Civic Intelligence

Cooleys Anemia Foundation Inc.

990 • Fiscal year 2014 • EIN 11-1971539

Jul 01, 2013 to Jun 30, 2014 • Filed on May 11, 2015

Organization ProfileWWW.COOLEYSANEMIA.ORG
330 Seventh Avenue No 200New York, NY 10001

(800) 522-7222

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

43rd percentile

0.07x

Higher debt load relative to assets than 43% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2014

Liabilities / Revenue

44th percentile

0.08x

Higher debt load relative to revenue than 44% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2014

Net Margin

53rd percentile

3.7%

Higher net margin than 53% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2014

Top Officer Pay

86th percentile

$163,516

Higher top officer pay than 86% of similar nonprofits.

Top officer pay equals 8.9% of source-year revenue.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2014

Asset Growth

51st percentile

2.4%

Faster asset growth than 51% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2013 to 2014

Revenue Growth

23rd percentile

-8.0%

Faster revenue growth than 23% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2013 to 2014

Balance Sheet
Liabilities / Assets43rd percentile

Assets

Up

$2,218,192

Up $51,046 (+2.4%) from 2013

Net Assets

Up

$2,069,535

Up $67,765 (+3.4%) from 2013

Liabilities

Down

$148,657

Down $16,719 (-10%) from 2013

Revenue And Expenses
Liabilities / Revenue44th percentileNet Margin53rd percentile

Revenue

Down

$1,839,561

Down $159,139 (-8.0%) from 2013

Expenses

Up

$1,771,796

Up $78,092 (+4.6%) from 2013

Net Income

Down

$67,765

Down $237,231 (-78%) from 2013

Historical Trend

Balance Sheet Trend

Asset Growth51st percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$8.0M$6.0M$4.0M$2.0M$0Assets 2010: $1,847,129Liabilities 2010: $38,532Net Assets 2010: $1,808,5972010Assets 2011: $1,701,739Liabilities 2011: $91,779Net Assets 2011: $1,609,9602011Assets 2012: $1,920,966Liabilities 2012: $224,192Net Assets 2012: $1,696,7742012Assets 2013: $2,167,146Liabilities 2013: $165,376Net Assets 2013: $2,001,7702013Assets 2014: $2,218,192Liabilities 2014: $148,657Net Assets 2014: $2,069,5352014Assets 2015: $2,300,519Liabilities 2015: $175,872Net Assets 2015: $2,124,6472015Assets 2016: $2,565,824Liabilities 2016: $60,506Net Assets 2016: $2,505,3182016Assets 2017: $3,695,115Liabilities 2017: $340,207Net Assets 2017: $3,354,9082017Assets 2018: $4,960,002Liabilities 2018: $63,131Net Assets 2018: $4,896,8712018Assets 2019: $5,160,832Liabilities 2019: $115,455Net Assets 2019: $5,045,3772019Assets 2020: $4,652,443Liabilities 2020: $713,527Net Assets 2020: $3,938,9162020Assets 2021: $4,659,141Liabilities 2021: $857,539Net Assets 2021: $3,801,6022021Assets 2022: $5,144,098Liabilities 2022: $216,473Net Assets 2022: $4,927,6252022Assets 2023: $5,550,283Liabilities 2023: $481,507Net Assets 2023: $5,068,7762023Assets 2024: $6,376,996Liabilities 2024: $719,996Net Assets 2024: $5,657,0002024

