Civic Intelligence

Hunter'S Hope Foundation Inc

990 • Fiscal year 2017 • EIN 16-1552315

Jan 01, 2017 to Dec 31, 2017 • Filed on Jun 22, 2018

Organization ProfileWWW.HUNTERSHOPE.ORG
PO Box 643Orchard Park, NY 14127

(716) 667-1200

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

65th percentile

0.22x

Higher debt load relative to assets than 65% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Liabilities / Revenue

71st percentile

0.31x

Higher debt load relative to revenue than 71% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Net Margin

18th percentile

-13%

Higher net margin than 18% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Top Officer Pay

56th percentile

$75,000

Higher top officer pay than 56% of similar nonprofits.

Top officer pay equals 9.8% of source-year revenue.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Asset Growth

13th percentile

-8.8%

Faster asset growth than 13% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2016 to 2017

Revenue Growth

52nd percentile

5.2%

Faster revenue growth than 52% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2016 to 2017

Balance Sheet
Liabilities / Assets65th percentile

Assets

Down

$1,097,462

Down $106,410 (-8.8%) from 2016

Net Assets

Down

$857,189

Down $92,345 (-9.7%) from 2016

Liabilities

Down

$240,273

Down $14,065 (-5.5%) from 2016

Revenue And Expenses
Liabilities / Revenue71st percentileNet Margin18th percentile

Revenue

Up

$767,053

Up $37,833 (+5.2%) from 2016

Expenses

Up

$868,913

Up $70,959 (+8.9%) from 2016

Net Income

Down

-$101,860

Down $33,126 (-48%) from 2016

Historical Trend

Balance Sheet Trend

Asset Growth13th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$3.0M$2.0M$1.0M$0Assets 2011: $872,419Liabilities 2011: $225,250Net Assets 2011: $647,1692011Assets 2012: $1,010,391Liabilities 2012: $257,016Net Assets 2012: $753,3752012Assets 2013: $880,055Liabilities 2013: $225,595Net Assets 2013: $654,4602013Assets 2014: $1,362,943Liabilities 2014: $260,890Net Assets 2014: $1,102,0532014Assets 2015: $1,257,512Liabilities 2015: $256,047Net Assets 2015: $1,001,4652015Assets 2016: $1,203,872Liabilities 2016: $254,338Net Assets 2016: $949,5342016Assets 2017: $1,097,462Liabilities 2017: $240,273Net Assets 2017: $857,1892017Assets 2018: $1,036,459Liabilities 2018: $79,229Net Assets 2018: $957,2302018Assets 2019: $1,109,030Liabilities 2019: $171,366Net Assets 2019: $937,6642019Assets 2020: $1,073,936Liabilities 2020: $122,698Net Assets 2020: $951,2382020Assets 2021: $1,273,635Liabilities 2021: $117,480Net Assets 2021: $1,156,1552021Assets 2022: $1,400,688Liabilities 2022: $174,087Net Assets 2022: $1,226,6012022Assets 2023: $2,528,952Liabilities 2023: $303,256Net Assets 2023: $2,225,6962023Assets 2024: $2,330,776Liabilities 2024: $312,223Net Assets 2024: $2,018,5532024

Highlighted filing

2017

Assets$1,097,462
Liabilities$240,273
Net Assets$857,189
Open 2017 Filing

Operations Trend

Revenue Growth52nd percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$3.0M$2.0M$1.0M$0-$1.0MRevenue 2011: $820,962Expenses 2011: $989,634Net Income 2011: -$168,6722011Expenses 2012: $870,4152012Revenue 2013: $745,018Expenses 2013: $873,066Net Income 2013: -$128,0482013Revenue 2014: $1,605,775Expenses 2014: $1,145,895Net Income 2014: $459,8802014Revenue 2015: $950,720Expenses 2015: $1,015,547Net Income 2015: -$64,8272015Revenue 2016: $729,220Expenses 2016: $797,954Net Income 2016: -$68,7342016Revenue 2017: $767,053Expenses 2017: $868,913Net Income 2017: -$101,8602017Revenue 2018: $772,157Expenses 2018: $832,584Net Income 2018: -$60,4272018Revenue 2019: $1,019,983Expenses 2019: $1,021,019Net Income 2019: -$1,0362019Revenue 2020: $850,387Expenses 2020: $848,440Net Income 2020: $1,9472020Revenue 2021: $960,183Expenses 2021: $758,939Net Income 2021: $201,2442021Revenue 2022: $960,552Expenses 2022: $834,692Net Income 2022: $125,8602022Revenue 2023: $2,027,964Expenses 2023: $1,066,692Net Income 2023: $961,2722023Revenue 2024: $1,075,701Expenses 2024: $1,288,858Net Income 2024: -$213,1572024

