Civic Intelligence

Cooleys Anemia Foundation Inc.

990 • Fiscal year 2017 • EIN 11-1971539

Jul 01, 2016 to Jun 30, 2017 • Filed on May 09, 2018

Organization ProfileWWW.COOLEYSANEMIA.ORG
330 Seventh Avenue No 200New York, NY 10001

(212) 279-8090

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

50th percentile

0.09x

Higher debt load relative to assets than 50% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Liabilities / Revenue

56th percentile

0.13x

Higher debt load relative to revenue than 56% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Net Margin

86th percentile

33%

Higher net margin than 86% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Top Officer Pay

81st percentile

$135,000

Higher top officer pay than 81% of similar nonprofits.

Top officer pay equals 5.3% of source-year revenue.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Asset Growth

90th percentile

44%

Faster asset growth than 90% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2016 to 2017

Revenue Growth

73rd percentile

20%

Faster revenue growth than 73% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2016 to 2017

Balance Sheet
Liabilities / Assets50th percentile

Assets

Up

$3,695,115

Up $1,129,291 (+44%) from 2016

Net Assets

Up

$3,354,908

Up $849,590 (+34%) from 2016

Liabilities

Up

$340,207

Up $279,701 (+462%) from 2016

Revenue And Expenses
Liabilities / Revenue56th percentileNet Margin86th percentile

Revenue

Up

$2,541,590

Up $426,988 (+20%) from 2016

Expenses

Down

$1,692,000

Down $41,931 (-2.4%) from 2016

Net Income

Up

$849,590

Up $468,919 (+123%) from 2016

Historical Trend

Balance Sheet Trend

Asset Growth90th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$8.0M$6.0M$4.0M$2.0M$0Assets 2010: $1,847,129Liabilities 2010: $38,532Net Assets 2010: $1,808,5972010Assets 2011: $1,701,739Liabilities 2011: $91,779Net Assets 2011: $1,609,9602011Assets 2012: $1,920,966Liabilities 2012: $224,192Net Assets 2012: $1,696,7742012Assets 2013: $2,167,146Liabilities 2013: $165,376Net Assets 2013: $2,001,7702013Assets 2014: $2,218,192Liabilities 2014: $148,657Net Assets 2014: $2,069,5352014Assets 2015: $2,300,519Liabilities 2015: $175,872Net Assets 2015: $2,124,6472015Assets 2016: $2,565,824Liabilities 2016: $60,506Net Assets 2016: $2,505,3182016Assets 2017: $3,695,115Liabilities 2017: $340,207Net Assets 2017: $3,354,9082017Assets 2018: $4,960,002Liabilities 2018: $63,131Net Assets 2018: $4,896,8712018Assets 2019: $5,160,832Liabilities 2019: $115,455Net Assets 2019: $5,045,3772019Assets 2020: $4,652,443Liabilities 2020: $713,527Net Assets 2020: $3,938,9162020Assets 2021: $4,659,141Liabilities 2021: $857,539Net Assets 2021: $3,801,6022021Assets 2022: $5,144,098Liabilities 2022: $216,473Net Assets 2022: $4,927,6252022Assets 2023: $5,550,283Liabilities 2023: $481,507Net Assets 2023: $5,068,7762023Assets 2024: $6,376,996Liabilities 2024: $719,996Net Assets 2024: $5,657,0002024

