Civic Intelligence

Hunter'S Hope Foundation Inc

990 • Fiscal year 2014 • EIN 16-1552315

Jan 01, 2014 to Dec 31, 2014 • Filed on May 11, 2015

PO Box 643Orchard Park, NY 14127

(716) 667-1200

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

59th percentile

0.19x

Higher debt load relative to assets than 59% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2014

Liabilities / Revenue

58th percentile

0.16x

Higher debt load relative to revenue than 58% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2014

Net Margin

84th percentile

29%

Higher net margin than 84% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2014

Top Officer Pay

57th percentile

$75,000

Higher top officer pay than 57% of similar nonprofits.

Top officer pay equals 4.7% of source-year revenue.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2014

Asset Growth

92nd percentile

55%

Faster asset growth than 92% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2013 to 2014

Revenue Growth

94th percentile

116%

Faster revenue growth than 94% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2013 to 2014

Assets

Up

$1,362,943

Up $482,888 (+55%) from 2013

Net Assets

Up

$1,102,053

Up $447,593 (+68%) from 2013

Liabilities

Up

$260,890

Up $35,295 (+16%) from 2013

Revenue

Up

$1,605,775

Up $860,757 (+116%) from 2013

Expenses

Up

$1,145,895

Up $272,829 (+31%) from 2013

Net Income

Up

$459,880

Up $587,928 (+459%) from 2013

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$3.0M$2.0M$1.0M$0Assets 2011: $872,419Liabilities 2011: $225,250Net Assets 2011: $647,1692011Assets 2012: $1,010,391Liabilities 2012: $257,016Net Assets 2012: $753,3752012Assets 2013: $880,055Liabilities 2013: $225,595Net Assets 2013: $654,4602013Assets 2014: $1,362,943Liabilities 2014: $260,890Net Assets 2014: $1,102,0532014Assets 2015: $1,257,512Liabilities 2015: $256,047Net Assets 2015: $1,001,4652015Assets 2016: $1,203,872Liabilities 2016: $254,338Net Assets 2016: $949,5342016Assets 2017: $1,097,462Liabilities 2017: $240,273Net Assets 2017: $857,1892017Assets 2018: $1,036,459Liabilities 2018: $79,229Net Assets 2018: $957,2302018Assets 2019: $1,109,030Liabilities 2019: $171,366Net Assets 2019: $937,6642019Assets 2020: $1,073,936Liabilities 2020: $122,698Net Assets 2020: $951,2382020Assets 2021: $1,273,635Liabilities 2021: $117,480Net Assets 2021: $1,156,1552021Assets 2022: $1,400,688Liabilities 2022: $174,087Net Assets 2022: $1,226,6012022Assets 2023: $2,528,952Liabilities 2023: $303,256Net Assets 2023: $2,225,6962023Assets 2024: $2,330,776Liabilities 2024: $312,223Net Assets 2024: $2,018,5532024

Highlighted filing

2014

Assets$1,362,943
Liabilities$260,890
Net Assets$1,102,053

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$3.0M$2.0M$1.0M$0-$1.0MRevenue 2011: $820,962Expenses 2011: $989,634Net Income 2011: -$168,6722011Expenses 2012: $870,4152012Revenue 2013: $745,018Expenses 2013: $873,066Net Income 2013: -$128,0482013Revenue 2014: $1,605,775Expenses 2014: $1,145,895Net Income 2014: $459,8802014Revenue 2015: $950,720Expenses 2015: $1,015,547Net Income 2015: -$64,8272015Revenue 2016: $729,220Expenses 2016: $797,954Net Income 2016: -$68,7342016Revenue 2017: $767,053Expenses 2017: $868,913Net Income 2017: -$101,8602017Revenue 2018: $772,157Expenses 2018: $832,584Net Income 2018: -$60,4272018Revenue 2019: $1,019,983Expenses 2019: $1,021,019Net Income 2019: -$1,0362019Revenue 2020: $850,387Expenses 2020: $848,440Net Income 2020: $1,9472020Revenue 2021: $960,183Expenses 2021: $758,939Net Income 2021: $201,2442021Revenue 2022: $960,552Expenses 2022: $834,692Net Income 2022: $125,8602022Revenue 2023: $2,027,964Expenses 2023: $1,066,692Net Income 2023: $961,2722023Revenue 2024: $1,075,701Expenses 2024: $1,288,858Net Income 2024: -$213,1572024

