Civic Intelligence

Interstitial Cystitis Association of America Inc

990 • Fiscal year 2018 • EIN 13-3292137

Oct 01, 2017 to Sep 30, 2018 • Filed on Jun 21, 2019

7918 Jones Branch Drive No 300McLean, VA 22102

(703) 442-2070

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

60th percentile

0.08x

Higher debt load relative to assets than 60% of similar nonprofits.

2018 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2018

Liabilities / Revenue

50th percentile

0.03x

Higher debt load relative to revenue than 50% of similar nonprofits.

2018 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2018

Net Margin

64th percentile

9.9%

Higher net margin than 64% of similar nonprofits.

2018 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2018

Top Officer Pay

50th percentile

$0

Higher top officer pay than 50% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2018 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2018

Asset Growth

80th percentile

23%

Faster asset growth than 80% of similar nonprofits.

2018 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2017 to 2018

Revenue Growth

84th percentile

41%

Faster revenue growth than 84% of similar nonprofits.

2018 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2017 to 2018

Assets

Up

$327,851

Up $61,356 (+23%) from 2017

Net Assets

Up

$302,639

Up $128,514 (+74%) from 2017

Liabilities

Down

$25,212

Down $67,158 (-73%) from 2017

Revenue

Up

$770,504

Up $223,493 (+41%) from 2017

Expenses

Down

$694,190

Down $72,442 (-9.4%) from 2017

Net Income

Up

$76,314

Up $295,935 (+135%) from 2017

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.5M$1.0M$500K$0Assets 2010: $1,048,751Liabilities 2010: $75,121Net Assets 2010: $973,6302010Assets 2011: $1,136,666Liabilities 2011: $52,955Net Assets 2011: $1,083,7112011Assets 2012: $922,274Liabilities 2012: $20,988Net Assets 2012: $901,2862012Assets 2013: $828,731Liabilities 2013: $7,708Net Assets 2013: $821,0232013Assets 2014: $910,654Liabilities 2014: $43,987Net Assets 2014: $866,6672014Assets 2015: $717,915Liabilities 2015: $7,053Net Assets 2015: $710,8622015Assets 2016: $416,254Liabilities 2016: $22,508Net Assets 2016: $393,7462016Assets 2017: $266,495Liabilities 2017: $92,370Net Assets 2017: $174,1252017Assets 2018: $327,851Liabilities 2018: $25,212Net Assets 2018: $302,6392018Assets 2019: $225,225Liabilities 2019: $32,933Net Assets 2019: $192,2922019Assets 2020: $312,578Liabilities 2020: $34,058Net Assets 2020: $278,5202020Assets 2021: $352,600Liabilities 2021: $57,616Net Assets 2021: $294,9842021Assets 2022: $304,762Liabilities 2022: $33,361Net Assets 2022: $271,4012022Assets 2023: $315,917Liabilities 2023: $50,940Net Assets 2023: $264,9772023Assets 2024: $165,553Liabilities 2024: $47,121Net Assets 2024: $118,4322024

Highlighted filing

2018

Assets$327,851
Liabilities$25,212
Net Assets$302,639

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.5M$1.0M$500K$0-$500KExpenses 2010: $1,112,0672010Revenue 2011: $1,213,170Expenses 2011: $1,104,169Net Income 2011: $109,0012011Revenue 2012: $693,859Expenses 2012: $883,781Net Income 2012: -$189,9222012Revenue 2013: $1,071,493Expenses 2013: $1,121,436Net Income 2013: -$49,9432013Revenue 2014: $1,237,380Expenses 2014: $1,193,391Net Income 2014: $43,9892014Revenue 2015: $1,236,283Expenses 2015: $1,391,160Net Income 2015: -$154,8772015Revenue 2016: $480,955Expenses 2016: $797,361Net Income 2016: -$316,4062016Revenue 2017: $547,011Expenses 2017: $766,632Net Income 2017: -$219,6212017Revenue 2018: $770,504Expenses 2018: $694,190Net Income 2018: $76,3142018Revenue 2019: $632,190Expenses 2019: $742,537Net Income 2019: -$110,3472019Revenue 2020: $780,198Expenses 2020: $696,585Net Income 2020: $83,6132020Revenue 2021: $745,097Expenses 2021: $709,663Net Income 2021: $35,4342021Revenue 2022: $604,676Expenses 2022: $629,962Net Income 2022: -$25,2862022Revenue 2023: $647,913Expenses 2023: $648,895Net Income 2023: -$9822023Revenue 2024: $486,964Expenses 2024: $633,847Net Income 2024: -$146,8832024

