Liabilities / Assets
20th percentile
Higher debt load relative to assets than 20% of similar nonprofits.
990 • Fiscal year 2019 • EIN 20-2112635
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
20th percentile
Higher debt load relative to assets than 20% of similar nonprofits.
Liabilities / Revenue
18th percentile
Higher debt load relative to revenue than 18% of similar nonprofits.
Net Margin
87th percentile
Higher net margin than 87% of similar nonprofits.
Top Officer Pay
73rd percentile
Higher top officer pay than 73% of similar nonprofits.
Top officer pay equals 8.2% of source-year revenue.
Asset Growth
85th percentile
Faster asset growth than 85% of similar nonprofits.
Revenue Growth
82nd percentile
Faster revenue growth than 82% of similar nonprofits.
Assets
Up$2,151,795
Up $480,289 (+29%) from 2018
Net Assets
Up$2,148,189
Up $480,600 (+29%) from 2018
Liabilities
Down$3,606
Down $311 (-7.9%) from 2018
Revenue
Up$1,344,905
Up $321,709 (+31%) from 2018
Expenses
Down$864,305
Down $216,427 (-20%) from 2018
Net Income
Up$480,600
Up $538,136 (+935%) from 2018
To provide education and support to psc patients, families and caregivers and to raise funds to research causes, treatments and potential cures for primary sclerosing cholangitis.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Investments in Publicly Traded Securities | $1,596,370 | $1,944,143 | ▲ $347,773 |
| Savings and Temporary Cash Investments | $32,540 | $130,303 | ▲ $97,763 |
| Prepaid Expenses and Deferred Charges | $5,674 | $47,949 | ▲ $42,275 |
| Accounts Receivable | $33,278 | $21,338 | ▼ $11,940 |
| Land, Buildings, and Equipment, Net | $1,530 | $8,062 | ▲ $6,532 |
| Total Assets | $1,671,506 | $2,151,795 | ▲ $480,289 |
| Other Assets Total | $2,114 | - | - |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $3,917 | $3,606 | ▼ $311 |
| Total Liabilities | $3,917 | $3,606 | ▼ $311 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $1,210,481 | $1,571,804 | ▲ $361,323 |
| Net Assets With Donor Restrictions | $457,108 | $576,385 | ▲ $119,277 |
| Total Net Assets Fund Balance | $1,667,589 | $2,148,189 | ▲ $480,600 |
| Total Liabilities and Net Assets / Fund Balance | $1,671,506 | $2,151,795 | ▲ $480,289 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Equipment | $5,573 | $18,069 | $23,642 |
| Leasehold Improvements | $2,489 | - | $2,489 |
| Name | Title | Base | Total |
|---|---|---|---|
| Meegan Carey | Executive Director | $110,728 | $110,728 |
| Name | Title |
|---|---|
| Fred Sabernick | Chair |
| Ricky Safer | CEO |
| Britt Moore | Member |
| Joanne Grieme | Member |
| Kathy Halloran | Member |
| Leah Sciabarrasi | Member |
| Matt Mcmurty | Member |
| Rachel Gomel | Member |
| Stuart Barnett | Member |
| Travis Stoltzfus | Member |
| Wes Hendrix | Member |
| Willie Mckinney | Member |
| Joanne Hatchett | Secretary |
| Jennifer Sims | Treasurer |
| Line Item | Amount |
|---|---|
| Grants and Similar Amounts Paid | $309,419 |
| Other Expenses | $293,092 |
| Salaries, Compensation, and Employee Benefits | $261,794 |
| Total Fundraising Expense | $55,602 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Foreign Grants | $193,000 | - | - | $193,000 |
| Conferences and Meetings | $138,733 | $12,332 | $3,083 | $154,148 |
| Other Salaries and Wages | $96,056 | $16,078 | $9,368 | $121,502 |
| Grants to Domestic Orgs | $116,419 | - | - | $116,419 |
| Current Officers, Directors, Trustees, and Key Employees | $55,363 | $33,219 | $22,146 | $110,728 |
| Office Expenses | $15,985 | $7,648 | $4,169 | $27,802 |
| Occupancy | $24,340 | $1,309 | $523 | $26,172 |
| Information Technology | $16,434 | $3,793 | $5,056 | $25,283 |
| Advertising | $11,561 | $774 | $5,556 | $17,891 |
| Payroll Taxes | $11,638 | $3,789 | $2,423 | $17,850 |
| Fees for Services Accounting | - | $15,952 | - | $15,952 |
| Other Employee Benefits | $7,638 | $2,487 | $1,589 | $11,714 |
| Depreciation Depletion | $2,250 | $200 | $50 | $2,500 |
| Insurance | $555 | $1,554 | $111 | $2,220 |
| Other Expenses | $710 | $55 | $327 | $1,092 |
| Total Functional Expenses | $708,511 | $100,192 | $55,602 | $864,305 |
| Line Item | Amount |
|---|---|
| Expenses per Audited Statements | $864,305 |
| Total Expenses per Audited Statements | $864,305 |
| Total Expenses per Form 990 | $864,305 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Massachusetts General Hospital | Boston, MA | 501c3 | Medical Research | $30,000 |
| Roudebush Va Medical Center | Indianapolis, IN | 501c3 | Medical Research | $30,000 |
| Yale University School of Medicine | New Haven, CT | 501c3 | Medical Research | $30,000 |
| Mayo Clinic | Rochester, MN | 501c3 | Medical Research | $23,419 |
| Region | Activity | Services | Offices | Employees | Spending |
|---|---|---|---|---|---|
| Europe Including Iceland and Greenland | Program Services | Medical Research | 7 | 7 | $193,000 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
“Available to all members prior to filing.”
