Civic Intelligence

Cooleys Anemia Foundation Inc.

990 • Fiscal year 2018 • EIN 11-1971539

Jul 01, 2017 to Jun 30, 2018 • Filed on May 02, 2019

Organization ProfileWWW.COOLEYSANEMIA.ORG
330 Seventh Avenue No 200New York, NY 10001

(212) 279-8090

Siviq Scores

Scores are not available for this record yet.

Balance Sheet

Assets

Flat

$4,960,002

Flat from 2018

Net Assets

Flat

$4,896,871

Flat from 2018

Liabilities

Flat

$63,131

Flat from 2018

Revenue And Expenses

Revenue

Flat

$3,491,342

Flat from 2018

Expenses

Flat

$1,949,379

Flat from 2018

Net Income

Flat

$1,541,963

Flat from 2018

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$8.0M$6.0M$4.0M$2.0M$0Assets 2010: $1,847,129Liabilities 2010: $38,532Net Assets 2010: $1,808,5972010Assets 2011: $1,701,739Liabilities 2011: $91,779Net Assets 2011: $1,609,9602011Assets 2012: $1,920,966Liabilities 2012: $224,192Net Assets 2012: $1,696,7742012Assets 2013: $2,167,146Liabilities 2013: $165,376Net Assets 2013: $2,001,7702013Assets 2014: $2,218,192Liabilities 2014: $148,657Net Assets 2014: $2,069,5352014Assets 2015: $2,300,519Liabilities 2015: $175,872Net Assets 2015: $2,124,6472015Assets 2016: $2,565,824Liabilities 2016: $60,506Net Assets 2016: $2,505,3182016Assets 2017: $3,695,115Liabilities 2017: $340,207Net Assets 2017: $3,354,9082017Assets 2018: $4,960,002Liabilities 2018: $63,131Net Assets 2018: $4,896,8712018Assets 2018: $4,960,002Liabilities 2018: $63,131Net Assets 2018: $4,896,8712018Assets 2019: $5,160,832Liabilities 2019: $115,455Net Assets 2019: $5,045,3772019Assets 2020: $4,652,443Liabilities 2020: $713,527Net Assets 2020: $3,938,9162020Assets 2021: $4,659,141Liabilities 2021: $857,539Net Assets 2021: $3,801,6022021Assets 2022: $5,144,098Liabilities 2022: $216,473Net Assets 2022: $4,927,6252022Assets 2023: $5,550,283Liabilities 2023: $481,507Net Assets 2023: $5,068,7762023Assets 2024: $6,376,996Liabilities 2024: $719,996Net Assets 2024: $5,657,0002024

Highlighted filing

2018

Assets$4,960,002
Liabilities$63,131
Net Assets$4,896,871
Open 2018 Filing

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$4.0M$2.0M$0-$2.0MExpenses 2010: $2,121,8682010Expenses 2011: $1,629,5152011Expenses 2012: $1,499,4212012Revenue 2013: $1,998,700Expenses 2013: $1,693,704Net Income 2013: $304,9962013Revenue 2014: $1,839,561Expenses 2014: $1,771,796Net Income 2014: $67,7652014Revenue 2015: $1,810,249Expenses 2015: $1,755,137Net Income 2015: $55,1122015Revenue 2016: $2,114,602Expenses 2016: $1,733,931Net Income 2016: $380,6712016Revenue 2017: $2,541,590Expenses 2017: $1,692,000Net Income 2017: $849,5902017Revenue 2018: $3,491,342Expenses 2018: $1,949,379Net Income 2018: $1,541,9632018Revenue 2018: $3,491,342Expenses 2018: $1,949,379Net Income 2018: $1,541,9632018Revenue 2019: $2,248,215Expenses 2019: $2,099,709Net Income 2019: $148,5062019Revenue 2020: $1,066,981Expenses 2020: $2,173,442Net Income 2020: -$1,106,4612020Revenue 2021: $1,565,758Expenses 2021: $1,703,072Net Income 2021: -$137,3142021Revenue 2022: $3,029,482Expenses 2022: $1,903,459Net Income 2022: $1,126,0232022Revenue 2023: $2,306,555Expenses 2023: $2,165,404Net Income 2023: $141,1512023Revenue 2024: $2,812,580Expenses 2024: $2,224,356Net Income 2024: $588,2242024

Highlighted filing

2018

Revenue$3,491,342
Expenses$1,949,379
Net Income$1,541,963
Open 2018 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2017 to Jun 30, 2018
Signed
May 2, 2019
Return Version
2017v2.3
Gross Receipts
$3,491,342
Mission and Program Overview

Mission

To enhance the quality of patients' lives while taking the necessary steps toward finding a cure for this fatal blood disease.

