Civic Intelligence

Cooley'S Anemia Foundation

EIN 11-1971539 • 501(c)3 • New York, NY

Profile

To enhance the quality of patients' lives while taking the necessary steps toward finding a cure for this fatal blood disease.

330 Seventh Avenue Suite 200New York, NY 10001

www.thalassemia.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

44th percentile

0.09x

Higher debt load relative to assets than 44% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2023

Liabilities / Revenue

56th percentile

0.21x

Higher debt load relative to revenue than 56% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2023

Net Margin

54th percentile

6.1%

Higher net margin than 54% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2023

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

59th percentile

7.9%

Faster asset growth than 59% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Annualized from 2022 to 2023

Revenue Growth

12th percentile

-24%

Faster revenue growth than 12% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Annualized from 2022 to 2023

Assets

Up

$6,376,996

Up $826,713 (+15%) from 2023

Liabilities

Up

$719,996

Up $238,489 (+50%) from 2023

Net Assets

Up

$5,657,000

Up $588,224 (+12%) from 2023

Revenue

Up

$2,812,580

Up $506,025 (+22%) from 2023

Expenses

Up

$2,224,356

Up $58,952 (+2.7%) from 2023

Net Income

Up

$588,224

Up $447,073 (+317%) from 2023

Trend Graphs

Balance Sheet Trend

Grouped bars show assets, liabilities, and net assets across loaded filings.

$8.0M$6.0M$4.0M$2.0M$0Assets 2010: $1,847,129Liabilities 2010: $38,532Net Assets 2010: $1,808,5972010Assets 2011: $1,701,739Liabilities 2011: $91,779Net Assets 2011: $1,609,9602011Assets 2012: $1,920,966Liabilities 2012: $224,192Net Assets 2012: $1,696,7742012Assets 2013: $2,167,146Liabilities 2013: $165,376Net Assets 2013: $2,001,7702013Assets 2014: $2,218,192Liabilities 2014: $148,657Net Assets 2014: $2,069,5352014Assets 2015: $2,300,519Liabilities 2015: $175,872Net Assets 2015: $2,124,6472015Assets 2016: $2,565,824Liabilities 2016: $60,506Net Assets 2016: $2,505,3182016Assets 2017: $3,695,115Liabilities 2017: $340,207Net Assets 2017: $3,354,9082017Assets 2018: $4,960,002Liabilities 2018: $63,131Net Assets 2018: $4,896,8712018Assets 2019: $5,160,832Liabilities 2019: $115,455Net Assets 2019: $5,045,3772019Assets 2020: $4,652,443Liabilities 2020: $713,527Net Assets 2020: $3,938,9162020Assets 2021: $4,659,141Liabilities 2021: $857,539Net Assets 2021: $3,801,6022021Assets 2022: $5,144,098Liabilities 2022: $216,473Net Assets 2022: $4,927,6252022Assets 2023: $5,550,283Liabilities 2023: $481,507Net Assets 2023: $5,068,7762023Assets 2024: $6,376,996Liabilities 2024: $719,996Net Assets 2024: $5,657,0002024

Highlighted filing

2024

Assets$6,376,996
Liabilities$719,996
Net Assets$5,657,000

Operations Trend

Revenue, expenses, and net income by year, with the latest filing highlighted.

