Civic Intelligence

Cooleys Anemia Foundation Inc.

990 • Fiscal year 2016 • EIN 11-1971539

Jul 01, 2015 to Jun 30, 2016 • Filed on May 12, 2017

Organization ProfileWWW.COOLEYSANEMIA.ORG
330 Seventh Avenue No 200New York, NY 10001

(212) 279-8090

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

32nd percentile

0.02x

Higher debt load relative to assets than 32% of similar nonprofits.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2016

Liabilities / Revenue

28th percentile

0.03x

Higher debt load relative to revenue than 28% of similar nonprofits.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2016

Net Margin

78th percentile

18%

Higher net margin than 78% of similar nonprofits.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2016

Top Officer Pay

64th percentile

$89,481

Higher top officer pay than 64% of similar nonprofits.

Top officer pay equals 4.2% of source-year revenue.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2016

Asset Growth

74th percentile

12%

Faster asset growth than 74% of similar nonprofits.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2015 to 2016

Revenue Growth

74th percentile

17%

Faster revenue growth than 74% of similar nonprofits.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2015 to 2016

Balance Sheet
Liabilities / Assets32nd percentile

Assets

Up

$2,565,824

Up $265,305 (+12%) from 2015

Net Assets

Up

$2,505,318

Up $380,671 (+18%) from 2015

Liabilities

Down

$60,506

Down $115,366 (-66%) from 2015

Revenue And Expenses
Liabilities / Revenue28th percentileNet Margin78th percentile

Revenue

Up

$2,114,602

Up $304,353 (+17%) from 2015

Expenses

Down

$1,733,931

Down $21,206 (-1.2%) from 2015

Net Income

Up

$380,671

Up $325,559 (+591%) from 2015

Historical Trend

Balance Sheet Trend

Asset Growth74th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$8.0M$6.0M$4.0M$2.0M$0Assets 2010: $1,847,129Liabilities 2010: $38,532Net Assets 2010: $1,808,5972010Assets 2011: $1,701,739Liabilities 2011: $91,779Net Assets 2011: $1,609,9602011Assets 2012: $1,920,966Liabilities 2012: $224,192Net Assets 2012: $1,696,7742012Assets 2013: $2,167,146Liabilities 2013: $165,376Net Assets 2013: $2,001,7702013Assets 2014: $2,218,192Liabilities 2014: $148,657Net Assets 2014: $2,069,5352014Assets 2015: $2,300,519Liabilities 2015: $175,872Net Assets 2015: $2,124,6472015Assets 2016: $2,565,824Liabilities 2016: $60,506Net Assets 2016: $2,505,3182016Assets 2017: $3,695,115Liabilities 2017: $340,207Net Assets 2017: $3,354,9082017Assets 2018: $4,960,002Liabilities 2018: $63,131Net Assets 2018: $4,896,8712018Assets 2019: $5,160,832Liabilities 2019: $115,455Net Assets 2019: $5,045,3772019Assets 2020: $4,652,443Liabilities 2020: $713,527Net Assets 2020: $3,938,9162020Assets 2021: $4,659,141Liabilities 2021: $857,539Net Assets 2021: $3,801,6022021Assets 2022: $5,144,098Liabilities 2022: $216,473Net Assets 2022: $4,927,6252022Assets 2023: $5,550,283Liabilities 2023: $481,507Net Assets 2023: $5,068,7762023Assets 2024: $6,376,996Liabilities 2024: $719,996Net Assets 2024: $5,657,0002024

