Liabilities / Assets
32nd percentile
Higher debt load relative to assets than 32% of similar nonprofits.
990 • Fiscal year 2020 • EIN 20-2112635
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
32nd percentile
Higher debt load relative to assets than 32% of similar nonprofits.
Liabilities / Revenue
31st percentile
Higher debt load relative to revenue than 31% of similar nonprofits.
Net Margin
82nd percentile
Higher net margin than 82% of similar nonprofits.
Top Officer Pay
76th percentile
Higher top officer pay than 76% of similar nonprofits.
Top officer pay equals 7.6% of source-year revenue.
Asset Growth
76th percentile
Faster asset growth than 76% of similar nonprofits.
Revenue Growth
73rd percentile
Faster revenue growth than 73% of similar nonprofits.
Assets
Up$2,718,056
Up $566,261 (+26%) from 2019
Net Assets
Up$2,653,306
Up $505,117 (+24%) from 2019
Liabilities
Up$64,750
Up $61,144 (+1696%) from 2019
Revenue
Up$1,586,090
Up $241,185 (+18%) from 2019
Expenses
Up$1,080,973
Up $216,668 (+25%) from 2019
Net Income
Up$505,117
Up $24,517 (+5.1%) from 2019
To provide education and support for those impacted by primary sclerosing cholangitis (psc), while searching for treatments and a cure for this rare liver disease by raising and alligning funding to drive research.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Investments in Publicly Traded Securities | $1,944,143 | $2,589,714 | ▲ $645,571 |
| Savings and Temporary Cash Investments | $130,303 | $64,240 | ▼ $66,063 |
| Accounts Receivable | $21,338 | $38,716 | ▲ $17,378 |
| Prepaid Expenses and Deferred Charges | $47,949 | $20,690 | ▼ $27,259 |
| Land, Buildings, and Equipment, Net | $8,062 | $4,696 | ▼ $3,366 |
| Total Assets | $2,151,795 | $2,718,056 | ▲ $566,261 |
| Liabilities | |||
| Mortgage Notes Payable Secured by Investment Property | - | $56,835 | - |
| Accounts Payable and Accrued Expenses | $3,606 | $7,915 | ▲ $4,309 |
| Total Liabilities | $3,606 | $64,750 | ▲ $61,144 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $1,571,804 | $1,623,958 | ▲ $52,154 |
| Net Assets With Donor Restrictions | $576,385 | $1,029,348 | ▲ $452,963 |
| Total Net Assets Fund Balance | $2,148,189 | $2,653,306 | ▲ $505,117 |
| Total Liabilities and Net Assets / Fund Balance | $2,151,795 | $2,718,056 | ▲ $566,261 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Equipment | $2,207 | $21,435 | $23,642 |
| Leasehold Improvements | $2,489 | - | $2,489 |
| Name | Title | Base | Total |
|---|---|---|---|
| Meegan Carey | Executive Director | $120,203 | $120,203 |
| Name | Title |
|---|---|
| Fred Sabernick | Chair |
| Joanne Grieme | Vice-chair |
| Ricky Safer | CEO |
| Jesse Kirkpatrick | Member |
| Kathy Halloran | Member |
| Leah Sciabarrasi | Member |
| Matt Mcmurty | Member |
| Nicole Desantis | Member |
| Rachel Gomel | Member |
| Stuart Barnett | Member |
| Trish Stoltzfus | Member |
| Wes Hendrix | Member |
| Willie Mckinney | Member |
| Britt Moore | Secretary |
| Jennifer Sims | Treasurer |
| Line Item | Amount |
|---|---|
| Salaries, Compensation, and Employee Benefits | $456,387 |
| Grants and Similar Amounts Paid | $353,000 |
| Other Expenses | $271,586 |
| Total Fundraising Expense | $44,660 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $258,506 | $16,911 | $12,191 | $287,608 |
| Foreign Grants | $150,000 | - | - | $150,000 |
| Grants to Domestic Individuals | $150,000 | - | - | $150,000 |
| Current Officers, Directors, Trustees, and Key Employees | $78,132 | $30,051 | $12,020 | $120,203 |
| Conferences and Meetings | $66,549 | $5,917 | $1,476 | $73,942 |
| Fees for Services Other | $26,180 | $24,929 | $2,156 | $53,265 |
| Grants to Domestic Orgs | $53,000 | - | - | $53,000 |
| Occupancy | $38,528 | $2,071 | $829 | $41,428 |
| Payroll Taxes | $30,477 | $4,252 | $2,191 | $36,920 |
| Information Technology | $19,338 | $4,393 | $6,020 | $29,751 |
| Office Expenses | $13,851 | $6,386 | $3,573 | $23,810 |
| Other Employee Benefits | $9,621 | $1,342 | $693 | $11,656 |
| Depreciation Depletion | $3,030 | $269 | $67 | $3,366 |
| Insurance | $772 | $2,161 | $154 | $3,087 |
| Advertising | $1,011 | $65 | $574 | $1,650 |
| Other Expenses | $647 | $50 | $299 | $996 |
| Total Functional Expenses | $935,501 | $100,812 | $44,660 | $1,080,973 |
| Line Item | Amount |
|---|---|
| Expenses per Audited Statements | $1,080,973 |
| Total Expenses per Audited Statements | $1,080,973 |
| Total Expenses per Form 990 | $1,080,973 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| American Assoc for the Study of Liv | Alexandria, VA | C3 | Medical Research | $53,000 |
| Region | Activity | Services | Offices | Employees | Spending |
|---|---|---|---|---|---|
| Europe Including Iceland and Greenland | Program services | Medical Research | 4 | 4 | $120,000 |
| Middle East and North Africa | Program services | Medical Research | 1 | 1 | $30,000 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
“Available to all members prior to filing.”
