Civic Intelligence

Muscular Dystrophy Association Inc

990 • Fiscal year 2015 • EIN 13-1665552

Jan 01, 2015 to Dec 31, 2015 • Filed on Aug 12, 2016

Organization Profilewww.mda.org

View Organization Page

222 SOUTH RIVERSIDE PLAZA Suite 150Chicago, IL 60606-6000

(312) 260-5900

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

87th percentile

0.91x

Higher debt load relative to assets than 87% of similar nonprofits.

2015 filings • 501(c)3 • $100M-$250M nonprofits • Source year 2015

Liabilities / Revenue

61st percentile

0.68x

Higher debt load relative to revenue than 61% of similar nonprofits.

2015 filings • 501(c)3 • $100M-$250M nonprofits • Source year 2015

Net Margin

49th percentile

4.1%

Higher net margin than 49% of similar nonprofits.

2015 filings • 501(c)3 • $100M-$250M nonprofits • Source year 2015

Top Officer Pay

61st percentile

$593,695

Higher top officer pay than 61% of similar nonprofits.

Top officer pay equals 0.5% of source-year revenue.

2015 filings • 501(c)3 • $100M-$250M nonprofits • Source year 2015

Asset Growth

19th percentile

-3.6%

Faster asset growth than 19% of similar nonprofits.

2015 filings • 501(c)3 • $100M-$250M nonprofits • Annualized from 2014 to 2015

Revenue Growth

18th percentile

-10%

Faster revenue growth than 18% of similar nonprofits.

2015 filings • 501(c)3 • $100M-$250M nonprofits • Annualized from 2014 to 2015

Balance Sheet
Liabilities / Assets87th percentile

Assets

Down

$94,245,972

Down $3,541,546 (-3.6%) from 2014

Net Assets

Up

$8,419,763

Up $2,258,483 (+37%) from 2014

Liabilities

Down

$85,826,209

Down $5,800,029 (-6.3%) from 2014

Revenue And Expenses
Liabilities / Revenue61st percentileNet Margin49th percentile

Revenue

Down

$126,037,816

Down $14,333,419 (-10%) from 2014

Expenses

Down

$120,811,066

Down $10,704,656 (-8.1%) from 2014

Net Income

Down

$5,226,750

Down $3,628,763 (-41%) from 2014

Historical Trend

Balance Sheet Trend

Asset Growth19th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$150M$100M$50M$0-$50MAssets 2010: $121,222,970Liabilities 2010: $53,951,327Net Assets 2010: $67,271,6432010Assets 2011: $98,307,873Liabilities 2011: $84,950,677Net Assets 2011: $13,357,1962011Assets 2012: $100,099,622Liabilities 2012: $98,635,094Net Assets 2012: $1,464,5282012Assets 2013: $102,852,460Liabilities 2013: $81,721,263Net Assets 2013: $21,131,1972013Assets 2014: $97,787,518Liabilities 2014: $91,626,238Net Assets 2014: $6,161,2802014Assets 2015: $94,245,972Liabilities 2015: $85,826,209Net Assets 2015: $8,419,7632015Assets 2016: $91,932,738Liabilities 2016: $84,003,147Net Assets 2016: $7,929,5912016Assets 2017: $94,239,232Liabilities 2017: $78,070,364Net Assets 2017: $16,168,8682017Assets 2018: $83,664,541Liabilities 2018: $73,718,038Net Assets 2018: $9,946,5032018Assets 2019: $81,509,086Liabilities 2019: $82,222,737Net Assets 2019: -$713,6512019Assets 2020: $71,915,435Liabilities 2020: $95,625,096Net Assets 2020: -$23,709,6612020Assets 2021: $75,564,994Liabilities 2021: $70,843,244Net Assets 2021: $4,721,7502021Assets 2022: $64,403,820Liabilities 2022: $57,595,156Net Assets 2022: $6,808,6642022Assets 2023: $66,561,388Liabilities 2023: $58,167,552Net Assets 2023: $8,393,8362023Assets 2024: $57,971,496Liabilities 2024: $54,536,026Net Assets 2024: $3,435,4702024

Highlighted filing

2015

Assets$94,245,972
Liabilities$85,826,209
Net Assets$8,419,763
Open 2015 Filing

Operations Trend

Revenue Growth18th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$200M$150M$100M$50M$0-$50MExpenses 2010: $179,743,2562010Revenue 2011: $156,588,617Expenses 2011: $175,594,205Net Income 2011: -$19,005,5882011Expenses 2012: $166,824,0472012Revenue 2013: $150,325,720Expenses 2013: $148,005,192Net Income 2013: $2,320,5282013Revenue 2014: $140,371,235Expenses 2014: $131,515,722Net Income 2014: $8,855,5132014Revenue 2015: $126,037,816Expenses 2015: $120,811,066Net Income 2015: $5,226,7502015Revenue 2016: $120,660,402Expenses 2016: $118,081,305Net Income 2016: $2,579,0972016Revenue 2017: $117,485,260Expenses 2017: $112,083,570Net Income 2017: $5,401,6902017Revenue 2018: $110,657,553Expenses 2018: $107,797,032Net Income 2018: $2,860,5212018Revenue 2019: $100,972,775Expenses 2019: $112,749,799Net Income 2019: -$11,777,0242019Revenue 2020: $63,707,273Expenses 2020: $68,372,442Net Income 2020: -$4,665,1692020Revenue 2021: $63,393,990Expenses 2021: $53,419,636Net Income 2021: $9,974,3542021Revenue 2022: $63,227,837Expenses 2022: $58,970,307Net Income 2022: $4,257,5302022Revenue 2023: $59,437,892Expenses 2023: $62,127,770Net Income 2023: -$2,689,8782023Revenue 2024: $60,356,244Expenses 2024: $65,965,386Net Income 2024: -$5,609,1422024