Highlighted filing

2014

Revenue$1,605,775
Expenses$1,145,895
Net Income$459,880
Jump To
Filing Snapshot
Filing Period
Jan 1, 2014 to Dec 31, 2014
Signed
May 11, 2015
Return Version
2014v5.0
Gross Receipts
$2,449,177
Mission and Program Overview

Mission

Hunter's hope foundation was established to address the acute need for information and research with respect to krabbe disease and related leukodystrophies. In addition, we strive to support and encourage those afflicted and their families as they struggle to endure, adjust, and cope with the demands of the fatal illnesses. Accordingly our mission is four fold:- to broaden public awareness of krabbe disease and other leukodystrophies thus increasing the probability of early detection and treatment.- to gather and provide current, functional information, and service linkages to families of children with leukodystrophies.- to fund research efforts that will identify new treatments, therapies, and ultimately, a cure for krabbe disease and other leukodystrophies.- to establish an alliance of hope that will nourish, affirm, and confront the urgent need for medical, financial, and emotional support of family members and those afflicted with leukodystrophies.

To increase public awareness, to support, to fund research efforts to find a cure for krabbe disease and other leukodystrophies, and to promote family values to parents all over the world.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$560,990$652,124▲ $91,134
Pledges and Grants Receivable$63,953$575,641▲ $511,688
Cash and Non-Interest-Bearing Accounts$98,379$90,100▼ $8,279
Savings and Temporary Cash Investments$148,720$38,669▼ $110,051
Land, Buildings, and Equipment, Net$6,746$6,409▼ $337
Prepaid Expenses and Deferred Charges$1,267--
Total Assets$880,055$1,362,943▲ $482,888
Liabilities
Grants Payable$215,915$257,310▲ $41,395
Accounts Payable and Accrued Expenses$9,680$3,580▼ $6,100
Total Liabilities$225,595$260,890▲ $35,295
Net Assets / Fund Balance
Temporarily Rstr Net Assets$227,484$889,211▲ $661,727
Unrestricted Net Assets$426,976$212,842▼ $214,134
Total Net Assets Fund Balance$654,460$1,102,053▲ $447,593
Total Liabilities and Net Assets / Fund Balance$880,055$1,362,943▲ $482,888

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$5,872$34,013$39,885
Other Land Buildings$174$23,765$23,939
Leasehold Improvements$363$422$785
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseTotal
Jacque WaggonerCEOFT$75,000$75,000

Board Members and Trustees

NameTitle
Jill KellyChairwoman
James E KellyPresident
Anne MccuneDirector
Brad RyeDirector
Connie ScherrerDirector
David JancaDirector
Erin KellyDirector
Greg ConnorsDirector
Kevin GavaganDirector
Phil MayDirector
Russ RussellDirector
Steven SchmittDirector
Lauren GidleySecretary
Michelle TharnishTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$1,546,858
Program Service Revenue
$0
Investment Income
$58,917
Other Revenue
$0
All Other Contributions
$1,546,858
Change in Net Assets
$459,880

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded1$49,650Fair Market Value
Total Noncash Contributions1$49,650-

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,598,176
Revenue Not Reported on Financial Statements
$7,599
Revenue Not Reported on Form 990
$-6,287
Total Revenue per Audited Statements
$1,591,889
Total Revenue per Form 990
$1,605,775
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$423,415
Salaries, Compensation, and Employee Benefits$383,900
Grants and Similar Amounts Paid$338,580
Total Fundraising Expense$90,901
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$214,240$20,265$34,614$269,119
Grants to Domestic Orgs$251,000--$251,000
Grants to Domestic Individuals$87,580--$87,580
Current Officers, Directors, Trustees, and Key Employees$59,705$5,648$9,647$75,000
Conferences and Meetings$73,684$4$275$73,963
Payroll Taxes$19,351$3,716$3,031$26,098
Occupancy$18,243$1,791$3,086$23,120
Other Expenses$18,695$63$342$19,100
Fees for Services Other$559$15,422$62$16,043
Other Employee Benefits$10,145$1,949$1,589$13,683
Travel$11,588-$25$11,613
All Other Expenses$6,528$2,344$1,132$10,004
Insurance$1,814$7,782$342$9,938
Fees for Service Investment Mgmnt Fees-$7,599-$7,599
Depreciation Depletion-$4,683-$4,683
Total Functional Expenses$972,935$82,059$90,901$1,145,895