Highlighted filing

2017

Assets$3,695,115
Liabilities$340,207
Net Assets$3,354,908
Open 2017 Filing

Operations Trend

Revenue Growth73rd percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$4.0M$2.0M$0-$2.0MExpenses 2010: $2,121,8682010Expenses 2011: $1,629,5152011Expenses 2012: $1,499,4212012Revenue 2013: $1,998,700Expenses 2013: $1,693,704Net Income 2013: $304,9962013Revenue 2014: $1,839,561Expenses 2014: $1,771,796Net Income 2014: $67,7652014Revenue 2015: $1,810,249Expenses 2015: $1,755,137Net Income 2015: $55,1122015Revenue 2016: $2,114,602Expenses 2016: $1,733,931Net Income 2016: $380,6712016Revenue 2017: $2,541,590Expenses 2017: $1,692,000Net Income 2017: $849,5902017Revenue 2018: $3,491,342Expenses 2018: $1,949,379Net Income 2018: $1,541,9632018Revenue 2019: $2,248,215Expenses 2019: $2,099,709Net Income 2019: $148,5062019Revenue 2020: $1,066,981Expenses 2020: $2,173,442Net Income 2020: -$1,106,4612020Revenue 2021: $1,565,758Expenses 2021: $1,703,072Net Income 2021: -$137,3142021Revenue 2022: $3,029,482Expenses 2022: $1,903,459Net Income 2022: $1,126,0232022Revenue 2023: $2,306,555Expenses 2023: $2,165,404Net Income 2023: $141,1512023Revenue 2024: $2,812,580Expenses 2024: $2,224,356Net Income 2024: $588,2242024

Highlighted filing

2017

Revenue$2,541,590
Expenses$1,692,000
Net Income$849,590
Open 2017 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2016 to Jun 30, 2017
Signed
May 9, 2018
Return Version
2016v3.0
Gross Receipts
$2,541,590
Mission and Program Overview

Mission

To enhance the quality of patients' lives while taking the necessary steps toward finding a cure for this fatal blood disease.

To enhance the quality of patients' lives while taking the necessary steps towards finding a cure for this fatal blood disease.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$2,077,858$2,917,182▲ $839,324
Pledges and Grants Receivable$221,806$487,121▲ $265,315
Accounts Receivable$55,312$82,654▲ $27,342
Savings and Temporary Cash Investments$44,480$46,385▲ $1,905
Land, Buildings, and Equipment, Net$29,216$25,453▼ $3,763
Total Assets$2,565,824$3,695,115▲ $1,129,291
Other Assets Total$137,152$136,320▼ $832
Liabilities
Accounts Payable and Accrued Expenses$60,506$340,207▲ $279,701
Total Liabilities$60,506$340,207▲ $279,701
Net Assets / Fund Balance
Unrestricted Net Assets$2,130,862$2,623,479▲ $492,617
Temporarily Rstr Net Assets$374,456$731,429▲ $356,973
Total Net Assets Fund Balance$2,505,318$3,354,908▲ $849,590
Total Liabilities and Net Assets / Fund Balance$2,565,824$3,695,115▲ $1,129,291

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$25,453$300,321$325,774
Compensation and Service Providers
Top Officer Pay81st percentile

Employees

NameTitleFull / Part TimeBaseTotal
Craig ButlerExecutive DirectorFT$135,000$135,000

Board Members and Trustees

NameTitle
Anthony JviolaPresident
Amy CelentoVice President
Anish GoelDirector
Anthony FerrinoDirector
Antoni FoeDirector
Cammie BrandofinoDirector
Carmine AbruzzoDirector
Chi PhamDirector
Christine HortonDirector
Dr Alan CohenDirector
Dr Janet KwiatkowskiDirector
Frank FusaroDirector
Frank MarzanoDirector
Frank SommaDirector
Frank TidonaDirector
Gianna PalminteriDirector
James VentolaDirector
Joseph Di TrapaniDirector
Joseph SciameDirector
Joseph VigliottiDirector
Joseph ZurawDirector
Josephine BilaDirector
Julia CenzopranoDirector
Maria HadjidemetriouDirector
Mary Ann Cervonia-laiaDirector
Michael DiflippoDirector
Michael PouchieDirector
Michael PrestoDirector
Paul PoloDirector
Peter ChiecoDirector
Phil RutiglianoDirector
Ralph ColasantiDirector
Richard KirkendallDirector
Robert AielloDirector
Robert FicarraDirector
Sharon Farrell RadonisDirector
Shirley CammilleriDirector
Teresa TomainoDirector
Thomas ChengDirector
Thomas a RotoloDirector
Tom WatralDirector
Terri DifilippoAsst. Treasurer
Janice CenzopranoSecretary
Dean HernanTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$1,321,540
Program Service Revenue
$0
Investment Income
$5,171
Other Revenue
$1,214,879
All Other Contributions
$1,101,787
Change in Net Assets
$849,590