Highlighted filing

2015

Revenue$126,037,816
Expenses$120,811,066
Net Income$5,226,750
Open 2015 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2015 to Dec 31, 2015
Signed
Aug 12, 2016
Return Version
2015v2.1
Gross Receipts
$173,396,957
Mission and Program Overview

Mission

Mda is the nonprofit health agency dedicated to curing muscular dystrophy, als, and related diseases by funding worldwide research. The association also provides comprehensive health care and support services, advocacy, and education.

SEE SCHEDULE O

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$64,327,323$64,223,360▼ $103,963
Cash and Non-Interest-Bearing Accounts$25,464,796$23,563,965▼ $1,900,831
Pledges and Grants Receivable$5,248,079$3,029,209▼ $2,218,870
Prepaid Expenses and Deferred Charges$1,520,433$2,560,027▲ $1,039,594
Land, Buildings, and Equipment, Net$1,226,887$869,411▼ $357,476
Savings and Temporary Cash Investments$0$0→ $0
Accounts Receivable$0$0→ $0
Other Notes and Loans Receivable, Net$0$0→ $0
Receivable From Disqualified Prsn$0$0→ $0
Receivables From Officers Etc$0$0→ $0
Investments Other Securities$0$0→ $0
Investments Program Related$0$0→ $0
Intangible Assets$0$0→ $0
Inventories for Sale or Use$0$0→ $0
Loans From Officers Directors$0$0→ $0
Total Assets$97,787,518$94,245,972▼ $3,541,546
Other Assets Total$0$0→ $0
Liabilities
Other Liabilities$56,493,701$54,535,910▼ $1,957,791
Mortgage Notes Payable Secured by Investment Property$15,500,000$14,500,000▼ $1,000,000
Grants Payable$12,161,000$11,486,911▼ $674,089
Accounts Payable and Accrued Expenses$7,471,537$5,303,388▼ $2,168,149
Unsecured Notes Loans Payable$0$0→ $0
Deferred Revenue$0$0→ $0
Escrow Account Liability$0$0→ $0
Tax Exempt Bond Liabilities$0$0→ $0
Total Liabilities$91,626,238$85,826,209▼ $5,800,029
Net Assets / Fund Balance
Temporarily Rstr Net Assets$5,616,191$4,027,996▼ $1,588,195
Unrestricted Net Assets$55,712$3,908,059▲ $3,852,347
Permanently Rstr Net Assets$489,377$483,708▼ $5,669
Total Net Assets Fund Balance$6,161,280$8,419,763▲ $2,258,483
Total Liabilities and Net Assets / Fund Balance$97,787,518$94,245,972▼ $3,541,546

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$816,953$5,701,940$6,518,893
Other Land Buildings$43,047$13,060$56,107
Leasehold Improvements$9,411$7,836$17,247

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2015$362,888-▼ $5,691-$357,197
2014$346,757-▲ $16,131-$362,888
2013$251,275$50,000▲ $45,482-$346,757
2012$175,428$50,000▲ $25,847-$251,275
2011$125,667$50,000▼ $239-$175,428
Compensation and Service Providers
Top Officer Pay61st percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Steven M DerksPresident & CEOFT$473,271$120,424$593,695
Julie Faber CPAAsst. Treasurer & CFOFT$243,128$6,807$249,935
Valerie a Cwik MdAsst. Sec/chief Med ScientificFT$237,933$6,807$244,740
Steven FordEvp - Chief Comm/mrkt OfficerFT$212,036$23,324$235,360
Ann McnamaraEvp - Chief Dev. OfficerFT$223,425$620$224,045
Gail Schmertz Kerner EsqChief Legal OfficerFT$196,731$18,074$214,805
Grace K Pavlath PhdSr. VP - Scientific Prog DirectorFT$197,601$12,908$210,509
Eileen Timmins PhdVP & Chief Hr OfficerFT$194,250$12,498$206,748
Robert GrinsfelderEvp - Chief Field Ops OfficerFT$192,274$12,908$205,182
Jeannine M HoulihanChief Information OfficerFT$184,945$6,807$191,752
John WalshDivision Chief ExecutiveFT$160,587$18,074$178,661
Bradley BargholsDivision Chief ExecutiveFT$151,446$18,074$169,520
Margaret HodgesDivision Chief ExecutiveFT$145,472$18,074$163,546

