Liabilities / Assets
30th percentile
Higher debt load relative to assets than 30% of similar nonprofits.
EIN 16-1515227 • 501(c)3 • Latham, NY
Profile
Provide support and informational resources for individuals affected by hemangiomas, port wine stains and other vascular birthmarks and tumors, and sponsored relevant research
Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.
Liabilities / Assets
30th percentile
Higher debt load relative to assets than 30% of similar nonprofits.
Liabilities / Revenue
32nd percentile
Higher debt load relative to revenue than 32% of similar nonprofits.
Net Margin
34th percentile
Higher net margin than 34% of similar nonprofits.
Top Officer Pay
Score unavailable
No filing with officer rows is available for this organization yet.
Asset Growth
35th percentile
Faster asset growth than 35% of similar nonprofits.
Revenue Growth
31st percentile
Faster revenue growth than 31% of similar nonprofits.
Assets
Down$1,126,410
Down $7,600 (-0.7%) from 2023
Liabilities
Down$9,016
Down $1,154 (-11%) from 2023
Net Assets
Down$1,117,394
Down $6,446 (-0.6%) from 2023
Revenue
Down$586,808
Down $15,294 (-2.5%) from 2023
Expenses
Up$599,067
Up $9,411 (+1.6%) from 2023
Net Income
Down-$12,259
Down $24,705 (-198%) from 2023
Most recent year
2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.
Provide support and informational resources for individuals affected by hemangiomas, port wine stains and other vascular birthmarks and tumors, and sponsored relevant research
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $679,057 | $683,407 | ▲ $4,350 |
| Savings and Temporary Cash Investments | $262,767 | $235,795 | ▼ $26,972 |
| Investments in Publicly Traded Securities | $191,642 | $206,813 | ▲ $15,171 |
| Land, Buildings, and Equipment, Net | $544 | $395 | ▼ $149 |
| Accounts Receivable | - | $0 | - |
| Other Notes and Loans Receivable, Net | - | $0 | - |
| Pledges and Grants Receivable | - | $0 | - |
| Receivable From Disqualified Prsn | - | $0 | - |
| Receivables From Officers Etc | - | $0 | - |
| Investments Other Securities | - | $0 | - |
| Investments Program Related | - | $0 | - |
| Intangible Assets | - | $0 | - |
| Inventories for Sale or Use | - | $0 | - |
| Prepaid Expenses and Deferred Charges | - | $0 | - |
| Total Assets | $1,134,010 | $1,126,410 | ▼ $7,600 |
| Other Assets Total | - | $0 | - |
| Liabilities | |||
| Other Liabilities | $9,060 | $8,148 | ▼ $912 |
| Accounts Payable and Accrued Expenses | $1,110 | $868 | ▼ $242 |
| Total Liabilities | $10,170 | $9,016 | ▼ $1,154 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $1,119,350 | $1,113,404 | ▼ $5,946 |
| Net Assets With Donor Restrictions | $4,490 | $3,990 | ▼ $500 |
| Total Net Assets Fund Balance | $1,123,840 | $1,117,394 | ▼ $6,446 |
| Total Liabilities and Net Assets / Fund Balance | $1,134,010 | $1,126,410 | ▼ $7,600 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Other Land Buildings | $395 | $8,913 | $9,308 |
| Equipment | - | $1,888 | $1,888 |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Dr Linda Rozell-shannon | President & CEO | PT | $125,006 | $125,006 |
| Name | Title |
|---|---|
| Lauri Firstenberg | Chairman |
| Tritia Medrano | President |
| Samantha Drazin Lmhc | Vice Chair |
| Giacomo Colletti Md | Director |
| J Stuart Nelson Md Phd | Director |
| Michelle Sario | Director |
| Roy G Geronemus Md | Director |
| Sharon Israel | Parent Rep |
| Christine Shannon | Patient Advocat |
| Fred Siyufy | Patient Advocat |
| Genevieve Mailloux | Patient Advocat |
| Jessica Fagan Psyd | Patient Advocat |
| Melanie Carter | Patient Advocat |
| Melanie Mandonas Cfa | Patient Advocat |
| Carla Mannix | Patient Rep |
| Benita Singh | Secretary |
| Taylor Bonawitz | Treasurer |
| Line Item | Amount |
|---|---|
| Salaries, Compensation, and Employee Benefits | $343,203 |
| Other Expenses | $246,864 |
| Total Fundraising Expense | $85,379 |
| Grants and Similar Amounts Paid | $9,000 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $144,210 | $19,228 | $28,842 | $192,280 |
| Current Officers, Directors, Trustees, and Key Employees | $93,755 | $12,501 | $18,751 | $125,007 |
| Fees for Services Other | - | $71,087 | $23,494 | $94,581 |
| Conferences and Meetings | $35,126 | - | - | $35,126 |
| Payroll Taxes | $19,437 | $2,592 | $3,887 | $25,916 |
| Travel | $24,124 | - | $1,310 | $25,434 |
| Office Expenses | - | $9,222 | - | $9,222 |
| Grants to Domestic Individuals | $9,000 | - | - | $9,000 |
| All Other Expenses | $1,665 | $6,476 | - | $8,141 |
| Insurance | - | $4,541 | $710 | $5,251 |
| Other Expenses | $634 | $1,872 | $1,762 | $4,268 |
| Advertising | - | $1,321 | - | $1,321 |
| Depreciation Depletion | $104 | $22 | $23 | $149 |
| Total Functional Expenses | $358,855 | $154,833 | $85,379 | $599,067 |
| Line Item | Amount |
|---|---|
| Total Expenses per Audited Statements | $663,307 |
| Expenses per Audited Statements | $599,067 |
| Total Expenses per Form 990 | $599,067 |
| Expenses Not Reported on Form 990 | $64,240 |
| Line Item | Amount |
|---|---|
| Fundraising Gross Income | $200,447 |
| Fundraising Direct Expenses | $63,740 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Gala | $164,833 | $164,833 | $56,895 | $107,938 |
| Local Fundraising Events | $15,843 | $15,843 | $1,845 | $13,998 |
| Total Events | $200,447 | $200,447 | $63,740 | $136,707 |
| Line Item | Beginning | End | Change |
|---|---|---|---|
| Receivables from Disqualified Persons | - | $0 | - |
| Receivables from Officers, Directors, Trustees, and Key Employees | - | $0 | - |
| Liability | Amount |
|---|---|
