Liabilities / Assets
86th percentile
Higher debt load relative to assets than 86% of similar nonprofits.
990 • Fiscal year 2018 • EIN 13-1665552
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
86th percentile
Higher debt load relative to assets than 86% of similar nonprofits.
Liabilities / Revenue
61st percentile
Higher debt load relative to revenue than 61% of similar nonprofits.
Net Margin
44th percentile
Higher net margin than 44% of similar nonprofits.
Top Officer Pay
57th percentile
Higher top officer pay than 57% of similar nonprofits.
Top officer pay equals 0.5% of source-year revenue.
Asset Growth
5th percentile
Faster asset growth than 5% of similar nonprofits.
Revenue Growth
17th percentile
Faster revenue growth than 17% of similar nonprofits.
Assets
Down$83,664,541
Down $10,574,691 (-11%) from 2017
Net Assets
Down$9,946,503
Down $6,222,365 (-38%) from 2017
Liabilities
Down$73,718,038
Down $4,352,326 (-5.6%) from 2017
Revenue
Down$110,657,553
Down $6,827,707 (-5.8%) from 2017
Expenses
Down$107,797,032
Down $4,286,538 (-3.8%) from 2017
Net Income
Down$2,860,521
Down $2,541,169 (-47%) from 2017
Mda is the nonprofit health agency dedicated to curing muscular dystrophy, als, and related diseases by funding worldwide research. The association also provides comprehensive health care and support services, advocacy, and education.
The muscular dystrophy association (mda) is committed to transforming the lives of people with muscular dystrophy, als, and related neuromuscular diseases through innovations in science and innovations in care.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Investments in Publicly Traded Securities | $69,833,621 | $59,455,546 | ▼ $10,378,075 |
| Savings and Temporary Cash Investments | $15,629,725 | $9,445,671 | ▼ $6,184,054 |
| Pledges and Grants Receivable | $2,897,784 | $5,818,287 | ▲ $2,920,503 |
| Prepaid Expenses and Deferred Charges | $1,916,899 | $4,916,271 | ▲ $2,999,372 |
| Cash and Non-Interest-Bearing Accounts | $3,405,271 | $3,383,819 | ▼ $21,452 |
| Land, Buildings, and Equipment, Net | $555,932 | $644,947 | ▲ $89,015 |
| Total Assets | $94,239,232 | $83,664,541 | ▼ $10,574,691 |
| Liabilities | |||
| Other Liabilities | $52,682,356 | $49,991,402 | ▼ $2,690,954 |
| Grants Payable | $9,674,969 | $10,468,957 | ▲ $793,988 |
| Mortgage Notes Payable Secured by Investment Property | $10,000,000 | $7,500,000 | ▼ $2,500,000 |
| Accounts Payable and Accrued Expenses | $5,713,039 | $4,068,625 | ▼ $1,644,414 |
| Deferred Revenue | - | $1,689,054 | - |
| Total Liabilities | $78,070,364 | $73,718,038 | ▼ $4,352,326 |
| Net Assets / Fund Balance | |||
| Unrestricted Net Assets | $10,090,586 | $5,364,018 | ▼ $4,726,568 |
| Temporarily Rstr Net Assets | $5,160,724 | $3,816,365 | ▼ $1,344,359 |
| Permanently Rstr Net Assets | $917,558 | $766,120 | ▼ $151,438 |
| Total Net Assets Fund Balance | $16,168,868 | $9,946,503 | ▼ $6,222,365 |
| Total Liabilities and Net Assets / Fund Balance | $94,239,232 | $83,664,541 | ▼ $10,574,691 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Equipment | $500,528 | $6,287,434 | $6,787,962 |
| Leasehold Improvements | $144,419 | $16,885 | $161,304 |
| Period | Beginning | Contrib. | Gain/Loss | Other Uses | End |
|---|---|---|---|---|---|
| 2018 | $790,985 | - | ▼ $43,248 | - | $639,479 |
| 2017 | $477,155 | $259,816 | ▲ $54,014 | - | $790,985 |
| 2016 | $357,197 | $90,075 | ▲ $29,883 | - | $477,155 |
| 2015 | $362,888 | - | ▼ $5,691 | - | $357,197 |
| 2014 | $346,757 | - | ▲ $16,131 | - | $362,888 |
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Ellen Vos | President & CEO | FT | $529,056 | $13,225 | $542,281 |
| Karen Alexander | Evp, Chief Impact & Philanthropy Officer | FT | $277,790 | $12,548 | $290,338 |
| Karen Alexander | Evp, Chief Impact & Philanthropy Off | - | $265,266 | $25,072 | $290,338 |
| Kristin Stephenson | SVP, Chief Policy & Comm Engagement Officer | FT | $210,997 | $30,500 | $241,497 |
| Kristin Stephenson | SVP, Chief Policy & Comm Engagement | - | $210,817 | $30,680 | $241,497 |
| Michael Kennedy Mar-dec | Asst. Treasurer, Asst. Sec. & CFO | FT | $215,428 | $14,681 | $230,109 |
| Grace Pavlath | Sr VP Scientific Program Director | FT | $207,710 | $19,848 | $227,558 |
| Anothony Englert | VP, Fundraising Operations | FT | $203,280 | $21,147 | $224,427 |
| Jeanne Zucker | Senior VP, Healthcare Partnerships | FT | $199,039 | $566 | $199,605 |
| Gail Kerner | Sr VP & General Counsel | FT | $82,335 | $113,528 | $195,863 |
| Eileen Timmins Phd Jan-sept | Asst. Sec. Evp Chief People Officer | FT | $155,722 | $23,852 | $179,574 |
| Julie Faber CPA | Asst. Treasurer & CFO (jan) | FT | $19,696 | $756 | $20,452 |
| Name | Title |
|---|---|
| R Rodney Howell Md | Chairman |
| Christopher J Rosa Phd | Vice Chair |
| Benjamin Cumbo Iii | Director |
| Daniel G Fries | Director |
| Dave Hutton | Director |
| Don Wood | Director |
| Eugene Williams | Director |
| Governor Brad Henry | Director |