Board Members and Trustees

NameTitle
R Rodney Howell MdChairman
Christopher J Rosa PhdVice-chairman
Bart ConnerDirector
Benjamin F Cumbo IiiDirector
C Thomas Caskey MdDirector
Daniel G FriesDirector
Dave HuttonDirector
Harold C CrumpDirector
Honorable Brad HenryDirector
John TogninoDirector
Kristine WelkerDirector
Lilian Wu PhdDirector
Louis M Kunkel PhdDirector
Mark SmithDirector
Mike RowlettDirector
Olin F MorrisDirector
Patricia NazemetzDirector
Stanley H Appel MdDirector
Steve FarellaDirector
Timmi MastersDirector
Charles D Schoor EsqSecretary
Victor WrightTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Worldwide Printing Distribution IPrinting2900 E APACHE ST, Tulsa, OK 74110$2,092,156
Aggregated Sourcing LLCPrinting8338 AUSTIN AVE, Morton Grove, IL 60053$889,292
Robert Half International INCTemp StaffingPO BOX 743295, Los Angeles, CA 90074$562,381
Blackbaud INCshared app servicesPO BOX 930256, Atlanta, GA 31193$559,551
Thompson Habib Denison INCdirect mail80 HAYDEN AVE STE 300, Lexington, MA 02421$543,250
Revenue and Support

Revenue Composition

Contributions and Grants
$121,934,463
Program Service Revenue
$0
Investment Income
$2,737,030
Other Revenue
$1,366,323
All Other Contributions
$22,448,411
Change in Net Assets
$5,226,750

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
Yes
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Other Non Cash Contri Table69$609,489Appraisal
Securities Publicly Traded32$88,139Selling Price
Total Noncash Contributions101$697,628-

Audited Revenue Reconciliation

Revenue per Audited Statements
$126,037,816
Revenue Not Reported on Form 990
$-3,853,298
Total Revenue per Audited Statements
$122,184,518
Total Revenue per Form 990
$126,037,816
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$57,706,251
Other Expenses$33,819,429
Grants and Similar Amounts Paid$27,847,205
Total Fundraising Expense$19,740,595
Professional Fundraising Fees$1,438,181

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$33,006,618$4,388,983$4,360,785$41,756,386
Grants to Domestic Orgs$25,746,142--$25,746,142
Other Employee Benefits$8,812,159$1,106,650$458,015$10,376,824
Fees for Services Other$1,730,142$480,881$7,664,376$9,875,399
Office Expenses$3,784,482$1,203,706$3,767,201$8,755,389
Occupancy$5,937,130$619,246$536,890$7,093,266
Travel$2,930,705$349,980$457,558$3,738,243
Payroll Taxes$2,846,708$337,263$354,682$3,538,653
Other Expenses$148,140$1,655,861$404,425$2,208,426
Foreign Grants$2,101,063--$2,101,063
Current Officers, Directors, Trustees, and Key Employees$988,086$793,482$252,820$2,034,388
Fees for Services Professional Fundraising--$1,438,181$1,438,181
Depreciation Depletion$350,176$239,609$22,565$612,350
Information Technology-$586,357-$586,357
Interest-$313,750-$313,750
Conferences and Meetings$195,525$23,313$14,055$232,893
Fees for Services Accounting-$218,971-$218,971
Fees for Service Investment Mgmnt Fees-$130,320-$130,320
Fees for Services Legal$4,127$40,896$9,042$54,065
Total Functional Expenses$886,152$303,268$1,851,711$3,041,131

