Civic Intelligence

Vascular Birthmarks Foundation Inc.

990 • Fiscal year 2019 • EIN 16-1515227

Jan 01, 2019 to Dec 31, 2019 • Filed on May 21, 2020

Organization Profilewww.birthmark.org
P O Box 106Latham, NY 12110

(518) 782-9637

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

43rd percentile

0.01x

Higher debt load relative to assets than 43% of similar nonprofits.

2019 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2019

Liabilities / Revenue

53rd percentile

0.04x

Higher debt load relative to revenue than 53% of similar nonprofits.

2019 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2019

Net Margin

6th percentile

-46%

Higher net margin than 6% of similar nonprofits.

2019 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2019

Top Officer Pay

83rd percentile

$85,000

Higher top officer pay than 83% of similar nonprofits.

Top officer pay equals 28.5% of source-year revenue.

2019 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2019

Asset Growth

12th percentile

-15%

Faster asset growth than 12% of similar nonprofits.

2019 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2018 to 2019

Revenue Growth

5th percentile

-50%

Faster revenue growth than 5% of similar nonprofits.

2019 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2018 to 2019

Balance Sheet
Liabilities / Assets43rd percentile

Assets

Down

$790,227

Down $135,064 (-15%) from 2018

Net Assets

Down

$778,916

Down $137,034 (-15%) from 2018

Liabilities

Up

$11,311

Up $1,970 (+21%) from 2018

Revenue And Expenses
Liabilities / Revenue53rd percentileNet Margin6th percentile

Revenue

Down

$298,459

Down $303,730 (-50%) from 2018

Expenses

Up

$435,493

Up $6,949 (+1.6%) from 2018

Net Income

Down

-$137,034

Down $310,679 (-179%) from 2018

Historical Trend

Balance Sheet Trend

Asset Growth12th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.5M$1.0M$500K$0Assets 2010: $149,047Liabilities 2010: $1,074Net Assets 2010: $147,9732010Assets 2011: $185,215Liabilities 2011: $155Net Assets 2011: $185,0602011Assets 2012: $318,140Liabilities 2012: $18,741Net Assets 2012: $299,3992012Assets 2013: $314,452Liabilities 2013: $45,167Net Assets 2013: $269,2852013Assets 2014: $478,109Liabilities 2014: $203,293Net Assets 2014: $274,8162014Assets 2015: $464,380Liabilities 2015: $4,049Net Assets 2015: $460,3312015Assets 2016: $526,102Liabilities 2016: $9,507Net Assets 2016: $516,5952016Assets 2017: $750,621Liabilities 2017: $8,316Net Assets 2017: $742,3052017Assets 2018: $925,291Liabilities 2018: $9,341Net Assets 2018: $915,9502018Assets 2019: $790,227Liabilities 2019: $11,311Net Assets 2019: $778,9162019Assets 2020: $913,973Liabilities 2020: $50,791Net Assets 2020: $863,1822020Assets 2021: $1,063,742Liabilities 2021: $13,412Net Assets 2021: $1,050,3302021Assets 2022: $1,102,465Liabilities 2022: $6,422Net Assets 2022: $1,096,0432022Assets 2023: $1,134,010Liabilities 2023: $10,170Net Assets 2023: $1,123,8402023Assets 2024: $1,126,410Liabilities 2024: $9,016Net Assets 2024: $1,117,3942024

Highlighted filing

2019

Assets$790,227
Liabilities$11,311
Net Assets$778,916
Open 2019 Filing

Operations Trend

Revenue Growth5th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$800K$600K$400K$200K$0-$200KExpenses 2010: $174,4212010Revenue 2011: $178,677Expenses 2011: $141,590Net Income 2011: $37,0872011Expenses 2012: $193,9642012Revenue 2013: $174,138Expenses 2013: $204,252Net Income 2013: -$30,1142013Revenue 2014: $240,020Expenses 2014: $234,489Net Income 2014: $5,5312014Revenue 2015: $471,403Expenses 2015: $285,888Net Income 2015: $185,5152015Revenue 2016: $393,503Expenses 2016: $337,239Net Income 2016: $56,2642016Revenue 2017: $574,249Expenses 2017: $348,539Net Income 2017: $225,7102017Revenue 2018: $602,189Expenses 2018: $428,544Net Income 2018: $173,6452018Revenue 2019: $298,459Expenses 2019: $435,493Net Income 2019: -$137,0342019Revenue 2020: $402,918Expenses 2020: $318,652Net Income 2020: $84,2662020Revenue 2021: $620,340Expenses 2021: $433,192Net Income 2021: $187,1482021Revenue 2022: $562,743Expenses 2022: $494,414Net Income 2022: $68,3292022Revenue 2023: $602,102Expenses 2023: $589,656Net Income 2023: $12,4462023Revenue 2024: $586,808Expenses 2024: $599,067Net Income 2024: -$12,2592024