Highlighted filing

2018

Revenue$770,504
Expenses$694,190
Net Income$76,314
Jump To
Filing Snapshot
Filing Period
Oct 1, 2017 to Sep 30, 2018
Signed
Jun 21, 2019
Return Version
2017v2.3
Gross Receipts
$775,284
Mission and Program Overview

Mission

The ICA provides advocacy, research funding, and education to ensure early diagnosis and optimal care with dignity for people affected by IC.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$88,878$285,557▲ $196,679
Savings and Temporary Cash Investments$163,178$33,814▼ $129,364
Land, Buildings, and Equipment, Net$9,192$0▼ $9,192
Prepaid Expenses and Deferred Charges$1,461$3,229▲ $1,768
Accounts Receivable$772$3,047▲ $2,275
Inventories for Sale or Use$3,014$2,204▼ $810
Total Assets$266,495$327,851▲ $61,356
Liabilities
Grants Payable$50,000--
Accounts Payable and Accrued Expenses$42,370$25,212▼ $17,158
Total Liabilities$92,370$25,212▼ $67,158
Net Assets / Fund Balance
Unrestricted Net Assets$109,972$235,342▲ $125,370
Temporarily Rstr Net Assets$64,153$67,297▲ $3,144
Total Net Assets Fund Balance$174,125$302,639▲ $128,514
Total Liabilities and Net Assets / Fund Balance$266,495$327,851▲ $61,356
Compensation and Service Providers

Board Members and Trustees

NameTitle
Irma RodriguezChair
Tony TylerPast Chair
Michael GreenwellVice Chair
Abigail JenkinsDirector
Jane ElstenDirector
JoEllen ParsonsDirector
Laura SanturriDirector
Mark VickeryDirector
Michael HsiehDirector
Nicole CozeanDirector
Paula MaxwellDirector
Robert MoldwinDirector
Lee LoweryExecutive Director
Richard LufkinTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Mci USAManagement services7918 Jones Branch Drive 300, McLean, VA 22102$458,231
Revenue and Support

Revenue Composition

Contributions and Grants
$700,053
Program Service Revenue
$66,450
Investment Income
$682
Other Revenue
$3,319
All Other Contributions
$574,608
Change in Net Assets
$76,314

Audited Revenue Reconciliation

Revenue per Audited Statements
$770,504
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$10,066
Total Revenue per Audited Statements
$780,570
Total Revenue per Form 990
$770,504
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$694,190
Total Fundraising Expense$111,032
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Fees for Services Management$335,908$11,700$38,623$386,231
Fees for Services Other$79,202-$748$79,950
Fees for Services Lobbying$52,835--$52,835
Information Technology$16,982$12,521$17,229$46,732
Office Expenses$4,092$9,741$21,205$35,038
Travel$4,799$5,862$4,683$15,344
Advertising$13,077--$13,077
Fees for Services Accounting-$11,036-$11,036
Depreciation Depletion-$9,192-$9,192
Conferences and Meetings--$8,890$8,890
Insurance-$2,053-$2,053
Other Expenses$12,795$107$1,100$1,207
Total Functional Expenses$519,690$63,468$111,032$694,190

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$695,244
Expenses per Audited Statements$694,190
Total Expenses per Form 990$694,190
Expenses Not Reported on Form 990$1,054
Expenses Not Reported on Financial Statements$0
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
Yes

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$3,726
Fundraising Gross Income$1,396
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Walk for an IC Cure$22,812$1,396$1,686$-290
Total Events$22,812$1,396$3,726$-2,330
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
Yes

Governance Explanations

Form 990, Part VI, Section A, line 3

The Association has an agreement with MCI USA, under which MCI USA provides management services and headquarters space to the Association. Management fees totaled $371,376 for the year ended September 30, 2018. The Association's Executive Director is an employee of and was compensated by MCI USA.

