Liabilities / Assets
88th percentile
Higher debt load relative to assets than 88% of similar nonprofits.
990 • Fiscal year 2023 • EIN 13-1665552
Refreshing map…
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
88th percentile
Higher debt load relative to assets than 88% of similar nonprofits.
Liabilities / Revenue
73rd percentile
Higher debt load relative to revenue than 73% of similar nonprofits.
Net Margin
26th percentile
Higher net margin than 26% of similar nonprofits.
Top Officer Pay
71st percentile
Higher top officer pay than 71% of similar nonprofits.
Top officer pay equals 0.9% of source-year revenue.
Asset Growth
39th percentile
Faster asset growth than 39% of similar nonprofits.
Revenue Growth
29th percentile
Faster revenue growth than 29% of similar nonprofits.
Assets
Up$66,561,388
Up $2,157,568 (+3.4%) from 2022
Net Assets
Up$8,393,836
Up $1,585,172 (+23%) from 2022
Liabilities
Up$58,167,552
Up $572,396 (+1.0%) from 2022
Revenue
Down$59,437,892
Down $3,789,945 (-6.0%) from 2022
Expenses
Up$62,127,770
Up $3,157,463 (+5.4%) from 2022
Net Income
Down-$2,689,878
Down $6,947,408 (-163%) from 2022
Mda is the nonprofit health agency dedicated to curing muscular dystrophy, als, and related diseases by funding worldwide research. The association also provides comprehensive health care and support services, advocacy, and education.
SEE SCHEDULE O
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Investments in Publicly Traded Securities | $45,050,644 | $49,996,486 | ▲ $4,945,842 |
| Savings and Temporary Cash Investments | $3,592,054 | $5,439,147 | ▲ $1,847,093 |
| Pledges and Grants Receivable | $3,820,381 | $4,099,385 | ▲ $279,004 |
| Cash and Non-Interest-Bearing Accounts | $6,490,910 | $3,683,724 | ▼ $2,807,186 |
| Prepaid Expenses and Deferred Charges | $2,514,895 | $1,783,069 | ▼ $731,826 |
| Land, Buildings, and Equipment, Net | $2,833,812 | $1,385,357 | ▼ $1,448,455 |
| Investments Other Securities | $76,213 | $76,213 | → $0 |
| Intangible Assets | - | $73,096 | - |
| Total Assets | $64,403,820 | $66,561,388 | ▲ $2,157,568 |
| Other Assets Total | $24,911 | $24,911 | → $0 |
| Liabilities | |||
| Other Liabilities | $36,863,660 | $36,167,306 | ▼ $696,354 |
| Mortgage Notes Payable Secured by Investment Property | $7,969,067 | $9,375,467 | ▲ $1,406,400 |
| Accounts Payable and Accrued Expenses | $6,841,579 | $7,034,528 | ▲ $192,949 |
| Deferred Revenue | $3,023,278 | $3,550,230 | ▲ $526,952 |
| Grants Payable | $2,897,572 | $2,040,021 | ▼ $857,551 |
| Total Liabilities | $57,595,156 | $58,167,552 | ▲ $572,396 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $3,229,419 | $4,593,741 | ▲ $1,364,322 |
| Net Assets With Donor Restrictions | $3,579,245 | $3,800,095 | ▲ $220,850 |
| Total Net Assets Fund Balance | $6,808,664 | $8,393,836 | ▲ $1,585,172 |
| Total Liabilities and Net Assets / Fund Balance | $64,403,820 | $66,561,388 | ▲ $2,157,568 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Equipment | $1,385,357 | $3,903,161 | $5,288,518 |
| Period | Beginning | Contrib. | Gain/Loss | Other Uses | End |
|---|---|---|---|---|---|
| 2023 | $982,396 | $24,380 | ▲ $133,867 | $312,379 | $816,802 |
| 2022 | $1,191,057 | - | ▼ $195,884 | - | $982,396 |
| 2021 | $1,077,753 | - | ▲ $126,644 | - | $1,191,057 |
| 2020 | $929,020 | - | ▲ $160,235 | - | $1,077,753 |
| 2019 | $778,813 | - | ▲ $161,908 | - | $929,020 |
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Donald Wood | President & CEO | FT | $490,624 | $33,322 | $523,946 |
| Michael Kennedy | Treasurer & CFO | FT | $334,979 | $44,280 | $379,259 |
| Henry Lanman | Sec. & Chief Legal Officer | FT | $357,404 | $10,494 | $367,898 |
| Sharon Hesterlee | Chief Research Officer | FT | $237,040 | $40,391 | $277,431 |
| Peripedes Gondim | VP, Human Resources & Volunteers | FT | $223,723 | $7,136 | $230,859 |
| Nora Capocci | VP, Healthcare Services | FT | $198,041 | $6,577 | $204,618 |
| Monica Pappas | VP, Technology | FT | $195,958 | $5,091 | $201,049 |
| Angela Lek | VP, Research | FT | $194,037 | $6,392 | $200,429 |
| Name | Title |
|---|---|
| Governor Brad Henry | Chairman |
| Chris Rosa | Vice Chairman |
| Anjan Aralihalli | Director |
| Benjamin Cumbo Iii | Director |
| Charles D Schoor Esq | Director |
| Dan Fries | Director |
| Elizabeth Mcnally Md Phd | Director |
| Hon Robert E Pipia | Director |
| Jennifer Gottlieb | Director |
| John Costantino | Director |
| John E Howell | Director |
| Lilian Wu Phd | Director |
| Louis Kunkel Phd | Director |
| Mark Smith | Director |
| Matt Plummer | Director |
| Mike Rowlett | Director |
| Nancy Kindelan | Director |
| Steve Furnary | Director |
| Tom Simon | Director |
| Ankur Ghia | Outgoing Director |
| Eugene Williams | Outgoing Director |
| Contractor | Services | Location | Compensation |
|---|---|---|---|
| Glc Part Of Spm Group | Content Marketing Agency | 15 WEST HARRIS AVENUE SUITE 300, La Grange, IL 60525 | $687,825 |
| Data Axle INC | Marketing Services | PO BOX 959819, St Louis, MO 63195-9819 | $358,741 |