| John Costantino | Director |
| John Tognino | Director |
| Kristine Welker | Director |
| Lilian Wu Phd | Director |
| Louis Kunkel Phd | Director |
| Marshall D Smith | Director |
| Mike Rowlett | Director |
| Patricia Nazemetz | Director |
| Stanley Appel Md | Director |
| Steve Farella | Director |
| Charles D Schoor Esq | Secretary |
| Victor Wright | Treasurer |
| Contractor | Services | Location | Compensation |
|---|---|---|---|
| Innovative Telephone And Data | It Services | 150 HOUSTON ST 301, Batavia, IL 60510 | $509,325 |
| Hyatt Regency Crystal City | Event Services | 2799 JEFFERSON DAVIS HWY, Arlington, VA 22202 | $471,102 |
| Flying Television Productions | Gala Management Services | 36 W 25TH ST STE 300, New York, NY 10010 | $396,000 |
| Clifton Larson Allen LLP | Audit & Temp Services | 220 S 6THS ST STE 300, Minneapolis, MN 55402 | $301,878 |
| Bdo USA | Audit & Tax Services | 770 KENMOOR ST STE 300, Grand Rapids, MI 49546 | $209,216 |
| Contribution Type | Contribution Count | Reported Amount | Valuation Method |
|---|---|---|---|
| Securities Miscellaneous | 1 | $2,515,500 | Fair Market Value (FMV) |
| Securities Closely Held Stock | 83 | $1,109,798 | Fair Market Value (FMV) |
| Total Noncash Contributions | 84 | $3,625,298 | - |
| Line Item | Amount |
|---|---|
| Salaries, Compensation, and Employee Benefits | $49,730,603 |
| Other Expenses | $31,488,552 |
| Grants and Similar Amounts Paid | $26,577,877 |
| Total Fundraising Expense | $16,230,816 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $27,966,892 | $5,474,557 | $4,223,358 | $37,664,807 |
| Grants to Domestic Orgs | $23,661,632 | - | - | $23,661,632 |
| Office Expenses | $2,121,463 | $1,615,618 | $4,591,820 | $8,328,901 |
| Fees for Services Other | $2,330,167 | $1,823,093 | $3,735,469 | $7,888,729 |
| Other Employee Benefits | $5,482,570 | $708,959 | $602,410 | $6,793,939 |
| Occupancy | $5,236,970 | $490,221 | $381,506 | $6,108,697 |
| Travel | $2,689,120 | $352,837 | $513,498 | $3,555,455 |
| Payroll Taxes | $2,357,865 | $421,513 | $327,144 | $3,106,522 |
| Foreign Grants | $2,916,245 | - | - | $2,916,245 |
| Current Officers, Directors, Trustees, and Key Employees | $941,261 | $181,224 | $140,267 | $1,262,752 |
| Insurance | $82,891 | $693,180 | $164,076 | $940,147 |
| Pension Plan Contributions | $728,367 | $94,186 | $80,030 | $902,583 |
| Other Expenses | $146,076 | $907,048 | $882,400 | $882,400 |
| Fees for Services Lobbying | $546,855 | - | - | $546,855 |
| Fees for Services Legal | $179,216 | $128,392 | $232,691 | $540,299 |
| Interest | - | $314,538 | - | $314,538 |
| Depreciation Depletion | $177,851 | $80,410 | $12,432 | $270,693 |
| Advertising | $21,826 | $182,520 | $43,203 | $247,549 |
| Fees for Services Accounting | - | $238,029 | - | $238,029 |
| Fees for Service Investment Mgmnt Fees | - | $205,323 | - | $205,323 |
| Conferences and Meetings | $59,495 | $7,806 | $11,361 | $78,662 |
| Total Functional Expenses | $466,037 | $788,519 | $1,991,839 | $3,246,395 |
| Line Item | Amount |
|---|---|
| Total Expenses per Form 990 | $107,797,032 |
| Expenses per Audited Statements | $106,709,309 |
| Total Expenses per Audited Statements | $106,709,309 |
| Expenses Not Reported on Financial Statements | $1,087,723 |
| Other Expense Adjustments | $882,400 |
| Expenses Not Reported on Form 990 | $0 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Mda Care Center at Suny Upstate Medical University | Syracuse, NY | 501(c)(3) | Medical Diagnosis | $1,481,250 |
| University of Florida | Gainesville, FL | 501(c)(3) | Medical Diagnosis and Research | $749,675 |
| Johns Hopkins University | Baltimore, MD | 501(c)(3) | Medical Diagnosis and Research | $699,352 |
| Massachusetts General Hospital | Boston, MA | 501(c)(3) | Research | $481,656 |
| The Regents of the University of California Los Angeles | Los Angeles, CA | 501(c)(3) | Medical Diagnosis and Research | $479,913 |
| University of Massachusetts Medical School | North Worcester, MA | State on Mn | Research | $400,000 |
| University of Rochester | Rochester, NY | State of Vt | Medical Diagnosis and Research | $396,147 |
| Washington University in St Louis | St Louis, MO | 501(c)(3) | Medical Diagnosis and Research | $390,722 |
| The Research Institute at Nationwide Childrens Hospital | Columbus, OH | 501(c)(3) | Research | $378,787 |
| Virginia Commonwealth University | Richmond, VA | 501(c)(3) | Research | $374,331 |
| The Methodist Hospital Foundation | Houston, TX | State of Pa | Medical Diagnosis and Research | $353,500 |
| University of Kansas Medical Center Research Institute Inc | Kansas City, KS | State of Md | Research | $317,945 |
| University of Iowa | Iowa City, IA | 501(c)(3) | Medical Diagnosis and Research | $309,275 |
| CHILDREN'S HOSPITAL BOSTON MA | Boston, MA | 501(c)(3) | Research | $305,685 |
| Carolinas Healthcare Foundation | Charlotte, NC | 501(c)(3) | Medical Diagnosis and Research | $279,904 |