Highlighted filing

2019

Revenue$298,459
Expenses$435,493
Net Income-$137,034
Open 2019 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2019 to Dec 31, 2019
Signed
May 21, 2020
Return Version
2019v5.0
Gross Receipts
$310,352
Mission and Program Overview

Mission

Provide support and informational resources for individuals affected by hemangiomas, port wine stains and other vascular birthmarks and tumors, and sponsored relevant research

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$493,212$506,773▲ $13,561
Cash and Non-Interest-Bearing Accounts$428,178$262,776▼ $165,402
Prepaid Expenses and Deferred Charges-$15,848-
Accounts Receivable$3,439$3,086▼ $353
Land, Buildings, and Equipment, Net$462$1,744▲ $1,282
Other Notes and Loans Receivable, Net-$0-
Pledges and Grants Receivable-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Investments in Publicly Traded Securities-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Total Assets$925,291$790,227▼ $135,064
Other Assets Total-$0-
Liabilities
Other Liabilities$1,951$7,469▲ $5,518
Accounts Payable and Accrued Expenses$7,390$3,842▼ $3,548
Total Liabilities$9,341$11,311▲ $1,970
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$834,945$749,170▼ $85,775
Net Assets With Donor Restrictions$81,005$29,746▼ $51,259
Total Net Assets Fund Balance$915,950$778,916▼ $137,034
Total Liabilities and Net Assets / Fund Balance$925,291$790,227▼ $135,064

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$395$8,913$9,308
Equipment$1,349$539$1,888
Compensation and Service Providers
Top Officer Pay83rd percentile

Employees

NameTitleFull / Part TimeBaseTotal
Dr Linda Rozell-shannonPresident & CEOPT$85,000$85,000

Board Members and Trustees

NameTitle
Sherry ParrishChairman
Brian BolingerVice President
Corinne BarinagaDirector
Glenda EthingtonDirector
Jeffrey BergenDirector
Carla MannixCoordinator
Elizabeth DishmanMedical Rep
Sarah Kathryn KenisMedical Rep
Dr Dinah GonzalezParent Rep
Lauri FirstenbergParent Rep
Marvin KalaferParent Rep
Natalie BolingerParent Rep
Sharon IsraelParent Rep
Kimberley LanePatient Rep
Tiffany EthingtonSecretary
Jody LeeTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$230,791
Program Service Revenue
$63,807
Investment Income
$3,361
Other Revenue
$500
All Other Contributions
$212,887
Change in Net Assets
$-137,034
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$251,517
Salaries, Compensation, and Employee Benefits$177,476
Total Fundraising Expense$38,462
Grants and Similar Amounts Paid$6,500
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Current Officers, Directors, Trustees, and Key Employees$63,750$8,500$12,750$85,000
Other Salaries and Wages$59,775$9,270$10,655$79,700
Conferences and Meetings$59,968--$59,968
Fees for Services Other$38,130$10,515$150$48,795
Travel$11,524$3,784$1,360$16,668
Payroll Taxes$9,582$1,377$1,817$12,776
All Other Expenses$4,152$8,096$467$12,715
Fees for Services Accounting-$10,899-$10,899
Grants to Domestic Individuals$6,500--$6,500
Office Expenses$3,010$392$546$3,948
Other Expenses$2,650$563$563$3,776
Insurance$1,705$1,716$341$3,762
Advertising$75$50$2,776$2,901
Depreciation Depletion$151$33$33$217
Total Functional Expenses$334,250$62,781$38,462$435,493
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$12,080
Fundraising Direct Expenses$11,742
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Fashion Show$25,181$12,080$192$11,888
Total Events$25,181$12,080$11,742$338
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Credit Card Payable$5,251
Payroll Taxes Payable$2,218
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
No
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Line 2: Description of Business or Family Relationship of Officers, Directors, Et

“Brian bolinger (vice-president) is married to natalie bolinger (parent rep). Glenda and tiffany ethington are related to each other.”