Highlighted filing

2016

Assets$2,565,824
Liabilities$60,506
Net Assets$2,505,318
Open 2016 Filing

Operations Trend

Revenue Growth74th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$4.0M$2.0M$0-$2.0MExpenses 2010: $2,121,8682010Expenses 2011: $1,629,5152011Expenses 2012: $1,499,4212012Revenue 2013: $1,998,700Expenses 2013: $1,693,704Net Income 2013: $304,9962013Revenue 2014: $1,839,561Expenses 2014: $1,771,796Net Income 2014: $67,7652014Revenue 2015: $1,810,249Expenses 2015: $1,755,137Net Income 2015: $55,1122015Revenue 2016: $2,114,602Expenses 2016: $1,733,931Net Income 2016: $380,6712016Revenue 2017: $2,541,590Expenses 2017: $1,692,000Net Income 2017: $849,5902017Revenue 2018: $3,491,342Expenses 2018: $1,949,379Net Income 2018: $1,541,9632018Revenue 2019: $2,248,215Expenses 2019: $2,099,709Net Income 2019: $148,5062019Revenue 2020: $1,066,981Expenses 2020: $2,173,442Net Income 2020: -$1,106,4612020Revenue 2021: $1,565,758Expenses 2021: $1,703,072Net Income 2021: -$137,3142021Revenue 2022: $3,029,482Expenses 2022: $1,903,459Net Income 2022: $1,126,0232022Revenue 2023: $2,306,555Expenses 2023: $2,165,404Net Income 2023: $141,1512023Revenue 2024: $2,812,580Expenses 2024: $2,224,356Net Income 2024: $588,2242024

Highlighted filing

2016

Revenue$2,114,602
Expenses$1,733,931
Net Income$380,671
Open 2016 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2015 to Jun 30, 2016
Signed
May 12, 2017
Return Version
2015v3.0
Gross Receipts
$2,114,602
Mission and Program Overview

Mission

To enhance the quality of patients' lives while taking the necessary steps toward finding a cure for this fatal blood disease.

To enhance the quality of patients' lives while taking the necessary steps towards finding a cure for this fatal blood disease .

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$1,389,547$2,077,858▲ $688,311
Pledges and Grants Receivable$295,026$221,806▼ $73,220
Accounts Receivable$110,907$55,312▼ $55,595
Savings and Temporary Cash Investments$209,003$44,480▼ $164,523
Land, Buildings, and Equipment, Net$15,834$29,216▲ $13,382
Total Assets$2,300,519$2,565,824▲ $265,305
Other Assets Total$280,202$137,152▼ $143,050
Liabilities
Accounts Payable and Accrued Expenses$175,872$60,506▼ $115,366
Total Liabilities$175,872$60,506▼ $115,366
Net Assets / Fund Balance
Unrestricted Net Assets$1,893,218$2,130,862▲ $237,644
Temporarily Rstr Net Assets$231,429$374,456▲ $143,027
Total Net Assets Fund Balance$2,124,647$2,505,318▲ $380,671
Total Liabilities and Net Assets / Fund Balance$2,300,519$2,565,824▲ $265,305

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$29,216$294,646$323,862
Other Assets Org$36,942--
Compensation and Service Providers
Top Officer Pay64th percentile

Employees

NameTitleBaseTotal
Gina CioffiExecutive Director$89,481$89,481
Kathleen DurstStaff Social Worker$70,965$70,965