| University of Minnesota | Minneapolis, MN | State of Ne | Research | $270,000 |
| Emory University | Atlanta, GA | 501(c)(3) | Research | $265,722 |
| The University of Alabama at Birmingham | Birmingham, AL | State of Ok | Medical Diagnosis and Research | $262,791 |
| University of Pittsburgh | Pittsburgh, PA | State of Ut | Medical Diagnosis and Research | $261,711 |
| Baylor College of Medicine | Houston, TX | 501(c)(3) | Medical Diagnosis and Research | $261,250 |
| Miller School of Medicine of the University of Miami | Coral Gables, FL | 501(c)(3) | Research | $250,000 |
| George Washington University Dc | Washington, DC | 501(c)(3) | Research | $245,989 |
| University of Miami | Coral Gables, FL | State of Mo | Medical Diagnosis and Research | $228,853 |
| Mayo Clinic Jacksonville | Jacksonville, FL | 501(c)(3) | Research | $205,571 |
| Brown University | Providence, RI | 501(a) | Research | $202,188 |
| Northwestern University | Chicago, IL | 501(c)(3) | Research | $190,000 |
| The Regents of the University of Michigan | Ann Arbor, MI | 501(c)(3) | Medical Diagnosis | $183,502 |
| Columbia University Medical Center | New York, NY | 501(c)(3) | Research | $175,951 |
| Board of Regents Nshe | Reno, NV | State of Nv | Research | $175,000 |
| The Research Foundation of Suny at Binghamton University | Binghamton, NY | 501(c)(3) | Research | $175,000 |
| Cornell University | Ithaca, NY | C-corp | Research | $174,999 |
| University of Utah | Salt Lake City, UT | State of Wa | Medical Diagnosis and Research | $170,788 |
| Ut Southwestern Medical Center | Dallas, TX | 501(c)(3) | Medical Diagnosis and Research | $167,500 |
| Childrens Hospital of Philadelphia | Philadelphia, PA | 501(c)(3) | Medical Diagnosis and Research | $156,250 |
| Acurastem Inc | Seattle, WA | C-corp | Research | $150,000 |
| Ludwig Institute for Cancer Research Ltd | La Jolla, CA | 501(c)(3) | Research | $144,500 |
| Texas Tech University Health Science Center | Lubbock, TX | 501(c)(3) | Research | $140,250 |
| Ann and Robert H Lurie Childrens Hospital of Chicago | Chicago, IL | 501(c)(3) | Medical Diagnosis and Research | $137,500 |
| Rutgers the State University of New Jersey | Newark, NJ | 501(c)(3) | Medical Diagnosis and Research | $137,500 |
| The Regents of the University of California San Francisco--ucsf Main Depos | Los Angeles, CA | 501(c)(3) | Research | $133,840 |
| The Trustees of Columbia University in the City of New York | New York, NY | 501(c)(3) | Medical Diagnosis | $131,250 |
| Beckman Research Institute of the City of Hope | Durarte, CA | 501(c)(3) | Research | $125,000 |
| Perkinelmer Genetics Inc | Atlanta, GA | State of Indiana | Research | $125,000 |
| University of Washington | Seattle, WA | State of CA | Research | $125,000 |
| The Regents of the University of California | Davis, CA | 501(c)(3) | Research | $124,861 |
| Thomas Jefferson University | Philadelphia, PA | 501(c)(3) | Research | $124,623 |
| Yale University | New Haven, CT | - | Medical Diagnosis and Research | $123,357 |
| CHILDREN'S RESEARCH INSTITUTE (CNMC) | Washington, DC | 501(c)(3) | Research | $120,000 |
| Stanford University | Palo Alto, CA | 501(c)(3) | Research | $115,000 |
| Iron Horse Diagnostics Az | Scottsdale, AZ | 501(c)(3) | Research | $108,587 |
| Sanford-burnham Medical Research Institute | La Jolla, CA | 501(c)(3) | Research | $106,779 |
| Harvard Medical School | Cambridge, MA | 501(c)(3) | Research | $100,000 |
| University of Illinois | Champaign, IL | 501(c)(3) | Research | $100,000 |
| Sanford Burnham Prebys Medical Discovery Institute | La Jolla, CA | 501(c)(3) | Research | $99,655 |
| The Ohio State University | Columbus, OH | 501(c)(3) | Medical Diagnosis and Research | $99,412 |
| ST JOSEPH'S HOSPITAL MEDICAL CENTER | Phoenix, AZ | 501(c)(3) | Research | $99,278 |
| The Trustees of the University of Pennsylvania | Philadelphia, PA | 501(c)(3) | Medical Diagnosis and Research | $97,775 |
| Arizona Board of Regents University of Arizona | Tucson, AZ | State of Az | Research | $96,087 |
| Uscuniversity of Southern California--3720 S Flower Street | Los Angeles, CA | 501(c)(3) | Research | $95,000 |
| Mass General Hospital - Research | Boston, MA | 501(c)(3) | Medical Diagnosis | $93,750 |
| Trustees of Columbia University in the City of New York | New York, NY | 501(c)(3) | Research | $92,578 |
| Cedars-sinai Medical Center | Los Angeles, CA | 501(c)(3) | Medical Diagnosis and Research | $92,500 |
| The Regents of the University of California San Diego | La Jolla, CA | State of Co | Medical Diagnosis and Research | $90,000 |
| American Brain Foundation | Minneapolis, MN | 501(c)(3) | Research | $86,666 |
| Colorado State University | Fort Collins, CO | 501(c)(3) | Research | $75,000 |
| Duke University Medical Center | Charlotte, NC | 501(c)(3) | Medical Diagnosis | $75,000 |
| The Emory Clinic Inc | Atlanta, GA | 501(c)(3) | Medical Diagnosis | $75,000 |
| The Regents of the University of Colorado | Aurora, CO | 501(c)(3) | Research | $75,000 |