Form 990, Part VI, Line 11B: Form 990 Review Process

“Executive director will review prior to filing.”

Form 990, Part VI, Line 15A: Compensation Review & Approval Process - CEO, Top Management

“Compensation is reviewed and approved by compensation committee on an annual basis.”

Form 990, Part VI, Line 15B: Compensation Review and Approval Process for Officers and Key Employees

“Compensation is reviewed and approved by compensation committee on an annual basis.”

Form 990, Part VI, Line 19: Other Organization Documents Publicly Available

“AVAILABLE UPON REQUEST”

Filing and Contact Details

Filer

Filer Name
Vascular Birthmarks Foundation Inc
EIN
16-1515227
Phone
5187829637
Address
P O BOX 106, LATHAM, NY 12110

Signing Officer

Name
Dr Linda Rozell-shannon
Title
President & CEO
Signed
2020-05-21
Discuss with paid preparer
Yes

Organization Details

Formed
1994
Legal Domicile
Ny
Voting Board Members
16
Independent Board Members
16
Employees
3
Volunteers
20

Preparer

Firm
Slocum DeAngelus & Assocs CPAs PC
Address
974 Albany-Shaker Road, Latham, NY 12110
Preparer
Michael J Ryan CPA
Phone
5187836000
Supplemental Narrative

Financial Statement Notes

Part V, Line 4: Intended uses of the endowment fund.

“Income can be used for operations”