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Form 990$1,145,895
Total Expenses per Audited Statements$1,144,296
Expenses per Audited Statements$1,138,296
Expenses Not Reported on Financial Statements$7,599
Expenses Not Reported on Form 990$6,000
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
University of Buffalo Foundation IncBuffalo, NY501(c)(3)Fund Research Efforts That Will Identify New Treatments, Therapies, and Ultimately a Cure for Krabbe Disease and Other Leukodystrophies.$150,000
University of North Carolina at Chapel HillChapel Hill, NC501(c)(3)Fund Research Efforts That Will Identify New Treatments, Therapies and Ultimately a Cure for the Disease$35,000
University of KansasKansas City, KS501(c)(3)Fund Research Efforts That Will Identify New Treatments, Therapies and Ultimately a Cure for the Disease$10,000
University of RochesterRochester, NY501(c)(3)Fund Research Efforts That Will Identify New Treatments, Therapies and Ultimately a Cure for the Disease$8,607
Ronald Mcdonald House of DurhamDurham, NC501(c)(3)To Provide Funding for Housing of Families Suppering From Krabbe Disease.$5,000
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

James e. Kelly, president, jill kelly, chairwoman, and jacque waggoner, ceo, have a family relationship.

Form 990, Part VI, Section B, Line 11

The return preparer e-mails a copy of the final version of the form 990 to a designated board member, who forwards the remaining board members. The designated board member undertakes a review of the form before filing. The form is reviewed in its entirety. Issues (if any) are resolved with the return preparer prior to filing the return.

Form 990, Part VI, Section B, Line 12C

Each board member is required to complete a "disclosure - conflict of interest" form that is monitored by the chief executive officer. Each board member agrees to report to the chief executive officer any situations that may develop that may be considered a conflict of interest.

Form 990, Part VI, Section B, Line 15

The board of directors reviews and approves the compensation of the foundation's ceo after analysis of comparable compensation data. The deliberation and decision is documented in the board minutes. Documentation is also included and retained in personnel files.

Form 990, Part VI, Section C, Line 19

The foundation makes its governing documents, conflict of interest policy, and financial statements available to the public upon request. The foundation's financial statements are also available on the irs website with form 990.

Filing and Contact Details

Filer

Filer Name
HUNTER'S HOPE FOUNDATION INC
EIN
16-1552315
Phone
7166671200
Address
PO BOX 643, ORCHARD PARK, NY 14127

Signing Officer

Name
Jacque Waggoner
Title
CEO
Phone
7166671200
Signed
2015-05-11
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Jacque Waggoner
Formed
1998
Legal Domicile
Ny
Voting Board Members
14
Independent Board Members
14
Employees
11
Volunteers
0

Preparer

Firm
Toski & Co Cpas Pc
Address
6390 MAIN STREET SUITE 200, WILLIAMSVILLE, NY 14221
Preparer
JOHN T O'BRIEN
Phone
7166340700
Supplemental Narrative

Additional Explanations

FORM 990 PART XII LINE 2C:

No changes have taken place during the fiscal year ended december 31, 2014.

Financial Statement Notes

PART X, LINE 2:

The foundation is exempt from federal income taxes under section 501(c)(3) of the internal revenue code (the code), therefore, no provision for income taxes is reflected in the financial statements. The foundation has been classified as a publicly supported organization that is not a private foundation under section 509(a) of the code. The foundation presently discloses or recognizes income tax positions based on management's estimate of whether it is reasonably possible or probable that a liability has been incurred for unrecognized income taxes. Management has concluded that the foundation has taken no uncertain tax positions that require adjustment in its financial statements. U.s. Forms 990 filed by the foundation are subject to examination by taxing authorities. The foundation is no longer subject to tax examination for the years ended december 31, 2010, and prior.