“Annual disclosure and review by board of directors.”
“Ceo and board of directors do not receive compensation.executive director salary reviewed and approved by the board of directors on an annual basis.”
“Reviewed and approved by the board of directors on an annual basis.”
“Available upon reasonable request.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 3917 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 3606 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 33278 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 21338 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | TO PROVIDE EDUCATION AND SUPPORT TO PSC PATIENTS, FAMILIES AND CAREGIVERS AND TO RAISE FUNDS TO RESEARCH CAUSES, TREATMENTS AND POTENTIAL CURES FOR PRIMARY SCLEROSING CHOLANGITIS. |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 5556 |
| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 774 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 11561 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 17891 |
| IRS990/AllOtherContributionsAmt | 0 | 996765 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/AuditCommitteeInd | 0 | true |
| IRS990/BackupWthldComplianceInd | 0 | true |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | RICKY SAFER |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 3037715227 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 6900 E BELLEVIEW AVE |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | ENGLEWOOD |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | CO |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 80111 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | false |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 22146 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 33219 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 55363 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 110728 |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | true |
| IRS990/CompensationProcessOtherInd | 0 | true |
| IRS990/ConferencesMeetingsGrp/FundraisingAmt | 0 | 3083 |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 12332 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 138733 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 154148 |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 996765 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 309419 |
| IRS990/CYInvestmentIncomeAmt | 0 | 81271 |
| IRS990/CYOtherExpensesAmt | 0 | 293092 |
| IRS990/CYOtherRevenueAmt | 0 | 250 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 266619 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 480600 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 261794 |
| IRS990/CYTotalExpensesAmt | 0 | 864305 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 55602 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 1344905 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/DepreciationDepletionGrp/FundraisingAmt | 0 | 50 |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 200 |
| IRS990/DepreciationDepletionGrp/ProgramServicesAmt | 0 | 2250 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 2500 |
| IRS990/Desc | 0 | PROVIDE ONLINE EDUCATION AND SUPPORT TO PRIMARY SCLEROSING CHOLANGITIS (PSC) PATIENTS AND THEIR FAMILIES AND AN ANNUAL CONFERENCE FOR PATIENTS AND CAREGIVERS. TO RAISE FUNDS AND SUPPORT RESEARCH TO FIND THE CAUSE, BETTER TREATMENTS AND CURE FOR PSC. ALL GRANTS AWARDED BY OUR SCIENTIFIC/MEDICAL ADVISORY COMMITTEE PURSUE THESE EFFORTS. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | true |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/DonorRestrictionNetAssetsGrp/BOYAmt | 0 | 457108 |
| IRS990/DonorRestrictionNetAssetsGrp/EOYAmt | 0 | 576385 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 7 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | true |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 708511 |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 15952 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 15952 |
| IRS990/ForeignActivitiesInd | 0 | true |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignGrantsGrp/ProgramServicesAmt | 0 | 193000 |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 193000 |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 0 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 1 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 2 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 3 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 4 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 5 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 6 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 7 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 8 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 9 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 10 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 11 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 12 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 13 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 14 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 12 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 13 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 14 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 10 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 11 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 12 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 13 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | RICKY SAFER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | FRED SABERNICK |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | JOANNE HATCHETT |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | JENNIFER SIMS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | STUART BARNETT |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | RACHEL GOMEL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | KATHY HALLORAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | WES HENDRIX |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | WILLIE MCKINNEY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | MATT MCMURTY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | BRITT MOORE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | TRAVIS STOLTZFUS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 12 | JOANNE GRIEME |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 13 | LEAH SCIABARRASI |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 14 | MEEGAN CAREY |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 14 | 110728 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | CEO |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 12 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 13 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 14 | EXECUTIVE DIRECTOR |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/FormationYr | 0 | 2005 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | true |
| IRS990/FundraisingActivitiesInd | 0 | false |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 14 |
| IRS990/GrantAmt | 0 | 309419 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 116419 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 116419 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | true |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 1344905 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IndependentAuditFinclStmtInd | 0 | true |
| IRS990/IndependentVotingMemberCnt | 0 | 14 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 1 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 5056 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 3793 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 16434 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 25283 |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 111 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 1554 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 555 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 2220 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 81271 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 81271 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 1596370 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 1944143 |
