Civic Intelligence

Cooleys Anemia Foundation Inc.

990 • Fiscal year 2015 • EIN 11-1971539

Jul 01, 2014 to Jun 30, 2015 • Filed on May 10, 2016

Organization ProfileWWW.COOLEYSANEMIA.ORG
330 Seventh Avenue No 200New York, NY 10001

(212) 279-8090

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

45th percentile

0.08x

Higher debt load relative to assets than 45% of similar nonprofits.

2015 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2015

Liabilities / Revenue

48th percentile

0.10x

Higher debt load relative to revenue than 48% of similar nonprofits.

2015 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2015

Net Margin

51st percentile

3.0%

Higher net margin than 51% of similar nonprofits.

2015 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2015

Top Officer Pay

87th percentile

$175,521

Higher top officer pay than 87% of similar nonprofits.

Top officer pay equals 9.7% of source-year revenue.

2015 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2015

Asset Growth

61st percentile

3.7%

Faster asset growth than 61% of similar nonprofits.

2015 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2014 to 2015

Revenue Growth

36th percentile

-1.6%

Faster revenue growth than 36% of similar nonprofits.

2015 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2014 to 2015

Balance Sheet
Liabilities / Assets45th percentile

Assets

Up

$2,300,519

Up $82,327 (+3.7%) from 2014

Net Assets

Up

$2,124,647

Up $55,112 (+2.7%) from 2014

Liabilities

Up

$175,872

Up $27,215 (+18%) from 2014

Revenue And Expenses
Liabilities / Revenue48th percentileNet Margin51st percentile

Revenue

Down

$1,810,249

Down $29,312 (-1.6%) from 2014

Expenses

Down

$1,755,137

Down $16,659 (-0.9%) from 2014

Net Income

Down

$55,112

Down $12,653 (-19%) from 2014

Historical Trend

Balance Sheet Trend

Asset Growth61st percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$8.0M$6.0M$4.0M$2.0M$0Assets 2010: $1,847,129Liabilities 2010: $38,532Net Assets 2010: $1,808,5972010Assets 2011: $1,701,739Liabilities 2011: $91,779Net Assets 2011: $1,609,9602011Assets 2012: $1,920,966Liabilities 2012: $224,192Net Assets 2012: $1,696,7742012Assets 2013: $2,167,146Liabilities 2013: $165,376Net Assets 2013: $2,001,7702013Assets 2014: $2,218,192Liabilities 2014: $148,657Net Assets 2014: $2,069,5352014Assets 2015: $2,300,519Liabilities 2015: $175,872Net Assets 2015: $2,124,6472015Assets 2016: $2,565,824Liabilities 2016: $60,506Net Assets 2016: $2,505,3182016Assets 2017: $3,695,115Liabilities 2017: $340,207Net Assets 2017: $3,354,9082017Assets 2018: $4,960,002Liabilities 2018: $63,131Net Assets 2018: $4,896,8712018Assets 2019: $5,160,832Liabilities 2019: $115,455Net Assets 2019: $5,045,3772019Assets 2020: $4,652,443Liabilities 2020: $713,527Net Assets 2020: $3,938,9162020Assets 2021: $4,659,141Liabilities 2021: $857,539Net Assets 2021: $3,801,6022021Assets 2022: $5,144,098Liabilities 2022: $216,473Net Assets 2022: $4,927,6252022Assets 2023: $5,550,283Liabilities 2023: $481,507Net Assets 2023: $5,068,7762023Assets 2024: $6,376,996Liabilities 2024: $719,996Net Assets 2024: $5,657,0002024

Highlighted filing

2015

Assets$2,300,519
Liabilities$175,872
Net Assets$2,124,647
Open 2015 Filing

Operations Trend

Revenue Growth36th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$4.0M$2.0M$0-$2.0MExpenses 2010: $2,121,8682010Expenses 2011: $1,629,5152011Expenses 2012: $1,499,4212012Revenue 2013: $1,998,700Expenses 2013: $1,693,704Net Income 2013: $304,9962013Revenue 2014: $1,839,561Expenses 2014: $1,771,796Net Income 2014: $67,7652014Revenue 2015: $1,810,249Expenses 2015: $1,755,137Net Income 2015: $55,1122015Revenue 2016: $2,114,602Expenses 2016: $1,733,931Net Income 2016: $380,6712016Revenue 2017: $2,541,590Expenses 2017: $1,692,000Net Income 2017: $849,5902017Revenue 2018: $3,491,342Expenses 2018: $1,949,379Net Income 2018: $1,541,9632018Revenue 2019: $2,248,215Expenses 2019: $2,099,709Net Income 2019: $148,5062019Revenue 2020: $1,066,981Expenses 2020: $2,173,442Net Income 2020: -$1,106,4612020Revenue 2021: $1,565,758Expenses 2021: $1,703,072Net Income 2021: -$137,3142021Revenue 2022: $3,029,482Expenses 2022: $1,903,459Net Income 2022: $1,126,0232022Revenue 2023: $2,306,555Expenses 2023: $2,165,404Net Income 2023: $141,1512023Revenue 2024: $2,812,580Expenses 2024: $2,224,356Net Income 2024: $588,2242024