| Credit Card Payable | $8,148 |
“Executive director will review prior to filing.”
“Compensation is reviewed and approved by compensation committee on an annual basis.”
“Compensation is reviewed and approved by compensation committee on an annual basis.”
“AVAILABLE UPON REQUEST”
“Income can be used for operations”
“SPECIAL EVENTS $64240”
“SPECIAL EVENTS $64240”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
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| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 1110 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 868 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 0 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | PROVIDE SUPPORT AND INFORMATIONAL RESOURCES FOR INDIVIDUALS AFFECTED BY HEMANGIOMAS, PORT WINE STAINS AND OTHER VASCULAR BIRTHMARKS AND TUMORS, AND SPONSORED RELEVANT RESEARCH |
| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 1321 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 1321 |
| IRS990/AllOtherContributionsAmt | 0 | 338081 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 6476 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 1665 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 8141 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/AuditCommitteeInd | 0 | false |
| IRS990/BackupWthldComplianceInd | 0 | true |
| IRS990/BenefitsToMembersGrp/TotalAmt | 0 | 0 |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | DR LINDA ROZELL-SHANNON |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 5183821977 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 2301 GREENS FARM RD |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | NISKAYUNA |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | NY |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 12309 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | false |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 679057 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 683407 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 18751 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 12501 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 93755 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 125007 |
| IRS990/CompDisqualPersonsGrp/TotalAmt | 0 | 0 |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | true |
| IRS990/CompensationProcessOtherInd | 0 | true |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 35126 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 35126 |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 345306 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 9000 |
| IRS990/CYInvestmentIncomeAmt | 0 | 36012 |
| IRS990/CYOtherExpensesAmt | 0 | 246864 |
| IRS990/CYOtherRevenueAmt | 0 | 136707 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 68783 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -12259 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 343203 |
| IRS990/CYTotalExpensesAmt | 0 | 599067 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 85379 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 586808 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/DepreciationDepletionGrp/FundraisingAmt | 0 | 23 |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 22 |
| IRS990/DepreciationDepletionGrp/ProgramServicesAmt | 0 | 104 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 149 |
| IRS990/Desc | 0 | PROVIDE SUPPORT AND INFORMATIONAL RESOURCES FOR INDIVIDUALS AFFECTED BY HEMANGIOMAS, PORT WINE STAINS AND OTHER VASCULAR BIRTHMARKS AND TUMORS, AND SPONSORED RELEVANT RESEARCH |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | true |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/DonorRestrictionNetAssetsGrp/BOYAmt | 0 | 4490 |
| IRS990/DonorRestrictionNetAssetsGrp/EOYAmt | 0 | 3990 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 6 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | true |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 315886 |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FederatedCampaignsAmt | 0 | 7225 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesLobbyingGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesManagementGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 23494 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 71087 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 94581 |
| IRS990/FeesForServicesProfFundraising/TotalAmt | 0 | 0 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt | 0 | 0 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form1098CFiledInd | 0 | false |
| IRS990/Form8282FiledCnt | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form8899Filedind | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 0 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 1 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 2 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 3 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 4 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 5 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 6 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 7 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 8 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 9 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 10 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 11 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 12 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 13 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 14 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 15 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 16 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 17 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 32.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 12 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 13 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 14 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 15 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 16 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 17 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 10 | X |