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$120,811,066
Total Expenses per Audited Statements$120,811,066
Total Expenses per Form 990$120,811,066
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
The Regents of the University of California Los ALos Angeles, CAState of CAResearch$715,870
ReveraGen BioPharma IncSilver Spring, MDC CorpResearch$659,880
Columbia University Medical CenterNew York, NY501(c)(3)Research$645,309
Johns Hopkins University School of MedicineBaltimore, MD501(c)(3)Research$579,663
California Pacific Medical CenterSan Francisco, CA501(c)(3)Medical Diagnosis$560,314
The University of IowaIowa City, IAState of IAResearch$460,325
University of WashingtonSeattle, WAState of WAResearch$342,741
Children's Research Institute (CNMC)Washington, DC501(c)(3)Research$332,412
Children's Hospital BostonBoston, MA501(c)(3)Research$326,336
Thomas Jefferson UniversityPhiladelphia, PA501(c)(3)Research$300,000
Regents of the University of Minnesota - Twin CitiMinneapolis, MNState of MNResearch$275,314
Washington University in St LouisSt Louis, MO501(c)(3)Research$266,902
Miller School of Medicine of the University of MiaCoral Gables, FLState of FLResearch$261,074
Fairview University Medical CenterMinneapolis, MN501(c)(3)Medical Diagnosis$235,625
The Ohio State University Research FoundColumbus, OHState of OHResearch$233,930
Catabasis Pharmaceuticals IncCambridge, MAC CorpResearch$225,800
Emory UniversityAtlanta, GA501(c)(3)Research$218,627
UT Southwestern Medical CenterDallas, TXState of TXResearch$203,364
The Trustees of the University of PennsylvaniaPhiladelphia, PAState of PAResearch$200,802
Baylor College of MedicineHouston, TX501(c)(3)Research$200,000
Joan and Sanford I Weill Medical CollegeNew York, NY501(c)(3)Research$199,999
Johns Hopkins University School of MedicineBaltimore, MD501(c)(3)Medical Diagnosis$195,300
University of TXSW Medical CenterDallas, TXState of TXMedical Diagnosis$192,000
The Curators of the University of MissouriColumbia, MOState of MOResearch$184,600
Stanford UniversitySan Francisco, CAState of CAResearch$184,467
Columbia University Medical CenterNew York, NY501(c)(3)Medical Diagnosis$176,400
University of RochesterRochester, NY501(c)(3)Research$172,064
University of FloridaGainesville, FLState of FLResearch$170,411
The Regents of the University of MichiganAnn Arbor, MIState of MIResearch$160,546
University of Southern CaliforniaLos Angeles, CAState of CAResearch$160,000
The Regents of the University of California San DLa Jolla, CAState of CAResearch$159,648
Sanofi-Aventis US IncBridgewater, NJC CorpResearch$159,500
Vanderbilt Department of NeurologyDallas, TX501(c)(3)Medical Diagnosis$149,000
The Research Institute at Nationwide ChildColumbus, OH501(c)(3)Research$144,600
The Regents of the University of California San FSan Francisco, CAState of CAResearch$135,360
University of ColoradoAurora, COState of COMedical Diagnosis$135,000
Houston Methodist HosptialHouston, TX501(c)(3)Medical Diagnosis$132,300
Washington University School of MedicineSt Louis, MOState of MOMedical Diagnosis$126,000
University of UtahSalt Lake City, UTState of UTResearch$125,000
Massachusetts General HospitalBoston, MA501(c)(3)Medical Diagnosis$123,300
Carolinas Healthcare Foundation IncCharlotte, NCC CorpResearch$109,251
Regents of the University of CaliforniaSan Francisco, CAState of CAMedical Diagnosis$108,000
Regents of the University of CaliforniaLos Angeles, CAState of CAMedical Diagnosis$108,000
Clinical Neurology PCOklahoma City, OK501(c)(3)Medical Diagnosis$107,100
Cedars-Sinai Medical CenterLos Angeles, CA501(c)(3)Research$100,000
Duke UniversityCharlotte, NC501(c)(3)Research$100,000
Fred Hutchinson Cancer Research CenterSeattle, WA501(c)(3)Research$100,000
Northwestern University-ChicagoChicago, IL501(c)(3)Research$100,000
The Jackson LaboratoryBar Harbor, ME501(c)(3)Research$100,000
The Methodist Hospital Research InstituteHouston, TX501(c)(3)Research$100,000
The Regents of the University of ColoradoBoulder, COState of COResearch$100,000
The Scripps Research InstituteLa Jolla, CA501(c)(3)Research$100,000
The University of Alabama at BirminghamBirmingham, ALState of ALResearch$100,000
The University of Oklahoma Health Sciences CenterOklahoma City, OKState of OKResearch$100,000
University of Colorado Denver AMC and DCAurora, COState of COResearch$100,000
University of Kentucky Research FoundationLexington, KYState of KYResearch$100,000
University of MarylandBaltimore, MDState of MDResearch$100,000
University of Massachusetts Medical schoolWorcester, MA501(c)(3)Research$100,000
Virginia Commonwealth UniversityRichmond, VAState of VAResearch$100,000
Boston UniversityBoston, MA501(c)(3)Research$99,628
Colorado State UniversityFort Collins, COState of COResearch$99,536
Sanford-Burnham Medical Research InstituteLa Jolla, CA501(c)(3)Research$99,279
Ludwig Institute for Cancer ResearchLa Jolla, CA501(c)(3)Research$99,009
The Regents of the University of California (DavisDavis, CAState of CAResearch$95,907
University of Rochester Medical CenterRochester, NYState of NYMedical Diagnosis$94,500
University of PittsburghPittsburgh, PAState of PAResearch$93,070
University of Miami Sponsored ProgramsAtlanta, GAState of GAMedical Diagnosis$90,168
Carolinas Medical CenterCharlotte, NC501(c)(3)Medical Diagnosis$90,000
Children's Hospof PhiladelphiaPhiladelphia, PA501(c)(3)Medical Diagnosis$90,000
Arizona Board of Regents University of AZTucson, AZState of AZResearch$84,600
California Institute of TechnologyPasadena, CAC CorpResearch$84,600
Methodist Neurological InstituteHouston, TX501(c)(3)Research$84,600
Purdue UniversityWest Lafayette, INState of INResearch$84,600
Southern Research InstituteBirmingham, AL501(c)(3)Research$84,600
The Board of Trustees of the Univ of ilChicago, ILState of ILResearch$84,600
The George Washington UniversityWashington, DC501(c)(3)Research$84,600
University of OregonEugene, ORState of ORResearch$84,600
Wright State UniversityDayton, OH501(c)(3)Research$82,603
Duke University Medical CenterDurham, NC501(c)(3)Medical Diagnosis$81,000
Emory UniversityAtlanta, GA501(c)(3)Medical Diagnosis$81,000