| Pursuant Group | Fundraising Consultant | PO BOX 120519, Dallas, TX 75312-0519 | $349,000 |
| 1st Degree LLC | Marketing Services | 755 GRAND BOULEVARD SUITE B-105 25, Miramar Beach, FL 32550 | $143,925 |
| Morgan Lewis & Bockius LLP | Legal Advice | P O BOX 8500 S-6050, Philadelphia, PA 19178-6050 | $129,070 |
| Contribution Type | Contribution Count | Reported Amount | Valuation Method |
|---|---|---|---|
| Securities Publicly Traded | 709 | $71,822 | Fair Market Value (FMV) |
| Total Noncash Contributions | 709 | $71,822 | - |
| Line Item | Amount |
|---|---|
| Salaries, Compensation, and Employee Benefits | $26,112,512 |
| Other Expenses | $21,102,781 |
| Grants and Similar Amounts Paid | $14,912,477 |
| Total Fundraising Expense | $14,812,103 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $11,901,237 | $1,000,206 | $5,824,729 | $18,726,172 |
| Grants to Domestic Orgs | $13,079,331 | - | - | $13,079,331 |
| Other Employee Benefits | $2,726,382 | $229,130 | $1,334,353 | $4,289,865 |
| Office Expenses | $1,224,103 | $84,733 | $1,609,608 | $2,918,444 |
| Information Technology | $1,571,680 | $360,699 | $916,369 | $2,848,748 |
| Advertising | $1,644,919 | $80,426 | $1,084,796 | $2,810,141 |
| Fees for Services Other | $2,324,746 | $161,242 | $152,283 | $2,638,271 |
| Foreign Grants | $1,833,146 | - | - | $1,833,146 |
| Payroll Taxes | $940,112 | $79,009 | $460,111 | $1,479,232 |
| Travel | $668,066 | $225,259 | $547,848 | $1,441,173 |
| Current Officers, Directors, Trustees, and Key Employees | $807,838 | $67,893 | $395,373 | $1,271,104 |
| Depreciation Depletion | $535,102 | $495,306 | - | $1,030,408 |
| Fees for Services Lobbying | $847,575 | - | - | $847,575 |
| Other Expenses | $817,329 | - | $1,530,848 | $817,329 |
| Occupancy | $215,259 | $565,823 | $29,705 | $810,787 |
| Interest | $286,181 | $121,709 | $309,206 | $717,096 |
| Insurance | $198,537 | $84,435 | $214,511 | $497,483 |
| Fees for Services Legal | $76,297 | $95,262 | $178,108 | $349,667 |
| Pension Plan Contributions | $219,985 | $18,488 | $107,666 | $346,139 |
| All Other Expenses | $56,157 | $149,098 | $38,336 | $243,591 |
| Fees for Service Investment Mgmnt Fees | - | $214,421 | - | $214,421 |
| Fees for Services Accounting | $72,426 | $30,802 | $78,253 | $181,481 |
| Conferences and Meetings | $79,370 | $470 | - | $79,840 |
| Total Functional Expenses | $1,037,262 | $0 | $1,555,894 | $2,593,156 |
| Line Item | Amount |
|---|---|
| Total Expenses per Form 990 | $62,127,770 |
| Expenses per Audited Statements | $61,833,836 |
| Total Expenses per Audited Statements | $61,438,095 |
| Expenses Not Reported on Financial Statements | $293,934 |
| Other Expense Adjustments | $79,513 |
| Expenses Not Reported on Form 990 | $-395,741 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Johns Hopkins University School of Medicine | Baltimore, MD | 501(c)(3) | Research | $508,290 |
| University of Kansas Medical Center Research Institute Inc | Kansas City, KS | 501(c)(3) | Research | $505,832 |
| University of Washington | Seattle, WA | 501(c)(3) | Research | $485,202 |
| Miller School of Medicine of the University of Miami | Atlanta, GA | State of Florida | Research | $457,145 |
| Massachusetts General Hospital Mass General | Boston, MA | 501(c)(3) | Research | $403,593 |
| The University of Iowa | Stiowa City, IA | 501(c)(3) | Research | $298,052 |
| University of Rochester | Rochester, NY | 501(c)(3) | Research | $285,968 |
| University of Florida | Gainesville, FL | 501(c)(3) | Research | $255,000 |
| BOSTON CHILDREN'S HOSPITAL | Boston, MA | 501(c)(3) | Research | $219,991 |
| The Regents of the University of California (irvine) | Hallirvine, CA | 501(c)(3) | Research | $216,113 |
| Johns Hopkins University- Cg Johns Hopkins University Central Lockbox | Chicago, IL | 501(c)(3) | Medical Diagnosis | $200,000 |
| The Regents of the University of California-contract and Grant Administrati | Los Angeles, CA | State of Pa | Research | $197,660 |
| Ut Southwestern Medical Center Attn Susan Iannaccone and Jennifer Knight | Dallas, TX | - | Medical Diagnosis | $190,000 |
| Columbia University Medical Center | New York, NY | 501(c)(3) | Research | $189,996 |
| The Trustees of Columbia University Sponsored Projects Finance | New York, NY | 501(c)(3) | Medical Diagnosis | $175,000 |
| Baylor College of Medicine | Houston, TX | State of Nv | Research | $169,996 |
| The Regents of the University of California -university of California Davis | Davis, CA | 501(c)(3) | Research | $168,539 |
| The Trustees of the University of Pennsylvania | Philadelphia, PA | 501(c)(3) | Research | $157,279 |
| Massachusetts General Hospital- Research Bank of America Na | Boston, MA | 501(c)(3) | Medical Diagnosis | $155,000 |
| Emory University | Atlanta, GA | 501(c)(3) | Research | $151,098 |
| CHILDREN'S RESEARCH INSTITUTE (CNMC) | Washington, DC | 501(c)(3) | Research | $130,188 |
| The Regents of the University of California Los Angeles | Los Angeles, CA | State of Al | Research | $125,000 |