Audited Revenue Reconciliation

Revenue per Audited Statements
$2,541,590
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$0
Total Revenue per Audited Statements
$2,541,590
Total Revenue per Form 990
$2,541,590
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$767,531
Other Expenses$711,976
Total Fundraising Expense$298,943
Grants and Similar Amounts Paid$212,493
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$386,953$70,099$191,593$648,645
Grants to Domestic Orgs$212,493--$212,493
Occupancy$79,310$19,525$24,097$122,932
Payroll Taxes$64,060$12,039$33,352$109,451
Fees for Services Lobbying$87,639--$87,639
Conferences and Meetings$43,794$3,708$14,245$61,747
Fees for Services Accounting-$35,845-$35,845
Other Expenses$8,598$3,564$6,985$19,147
All Other Expenses$10,548$168$1,901$12,617
Pension Plan Contributions$4,827$2,077$2,531$9,435
Depreciation Depletion-$5,675-$5,675
Insurance$3,217$1,077$1,073$5,367
Total Functional Expenses$1,212,832$180,225$298,943$1,692,000

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$1,692,000
Total Expenses per Audited Statements$1,692,000
Total Expenses per Form 990$1,692,000
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Boston Medical Center Grants AdministrationBoston, MA-Induced Pluripotent Stem Cell (ipsc)-based Modeling of Beta Thalassemia-
CHILDREN'S HOSPITAL BOSTONBoston, MA, Th-Genome Editing of Beta-globin Gene Cluster Repressive Elements for Beta-thalassemia-
CHILDREN'S HOSPITAL OAKLAND RESEARCH INSTITUTEOakland, CA-Snp Discovery and Characterization of the Human Beta Globin Gene for Non-invasive Prenatal Testing for Beta Hemoglobinopathies-
CHILDREN'S HOSPITAL OF PHILADELPHIA RESEARCH INSTITUTEPhiladelphia, PA-Pilot Study of Deferasirox and Deferiprone Combination Oral Chelation for Individuals With Transfusion Dependent Thalassemia and High Iron Burden-
Icahn School of Medicine at Mount SinaiNew York, NY-Genome Editing of Eklf Enhancer Elements for Fetal Hemoglobin Induction-
Mahidol University--Effect of Inhaled Nebulized Nitrite on Pulmonary Arterial Pressure in B-thalassemia Patients With Pulmonary Hypertension-
Yale UniversityNew Haven, CT-The Role of Ncoa4 in the Regulation of Hepatic Iron Stores-
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
Yes
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“No review will be conducted.”

Form 990, Part VI, Section B, Line 12C

“All officers and board members are required to sign potential conflict of interest disclosures. Ongoing training of all officers and directors is done throughout the year to have the ability to assist in identifying potential conflicts of interest.”

Form 990, Part VI, Section B, Line 15

“There is a staffing compensation committee that recommends annual compensation of all employees to the board of directors.”

Form 990, Part VI, Section C, Line 19

“AVAILABLE UPON REQUEST.”

Filing and Contact Details

Filer

Filer Name
COOLEY'S ANEMIA FOUNDATION
EIN
11-1971539
Phone
2122798090
Address
330 SEVENTH AVENUE NO 200, NEW YORK, NY 10001

Signing Officer

Name
Anthony J Viola
Title
National President
Phone
2122798090
Signed
2018-05-09
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Anthony J Viola
Formed
1954
Legal Domicile
Ny
Voting Board Members
44
Independent Board Members
44
Employees
9
Volunteers
0