Hospital For Special SurgeryNew York, NY501(c)(3)Medical Diagnosis$80,000
Rutgers New Jersey Medical SchoolPiscataway, NJ501(c)(3)Medical Diagnosis$78,300
Houston Methodist Research InstituteHouston, TX501(c)(3)Research$76,344
University of TX Hlth Science Ctr MSRDPSan Antonio, TXState of TXMedical Diagnosis$74,700
Hershey Medical CenterHershey, PA501(c)(3)Medical Diagnosis$73,800
NYU Elaine A And Kenneth G Langone MedNew York, NY501(c)(3)Medical Diagnosis$72,900
University Neurology IncCincinnati, OHState of OHMedical Diagnosis$70,200
Hospital of The University of PennsylvaniaPhiladelphia, PAState of PAMedical Diagnosis$70,108
St Peter's Hospital FoundationAlbany, NY501(c)(3)Medical Diagnosis$70,000
Halo Therapeutics LLCNewton, MAPartnershipResearch$69,000
University of Utah School of MedicineSalt Lake City, UTState of UTMedical Diagnosis$67,500
Regents of The University of MichiganOrange, CAState of CAMedical Diagnosis$66,000
University of Washington MedCenterSeattle, WAState of WAMedical Diagnosis$63,900
University of IL Board of TrusteesUrbana, ILState of ILMedical Diagnosis$63,500
Glendale Neurological Assoc DBA (MIND)Farmington Hills, MI501(c)(3)Medical Diagnosis$63,000
Hospital For Special CareNew Britain, CT501(c)(3)Medical Diagnosis$62,600
Montefiore Medical CenterBronx, NY501(c)(3)Medical Diagnosis$62,100
Northwestern Medical Faculty FoundChicago, IL501(c)(3)Medical Diagnosis$62,000
Good Shepherd Rehabilitation HospAllentown, PA501(c)(3)Medical Diagnosis$61,200
Ohio State University HospitalColumbus, OHState of OHMedical Diagnosis$61,200
Palo Alto Veterans Institute for ResearchPalo Alto, CA501(c)(3)Research$60,000
St Joseph's Hospital & Medical CenterPhoenix, AZ501(c)(3)Medical Diagnosis$60,000
The Salk Institute for Biological StudiesLa Jolla, CA501(c)(3)Research$60,000
President and Fellows of Harvard CollegeBoston, MA501(c)(3)Research$59,995
St Jude Children's Research HospitalMemphis, TN501(c)(3)Research$59,737
University of Virginia HealthCharlottesville, VAState of VAMedical Diagnosis$57,600
Health South Rehabilitation HospitalMemphis, TN501(c)(3)Medical Diagnosis$55,700
Children's Hospital Medical CenterCincinnati, OH501(c)(3)Medical Diagnosis$54,450
University of Arkansas for Medical SciencesLittle Rock, ARState of ARMedical Diagnosis$54,000
University of PittsburghPittsburgh, PAState of PAMedical Diagnosis$54,000
The Children's Hospital in AuroraAurora, CO501(c)(3)Medical Diagnosis$52,200
The Research Foundation of SUNYSyracuse, NYState of NYResearch$50,633
Nemours Children's Clinic - OrlandoJacksonville, FL501(c)(3)Medical Diagnosis$50,000
Northeast ALS ConsortiumSanta Monica, CA501(c)(3)Research$50,000
The University of Alabama at BirminghamBirmingham, ALState of ALMedical Diagnosis$50,000
University of MA Memorial Medical CenterWorcester, MAState of MAMedical Diagnosis$49,991
Alfred I Dupont Hospital For ChildrenWilmington, DE501(c)(3)Medical Diagnosis$49,500
HospEspanol De Auxilio Mutuo IncHato Rey, PR501(c)(3)Medical Diagnosis$49,500
Seattle Children's HospitalSeattle, WA501(c)(3)Medical Diagnosis$49,050
KUMC Research InstituteKansas City, KS501(c)(3)Medical Diagnosis$46,800
University of Iowa Hospitals & ClinicsIowa City, IAState of IAMedical Diagnosis$46,800
The University of Texas Health Science CtrHouston, TXState of TXResearch$46,726
SUNY Upstate Medical UniversitySyracuse, NY501(c)(3)Medical Diagnosis$45,900
Rady Children's Hospital - San DiegoSan Diego, CA501(c)(3)Medical Diagnosis$45,000
Regents of the University of CaliforniaSacramento, CAState of CAMedical Diagnosis$45,000
University of Puerto Rico Medical SciencesSan Juan, PRPuerto RicoMedical Diagnosis$45,000
University Medical AssociatesCharleston, SCState of SCMedical Diagnosis$43,875
Lucile Salter Packard Child HospMenlo Park, CA501(c)(3)Medical Diagnosis$43,000
University of New Mexico Health & ScienceAlbuquerque, NMState of NMMedical Diagnosis$41,400
SUNY Downstate Med CtrBrooklyn, NY501(c)(3)Medical Diagnosis$40,500
Toledo Children's Hospital - Center For Health SerToledo, OH501(c)(3)Medical Diagnosis$40,500
Mercy Health Saint Mary'sGrand Rapids, MI501(c)(3)Medical Diagnosis$40,000
Virginia Commonwealth UniversityRichmond, VA501(c)(3)Medical Diagnosis$40,000
Yale UniversityNew Haven, CT501(c)(3)Medical Diagnosis$37,000
Metrohealth Medical CenterCleveland, OH501(c)(3)Medical Diagnosis$36,000
Oregon Health & Science UniversityPortland, OR501(c)(3)Medical Diagnosis$36,000
Ponce School of MedicinePonce, PR501(c)(3)Medical Diagnosis$36,000
University of Nebraska Medical CenterOmaha, NEState of NEMedical Diagnosis$36,000
UNC HospitalsChapel Hill, NCState of NCMedical Diagnosis$34,200
Drexel Neurological AssociatesPhiladelphia, PA501(c)(3)Medical Diagnosis$33,750
LSU School of MedicineNew Orleans, LA501(c)(3)Medical Diagnosis$33,300
Brigham and Women's HospitalBoston, MA501(c)(3)Medical Diagnosis$32,580
Children's Hosp National Med CtrWashington, DC501(c)(3)Medical Diagnosis$32,400
W Virginia University Research CorpMorgantown, WVState of WVMedical Diagnosis$32,400
St Joseph's Children's Hospital of TampaTampa, FL501(c)(3)Medical Diagnosis$31,500
The Mucio F Delgado ClinicTucson, AZ501(c)(3)Medical Diagnosis$31,500
University of Arizona Health Sciences CtrTucson, AZState of AZMedical Diagnosis$31,500
Le Bonheur Children's HospitalMemphis, TN501(c)(3)Medical Diagnosis$30,375
Children's Medical CenterDallas, TX501(c)(3)Medical Diagnosis$30,000
Regents of The University of MichiganAnn Arbor, MIState of MIMedical Diagnosis$30,000
Via Christi Hospitals Wichita IncWichita, KS501(c)(3)Medical Diagnosis$29,250
Nationwide Children's HospitalColumbus, OH501(c)(3)Medical Diagnosis$28,800
University of Florida HealthGainesville, FLState of FLMedical Diagnosis$27,450
Children's Healthcare of Atlanta at Scottish RiteAtlanta, GA501(c)(3)Medical Diagnosis$27,000
Children's Hospital BostonBoston, MA501(c)(3)Medical Diagnosis$27,000
Louisiana State University Health Sci CtrShreveport, LAState of LAMedical Diagnosis$27,000
Mayo Clinic JacksonvilleJacksonville, FL501(c)(3)Medical Diagnosis$27,000
Loma Linda UniversityLoma Linda, CA501(c)(3)Medical Diagnosis$26,100
