Civic Intelligence

Cooleys Anemia Foundation Inc.

990 • Fiscal year 2020 • EIN 11-1971539

Jul 01, 2019 to Jun 30, 2020 • Filed on May 06, 2021

330 Seventh AvenueNew York, NY 10001

(212) 279-8090

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

57th percentile

0.15x

Higher debt load relative to assets than 57% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Liabilities / Revenue

81st percentile

0.67x

Higher debt load relative to revenue than 81% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Net Margin

4th percentile

-104%

Higher net margin than 4% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Top Officer Pay

85th percentile

$160,153

Higher top officer pay than 85% of similar nonprofits.

Top officer pay equals 15.0% of source-year revenue.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Asset Growth

9th percentile

-9.9%

Faster asset growth than 9% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2019 to 2020

Revenue Growth

7th percentile

-53%

Faster revenue growth than 7% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2019 to 2020

Assets

Down

$4,652,443

Down $508,389 (-9.9%) from 2019

Net Assets

Down

$3,938,916

Down $1,106,461 (-22%) from 2019

Liabilities

Up

$713,527

Up $598,072 (+518%) from 2019

Revenue

Down

$1,066,981

Down $1,181,234 (-53%) from 2019

Expenses

Up

$2,173,442

Up $73,733 (+3.5%) from 2019

Net Income

Down

-$1,106,461

Down $1,254,967 (-845%) from 2019

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$8.0M$6.0M$4.0M$2.0M$0Assets 2010: $1,847,129Liabilities 2010: $38,532Net Assets 2010: $1,808,5972010Assets 2011: $1,701,739Liabilities 2011: $91,779Net Assets 2011: $1,609,9602011Assets 2012: $1,920,966Liabilities 2012: $224,192Net Assets 2012: $1,696,7742012Assets 2013: $2,167,146Liabilities 2013: $165,376Net Assets 2013: $2,001,7702013Assets 2014: $2,218,192Liabilities 2014: $148,657Net Assets 2014: $2,069,5352014Assets 2015: $2,300,519Liabilities 2015: $175,872Net Assets 2015: $2,124,6472015Assets 2016: $2,565,824Liabilities 2016: $60,506Net Assets 2016: $2,505,3182016Assets 2017: $3,695,115Liabilities 2017: $340,207Net Assets 2017: $3,354,9082017Assets 2018: $4,960,002Liabilities 2018: $63,131Net Assets 2018: $4,896,8712018Assets 2019: $5,160,832Liabilities 2019: $115,455Net Assets 2019: $5,045,3772019Assets 2020: $4,652,443Liabilities 2020: $713,527Net Assets 2020: $3,938,9162020Assets 2021: $4,659,141Liabilities 2021: $857,539Net Assets 2021: $3,801,6022021Assets 2022: $5,144,098Liabilities 2022: $216,473Net Assets 2022: $4,927,6252022Assets 2023: $5,550,283Liabilities 2023: $481,507Net Assets 2023: $5,068,7762023Assets 2024: $6,376,996Liabilities 2024: $719,996Net Assets 2024: $5,657,0002024

Highlighted filing

2020

Assets$4,652,443
Liabilities$713,527
Net Assets$3,938,916

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$4.0M$2.0M$0-$2.0MExpenses 2010: $2,121,8682010Expenses 2011: $1,629,5152011Expenses 2012: $1,499,4212012Revenue 2013: $1,998,700Expenses 2013: $1,693,704Net Income 2013: $304,9962013Revenue 2014: $1,839,561Expenses 2014: $1,771,796Net Income 2014: $67,7652014Revenue 2015: $1,810,249Expenses 2015: $1,755,137Net Income 2015: $55,1122015Revenue 2016: $2,114,602Expenses 2016: $1,733,931Net Income 2016: $380,6712016Revenue 2017: $2,541,590Expenses 2017: $1,692,000Net Income 2017: $849,5902017Revenue 2018: $3,491,342Expenses 2018: $1,949,379Net Income 2018: $1,541,9632018Revenue 2019: $2,248,215Expenses 2019: $2,099,709Net Income 2019: $148,5062019Revenue 2020: $1,066,981Expenses 2020: $2,173,442Net Income 2020: -$1,106,4612020Revenue 2021: $1,565,758Expenses 2021: $1,703,072Net Income 2021: -$137,3142021Revenue 2022: $3,029,482Expenses 2022: $1,903,459Net Income 2022: $1,126,0232022Revenue 2023: $2,306,555Expenses 2023: $2,165,404Net Income 2023: $141,1512023Revenue 2024: $2,812,580Expenses 2024: $2,224,356Net Income 2024: $588,2242024