| University of Miami Office of Research Administration | Atlanta, GA | State of Vt | Research | $125,000 |
| Vanderbilt University Medical Center Dept of Finance Attn Steve Todd | Dallas, TX | - | Medical Diagnosis and Registry Support | $125,000 |
| Washington University in St Louis | St Louis, MO | - | Research | $125,000 |
| The Board of Trustees of the University of Illinois | Chicago, IL | 501(c)(3) | Research | $123,266 |
| Weill Medical College of Cornell University | New York, NY | 501(c)(3) | Research | $115,789 |
| Duke University Medical Center Duke University Accounts Receivable Lockbox | Charlotte, NC | 501(c)(3) | Research | $100,000 |
| Emory University Attn Reid Willingham | Atlanta, GA | 501(c)(3) | Research | $100,000 |
| The Methodist Hospital Foundation Methodist Neurological Institute | Houston, TX | 501(c)(3) | Medical Diagnosis | $100,000 |
| The Ohio State University Office of Sponsored Programs Attn Richard Bradb | Columbus, OH | 501(c)(3) | Movr Registry Support | $100,000 |
| The Regents of the University of California -office of Sponsored Research | San Francisco, CA | 501(c)(3) | Research | $100,000 |
| University of Colorado Denver Grants and Contracts | Denver, CO | State of Pa | Medical Diagnosis | $100,000 |
| University of Iowa Grant Accounting Office | Iowa City, IA | 501(c)(3) | Movr Registry Support | $100,000 |
| University of Rochester Attn Tracy Forrester | Rochester, NY | 501(c)(3) | Research | $100,000 |
| Hudsonalpha Institute for Biotechnology | Huntsville, AL | 501(c)(3) | Research | $99,167 |
| Regents of the University of Minnesota | Minneapolis, MN | 501(c)(3) | Medical Diagnosis and Research | $95,000 |
| Atrium Health Foundation | Charlotte, NC | 501(c)(3) | Medical Diagnosis | $90,000 |
| The Regents of the University of California San Francisco | Los Angeles, CA | 501(c)(3) | Medical Diagnosis and Registry Support | $90,000 |
| University of Utah Attn Pediatric Neurology | Salt Lake City, UT | 501(c)(3) | Medical Diagnosis and Research | $85,000 |
| University of Pennsylvania School of Medicine | Minneapolis, MN | 501(c)(3) | Research | $81,250 |
| California Pacific Medical Center Foundation | Sacramento, CA | 501(c)(3) | Medical Diagnosis and Registry Support | $80,025 |
| University of Florida Attn Contracts & Grants- Revenue Team | Gainesville, FL | 501(c)(3) | Research | $80,000 |
| CHILDREN'S HOSPITAL OF PHILADELPHIA DIVISION OF NEUROLOGY | Philadelphia, PA | 501(c)(3) | Medical Diagnosis | $75,000 |
| Clinical Neurology | Oklahoma City, OK | State of Mo | Medical Diagnosis | $75,000 |
| Kumc Research Institute Inc | Kansas City, KS | 501(c)(3) | Research | $75,000 |
| The Regents of the University of California (irvine) | Irvine, CA | 501(c)(3) | Research | $75,000 |
| University of Texas Health Science Center at San Antonio | San Antonio, TX | 501(c)(3) | Medical Diagnosis | $75,000 |
| Sanford Burnham Prebys Medical Discovery Institute | La Jolla, CA | 501(c)(3) | Research | $70,000 |
| University Hospital Broooklyn Suny Downstate Med Ctr | Brooklyn, NY | 501(c)(3) | Medical Diagnosis | $70,000 |
| Washington University in Stlouis | St Louis, MO | 501(c)(3) | Research | $69,836 |
| Broad Institute (eli and Edythe L Broad Institute of Mit and Harvard) | Cambridge, MA | 501(c)(3) | Research | $69,420 |
| University of Pittsburgh | Pittsburgh, PA | 501(c)(3) | Research | $69,400 |
| Regents of the University of Minnesota | Minneapolis, MN | 501(c)(3) | Research | $66,000 |
| Childrens Hospital Medical Center | Cincinnati, OH | 501(c)(3) | Medical Diagnosis | $65,000 |
| Nemours Foundation | Jacksonville, FL | 501(c)(3) | Medical Diagnosis | $65,000 |
| Baylor College of Medicine | Dallas, TX | 501(c)(3) | Medical Diagnosis | $60,000 |
| Dignity Health St Josephs Hospital Az | Los Angeles, CA | 501(c)(3) | Medical Diagnosis | $60,000 |
| Loma Linda University Attn Research Affairs Financial Management | Loma Linda, CA | 501(c)(3) | Medical Diagnosis | $60,000 |
| THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL | Columbus, OH | 501(c)(3) | Research | $58,496 |
| Cadent Medical Communications LLC | New York, NY | 501(c)(3) | Medical Diagnosis | $57,275 |
| Childrens Hospital Colorado Muscle Clinic | Aurora, CO | 501(c)(3) | Medical Diagnosis and Registry Support | $55,000 |
| Miller School of Medicine | Atlanta, GA | 501(c)(3) | Research | $54,640 |
| Ann & Robert H Lurie Childrens Hospital of Chicago Attn | Chicago, IL | 501(c)(3) | Medical Diagnosis | $50,000 |
| Cedars-sinai Medical Center Office of Research Administration | Los Angeles, CA | 501(c)(3) | Medical Diagnosis and Research | $50,000 |
| DIGNITY HEALTH DBA ST JOSEPH'S HOSPITAL & MEDICAL CENTER | Phoenix, AZ | 501(c)(3) | Research | $50,000 |
| Dana Farber Cancer Institute | Boston, MA | 501(c)(3) | Research | $50,000 |
| Gillette Childrens Specialty Healthcare Finance 455110 | St Paul, MN | 501(c)(3) | Medical Diagnosis | $50,000 |
| Hospital for Special Care | New Britain, CT | 501(c)(3) | Medical Diagnosis | $50,000 |