Highlighted filing

2015

Revenue$1,810,249
Expenses$1,755,137
Net Income$55,112
Open 2015 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2014 to Jun 30, 2015
Signed
May 10, 2016
Return Version
2014v6.0
Gross Receipts
$1,810,249
Mission and Program Overview

Mission

To enhance the quality of patients' lives while taking the necessary steps toward finding a cure for this fatal blood disease.

To enhance the quality of patients' lives while taking the necessary steps towards finding a cure for this fatal blood disease .

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$1,542,251$1,389,547▼ $152,704
Pledges and Grants Receivable$147,171$295,026▲ $147,855
Savings and Temporary Cash Investments$206,208$209,003▲ $2,795
Accounts Receivable$132,271$110,907▼ $21,364
Land, Buildings, and Equipment, Net$9,537$15,834▲ $6,297
Total Assets$2,218,192$2,300,519▲ $82,327
Other Assets Total$180,754$280,202▲ $99,448
Liabilities
Accounts Payable and Accrued Expenses$148,657$175,872▲ $27,215
Total Liabilities$148,657$175,872▲ $27,215
Net Assets / Fund Balance
Unrestricted Net Assets$2,033,792$1,893,218▼ $140,574
Temporarily Rstr Net Assets$35,743$231,429▲ $195,686
Total Net Assets Fund Balance$2,069,535$2,124,647▲ $55,112
Total Liabilities and Net Assets / Fund Balance$2,218,192$2,300,519▲ $82,327

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$15,834$288,244$304,078
Other Assets Org$54,869--
Compensation and Service Providers
Top Officer Pay87th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Gina CioffiExecutive DirectorFT$175,521$175,521

Board Members and Trustees

NameTitle
Peter ChiecoDirector, Chair Medical Info. Comm.
Robert FicarraDirector, Chair, International Affairs Committee
Dr Ellis NeufieldDirector, Chair, Medical Advisory Board
Frank SommaDirector, Chair, Public Policy and Legislation
Anthony JviolaNational President
Amy CelentoNational Vice President
Anthony FerrinoDirector
Antoni FoeDirector
Ben JacobellisDirector
Cammie BrandofinoDirector
Christine SommaDirector
Dr Alan CohenDirector
Dr David YoungerDirector
Frank FusaroDirector
Frank MarzanoDirector
Frank TidonaDirector
Gianna PalminteriDirector
James KalpakisDirector
James VentolaDirector
Joseph Di TrapaniDirector
Joseph SciameDirector
Joseph VigliottiDirector
Julia CenzopranoDirector
Lilla ViscomeDirector
Maria HadjidemetriouDirector
Mary Ann Cervonia-laiaDirector
Paul PoloDirector
Phil RutiglianoDirector
Ralph ColasantiDirector
Robert AielloDirector
Shirley CammilleriDirector
Teresa TomainoDirector
Terri DifilippoDirector
Thomas ChengDirector
Thomas a RotoloDirector
Nunzio CazzettaDirector By-law Committee
Janice CenzopranoNational Secretary
Dean HernanNational Treasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$626,730
Program Service Revenue
$0
Investment Income
$1,556
Other Revenue
$1,181,963
All Other Contributions
$506,296
Change in Net Assets
$55,112
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$796,955
Other Expenses$696,655
Grants and Similar Amounts Paid$261,527
Total Fundraising Expense$197,268
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$416,604$144,604$105,018$666,226
Grants to Domestic Orgs$261,527--$261,527
Fees for Services Accounting$92,449$33,192$2,276$127,917
Payroll Taxes$73,209$25,554$19,494$118,257
Occupancy$64,530$16,960$19,093$100,583
Conferences and Meetings$13,230$2,709$10,823$26,762
Other Expenses$22,467$3,319$182$25,968
All Other Expenses$9,029$3,604$6,830$19,463
Insurance$8,418$7,971$2,806$19,195
Pension Plan Contributions$8,617$2,285$1,570$12,472
Depreciation Depletion-$3,524-$3,524
Total Functional Expenses$1,303,650$254,219$197,268$1,755,137
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
CHILDREN'S HOSPITAL & RESEARCH CENTER OAKLANDOakland, CA, Fr-Determination of Reproductive State and Relation to Pituitary Iron Overload in Thalassemia Patients$40,000
Inserm-agence Comptable France--MATRIPTASE-2: NEW THERAPY FOR NON-TRANSFUSION TRANSFUSION DEPENDENT$32,500
Jsi Weill Cornell Medical CollegeNew York, NY-Novel Approaches to Treat Iron Overload in Thalassemia$32,500
Oregon Health and Science UniversityPortland, OR-Development of a 2nd Generation Mitotically-stable Anchored Non-integrating Lentiviral Vector (anilv-ii) for Hematopoietic Stem Cell Gene Therapy$32,500
The Regents of the University of MichiganAnn Harbor, MI-VARIABLE NUMBER TANDEM REPEATS AND HETEROCHROMATIN IN ?-THALASSEMIA$32,500
The Trustees of the University of PennsylwaniaPhiladelphia, PA-Mechanism of Pabpc4 Action Regulating Terminal Erythroid Differentiation$32,500
University of Alabama at BirminghamBirmingham, AL-CORRECTION OF HUMANIZED COOLEY'S ANEMIA MICE BY GENE EDITING OF HEMATOPOIETIC STEM CELLS$32,500
Memorial Sloan - Kettering Cancer CenterNew York, NY-A PHASE I CLINICAL TRAIL OF LENTIVIRAL MEDIATED ?-GLOBIN GENE TRANSFER IN PATIENTS WITH COOLEY'S ANEMIA$15,000
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Audit committee
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11