American Family Children's HospitalMadison, WI501(c)(3)Medical Diagnosis$25,000
Ann & Robert H Lurie Children's HospitalChicago, IL501(c)(3)Medical Diagnosis$25,000
Community Medical CentersSan Francisco, CA501(c)(3)Medical Diagnosis$25,000
Dean ClinicMadison, WI501(c)(3)Medical Diagnosis$25,000
Shriners Hospital For Children - ChicagoChicago, IL501(c)(3)Medical Diagnosis$25,000
The Queen's Medical CenterHonolulu, HI501(c)(3)Medical Diagnosis$25,000
Children's Clinics For Rehabilitative ServTucson, AZ501(c)(3)Medical Diagnosis$24,300
Neurology Associates of ArlingtonMansfield, TX501(c)(3)Medical Diagnosis$24,300
Sarasota Memorial HospitalSarasota, FL501(c)(3)Medical Diagnosis$24,000
Covenant Health SystemLubbock, TX501(c)(3)Medical Diagnosis$23,600
Froedtert Memorial Lutheran HospitalMilwaukee, WI501(c)(3)Medical Diagnosis$23,400
Dartmouth-Hitchcock Medical CenterLebanon, NH501(c)(3)Medical Diagnosis$22,500
IU Health Neuroscience CenterIndianapolis, IN501(c)(3)Medical Diagnosis$22,500
IU Health Riley Hospital for ChildrenIndianapolis, IN501(c)(3)Medical Diagnosis$22,500
Olive View - UCLA Medical CenterSylmar, CA501(c)(3)Medical Diagnosis$22,500
Sentara Norfolk General HospitalNorfolk, VA501(c)(3)Medical Diagnosis$22,500
St Anthony's Neurology GroupClearwater, FL501(c)(3)Medical Diagnosis$22,500
Tufts Medical Center HospitalBoston, MA501(c)(3)Medical Diagnosis$22,500
University of Nevada School of MedicineLas Vegas, NVState of NVMedical Diagnosis$22,500
Georgetown UniversityWashington, DC501(c)(3)Medical Diagnosis$20,700
Children's Hospital of Orange CountyOrange, CA501(c)(3)Medical Diagnosis$20,400
Carilion Medical CenterRoanake, VA501(c)(3)Medical Diagnosis$20,000
Children's Hospital Los AngelesLos Angeles, CA501(c)(3)Medical Diagnosis$20,000
Gillette Children's Specialty HealthcareMinneapolis, MN501(c)(3)Medical Diagnosis$20,000
Spectrum Health FoundationGrand Rapids, MI501(c)(3)Medical Diagnosis$20,000
Mercy Clinic NeurologySpringfield, MO501(c)(3)Medical Diagnosis$19,000
Albany Medical Center HospitalAlbany, NY501(c)(3)Medical Diagnosis$18,900
Children's Hospital of PittsburghPittsburgh, PA501(c)(3)Medical Diagnosis$18,900
Georgia Health Sciences Medical CenterAugusta, GA501(c)(3)Medical Diagnosis$18,000
St Charles Hospital And Rehabilitation CtrPort Jefferson, NY501(c)(3)Medical Diagnosis$18,000
St Luke's Rehabilitation InstituteSpokane, WA501(c)(3)Medical Diagnosis$18,000
Texas Children's HospitalHouston, TX501(c)(3)Medical Diagnosis$18,000
The Children's Hospital in BirminghamBirmingham, AL501(c)(3)Medical Diagnosis$18,000
Wake Forest University School of MedicineWinstonSalem, NCState of NCMedical Diagnosis$18,000
Prevea ClinicGreen Bay, WI501(c)(3)Medical Diagnosis$17,944
Sanford ClinicFargo, ND501(c)(3)Medical Diagnosis$17,100
Massachusetts General HospitalBoston, MA501(c)(3)Research$16,903
Neurology AssociatesSioux Falls, SD501(c)(3)Medical Diagnosis$16,200
Rhode Island HospitalProvidence, RI501(c)(3)Medical Diagnosis$16,200
OSF Medical Group NeurologyPeoria, IL501(c)(3)Medical Diagnosis$16,000
Children's Hospital RichmondRichmond, VA501(c)(3)Medical Diagnosis$15,300
Board of Trustees of SIUCarbondale, IL501(c)(3)Medical Diagnosis$15,000
Carolinas Medical CenterCharlotte, NC501(c)(3)Research$14,900
Maine Medical CenterScarborough, ME501(c)(3)Medical Diagnosis$14,850
Elkhart Clinic LLCElkhart, IN501(c)(3)Medical Diagnosis$14,400
Hospital de la ConcepcionSan German, PR501(c)(3)Medical Diagnosis$14,400
Lutheran Hospital of IndianaFort Wayne, IN501(c)(3)Medical Diagnosis$14,400
Buffalo General Medical CenterBuffalo, NY501(c)(3)Medical Diagnosis$13,500
Round Rock Medical CenterRound Rock, TX501(c)(3)Medical Diagnosis$13,500
Sacred Heart HospitalEugene, OR501(c)(3)Medical Diagnosis$13,500
Specially For Children - Child Neur ctrAustin, TX501(c)(3)Medical Diagnosis$13,500
Carle Physician GroupUrbana, IL501(c)(3)Medical Diagnosis$13,300
Dent Neurologic Group LLPAmherst, NY501(c)(3)Medical Diagnosis$12,600
University of MissouriColumbia, MOState of MOMedical Diagnosis$12,600
University of Tennessee Medical CenterKnoxville, TNState of TNMedical Diagnosis$12,600
White Plains Hospital & Medical CenterWhite Plains, NY501(c)(3)Medical Diagnosis$12,600
Phoenix Children's HospitalPhoenix, AZ501(c)(3)Medical Diagnosis$12,000
Baptist Hospital EastLouisville, KY501(c)(3)Medical Diagnosis$11,700
Billings ClinicBillings, MT501(c)(3)Medical Diagnosis$11,700
St Francis Community Health CenterMonroe, LA501(c)(3)Medical Diagnosis$11,250
Eastern Maine Medical CenterBangor, ME501(c)(3)Medical Diagnosis$10,800
Marshfield ClinicMarshfield, WI501(c)(3)Medical Diagnosis$10,800
Nationwide Children's HospitalColumbus, OH501(c)(3)Research$10,000
St Luke's Health SystemBoise, ID501(c)(3)Medical Diagnosis$10,000
Children's Hospital Central Ca PediatricMadera, CA501(c)(3)Medical Diagnosis$9,000
Children's Hospital New OrleansNew Orleans, LA501(c)(3)Medical Diagnosis$9,000
Hamot 2nd Century FundErie, PA501(c)(3)Medical Diagnosis$9,000
Rapides Specialty Clinic Division of RRMCAlexandria, LA501(c)(3)Medical Diagnosis$9,000
Shriners Hospfor Children - PortlandPortland, OR501(c)(3)Medical Diagnosis$9,000
Texas Neurology PADallas, TX501(c)(3)Medical Diagnosis$9,000
Cook Children's Medical CenterFt Worth, TX501(c)(3)Medical Diagnosis$8,100
Greenville Hosp System University Medical GroupGreenville, SC501(c)(3)Medical Diagnosis$8,100
Spartanburg Neurological ServicesSpartanburg, SC501(c)(3)Medical Diagnosis$8,100
Gordon Research ConferencesWest Kingston, RI501(c)(3)Research$7,500
Children's Hospital of WisconsinMilwaukee, WI501(c)(3)Medical Diagnosis$7,200
Shriners Hospital For Children in SpokaneSpokane, WA501(c)(3)Medical Diagnosis$7,200
University of Louisville Physicians IncLouisville, KYState of KYMedical Diagnosis$7,000
Michigan State UniversityEast Lansing, MIState of MIMedical Diagnosis$6,750
The Duluth Clinic LtdDuluth, MN501(c)(3)Medical Diagnosis$6,750
Fletcher Allen Health Care Center - University ofBurlington, VT501(c)(3)Medical Diagnosis$6,300
Driscoll Children's HospitalCorpus Christi, TX501(c)(3)Medical Diagnosis$6,000