| Methodist Le Bonheur Community Outreach Attn Grant Adminstrator | Memphis, TN | 501(c)(3) | Medical Diagnosis | $50,000 |
| Montefiore Medical Center Attn Kristopher Von Steenburg | Bronx, NY | State of or | Medical Diagnosis | $50,000 |
| New York University School of Medicine | Boston, MA | 501(c)(3) | Medical Diagnosis | $50,000 |
| Regents of the University of California Davis | Sacramento, CA | 501(c)(3) | Medical Diagnosis and Research | $50,000 |
| Rutgers the State University of New Jersey-rbhs-njms | Piscataway, NJ | 501(c)(3) | Research | $50,000 |
| Seattle Childrens Hospital Attn James Hawkins | Seattle, WA | 501(c)(3) | Medical Diagnosis | $50,000 |
| Semmes-murphey Clinic Attn Brent Patterson | Memphis, TN | 501(c)(3) | Medical Diagnosis | $50,000 |
| St Peters Hospital St Peters Health Partners Center for Philanthropy | Albany, NY | 501(c)(3) | Medical Diagnosis | $50,000 |
| Stanford Child Health Research Institute | Menlo Park, CA | 501(c)(3) | Medical Diagnosis | $50,000 |
| Stanford Child Health Research Institute | Menlo Park, CA | 501(c)(3) | Medical Diagnosis | $50,000 |
| THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL DEPT 781653 | Detroit, MI | State of Al | Research | $50,000 |
| THE TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA REFPD #10058870 | Philadelphia, PA | State of Co | Research | $50,000 |
| Temple University Temple University Research Accounting Services | New York, NY | 501(c)(3) | Movr Registry Support | $50,000 |
| The Hospital for Special Surgery | New York, NY | 501(c)(3) | Medical Diagnosis | $50,000 |
| The Regents of the University of Michigan Co Bny Mellon | Pittsburgh, PA | 501(c)(3) | Research | $50,000 |
| University of Pittsburgh Department of Neurology S547 Biomedical Science T | Pittsburgh, PA | 501(c)(3) | Research | $50,000 |
| University of Washington Medical Center | Seattle, WA | - | Medical Diagnosis | $50,000 |
| Oregon Health & Science University - Ohsu | Portland, OR | 501(c)(3) | Research | $49,996 |
| Trustees of Tufts College | Boston, MA | 501(c)(3) | Research | $49,963 |
| The Regents of the University of Michigan | Ann Arbor, MI | 501(c)(3) | Research | $49,869 |
| Indiana University | Bloomington, IN | 501(c)(3) | Medical Diagnosis and Research | $46,707 |
| Mayo Clinic Jacksonville | Jacksonville, FL | 501(c)(3) | Research | $45,000 |
| Mcv Associated Physicians | Richmond, VA | 501(c)(3) | Medical Diagnosis | $40,000 |
| Prisma Health Grants and Trials | Atlanta, GA | 501(c)(3) | Medical Diagnosis | $40,000 |
| University of Puerto Rico Medical Sciences Attn Dr Jose Carlo | San Juan, PR | 501(c)(3) | Medical Diagnosis | $40,000 |
| The Board of Trustees of the Leland Stanford Junior University | Redwood City, CA | 501(c)(3) | Research | $39,716 |
| Northwestern Medical Group Department of Neurology | Chicago, IL | 501(c)(3) | Medical Diagnosis | $37,500 |
| Research Triangle Institute | Raleigh, NC | 501(c)(3) | Advocacy | $37,500 |
| Florida Elks Youth Camp Inc | Umatilla, FL | State of Pa | Medical Diagnosis and Research | $36,743 |
| Happiness Is Camping Inc | Hardwick, NJ | 501(c)(3) | Medical Diagnosis and Research | $36,525 |
| The Regents of the University of California | Berkeley, CA | 501(c)(3) | Research | $35,714 |
| All Wheels Up Inc | Frisco, TX | 501(c)(3) | Advocacy | $35,000 |
| CHILDREN'S HEALTHCARE OF ATLANTA | Atlanta, GA | 501(c)(3) | Medical Diagnosis | $35,000 |
| NEMOURS CHILDREN'S HOSPITAL | Jacksonville, FL | 501(c)(3) | Medical Diagnosis | $35,000 |
| The Pennsylvania State University College of Medicine Attn Controllers of | Hershey, PA | 501(c)(3) | Research | $35,000 |
| The University of North Carolina at Chapel Hill | Atlanta, GA | 501(c)(3) | Research | $35,000 |
| Thomas Jefferson University | Philadelphia, PA | 501(c)(3) | Research | $35,000 |
| University of Cincinnati Physicians | Cincinnati, OH | State of Nm | Medical Diagnosis | $35,000 |
| University of Nebraska Medical Center | Omaha, NE | State of TX | Medical Diagnosis | $35,000 |
| University of New Mexico Hsc | Albuquerque, NM | 501(c)(3) | Medical Diagnosis | $35,000 |
| Yale University Office of Sponsored Projects | New Haven, CT | - | Medical Diagnosis and Research | $35,000 |
| Good Shepherd Rehabilitation Hospital | Allentown, PA | 501(c)(3) | Medical Diagnosis | $33,333 |
| Whispering Hope Ranch Foundations | Scottsdale, AZ | 501(c)(3) | Medical Diagnosis and Research | $32,128 |
| Victory Junction Gang Camp | Randleman, NC | 501(c)(3) | Medical Diagnosis and Research | $30,627 |
| ADVENTHEALTH ORLANDO ATTN RESEARCH ACCOUNTING (#1591442) | Orlando, FL | 501(c)(3) | Medical Diagnosis | $30,000 |
| Atrium Health Wfb Office of Sponsored Programs | Charlotte, NC | 501(c)(3) | Research | $30,000 |
| Brigham and Womens Hospital Research Bank of America Na | Boston, MA | 501(c)(3) | Medical Diagnosis | $30,000 |
| Childrens Hospital of the Kings Daughters Inc | Norfolk, VA | 501(c)(3) | Medical Diagnosis and Registry Support | $30,000 |
