Civic Intelligence

Interstitial Cystitis Association of America Inc

990 • Fiscal year 2017 • EIN 13-3292137

Oct 01, 2016 to Sep 30, 2017 • Filed on Aug 06, 2018

Organization Profilewww.ichelp.org

View Organization Page

7918 Jones Branch Drive No 300McLean, VA 22102

(703) 442-2070

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

79th percentile

0.35x

Higher debt load relative to assets than 79% of similar nonprofits.

2017 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2017

Liabilities / Revenue

73rd percentile

0.17x

Higher debt load relative to revenue than 73% of similar nonprofits.

2017 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2017

Net Margin

7th percentile

-40%

Higher net margin than 7% of similar nonprofits.

2017 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2017

Top Officer Pay

49th percentile

$0

Higher top officer pay than 49% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2017 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2017

Asset Growth

4th percentile

-36%

Faster asset growth than 4% of similar nonprofits.

2017 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2016 to 2017

Revenue Growth

65th percentile

14%

Faster revenue growth than 65% of similar nonprofits.

2017 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2016 to 2017

Balance Sheet
Liabilities / Assets79th percentile

Assets

Down

$266,495

Down $149,759 (-36%) from 2016

Net Assets

Down

$174,125

Down $219,621 (-56%) from 2016

Liabilities

Up

$92,370

Up $69,862 (+310%) from 2016

Revenue And Expenses
Liabilities / Revenue73rd percentileNet Margin7th percentile

Revenue

Up

$547,011

Up $66,056 (+14%) from 2016

Expenses

Down

$766,632

Down $30,729 (-3.9%) from 2016

Net Income

Up

-$219,621

Up $96,785 (+31%) from 2016

Historical Trend

Balance Sheet Trend

Asset Growth4th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.5M$1.0M$500K$0Assets 2010: $1,048,751Liabilities 2010: $75,121Net Assets 2010: $973,6302010Assets 2011: $1,136,666Liabilities 2011: $52,955Net Assets 2011: $1,083,7112011Assets 2012: $922,274Liabilities 2012: $20,988Net Assets 2012: $901,2862012Assets 2013: $828,731Liabilities 2013: $7,708Net Assets 2013: $821,0232013Assets 2014: $910,654Liabilities 2014: $43,987Net Assets 2014: $866,6672014Assets 2015: $717,915Liabilities 2015: $7,053Net Assets 2015: $710,8622015Assets 2016: $416,254Liabilities 2016: $22,508Net Assets 2016: $393,7462016Assets 2017: $266,495Liabilities 2017: $92,370Net Assets 2017: $174,1252017Assets 2018: $327,851Liabilities 2018: $25,212Net Assets 2018: $302,6392018Assets 2019: $225,225Liabilities 2019: $32,933Net Assets 2019: $192,2922019Assets 2020: $312,578Liabilities 2020: $34,058Net Assets 2020: $278,5202020Assets 2021: $352,600Liabilities 2021: $57,616Net Assets 2021: $294,9842021Assets 2022: $304,762Liabilities 2022: $33,361Net Assets 2022: $271,4012022Assets 2023: $315,917Liabilities 2023: $50,940Net Assets 2023: $264,9772023Assets 2024: $165,553Liabilities 2024: $47,121Net Assets 2024: $118,4322024