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IRS990/Form990PartVIISectionAGrp/TitleTxt1CHAIRWOMAN
IRS990/Form990PartVIISectionAGrp/TitleTxt2SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt3TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14CEO
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr01998
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd00
IRS990/GainOrLossGrp/SecuritiesAmt037563
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt014
IRS990/GrantsPayableGrp/BOYAmt0215915
IRS990/GrantsPayableGrp/EOYAmt0257310
IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt087580
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt087580
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt0251000
IRS990/GrantsToDomesticOrgsGrp/TotalAmt0251000
IRS990/GrantsToIndividualsInd01
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt0880965
IRS990/GrossReceiptsAmt02449177
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt014
IRS990/IndivRcvdGreaterThan100KCnt00
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InsuranceGrp/FundraisingAmt0342
IRS990/InsuranceGrp/ManagementAndGeneralAmt07782
IRS990/InsuranceGrp/ProgramServicesAmt01814
IRS990/InsuranceGrp/TotalAmt09938
IRS990/InvestmentIncomeGrp/ExclusionAmt021354
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt021354
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt0560990
IRS990/InvestmentsPubTradedSecGrp/EOYAmt0652124
IRS990/IRPDocumentCnt00
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt058200
IRS990/LandBldgEquipBasisNetGrp/BOYAmt06746
IRS990/LandBldgEquipBasisNetGrp/EOYAmt06409
IRS990/LandBldgEquipCostOrOtherBssAmt064609
IRS990/LegalDomicileStateCd0NY
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt0843402
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0HUNTER'S HOPE FOUNDATION WAS ESTABLISHED TO ADDRESS THE ACUTE NEED FOR INFORMATION AND RESEARCH WITH RESPECT TO KRABBE DISEASE AND RELATED LEUKODYSTROPHIES. IN ADDITION, WE STRIVE TO SUPPORT AND ENCOURAGE THOSE AFFLICTED AND THEIR FAMILIES AS THEY STRUGGLE TO ENDURE, ADJUST, AND COPE WITH THE DEMANDS OF THESE FATAL ILLNESSES. ACCORDINGLY OUR MISSION IS FOUR FOLD:TO BROADEN PUBLIC AWARENESS OF KRABBE DISEASE AND OTHER LEUKODYSTROPHIES THUS INCREASING THE PROBABILITY OF EARLY DETECTION AND TREATMENT.TO GATHER AND PROVIDE CURRENT, FUNCTIONAL INFORMATION, AND SERVICE LINKAGES TO FAMILIES OF CHILDREN WITH LEUKODYSTROPHIES.TO FUND RESEARCH EFFORTS THAT WILL IDENTIFY NEW TREATMENTS, THERAPIES, AND ULTIMATELY, A CURE FOR KRABBE DISEASE AND OTHER LEUKODYSTROPHIES.TO ESTABLISH AN ALLIANCE OF HOPE THAT WILL NOURISH, AFFIRM, AND CONFRONT THE URGENT NEED FOR MEDICAL, FINANCIAL, AND EMOTIONAL SUPPORT OF FAMILY MEMBERS AND THOSE AFFLICTED WITH LEUKODYSTROPHIES.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt0654460
IRS990/NetAssetsOrFundBalancesEOYAmt01102053
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt037563
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt037563
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt0-12287
IRS990/NoncashContributionsAmt049650
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt03086
IRS990/OccupancyGrp/ManagementAndGeneralAmt01791
IRS990/OccupancyGrp/ProgramServicesAmt018243
IRS990/OccupancyGrp/TotalAmt023120
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt01589
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt01949
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt010145
IRS990/OtherEmployeeBenefitsGrp/TotalAmt013683
IRS990/OtherExpensesGrp/Desc0OUTSIDE SERVICES
IRS990/OtherExpensesGrp/Desc1PRINTING
IRS990/OtherExpensesGrp/Desc2SUPPLIES
IRS990/OtherExpensesGrp/Desc3POSTAGE AND SHIPPING
IRS990/OtherExpensesGrp/FundraisingAmt035344
IRS990/OtherExpensesGrp/FundraisingAmt1278
IRS990/OtherExpensesGrp/FundraisingAmt21134
IRS990/OtherExpensesGrp/FundraisingAmt3342
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt010793
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt163
IRS990/OtherExpensesGrp/ProgramServicesAmt0139221
IRS990/OtherExpensesGrp/ProgramServicesAmt139164
IRS990/OtherExpensesGrp/ProgramServicesAmt221418
IRS990/OtherExpensesGrp/ProgramServicesAmt318695
IRS990/OtherExpensesGrp/TotalAmt0185358
IRS990/OtherExpensesGrp/TotalAmt139442
IRS990/OtherExpensesGrp/TotalAmt222552
IRS990/OtherExpensesGrp/TotalAmt319100
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt034614
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt020265
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0214240
IRS990/OtherSalariesAndWagesGrp/TotalAmt0269119
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt03031
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt03716
IRS990/PayrollTaxesGrp/ProgramServicesAmt019351
IRS990/PayrollTaxesGrp/TotalAmt026098
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt063953
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt0575641
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt01267
IRS990/PrincipalOfficerNm0JACQUE WAGGONER
IRS990/ProfessionalFundraisingInd00