Highlighted filing

2020

Revenue$1,066,981
Expenses$2,173,442
Net Income-$1,106,461
Jump To
Filing Snapshot
Filing Period
Jul 1, 2019 to Jun 30, 2020
Signed
May 6, 2021
Return Version
2019v5.0
Gross Receipts
$1,066,981
Mission and Program Overview

Mission

To enhance the quality of patients' lives while taking the necessary steps toward finding a cure for this fatal blood disease.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$2,305,305$3,247,340▲ $942,035
Savings and Temporary Cash Investments$1,430,916$681,411▼ $749,505
Pledges and Grants Receivable$657,872$267,152▼ $390,720
Accounts Receivable$145,732--
Prepaid Expenses and Deferred Charges$358,031$118,573▼ $239,458
Land, Buildings, and Equipment, Net$23,249$17,820▼ $5,429
Total Assets$5,160,832$4,652,443▼ $508,389
Other Assets Total$239,727$320,147▲ $80,420
Liabilities
Deferred Revenue$19,700$556,086▲ $536,386
Unsecured Notes Loans Payable-$141,314-
Accounts Payable and Accrued Expenses$95,399$13,726▼ $81,673
Other Liabilities$356$2,401▲ $2,045
Total Liabilities$115,455$713,527▲ $598,072
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$4,087,458$3,448,281▼ $639,177
Net Assets With Donor Restrictions$957,919$490,635▼ $467,284
Total Net Assets Fund Balance$5,045,377$3,938,916▼ $1,106,461
Total Liabilities and Net Assets / Fund Balance$5,160,832$4,652,443▼ $508,389

Asset Categories

AssetBook ValueDepreciationBasis
Other Assets Org$320,147--
Compensation and Service Providers

Employees

NameTitleBaseTotal
Craig ButlerExecutive Di$160,153$160,153
Craig ButlerExecutive Director$160,153$160,153
Revenue and Support

Revenue Composition

Contributions and Grants
$786,663
Program Service Revenue
$0
Investment Income
$58,438
Other Revenue
$221,880
All Other Contributions
$630,767
Change in Net Assets
$-1,106,461

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,066,981
Total Revenue per Audited Statements
$1,066,981
Total Revenue per Form 990
$1,066,981
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$985,562
Salaries, Compensation, and Employee Benefits$883,505
Grants and Similar Amounts Paid$304,375
Total Fundraising Expense$243,769
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$497,595$104,624$144,164$746,383
Fees for Services Other$513,610$8,584$5,581$527,775
Grants to Domestic Orgs$271,875--$271,875
Fees for Services Accounting$94,800$44,670-$139,470
Occupancy$88,683$21,713$27,789$138,185
Office Expenses$93,145$13,258$26,991$133,394
Payroll Taxes$80,623$17,334$25,351$123,308
Conferences and Meetings$29,661$900$3,598$34,159
Foreign Grants$32,500--$32,500
Pension Plan Contributions$10,181$1,621$2,012$13,814
Depreciation Depletion--$7,209$7,209
Insurance$3,222$1,074$1,074$5,370
Total Functional Expenses$1,715,895$213,778$243,769$2,173,442

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$2,173,442
Total Expenses per Audited Statements$2,173,442
Total Expenses per Form 990$2,173,442
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Emory University-1599 Clifton Rd FlAtlanta, GA--$50,000
THE CHILDREN'S HOSPITAL OF PHILADELPhiladelphia, PA--$50,000
THE CHILDREN'S HOSPITAL OF PHILADELPhiladelphia, PA--$50,000
Massachusetts General Hospital-reseBoston, MA--$32,500
University of Delaware Cashiers ONewark, DE--$32,500
BOSTON CHILDREN'S HOSPITAL RESEARCBoston, MA--$24,375
University of Connecticut SponsoreStorrs, CT--$24,375
Trustees of University of PennsylvaPhiladelphia, PA--$8,125

International Compliance

Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Deferred Rent Obligation$2,401
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI

All information available upon request.