Highlighted filing

2017

Revenue$767,053
Expenses$868,913
Net Income-$101,860
Open 2017 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2017 to Dec 31, 2017
Signed
Jun 22, 2018
Return Version
2017v2.2
Gross Receipts
$1,283,226
Mission and Program Overview

Mission

Hunter's hope foundation was established to address the acute need for information and research with respect to krabbe disease and related leukodystrophies. In addition, we strive to support and encourage those afflicted and their families as they struggle to endure, adjust, and cope with the demands of the fatal illnesses. Accordingly our mission is four fold:- to broaden public awareness of krabbe disease and other leukodystrophies thus increasing the probability of early detection and treatment.- to gather and provide current, functional information, and service linkages to families of children with leukodystrophies.- to fund research efforts that will identify new treatments, therapies, and ultimately, a cure for krabbe disease and other leukodystrophies.- to establish an alliance of hope that will nourish, affirm, and confront the urgent need for medical, financial, and emotional support of family members and those afflicted with leukodystrophies.

To increase public awareness, to support, to fund research efforts to find a cure for krabbe disease and other leukodystrophies, and to promote family values to parents all over the world.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$628,880$692,723▲ $63,843
Pledges and Grants Receivable$347,213$263,076▼ $84,137
Savings and Temporary Cash Investments$103,876$71,740▼ $32,136
Cash and Non-Interest-Bearing Accounts$119,319$59,528▼ $59,791
Land, Buildings, and Equipment, Net$4,584$10,395▲ $5,811
Total Assets$1,203,872$1,097,462▼ $106,410
Liabilities
Grants Payable$242,428$233,431▼ $8,997
Accounts Payable and Accrued Expenses$11,910$6,842▼ $5,068
Total Liabilities$254,338$240,273▼ $14,065
Net Assets / Fund Balance
Temporarily Rstr Net Assets$862,871$663,789▼ $199,082
Unrestricted Net Assets$86,663$193,400▲ $106,737
Total Net Assets Fund Balance$949,534$857,189▼ $92,345
Total Liabilities and Net Assets / Fund Balance$1,203,872$1,097,462▼ $106,410

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$10,178$15,845$26,023
Other Land Buildings$10$6,723$6,733
Leasehold Improvements$207$578$785
Compensation and Service Providers
Top Officer Pay56th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Jacque WaggonerC.e.o.FT$75,000$75,000

Board Members and Trustees

NameTitle
Jill KellyChairwoman
James E KellyPresident
Brad RyeDirector
Camryn KellyDirector
Greg ConnorsDirector
Paul BoserDirector
Phil MayDirector
Robert SawickiDirector
Steven SchmittDirector
Erin KellySecretary
Chris BillmanTreasurer (past)
Revenue and Support

Revenue Composition

Contributions and Grants
$728,734
Program Service Revenue
$0
Investment Income
$38,319
Other Revenue
$0
All Other Contributions
$603,734
Change in Net Assets
$-101,860

Audited Revenue Reconciliation

Revenue per Audited Statements
$758,990
Revenue Not Reported on Financial Statements
$8,063
Revenue Not Reported on Form 990
$9,515
Total Revenue per Audited Statements
$768,505
Total Revenue per Form 990
$767,053
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$410,062
Salaries, Compensation, and Employee Benefits$383,548
Total Fundraising Expense$104,605
Grants and Similar Amounts Paid$75,303
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$208,857$17,995$39,537$266,389
Conferences and Meetings$153,033$72$2,279$155,384
Current Officers, Directors, Trustees, and Key Employees$58,802$5,066$11,132$75,000
Grants to Domestic Orgs$43,003--$43,003
Grants to Domestic Individuals$32,300--$32,300
Payroll Taxes$19,888$7,209$4,496$31,593
Occupancy$19,118$1,817$2,550$23,485
Fees for Services Other$34$17,143$555$17,732
Other Expenses$6,954$315$4,295$11,564
Other Employee Benefits$6,651$2,411$1,504$10,566
Travel$9,796$449-$10,245
All Other Expenses$6,556$273$1,362$8,191
Fees for Service Investment Mgmnt Fees-$8,063-$8,063
Insurance$3,233$1,307$799$5,339
Depreciation Depletion-$2,194-$2,194
Information Technology$1,078--$1,078
Advertising$79--$79
Total Functional Expenses$695,303$69,005$104,605$868,913