Form 990, Part VI, Section B, line 11B

The Executive Director reviews the Form 990 and presents it to the Treasurer and the entire Board for review before it is signed and filed.

Form 990, Part VI, Section B, line 12C

Each December the ICA sends reminders to members of the Board (in writing) about the conflict of interest policy. The reminder is sent along with a standard disclosure form. Board members are asked to list conflicts of interest, date and sign the form and return it to the ICA office for filing.

Form 990, Part VI, Section C, line 19

The ICA makes financial statements available to the public on the ICA website (www.ICHELP.org) as a downloadable PDF. A limited number of copies are also available in printed format. The ICA makes the conflict of interest policy and financial statements available to standard of excellence organizations and funders, as required. Requests by others are determined on an individual basis by the executive director who consults with the board of directors, as needed, on such decisions.

Filing and Contact Details

Filer

Filer Name
Interstitial Cystitis Association
EIN
13-3292137
Phone
7034422070
Address
7918 Jones Branch Drive No 300, McLean, VA 22102
Doing Business As
Interstitial Cystitis Association

Signing Officer

Name
Lee K Lowery
Title
Executive Director
Phone
7034422070
Signed
2019-06-21
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Lee K Lowery
Formed
1984
Legal Domicile
Ny
Voting Board Members
13
Independent Board Members
13
Employees
0
Volunteers
20

Preparer

Firm
Rogers & Company PLLC
Address
8300 Boone Boulevard Suite 600, Vienna, VA 22182
Preparer
Jie Chen CPA
Phone
7038930300
Supplemental Narrative

Additional Explanations

Form 990, Part IX, line 11G

Creative services: Program service expenses 60,000. Management and general expenses 0. Fundraising expenses 0. Total expenses 60,000. Graphic Artist: Program service expenses 12,000. Management and general expenses 0. Fundraising expenses 748. Total expenses 12,748. Other: Program service expenses 7,202. Management and general expenses 0. Fundraising expenses 0. Total expenses 7,202.

Form 990, Part XI, line 9:

Fundraising Expense 3,726.

Form 990, Part XII, line 2C:

No change from prior year.

Financial Statement Notes

Part X, Line 2:

Management has evaluated the ICA's tax positions and has concluded that the ICA has taken no uncertain tax positions that qualify for either recognition or disclosure in the accompanying financial statements.

Part XI, Line 2D - Other Adjustments:

Cost of goods sold 1,054. Fundraising Expense 3,726.

Part XII, Line 2D - Other Adjustments:

Cost of goods sold 1,054.