| The Scripps Research Institute-- La Jolla CA | La Jolla, CA | 501(c)(3) | Research | $75,000 |
| The University of Oklahoma Health Sciences Center | Oklahoma City, OK | 501(c)(3) | Research | $75,000 |
| University of Colorado Denver | Boulder, CO | 501(c)(3) | Medical Diagnosis | $75,000 |
| University of Missouri | Columbia, MO | State of Pa | Research | $75,000 |
| Vanderbilt University Medical Center | Dallas, TX | 501(c)(3) | Medical Diagnosis | $75,000 |
| Icagen-t | Oro Valley, AZ | 501(c)(3) | Research | $74,625 |
| Palo Alto Vet Institute for Research | Palo Alto, CA | 501(c)(3) | Research | $69,621 |
| Wright State University | Dayton, OH | - | Research | $63,840 |
| Dana-farber Cancer Institute | Boston, MA | 501(c)(3) | Research | $60,000 |
| University of Colorado Denver | Aurora, CO | State of Iowa | Research | $60,000 |
| Purdue University | West Lafayette, IN | State on Mn | Research | $58,180 |
| Clinical Neurology Pc | Oklahoma City, OK | State of Co | Medical Diagnosis | $56,250 |
| Kumc Research Institute Inc | Kansas City, KS | 501(c)(3) | Medical Diagnosis | $56,250 |
| Regents of the University of Minnesota | Minneapolis, MN | State of Nj | Medical Diagnosis | $56,250 |
| The Regents of the University of California (irvine) | Irvine, CA | 501(c)(3) | Medical Diagnosis | $56,250 |
| University of Texas Health Science Center at San Antonio | San Antonio, TX | State of Wa | Medical Diagnosis | $56,250 |
| Northeast Als Consortium | Los Angeles, CA | 501(c)(3) | Research | $55,635 |
| The Regents of the University of California (irvine) | Irvine, CA | 501(c)(3) | Research | $55,000 |
| University of Maryland Baltimore | Baltimore, MD | State of Fl | Research | $54,880 |
| The Regents of the University of California San Francisco | San Francisco, CA | 501(c)(3) | Medical Diagnosis | $52,500 |
| Northwestern Medical Group Department of Neurology | Chicago, IL | State of or | Medical Diagnosis | $50,000 |
| Saint Louis University | St Louis, MO | 501(c)(3) | Research | $50,000 |
| The Research Foundation for the Suny on Behalf of University | Albany, NY | 501(c)(3) | Research | $50,000 |
| The University of North Carolina at Chapel Hill | Chapel Hill, NC | 501(c)(3) | Research | $50,000 |
| University of Kentucky Research Foundation | Lexington, KY | State of Ma | Research | $50,000 |
| Solid Biosciences LLC | Washington, DC | 501(c)(3) | Research | $49,870 |
| Nemours Foundation | Jacksonville, FL | 501(c)(3) | Medical Diagnosis | $48,750 |
| Salk Institute for Biological Studies | La Jolla, CA | 501(c)(3) | Research | $45,000 |
| Childrens Hospital Colorado Muscle Clinic | Aurora, CO | 501(c)(3) | Medical Diagnosis | $41,250 |
| Childrens Hospital Medical Center | Cincinnati, OH | 501(c)(3) | Medical Diagnosis | $37,500 |
| Dignity Health St Josephs Hospital | Chandler, AZ | 501(c)(3) | Medical Diagnosis | $37,500 |
| Gillette Childrens Specialty Healthcare | St Paul, MN | 501(c)(3) | Medical Diagnosis | $37,500 |
| Good Shepherd Rehabilitation Hospital | Allentown, PA | 501(c)(3) | Medical Diagnosis | $37,500 |
| Hospital for Special Care | New Britain, CT | 501(c)(3) | Medical Diagnosis | $37,500 |
| Montefiore Medical Center | Bronx, NY | 501(c)(3) | Medical Diagnosis | $37,500 |
| New York University School of Medicine | Boston, MA | 501(c)(3) | Medical Diagnosis | $37,500 |
| Regents of the University of California | Sacramento, CA | 501(c)(3) | Medical Diagnosis | $37,500 |
| Seattle Childrens Hospital | Seattle, WA | 501(c)(3) | Medical Diagnosis | $37,500 |
| St Peters Hospital | Albany, NY | 501(c)(3) | Medical Diagnosis | $37,500 |
| Stanford Child Health Research Institute | Menlo Park, CA | 501(c)(3) | Medical Diagnosis | $37,500 |
| Stanford Health Care | Los Angeles, CA | 501(c)(3) | Medical Diagnosis | $37,500 |
| Sutter Pacific Medical Foundation | San Francisco, CA | 501(c)(3) | Medical Diagnosis | $37,500 |
| The Hospital for Special Surgery | New York, NY | 501(c)(3) | Medical Diagnosis | $37,500 |
| The Research Institute at Nationwide Childrens Hospital | Columbus, OH | 501(c)(3) | Medical Diagnosis | $37,500 |
| University of Washington Medical Center | Seattle, WA | State of TX | Medical Diagnosis | $37,500 |
| Wesley Neurology Clinic Pc | Cordova, TN | 501(c)(3) | Medical Diagnosis | $37,500 |
| Loma Linda University | Loma Linda, CA | 501(c)(3) | Medical Diagnosis | $26,250 |
| Nemours | Jacksonville, FL | State of Ny | Medical Diagnosis | $26,250 |
| Temple University | Philadelphia, PA | State of Wi | Medical Diagnosis | $26,250 |
| The Pennsylvania State University College of Medicine | Hershey, PA | 501(c)(3) | Medical Diagnosis | $26,250 |
| University Hospital Broooklyn Suny Downstate Med Ctr | Syracuse, NY | State of Ar | Medical Diagnosis | $26,250 |
| University of Cincinnati Physicians | Cincinnati, OH | State of Fl | Medical Diagnosis | $26,250 |