“Annual disclosure and review by board of directors.”
“Ceo and board of directors do not receive compensation.executive director salary reviewed and approved by the board of directors on an annual basis.”
“Reviewed and approved by the board of directors on an annual basis.”
“Available upon reasonable request.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 3606 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 7915 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 21338 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 38716 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | TO PROVIDE EDUCATION AND SUPPORT FOR THOSE IMPACTED BY PRIMARY SCLEROSING CHOLANGITIS (PSC), WHILE SEARCHING FOR TREATMENTS AND A CURE FOR THIS RARE LIVER DISEASE BY RAISING AND ALLIGNING FUNDING TO DRIVE RESEARCH. |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 574 |
| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 65 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 1011 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 1650 |
| IRS990/AllOtherContributionsAmt | 0 | 1321290 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/AuditCommitteeInd | 0 | true |
| IRS990/BackupWthldComplianceInd | 0 | true |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | RICKY SAFER |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 3037715227 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 6900 E BELLEVIEW AVE |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | ENGLEWOOD |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | CO |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 80111 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | false |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 12020 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 30051 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 78132 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 120203 |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | true |
| IRS990/CompensationProcessOtherInd | 0 | true |
| IRS990/ConferencesMeetingsGrp/FundraisingAmt | 0 | 1476 |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 5917 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 66549 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 73942 |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 1321290 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 353000 |
| IRS990/CYInvestmentIncomeAmt | 0 | 94589 |
| IRS990/CYOtherExpensesAmt | 0 | 271586 |
| IRS990/CYOtherRevenueAmt | 0 | 12974 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 157237 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 505117 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 456387 |
| IRS990/CYTotalExpensesAmt | 0 | 1080973 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 44660 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 1586090 |
| IRS990/DAFExcessBusinessHoldingsInd | 0 | false |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/DepreciationDepletionGrp/FundraisingAmt | 0 | 67 |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 269 |
| IRS990/DepreciationDepletionGrp/ProgramServicesAmt | 0 | 3030 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 3366 |
| IRS990/Desc | 0 | PROVIDE ONLINE EDUCATION AND SUPPORT FOR THOSE IMPACTED BY PRIMARY SCLEROSING CHOLANGITIS (PSC), WHILE ALSO SEARCHING FOR TREATMENTS AND A CURE FOR THIS RARE LIVER DISEASE BY RAISING AND ALIGNING FUNDING TO DRIVE RESEARCH. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DistributionToDonorInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | true |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/DonorRestrictionNetAssetsGrp/BOYAmt | 0 | 576385 |
| IRS990/DonorRestrictionNetAssetsGrp/EOYAmt | 0 | 1029348 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 6 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | true |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 935501 |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 2156 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 24929 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 26180 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 53265 |
| IRS990/ForeignActivitiesInd | 0 | true |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignGrantsGrp/ProgramServicesAmt | 0 | 150000 |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 150000 |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form1098CFiledInd | 0 | false |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form8899Filedind | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 0 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 1 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 2 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 3 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 4 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 5 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 6 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 7 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 8 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 9 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 10 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 11 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 12 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 13 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 14 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 15 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 12 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 13 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 14 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 15 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 10 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 11 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 12 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 13 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 14 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | MEEGAN CAREY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | TRISH STOLTZFUS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | MATT MCMURTY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | WILLIE MCKINNEY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | LEAH SCIABARRASI |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | JOANNE GRIEME |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | JESSE KIRKPATRICK |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | WES HENDRIX |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | STUART BARNETT |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | NICOLE DESANTIS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | KATHY HALLORAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | RACHEL GOMEL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 12 | FRED SABERNICK |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 13 | RICKY SAFER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 14 | BRITT MOORE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 15 | JENNIFER SIMS |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 120203 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | EXECUTIVE DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | VICE-CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 12 | CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 13 | CEO |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 14 | SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 15 | TREASURER |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/FormationYr | 0 | 2005 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | true |
| IRS990/FundraisingActivitiesInd | 0 | false |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 15 |
| IRS990/GrantAmt | 0 | 353000 |
| IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt | 0 | 150000 |
| IRS990/GrantsToDomesticIndividualsGrp/TotalAmt | 0 | 150000 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 53000 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 53000 |
| IRS990/GrantsToIndividualsInd | 0 | true |
