audit committee and the board of directors in advance of filing with the irs.

Form 990, Part VI, Section B, Line 12C

The conflicts of interest policy is reviewed annually at a board meeting with key executives present. Board members, key executives, and all staff are required to review and sign the policy on an annual basis and to disclose any business entity to which they or their spouse have an interest and which provided services to autism speaks or to which autism speaks provided grants or services. Also, required to be listed is any entity, whether business, institution, or non-profit organization, with which they are currently affiliated with in any working capacity. The autism speaks staff review each grant awarded for potential conflicts of interest and every business entity reported by board members or staff with which a working relationship outside of autism speaks exists is investigated for a potential conflict of interest. Autism speaks may impose sanctions on a covered person for non-compliance including termination.

Form 990, Part VI, Section B, Line 15

The executive committee of the board reviews ceo compensation of several national non-profits of like size when determining appropriate compensation for autism speaks president and other senior executives. Additionally, autism speaks has in place a formal compensation structure based on market data of similar sized organization, which determines a salary range by job. Autism speaks aims to pay individuals at competitive market data.

Form 990, Part VI, Section C, Line 19

Autism speaks audited financial statements and form 990 are available on its website- autismspeaks.org and are available upon request. Autism speaks form 1023, conflicts of interest policy and by-laws are available upon request.

Filing and Contact Details

Filer

EIN
20-2329938
In Care Of
% JOHN GRUBEREVP FINANCE ADMI
Phone
2122528584

Signing Officer

Name
John Gruber
Title
Evp, Finance & Administration
Phone
6463858516
Signed
2014-11-13
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Elizabeth Feld
Formed
2005
Legal Domicile
De
Voting Board Members
34
Independent Board Members
33
Employees
291
Volunteers
450,000

Preparer

Preparer
Frederick Davis
Phone
6463858516
Supplemental Narrative

Financial Statement Notes

Fin 48

AS is exempt from Federal income taxes under Section 501(c)(3) of the Internal Revenue Code and from state income taxes under comparable laws. All significant tax positions have been considered by management and it has been determined that all tax positions would be sustained upon examination by taxing authorities. There are no uncertain tax positions that require recognition in the accompanying financial statements or further disclosure in the notes to the financial statements. AS is required to file Form 990 (Return of Organization Exempt from Income Tax). AS is subject to audits by taxing jurisdictions; however, no audits for any periods are currently in progress. Management believes that AS is no longer subject to such audits for years prior to 2010 under Federal and state tax jurisdictions.