| University of Nebraska Medical Center | Omaha, NE | 501(c)(3) | Medical Diagnosis | $26,250 |
| The Jackson Laboratory-- | Bar Harbor, ME | State of Oh | Research | $25,000 |
| Brigham and Womens Hospital Research | Boston, MA | 501(c)(3) | Medical Diagnosis | $22,500 |
| Mcv Associated Physicians | Richmond, VA | 501(c)(3) | Medical Diagnosis | $22,500 |
| Medical College of Wisconsin | Milwaukee, WI | 501(c)(3) | Medical Diagnosis | $22,500 |
| The Rector and Visitors of the University of Virginia | Charlottesville, VA | 501(c)(3) | Medical Diagnosis | $22,500 |
| Target Als | New York, NY | State of TX | Research | $20,000 |
| Baycare Medical Group | Clearwater, FL | 501(c)(3) | Medical Diagnosis | $18,750 |
| Beaumont Health System | Royal Oak, MI | 501(c)(3) | Medical Diagnosis | $18,750 |
| Childrens Healthcare of Atlanta | Atlanta, GA | 501(c)(3) | Medical Diagnosis | $18,750 |
| Childrens Hospital Corporation | Boston, MA | 501(c)(3) | Medical Diagnosis | $18,750 |
| Childrens Hospital of Pittsburgh Foundation | Pittsburgh, PA | 501(c)(3) | Medical Diagnosis | $18,750 |
| Childrens National Medical Center | Washington, DC | 501(c)(3) | Medical Diagnosis | $18,750 |
| Le Bonheur Community Health an Well Being | Memphis, TN | 501(c)(3) | Medical Diagnosis | $18,750 |
| Michigan State University | East Lansing, MI | 501(c)(3) | Medical Diagnosis | $18,750 |
| Neurology Llpc | Tulsa, OK | State of Il | Medical Diagnosis | $18,750 |
| Olive View-ucla Education an Research Institute | Sylmar, CA | 501(c)(3) | Medical Diagnosis | $18,750 |
| Oregon Health an Science University | Portland, OR | 501(c)(3) | Medical Diagnosis | $18,750 |
| Shriners Hospitals for Children Tampa | Portland, OR | 501(c)(3) | Medical Diagnosis | $18,750 |
| The Metrohealth System | Cleveland, OH | 501(c)(3) | Medical Diagnosis | $18,750 |
| Houston Methodist Research Institute | Atlanta, GA | C-corp | Research | $17,775 |
| Carilion Clinic Research an Development | Roanoke, VA | 501(c)(3) | Medical Diagnosis | $15,000 |
| Childrens Clinics for Rehabilitative Services | Tucson, AZ | 501(c)(3) | Medical Diagnosis | $15,000 |
| Childrens Hospital Los Angeles | Los Angeles, CA | 501(c)(3) | Medical Diagnosis | $15,000 |
| Childrens Hospital of the Kings Daughters Inc | Norfolk, VA | 501(c)(3) | Medical Diagnosis | $15,000 |
| Christi Hospitals Wichita Inc | Wichita, KS | 501(c)(3) | Medical Diagnosis | $15,000 |
| Connecticut Childrens Medical Center | Hartford, CT | 501(c)(3) | Medical Diagnosis | $15,000 |
| Dean Health Systems Inc | Madison, WY | 501(c)(3) | Medical Diagnosis | $15,000 |
| Dent Neurologic Institute | Amherst, NY | 501(c)(3) | Medical Diagnosis | $15,000 |
| Geisinger Clinic | Danville, PA | 501(c)(3) | Medical Diagnosis | $15,000 |
| Greenville Health System Upstate Affiliate Organization | Greenville, SC | 501(c)(3) | Medical Diagnosis | $15,000 |
| Inland Northwest Health Services | Spokane, WA | C-corp | Medical Diagnosis | $15,000 |
| Iu Health Neuroscience Center | Indianapolis, IN | 501(c)(3) | Medical Diagnosis | $15,000 |
| Iu Health Riley Hospital for Children | Indianapolis, IN | 501(c)(3) | Medical Diagnosis | $15,000 |
| Louisiana State University Health Sciences Center | New Orleans, LA | 501(c)(3) | Medical Diagnosis | $15,000 |
| Lsuhsc-shreveport | Shreveport, LA | 501(c)(3) | Medical Diagnosis | $15,000 |
| Mayo Clinic | Jacksonville, FL | 501(c)(3) | Medical Diagnosis | $15,000 |
| Mda Clinic at Dartmouth-hitchcock Medical Center--one Medical Center Drive | Lebanon, NH | 501(c)(3) | Medical Diagnosis | $15,000 |
| Medical University of South Carolina | Charleston, SC | 501(c)(3) | Medical Diagnosis | $15,000 |
| Medstar Georgetown University Hospital | Washington, DC | 501(c)(3) | Medical Diagnosis | $15,000 |
| Ponce Health Sciences University | Ponce, PR | 501(c)(3) | Medical Diagnosis | $15,000 |
| Rady Childrens Hospital Foundation | San Diego, CA | 501(c)(3) | Medical Diagnosis | $15,000 |
| Rush University Medical Center | Chicago, IL | 501(c)(3) | Medical Diagnosis | $15,000 |
| Sarasota Memorial Hospital | Sarasota, FL | 501(c)(3) | Medical Diagnosis | $15,000 |
| Shriners Hospitals for Children Chicago | Portland, OR | 501(c)(3) | Medical Diagnosis | $15,000 |
| St Charles Hospital Foundation | Port Jefferson, NY | 501(c)(3) | Medical Diagnosis | $15,000 |
| St Lukes Health System | Boise, ID | 501(c)(3) | Medical Diagnosis | $15,000 |
| Texas Neurology Pa | Dallas, TX | 501(c)(3) | Medical Diagnosis | $15,000 |
| The Board of Regents of the University of Wisconsin System | Madison, WI | 501(c)(3) | Medical Diagnosis | $15,000 |
| The Toledo Hospital Dba Promedica Toledo Childrens Hospital | Toledo, OH | State of Al | Medical Diagnosis | $15,000 |
| The University of North Carolina at Chapel Hill | Atlanta, GA | 501(c)(3) | Medical Diagnosis | $15,000 |
| Trinity Health Dba Mercy Health Saint Marys- | Grand Rapids, MI | 501(c)(3) | Medical Diagnosis | $15,000 |