| Cure Rare Disease Inc | Woodbridge, CT | 501(c)(3) | Advocacy | $30,000 |
| Indiana University Health Inc | Chicago, IL | 501(c)(3) | Medical Diagnosis | $30,000 |
| Mayo Clinic Mayo Clinic Research | Minneapolis, MN | 501(c)(3) | Research | $30,000 |
| Medstar Georgetown University Hospital Neurology Department Attn Ryan Dou | Washington, DC | 501(c)(3) | Medical Diagnosis | $30,000 |
| Rady Childrens Hospital Foundation - San Diego | San Diego, CA | 501(c)(3) | Medical Diagnosis | $30,000 |
| The Rector and Visitors of the University of Virginia | Charlottesville, VA | 501(c)(3) | Medical Diagnosis | $30,000 |
| The Regents of the University of California San Diego | La Jolla, CA | 501(c)(3) | Research | $30,000 |
| The Research Foundation on Behalf of Suny Attn Gina Mcmahon | Syracuse, NY | 501(c)(3) | Research | $30,000 |
| The University of Alabama at Birmingham | Birmingham, AL | State of Florida | Medical Diagnosis | $30,000 |
| University of Alabama at Birmingham Attn Randall Fields | Birmingham, AL | State of Ms | Medical Diagnosis | $30,000 |
| University of Arkansas for Medical Sciences | Little Rock, AR | State of Ne | Medical Diagnosis | $30,000 |
| University of Massachusetts Medical School Grant Award 503709 | North Worcester, MA | State of Ut | Research | $30,000 |
| West Virginia University Research Corporation Office of Sponsored Programs | Morgantown, WV | - | Medical Diagnosis | $30,000 |
| Medical College of Wisconsin Controllers Office | Milwaukee, WI | 501(c)(3) | Medical Diagnosis and Registry Support | $27,500 |
| BOSTON CHILDREN'S HOSPITAL BOSTON CHILDRENS HOSPITAL ATTN RESEARCH FINANC | Boston, MA | 501(c)(3) | Medical Diagnosis | $25,000 |
| Baycare Medical Group Attn Matthew Durst | Clearwater, FL | State of Il | Medical Diagnosis | $25,000 |
| Beaumont Health System | Royal Oak, MI | 501(c)(3) | Movr Registry Support | $25,000 |
| Childrens Hospital of Pittsburgh Foundation | Pittsburgh, PA | 501(c)(3) | Medical Diagnosis | $25,000 |
| Childrens National Medical Center | Washington, DC | 501(c)(3) | Medical Diagnosis | $25,000 |
| Cook Childrens Medical Center Research Administration Office | Fortworth, TX | 501(c)(3) | Movr Registry Support | $25,000 |
| Michigan State University Contract & Grant Administration Hannah Administr | Lansing, MI | 501(c)(3) | Medical Diagnosis | $25,000 |
| Neurology Llpc | Tulsa, OK | 501(c)(3) | Medical Diagnosis | $25,000 |
| Olive View-ucla Education & Research Institute | Sylmar, CA | 501(c)(3) | Medical Diagnosis | $25,000 |
| Oregon Health and Science University | Portland, OR | 501(c)(3) | Medical Diagnosis | $25,000 |
| Texas Neurology Pa Attn Daragh Heitzman | Dallas, TX | 501(c)(3) | Medical Diagnosis and Registry Support | $25,000 |
| The Metrohealth System | Cleveland, OH | 501(c)(3) | Medical Diagnosis | $25,000 |
| Tufts Medical Center Inc | Boston, MA | 501(c)(3) | Advocacy | $25,000 |
| Research Foundation of Suny | Albany, NY | 501(c)(3) | Research | $24,437 |
| ARKANSAS CHILDREN'S HOSPITAL | Little Rock, AR | 501(c)(3) | Medical Diagnosis | $20,000 |
| CONNECTICUT CHILDREN'S MEDICAL CENTER ATTN OFFICE OF SPONSORED PROGRAMS | Hartford, CT | 501(c)(3) | Medical Diagnosis | $20,000 |
| Childrens Clinics for Rehabilitative Services | Tucson, AZ | 501(c)(3) | Medical Diagnosis | $20,000 |
| Childrens Hospital Los Angeles Sponsored Projects | Los Angeles, CA | 501(c)(3) | Medical Diagnosis | $20,000 |
| Coxhealth Foundation | Springfield, MO | 501(c)(3) | Medical Diagnosis | $20,000 |
| Curators of the University of Missouri | Kansas City, MO | 501(c)(3) | Medical Diagnosis | $20,000 |
| Dent Neurologic Institute | Amherst, NY | 501(c)(3) | Medical Diagnosis | $20,000 |
| Geisinger Clinic Attn Shannon Wood | Danville, PA | 501(c)(3) | Movr Registry Support | $20,000 |
| Instituto Rehabilitacion Del Carib | San Juan, PR | 501(c)(3) | Medical Diagnosis | $20,000 |
| Louisiana State University Health Sciences Center-new Orleans | New Orleans, LA | 501(c)(3) | Medical Diagnosis | $20,000 |
| Lsuhsc-shreveport Neurology Attn Jessica Cote | Shreveport, LA | 501(c)(3) | Medical Diagnosis | $20,000 |
| Medical University of South Carolina Research & Sponsored Programs | Charleston, SC | State of Ny | Movr Registry Support | $20,000 |
| Osf Multi-specialty Group Dba Illinois Neurological Institute Institute | Peoria, IL | 501(c)(3) | Medical Diagnosis | $20,000 |
| Ponce Health Sciences Universitywellness Center | Ponce, PR | 501(c)(3) | Medical Diagnosis | $20,000 |
| Providence Medical Group (dba) | Spokane, WA | 501(c)(3) | Medical Diagnosis | $20,000 |
| Rhode Island Hospital Research Administration Grants and Contracts | Providence, RI | 501(c)(3) | Medical Diagnosis | $20,000 |
| Rush University Medical Center | Chicago, IL | 501(c)(3) | Medical Diagnosis | $20,000 |
| Sarasota Memorial Hospital | Sarasota, FL | 501(c)(3) | Medical Diagnosis | $20,000 |
| Shriners Hospital for Children Portland | Portland, OR | 501(c)(3) | Medical Diagnosis | $20,000 |