Raw XML AppendixShowing 400 of 606 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd0false
IRS990/AccountsPayableAccrExpnssGrp/BOYAmt07390
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt03842
IRS990/AccountsReceivableGrp/BOYAmt03439
IRS990/AccountsReceivableGrp/EOYAmt03086
IRS990/ActivitiesConductedPrtshpInd0false
IRS990/ActivityOrMissionDesc0PROVIDE SUPPORT AND INFORMATIONAL RESOURCES FOR INDIVIDUALS AFFECTED BY HEMANGIOMAS, PORT WINE STAINS AND OTHER VASCULAR BIRTHMARKS AND TUMORS, AND SPONSORED RELEVANT RESEARCH
IRS990/AdvertisingGrp/FundraisingAmt02776
IRS990/AdvertisingGrp/ManagementAndGeneralAmt050
IRS990/AdvertisingGrp/ProgramServicesAmt075
IRS990/AdvertisingGrp/TotalAmt02901
IRS990/AllOtherContributionsAmt0212887
IRS990/AllOtherExpensesGrp/FundraisingAmt0467
IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt08096
IRS990/AllOtherExpensesGrp/ProgramServicesAmt04152
IRS990/AllOtherExpensesGrp/TotalAmt012715
IRS990/AnnualDisclosureCoveredPrsnInd0true
IRS990/AuditCommitteeInd0false
IRS990/BackupWthldComplianceInd0true
IRS990/BenefitsToMembersGrp/TotalAmt00
IRS990/BooksInCareOfDetail/PersonNm0DR LINDA ROZELL-SHANNON
IRS990/BooksInCareOfDetail/PhoneNum05183821977
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt02301 GREENS FARM RD
IRS990/BooksInCareOfDetail/USAddress/CityNm0NISKAYUNA
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0NY
IRS990/BooksInCareOfDetail/USAddress/ZIPCd012309
IRS990/BusinessRlnWith35CtrlEntInd0false
IRS990/BusinessRlnWithFamMemInd0false
IRS990/BusinessRlnWithOrgMemInd0false
IRS990/CashNonInterestBearingGrp/BOYAmt0428178
IRS990/CashNonInterestBearingGrp/EOYAmt0262776
IRS990/ChangeToOrgDocumentsInd0false
IRS990/CntrctRcvdGreaterThan100KCnt00
IRS990/CollectionsOfArtInd0false
IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt012750
IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt08500
IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt063750
IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt085000
IRS990/CompDisqualPersonsGrp/TotalAmt00
IRS990/CompensationFromOtherSrcsInd0false
IRS990/CompensationProcessCEOInd0true
IRS990/CompensationProcessOtherInd0true
IRS990/ConferencesMeetingsGrp/ProgramServicesAmt059968
IRS990/ConferencesMeetingsGrp/TotalAmt059968
IRS990/ConflictOfInterestPolicyInd0true
IRS990/ConservationEasementsInd0false
IRS990/ConsolidatedAuditFinclStmtInd0false
IRS990/ContriRptFundraisingEventAmt013101
IRS990/CostOfGoodsSoldAmt0151
IRS990/CreditCounselingInd0false
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt0230791
IRS990/CYGrantsAndSimilarPaidAmt06500
IRS990/CYInvestmentIncomeAmt03361
IRS990/CYOtherExpensesAmt0251517
IRS990/CYOtherRevenueAmt0500
IRS990/CYProgramServiceRevenueAmt063807
IRS990/CYRevenuesLessExpensesAmt0-137034
IRS990/CYSalariesCompEmpBnftPaidAmt0177476
IRS990/CYTotalExpensesAmt0435493
IRS990/CYTotalFundraisingExpenseAmt038462
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt0298459
IRS990/DecisionsSubjectToApprovaInd0false
IRS990/DeductibleArtContributionInd0false
IRS990/DeductibleNonCashContriInd0false
IRS990/DelegationOfMgmtDutiesInd0false
IRS990/DepreciationDepletionGrp/FundraisingAmt033
IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt033
IRS990/DepreciationDepletionGrp/ProgramServicesAmt0151
IRS990/DepreciationDepletionGrp/TotalAmt0217
IRS990/Desc0TO EDUCATE THE PUBLIC ON VASCULAR BIRTHMARKS THROUGH THE ANNUAL CONFERENCE AND TO PROVIDE SERVICES TO GUESTS.
IRS990/DescribedInSection501c3Ind0true
IRS990/DisregardedEntityInd0false
IRS990/DocumentRetentionPolicyInd0true
IRS990/DonorAdvisedFundInd0false
IRS990/DonorRestrictionNetAssetsGrp/BOYAmt081005
IRS990/DonorRestrictionNetAssetsGrp/EOYAmt029746
IRS990/DonorRstrOrQuasiEndowmentsInd0false
IRS990/ElectionOfBoardMembersInd0false
IRS990/EmployeeCnt03
IRS990/EmploymentTaxReturnsFiledInd0true
IRS990/EngagedInExcessBenefitTransInd0false
IRS990/ExpenseAmt0189546
IRS990/FamilyOrBusinessRlnInd0true
IRS990/FederalGrantAuditRequiredInd0false
IRS990/FederatedCampaignsAmt04803
IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt010899
IRS990/FeesForServicesAccountingGrp/TotalAmt010899
IRS990/FeesForServicesLegalGrp/TotalAmt00
IRS990/FeesForServicesLobbyingGrp/TotalAmt00
IRS990/FeesForServicesManagementGrp/TotalAmt00
IRS990/FeesForServicesOtherGrp/FundraisingAmt0150
IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt010515
IRS990/FeesForServicesOtherGrp/ProgramServicesAmt038130
IRS990/FeesForServicesOtherGrp/TotalAmt048795
IRS990/FeesForServicesProfFundraising/TotalAmt00
IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt00
IRS990/ForeignActivitiesInd0false
IRS990/ForeignFinancialAccountInd0false
IRS990/ForeignGrantsGrp/TotalAmt00
IRS990/ForeignOfficeInd0false
IRS990/Form1098CFiledInd0false
IRS990/Form8282FiledCnt00
IRS990/Form8282PropertyDisposedOfInd0false
IRS990/Form8899Filedind0false