Raw XML AppendixShowing 400 of 567 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd00
IRS990/AccountsPayableAccrExpnssGrp/BOYAmt042370
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt025212
IRS990/AccountsReceivableGrp/BOYAmt0772
IRS990/AccountsReceivableGrp/EOYAmt03047
IRS990/ActivitiesConductedPrtshpInd00
IRS990/ActivityOrMissionDesc0The ICA provides advocacy, research funding, and education to ensure early diagnosis and optimal care with dignity for people affected by IC.
IRS990/AdvertisingGrp/ProgramServicesAmt013077
IRS990/AdvertisingGrp/TotalAmt013077
IRS990/AllOtherContributionsAmt0574608
IRS990/AnnualDisclosureCoveredPrsnInd01
IRS990/AuditCommitteeInd01
IRS990/BackupWthldComplianceInd01
IRS990/BooksInCareOfDetail/PersonNm0Lee K Lowery
IRS990/BooksInCareOfDetail/PhoneNum07034422070
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt07918 Jones Branch Drive Suite 300
IRS990/BooksInCareOfDetail/USAddress/CityNm0McLean
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0VA
IRS990/BooksInCareOfDetail/USAddress/ZIPCd022102
IRS990/BusinessRlnWithFamMemInd00
IRS990/BusinessRlnWithOfficerEntInd00
IRS990/BusinessRlnWithOrgMemInd00
IRS990/CashNonInterestBearingGrp/BOYAmt088878
IRS990/CashNonInterestBearingGrp/EOYAmt0285557
IRS990/ChangeToOrgDocumentsInd00
IRS990/CntrctRcvdGreaterThan100KCnt01
IRS990/CollectionsOfArtInd00
IRS990/CompensationFromOtherSrcsInd00
IRS990/CompensationProcessCEOInd00
IRS990/CompensationProcessOtherInd00
IRS990/ConferencesMeetingsGrp/FundraisingAmt08890
IRS990/ConferencesMeetingsGrp/TotalAmt08890
IRS990/ConflictOfInterestPolicyInd01
IRS990/ConservationEasementsInd00
IRS990/ConsolidatedAuditFinclStmtInd00
IRS990/ContractorCompensationGrp/CompensationAmt0458231
IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt07918 Jones Branch Drive 300
IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm0McLean
IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd0VA
IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd022102
IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt0MCI USA
IRS990/ContractorCompensationGrp/ServicesDesc0Management services
IRS990/ContriRptFundraisingEventAmt021416
IRS990/CostOfGoodsSoldAmt01054
IRS990/CreditCounselingInd00
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt0700053
IRS990/CYGrantsAndSimilarPaidAmt00
IRS990/CYInvestmentIncomeAmt0682
IRS990/CYOtherExpensesAmt0694190
IRS990/CYOtherRevenueAmt03319
IRS990/CYProgramServiceRevenueAmt066450
IRS990/CYRevenuesLessExpensesAmt076314
IRS990/CYSalariesCompEmpBnftPaidAmt00
IRS990/CYTotalExpensesAmt0694190
IRS990/CYTotalFundraisingExpenseAmt0111032
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt0770504
IRS990/DecisionsSubjectToApprovaInd00
IRS990/DeductibleArtContributionInd00
IRS990/DeductibleNonCashContriInd00
IRS990/DelegationOfMgmtDutiesInd01
IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt09192
IRS990/DepreciationDepletionGrp/TotalAmt09192
IRS990/Desc0Education: The ICA delivers critical health information and support to patients, caregivers, healthcare providers, researchers and the public. Programs include medical education programs for healthcare providers; seminars about IC for patients, family members and the public; interactive services that teach IC patients self-care strategies; educational resources, e.g. the ICA Update Magazine and weekly ICA eNews. The ICA collaborates with the Centers for Disease Control and Prevention (CDC) on IC awareness programs.
IRS990/DescribedInSection501c3Ind01
IRS990/DisregardedEntityInd00
IRS990/DocumentRetentionPolicyInd01
IRS990/DoingBusinessAsName/BusinessNameLine1Txt0Interstitial Cystitis Association
IRS990/DonatedServicesAndUseFcltsAmt05286
IRS990/DonorAdvisedFundInd00
IRS990/ElectionOfBoardMembersInd00
IRS990/EmployeeCnt00
IRS990/EngagedInExcessBenefitTransInd00
IRS990/ExpenseAmt0249354
IRS990/FamilyOrBusinessRlnInd00
IRS990/FederalGrantAuditRequiredInd00
IRS990/FederatedCampaignsAmt04029
IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt011036
IRS990/FeesForServicesAccountingGrp/TotalAmt011036
IRS990/FeesForServicesLobbyingGrp/ProgramServicesAmt052835
IRS990/FeesForServicesLobbyingGrp/TotalAmt052835
IRS990/FeesForServicesManagementGrp/FundraisingAmt038623
IRS990/FeesForServicesManagementGrp/ManagementAndGeneralAmt011700
IRS990/FeesForServicesManagementGrp/ProgramServicesAmt0335908
IRS990/FeesForServicesManagementGrp/TotalAmt0386231
IRS990/FeesForServicesOtherGrp/FundraisingAmt0748
IRS990/FeesForServicesOtherGrp/ProgramServicesAmt079202
IRS990/FeesForServicesOtherGrp/TotalAmt079950
IRS990/ForeignActivitiesInd00
IRS990/ForeignFinancialAccountInd00
IRS990/ForeignOfficeInd00
IRS990/Form8282PropertyDisposedOfInd00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt02.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt12.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt21.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt31.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt41.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt51.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt61.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt71.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt81.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt91.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt101.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt111.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt121.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1310.00
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd8X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd9X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd10X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd11X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd12X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OfficerInd4X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