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Form 990$868,913
Expenses per Audited Statements$860,850
Total Expenses per Audited Statements$860,850
Expenses Not Reported on Financial Statements$8,063
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Foundation of MorristownMorristown, NJ501(c)(3)Leukodystrophy Care Network-family$20,000
CHILDREN'S HOSPITAL OF PHILADELPHIAPhiladelphia, PA501(c)(3)Leukodystrophy Care Network-family$10,000
Childrens Research InstituteWashington, DC501(c)(3)Leukodystrophy Care Network-family$10,000
Duke University School of MedicineDurham, NC501(c)(3)Leukodystrophy Care Network-family$10,000
Massachusetts General HospitalCambridge, MA501(c)(3)Leukodystrophy Care Network-family$10,000
University of KansasKansas City, KS501(c)(3)Leukodystrophy Care Network-family$-19,997
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
No
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

“James e. Kelly, president, jill kelly, chairwoman, erin kelly, director, and jacque waggoner, c.e.o., have a family relationship.”

Form 990, Part VI, Section B, Line 11B

“The return preparer emails a copy of the final version of the form 990 to a designated board member, who forwards to the remaining board members. The designated board member undertakes a review of the form before filing. The form is reviewed in its entirety. Issues (if any) are resolved with the return preparer prior to filing the return.”

Form 990, Part VI, Section B, Line 12C

“Each board member is required to complete a "disclosure - conflict of interest" form that is monitored by the chief executive officer. Each board member agrees to report to the chief executive officer any situations that may develop that may be considered a conflict of interest.”

Form 990, Part VI, Section B, Line 15

“The board of directors reviews and approves the compensation of the foundation's c.e.o. After analysis of comparable compensation data. The deliberation and decision is documented in the board minutes. Documentation is also included and retained in personnel files.”

Form 990, Part VI, Section C, Line 19

“The foundation makes its governing documents, conflict of interest policy, and financial statements available to the public upon request. The foundation's financial statements are also available on the irs website with form 990.”

Filing and Contact Details

Filer

Filer Name
HUNTER'S HOPE FOUNDATION INC
EIN
16-1552315
Phone
7166671200
Address
PO BOX 643, ORCHARD PARK, NY 14127

Signing Officer

Name
Jacque Waggoner
Title
C.e.o.
Phone
7166671200
Signed
2018-06-22
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Jacque Waggoner
Formed
1998
Legal Domicile
Ny
Voting Board Members
10
Independent Board Members
10
Employees
10
Volunteers
100

Preparer

Firm
Efpr Group Cpas Pllc
Address
6390 MAIN STREET SUITE 200, WILLIAMSVILLE, NY 14221
Preparer
JOHN T O'BRIEN
Phone
7166340700
Supplemental Narrative

Additional Explanations

FORM 990, PART XII, LINE 2C:

“No changes have taken place during the fiscal year ended december 31, 2017.”

Financial Statement Notes

PART X, LINE 2:

“The foundation is exempt from income taxes under section 501(c)(3) of the internal revenue code (the code); therefore, no provision for income taxes is reflected in the financial statements. The foundation has been classified as a publicly supported organization that is not a private foundation under section 509(a) of the code. The foundation presently discloses or recognizes income tax positions based on management's estimate of whether it is reasonably possible or probable that a liability has been incurred for unrecognized income taxes. Management has concluded that the foundation has taken no uncertain tax positions that require adjustment in its financial statements. U.s. Forms 990 filed by the foundation are subject to examination by taxing authorities.”