| University Faculty Associates Inc | Fresno, CA | State of Al | Medical Diagnosis | $15,000 |
| University of Alabama at Birmingham | Birmingham, AL | State of Co | Medical Diagnosis | $15,000 |
| University of Arkansas for Medical Sciences | Little Rock, AZ | State of Co | Medical Diagnosis | $15,000 |
| University of Louisville Research Foundation Inc | Louisville, KY | State of Ma | Medical Diagnosis | $15,000 |
| University of Massachusetts Medical School | North Worcester, MA | State of Ms | Medical Diagnosis | $15,000 |
| University of Mississippi Medical Center | Jackson, MS | State of Nm | Medical Diagnosis | $15,000 |
| University of New Mexico Hsc | Albuquerque, NM | State of TX | Medical Diagnosis | $15,000 |
| University of Vermont Medical Center | Burlington, VT | State of Mo | Medical Diagnosis | $15,000 |
| Uw Hospital an Clinics Authority | Milwaukee, WI | State of Va | Medical Diagnosis | $15,000 |
| Wake Forest University Health Sciences | Winston Salem, NC | 501(c)(3) | Medical Diagnosis | $15,000 |
| West Virginia University Research Corporation | Morgantown, WV | - | Medical Diagnosis | $15,000 |
| California Pacific Medical | San Francisco, CA | 501(c)(3) | Medical Diagnosis | $14,094 |
| Cook Childrens Medical Center | Ft Worth, TX | 501(c)(3) | Medical Diagnosis | $11,250 |
| Maine Medical Center | Portland, ME | 501(c)(3) | Medical Diagnosis | $11,250 |
| Billings Clinic Foundation | Billings, MT | 501(c)(3) | Medical Diagnosis | $7,500 |
| Board of Trustees of Southern Illinois University | Springfield, IL | State of Il | Medical Diagnosis | $7,500 |
| Carle Foundation Hospital | Urbana, IL | 501(c)(3) | Medical Diagnosis | $7,500 |
| Central Texas Neurology Consultants | Round Rock, TX | 501(c)(3) | Medical Diagnosis | $7,500 |
| Child Neurology Consultants of Austin | Austin, TX | 501(c)(3) | Medical Diagnosis | $7,500 |
| Childrens Hospital New Orleans | New Orleans, LA | 501(c)(3) | Medical Diagnosis | $7,500 |
| Childrens Hospital of Orange County | Orange, CA | 501(c)(3) | Medical Diagnosis | $7,500 |
| Driscoll Childrens Hospital | Corpus Christi, TX | 501(c)(3) | Medical Diagnosis | $7,500 |
| Essentia Health Duluth | Duluth, MN | 501(c)(3) | Medical Diagnosis | $7,500 |
| Gordon Research Conferences | W Kingston, RI | 501(c)(3) | Research | $7,500 |
| Marshfield Clinic Research Foundation | Marshfield, WI | 501(c)(3) | Medical Diagnosis | $7,500 |
| Mckinnon Medical Group Pllc | Las Vegas, NV | 501(c)(3) | Medical Diagnosis | $7,500 |
| Mercy Health Foundation Springfield | Springfield, MO | State of Fl | Medical Diagnosis | $7,500 |
| Osf Multi-specialty Group Dba Illinois Neurological | Peoria, IL | 501(c)(3) | Medical Diagnosis | $7,500 |
| Phoenix Childrens Hospital | Phoenix, AZ | 501(c)(3) | Medical Diagnosis | $7,500 |
| Rhode Island Hospital | Providence, RI | 501(c)(3) | Medical Diagnosis | $7,500 |
| Sanford Childrens Specialty Clinic | Fargo, ND | 501(c)(3) | Medical Diagnosis | $7,500 |
| Sanford Medical Center Fargo | Fargo, ND | 501(c)(3) | Medical Diagnosis | $7,500 |
| Shriners Hospital for Children Portland | Portland, OR | 501(c)(3) | Medical Diagnosis | $7,500 |
| St Vincent Hospital Dba Prevea Health | Green Bay, WI | 501(c)(3) | Medical Diagnosis | $7,500 |
| University Neurology Inc | Buffalo, NY | 501(c)(3) | Medical Diagnosis | $7,500 |
| University Physicians | Columbia, MO | 501(c)(3) | Medical Diagnosis | $7,500 |
| Valley Childrens Hospital | Madera, CA | 501(c)(3) | Medical Diagnosis | $7,500 |
| Federation of American Societies for Experimental Biology | Bethesda, MD | 501(c)(3) | Research | $5,000 |
| Region | Activity | Services | Offices | Employees | Spending |
|---|---|---|---|---|---|
| Europe (including Iceland & Greenland) | Program Services | Research Grant | 0 | 0 | $1,432,458 |
| North America | Program Services | Research Grant | 0 | 0 | $1,033,898 |
| East Asia and the Pacific | Program Services | Research Grant | 0 | 0 | $336,389 |
| South America | Program Services | Research Grant | 0 | 0 | $113,500 |
| Line Item | Amount |
|---|---|
| Fundraising Direct Expenses | $6,990,769 |
| Fundraising Gross Income | $6,990,769 |
| Gaming Gross Income | $176,339 |
| Gaming Direct Expenses | $22,165 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Signature | $22,157,968 | $4,297,965 | $4,297,965 | $0 |
| Special Events | $45,691,235 | $2,309,119 | $2,309,119 | $0 |
| Total Events | $73,034,137 | $6,990,769 | $6,990,769 | $0 |
| Interested Party | Relationship | Description | Shared Revenue | Amount |
|---|---|---|---|---|
| - | Mda Board Member | MDA BOARD MEMBER DAN FRIES IS EMPLOYED BY SIBSON CONSULTING AS A SENIOR VP, NEW YORK REGIONAL LEADER, AND IS NOT DIRECTLY COMPENSATED BY MUSCULAR DYSTROPHY ASSOCIATION, INC. SIBSON CONSULTING PROVIDES MDA'S PENSION ACTUARIES. | No | $151,400 |
| Liability | Amount |
|---|---|
| Accrued Pension Cost | $49,991,402 |
“All board members were provided a copy of the federal form 990 before filing with the irs.”