| Shriners Hospitals for Children Chicago | Chicago, IL | 501(c)(3) | Medical Diagnosis | $20,000 |
| St Charles Hospital Foundation | Port Jefferson, NY | 501(c)(3) | Medical Diagnosis | $20,000 |
| St Lukes Health System | Idaho, ID | 501(c)(3) | Medical Diagnosis | $20,000 |
| The Board of Regents of the University of Wisconsin System | Milwaukee, WI | 501(c)(3) | Medical Diagnosis | $20,000 |
| The Toledo Hospital Dba Promedica Toledo Childrens Hospital | Toledo, OH | State of Ar | Medical Diagnosis | $20,000 |
| Trinity Health Dba Mercy Health Saint Marys Attn Susan Hoppough | Grand Rapids, MI | 501(c)(3) | Medical Diagnosis | $20,000 |
| University Neurology Inc Attn Terry Kiel | Buffalo, NY | 501(c)(3) | Medical Diagnosis | $20,000 |
| University of Mississippi Medical Center Attn Susan Campbell | Jackson, MS | State of Wa | Medical Diagnosis Research and Registry Support | $20,000 |
| University of Vermont Medical Center Grants Management Finance | Burlington, VT | - | Medical Diagnosis and Registry Support | $20,000 |
| Uw Hospital & Clinics Authority | Milwaukee, WI | - | Medical Diagnosis | $20,000 |
| Opmd Association | Houston, TX | 501(c)(3) | Advocacy | $19,065 |
| CHILDREN'S HOSPITAL OF MICHIGAN RDM ASSOCIATES | Clarkston, MI | 501(c)(3) | Medical Diagnosis | $15,000 |
| Dartmouth-hitchcock Medical Center | Lebanon, NH | 501(c)(3) | Medical Diagnosis | $15,000 |
| Idaho Physical Medicine and Rehabilitation | Idaho, ID | 501(c)(3) | Medical Diagnosis and Registry Support | $15,000 |
| JOHNS HOPKINS ALL CHILDREN'S HOSPITAL | St Petersburg, FL | 501(c)(3) | Medical Diagnosis | $15,000 |
| Maine Medical Center 92 Campus Drive Attn Muriel Michaud | Bscarborough, ME | 501(c)(3) | Medical Diagnosis | $15,000 |
| Spectrum Health Foundation | Grand Rapids, MI | 501(c)(3) | Medical Diagnosis | $15,000 |
| Ascension Seton Attn Jenn Davis | Austin, TX | 501(c)(3) | Medical Diagnosis | $10,000 |
| Billings Clinic Foundation | Billings, MT | 501(c)(3) | Medical Diagnosis and Registry Support | $10,000 |
| Board of Trustees of Southern Illinois University Siu School of Medicine | Springfield, IL | 501(c)(3) | Medical Diagnosis and Registry Support | $10,000 |
| CHILDREN'S HOSPITAL OF ORANGE COUNTY ATTENTION KATHY KOLODGE DIRECTOR | Orange, CA | 501(c)(3) | Medical Diagnosis | $10,000 |
| Carle Foundation Hospital | Parkurbana, IL | 501(c)(3) | Medical Diagnosis and Registry Support | $10,000 |
| Central Texas Neurology Consultants | Round Rock, TX | 501(c)(3) | Medical Diagnosis | $10,000 |
| Childrens Hospital | New Orleans, LA | 501(c)(3) | Medical Diagnosis | $10,000 |
| Cure Cmd | Lakewood, CA | 501(c)(3) | Advocacy | $10,000 |
| DRISCOLL CHILDREN'S HOSPITAL | Corpus Christi, TX | 501(c)(3) | Medical Diagnosis | $10,000 |
| Norton Healthcare Accounting Attn Cash Audit Mary Beth Zinius | Louisville, KY | 501(c)(3) | Medical Diagnosis | $10,000 |
| Phoenix Childrens Hospital | Phoenix, AZ | 501(c)(3) | Medical Diagnosis | $10,000 |
| SANFORD CHILDREN'S SPECIALTY CLINIC | Sioux Falls, SD | 501(c)(3) | Medical Diagnosis | $10,000 |
| Sanford Medical Center Fargo Attn Maxine Brinkman | Fargo, ND | 501(c)(3) | Medical Diagnosis | $10,000 |
| St Vincent Hospital Dba Prevea Health Prevea Health | Green Bay, WI | 501(c)(3) | Movr Registry Support | $10,000 |
| University of Louisville Research Foundation Inc | Louisville, KY | State of TX | Medical Diagnosis | $10,000 |
| Valley Childrens Hospital | Madera, CA | - | Medical Diagnosis | $10,000 |
| Atrium Health Foundation | Charlotte, NC | 501(c)(3) | Research | $9,025 |
| Myogene Bio LLC | San Diego, CA | 501(c)(3) | Research | $8,323 |
| NATIONWIDE CHILDREN'S HOSPITAL FOUNDATION | Columbus, OH | 501(c)(3) | Research | $8,000 |
| Board of Regents - Nshe | Reno, NV | State of or | Research | $7,895 |
| Portfolio Media Inc | New York, NY | 501(c)(3) | Advocacy | $7,360 |
| The Trustees of the Stevens Institute of Technology | Hudsonhoboken, NJ | 501(c)(3) | Research | $7,143 |
| Society for Muscle Biology | Rockville, MD | State of Wa | Research | $7,000 |
| The University of North Carolina at Chapel Hill | Chapel Hill, NC | 501(c)(3) | Research | $6,882 |
| Region | Activity | Services | Offices | Employees | Spending |
|---|---|---|---|---|---|
| Europe | Program Services | Research Grant | 0 | 0 | $843,315 |
| North America | Program Services | Research Grant | 0 | 0 | $535,075 |
| East Asia and the Pacific | Program Services | Research Grant | 0 | 0 | $454,256 |
| Line Item | Amount |
|---|---|
| Fundraising Direct Expenses | $3,397,905 |
| Fundraising Gross Income | $1,679,130 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Special Events | $17,002,749 | $1,338,138 | $122,340 | $1,215,798 |
| Distinguished Events | $10,285,562 | $98,391 | $33,458 | $64,933 |
| Total Events | $36,284,040 | $1,679,130 | $3,397,905 | $-1,718,775 |
| Liability | Amount |
|---|---|
| Accrued Pension Cost | $36,089,553 |
| Operating Lease Liability | $77,753 |
“All board members were provided a copy of the federal form 990 before filing with the irs.”