Form 990, Page 6, Part VI, Line 11B

No review will be conducted. The financials statements are audited and the tax advisors complete the return based on audited financials that have already gone through the review process from those charged with governance.

Form 990, Page 6, Part VI, Line 12C

All officers and board members are required to sign potential conflict of interest disclosures. Ongoing training of all officers and directors is done throughout the year to have the ability to assist in identifying potential conflicts of interest.

Form 990, Page 6, Part VI, Line 15A

There is a staffing compensation committee that recommend annual compensation of all employees to the board of directors.

Form 990, Page 6, Part VI, Line 15B

There is a staffing compensation committee that recommend annual compensation of all employees to the board of directors.

Form 990, Page 6, Part VI, Line 19

AVAILABLE UPON REQUEST.

Filing and Contact Details

Filer

Filer Name
COOLEY'S ANEMIA FOUNDATION
EIN
11-1971539
Phone
2122798090
Address
330 SEVENTH AVENUE, NEW YORK, NY 10001

Signing Officer

Name
Craig Butler
Title
Executive Director
Phone
2122798090
Signed
2021-05-06
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Craig Butler
Formed
1954
Legal Domicile
Ny
Voting Board Members
46
Independent Board Members
46
Employees
11

Preparer

Firm
Kvlsm Llp
Address
415 CROSSWAYS PARK DR STE C, WOODBURY, NY 11797-2055
Preparer
Anthony Viola CPA
Phone
5162940400
Supplemental Narrative

Additional Explanations

Form 990, Page 2, Part III, Line 4D

To enhance the quality of patients lives while taking the necessary steps towards finding a cure.

Form 990, Part IX, Line 11G

Telephone 7,166 2,648 4,844 assistance to patients 442,953 0 0 miscellaneous 20,343 5,936 737 addl awards and fellowships 43,148 0 0 total 513,610 8,584 5,581

Financial Statement Notes

Schedule D, Page 3, Part X

Management evaluated all of the foundation's tax positions for all open tax years and has concluded that the foundation had taken no uncertain tax positions that require adjustments or disclosure to the financial statements.

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IRS990/Form990PartVIISectionAGrp/PersonNm40ANTHONY J VIOLA
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IRS990/Form990PartVIISectionAGrp/PersonNm45MARIA HADJIDEMETRIOU
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IRS990/Form990PartVIISectionAGrp/TitleTxt0EXECUTIVE DI
IRS990/Form990PartVIISectionAGrp/TitleTxt1DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt2DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt17DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt18DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt19DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt20DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt21DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt22MEDICAL ADVI
IRS990/Form990PartVIISectionAGrp/TitleTxt23DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt24DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt25DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt26DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt27DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt28DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt29DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt30DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt31DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt32DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt33DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt34DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt35DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt36DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt37DIRECTOR
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IRS990/Form990PartVIISectionAGrp/TitleTxt40DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt41DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt42DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt43VICE PRESIDE
IRS990/Form990PartVIISectionAGrp/TitleTxt44PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt45SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt46TREASURER
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Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$6.38$0.72$5.66$2.81$2.22$0.59
2023Detailed filing. Detailed filing data is available for this year.$5.55$0.48$5.07$2.31$2.17$0.14
2022Detailed filing. Detailed filing data is available for this year.$5.14$0.22$4.93$3.03$1.90$1.13
2021Detailed filing. Detailed filing data is available for this year.$4.66$0.86$3.80$1.57$1.70$0.14
2020Detailed filing. Detailed filing data is available for this year.$4.65$0.71$3.94$1.07$2.17$1.11
2019Detailed filing. Detailed filing data is available for this year.$5.16$0.12$5.05$2.25$2.10$0.15
2018Detailed filing. Detailed filing data is available for this year.$4.96$0.06$4.90$3.49$1.95$1.54
2017Detailed filing. Detailed filing data is available for this year.$3.70$0.34$3.35$2.54$1.69$0.85
2016Detailed filing. Detailed filing data is available for this year.$2.57$0.06$2.51$2.11$1.73$0.38
2015Detailed filing. Detailed filing data is available for this year.$2.30$0.18$2.12$1.81$1.76$0.06
2014Detailed filing. Detailed filing data is available for this year.$2.22$0.15$2.07$1.84$1.77$0.07
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.17$0.17$2.00$2.00$1.69$0.30
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.92$0.22$1.70$1.50
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.70$0.09$1.61$1.63
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.85$0.04$1.81$2.12