International Summary

Spending
$2,126,768

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
North AmericaProgram ServicesGrants to Recipients--$838,253
Europe (Including Iceland and Greenland)Program ServicesGrants to Recipients--$705,287
East Asia and the PacificProgram ServicesGrants to Recipients--$407,849
South AmericaProgram ServicesGrants to Recipients--$98,000
Middle East and North AfricaProgram ServicesGrants to Recipients--$77,379
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
Yes
Professional fundraiser used
Yes

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$8,673,714
Fundraising Gross Income$8,673,714
Professional Fundraising Fees$1,438,181
Gaming Gross Income$644,807
Gaming Direct Expenses$71,397

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Special Events$82,361,567$3,758,198$3,758,198$0
Signature$12,829,417$2,671,805$2,671,805$0
Total Events$107,475,347$8,673,714$8,673,714-
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
Daniel G FriesMDA Board MemberPension Actuaries ServiceNo$215,281

Loans and Receivables

Line ItemBeginningEndChange
Loans from Officers, Directors, Trustees, and Key Employees$0$0→ $0
Receivables from Disqualified Persons$0$0→ $0
Receivables from Officers, Directors, Trustees, and Key Employees$0$0→ $0
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Pension Postretirement Plan Ob$54,535,910
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
Yes
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 4

“The organization revised its bylaws in 2015 to add terms for board of director members and officers and to update and clarify the roles and responsibilities of certain members, officers and committees including the president.”