Raw XML AppendixShowing 400 of 564 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt043003
IRS990/GrantsToDomesticOrgsGrp/TotalAmt043003
IRS990/GrantsToIndividualsInd01
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt0524420
IRS990/GrossReceiptsAmt01283226
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt010
IRS990/IndivRcvdGreaterThan100KCnt00
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InformationTechnologyGrp/ProgramServicesAmt01078
IRS990/InformationTechnologyGrp/TotalAmt01078
IRS990/InsuranceGrp/FundraisingAmt0799
IRS990/InsuranceGrp/ManagementAndGeneralAmt01307
IRS990/InsuranceGrp/ProgramServicesAmt03233
IRS990/InsuranceGrp/TotalAmt05339
IRS990/InvestmentIncomeGrp/ExclusionAmt030072
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt030072
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt0628880
IRS990/InvestmentsPubTradedSecGrp/EOYAmt0692723
IRS990/IRPDocumentCnt00
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt023146
IRS990/LandBldgEquipBasisNetGrp/BOYAmt04584
IRS990/LandBldgEquipBasisNetGrp/EOYAmt010395
IRS990/LandBldgEquipCostOrOtherBssAmt033541
IRS990/LegalDomicileStateCd0NY
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt0516173
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0HUNTER'S HOPE FOUNDATION WAS ESTABLISHED TO ADDRESS THE ACUTE NEED FOR INFORMATION AND RESEARCH WITH RESPECT TO KRABBE DISEASE AND RELATED LEUKODYSTROPHIES. IN ADDITION, WE STRIVE TO SUPPORT AND ENCOURAGE THOSE AFFLICTED AND THEIR FAMILIES AS THEY STRUGGLE TO ENDURE, ADJUST, AND COPE WITH THE DEMANDS OF THE FATAL ILLNESSES. ACCORDINGLY OUR MISSION IS FOUR FOLD:- TO BROADEN PUBLIC AWARENESS OF KRABBE DISEASE AND OTHER LEUKODYSTROPHIES THUS INCREASING THE PROBABILITY OF EARLY DETECTION AND TREATMENT.- TO GATHER AND PROVIDE CURRENT, FUNCTIONAL INFORMATION, AND SERVICE LINKAGES TO FAMILIES OF CHILDREN WITH LEUKODYSTROPHIES.- TO FUND RESEARCH EFFORTS THAT WILL IDENTIFY NEW TREATMENTS, THERAPIES, AND ULTIMATELY, A CURE FOR KRABBE DISEASE AND OTHER LEUKODYSTROPHIES.- TO ESTABLISH AN ALLIANCE OF HOPE THAT WILL NOURISH, AFFIRM, AND CONFRONT THE URGENT NEED FOR MEDICAL, FINANCIAL, AND EMOTIONAL SUPPORT OF FAMILY MEMBERS AND THOSE AFFLICTED WITH LEUKODYSTROPHIES.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt0949534
IRS990/NetAssetsOrFundBalancesEOYAmt0857189
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt08247
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt08247
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt09515
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt02550
IRS990/OccupancyGrp/ManagementAndGeneralAmt01817
IRS990/OccupancyGrp/ProgramServicesAmt019118
IRS990/OccupancyGrp/TotalAmt023485
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt01504
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt02411
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt06651
IRS990/OtherEmployeeBenefitsGrp/TotalAmt010566
IRS990/OtherExpensesGrp/Desc0OUTSIDE SERVICES
IRS990/OtherExpensesGrp/Desc1PRINTING & COPYING
IRS990/OtherExpensesGrp/Desc2SUPPLIES
IRS990/OtherExpensesGrp/Desc3POSTAGE & SHIPPING
IRS990/OtherExpensesGrp/FundraisingAmt023873
IRS990/OtherExpensesGrp/FundraisingAmt17992
IRS990/OtherExpensesGrp/FundraisingAmt24231
IRS990/OtherExpensesGrp/FundraisingAmt34295
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt04515
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt10
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt2176
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt3315
IRS990/OtherExpensesGrp/ProgramServicesAmt094930
IRS990/OtherExpensesGrp/ProgramServicesAmt116071
IRS990/OtherExpensesGrp/ProgramServicesAmt214920
IRS990/OtherExpensesGrp/ProgramServicesAmt36954
IRS990/OtherExpensesGrp/TotalAmt0123318
IRS990/OtherExpensesGrp/TotalAmt124063
IRS990/OtherExpensesGrp/TotalAmt219327
IRS990/OtherExpensesGrp/TotalAmt311564
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt039537
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt017995
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0208857
IRS990/OtherSalariesAndWagesGrp/TotalAmt0266389
IRS990/PartialLiquidationInd00
IRS990/PayrollTaxesGrp/FundraisingAmt04496
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt07209
IRS990/PayrollTaxesGrp/ProgramServicesAmt019888
IRS990/PayrollTaxesGrp/TotalAmt031593
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt0347213
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt0263076
IRS990/PoliticalCampaignActyInd00
IRS990/PrincipalOfficerNm0JACQUE WAGGONER
IRS990/ProfessionalFundraisingInd00
IRS990/ProgSrvcAccomActy2Grp/Desc0FAMILY ASSISTANCE - THE FOUNDATION UNDERTAKES TO GATHER AND PROVIDE CURRENT, FUNCTIONAL INFORMATION, AND SERVICE LINKAGES TO FAMILIES OF CHILDREN WITH LEUKODYSTROPHIES.THE FOUNDATION STRIVES TO ESTABLISH AN ALLIANCE OF HOPE THAT WILL NOURISH, AFFIRM, AND CONFRONT THE URGENT NEED FOR MEDICAL, FINANCIAL, AND EMOTIONAL SUPPORT OF FAMILY MEMBERS AND THOSE AFFLICTED WITH LEUKODYSTROPHIES.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0400748
IRS990/ProgSrvcAccomActy2Grp/GrantAmt075303
IRS990/ProgSrvcAccomActy3Grp/Desc0RESEARCH - THE FOUNDATION'S GOAL IS TO FUND RESEARCH EFFORTS THAT WILL IDENTIFY NEW TREATMENTS, THERAPIES, AND ULTIMATELY, A CURE FOR KRABBE DISEASE AND OTHER LEUKODYSTROPHIES.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt047411
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt0710111
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt094417
IRS990/PYInvestmentIncomeAmt019109
IRS990/PYOtherExpensesAmt0376700
IRS990/PYOtherRevenueAmt00
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt0-68734
IRS990/PYSalariesCompEmpBnftPaidAmt0326837
IRS990/PYTotalExpensesAmt0797954
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt0729220
IRS990/QuidProQuoContributionsInd00
IRS990/ReconcilationRevenueExpnssAmt0-101860