Board Members and Trustees

NameTitle
Robert FicarraDirector, Chair, International Affairs Committee
Dr Ellis NeufieldDirector, Chair, Medical Advisory Board
Frank SommaDirector, Chair, Public Policy and Legislation
Anthony JviolaPresident
Amy CelentoVice President
Anthony FerrinoDirector
Antoni FoeDirector
Ben JacobellisDirector
Cammie BrandofinoDirector
Christine SommaDirector
Dr Alan CohenDirector
Dr David YoungerDirector
Frank FusaroDirector
Frank MarzanoDirector
Frank TidonaDirector
Gianna PalminteriDirector
James KalpakisDirector
James VentolaDirector
Joseph Di TrapaniDirector
Joseph SciameDirector
Joseph VigliottiDirector
Julia CenzopranoDirector
Lilla ViscomeDirector
Maria HadjidemetriouDirector
Mary Ann Cervonia-laiaDirector
Paul PoloDirector
Peter ChiecoDirector
Phil RutiglianoDirector
Ralph ColasantiDirector
Robert AielloDirector
Shirley CammilleriDirector
Teresa TomainoDirector
Thomas ChengDirector
Thomas a RotoloDirector
Nunzio CazzettaDirector By-law Committee
Terri DifilippoAsst. Treasurer
Janice CenzopranoSecretary
Dean HernanTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$1,065,977
Program Service Revenue
$0
Investment Income
$3,977
Other Revenue
$1,044,648
All Other Contributions
$826,540
Change in Net Assets
$380,671
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$784,693
Other Expenses$778,613
Total Fundraising Expense$211,395
Grants and Similar Amounts Paid$170,625
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$393,977$157,200$124,324$675,501
Conferences and Meetings$304,002$2,689$10,756$317,447
Grants to Domestic Orgs$170,625--$170,625
Fees for Services Accounting$84,419$49,291-$133,710
Occupancy$69,638$18,309$20,629$108,576
Payroll Taxes$59,293$23,657$18,708$101,658
Other Expenses$9,101$3,659$6,907$19,667
All Other Expenses$11,707$3,246$1,037$15,990
Insurance$7,120$2,390$2,373$11,883
Pension Plan Contributions$4,610$1,587$1,337$7,534
Depreciation Depletion-$6,402-$6,402
Total Functional Expenses$1,244,634$277,902$211,395$1,733,931
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
CHILDREN'S HOSPITAL BOSTONBoston, MA, Uk-Genome Editing of Beta-globin Gene Cluster Repressive Elements for Beta-thalassemia$32,500
The Regents of the University of CaliforniaSan Francisco, CA, Fr-Early Treatment of Alpha Thalassemia With Intra-placental in Utero Hematopoietic Stem Cell Transplantation$32,500
University of Alabama at Birmingham--CORRECTION OF HUMANIZED COOLEY'S ANEMIA MICE BY GENE EDITING OF HEMATOPOIETIC STEM CELLS$32,500
University of Oxford Finance DivisionPhiladelphia, PA-Epigenetic Therapies for Thalassemic Iron Overload$32,500
Inserm-agence Comptable France--MATRIPTASE-2: NEW THERAPY FOR NON-TRANSFUSION TRANSFUSION DEPENDENT$24,375
CHILDREN'S HOSPITAL OF PHILADELPHIA RESEARCH INSTITUTEBirmingham, AL-Pilot Study of Deferasirox and Deferiprone Combination Oral Chelation for Individuals With Transfusion Dependent Thalassemia and High Iron Burden$10,000
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Audit committee
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
Yes
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11

“No review will be conducted.”

Form 990, Part VI, Section C, Line 19

“AVAILABLE UPON REQUEST.”

Filing and Contact Details

Filer

Filer Name
COOLEY'S ANEMIA FOUNDATION
EIN
11-1971539
Phone
2122798090
Address
330 SEVENTH AVENUE NO 200, NEW YORK, NY 10001

Signing Officer

Name
Anthony J Viola
Title
National President
Phone
2122798090
Signed
2017-05-12
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Anthony J Viola
Formed
1954
Legal Domicile
Ny
Voting Board Members
38
Independent Board Members
38
Employees
11
Volunteers
0