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt00.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt10.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt20.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt30.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt40.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt50.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt60.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt70.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt80.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt90.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt100.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt110.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt120.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt130.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt140.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt150.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt160.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt032.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt12.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt22.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt35.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt42.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt52.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt620.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt715.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt82.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt92.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt102.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt112.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt122.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt132.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt142.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt152.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt165.00
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd8X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd9X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd10X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd11X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd12X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OfficerInd4X
IRS990/Form990PartVIISectionAGrp/OfficerInd5X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt140
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt150
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt160
IRS990/Form990PartVIISectionAGrp/PersonNm0DR LINDA ROZELL-SHANNON
IRS990/Form990PartVIISectionAGrp/PersonNm1KIMBERLEY LANE
IRS990/Form990PartVIISectionAGrp/PersonNm2DR DINAH GONZALEZ
IRS990/Form990PartVIISectionAGrp/PersonNm3NATALIE BOLINGER
IRS990/Form990PartVIISectionAGrp/PersonNm4LAURI FIRSTENBERG
IRS990/Form990PartVIISectionAGrp/PersonNm5CARLA MANNIX
IRS990/Form990PartVIISectionAGrp/PersonNm6GLENDA ETHINGTON
IRS990/Form990PartVIISectionAGrp/PersonNm7CORINNE BARINAGA
IRS990/Form990PartVIISectionAGrp/PersonNm8MARVIN KALAFER
IRS990/Form990PartVIISectionAGrp/PersonNm9ELIZABETH DISHMAN
IRS990/Form990PartVIISectionAGrp/PersonNm10SARAH KATHRYN KENIS
IRS990/Form990PartVIISectionAGrp/PersonNm11SHERRY PARRISH
IRS990/Form990PartVIISectionAGrp/PersonNm12JEFFREY BERGEN
IRS990/Form990PartVIISectionAGrp/PersonNm13SHARON ISRAEL
IRS990/Form990PartVIISectionAGrp/PersonNm14BRIAN BOLINGER
IRS990/Form990PartVIISectionAGrp/PersonNm15JODY LEE
IRS990/Form990PartVIISectionAGrp/PersonNm16TIFFANY ETHINGTON
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt085000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/TitleTxt0President & CEO
IRS990/Form990PartVIISectionAGrp/TitleTxt1PATIENT REP
IRS990/Form990PartVIISectionAGrp/TitleTxt2PARENT REP
IRS990/Form990PartVIISectionAGrp/TitleTxt3PARENT REP
IRS990/Form990PartVIISectionAGrp/TitleTxt4PARENT REP
IRS990/Form990PartVIISectionAGrp/TitleTxt5COORDINATOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6Director
IRS990/Form990PartVIISectionAGrp/TitleTxt7Director
IRS990/Form990PartVIISectionAGrp/TitleTxt8PARENT REP
IRS990/Form990PartVIISectionAGrp/TitleTxt9MEDICAL REP
IRS990/Form990PartVIISectionAGrp/TitleTxt10MEDICAL REP
IRS990/Form990PartVIISectionAGrp/TitleTxt11Chairman
IRS990/Form990PartVIISectionAGrp/TitleTxt12Director
IRS990/Form990PartVIISectionAGrp/TitleTxt13PARENT REP
IRS990/Form990PartVIISectionAGrp/TitleTxt14Vice President
IRS990/Form990PartVIISectionAGrp/TitleTxt15Treasurer
IRS990/Form990PartVIISectionAGrp/TitleTxt16Secretary
IRS990/Form990ProvidedToGvrnBodyInd0true
IRS990/FormationYr01994
IRS990/FormerOfcrEmployeesListedInd0false
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd0true
IRS990/FundraisingActivitiesInd0true
IRS990/FundraisingAmt013101
IRS990/FundraisingDirectExpensesAmt011742
IRS990/FundraisingGrossIncomeAmt012080
IRS990/GamingActivitiesInd0false
IRS990/GoverningBodyVotingMembersCnt016
IRS990/GrantAmt056500
IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt06500
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt06500
IRS990/GrantsToDomesticOrgsGrp/TotalAmt00
IRS990/GrantsToIndividualsInd0true
IRS990/GrantsToOrganizationsInd0false
IRS990/GrantToRelatedPersonInd0false
IRS990/GrossReceiptsAmt0310352
IRS990/GrossSalesOfInventoryAmt0313
IRS990/GroupReturnForAffiliatesInd0false
IRS990/IncludeFIN48FootnoteInd0false
IRS990/IncmFromInvestBondProceedsGrp/TotalRevenueColumnAmt00
IRS990/IndependentAuditFinclStmtInd0false
IRS990/IndependentVotingMemberCnt016
IRS990/IndivRcvdGreaterThan100KCnt00
IRS990/IndoorTanningServicesInd0false
IRS990/InfoInScheduleOPartIXInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InformationTechnologyGrp/TotalAmt00
IRS990/InsuranceGrp/FundraisingAmt0341
IRS990/InsuranceGrp/ManagementAndGeneralAmt01716
IRS990/InsuranceGrp/ProgramServicesAmt01705
IRS990/InsuranceGrp/TotalAmt03762
IRS990/IntangibleAssetsGrp/EOYAmt00
IRS990/InterestGrp/TotalAmt00
IRS990/InventoriesForSaleOrUseGrp/EOYAmt00
IRS990/InvestmentIncomeGrp/ExclusionAmt03361
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt03361
IRS990/InvestmentInJointVentureInd0false
IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt00
IRS990/InvestmentsProgramRelatedGrp/EOYAmt00
IRS990/InvestmentsPubTradedSecGrp/EOYAmt00
IRS990/IRPDocumentCnt09
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt09452
IRS990/LandBldgEquipBasisNetGrp/BOYAmt0462
IRS990/LandBldgEquipBasisNetGrp/EOYAmt01744