To enhance the quality of patients' lives while taking the necessary steps towards finding a cure for this fatal blood disease.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$2,917,182$2,458,343▼ $458,839
Savings and Temporary Cash Investments$46,385$839,126▲ $792,741
Pledges and Grants Receivable$487,121$792,556▲ $305,435
Accounts Receivable$82,654$203,762▲ $121,108
Land, Buildings, and Equipment, Net$25,453$25,101▼ $352
Total Assets$3,695,115$4,960,002▲ $1,264,887
Other Assets Total$136,320$641,114▲ $504,794
Liabilities
Accounts Payable and Accrued Expenses$340,207$63,131▼ $277,076
Total Liabilities$340,207$63,131▼ $277,076
Net Assets / Fund Balance
Unrestricted Net Assets$2,623,479$3,936,854▲ $1,313,375
Temporarily Rstr Net Assets$731,429$960,017▲ $228,588
Total Net Assets Fund Balance$3,354,908$4,896,871▲ $1,541,963
Total Liabilities and Net Assets / Fund Balance$3,695,115$4,960,002▲ $1,264,887

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$25,101$306,552$331,653
Other Assets Org$200,000--
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseTotal
Craig ButlerExecutive DirectorFT$141,923$141,923

Board Members and Trustees

NameTitle
Janet Kwiatkowski Md MsceMedical Advisory Board, Chair
Peter ChiecoPresident
Janice CenzopranoVice President
Alan Cohen MdDirector
Amnish Goel PhdDirector
Amy CelentoDirector
Anthony FerrinoDirector
Anthony Viola CPADirector
Antoni FoeDirector
Cammie BrandofinoDirector
Carmine AbruzzoDirector
Chi PhamDirector
Christine HortonDirector
Frank FusaroDirector
Frank MarzanoDirector
Frank SommaDirector
Frank TidonaDirector
Gianna PalminteriDirector
James VentolaDirector
Joseph Di TrapaniDirector
Joseph SciameDirector
Joseph Vigliotti EsqDirector
Joseph ZurawDirector
Josephine Bila MswDirector
Julia CenzopranoDirector
Mary Ann Cervonia-laiaDirector
Michael DifilippoDirector
Michael PouchieDirector
Michael PrestoDirector
Michelle Chieco-lenzDirector
Paul PoloDirector
Phil RutiglianoDirector
Ralph ColasantiDirector
Richard KirkendallDirector
Robert AielloDirector
Robert FicarraDirector
Sarah Baqueri ConnollyDirector
Sharon Farrell RadonisDirector
Shirley CammilleriDirector
Teresa TomainoDirector
Terri DifillipoDirector
Thomas ChengDirector
Thomas a RotoloDirector
Tom WatralDirector
Tracy AntonelliDirector
Maria HadjidemetriouSecretary
Dean HernanTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$2,009,226
Program Service Revenue
$0
Investment Income
$14,249
Other Revenue
$1,467,867
All Other Contributions
$1,838,525
Change in Net Assets
$1,541,963

Audited Revenue Reconciliation

Revenue per Audited Statements
$3,491,342
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$0
Total Revenue per Audited Statements
$3,491,342
Total Revenue per Form 990
$3,491,342
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$877,909
Salaries, Compensation, and Employee Benefits$843,970
Total Fundraising Expense$295,372
Grants and Similar Amounts Paid$227,500
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$463,376$75,177$174,279$712,832
Grants to Domestic Orgs$227,500--$227,500
Occupancy$81,764$19,495$32,234$133,493
Payroll Taxes$75,502$12,716$30,239$118,457
Fees for Services Lobbying$93,000--$93,000
Conferences and Meetings$47,099$2,468$9,873$59,440
Fees for Services Accounting-$40,575-$40,575
Other Expenses$7,194$3,028$5,951$16,173
All Other Expenses$10,455$2,566$1,088$14,109
Pension Plan Contributions$9,164$1,570$1,947$12,681
Depreciation Depletion-$6,234-$6,234
Insurance$3,282$1,094$1,094$5,470
Total Functional Expenses$1,478,623$175,384$295,372$1,949,379