“No review will be conducted.”

Form 990, Part VI, Section C, Line 19

“AVAILABLE UPON REQUEST.”

Filing and Contact Details

Filer

Filer Name
COOLEY'S ANEMIA FOUNDATION
EIN
11-1971539
Phone
2122798090
Address
330 SEVENTH AVENUE NO 200, NEW YORK, NY 10001

Signing Officer

Name
Anthony J Viola
Title
National President
Phone
2122798090
Signed
2016-05-10
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Anthony J Viola
Formed
1954
Legal Domicile
Ny
Voting Board Members
38
Independent Board Members
38
Employees
10
Volunteers
0

Preparer

Firm
Sanders Thaler Viola & Katz Llp
Address
350 JERICHO TURNPIKE SUITE 1, JERICHO, NY 11753
Preparer
Anthony J Viola CPA
Phone
5169385219
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IRS990/Form990PartVIISectionAGrp/PersonNm9MARY ANN CERVONIA-LAIA
IRS990/Form990PartVIISectionAGrp/PersonNm10THOMAS CHENG
IRS990/Form990PartVIISectionAGrp/PersonNm11PETER CHIECO
IRS990/Form990PartVIISectionAGrp/PersonNm12DR ALAN COHEN
IRS990/Form990PartVIISectionAGrp/PersonNm13RALPH COLASANTI
IRS990/Form990PartVIISectionAGrp/PersonNm14JOSEPH DI TRAPANI
IRS990/Form990PartVIISectionAGrp/PersonNm15ANTHONY FERRINO
IRS990/Form990PartVIISectionAGrp/PersonNm16ROBERT FICARRA
IRS990/Form990PartVIISectionAGrp/PersonNm17ANTONI FOE
IRS990/Form990PartVIISectionAGrp/PersonNm18FRANK FUSARO
IRS990/Form990PartVIISectionAGrp/PersonNm19MARIA HADJIDEMETRIOU
IRS990/Form990PartVIISectionAGrp/PersonNm20DEAN HERNAN
IRS990/Form990PartVIISectionAGrp/PersonNm21BEN JACOBELLIS
IRS990/Form990PartVIISectionAGrp/PersonNm22JAMES KALPAKIS
IRS990/Form990PartVIISectionAGrp/PersonNm23FRANK MARZANO
IRS990/Form990PartVIISectionAGrp/PersonNm24DR ELLIS NEUFIELD
IRS990/Form990PartVIISectionAGrp/PersonNm25GIANNA PALMINTERI
IRS990/Form990PartVIISectionAGrp/PersonNm26PAUL POLO
IRS990/Form990PartVIISectionAGrp/PersonNm27THOMAS A ROTOLO
IRS990/Form990PartVIISectionAGrp/PersonNm28PHIL RUTIGLIANO
IRS990/Form990PartVIISectionAGrp/PersonNm29JOSEPH SCIAME
IRS990/Form990PartVIISectionAGrp/PersonNm30CHRISTINE SOMMA
IRS990/Form990PartVIISectionAGrp/PersonNm31FRANK SOMMA
IRS990/Form990PartVIISectionAGrp/PersonNm32FRANK TIDONA
IRS990/Form990PartVIISectionAGrp/PersonNm33TERESA TOMAINO
IRS990/Form990PartVIISectionAGrp/PersonNm34JAMES VENTOLA
IRS990/Form990PartVIISectionAGrp/PersonNm35LILLA VISCOME
IRS990/Form990PartVIISectionAGrp/PersonNm36DR DAVID YOUNGER
IRS990/Form990PartVIISectionAGrp/PersonNm37JOSEPH VIGLIOTTI
IRS990/Form990PartVIISectionAGrp/PersonNm38GINA CIOFFI
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt170
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt210
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt220
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt230
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt240
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt250
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt270
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt310
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt330
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt340
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt360
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt370
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt210
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt220
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt230
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt240
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt250
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt260
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt270
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt280
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt290
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt300
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt310
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt320
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt330
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt340
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt350
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt360