Highlighted filing

2017

Assets$266,495
Liabilities$92,370
Net Assets$174,125
Open 2017 Filing

Operations Trend

Revenue Growth65th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.5M$1.0M$500K$0-$500KExpenses 2010: $1,112,0672010Revenue 2011: $1,213,170Expenses 2011: $1,104,169Net Income 2011: $109,0012011Revenue 2012: $693,859Expenses 2012: $883,781Net Income 2012: -$189,9222012Revenue 2013: $1,071,493Expenses 2013: $1,121,436Net Income 2013: -$49,9432013Revenue 2014: $1,237,380Expenses 2014: $1,193,391Net Income 2014: $43,9892014Revenue 2015: $1,236,283Expenses 2015: $1,391,160Net Income 2015: -$154,8772015Revenue 2016: $480,955Expenses 2016: $797,361Net Income 2016: -$316,4062016Revenue 2017: $547,011Expenses 2017: $766,632Net Income 2017: -$219,6212017Revenue 2018: $770,504Expenses 2018: $694,190Net Income 2018: $76,3142018Revenue 2019: $632,190Expenses 2019: $742,537Net Income 2019: -$110,3472019Revenue 2020: $780,198Expenses 2020: $696,585Net Income 2020: $83,6132020Revenue 2021: $745,097Expenses 2021: $709,663Net Income 2021: $35,4342021Revenue 2022: $604,676Expenses 2022: $629,962Net Income 2022: -$25,2862022Revenue 2023: $647,913Expenses 2023: $648,895Net Income 2023: -$9822023Revenue 2024: $486,964Expenses 2024: $633,847Net Income 2024: -$146,8832024

Highlighted filing

2017

Revenue$547,011
Expenses$766,632
Net Income-$219,621
Open 2017 Filing
Jump To
Filing Snapshot
Filing Period
Oct 1, 2016 to Sep 30, 2017
Signed
Aug 6, 2018
Return Version
2016v3.0
Gross Receipts
$550,507
Mission and Program Overview

Mission

The ICA provides advocacy, research funding, and education to ensure early diagnosis and optimal care with dignity for people affected by IC.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$153,260$163,178▲ $9,918
Cash and Non-Interest-Bearing Accounts$206,226$88,878▼ $117,348
Land, Buildings, and Equipment, Net$21,451$9,192▼ $12,259
Inventories for Sale or Use$4,282$3,014▼ $1,268
Prepaid Expenses and Deferred Charges$24,362$1,461▼ $22,901
Accounts Receivable$6,673$772▼ $5,901
Total Assets$416,254$266,495▼ $149,759
Liabilities
Grants Payable-$50,000-
Accounts Payable and Accrued Expenses$22,508$42,370▲ $19,862
Total Liabilities$22,508$92,370▲ $69,862
Net Assets / Fund Balance
Unrestricted Net Assets$254,323$109,972▼ $144,351
Temporarily Rstr Net Assets$139,423$64,153▼ $75,270
Total Net Assets Fund Balance$393,746$174,125▼ $219,621
Total Liabilities and Net Assets / Fund Balance$416,254$266,495▼ $149,759

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$9,192$105,370$114,562
Compensation and Service Providers
Top Officer Pay49th percentile

Board Members and Trustees

NameTitle
Tony TylerChair
Barbara ZarnikowPast Chair
Eric ZarnikowPast Chair
Irma RodriguezVice Chair
Dan Vickery PhDDirector
Gina BarbarottoDirector
Jane Elsten MDDirector
JoEllen ParsonsDirector
Laura Santurri PhDDirector
Michael GreenwellDirector
Nicole CozeanDirector
Paula MaxwellDirector
Robert Moldwin MDDirector
Lee K LoweryExecutive Director
Richard C LufkinTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Mci USAManagement services7918 Jones Branch Drive 300, McLean, VA 22102$377,699
Revenue and Support

Revenue Composition

Contributions and Grants
$493,119
Program Service Revenue
$49,651
Investment Income
$758
Other Revenue
$3,483
All Other Contributions
$415,183
Change in Net Assets
$-219,621

Audited Revenue Reconciliation

Revenue per Audited Statements
$547,011
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$3,496
Total Revenue per Audited Statements
$550,507
Total Revenue per Form 990
$547,011
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$691,632
Total Fundraising Expense$137,052
Grants and Similar Amounts Paid$75,000
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Fees for Services Management$321,045$18,883$37,770$377,698
Fees for Services Other$98,228-$523$98,751
Grants to Domestic Orgs$75,000--$75,000
Information Technology$3,939$1,726$60,923$66,588
Fees for Services Lobbying$53,256--$53,256
Office Expenses$15,647$9,868$23,812$49,327
Depreciation Depletion-$12,259-$12,259
Fees for Services Accounting-$10,636-$10,636
Travel$2,604$1,495$3,401$7,500
Other Expenses-$2,526$2,670$5,196
Insurance-$2,168-$2,168
Conferences and Meetings$300--$300
Total Functional Expenses$570,019$59,561$137,052$766,632