IRS990/LandBldgEquipCostOrOtherBssAmt011196
IRS990/LegalDomicileStateCd0NY
IRS990/LoanOutstandingInd0false
IRS990/LobbyingActivitiesInd0false
IRS990/LocalChaptersInd0false
IRS990/MaterialDiversionOrMisuseInd0false
IRS990/MembersOrStockholdersInd0false
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd0false
IRS990/MinutesOfGoverningBodyInd0true
IRS990/MissionDesc0PROVIDE SUPPORT AND INFORMATIONAL RESOURCES FOR INDIVIDUALS AFFECTED BY HEMANGIOMAS, PORT WINE STAINS AND OTHER VASCULAR BIRTHMARKS AND TUMORS, AND SPONSORED RELEVANT RESEARCH
IRS990/MoreThan5000KToIndividualsInd0false
IRS990/MoreThan5000KToOrgInd0false
IRS990/NetAssetsOrFundBalancesBOYAmt0915950
IRS990/NetAssetsOrFundBalancesEOYAmt0778916
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt00
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0338
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0338
IRS990/NetIncomeFromGamingGrp/TotalRevenueColumnAmt00
IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt0162
IRS990/NetIncomeOrLossGrp/UnrelatedBusinessRevenueAmt0162
IRS990/NetRentalIncomeOrLossGrp/TotalRevenueColumnAmt00
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt0834945
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt0749170
IRS990/NondeductibleContributionsInd0false
IRS990/OccupancyGrp/TotalAmt00
IRS990/OfficeExpensesGrp/FundraisingAmt0546
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt0392
IRS990/OfficeExpensesGrp/ProgramServicesAmt03010
IRS990/OfficeExpensesGrp/TotalAmt03948
IRS990/OfficerMailingAddressInd0false
IRS990/OperateHospitalInd0false
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherAssetsTotalGrp/EOYAmt00
IRS990/OtherEmployeeBenefitsGrp/TotalAmt00
IRS990/OtherExpensesGrp/Desc0WEBSITE MAINTENANCE
IRS990/OtherExpensesGrp/Desc1PRODUCTION COSTS
IRS990/OtherExpensesGrp/Desc2MEALS AND ENTERTAINMENT
IRS990/OtherExpensesGrp/Desc3INTERNET
IRS990/OtherExpensesGrp/FundraisingAmt07004
IRS990/OtherExpensesGrp/FundraisingAmt1563
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt07004
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt1582
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt2563
IRS990/OtherExpensesGrp/ProgramServicesAmt032683
IRS990/OtherExpensesGrp/ProgramServicesAmt130000
IRS990/OtherExpensesGrp/ProgramServicesAmt210595
IRS990/OtherExpensesGrp/ProgramServicesAmt32650
IRS990/OtherExpensesGrp/TotalAmt046691
IRS990/OtherExpensesGrp/TotalAmt130000
IRS990/OtherExpensesGrp/TotalAmt211177
IRS990/OtherExpensesGrp/TotalAmt33776
IRS990/OtherLiabilitiesGrp/BOYAmt01951
IRS990/OtherLiabilitiesGrp/EOYAmt07469
IRS990/OtherRevenueTotalAmt00
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt010655
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt09270
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt059775
IRS990/OtherSalariesAndWagesGrp/TotalAmt079700
IRS990/OthNotesLoansReceivableNetGrp/EOYAmt00
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd0false
IRS990/PaymentsToAffiliatesGrp/TotalAmt00
IRS990/PayPremiumsPrsnlBnftCntrctInd0false
IRS990/PayrollTaxesGrp/FundraisingAmt01817
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt01377
IRS990/PayrollTaxesGrp/ProgramServicesAmt09582
IRS990/PayrollTaxesGrp/TotalAmt012776
IRS990/PensionPlanContributionsGrp/TotalAmt00
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt00
IRS990/PoliticalCampaignActyInd0false
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt015848
IRS990/ProfessionalFundraisingInd0false
IRS990/ProgramServiceRevenueGrp/BusinessCd0900099
IRS990/ProgramServiceRevenueGrp/BusinessCd1900099
IRS990/ProgramServiceRevenueGrp/Desc0CONFERENCE REGISTRATIONS
IRS990/ProgramServiceRevenueGrp/Desc1CONFERENCE SPONSORS
IRS990/ProgramServiceRevenueGrp/Desc2LIBRARY SUBS/REGS
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt05075
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt158500
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt2232
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt05075
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt158500
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt2232
IRS990/ProgSrvcAccomActy2Grp/Desc0PROVIDE SUPPORT AND INFORMATIONAL RESOURCES FOR INDIVIDUALS AFFECTED BY HEMANGIOMAS, PORT WINE STAINS AND OTHER VASCULAR BIRTHMARKS AND TUMORS, AND SPONSORED RELEVANT RESEARCH
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0138204
IRS990/ProgSrvcAccomActy2Grp/GrantAmt050000
IRS990/ProgSrvcAccomActy3Grp/Desc0AWARD SCHOLARSHIPS TO INDIVIDUALS WITH VASCULAR BIRTHMARKS WHO ARE PRODUCTIVE IN THEIR COMMUNITIES AND SCHOOLS AND WHO AGREE TO PROMOTE THE VBF ON CAMPUS. THE ABBY CIZIRR PHYSICIAN GRANT WAS ALSO AWARDED TO GIVE PHYSICIAN RECIPIENTS THE OPPORTUNITY TO FURTHER THEIR STUDIES ON VASCULAR BIRTHMARKS. THE WEBER FUND WAS ESTABLISHED TO HELP NEEDY FAMILIES PAY FOR TRAVEL EXPENSES IN CONNECTION TO KLIPPEL-TRENAUNAY SYNDROME.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt06500
IRS990/ProgSrvcAccomActy3Grp/GrantAmt03000
IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYContributionsGrantsAmt0525001
IRS990/PYExcessBenefitTransInd0false
IRS990/PYGrantsAndSimilarPaidAmt04000
IRS990/PYInvestmentIncomeAmt02641
IRS990/PymtTravelEntrtnmntPubOfclGrp/TotalAmt00
IRS990/PYOtherExpensesAmt0263386
IRS990/PYOtherRevenueAmt0-61
IRS990/PYProgramServiceRevenueAmt074608
IRS990/PYRevenuesLessExpensesAmt0173645
IRS990/PYSalariesCompEmpBnftPaidAmt0161158
IRS990/PYTotalExpensesAmt0428544
IRS990/PYTotalRevenueAmt0602189
IRS990/QuidProQuoContributionsInd0false
IRS990/RcvblFromDisqualifiedPrsnGrp/EOYAmt00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd0false
IRS990/ReceivablesFromOfficersEtcGrp/EOYAmt00