| IRS990/IRPDocumentCnt | 0 | 3 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 18069 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 1530 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 8062 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 26131 |
| IRS990/LegalDomicileStateCd | 0 | CO |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | TO PROVIDE EDUCATION AND SUPPORT TO PSC PATIENTS, FAMILIES AND CAREGIVERS AND TO RAISE FUNDS TO RESEARCH CAUSES, TREATMENTS AND POTENTIAL CURES FOR PRIMARY SCLEROSING CHOLANGITIS. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | true |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 1667589 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 2148189 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 1210481 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 1571804 |
| IRS990/NoListedPersonsCompensatedInd | 0 | X |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 523 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 1309 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 24340 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 26172 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 4169 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 7648 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 15985 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 27802 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherAssetsTotalGrp/BOYAmt | 0 | 2114 |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 1589 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 2487 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 7638 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 11714 |
| IRS990/OtherExpensesGrp/Desc | 0 | PATIENT REGISTRY |
| IRS990/OtherExpensesGrp/Desc | 1 | POSTAGE |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 1201 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 327 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 1002 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 55 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 17829 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 710 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 20032 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 1092 |
| IRS990/OtherRevenueMiscGrp/BusinessCd | 0 | 900099 |
| IRS990/OtherRevenueMiscGrp/Desc | 0 | OTHER |
| IRS990/OtherRevenueMiscGrp/ExclusionAmt | 0 | 250 |
| IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt | 0 | 250 |
| IRS990/OtherRevenueTotalAmt | 0 | 250 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 9368 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 16078 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 96056 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 121502 |
| IRS990/OwnWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 2423 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 3789 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 11638 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 17850 |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 5674 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 47949 |
| IRS990/PrincipalOfficerNm | 0 | RICKY SAFER |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 0 | 900099 |
| IRS990/ProgramServiceRevenueGrp/Desc | 0 | CONFERENCE REVENUE |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 266619 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 0 | 266619 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 791674 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 466000 |
| IRS990/PYInvestmentIncomeAmt | 0 | 3526 |
| IRS990/PYOtherExpensesAmt | 0 | 366037 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 227996 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | -57536 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 248695 |
| IRS990/PYTotalExpensesAmt | 0 | 1080732 |
| IRS990/PYTotalRevenueAmt | 0 | 1023196 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 480600 |
| IRS990/RegularMonitoringEnfrcInd | 0 | true |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | false |
| IRS990/ReportLandBuildingEquipmentInd | 0 | true |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990/RevenueAmt | 0 | 266619 |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 32540 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 130303 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt | 0 | 996765 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt | 0 | 799674 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 508954 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 599079 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 614865 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt | 0 | 3519337 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt | 0 | 81271 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt | 0 | 3526 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 49502 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 19227 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 4010 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt | 0 | 157536 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearAmt | 0 | 266619 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus1YearAmt | 0 | 227996 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus2YearsAmt | 0 | 234762 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus3YearsAmt | 0 | 218585 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus4YearsAmt | 0 | 205360 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt | 0 | 1153322 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt | 0 | 81271 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt | 0 | 3526 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt | 0 | 49502 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt | 0 | 19227 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt | 0 | 4010 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt | 0 | 157536 |
| IRS990ScheduleA/InvestmentIncomeCYPct | 0 | 0.03000 |
| IRS990ScheduleA/InvestmentIncomePYPct | 0 | 0.02000 |
| IRS990ScheduleA/PubliclySupportedOrg509a2Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY509Pct | 0 | 0.96740 |
| IRS990ScheduleA/PublicSupportPY509Pct | 0 | 0.97920 |
| IRS990ScheduleA/PublicSupportTotal509Amt | 0 | 4672659 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind | 0 | X |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt | 0 | 1263384 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt | 0 | 1027670 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 743716 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 817664 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 820225 |
| IRS990ScheduleA/Total509Grp/TotalAmt | 0 | 4672659 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt | 0 | 1344655 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt | 0 | 1031196 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt | 0 | 793218 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt | 0 | 836891 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt | 0 | 824235 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt | 0 | 4830195 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | true |
| IRS990ScheduleD/EquipmentGrp/BookValueAmt | 0 | 5573 |
| IRS990ScheduleD/EquipmentGrp/DepreciationAmt | 0 | 18069 |
| IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt | 0 | 23642 |
| IRS990ScheduleD/ExpensesSubtotalAmt | 0 | 864305 |
| IRS990ScheduleD/LeaseholdImprovementsGrp/BookValueAmt | 0 | 2489 |
No mirrored PDF or thumbnail assets are attached yet.
Displayed year
2019 • Form 990Detailed filing. Detailed filing data is available for this year.
Similar nonprofits based on the same Siviq industry and scale cohort. 2019 filings • 501(c)3 • $1M-$5M nonprofits
Duluth, GA
View Organization501(c)3
Revenue vs current organization
34% lowerAssets vs current organization
About the sameJersey City, NJ
View Organization501(c)3
Revenue vs current organization
60% higherAssets vs current organization
62% lowerWallingford, CT
View Organization501(c)3
Revenue vs current organization
98% lowerAssets vs current organization
About the sameLocation unavailable
View Organization501(c)3
Revenue vs current organization
98% lowerAssets vs current organization
About the same