“The conflict of interest policy is monitored by the human resources department in conjunction with legal. Board members are required to sign an conflict of interest disclosure annually. When a conflict of interest arises, the person with the conflict is required to recuse his/herself from the matter and discussion involved.”
“Mda has a compensation committee of the governing board that reviews the ceo and executive team compensation. A compensation study is completed by an independent consultant and reviewed with the compensation committee. Annual reviews are completed and contracts are amended as they expire.”
“Governing documents and the conflict of interest policies are internal documents. Copies of the audited financial statements are available on mda's website.”
“Tax year 2022 total contributions included amounts related to forgiveness of ppp loan, in accordance with the irs 990 instructions, $2,000,000. Not including these amounts the total contributions were largely flat going from $57,144,929 to $56,761,618.”
“Muscular dystrophy association (mda) is the #1 voluntary health organization in the united states for people living with muscular dystrophy, als, and related neuromuscular diseases. For over 70 years, mda has led the way in accelerating research, advancing care, and advocating for the support of our families. Mda's mission is to empower the people we serve to live longer, more independent lives.”
“Change in unrecognized benefit plan costs -947,962.”
“The association's endowment consists of one individual fund established for the advancement of research, programs and services for those with muscular dystrophy. The glen e. & david k. Guttormsen endowed fund for duchenne muscular dystrophy research was established in an agreement, effective may 25, 2010, whereby the association is to maintain and administer the fund in accordance with the donor's desires.”
“U.s. Gaap provides accounting and disclosure guidance about positions taken by an organization in its tax returns that might be uncertain. Management has considered its tax positions and believes that all of the positions taken by the association in its federal and state exempt organization tax returns are more likely than not to be sustained upon examination. The association's returns for years ended december 31, 2023, 2022, 2021, 2020 are open for examination by federal and state taxing authorities, which generally is for three years after they are filed. If applicable, the association would recognize interest and penalties associated with tax matters as part of general and administrative expenses and would include accrued interest and penalties in accrued expenses. Management has analyzed the tax positions taken by the association and has concluded that, as of december 31, 2023, there are no uncertain tax positions taken or expected to be taken that would require recognition of a liability (or asset) or disclosure in the financial statements.”
“Changes in unrecognized benefit plan costs -947,962. Fundraising expenses -79,513.”
“Loss on disposal of fixed assets -27,960. Sublease rental 45,000. Grant recovery 378,701.”
“Loss on disposal of fixed assets 27,960. Sublease rental -45,000. Grant recovery -378,701.”
“Fundraising expenses 79,513.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
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|---|---|---|
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| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 7034528 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | SEE SCHEDULE O |
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| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 80426 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 1644919 |
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| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 1016 W JACKSON BLVD 1073 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | CHICAGO |
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| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 3683724 |
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| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd | 1 | MO |
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| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd | 3 | FL |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd | 4 | PA |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd | 0 | 60525 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd | 1 | 631959819 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd | 2 | 753120519 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd | 3 | 32550 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd | 4 | 191786050 |
| IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt | 0 | GLC PART OF SPM GROUP |
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| IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt | 2 | PURSUANT GROUP |
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| IRS990/Desc | 0 | PLEASE SEE SCHEDULE O FOR FURTHER DISCUSSION OF PPP LOAN FORGIVENESS AS IT PERTAINS TO TOTAL CONTRIBUTION REVENUE.HEALTH CARE AND COMMUNITY SERVICES:MDA IS COMMITTED TO EMPOWERING PEOPLE LIVING WITH MUSCULAR DYSTROPHY, ALS AND RELATED NEUROMUSCULAR DISEASES THROUGH RESEARCH, CARE, AND ADVOCACY. AS THE LARGEST SOURCE OF FUNDING FOR NEUROMUSCULAR DISEASE RESEARCH OUTSIDE OF THE FEDERAL GOVERNMENT MDA HAS COMMITTED MORE THAN $1 BILLION TO ACCELERATE THE DISCOVERY OF THERAPIES AND CURES. WE SUPPORT THE LARGEST NETWORK OF MULTIDISCIPLINARY CLINICS AT MORE THAN 150 TOP MEDICAL INSTITUTIONS, SERVE THE COMMUNITY WITH ONE-ON-ONE SPECIALIZED SUPPORT, AND OFFER EDUCATIONAL CONFERENCES, EVENTS, AND MATERIALS FOR FAMILIES AND HEALTHCARE PROVIDERS. (CONT. SCHEDULE O) EACH OF OUR MDA CARE CENTERS OFFERS INDIVIDUALS AND FAMILIES BEST-IN-CLASS, COMPREHENSIVE CARE FROM AN INTEGRATED MULTIDISCIPLINARY TEAM OF HEALTHCARE SPECIALISTS CONVENIENTLY SITED AT ONE LOCATION. IN A SINGLE DAY, PATIENTS CAN SEE MULTIPLE HEALTHCARE PROVIDERS WHO WORK TOGETHER TO ENSURE COORDINATED INDIVIDUAL CARE FOR EVERY PATIENT TO BEST FIT THEIR SPECIFIC NEEDS. HIGHLY TRAINED MDA CARE SPECIALISTS SERVE AS AN IMPORTANT PART OF THE CARE TEAM, HELPING FAMILIES NAVIGATE THE HEALTH SYSTEM, ANSWERING QUESTIONS, DISTRIBUTING MDA EDUCATIONAL MATERIALS, COORDINATING MDA SERVICES, AND ASSISTING WITH COMMUNITY RESOURCE REFERRALS. EACH YEAR THOUSANDS OF CHILDREN/YOUNG ADULTS LEARN VITAL LIFE SKILLS AND GAIN INDEPENDENCE AT SUMMER CAMP AND THROUGH RECREATIONAL PROGRAMS, AT NO COST TO FAMILIES. EACH CAMP IS STAFFED WITH DEDICATED HEALTH PROFESSIONALS AND TRAINED CAMP VOLUNTEERS WHO MEET THE MEDICAL AND PHYSICAL NEEDS OF EACH CAMPER ALL AT NO COST TO FAMILIES. |