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd01
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/RelatedOrganizationsAmt0125000
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0103876
IRS990/SavingsAndTempCashInvstGrp/EOYAmt071740
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt0728734
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0710111
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0919863
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt01546258
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0758875
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt04663841
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt038319
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt019109
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt030857
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt021354
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt018331
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt0127970
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus3YearsAmt0600
IRS990ScheduleA/OtherIncome170Grp/TotalAmt0600
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.97320
IRS990ScheduleA/PublicSupportPY170Pct00.97770
IRS990ScheduleA/PublicSupportTotal170Amt04663841
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt0728734
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0710111
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0919863
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt01546258
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0758875
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt04663841
IRS990ScheduleA/TotalSupportAmt04792411
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/EquipmentGrp/BookValueAmt010178
IRS990ScheduleD/EquipmentGrp/DepreciationAmt015845
IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt026023
IRS990ScheduleD/ExpensesNotReportedAmt00
IRS990ScheduleD/ExpensesNotRptFinclStmtAmt08063
IRS990ScheduleD/ExpensesSubtotalAmt0860850
IRS990ScheduleD/FootnoteTextInd0X
IRS990ScheduleD/InvestmentExpensesNotIncld2Amt08063
IRS990ScheduleD/InvestmentExpensesNotIncldAmt08063
IRS990ScheduleD/LeaseholdImprovementsGrp/BookValueAmt0207
IRS990ScheduleD/LeaseholdImprovementsGrp/DepreciationAmt0578
IRS990ScheduleD/LeaseholdImprovementsGrp/OtherCostOrOtherBasisAmt0785
IRS990ScheduleD/NetUnrealizedGainsInvstAmt09515
IRS990ScheduleD/OtherLandBuildingsGrp/BookValueAmt010
IRS990ScheduleD/OtherLandBuildingsGrp/DepreciationAmt06723
IRS990ScheduleD/OtherLandBuildingsGrp/OtherCostOrOtherBasisAmt06733
IRS990ScheduleD/RevenueNotReportedAmt09515
IRS990ScheduleD/RevenueNotReportedFinclStmtAmt08063
IRS990ScheduleD/RevenueSubtotalAmt0758990
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0THE FOUNDATION IS EXEMPT FROM INCOME TAXES UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE (THE CODE); THEREFORE, NO PROVISION FOR INCOME TAXES IS REFLECTED IN THE FINANCIAL STATEMENTS. THE FOUNDATION HAS BEEN CLASSIFIED AS A PUBLICLY SUPPORTED ORGANIZATION THAT IS NOT A PRIVATE FOUNDATION UNDER SECTION 509(A) OF THE CODE. THE FOUNDATION PRESENTLY DISCLOSES OR RECOGNIZES INCOME TAX POSITIONS BASED ON MANAGEMENT'S ESTIMATE OF WHETHER IT IS REASONABLY POSSIBLE OR PROBABLE THAT A LIABILITY HAS BEEN INCURRED FOR UNRECOGNIZED INCOME TAXES. MANAGEMENT HAS CONCLUDED THAT THE FOUNDATION HAS TAKEN NO UNCERTAIN TAX POSITIONS THAT REQUIRE ADJUSTMENT IN ITS FINANCIAL STATEMENTS. U.S. FORMS 990 FILED BY THE FOUNDATION ARE SUBJECT TO EXAMINATION BY TAXING AUTHORITIES.
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0PART X, LINE 2:
IRS990ScheduleD/TotalBookValueLandBuildingsAmt010395
IRS990ScheduleD/TotalExpensesPerForm990Amt0868913
IRS990ScheduleD/TotalRevenuePerForm990Amt0767053
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt0768505
IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt0860850
IRS990ScheduleI/GrantRecordsMaintainedInd01
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/CashGrantAmt032300
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/GrantTypeTxt0SPECIFIC ASSISTANCE
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/RecipientCnt059
IRS990ScheduleI/RecipientTable/CashGrantAmt010000
IRS990ScheduleI/RecipientTable/CashGrantAmt110000
IRS990ScheduleI/RecipientTable/CashGrantAmt210000
IRS990ScheduleI/RecipientTable/CashGrantAmt3-19997
IRS990ScheduleI/RecipientTable/CashGrantAmt410000
IRS990ScheduleI/RecipientTable/CashGrantAmt520000
IRS990ScheduleI/RecipientTable/IRCSectionDesc0501(C)(3)
IRS990ScheduleI/RecipientTable/IRCSectionDesc1501(C)(3)
IRS990ScheduleI/RecipientTable/IRCSectionDesc2501(C)(3)
IRS990ScheduleI/RecipientTable/IRCSectionDesc3501(C)(3)
IRS990ScheduleI/RecipientTable/IRCSectionDesc4501(C)(3)
IRS990ScheduleI/RecipientTable/IRCSectionDesc5501(C)(3)
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0LEUKODYSTROPHY CARE NETWORK-FAMILY
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt1LEUKODYSTROPHY CARE NETWORK-FAMILY
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt2LEUKODYSTROPHY CARE NETWORK-FAMILY
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt3LEUKODYSTROPHY CARE NETWORK-FAMILY
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt4LEUKODYSTROPHY CARE NETWORK-FAMILY
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt5LEUKODYSTROPHY CARE NETWORK-FAMILY
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0MASSACHUSETTS GENERAL HOSPITAL
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1CHILDRENS RESEARCH INSTITUTE
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt2CHILDREN'S HOSPITAL OF PHILADELPHIA
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt3UNIVERSITY OF KANSAS
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt4DUKE UNIVERSITY SCHOOL OF MEDICINE
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt5FOUNDATION OF MORRISTOWN
IRS990ScheduleI/RecipientTable/RecipientEIN0042697986