$4.0M$2.0M$0-$2.0MExpenses 2010: $2,121,8682010Expenses 2011: $1,629,5152011Expenses 2012: $1,499,4212012Revenue 2013: $1,998,700Expenses 2013: $1,693,704Net Income 2013: $304,9962013Revenue 2014: $1,839,561Expenses 2014: $1,771,796Net Income 2014: $67,7652014Revenue 2015: $1,810,249Expenses 2015: $1,755,137Net Income 2015: $55,1122015Revenue 2016: $2,114,602Expenses 2016: $1,733,931Net Income 2016: $380,6712016Revenue 2017: $2,541,590Expenses 2017: $1,692,000Net Income 2017: $849,5902017Revenue 2018: $3,491,342Expenses 2018: $1,949,379Net Income 2018: $1,541,9632018Revenue 2019: $2,248,215Expenses 2019: $2,099,709Net Income 2019: $148,5062019Revenue 2020: $1,066,981Expenses 2020: $2,173,442Net Income 2020: -$1,106,4612020Revenue 2021: $1,565,758Expenses 2021: $1,703,072Net Income 2021: -$137,3142021Revenue 2022: $3,029,482Expenses 2022: $1,903,459Net Income 2022: $1,126,0232022Revenue 2023: $2,306,555Expenses 2023: $2,165,404Net Income 2023: $141,1512023Revenue 2024: $2,812,580Expenses 2024: $2,224,356Net Income 2024: $588,2242024

Highlighted filing

2024

Revenue$2,812,580
Expenses$2,224,356
Net Income$588,224

Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$6.38$0.72$5.66$2.81$2.22$0.59
2023Detailed filing. Detailed filing data is available for this year.$5.55$0.48$5.07$2.31$2.17$0.14
2022Detailed filing. Detailed filing data is available for this year.$5.14$0.22$4.93$3.03$1.90$1.13
2021Detailed filing. Detailed filing data is available for this year.$4.66$0.86$3.80$1.57$1.70$0.14
2020Detailed filing. Detailed filing data is available for this year.$4.65$0.71$3.94$1.07$2.17$1.11
2019Detailed filing. Detailed filing data is available for this year.$5.16$0.12$5.05$2.25$2.10$0.15
2018Detailed filing. Detailed filing data is available for this year.$4.96$0.06$4.90$3.49$1.95$1.54
2017Detailed filing. Detailed filing data is available for this year.$3.70$0.34$3.35$2.54$1.69$0.85
2016Detailed filing. Detailed filing data is available for this year.$2.57$0.06$2.51$2.11$1.73$0.38
2015Detailed filing. Detailed filing data is available for this year.$2.30$0.18$2.12$1.81$1.76$0.06
2014Detailed filing. Detailed filing data is available for this year.$2.22$0.15$2.07$1.84$1.77$0.07
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.17$0.17$2.00$2.00$1.69$0.30
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.92$0.22$1.70$1.50
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.70$0.09$1.61$1.63
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.85$0.04$1.81$2.12
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jul 1, 2023 to Jun 30, 2024
Signed
May 8, 2025
Return Version
2023v6.0
Gross Receipts
$2,812,580
Mission and Program Overview

Mission

To enhance the quality of patients' lives while taking the necessary steps toward finding a cure for this fatal blood disease.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$2,481,984$2,605,306▲ $123,322
Savings and Temporary Cash Investments$1,706,819$1,306,459▼ $400,360
Prepaid Expenses and Deferred Charges$275,510$354,965▲ $79,455
Pledges and Grants Receivable$183,402$196,070▲ $12,668
Accounts Receivable-$52,500-
Land, Buildings, and Equipment, Net$6,759$16,535▲ $9,776
Total Assets$5,550,283$6,376,996▲ $826,713
Other Assets Total$895,809$1,845,161▲ $949,352
Liabilities
Other Liabilities$168,663$479,217▲ $310,554
Deferred Revenue$281,923$206,122▼ $75,801
Accounts Payable and Accrued Expenses$30,921$34,657▲ $3,736
Total Liabilities$481,507$719,996▲ $238,489
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$4,629,771$5,065,637▲ $435,866
Net Assets With Donor Restrictions$439,005$591,363▲ $152,358
Total Net Assets Fund Balance$5,068,776$5,657,000▲ $588,224
Total Liabilities and Net Assets / Fund Balance$5,550,283$6,376,996▲ $826,713

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$16,535$337,961$354,496
Other Assets Org$1,845,161--