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$1,949,379
Total Expenses per Audited Statements$1,949,379
Total Expenses per Form 990$1,949,379
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
CHILDREN'S HOSPITAL OAKLAND RESEARCH INSTITUTEOakland, CA, It-Snp Discovery and Characterization of the Human Beta Globin Gene for Non-invasive Prenatal Testing for Beta Hemoglobinopathies$32,500
Duke University Accts ReceivableCharlotte, NC-Thalassemia Screening in Myanmese and Lao Migrants in Thailand$32,500
Fondazione Centro San Raffaele Universita Vita-salute San RaffaeleAnn Arbor, MI-TRANSFERRIN RECEPTOR 2 : A NOVEL POTENTIAL THERAPEUTIC TARGET FOR B-THALASSEMIA$32,500
Icahn School of Medicine at Mount SinaiNew York, NY-Genome Editing of Eklf Enhancer Elements for Fetal Hemoglobin Induction$32,500
The Regents of the University of MichiganSeattle, WA-Development of Rn-1 Analogs to Inhibit Lsd1 Activity as a Strategy to Treat B-thalassemia$32,500
Yale UniversityNew Haven, CT-The Role of Ncoa4 in the Regulation of Hepatic Iron Stores$32,500
The Regents of the University of MichiganAnn Arbor, MI-Identification of the Cellular Targets Through Which Granulocytes Drive Hematopoietic Regeneration After Transplant$16,250
University of Washington Division of Medical Genetics--Two Innovative Approaches for Genome Editing in Beta-thalassemia$16,250
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
Yes
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“No review will be conducted.”

Form 990, Part VI, Section B, Line 12C

“All officers and board members are required to sign potential conflict of interest disclosures. Ongoing training of all officers and directors is done throughout the year to have the ability to assist in identifying potential conflicts of interest.”

Form 990, Part VI, Section B, Line 15

“There is a staffing compensation committee that recommends annual compensation of all employees to the board of directors.”

Form 990, Part VI, Section C, Line 19

“AVAILABLE UPON REQUEST.”

Filing and Contact Details

Filer

Filer Name
COOLEY'S ANEMIA FOUNDATION
EIN
11-1971539
Phone
2122798090
Address
330 SEVENTH AVENUE NO 200, NEW YORK, NY 10001

Signing Officer

Name
Craig Butler
Title
Executive Director
Phone
2122798090
Signed
2019-05-02
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Craig Butler
Formed
1954
Legal Domicile
Ny
Voting Board Members
48
Independent Board Members
48
Employees
11
Volunteers
0

Preparer

Firm
Katz Viola Lebenhart & Mauro Llp
Address
415 CROSSWAYS PARK DRIVE SUITE C, WOODBURY, NY 11797
Preparer
Anthony J Viola CPA
Phone
5169385219
Supplemental Narrative

Financial Statement Notes

PART X, LINE 2:

“Management evaluated all of the foundations tax positions for all open tax years and has concluded that the foundation had taken no uncertain tax positions that require adjustments or disclosure to the financial statements.”