Document Assets

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Filings

Displayed year

2017 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$1,097,462
Liabilities
$240,273
Net assets
$857,189
Revenue
$767,053
Expenses
$868,913
Net income
-$101,860
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$2.33$0.31$2.02$1.08$1.29$0.21
2023Detailed filing. Detailed filing data is available for this year.$2.53$0.30$2.23$2.03$1.07$0.96
2022Detailed filing. Detailed filing data is available for this year.$1.40$0.17$1.23$0.96$0.83$0.13
2021Detailed filing. Detailed filing data is available for this year.$1.27$0.12$1.16$0.96$0.76$0.20
2020Detailed filing. Detailed filing data is available for this year.$1.07$0.12$0.95$0.85$0.85$0.00
2019Detailed filing. Detailed filing data is available for this year.$1.11$0.17$0.94$1.02$1.02$0.00
2018Detailed filing. Detailed filing data is available for this year.$1.04$0.08$0.96$0.77$0.83$0.06
2017Detailed filing. Detailed filing data is available for this year.$1.10$0.24$0.86$0.77$0.87$0.10
2016Detailed filing. Detailed filing data is available for this year.$1.20$0.25$0.95$0.73$0.80$0.07
2015Detailed filing. Detailed filing data is available for this year.$1.26$0.26$1.00$0.95$1.02$0.06
2014Detailed filing. Detailed filing data is available for this year.$1.36$0.26$1.10$1.61$1.15$0.46
2013Detailed filing. Detailed filing data is available for this year.$0.88$0.23$0.65$0.75$0.87$0.13
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.01$0.26$0.75$0.87
2011Summary only. Only limited summary data is available for this year.$0.87$0.23$0.65$0.82$0.99$0.17