“The conflict of interest policy is monitored by the human resource department in conjunction with legal.”
“A compensation study was done and was approved by the board of directors.”
“Governing documents and the conflict of interest policies are internal documents copies of the audited financial statements are available upon request.”
“Change in unrecognized benefit plan costs -543,808.”
“The organization has a committee responsible for the oversight of the audit as well as the selection of the independent accountant.”
“The mda art collection is one of the most varied collections in the nation. The versatility attests to the imagination and talent of the artists. The collection features unusual artistic media, from digital designs to collages with corn, to paint applied with wheelchair wheels and human feet. There are also many works in more traditional oils, watercolors, acrylics, pen and ink, crayons, pastels, bronze, ceramics and photography. Subject matter ranges from self-portraits to landscapes and from still lifes to outer space fantasies. In addition to showcasing the work of talented artists who are affected by neuromuscular diseases, the collection allows the artists to articulate their distinctive vision of living with a disability.”
“The association's endowment consists of one individual fund established for the advancement of research, programs and services for those with muscular dystrophy. The glen e. & david k. Guttormsen endowed fund for duchenne muscular dystrophy research was established in an agreement, effective may 25, 2010, whereby the association is to maintain and administer the fund in accordance with the donor's desires.”
“U.s. Gaap provides accounting and disclosure guidance about positions taken by an organization in its tax returns that might be uncertain. Management has considered its tax positions and believes that all of the positions taken by the association in its federal and state exempt organization tax returns are more likely than not to be sustained upon examination. The association's returns for years ended december 31, 2018, 2017, 2016, 2015 are open for examination by federal and state taxing authorities, which generally is for three years after they are filed. If applicable, the association would recognize interest and penalties associated with tax matters as part of general and administrative expenses and would include accrued interest and penalties in accrued expenses.”
“Fundraising expenses -882,400. Changes in unrecognized benefit plan costs -543,808.”
“Fundraising expenses 882,400.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
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| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 5713039 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 4068625 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | THE MUSCULAR DYSTROPHY ASSOCIATION (MDA) IS COMMITTED TO TRANSFORMING THE LIVES OF PEOPLE WITH MUSCULAR DYSTROPHY, ALS, AND RELATED NEUROMUSCULAR DISEASES THROUGH INNOVATIONS IN SCIENCE AND INNOVATIONS IN CARE. |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 43203 |
| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 182520 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 21826 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 247549 |
| IRS990/AllOtherContributionsAmt | 0 | 37265502 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/AuditCommitteeInd | 0 | 1 |
| IRS990/BackupWthldComplianceInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt | 0 | JENNIFER BUZALSKI CONTROLER |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 3122605900 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 161 N CLARKE STREET STE 3550 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | CHICAGO |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | IL |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 60601 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
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| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 3383819 |
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| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 15 |
| IRS990/CollectionsOfArtInd | 0 | 1 |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 140267 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 181224 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 941261 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 1262752 |
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| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd | 1 | 22202 |
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| IRS990/Desc | 0 | HEALTH CARE AND COMMUNITY SERVICES:MDA IS COMMITTED TO TRANSFORMING THE LIVES OF PEOPLE AFFECTED BY MUSCULAR DYSTROPHY, ALS AND RELATED NEUROMUSCULAR DISEASES THROUGH INNOVATIONS IN SCIENCE AND INNOVATIONS IN CARE. AS THE LARGEST SOURCE OF FUNDING FOR NEUROMUSCULAR DISEASE RESEARCH OUTSIDE OF THE FEDERAL GOVERNMENT MDA HAS COMMITTED MORE THAN $1 BILLION TO ACCELERATE THE DISCOVERY OF THERAPIES AND CURES. WE SUPPORT THE LARGEST NETWORK OF MULTIDISCIPLINARY CLINICS AT MORE THAN 150 TOP MEDICAL INSTITUTIONS, SERVE THE COMMUNITY WITH ONE-ON-ONE SPECIALIZED SUPPORT, AND OFFER EDUCATIONAL CONFERENCES, EVENTS, AND MATERIALS FOR FAMILIES AND HEALTHCARE PROVIDERS. EACH OF OUR MDA CARE CENTERS OFFERS INDIVIDUALS AND FAMILIES BEST-IN-CLASS, COMPREHENSIVE CARE FROM AN INTEGRATED MULTIDISCIPLINARY TEAM OF HEALTHCARE SPECIALISTS CONVENIENTLY SITED AT ONE LOCATION. IN A SINGLE DAY, PATIENTS CAN SEE MULTIPLE HEALTHCARE PROVIDERS WHO WORK TOGETHER TO ENSURE COORDINATED INDIVIDUAL CARE FOR EVERY PATIENT TO BEST FIT THEIR SPECIFIC NEEDS. HIGHLY TRAINED MDA CARE SPECIALISTS SERVE AS AN IMPORTANT PART OF THE CARE TEAM, HELPING FAMILIES NAVIGATE THE HEALTH SYSTEM, ANSWERING QUESTIONS, DISTRIBUTING MDA EDUCATIONAL MATERIALS, COORDINATING MDA SERVICES, AND ASSISTING WITH COMMUNITY RESOURCE REFERRALS. EACH YEAR THOUSANDS OF CHILDREN/YOUNG ADULTS LEARN VITAL LIFE SKILLS AND GAIN INDEPENDENCE AT SUMMER CAMP AND THROUGH RECREATIONAL PROGRAMS, AT NO COST TO FAMILIES. EACH CAMP IS STAFFED WITH DEDICATED HEALTH PROFESSIONALS AND TRAINED CAMP VOLUNTEERS WHO MEET THE MEDICAL AND PHYSICAL NEEDS OF EACH CAMPER ALL AT NO COST TO FAMILIES. |
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| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 913 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | 1 |
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| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 16 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 17 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 18 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 19 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 20 | 16975 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 21 | 12037 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 22 | 756 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 23 | 14175 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 24 | 12548 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 25 | 20373 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 26 | 12699 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 27 | 19660 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 28 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 29 | 30500 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | BENJAMIN CUMBO III |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | CHARLES D SCHOOR ESQ |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | CHRISTOPHER J ROSA PHD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | DANIEL