| IRS990/GrantsToOrganizationsInd | 0 | true |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 1586090 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IndependentAuditFinclStmtInd | 0 | true |
| IRS990/IndependentVotingMemberCnt | 0 | 15 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 1 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 6020 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 4393 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 19338 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 29751 |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 154 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 2161 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 772 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 3087 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 94589 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 94589 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 1944143 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 2589714 |
| IRS990/IRPDocumentCnt | 0 | 5 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 21435 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 8062 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 4696 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 26131 |
| IRS990/LegalDomicileStateCd | 0 | CO |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | TO PROVIDE EDUCATION AND SUPPORT FOR THOSE IMPACTED BY PRIMARY SCLEROSING CHOLANGITIS (PSC), WHILE SEARCHING FOR TREATMENTS AND A CURE FOR THIS RARE LIVER DISEASE BY RAISING AND ALLIGNING FUNDING TO DRIVE RESEARCH. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | true |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
| IRS990/MortgNotesPyblScrdInvstPropGrp/EOYAmt | 0 | 56835 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 2148189 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 2653306 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 1571804 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 1623958 |
| IRS990/NoListedPersonsCompensatedInd | 0 | X |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 829 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 2071 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 38528 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 41428 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 3573 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 6386 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 13851 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 23810 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 693 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 1342 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 9621 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 11656 |
| IRS990/OtherExpensesGrp/Desc | 0 | PATIENT REGISTRY |
| IRS990/OtherExpensesGrp/Desc | 1 | POSTAGE |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 2417 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 299 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 2015 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 50 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 35859 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 647 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 40291 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 996 |
| IRS990/OtherRevenueMiscGrp/BusinessCd | 0 | 900099 |
| IRS990/OtherRevenueMiscGrp/Desc | 0 | OTHER |
| IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt | 0 | 12974 |
| IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt | 0 | 12974 |
| IRS990/OtherRevenueTotalAmt | 0 | 12974 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 12191 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 16911 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 258506 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 287608 |
| IRS990/OwnWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 2191 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 4252 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 30477 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 36920 |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 47949 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 20690 |
| IRS990/PrincipalOfficerNm | 0 | RICKY SAFER |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 0 | 900099 |
| IRS990/ProgramServiceRevenueGrp/Desc | 0 | CONFERENCE REVENUE |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 157237 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 0 | 157237 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 996765 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 309419 |
| IRS990/PYInvestmentIncomeAmt | 0 | 81271 |
| IRS990/PYOtherExpensesAmt | 0 | 293092 |
| IRS990/PYOtherRevenueAmt | 0 | 250 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 266619 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 480600 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 261794 |
| IRS990/PYTotalExpensesAmt | 0 | 864305 |
| IRS990/PYTotalRevenueAmt | 0 | 1344905 |
| IRS990/QuidProQuoContributionsInd | 0 | false |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | false |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 505117 |
| IRS990/RegularMonitoringEnfrcInd | 0 | true |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | false |
| IRS990/ReportLandBuildingEquipmentInd | 0 | true |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990/RevenueAmt | 0 | 157237 |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 130303 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 64240 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt | 0 | 1321290 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt | 0 | 996765 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 799674 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 508954 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 599079 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt | 0 | 4225762 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt | 0 | 94589 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt | 0 | 81271 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 3526 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 49502 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 19227 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt | 0 | 248115 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearAmt | 0 | 157237 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus1YearAmt | 0 | 266619 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus2YearsAmt | 0 | 227996 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus3YearsAmt | 0 | 234762 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus4YearsAmt | 0 | 218585 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt | 0 | 1105199 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt | 0 | 94589 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt | 0 | 81271 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt | 0 | 3526 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt | 0 | 49502 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt | 0 | 19227 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt | 0 | 248115 |
| IRS990ScheduleA/InvestmentIncomeCYPct | 0 | 0.04000 |
| IRS990ScheduleA/InvestmentIncomePYPct | 0 | 0.03000 |
| IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearAmt | 0 | 12974 |
| IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearMinus1YearAmt | 0 | 250 |
| IRS990ScheduleA/OtherIncome509Grp/TotalAmt | 0 | 13224 |
| IRS990ScheduleA/PubliclySupportedOrg509a2Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY509Pct | 0 | 0.95330 |
| IRS990ScheduleA/PublicSupportPY509Pct | 0 | 0.96740 |
| IRS990ScheduleA/PublicSupportTotal509Amt | 0 | 5330961 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind | 0 | X |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt | 0 | 1478527 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt | 0 | 1263384 |
No mirrored PDF or thumbnail assets are attached yet.
Displayed year
2020 • Form 990Detailed filing. Detailed filing data is available for this year.