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt380
IRS990/Form990PartVIISectionAGrp/TitleTxt0NATIONAL PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt1NATIONAL VICE PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt2DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR BY-LAW COMMITTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt7NATIONAL SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR, CHAIR MEDICAL INFO. COMM.
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16DIRECTOR, CHAIR, INTERNATIONAL AFFAIRS COMMITTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt17DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt18DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt19DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt20NATIONAL TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt21DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt22DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt23DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt24DIRECTOR, CHAIR, MEDICAL ADVISORY BOARD
IRS990/Form990PartVIISectionAGrp/TitleTxt25DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt26DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt27DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt28DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt29DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt30DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt31DIRECTOR, CHAIR, PUBLIC POLICY AND LEGISLATION
IRS990/Form990PartVIISectionAGrp/TitleTxt32DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt33DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt34DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt35DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt36DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt37DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt38EXECUTIVE DIRECTOR
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IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
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IRS990/GroupReturnForAffiliatesInd00
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IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0TO ENHANCE THE QUALITY OF PATIENTS' LIVES WHILE TAKING THE NECESSARY STEPS TOWARD FINDING A CURE FOR THIS FATAL BLOOD DISEASE.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt02069535
IRS990/NetAssetsOrFundBalancesEOYAmt02124647
IRS990/NetUnrelatedBusTxblIncmAmt00

Document Assets

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Filings

Displayed year

2015 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$2,300,519
Liabilities
$175,872
Net assets
$2,124,647
Revenue
$1,810,249
Expenses
$1,755,137
Net income
$55,112
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$6.38$0.72$5.66$2.81$2.22$0.59
2023Detailed filing. Detailed filing data is available for this year.$5.55$0.48$5.07$2.31$2.17$0.14
2022Detailed filing. Detailed filing data is available for this year.$5.14$0.22$4.93$3.03$1.90$1.13
2021Detailed filing. Detailed filing data is available for this year.$4.66$0.86$3.80$1.57$1.70$0.14
2020Detailed filing. Detailed filing data is available for this year.$4.65$0.71$3.94$1.07$2.17$1.11
2019Detailed filing. Detailed filing data is available for this year.$5.16$0.12$5.05$2.25$2.10$0.15
2018Detailed filing. Detailed filing data is available for this year.$4.96$0.06$4.90$3.49$1.95$1.54
2017Detailed filing. Detailed filing data is available for this year.$3.70$0.34$3.35$2.54$1.69$0.85
2016Detailed filing. Detailed filing data is available for this year.$2.57$0.06$2.51$2.11$1.73$0.38
2015Detailed filing. Detailed filing data is available for this year.$2.30$0.18$2.12$1.81$1.76$0.06
2014Detailed filing. Detailed filing data is available for this year.$2.22$0.15$2.07$1.84$1.77$0.07
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.17$0.17$2.00$2.00$1.69$0.30
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.92$0.22$1.70$1.50
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.70$0.09$1.61$1.63
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.85$0.04$1.81$2.12