IRS990/ProgSrvcAccomActy2Grp/Desc0FAMILY ASSISTANCE - THE FOUNDATION UNDERTAKES TO GATHER AND PROVIDE CURRENT, FUNCTIONAL INFORMATION, AND SERVICE LINKAGES TO FAMILIES OF CHILDREN WITH LEUKODYSTROPHIES.THE FOUNDATION STRIVES TO ESTABLISH AN ALLIANCE OF HOPE THAT WILL NOURISH, AFFIRM, AND CONFRONT THE URGENT NEED FOR MEDICAL, FINANCIAL, AND EMOTIONAL SUPPORT OF FAMILY MEMBERS AND THOSE AFFLICTED WITH LEUKODYSTROPHIES.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0280936
IRS990/ProgSrvcAccomActy2Grp/GrantAmt088580
IRS990/ProgSrvcAccomActy3Grp/Desc0RESEARCH - THE FOUNDATION'S GOAL IS TO FUND RESEARCH EFFORTS THAT WILL IDENTIFY NEW TREATMENTS, THERAPIES, AND ULTIMATELY, A CURE FOR KRABBE DISEASE AND OTHER LEUKODYSTROPHIES.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt0334594
IRS990/ProgSrvcAccomActy3Grp/GrantAmt0250000
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt0758875
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt0224102
IRS990/PYInvestmentIncomeAmt0-13857
IRS990/PYOtherExpensesAmt0301137
IRS990/PYOtherRevenueAmt00
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt0-128048
IRS990/PYSalariesCompEmpBnftPaidAmt0347827
IRS990/PYTotalExpensesAmt0873066
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt0745018
IRS990/QuidProQuoContributionsInd00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt0459880
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd01
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0148720
IRS990/SavingsAndTempCashInvstGrp/EOYAmt038669
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt01546258
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0758875
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0943601
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0757039
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0897123
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt04902896
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt021354
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt018331
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt020905
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt023536
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt023352
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt0107478
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearAmt0600
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus4YearsAmt0246
IRS990ScheduleA/OtherIncome170Grp/TotalAmt0846
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.90370
IRS990ScheduleA/PublicSupportPY170Pct00.83700
IRS990ScheduleA/PublicSupportTotal170Amt04528468
IRS990ScheduleA/SubstantialContributorsTotAmt0374428
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt01546258
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0758875
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0943601
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0757039
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0897123
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt04902896
IRS990ScheduleA/TotalSupportAmt05011220
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/DonatedServicesAndUseFcltsAmt06000
IRS990ScheduleD/DonatedServicesUseFcltsAmt06000
IRS990ScheduleD/EquipmentGrp/BookValueAmt05872
IRS990ScheduleD/EquipmentGrp/DepreciationAmt034013
IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt039885
IRS990ScheduleD/ExpensesNotReportedAmt06000
IRS990ScheduleD/ExpensesNotRptFinclStmtAmt07599
IRS990ScheduleD/ExpensesSubtotalAmt01138296
IRS990ScheduleD/FootnoteTextInd0X
IRS990ScheduleD/InvestmentExpensesNotIncld2Amt07599
IRS990ScheduleD/InvestmentExpensesNotIncldAmt07599
IRS990ScheduleD/LeaseholdImprovementsGrp/BookValueAmt0363
IRS990ScheduleD/LeaseholdImprovementsGrp/DepreciationAmt0422
IRS990ScheduleD/LeaseholdImprovementsGrp/OtherCostOrOtherBasisAmt0785
IRS990ScheduleD/NetUnrealizedGainsInvstAmt0-12287
IRS990ScheduleD/OtherLandBuildingsGrp/BookValueAmt0174
IRS990ScheduleD/OtherLandBuildingsGrp/DepreciationAmt023765
IRS990ScheduleD/OtherLandBuildingsGrp/OtherCostOrOtherBasisAmt023939
IRS990ScheduleD/RevenueNotReportedAmt0-6287
IRS990ScheduleD/RevenueNotReportedFinclStmtAmt07599
IRS990ScheduleD/RevenueSubtotalAmt01598176
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0THE FOUNDATION IS EXEMPT FROM FEDERAL INCOME TAXES UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE (THE CODE), THEREFORE, NO PROVISION FOR INCOME TAXES IS REFLECTED IN THE FINANCIAL STATEMENTS. THE FOUNDATION HAS BEEN CLASSIFIED AS A PUBLICLY SUPPORTED ORGANIZATION THAT IS NOT A PRIVATE FOUNDATION UNDER SECTION 509(A) OF THE CODE. THE FOUNDATION PRESENTLY DISCLOSES OR RECOGNIZES INCOME TAX POSITIONS BASED ON MANAGEMENT'S ESTIMATE OF WHETHER IT IS REASONABLY POSSIBLE OR PROBABLE THAT A LIABILITY HAS BEEN INCURRED FOR UNRECOGNIZED INCOME TAXES. MANAGEMENT HAS CONCLUDED THAT THE FOUNDATION HAS TAKEN NO UNCERTAIN TAX POSITIONS THAT REQUIRE ADJUSTMENT IN ITS FINANCIAL STATEMENTS. U.S. FORMS 990 FILED BY THE FOUNDATION ARE SUBJECT TO EXAMINATION BY TAXING AUTHORITIES. THE FOUNDATION IS NO LONGER SUBJECT TO TAX EXAMINATION FOR THE YEARS ENDED DECEMBER 31, 2010, AND PRIOR.
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0PART X, LINE 2:
IRS990ScheduleD/TotalBookValueLandBuildingsAmt06409
IRS990ScheduleD/TotalExpensesPerForm990Amt01145895
IRS990ScheduleD/TotalRevenuePerForm990Amt01605775
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt01591889