IRS990/Form990PartVIISectionAGrp/PersonNm0Irma Rodriguez
IRS990/Form990PartVIISectionAGrp/PersonNm1Michael Greenwell
IRS990/Form990PartVIISectionAGrp/PersonNm2Richard Lufkin
IRS990/Form990PartVIISectionAGrp/PersonNm3Tony Tyler
IRS990/Form990PartVIISectionAGrp/PersonNm4Paula Maxwell
IRS990/Form990PartVIISectionAGrp/PersonNm5JoEllen Parsons
IRS990/Form990PartVIISectionAGrp/PersonNm6Nicole Cozean
IRS990/Form990PartVIISectionAGrp/PersonNm7Jane Elsten
IRS990/Form990PartVIISectionAGrp/PersonNm8Michael Hsieh
IRS990/Form990PartVIISectionAGrp/PersonNm9Abigail Jenkins
IRS990/Form990PartVIISectionAGrp/PersonNm10Robert Moldwin
IRS990/Form990PartVIISectionAGrp/PersonNm11Laura Santurri
IRS990/Form990PartVIISectionAGrp/PersonNm12Mark Vickery
IRS990/Form990PartVIISectionAGrp/PersonNm13Lee Lowery
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/TitleTxt0Chair
IRS990/Form990PartVIISectionAGrp/TitleTxt1Vice Chair
IRS990/Form990PartVIISectionAGrp/TitleTxt2Treasurer
IRS990/Form990PartVIISectionAGrp/TitleTxt3Past Chair
IRS990/Form990PartVIISectionAGrp/TitleTxt4Director
IRS990/Form990PartVIISectionAGrp/TitleTxt5Director
IRS990/Form990PartVIISectionAGrp/TitleTxt6Director
IRS990/Form990PartVIISectionAGrp/TitleTxt7Director
IRS990/Form990PartVIISectionAGrp/TitleTxt8Director
IRS990/Form990PartVIISectionAGrp/TitleTxt9Director
IRS990/Form990PartVIISectionAGrp/TitleTxt10Director
IRS990/Form990PartVIISectionAGrp/TitleTxt11Director
IRS990/Form990PartVIISectionAGrp/TitleTxt12Director
IRS990/Form990PartVIISectionAGrp/TitleTxt13Executive Director
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr01984
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt021416
IRS990/FundraisingDirectExpensesAmt03726
IRS990/FundraisingGrossIncomeAmt01396
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt013
IRS990/GovernmentGrantsAmt0100000
IRS990/GrantsPayableGrp/BOYAmt050000
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd00
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt0775284
IRS990/GrossSalesOfInventoryAmt06703
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt013
IRS990/IndivRcvdGreaterThan100KCnt00
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartIXInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InfoInScheduleOPartXIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt017229
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt012521
IRS990/InformationTechnologyGrp/ProgramServicesAmt016982
IRS990/InformationTechnologyGrp/TotalAmt046732
IRS990/InsuranceGrp/ManagementAndGeneralAmt02053
IRS990/InsuranceGrp/TotalAmt02053
IRS990/InventoriesForSaleOrUseGrp/BOYAmt03014
IRS990/InventoriesForSaleOrUseGrp/EOYAmt02204
IRS990/InvestmentIncomeGrp/ExclusionAmt0682
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt0682
IRS990/InvestmentInJointVentureInd00
IRS990/IRPDocumentCnt02
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt00
IRS990/LandBldgEquipBasisNetGrp/BOYAmt09192
IRS990/LandBldgEquipBasisNetGrp/EOYAmt00
IRS990/LandBldgEquipCostOrOtherBssAmt00
IRS990/LegalDomicileStateCd0NY
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd01
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0The ICA provides advocacy, research funding, and education to ensure early diagnosis and optimal care with dignity for people affected by IC.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt0174125
IRS990/NetAssetsOrFundBalancesEOYAmt0302639
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0-2330
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0-2330
IRS990/NetIncomeOrLossGrp/RelatedOrExemptFuncIncomeAmt05649
IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt05649
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NoListedPersonsCompensatedInd0X
IRS990/NoncashContributionsAmt01197
IRS990/NondeductibleContributionsInd00
IRS990/OfficeExpensesGrp/FundraisingAmt021205
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt09741
IRS990/OfficeExpensesGrp/ProgramServicesAmt04092
IRS990/OfficeExpensesGrp/TotalAmt035038
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OtherChangesInNetAssetsAmt03726
IRS990/OtherExpensesGrp/Desc0Printing and reproducti
IRS990/OtherExpensesGrp/Desc1Registration fees/taxes
IRS990/OtherExpensesGrp/Desc2Miscellaneous
IRS990/OtherExpensesGrp/FundraisingAmt010763
IRS990/OtherExpensesGrp/FundraisingAmt17791
IRS990/OtherExpensesGrp/FundraisingAmt21100
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt01256
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt1107
IRS990/OtherExpensesGrp/ProgramServicesAmt012795
IRS990/OtherExpensesGrp/TotalAmt024814
IRS990/OtherExpensesGrp/TotalAmt17791
IRS990/OtherExpensesGrp/TotalAmt21207
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt01461
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt03229
IRS990/PrincipalOfficerNm0Lee K Lowery
IRS990/PriorPeriodAdjustmentsAmt043188
IRS990/ProfessionalFundraisingInd01
IRS990/ProgramServiceRevenueGrp/BusinessCd0900099
IRS990/ProgramServiceRevenueGrp/BusinessCd1900099
IRS990/ProgramServiceRevenueGrp/Desc0Media campaign
IRS990/ProgramServiceRevenueGrp/Desc1Industry publications
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt046450
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt120000
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt046450
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt120000