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| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 18 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 19 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 20 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 16 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 17 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 18 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 19 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 20 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 21 | 33322 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 22 | 10494 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 23 | 44280 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 24 | 6392 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 25 | 5091 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 26 | 6577 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 27 | 7136 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 28 | 40391 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | ANJAN ARALIHALLI |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | ANKUR GHIA |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | BENJAMIN CUMBO III |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | CHARLES D SCHOOR ESQ |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | CHRIS ROSA |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | DAN FRIES |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | ELIZABETH MCNALLY MD PHD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | EUGENE WILLIAMS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | GOVERNOR BRAD HENRY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | HON ROBERT E PIPIA |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | JENNIFER GOTTLIEB |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | JOHN COSTANTINO |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 12 | JOHN E HOWELL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 13 | LILIAN WU PHD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 14 | LOUIS KUNKEL PHD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 15 | MARK SMITH |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 16 | MATT PLUMMER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 17 | MIKE ROWLETT |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 18 | NANCY KINDELAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 19 | STEVE FURNARY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 20 | TOM SIMON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 21 | DONALD WOOD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 22 | HENRY LANMAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 23 | MICHAEL KENNEDY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 24 | ANGELA LEK |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 25 | MONICA PAPPAS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 26 | NORA CAPOCCI |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 27 | PERIPEDES GONDIM |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 28 | SHARON HESTERLEE |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 16 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 17 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 18 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 19 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 20 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 21 | 490624 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 22 | 357404 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 23 | 334979 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 24 | 194037 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 25 | 195958 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 26 | 198041 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 27 | 223723 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 28 | 237040 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 16 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 17 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 18 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 19 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 20 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 21 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 22 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 23 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 24 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 25 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 26 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 27 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 28 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | OUTGOING DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | VICE CHAIRMAN |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | OUTGOING DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | CHAIRMAN |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 12 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 13 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 14 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 15 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 16 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 17 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 18 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 19 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 20 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 21 | PRESIDENT & CEO |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 22 | SEC. & CHIEF LEGAL OFFICER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 23 | TREASURER & CFO |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 24 | VP, RESEARCH |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 25 | VP, TECHNOLOGY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 26 | VP, HEALTHCARE SERVICES |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 27 | VP, HUMAN RESOURCES & VOLUNTEERS |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 28 | CHIEF RESEARCH OFFICER |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/Form990TFiledInd | 0 | 1 |
| IRS990/FormationYr | 0 | 1950 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 1 |
| IRS990/FundraisingAmt | 0 | 34604910 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 3397905 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 1679130 |
| IRS990/GainOrLossGrp/OtherAmt | 0 | -27960 |
| IRS990/GainOrLossGrp/SecuritiesAmt | 0 | 820466 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 19 |
| IRS990/GovernmentGrantsAmt | 0 | 357144 |
| IRS990/GrantAmt | 0 | 7278043 |
| IRS990/GrantsPayableGrp/BOYAmt | 0 | 2897572 |
| IRS990/GrantsPayableGrp/EOYAmt | 0 | 2040021 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 13079331 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 13079331 |
| IRS990/GrantsToIndividualsInd | 0 | 0 |
| IRS990/GrantsToOrganizationsInd | 0 | 1 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt | 0 | 11453099 |
| IRS990/GrossReceiptsAmt | 0 | 73496390 |
| IRS990/GrossRentsGrp/RealAmt | 0 | 45000 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 1 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 1 |
| IRS990/IndependentVotingMemberCnt | 0 | 19 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 53 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartIIIInd | 0 | X |
| IRS990/InfoInScheduleOPartVIIIInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InfoInScheduleOPartXIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 916369 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 360699 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 1571680 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 2848748 |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 214511 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 84435 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 198537 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 497483 |
| IRS990/IntangibleAssetsGrp/EOYAmt | 0 | 73096 |
| IRS990/InterestGrp/FundraisingAmt | 0 | 309206 |
| IRS990/InterestGrp/ManagementAndGeneralAmt | 0 | 121709 |
| IRS990/InterestGrp/ProgramServicesAmt | 0 | 286181 |
| IRS990/InterestGrp/TotalAmt | 0 | 717096 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 1443870 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 1443870 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/InvestmentsOtherSecuritiesGrp/BOYAmt | 0 | 76213 |
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Displayed year
2023 • Form 990Detailed filing. Detailed filing data is available for this year.