Document Assets

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Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$2.33$0.31$2.02$1.08$1.29$0.21
2023Detailed filing. Detailed filing data is available for this year.$2.53$0.30$2.23$2.03$1.07$0.96
2022Detailed filing. Detailed filing data is available for this year.$1.40$0.17$1.23$0.96$0.83$0.13
2021Detailed filing. Detailed filing data is available for this year.$1.27$0.12$1.16$0.96$0.76$0.20
2020Detailed filing. Detailed filing data is available for this year.$1.07$0.12$0.95$0.85$0.85$0.00
2019Detailed filing. Detailed filing data is available for this year.$1.11$0.17$0.94$1.02$1.02$0.00
2018Detailed filing. Detailed filing data is available for this year.$1.04$0.08$0.96$0.77$0.83$0.06
2017Detailed filing. Detailed filing data is available for this year.$1.10$0.24$0.86$0.77$0.87$0.10
2016Detailed filing. Detailed filing data is available for this year.$1.20$0.25$0.95$0.73$0.80$0.07
2015Detailed filing. Detailed filing data is available for this year.$1.26$0.26$1.00$0.95$1.02$0.06
2014Detailed filing. Detailed filing data is available for this year.$1.36$0.26$1.10$1.61$1.15$0.46
2013Detailed filing. Detailed filing data is available for this year.$0.88$0.23$0.65$0.75$0.87$0.13
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.01$0.26$0.75$0.87
2011Summary only. Only limited summary data is available for this year.$0.87$0.23$0.65$0.82$0.99$0.17