IRS990/ProgSrvcAccomActy2Grp/Desc0Advocacy: The disabling pain, urgency and frequency of interstitial cystitis (IC) stays with patients for their lifetime. The ICA raises awareness among legislators and key decision makers about the need for expanded research funding to find a cure and healthcare options to address the special needs of IC patients.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0131713
IRS990/ProgSrvcAccomActy3Grp/Desc0Research: Each IC diagnosis means a new fight for someone's spouse, parent, child or friend. There is no cure for IC. Through the "Imagine No IC" Pilot Research program, the ICA funds preliminary research, allowing scientists to gather data required to obtain larger grants for further exploration of the cause, better treatments, and ultimately a cure. Our team tracks IC research and disseminates findings across media platforms. ICA leadership also serve on government and industry research advisory committees.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt038623
IRS990/ProgSrvcAccomActyOtherGrp/Desc0CDC/Cedars-Sinai sub-grant
IRS990/ProgSrvcAccomActyOtherGrp/ExpenseAmt0100000
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt0493119
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt075000
IRS990/PYInvestmentIncomeAmt0758
IRS990/PYOtherExpensesAmt0691632
IRS990/PYOtherRevenueAmt03483
IRS990/PYProgramServiceRevenueAmt049651
IRS990/PYRevenuesLessExpensesAmt0-219621
IRS990/PYSalariesCompEmpBnftPaidAmt00
IRS990/PYTotalExpensesAmt0766632
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt0547011
IRS990/QuidProQuoContributionsInd00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt076314
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd00
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990/RevenueAmt072099
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0163178
IRS990/SavingsAndTempCashInvstGrp/EOYAmt033814
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt0700053
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0493119
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0427656
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt01096490
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0975137
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt03692455
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt0682
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt0758
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt0291
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt0168
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt04449
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt06348
IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt0583795
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus3YearsAmt01410
IRS990ScheduleA/OtherIncome170Grp/TotalAmt01410
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.97410
IRS990ScheduleA/PublicSupportPY170Pct00.98400
IRS990ScheduleA/PublicSupportTotal170Amt03604350
IRS990ScheduleA/SubstantialContributorsTotAmt088105
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt0700053
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0493119
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0427656
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt01096490
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0975137
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt03692455
IRS990ScheduleA/TotalSupportAmt03700213
IRS990/ScheduleBRequiredInd01
IRS990ScheduleC/DirectContactLegislatorsAmt0139438
IRS990ScheduleC/DirectContactLegislatorsInd01
IRS990ScheduleC/GrantsOtherOrganizationsInd00
IRS990ScheduleC/MailingsMembersInd00
IRS990ScheduleC/MediaAdvertisementsInd00
IRS990ScheduleC/NotDescribedSection501c3Ind00
IRS990ScheduleC/OtherActivitiesInd00
IRS990ScheduleC/PaidStaffOrManagementInd01
IRS990ScheduleC/PublicationsOrBroadcastInd00
IRS990ScheduleC/RalliesDemonstrationsInd00
IRS990ScheduleC/SupplementalInformationDetail/ExplanationTxt0The ICA works with congressmen and women educating them about interstitial cystitis, advocating for federal research funding for IC, and promoting legislative policies important to the concerns of interstitial cystitis patients, healthcare providers, and researchers.
IRS990ScheduleC/SupplementalInformationDetail/FormAndLineReferenceDesc0Part II-B, Line 1:
IRS990ScheduleC/TotalLobbyingExpendituresAmt0139438
IRS990ScheduleC/VolunteersInd00
IRS990ScheduleD/DonatedServicesAndUseFcltsAmt05286
IRS990ScheduleD/ExpensesNotReportedAmt01054
IRS990ScheduleD/ExpensesNotRptFinclStmtAmt00
IRS990ScheduleD/ExpensesSubtotalAmt0694190
IRS990ScheduleD/FootnoteTextInd0X
IRS990ScheduleD/OtherExpensesIncludedAmt01054
IRS990ScheduleD/OtherRevenueAmt04780
IRS990ScheduleD/RevenueNotReportedAmt010066
IRS990ScheduleD/RevenueNotReportedFinclStmtAmt00
IRS990ScheduleD/RevenueSubtotalAmt0770504
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0Management has evaluated the ICA's tax positions and has concluded that the ICA has taken no uncertain tax positions that qualify for either recognition or disclosure in the accompanying financial statements.
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt1Cost of goods sold 1,054. Fundraising Expense 3,726.
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt2Cost of goods sold 1,054.
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0Part X, Line 2:
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc1Part XI, Line 2d - Other Adjustments:
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc2Part XII, Line 2d - Other Adjustments:
IRS990ScheduleD/TotalBookValueLandBuildingsAmt00
IRS990ScheduleD/TotalExpensesPerForm990Amt0694190
IRS990ScheduleD/TotalRevenuePerForm990Amt0770504
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt0780570
IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt0695244
IRS990ScheduleG/AgrmtProfFundraisingActyInd00