Highlighted filing

2014

Assets$2,218,192
Liabilities$148,657
Net Assets$2,069,535
Open 2014 Filing

Operations Trend

Revenue Growth23rd percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$4.0M$2.0M$0-$2.0MExpenses 2010: $2,121,8682010Expenses 2011: $1,629,5152011Expenses 2012: $1,499,4212012Revenue 2013: $1,998,700Expenses 2013: $1,693,704Net Income 2013: $304,9962013Revenue 2014: $1,839,561Expenses 2014: $1,771,796Net Income 2014: $67,7652014Revenue 2015: $1,810,249Expenses 2015: $1,755,137Net Income 2015: $55,1122015Revenue 2016: $2,114,602Expenses 2016: $1,733,931Net Income 2016: $380,6712016Revenue 2017: $2,541,590Expenses 2017: $1,692,000Net Income 2017: $849,5902017Revenue 2018: $3,491,342Expenses 2018: $1,949,379Net Income 2018: $1,541,9632018Revenue 2019: $2,248,215Expenses 2019: $2,099,709Net Income 2019: $148,5062019Revenue 2020: $1,066,981Expenses 2020: $2,173,442Net Income 2020: -$1,106,4612020Revenue 2021: $1,565,758Expenses 2021: $1,703,072Net Income 2021: -$137,3142021Revenue 2022: $3,029,482Expenses 2022: $1,903,459Net Income 2022: $1,126,0232022Revenue 2023: $2,306,555Expenses 2023: $2,165,404Net Income 2023: $141,1512023Revenue 2024: $2,812,580Expenses 2024: $2,224,356Net Income 2024: $588,2242024

Highlighted filing

2014

Revenue$1,839,561
Expenses$1,771,796
Net Income$67,765
Open 2014 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2013 to Jun 30, 2014
Signed
May 11, 2015
Return Version
2013v4.0
Gross Receipts
$1,839,561
Mission and Program Overview

Mission

To enhance the quality of patients' lives while taking the necessary steps toward finding a cure for this fatal blood disease.

To enhance the quality of patients' lives while taking the necessary steps towards finding a cure for this fatal blood disease .

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$1,323,457$1,542,251▲ $218,794
Savings and Temporary Cash Investments$203,901$206,208▲ $2,307
Pledges and Grants Receivable$203,884$147,171▼ $56,713
Accounts Receivable$97,468$132,271▲ $34,803
Land, Buildings, and Equipment, Net$9,662$9,537▼ $125
Total Assets$2,167,146$2,218,192▲ $51,046
Other Assets Total$328,774$180,754▼ $148,020
Liabilities
Accounts Payable and Accrued Expenses$165,376$148,657▼ $16,719
Total Liabilities$165,376$148,657▼ $16,719
Net Assets / Fund Balance
Unrestricted Net Assets$1,993,250$2,033,792▲ $40,542
Temporarily Rstr Net Assets$8,520$35,743▲ $27,223
Total Net Assets Fund Balance$2,001,770$2,069,535▲ $67,765
Total Liabilities and Net Assets / Fund Balance$2,167,146$2,218,192▲ $51,046

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$9,537$284,720$294,257
Other Assets Org$141,402--
Compensation and Service Providers
Top Officer Pay86th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Gina CioffiExecutive DirectorFT$163,516$163,516