Raw XML AppendixShowing 400 of 2,305 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/AccountsReceivableGrp/EOYAmt03155492
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IRS990/ActivityOrMissionDesc0AT AUTISM SPEAKS, OUR GOAL IS IT TO CHANGE THE FUTURE FOR ALL WHO STRUGGLE WITH AUTISM SPECTRUM DISORDER.
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IRS990/Desc0RESEARCH/SCIENCE: THE PROGRAMMATIC GOALS OF THE SCIENCE/RESEARCH PROGRAM STRIVE TO IMPROVE THE LIVES OF PEOPLE AFFECTED BY AUTISM TODAY, AS WELL AS IMPROVE THEIR FUTURE BY ADVANCING SCIENTIFIC RESEARCH. THE RESEARCH FOCUSES ON DIAGNOSIS, TREATMENT, SERVICE DELIVERY AND PREVENTION. IN 2013, AUTISM SPEAKS' HISTORIC AUTISM SPEAKS TEN THOUSAND GENOMES PROGRAM (AUT10K) PUBLISHED ITS INAUGURAL STUDY IN THE AMERICAN JOURNAL OF HUMAN GENETICS. THE STUDY FOCUSED ON THE WHOLE GENOME SEQUENCING OF 32 FAMILIES AND IDENTIFIED AUTISM-LIKE GENE CHANGES IN HALF OF THEM. THE STUDY ALSO IDENTIFIED SEVERAL NEW AUTISM-LINKED GENES AND PROVIDED IMPORTANT MEDICAL INSIGHTS FOR THE PARTICIPATING FAMILIES. AUT10K CONTINUES ITS RAPID PROGRESS TOWARD THE WHOLE-GENOME SEQUENCING OF 10,000 INDIVIDUALS WITH AUTISM AND THEIR FAMILY MEMBERS, POTENTIALLY LEADING TO THE IDENTIFICATION OF VARIOUS AUTISM SUBSETS AND INDIVIDUALIZED TREATMENTS. THE AUTISM SPEAKS CO-SPONSORED THE WORLD HEALTH ORGANIZATION'S FIRST INTERNATIONAL CONFERENCE ON AUTISM. THE GENEVA MEETING REPRESENTED THE FIRST STEP IN ENACTING THE WORLD HEALTH ASSEMBLY RESOLUTION ON AUTISM. IN ADDITION, AUTISM SPEAKS LAUNCHED ITS EARLY ACCESS TO CARE INITIATIVE TO REDUCE THE AVERAGE AGE OF AUTISM DIAGNOSIS AND INCREASE ACCESS TO HIGH-QUALITY EARLY INTERVENTION IN UNDERSERVED COMMUNITIES. MAJOR OUTREACH PROJECTS INCLUDED COLLABORATIONS WITH THE NATIONAL BLACK CHURCHES INITIATIVE AND THE NEW YORK CITY KOREAN COMMUNITY. TAKING PLACE IN NEW YORK CITY, AUTISM SPEAKS HOSTED ITS INAUGURAL AUTISM INVESTMENT CONFERENCE. THE EVENT DREW MORE THAN A HUNDRED ENTREPRENEURS, INVESTORS, BUSINESS EXECUTIVES AND RESEARCHERS FOR THE WORLD'S FIRST CONFERENCE ON INVESTMENT AND PRODUCT DEVELOPMENT IN THE FIELD OF AUTISM SERVICES AND THERAPIES. AUTISM SPEAKS ALSO HELPED OPEN A NEW FIELD OF RESEARCH WITH THE FIRST LARGE STUDY ON THE ROLE OF EPIGENETICS IN THE DEVELOPMENT OF AUTISM. IN THE GROUNDBREAKING STUDY, RESEARCHERS, FUNDED BY AUTISM SPEAKS, DOCUMENTED TELL-TALE EPIGENETIC PATTERNS BETWEEN IDENTICAL TWINS WHO DIFFER IN AUTISM TRAITS. IN 2013, AUTISM SPEAKS SPENT $14,800,000 IN GRANTS FOR NEW AND CONTINUING PROJECTS IN THE FOLLOWING CATEGORIES: SPECIAL PROJECTS ($5,030,782) ARE AUTISM SPEAKS-INITIATED PROJECTS AIMED AT ADDRESSING SPECIFIC NEEDS WITHIN THE AUTISM RESEARCH COMMUNITY. AUTISM SPEAKS STAFF WORKED IN CONJUNCTION WITH INVESTIGATORS TO DEVELOP PROJECTS THAT MAY INCLUDE: IMPROVEMENTS TO RESEARCH INFRASTRUCTURE, RAPID RESPONSES TO NEW AND HIGHLY VISIBLE PUBLIC HEALTH INITIATIVES, OR FACILITATING COLLABORATIONS BETWEEN INVESTIGATORS TO ADDRESS COMPLEX RESEARCH ISSUES FROM A MULTI-DISCIPLINARY PERSPECTIVE. IN 2013, TOPICS INCLUDED AUTISM AND DEVELOPMENTAL DISABILITIES MONITORING NETWORK (ADDM), DETERMINING THE COST OF AUTISM, ANIMAL MODELS, PRECLINICAL AUTISM CONSORTIUM FOR THERAPEUTICS, DSM-5 (DIAGNOSTIC AND STATISTICAL MANUAL OF MENTAL DISORDERS, FIFTH EDITION) COMPARISONS AND PROJECTS AROUND EARLY INTERVENTION. TREATMENT, BASIC RESEARCH AND DISSEMINATION PROJECTS: AUTISM SPEAKS - AUTISM TREATMENT NETWORK ($2,449,005), BASIC & CLINICAL STUDIES ($3,360,285), GLOBAL AUTISM PUBLIC HEALTH (GAPH) ($300,000), SUZANNE AND BOB WRIGHT TRAILBLAZER ($100,000), AND TREATMENT STUDIES ($860,648). TRAINING GRANTS: MEIXNER TRANSLATIONAL POSTDOCTORAL FELLOWSHIPS ($1,412,944), AND WEATHERSTONE PREDOCTORAL FELLOWSHIPS ($464,437).
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt210
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt220
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt270
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt280
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt290
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt310
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt320
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt33340564
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt38236081
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt39262618
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40164661
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt41152016
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt42218216
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt43209083
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt44206448
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt45194273
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt46175074
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt210
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt220

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Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Facts available. Structured filing facts are available, but richer extracted sections are limited.$29.7$2.76$26.9$28.8$34.2$5.37
2023Summary only. Only limited summary data is available for this year.$41.4$3.54$37.8$36.3$42.9$6.65
2022Detailed filing. Detailed filing data is available for this year.$47.8$3.48$44.4$46.8$44.1$2.65
2021Detailed filing. Detailed filing data is available for this year.$48.2$6.50$41.7$42.1$41.2$0.92
2020Detailed filing. Detailed filing data is available for this year.$46.2$5.44$40.8$53.7$48.1$5.56
2019Summary only. Only limited summary data is available for this year.$39.0$3.78$35.2$9.66$8.94$0.72
2018Summary only. Only limited summary data is available for this year.$37.8$3.33$34.5$60.0$40.1$19.9
2017Facts available. Structured filing facts are available, but richer extracted sections are limited.$20.6$5.98$14.6$50.4$42.9$7.58
2016Detailed filing. Detailed filing data is available for this year.$15.4$8.37$7.02$47.6$46.7$0.82
2015Detailed filing. Detailed filing data is available for this year.$18.2$12.0$6.21$58.1$60.6$2.48
2014Detailed filing. Detailed filing data is available for this year.$16.0$7.34$8.69$57.6$58.6$1.02
2013Detailed filing. Detailed filing data is available for this year.$19.7$9.97$9.71$63.8$62.4$1.39
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$15.8$9.97$5.82$58.7
2011Summary only. Only limited summary data is available for this year.$22.7$11.5$11.2$55.5$56.7$1.22
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$19.1$6.62$12.5$48.7
Peer Organizations

Similar nonprofits based on the same Siviq industry and scale cohort. 2013 filings • 501(c)3 • $50M-$100M nonprofits