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2023$439,005$145,000▲ $51,151$43,793$591,363
2022$467,832$74,439▼ $77,044$26,222$439,005
2021$495,124$45,181▼ $19,582$52,891$467,832
2020$490,635$145,000▲ $64,637$205,148$495,124
2019$957,919$184,329▲ $16,000$667,613$490,635
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseTotal
Craig ButlerExecutive DiFT$165,142$165,142
Craig ButlerExecutive Director-$165,142$165,142
Revenue and Support

Revenue Composition

Contributions and Grants
$2,573,054
Program Service Revenue
$0
Investment Income
$239,526
Other Revenue
$0
All Other Contributions
$2,341,729
Change in Net Assets
$588,224

Audited Revenue Reconciliation

Revenue per Audited Statements
$2,812,580
Total Revenue per Audited Statements
$2,812,580
Total Revenue per Form 990
$2,812,580
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$1,162,715
Salaries, Compensation, and Employee Benefits$861,641
Total Fundraising Expense$239,491
Grants and Similar Amounts Paid$200,000
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$469,422$85,510$152,254$707,186
Fees for Services Other$590,027$4,716$3,643$598,386
Office Expenses$188,760$10,215$18,470$217,445
Grants to Domestic Orgs$200,000--$200,000
Occupancy$90,391$22,260$26,831$139,482
Payroll Taxes$88,302$16,086$33,640$138,028
Fees for Services Lobbying$96,000--$96,000
Fees for Services Accounting-$82,507-$82,507
Conferences and Meetings$17,875--$17,875
Pension Plan Contributions$11,600$2,378$2,449$16,427
Insurance$3,978$1,326$1,326$6,630
Depreciation Depletion$2,634$878$878$4,390
Total Functional Expenses$1,758,989$225,876$239,491$2,224,356

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$2,224,356
Total Expenses per Audited Statements$2,224,356
Total Expenses per Form 990$2,224,356
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Boston Medical Center CorpBoston, MA--$50,000
New York Blood CenterNew York, NY--$50,000
Regents of the University of CALos Angeles, CA--$50,000
University of IllinoisChampaign, IL--$50,000
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Operating Lease Liabilities$479,217
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 11B

No review will be conducted. The financials statements are audited and the tax advisors complete the return based on audited financials that have already gone through the review process from those charged with governance.

Form 990, Page 6, Part VI, Line 12C

All officers and board members are required to sign potential conflict of interest disclosures. Ongoing training of all officers and directors is done throughout the year to have the ability to assist in identifying potential conflicts of interest.

Form 990, Page 6, Part VI, Line 15A

There is a staffing compensation committee that recommend annual compensation of all employees to the board of directors.

Form 990, Page 6, Part VI, Line 15B

There is a staffing compensation committee that recommend annual compensation of all employees to the board of directors.

Form 990, Page 6, Part VI, Line 19

AVAILABLE UPON REQUEST.

Filing and Contact Details

Filer

Filer Name
COOLEY'S ANEMIA FOUNDATION
EIN
11-1971539
Phone
2122798090
Address
330 SEVENTH AVENUE SUITE 200, NEW YORK, NY 10001

Signing Officer

Name
Craig Butler
Title
Executive Director
Phone
2122798090
Signed
2025-05-08
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Craig Butler
Formed
1954
Legal Domicile
Ny
Voting Board Members
47
Independent Board Members
47
Employees
10

Preparer

Firm
Kvlsm Llp
Address
415 CROSSWAYS PARK DR STE C, WOODBURY, NY 11797-2055
Preparer
Anthony Viola CPA
Phone
5162940400
Supplemental Narrative

Additional Explanations

Form 990, Page 2, Part III, Line 4D

To enhance the quality of patients lives while taking the necessary steps towards finding a cure.

Form 990, Part IX, Line 11G

Telephone 5,804 1,885 3,105 assistance to patients 580,453 0 0 miscellaneous 1,110 2,831 538 addl awards and fellowships 2,660 0 0 total 590,027 4,716 3,643

Financial Statement Notes

Schedule D, Page 3, Part X

Management evaluated all of the foundation's tax positions for all open tax years and has concluded that the foundation had taken no uncertain tax positions that require adjustments or disclosure to the financial statements.

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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