Board Members and Trustees

NameTitle
Dean HernanDirector Chair, Fundraising Committee
Peter ChiecoDirector, Chair Medical Info. Comm.
Robert FicarraDirector, Chair, International Affairs Committee
Dr Ellis NeufieldDirector, Chair, Medical Advisory Board
Frank SommaDirectorchair, Public Policy and Legislation
Anthony JviolaPresident
Amy CelentoVice President
Anthony FerrinoDirector
Antoni FoeDirector
Ben JacobellisDirector
Christine SommaDirector
Dr Alan CohenDirector
Dr David YoungerDirector
Frank FusaroDirector
Frank MarzanoDirector
Frank TidonaDirector
Gianna PalminteriDirector
James KalpakisDirector
James VentolaDirector
Janice CenzopranoDirector
Joseph Di TrapaniDirector
Joseph SciameDirector
Joseph VigliottiDirector
Julia CenzopranoDirector
Lilla ViscomeDirector
Maria HadjidemetriouDirector
Mary Ann Cervonia-laiaDirector
Paul PoloDirector
Phil RutiglianoDirector
Ralph ColasantiDirector
Robert AielloDirector
Shirley CammilleriDirector
Teresa TomainoDirector
Thomas ChengDirector
Thomas a RotoloDirector
Nunzio CazzettaDirector By-law Committee
Cammie BrandofinoSecretary
Terri DifilippoTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$691,211
Program Service Revenue
$0
Investment Income
$802
Other Revenue
$1,147,548
All Other Contributions
$643,017
Change in Net Assets
$67,765
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$737,103
Other Expenses$678,443
Grants and Similar Amounts Paid$356,250
Total Fundraising Expense$213,087
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$402,439$133,086$92,096$627,621
Grants to Domestic Orgs$356,250--$356,250
Fees for Services Accounting$107,999$33,240$15,501$156,740
Payroll Taxes$65,007$17,959$14,535$97,501
Occupancy$57,562$14,412$14,325$86,299
Conferences and Meetings$40,833$9,489$26,445$76,767
Other Expenses$9,057$5,682$3,454$18,193
All Other Expenses$7,542$3,453$7,128$18,123
Pension Plan Contributions$8,228$2,204$1,549$11,981
Insurance$3,420$2,811$1,140$7,371
Depreciation Depletion-$2,323-$2,323
Total Functional Expenses$1,321,056$237,653$213,087$1,771,796
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
13-1624182--A PHASE I CLINICAL TRAIL OF LENTIVIRAL MEDIATED ?-GLOBIN GENE TRANSFER IN PATIENTS WITH COOLEY'S ANEMIA$60,000
94-0382330--Iron Overload, Zinc Status and Glucose Regulation Patients With Thalassemia$40,000
94-0382330--Self-efficacy and Adherence With Iron Chelation Therapies in Thalassemia$40,000
38-6006309--VARIABLE NUMBER TANDEM REPEATS AND HETEROCHROMATIN IN ?-THALASSEMIA$32,500
13-1623978--Novel Approaches to Treat Iron Overload in Thalassemia$32,500
23-1352685--Mechanism of Pabpc4 Action Regulating Terminal Erythroid Differentiation$32,500
23-1352685--Metabolomics Biomarker Profiles to Predict Cardiac Disease in Transfusion Dependent Beta-thalassemia.$32,500
23-1352166--Pilot Study of Deferasirox and Deferiprone Combination Oral Chelation for Individuals With Transfusion Dependent Thalassemia and High Iron Burden$30,000
62-0646012--Translations Research in Adult Thalassemia$18,750
94-0382330--Determination of Reproductive State and Relation to Pituitary Iron Overload in Thalassemia Patients$10,000
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Audit committee
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11

“No review will be conducted.”

Form 990, Part VI, Section C, Line 19

“AVAILABLE UPON REQUEST.”

Filing and Contact Details

Filer

EIN
11-1971539
Phone
8005227222

Signing Officer

Name
Anthony J Viola
Title
President
Phone
8005227222
Signed
2015-05-11
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Anthony J Viola
Formed
1954
Legal Domicile
Ny
Voting Board Members
38
Independent Board Members
38
Employees
11
Volunteers
0