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2019 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$790,227
Liabilities
$11,311
Net assets
$778,916
Revenue
$298,459
Expenses
$435,493
Net income
-$137,034
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.13$0.01$1.12$0.59$0.60$0.01
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.13$0.01$1.12$0.60$0.59$0.01
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.10$0.01$1.10$0.56$0.49$0.07
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.06$0.01$1.05$0.62$0.43$0.19
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.91$0.05$0.86$0.40$0.32$0.08
2019Detailed filing. Detailed filing data is available for this year.$0.79$0.01$0.78$0.30$0.44$0.14
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.93$0.01$0.92$0.60$0.43$0.17
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.75$0.01$0.74$0.57$0.35$0.23
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.53$0.01$0.52$0.39$0.34$0.06
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.46$0.00$0.46$0.47$0.29$0.19
2014Detailed filing. Detailed filing data is available for this year.$0.48$0.20$0.27$0.24$0.23$0.01
2013XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.31$0.05$0.27$0.17$0.20$0.03
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.32$0.02$0.30$0.19
2011Summary only. Only limited summary data is available for this year.$0.19$0.00$0.19$0.18$0.14$0.04
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.15$0.00$0.15$0.17
Peer Organizations

Similar nonprofits based on the same Siviq industry and scale cohort. 2019 filings • 501(c)3 • $500k-$1M nonprofits