Form 990, Part VI, Section B, Line 11

“All board members were provided a copy of the federal form 990 before filing with the irs.”

Form 990, Part VI, Section B, Line 12C

“The conflict of interest policy is monitored by the human resource department in conjunction with legal.”

Form 990, Part VI, Section B, Line 15

“A compensation study was done and was approved by the board of directors.”

Form 990, Part VI, Section C, Line 19

“Governing documents and the conflict of interest policies are internal documents. Copies of the audited financial statements are available upon request.”

Filing and Contact Details

Filer

Filer Name
Muscular Dystrophy Association Inc
EIN
13-1665552
In Care Of
% STEPHEN P EVANS VP FINANCE
Phone
3122605900
Address
222 SOUTH RIVERSIDE PLAZA Suite 150, CHICAGO, IL 60606-6000

Signing Officer

Name
Julie Faber
Title
CFO
Phone
3122605900
Signed
2016-08-12
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Steven M Derks
Formed
1950
Legal Domicile
Ny
Voting Board Members
20
Independent Board Members
20
Employees
1,085
Volunteers
1,500,000

Preparer

Firm
Bdo USA Llp
Address
8401 GREENSBORO DRIVE SUITE 800, MCLEAN, VA 22102
Preparer
Marc Berger
Phone
7038930600
Supplemental Narrative

Additional Explanations

Form 990, Part I, Line 1

“Mda is the nonprofit health agency dedicated to curing muscular dystrophy, als, and related diseases by funding worldwide research. The association also provides comprehensive health care and support services, advocacy, and education.”

Other Changes in Net Assets - Form 990, Part XI, Line 9

“Change in unrecognized benefit plan costs 885,031”

Financial Statement Notes

Form 990, Schedule D, Part III, Line 4

“The mda art collection is one of the most varied collections in the nation. The versatility attests to the imagination and talent of the artists. The collection features unusual artistic media, from digital designs to collages with corn, to paint applied with wheelchair wheels and human feet. There are also many works in more traditional oils, watercolors, acrylics, pen and ink, crayons, pastels, bronze, ceramics and photography. Subject matter ranges from self-portraits to landscapes and from still lifes to outer space fantasies. In addition to showcasing the work of talented artists who are affected by neuromuscular diseases, the collection allows the artists to articulate their distinctive vision of living with a disability.”

Form 990, Schedule D, Part X, Line 2

“GENERALLY ACCEPTED ACCOUNTING PRINCIPLES PROVIDE ACCOUNTING AND DISCLOSURE GUIDANCE ABOUT POSITIONS TAKEN BY AN ORGANIZATION IN ITS TAX RETURNS THAT MIGHT BE UNCERTAIN. MANAGEMENT HAS CONSIDERED ITS TAX POSITIONS AND BELIEVES THAT ALL OF THE POSITIONS TAKEN BY THE ASSOCIATION IN THEIR FEDERAL AND STATE EXEMPT ORGANIZATION TAX RETURNS ARE MORE LIKELY THAN NOT TO BE SUSTAINED UPON EXAMINATION. THE ASSOCIATION'S RETURNS FOR THE YEARS ENDED DECEMBER 31, 2015 and 2014 ARE SUBJECT TO EXAMINATION BY FEDERAL AND STATE TAXING AUTHORITIES, GENERALLY FOR THREE YEARS AFTER THEY ARE FILED.”

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IRS990/Form990PartVIISectionAGrp/PersonNm12CHRISTOPHER J ROSA PHD
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IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR

Document Assets

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Filings

Displayed year

2015 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$94,245,972
Liabilities
$85,826,209
Net assets
$8,419,763
Revenue
$126,037,816
Expenses
$120,811,066
Net income
$5,226,750
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$58.0$54.5$3.44$60.4$66.0$5.61
2023Detailed filing. Detailed filing data is available for this year.$66.6$58.2$8.39$59.4$62.1$2.69
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$64.4$57.6$6.81$63.2$59.0$4.26
2021Detailed filing. Detailed filing data is available for this year.$75.6$70.8$4.72$63.4$53.4$9.97
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$71.9$95.6$23.7$63.7$68.4$4.67
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$81.5$82.2$0.71$101$113$11.8
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$83.7$73.7$9.95$111$108$2.86
2017Import issue. A filing source exists for this year, but detailed import did not complete cleanly.$94.2$78.1$16.2$117$112$5.40
2016Detailed filing. Detailed filing data is available for this year.$91.9$84.0$7.93$121$118$2.58
2015Detailed filing. Detailed filing data is available for this year.$94.2$85.8$8.42$126$121$5.23
2014Detailed filing. Detailed filing data is available for this year.$97.8$91.6$6.16$140$132$8.86
2013Detailed filing. Detailed filing data is available for this year.$103$81.7$21.1$150$148$2.32
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$100$98.6$1.46$167
2011Summary only. Only limited summary data is available for this year.$98.3$85.0$13.4$157$176$19.0
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$121$54.0$67.3$180