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| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 12 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 13 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 14 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 15 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 16 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 16 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 17 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | DR LINDA ROZELL-SHANNON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | TAYLOR BONAWITZ |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | JESSICA FAGAN PSYD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | J STUART NELSON MD PHD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | GENEVIEVE MAILLOUX |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | CHRISTINE SHANNON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | LAURI FIRSTENBERG |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | CARLA MANNIX |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | MICHELLE SARIO |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | ROY G GERONEMUS MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | GIACOMO COLLETTI MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | MELANIE CARTER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 12 | BENITA SINGH |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 13 | FRED SIYUFY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 14 | SAMANTHA DRAZIN LMHC |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 15 | MELANIE MANDONAS CFA |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 16 | TRITIA MEDRANO |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 17 | SHARON ISRAEL |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 125006 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 16 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 17 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 16 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 17 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | President & CEO |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | Treasurer |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | PATIENT ADVOCAT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | PATIENT ADVOCAT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | PATIENT ADVOCAT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | Chairman |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | PATIENT REP |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | PATIENT ADVOCAT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 12 | Secretary |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 13 | PATIENT ADVOCAT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 14 | VICE CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 15 | PATIENT ADVOCAT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 16 | President |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 17 | PARENT REP |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/FormationYr | 0 | 1994 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | true |
| IRS990/FundraisingActivitiesInd | 0 | true |
| IRS990/FundraisingDirectExpensesAmt | 0 | 63740 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 200447 |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 15 |
| IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt | 0 | 9000 |
| IRS990/GrantsToDomesticIndividualsGrp/TotalAmt | 0 | 9000 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 0 |
| IRS990/GrantsToIndividualsInd | 0 | true |
| IRS990/GrantsToOrganizationsInd | 0 | false |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 650548 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IncmFromInvestBondProceedsGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | true |
| IRS990/IndependentVotingMemberCnt | 0 | 15 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 1 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartIXInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 0 |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 710 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 4541 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 5251 |
| IRS990/IntangibleAssetsGrp/EOYAmt | 0 | 0 |
| IRS990/InterestGrp/TotalAmt | 0 | 0 |
| IRS990/InventoriesForSaleOrUseGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 30594 |
| IRS990/InvestmentIncomeGrp/RelatedOrExemptFuncIncomeAmt | 0 | 5418 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 36012 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentsProgramRelatedGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 191642 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 206813 |
| IRS990/IRPDocumentCnt | 0 | 6 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 10801 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 544 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 395 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 11196 |