Preparer

Preparer
Anthony J Viola CPA
Phone
5169385219
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IRS990/Form990PartVIISectionAGrp/PersonNm14JOSEPH DI TRAPANI
IRS990/Form990PartVIISectionAGrp/PersonNm15ANTHONY FERRINO
IRS990/Form990PartVIISectionAGrp/PersonNm16ROBERT FICARRA
IRS990/Form990PartVIISectionAGrp/PersonNm17ANTONI FOE
IRS990/Form990PartVIISectionAGrp/PersonNm18FRANK FUSARO
IRS990/Form990PartVIISectionAGrp/PersonNm19MARIA HADJIDEMETRIOU
IRS990/Form990PartVIISectionAGrp/PersonNm20DEAN HERNAN
IRS990/Form990PartVIISectionAGrp/PersonNm21BEN JACOBELLIS
IRS990/Form990PartVIISectionAGrp/PersonNm22JAMES KALPAKIS
IRS990/Form990PartVIISectionAGrp/PersonNm23FRANK MARZANO
IRS990/Form990PartVIISectionAGrp/PersonNm24DR ELLIS NEUFIELD
IRS990/Form990PartVIISectionAGrp/PersonNm25GIANNA PALMINTERI
IRS990/Form990PartVIISectionAGrp/PersonNm26PAUL POLO
IRS990/Form990PartVIISectionAGrp/PersonNm27THOMAS A ROTOLO
IRS990/Form990PartVIISectionAGrp/PersonNm28PHIL RUTIGLIANO
IRS990/Form990PartVIISectionAGrp/PersonNm29JOSEPH SCIAME
IRS990/Form990PartVIISectionAGrp/PersonNm30CHRISTINE SOMMA
IRS990/Form990PartVIISectionAGrp/PersonNm31FRANK SOMMA
IRS990/Form990PartVIISectionAGrp/PersonNm32FRANK TIDONA
IRS990/Form990PartVIISectionAGrp/PersonNm33TERESA TOMAINO
IRS990/Form990PartVIISectionAGrp/PersonNm34JAMES VENTOLA
IRS990/Form990PartVIISectionAGrp/PersonNm35LILLA VISCOME
IRS990/Form990PartVIISectionAGrp/PersonNm36DR DAVID YOUNGER
IRS990/Form990PartVIISectionAGrp/PersonNm37JOSEPH VIGLIOTTI
IRS990/Form990PartVIISectionAGrp/PersonNm38GINA CIOFFI
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt210
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt220
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt230
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt240
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt250
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt260
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt280
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IRS990/Form990PartVIISectionAGrp/TitleTxt0PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt1VICE PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt2SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt3TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR BY-LAW COMMITTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR, CHAIR MEDICAL INFO. COMM.
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16DIRECTOR, CHAIR, INTERNATIONAL AFFAIRS COMMITTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt17DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt18DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt19DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt20DIRECTOR CHAIR, FUNDRAISING COMMITTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt21DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt22DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt23DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt24DIRECTOR, CHAIR, MEDICAL ADVISORY BOARD
IRS990/Form990PartVIISectionAGrp/TitleTxt25DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt26DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt27DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt28DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt29DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt30DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt31DIRECTORCHAIR, PUBLIC POLICY AND LEGISLATION
IRS990/Form990PartVIISectionAGrp/TitleTxt32DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt33DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt34DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt35DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt36DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt37DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt38EXECUTIVE DIRECTOR
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IRS990/MinutesOfCommitteesInd01
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IRS990/MissionDesc0TO ENHANCE THE QUALITY OF PATIENTS' LIVES WHILE TAKING THE NECESSARY STEPS TOWARD FINDING A CURE FOR THIS FATAL BLOOD DISEASE.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
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Document Assets

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Filings

Displayed year

2014 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$2,218,192
Liabilities
$148,657
Net assets
$2,069,535
Revenue
$1,839,561
Expenses
$1,771,796
Net income
$67,765
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$6.38$0.72$5.66$2.81$2.22$0.59
2023Detailed filing. Detailed filing data is available for this year.$5.55$0.48$5.07$2.31$2.17$0.14
2022Detailed filing. Detailed filing data is available for this year.$5.14$0.22$4.93$3.03$1.90$1.13
2021Detailed filing. Detailed filing data is available for this year.$4.66$0.86$3.80$1.57$1.70$0.14
2020Detailed filing. Detailed filing data is available for this year.$4.65$0.71$3.94$1.07$2.17$1.11
2019Detailed filing. Detailed filing data is available for this year.$5.16$0.12$5.05$2.25$2.10$0.15
2018Detailed filing. Detailed filing data is available for this year.$4.96$0.06$4.90$3.49$1.95$1.54
2017Detailed filing. Detailed filing data is available for this year.$3.70$0.34$3.35$2.54$1.69$0.85
2016Detailed filing. Detailed filing data is available for this year.$2.57$0.06$2.51$2.11$1.73$0.38
2015Detailed filing. Detailed filing data is available for this year.$2.30$0.18$2.12$1.81$1.76$0.06
2014Detailed filing. Detailed filing data is available for this year.$2.22$0.15$2.07$1.84$1.77$0.07
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.17$0.17$2.00$2.00$1.69$0.30
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.92$0.22$1.70$1.50
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.70$0.09$1.61$1.63
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.85$0.04$1.81$2.12