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$770,128
Expenses per Audited Statements$766,632
Total Expenses per Form 990$766,632
Expenses Not Reported on Form 990$3,496
Expenses Not Reported on Financial Statements$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
University of PittsburghPittsburgh, PA501(c)(3)Research grant$25,000
University of UtahSalt Lake City, UT501(c)(3)Research grant$25,000
Wake Forest University Health SciencesWinston Salem, NC501(c)(3)Research grant$12,500
Cedars Sinai Medical CenterLos Angeles, CA501(c)(3)Research grant$9,202
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
Yes

Governance Explanations

Form 990, Part VI, Section A, line 2

“Barbara & Eric Zarnikow are spouses and Past Co-Chairs of the Board of Directors; they share one vote.”

Form 990, Part VI, Section A, line 3

“The Association has an agreement with MCI USA, under which MCI USA provides management services and headquarters space to the Association. Management fees totaled $377,698 for the year ended September 30, 2017. The Association's Executive Director is an employee of and was compensated by MCI USA.”

Form 990, Part VI, Section B, line 11B

“The Executive Director reviews the Form 990 and presents it to the Treasurer and the entire Board for review before it is signed and filed.”

Form 990, Part VI, Section B, line 12C

“Each December the ICA sends reminders to members of the Board (in writing) about the conflict of interest policy. The reminder is sent along with a standard disclosure form. Board members are asked to list conflicts of interest, date and sign the form and return it to the ICA office for filing.”

Form 990, Part VI, Section C, line 19

“The ICA makes financial statements available to the public on the ICA website (www.ICHELP.org) as a downloadable PDF. A limited number of copies are also available in printed format. The ICA makes the conflict of interest policy and financial statements available to standard of excellence organizations and funders, as required. Requests by others are determined on an individual basis by the executive director who consults with the board of directors, as needed, on such decisions.”

Filing and Contact Details

Filer

Filer Name
Interstitial Cystitis Association
EIN
13-3292137
Phone
7034422070
Address
7918 Jones Branch Drive No 300, McLean, VA 22102
Doing Business As
Interstitial Cystitis Association

Signing Officer

Name
Lee K Lowery
Title
Executive Director
Phone
7034422070
Signed
2018-08-06
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Lee K Lowery
Formed
1984
Legal Domicile
Ny
Voting Board Members
13
Independent Board Members
13
Employees
0
Volunteers
50

Preparer

Firm
Rogers & Company PLLC
Address
8300 Boone Boulevard Suite 600, Vienna, VA 22182
Preparer
Nicole M Prince CPA
Phone
7038930300
Supplemental Narrative

Additional Explanations

Form 990, Part IX, line 11G

“Other: Program service expenses 14,025. Management and general expenses 0. Fundraising expenses 0. Total expenses 14,025. Graphic Artist: Program service expenses 12,095. Management and general expenses 0. Fundraising expenses 523. Total expenses 12,618. Subcontract: Program service expenses 72,108. Management and general expenses 0. Fundraising expenses 0. Total expenses 72,108.”

Form 990, Part XII, line 2C:

“No change from prior year.”

Financial Statement Notes

Part X, Line 2:

“Management has evaluated the ICA's tax positions and has concluded that the ICA has taken no uncertain tax positions that qualify for either recognition or disclosure in the accompanying financial statements.”

Part XI, Line 2D - Other Adjustments:

“Cost of goods sold 3,496.”

Part XII, Line 2D - Other Adjustments:

“Cost of goods sold 3,496.”