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IRS990/Form990PartVIISectionAGrp/PersonNm5SHIRLEY CAMMILLERI
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IRS990/Form990PartVIISectionAGrp/PersonNm10MICHELLE CHIECO-LENZ
IRS990/Form990PartVIISectionAGrp/PersonNm11ALAN COHEN MD
IRS990/Form990PartVIISectionAGrp/PersonNm12RALPH COLASANTI
IRS990/Form990PartVIISectionAGrp/PersonNm13SARAH BAQUERI CONNOLLY
IRS990/Form990PartVIISectionAGrp/PersonNm14MICHAEL DIFILIPPO
IRS990/Form990PartVIISectionAGrp/PersonNm15TERRI DIFILLIPO
IRS990/Form990PartVIISectionAGrp/PersonNm16JOSEPH DI TRAPANI
IRS990/Form990PartVIISectionAGrp/PersonNm17ANTHONY FERRINO
IRS990/Form990PartVIISectionAGrp/PersonNm18ROBERT FICARRA
IRS990/Form990PartVIISectionAGrp/PersonNm19ANTONI FOE
IRS990/Form990PartVIISectionAGrp/PersonNm20FRANK FUSARO
IRS990/Form990PartVIISectionAGrp/PersonNm21AMNISH GOEL PHD
IRS990/Form990PartVIISectionAGrp/PersonNm22CHRISTINE HORTON
IRS990/Form990PartVIISectionAGrp/PersonNm23RICHARD KIRKENDALL
IRS990/Form990PartVIISectionAGrp/PersonNm24FRANK MARZANO
IRS990/Form990PartVIISectionAGrp/PersonNm25GIANNA PALMINTERI
IRS990/Form990PartVIISectionAGrp/PersonNm26CHI PHAM
IRS990/Form990PartVIISectionAGrp/PersonNm27PAUL POLO
IRS990/Form990PartVIISectionAGrp/PersonNm28MICHAEL POUCHIE
IRS990/Form990PartVIISectionAGrp/PersonNm29MICHAEL PRESTO
IRS990/Form990PartVIISectionAGrp/PersonNm30SHARON FARRELL RADONIS
IRS990/Form990PartVIISectionAGrp/PersonNm31THOMAS A ROTOLO
IRS990/Form990PartVIISectionAGrp/PersonNm32PHIL RUTIGLIANO
IRS990/Form990PartVIISectionAGrp/PersonNm33JOSEPH SCIAME
IRS990/Form990PartVIISectionAGrp/PersonNm34FRANK SOMMA
IRS990/Form990PartVIISectionAGrp/PersonNm35FRANK TIDONA
IRS990/Form990PartVIISectionAGrp/PersonNm36TERESA TOMAINO
IRS990/Form990PartVIISectionAGrp/PersonNm37JAMES VENTOLA
IRS990/Form990PartVIISectionAGrp/PersonNm38JOSEPH VIGLIOTTI ESQ
IRS990/Form990PartVIISectionAGrp/PersonNm39ANTHONY VIOLA CPA
IRS990/Form990PartVIISectionAGrp/PersonNm40TOM WATRAL
IRS990/Form990PartVIISectionAGrp/PersonNm41JOSEPH ZURAW
IRS990/Form990PartVIISectionAGrp/PersonNm42PETER CHIECO
IRS990/Form990PartVIISectionAGrp/PersonNm43JANICE CENZOPRANO
IRS990/Form990PartVIISectionAGrp/PersonNm44DEAN HERNAN
IRS990/Form990PartVIISectionAGrp/PersonNm45JANET KWIATKOWSKI MD MSCE
IRS990/Form990PartVIISectionAGrp/PersonNm46MARIA HADJIDEMETRIOU
IRS990/Form990PartVIISectionAGrp/PersonNm47CRAIG BUTLER
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Document Assets

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Filings

Displayed year

2018 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$4,960,002
Liabilities
$63,131
Net assets
$4,896,871
Revenue
$3,491,342
Expenses
$1,949,379
Net income
$1,541,963
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$6.38$0.72$5.66$2.81$2.22$0.59
2023Detailed filing. Detailed filing data is available for this year.$5.55$0.48$5.07$2.31$2.17$0.14
2022Detailed filing. Detailed filing data is available for this year.$5.14$0.22$4.93$3.03$1.90$1.13
2021Detailed filing. Detailed filing data is available for this year.$4.66$0.86$3.80$1.57$1.70$0.14
2020Detailed filing. Detailed filing data is available for this year.$4.65$0.71$3.94$1.07$2.17$1.11
2019Detailed filing. Detailed filing data is available for this year.$5.16$0.12$5.05$2.25$2.10$0.15
2018Detailed filing. Detailed filing data is available for this year.$4.96$0.06$4.90$3.49$1.95$1.54
2018Detailed filing. Detailed filing data is available for this year.$4.96$0.06$4.90$3.49$1.95$1.54
2017Detailed filing. Detailed filing data is available for this year.$3.70$0.34$3.35$2.54$1.69$0.85
2016Detailed filing. Detailed filing data is available for this year.$2.57$0.06$2.51$2.11$1.73$0.38
2015Detailed filing. Detailed filing data is available for this year.$2.30$0.18$2.12$1.81$1.76$0.06
2014Detailed filing. Detailed filing data is available for this year.$2.22$0.15$2.07$1.84$1.77$0.07
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.17$0.17$2.00$2.00$1.69$0.30
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.92$0.22$1.70$1.50
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.70$0.09$1.61$1.63
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.85$0.04$1.81$2.12