| IRS990/LegalDomicileStateCd | 0 | NY |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | false |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | PROVIDE SUPPORT AND INFORMATIONAL RESOURCES FOR INDIVIDUALS AFFECTED BY HEMANGIOMAS, PORT WINE STAINS AND OTHER VASCULAR BIRTHMARKS AND TUMORS, AND SPONSORED RELEVANT RESEARCH |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 1123840 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 1117394 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | 6787 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 136707 |
| IRS990/NetIncomeFromGamingGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetRentalIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | 5813 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 1119350 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 1113404 |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OccupancyGrp/TotalAmt | 0 | 0 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 9222 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 9222 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/Desc | 0 | WEBSITE MAINTENANCE |
| IRS990/OtherExpensesGrp/Desc | 1 | INTERNET |
| IRS990/OtherExpensesGrp/Desc | 2 | BANK & CREDIT CARD FEES |
| IRS990/OtherExpensesGrp/Desc | 3 | Printing and Publications |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 6600 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 1762 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 6600 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 12429 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 2 | 6942 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 3 | 1872 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 30800 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 634 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 44000 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 12429 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 6942 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 4268 |
| IRS990/OtherLiabilitiesGrp/BOYAmt | 0 | 9060 |
| IRS990/OtherLiabilitiesGrp/EOYAmt | 0 | 8148 |
| IRS990/OtherRevenueTotalAmt | 0 | 0 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 28842 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 19228 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 144210 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 192280 |
| IRS990/OthNotesLoansReceivableNetGrp/EOYAmt | 0 | 0 |
| IRS990/OwnWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PaymentsToAffiliatesGrp/TotalAmt | 0 | 0 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 3887 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 2592 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 19437 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 25916 |
| IRS990/PensionPlanContributionsGrp/TotalAmt | 0 | 0 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 0 |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 0 |
| IRS990/PrincipalOfficerNm | 0 | DR LINDA ROZELL-SHANNON |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 0 | 900099 |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 1 | 900099 |
| IRS990/ProgramServiceRevenueGrp/Desc | 0 | CONFERENCE REGISTRATIONS |
| IRS990/ProgramServiceRevenueGrp/Desc | 1 | CONFERENCE SPONSORS |
| IRS990/ProgramServiceRevenueGrp/Desc | 2 | LIBRARY SUBS/REGS |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 8783 |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 1 | 60000 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 0 | 8783 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 1 | 60000 |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | TO EDUCATE THE PUBLIC ON VASCULAR BIRTHMARKS THROUGH THE ANNUAL CONFERENCE AND TO PROVIDE SERVICES TO GUESTS. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 33969 |
| IRS990/ProgSrvcAccomActy2Grp/RevenueAmt | 0 | 68783 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | AWARD SCHOLARSHIPS TO INDIVIDUALS WITH VASCULAR BIRTHMARKS WHO ARE PRODUCTIVE IN THEIR COMMUNITIES AND SCHOOLS AND WHO AGREE TO PROMOTE THE VBF ON CAMPUS. THE ABBY CIZIRR PHYSICIAN GRANT WAS ALSO AWARDED TO GIVE PHYSICIAN RECIPIENTS THE OPPORTUNITY TO FURTHER THEIR STUDIES ON VASCULAR BIRTHMARKS. THE WEBER FUND WAS ESTABLISHED TO HELP NEEDY FAMILIES PAY FOR TRAVEL EXPENSES IN CONNECTION TO KLIPPEL-TRENAUNAY SYNDROME. |
| IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt | 0 | 9000 |
| IRS990/ProgSrvcAccomActy3Grp/RevenueAmt | 0 | 5000 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 445159 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 5500 |
| IRS990/PYInvestmentIncomeAmt | 0 | 28991 |
| IRS990/PymtTravelEntrtnmntPubOfclGrp/TotalAmt | 0 | 0 |
| IRS990/PYOtherExpensesAmt | 0 | 255676 |
| IRS990/PYOtherRevenueAmt | 0 | 51364 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 76588 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 12446 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 328480 |
| IRS990/PYTotalExpensesAmt | 0 | 589656 |
| IRS990/PYTotalRevenueAmt | 0 | 602102 |
| IRS990/QuidProQuoContributionsInd | 0 | false |
| IRS990/RcvblFromDisqualifiedPrsnGrp/EOYAmt | 0 | 0 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | false |
| IRS990/ReceivablesFromOfficersEtcGrp/EOYAmt | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | -12259 |
| IRS990/RegularMonitoringEnfrcInd | 0 | false |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | false |
| IRS990/ReportLandBuildingEquipmentInd | 0 | true |
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