Raw XML AppendixShowing 400 of 590 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/MissionDesc0The ICA provides advocacy, research funding, and education to ensure early diagnosis and optimal care with dignity for people affected by IC.
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IRS990/OtherExpensesGrp/ManagementAndGeneralAmt02526
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IRS990/PrincipalOfficerNm0Lee K Lowery
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IRS990/ProgramServiceRevenueGrp/Desc0Industry publications
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IRS990/ProgSrvcAccomActy2Grp/Desc0Advocacy: The disabling pain, urgency and frequency of interstitial cystitis (IC) stays with patients for their lifetime. The ICA raises awareness among legislators and key decision makers about the need for expanded research funding to find a cure and healthcare options to address the special needs of IC patients.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0130242
IRS990/ProgSrvcAccomActy3Grp/Desc0Research: Each IC diagnosis means a new fight for someone's spouse, parent, child or friend. There is no cure for IC. Through the "Imagine No IC" Pilot Research program, the ICA funds preliminary research, allowing scientists to gather data required to obtain larger grants for further exploration of the cause, better treatments, and ultimately a cure. Our team tracks IC research and disseminates findings across media platforms. ICA leadership also serve on government and industry research advisory committees.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt0112770
IRS990/ProgSrvcAccomActy3Grp/GrantAmt075000
IRS990/ProgSrvcAccomActyOtherGrp/Desc0CDC/Cedars-Sinai sub-grant
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IRS990ScheduleC/PaidStaffOrManagementInd01
IRS990ScheduleC/PublicationsOrBroadcastInd00
IRS990ScheduleC/RalliesDemonstrationsInd00
IRS990ScheduleC/SupplementalInformationDetail/ExplanationTxt0The ICA works with congressmen and women educating them about interstitial cystitis, advocating for federal research funding for IC, and promoting legislative policies important to the concerns of interstitial cystitis patients, healthcare providers, and researchers.
IRS990ScheduleC/SupplementalInformationDetail/FormAndLineReferenceDesc0Part II-B, Line 1:
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IRS990ScheduleD/RevenueNotReportedFinclStmtAmt00
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IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0Management has evaluated the ICA's tax positions and has concluded that the ICA has taken no uncertain tax positions that qualify for either recognition or disclosure in the accompanying financial statements.
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt1Cost of goods sold 3,496.
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt2Cost of goods sold 3,496.
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0Part X, Line 2:
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc1Part XI, Line 2d - Other Adjustments:
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc2Part XII, Line 2d - Other Adjustments:
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Filings

Displayed year

2017 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$266,495
Liabilities
$92,370
Net assets
$174,125
Revenue
$547,011
Expenses
$766,632
Net income
-$219,621
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$0.17$0.05$0.12$0.49$0.63$0.15
2023Detailed filing. Detailed filing data is available for this year.$0.32$0.05$0.26$0.65$0.65$0.00
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.30$0.03$0.27$0.60$0.63$0.03
2021Detailed filing. Detailed filing data is available for this year.$0.35$0.06$0.29$0.75$0.71$0.04
2020Detailed filing. Detailed filing data is available for this year.$0.31$0.03$0.28$0.78$0.70$0.08
2019Detailed filing. Detailed filing data is available for this year.$0.23$0.03$0.19$0.63$0.74$0.11
2018Detailed filing. Detailed filing data is available for this year.$0.33$0.03$0.30$0.77$0.69$0.08
2017Detailed filing. Detailed filing data is available for this year.$0.27$0.09$0.17$0.55$0.77$0.22
2016Detailed filing. Detailed filing data is available for this year.$0.42$0.02$0.39$0.48$0.80$0.32
2015Detailed filing. Detailed filing data is available for this year.$0.72$0.01$0.71$1.24$1.39$0.15
2014Detailed filing. Detailed filing data is available for this year.$0.91$0.04$0.87$1.24$1.19$0.04
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.83$0.01$0.82$1.07$1.12$0.05
2012Summary only. Only limited summary data is available for this year.$0.92$0.02$0.90$0.69$0.88$0.19
2011Summary only. Only limited summary data is available for this year.$1.14$0.05$1.08$1.21$1.10$0.11
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.05$0.08$0.97$1.11