Preparer

Firm
Sanders Thaler Viola & Katz Llp
Address
350 JERICHO TURNPIKE SUITE 1, JERICHO, NY 11753
Preparer
Anthony J Viola CPA
Phone
5169385219
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IRS990/Form990PartVIISectionAGrp/PersonNm11RALPH COLASANTI
IRS990/Form990PartVIISectionAGrp/PersonNm12JOSEPH DI TRAPANI
IRS990/Form990PartVIISectionAGrp/PersonNm13ANTHONY FERRINO
IRS990/Form990PartVIISectionAGrp/PersonNm14ROBERT FICARRA
IRS990/Form990PartVIISectionAGrp/PersonNm15ANTONI FOE
IRS990/Form990PartVIISectionAGrp/PersonNm16FRANK FUSARO
IRS990/Form990PartVIISectionAGrp/PersonNm17MARIA HADJIDEMETRIOU
IRS990/Form990PartVIISectionAGrp/PersonNm18BEN JACOBELLIS
IRS990/Form990PartVIISectionAGrp/PersonNm19JAMES KALPAKIS
IRS990/Form990PartVIISectionAGrp/PersonNm20FRANK MARZANO
IRS990/Form990PartVIISectionAGrp/PersonNm21DR ELLIS NEUFIELD
IRS990/Form990PartVIISectionAGrp/PersonNm22GIANNA PALMINTERI
IRS990/Form990PartVIISectionAGrp/PersonNm23PAUL POLO
IRS990/Form990PartVIISectionAGrp/PersonNm24THOMAS A ROTOLO
IRS990/Form990PartVIISectionAGrp/PersonNm25PHIL RUTIGLIANO
IRS990/Form990PartVIISectionAGrp/PersonNm26JOSEPH SCIAME
IRS990/Form990PartVIISectionAGrp/PersonNm27CHRISTINE SOMMA
IRS990/Form990PartVIISectionAGrp/PersonNm28FRANK SOMMA
IRS990/Form990PartVIISectionAGrp/PersonNm29FRANK TIDONA
IRS990/Form990PartVIISectionAGrp/PersonNm30TERESA TOMAINO
IRS990/Form990PartVIISectionAGrp/PersonNm31JAMES VENTOLA
IRS990/Form990PartVIISectionAGrp/PersonNm32LILLA VISCOME
IRS990/Form990PartVIISectionAGrp/PersonNm33DR DAVID YOUNGER
IRS990/Form990PartVIISectionAGrp/PersonNm34JOSEPH VIGLIOTTI
IRS990/Form990PartVIISectionAGrp/PersonNm35ANTHONY JVIOLA
IRS990/Form990PartVIISectionAGrp/PersonNm36AMY CELENTO
IRS990/Form990PartVIISectionAGrp/PersonNm37DEAN HERNAN
IRS990/Form990PartVIISectionAGrp/PersonNm38TERRI DIFILIPPO
IRS990/Form990PartVIISectionAGrp/PersonNm39ROBERT AIELLO
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt350
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt360
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt370
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt380
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt390
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt210
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt220
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt230
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt240
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt250
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt390
IRS990/Form990PartVIISectionAGrp/TitleTxt0EXECUTIVE DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt1STAFF SOCIAL WORKER
IRS990/Form990PartVIISectionAGrp/TitleTxt2SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR BY-LAW COMMITTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR, CHAIR, INTERNATIONAL AFFAIRS COMMITTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt17DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt18DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt19DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt20DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt21DIRECTOR, CHAIR, MEDICAL ADVISORY BOARD
IRS990/Form990PartVIISectionAGrp/TitleTxt22DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt23DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt24DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt25DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt26DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt27DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt28DIRECTOR, CHAIR, PUBLIC POLICY AND LEGISLATION
IRS990/Form990PartVIISectionAGrp/TitleTxt29DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt30DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt31DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt32DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt33DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt34DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt35PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt36VICE PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt37TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt38ASST. TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt39DIRECTOR
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Document Assets

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Filings

Displayed year

2016 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$2,565,824
Liabilities
$60,506
Net assets
$2,505,318
Revenue
$2,114,602
Expenses
$1,733,931
Net income
$380,671
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$6.38$0.72$5.66$2.81$2.22$0.59
2023Detailed filing. Detailed filing data is available for this year.$5.55$0.48$5.07$2.31$2.17$0.14
2022Detailed filing. Detailed filing data is available for this year.$5.14$0.22$4.93$3.03$1.90$1.13
2021Detailed filing. Detailed filing data is available for this year.$4.66$0.86$3.80$1.57$1.70$0.14
2020Detailed filing. Detailed filing data is available for this year.$4.65$0.71$3.94$1.07$2.17$1.11
2019Detailed filing. Detailed filing data is available for this year.$5.16$0.12$5.05$2.25$2.10$0.15
2018Detailed filing. Detailed filing data is available for this year.$4.96$0.06$4.90$3.49$1.95$1.54
2017Detailed filing. Detailed filing data is available for this year.$3.70$0.34$3.35$2.54$1.69$0.85
2016Detailed filing. Detailed filing data is available for this year.$2.57$0.06$2.51$2.11$1.73$0.38
2015Detailed filing. Detailed filing data is available for this year.$2.30$0.18$2.12$1.81$1.76$0.06
2014Detailed filing. Detailed filing data is available for this year.$2.22$0.15$2.07$1.84$1.77$0.07
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.17$0.17$2.00$2.00$1.69$0.30
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.92$0.22$1.70$1.50
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.70$0.09$1.61$1.63
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.85$0.04$1.81$2.12