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$0.17$0.05$0.12$0.49$0.63$0.15
2023Detailed filing. Detailed filing data is available for this year.$0.32$0.05$0.26$0.65$0.65$0.00
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.30$0.03$0.27$0.60$0.63$0.03
2021Detailed filing. Detailed filing data is available for this year.$0.35$0.06$0.29$0.75$0.71$0.04
2020Detailed filing. Detailed filing data is available for this year.$0.31$0.03$0.28$0.78$0.70$0.08
2019Detailed filing. Detailed filing data is available for this year.$0.23$0.03$0.19$0.63$0.74$0.11
2018Detailed filing. Detailed filing data is available for this year.$0.33$0.03$0.30$0.77$0.69$0.08
2017Detailed filing. Detailed filing data is available for this year.$0.27$0.09$0.17$0.55$0.77$0.22
2016Detailed filing. Detailed filing data is available for this year.$0.42$0.02$0.39$0.48$0.80$0.32
2015Detailed filing. Detailed filing data is available for this year.$0.72$0.01$0.71$1.24$1.39$0.15
2014Detailed filing. Detailed filing data is available for this year.$0.91$0.04$0.87$1.24$1.19$0.04
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.83$0.01$0.82$1.07$1.12$0.05
2012Summary only. Only limited summary data is available for this year.$0.92$0.02$0.90$0.69$0.88$0.19
2011Summary only. Only limited summary data is available for this year.$1.14$0.05$1.08$1.21$1.10$0.11
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.05$0.08$0.97$1.11
Peer Organizations

Similar nonprofits based on the same Siviq industry and scale cohort. 2018 filings • 501(c)3 • $500k-$1M nonprofits