G FRIES |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | DAVE HUTTON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | DON WOOD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | EUGENE WILLIAMS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | GOVERNOR BRAD HENRY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | JOHN COSTANTINO |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | JOHN TOGNINO |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | KRISTINE WELKER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | LILIAN WU PHD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 12 | LOUIS KUNKEL PHD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 13 | MARSHALL D SMITH |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 14 | MIKE ROWLETT |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 15 | PATRICIA NAZEMETZ |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 16 | R RODNEY HOWELL MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 17 | STANLEY APPEL MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 18 | STEVE FARELLA |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 19 | VICTOR WRIGHT |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 20 | EILEEN TIMMINS PHD JAN-SEPT |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 21 | ELLEN VOS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 22 | JULIE FABER CPA |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 23 | MICHAEL KENNEDY MAR-DEC |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 24 | KAREN ALEXANDER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 25 | ANOTHONY ENGLERT |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 26 | GAIL KERNER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 27 | GRACE PAVLATH |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 28 | JEANNE ZUCKER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 29 | KRISTIN STEPHENSON |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 16 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 17 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 18 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 19 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 20 | 162599 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 21 | 530244 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 22 | 19696 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 23 | 215934 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 24 | 277790 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 25 | 204054 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 26 | 183164 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 27 | 207898 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 28 | 199605 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 29 | 210997 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 16 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 17 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 18 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 19 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 20 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 21 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 22 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 23 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 24 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 25 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 26 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 27 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 28 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 29 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | VICE CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 12 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 13 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 14 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 15 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 16 | CHAIRMAN |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 17 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 18 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 19 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 20 | ASST. SEC. EVP CHIEF PEOPLE OFFICER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 21 | PRESIDENT & CEO |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 22 | ASST. TREASURER & CFO (JAN) |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 23 | ASST. TREASURER, ASST. SEC. & CFO |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 24 | EVP, CHIEF IMPACT & PHILANTHROPY OFFICER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 25 | VP, FUNDRAISING OPERATIONS |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 26 | SR VP & GENERAL COUNSEL |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 27 | SR VP SCIENTIFIC PROGRAM DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 28 | SENIOR VP, HEALTHCARE PARTNERSHIPS |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 29 | SVP, CHIEF POLICY & COMM ENGAGEMENT OFFICER |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/FormationYr | 0 | 1950 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 1 |
| IRS990/FundraisingAmt | 0 | 66043368 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 6990769 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 6990769 |
| IRS990/GainOrLossGrp/SecuritiesAmt | 0 | 4699519 |
| IRS990/GamingActivitiesInd | 0 | 1 |
| IRS990/GamingDirectExpensesAmt | 0 | 22165 |
| IRS990/GamingGrossIncomeAmt | 0 | 176339 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 20 |
| IRS990/GovernmentGrantsAmt | 0 | 304341 |
| IRS990/GrantAmt | 0 | 10258403 |
| IRS990/GrantsPayableGrp/BOYAmt | 0 | 9674969 |
| IRS990/GrantsPayableGrp/EOYAmt | 0 | 10468957 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 23661632 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 23661632 |
| IRS990/GrantsToIndividualsInd | 0 | 0 |
| IRS990/GrantsToOrganizationsInd | 0 | 1 |
| IRS990/GrantToRelatedPersonInd | 0 | 1 |
| IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt | 0 | 11144273 |
| IRS990/GrossReceiptsAmt | 0 | 124115241 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 1 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 1 |
| IRS990/IndependentVotingMemberCnt | 0 | 19 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 39 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartIIIInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InfoInScheduleOPartXIIInd | 0 | X |
| IRS990/InfoInScheduleOPartXIInd | 0 | X |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 164076 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 693180 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 82891 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 940147 |
| IRS990/InterestGrp/ManagementAndGeneralAmt | 0 | 314538 |
| IRS990/InterestGrp/TotalAmt | 0 | 314538 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 1533253 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 1533253 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 69833621 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 59455546 |
| IRS990/IRPDocumentCnt | 0 | 260 |
| IRS990/IRPDocumentW2GCnt | 0 | 8 |
| IRS990/JointCostsInd | 0 | X |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 6304319 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 555932 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 644947 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 6949266 |
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Displayed year
2018 • Form 990Detailed filing. Detailed filing data is available for this year.