Preparer

Firm
Katz Viola Lebenhart & Mauro Llp
Address
415 CROSSWAYS PARK DRIVE SUITE C, WOODBURY, NY 11797
Preparer
Michael D Katz CPA
Phone
5169385219
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IRS990/Form990PartVIISectionAGrp/PersonNm13FRANK TIDONA
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IRS990/Form990PartVIISectionAGrp/PersonNm17JOSEPH SCIAME
IRS990/Form990PartVIISectionAGrp/PersonNm18JOSEPH VIGLIOTTI
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IRS990/Form990PartVIISectionAGrp/PersonNm21JULIA CENZOPRANO
IRS990/Form990PartVIISectionAGrp/PersonNm22MARIA HADJIDEMETRIOU
IRS990/Form990PartVIISectionAGrp/PersonNm23MARY ANN CERVONIA-LAIA
IRS990/Form990PartVIISectionAGrp/PersonNm24MICHAEL DIFLIPPO
IRS990/Form990PartVIISectionAGrp/PersonNm25MICHAEL POUCHIE
IRS990/Form990PartVIISectionAGrp/PersonNm26MICHAEL PRESTO
IRS990/Form990PartVIISectionAGrp/PersonNm27PAUL POLO
IRS990/Form990PartVIISectionAGrp/PersonNm28PETER CHIECO
IRS990/Form990PartVIISectionAGrp/PersonNm29PHIL RUTIGLIANO
IRS990/Form990PartVIISectionAGrp/PersonNm30RALPH COLASANTI
IRS990/Form990PartVIISectionAGrp/PersonNm31RICHARD KIRKENDALL
IRS990/Form990PartVIISectionAGrp/PersonNm32ROBERT AIELLO
IRS990/Form990PartVIISectionAGrp/PersonNm33ROBERT FICARRA
IRS990/Form990PartVIISectionAGrp/PersonNm34SHARON FARRELL RADONIS
IRS990/Form990PartVIISectionAGrp/PersonNm35SHIRLEY CAMMILLERI
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IRS990/Form990PartVIISectionAGrp/PersonNm37THOMAS A ROTOLO
IRS990/Form990PartVIISectionAGrp/PersonNm38THOMAS CHENG
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IRS990/Form990PartVIISectionAGrp/PersonNm42JANICE CENZOPRANO
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IRS990/Form990PartVIISectionAGrp/TitleTxt0DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt1DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt2PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt17DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt18DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt19DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt20DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt21DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt22DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt23DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt24DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt25DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt26DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt27DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt28DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt29DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt30DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt31DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt32DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt33DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt34DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt35DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt36DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt37DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt38DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt39DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt40VICE PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt41TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt42SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt43EXECUTIVE DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt44ASST. TREASURER
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr01954
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd00
IRS990/GamingActivitiesInd00

Document Assets

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Filings

Displayed year

2017 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$3,695,115
Liabilities
$340,207
Net assets
$3,354,908
Revenue
$2,541,590
Expenses
$1,692,000
Net income
$849,590
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$6.38$0.72$5.66$2.81$2.22$0.59
2023Detailed filing. Detailed filing data is available for this year.$5.55$0.48$5.07$2.31$2.17$0.14
2022Detailed filing. Detailed filing data is available for this year.$5.14$0.22$4.93$3.03$1.90$1.13
2021Detailed filing. Detailed filing data is available for this year.$4.66$0.86$3.80$1.57$1.70$0.14
2020Detailed filing. Detailed filing data is available for this year.$4.65$0.71$3.94$1.07$2.17$1.11
2019Detailed filing. Detailed filing data is available for this year.$5.16$0.12$5.05$2.25$2.10$0.15
2018Detailed filing. Detailed filing data is available for this year.$4.96$0.06$4.90$3.49$1.95$1.54
2017Detailed filing. Detailed filing data is available for this year.$3.70$0.34$3.35$2.54$1.69$0.85
2016Detailed filing. Detailed filing data is available for this year.$2.57$0.06$2.51$2.11$1.73$0.38
2015Detailed filing. Detailed filing data is available for this year.$2.30$0.18$2.12$1.81$1.76$0.06
2014Detailed filing. Detailed filing data is available for this year.$2.22$0.15$2.07$1.84$1.77$0.07
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.17$0.17$2.00$2.00$1.69$0.30
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.92$0.22$1.70$1.50
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.70$0.09$1.61$1.63
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.85$0.04$1.81$2.12