Civic Intelligence

Jett Foundation Inc

EIN 04-3563445 • 501(c)3 • Norwell, MA

Profile

The mission of the jett foundation is to increase worldwide awareness of duchenne muscular dystrophy with the purpose or raising and appropriating funds for programs, education, research and advocacy that will find treatments, realize a cure for this fatal disease and ensure that all affected by duchenne have the opportunity to enjoy a full life.

390 Circuit StreetNorwell, MA 02061

jettfoundation.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

33rd percentile

0.04x

Higher debt load relative to assets than 33% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2024

Liabilities / Revenue

28th percentile

0.05x

Higher debt load relative to revenue than 28% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2024

Net Margin

83rd percentile

34%

Higher net margin than 83% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2024

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

89th percentile

39%

Faster asset growth than 89% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Annualized from 2023 to 2024

Revenue Growth

84th percentile

45%

Faster revenue growth than 84% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets33rd percentile

Assets

Up

$6,489,532

Up $1,811,743 (+39%) from 2023

Liabilities

Up

$256,655

Up $13,319 (+5.5%) from 2023

Net Assets

Up

$6,232,877

Up $1,798,424 (+41%) from 2023

Operations
Liabilities / Revenue28th percentileNet Margin83rd percentile

Revenue

Up

$5,119,683

Up $1,582,670 (+45%) from 2023

Expenses

Up

$3,372,118

Up $690,308 (+26%) from 2023

Net Income

Up

$1,747,565

Up $892,362 (+104%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth89th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$8.0M$6.0M$4.0M$2.0M$0Assets 2010: $61,491Liabilities 2010: $8,618Net Assets 2010: $52,8732010Assets 2011: $44,617Liabilities 2011: $6,683Net Assets 2011: $37,9342011Assets 2012: $19,182Liabilities 2012: $12,491Net Assets 2012: $6,6912012Assets 2013: $418,194Liabilities 2013: $14,317Net Assets 2013: $403,8772013Assets 2014: $337,139Liabilities 2014: $12,711Net Assets 2014: $324,4282014Assets 2015: $564,746Liabilities 2015: $31,124Net Assets 2015: $533,6222015Assets 2016: $897,886Liabilities 2016: $111,288Net Assets 2016: $786,5982016Assets 2017: $800,590Liabilities 2017: $68,799Net Assets 2017: $731,7912017Assets 2018: $1,187,840Liabilities 2018: $64,440Net Assets 2018: $1,123,4002018Assets 2019: $1,202,789Liabilities 2019: $33,025Net Assets 2019: $1,169,7642019Assets 2020: $1,572,536Liabilities 2020: $66,941Net Assets 2020: $1,505,5952020Assets 2021: $2,196,455Liabilities 2021: $206,312Net Assets 2021: $1,990,1432021Assets 2022: $3,509,096Liabilities 2022: $46,555Net Assets 2022: $3,462,5412022Assets 2023: $4,677,789Liabilities 2023: $243,336Net Assets 2023: $4,434,4532023Assets 2024: $6,489,532Liabilities 2024: $256,655Net Assets 2024: $6,232,8772024

Highlighted filing

2024

Assets$6,489,532
Liabilities$256,655
Net Assets$6,232,877
Open 2024 Filing

Operations Trend

Revenue Growth84th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MExpenses 2010: $406,2902010Expenses 2011: $375,6092011Expenses 2012: $522,3092012Revenue 2013: $1,132,006Expenses 2013: $734,820Net Income 2013: $397,1862013Revenue 2014: $853,458Expenses 2014: $932,907Net Income 2014: -$79,4492014Revenue 2015: $1,112,230Expenses 2015: $903,036Net Income 2015: $209,1942015Revenue 2016: $2,227,989Expenses 2016: $1,975,013Net Income 2016: $252,9762016Revenue 2017: $1,621,289Expenses 2017: $1,676,096Net Income 2017: -$54,8072017Revenue 2018: $2,039,207Expenses 2018: $1,647,598Net Income 2018: $391,6092018Revenue 2019: $1,713,025Expenses 2019: $1,666,661Net Income 2019: $46,3642019Revenue 2020: $2,236,553Expenses 2020: $1,868,675Net Income 2020: $367,8782020Revenue 2021: $2,598,639Expenses 2021: $2,115,724Net Income 2021: $482,9152021Revenue 2022: $3,528,313Expenses 2022: $2,039,167Net Income 2022: $1,489,1462022Revenue 2023: $3,537,013Expenses 2023: $2,681,810Net Income 2023: $855,2032023Revenue 2024: $5,119,683Expenses 2024: $3,372,118Net Income 2024: $1,747,5652024

Highlighted filing

2024

Revenue$5,119,683
Expenses$3,372,118
Net Income$1,747,565
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$6,489,532
Liabilities
$256,655
Net assets
$6,232,877
Revenue
$5,119,683
Expenses
$3,372,118
Net income
$1,747,565
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$6.49$0.26$6.23$5.12$3.37$1.75
2023Detailed filing. Detailed filing data is available for this year.$4.68$0.24$4.43$3.54$2.68$0.86
2022Detailed filing. Detailed filing data is available for this year.$3.51$0.05$3.46$3.53$2.04$1.49
2021Detailed filing. Detailed filing data is available for this year.$2.20$0.21$1.99$2.60$2.12$0.48
2020Detailed filing. Detailed filing data is available for this year.$1.57$0.07$1.51$2.24$1.87$0.37
2019Detailed filing. Detailed filing data is available for this year.$1.20$0.03$1.17$1.71$1.67$0.05
2018Detailed filing. Detailed filing data is available for this year.$1.19$0.06$1.12$2.04$1.65$0.39
2017Detailed filing. Detailed filing data is available for this year.$0.80$0.07$0.73$1.62$1.68$0.05
2016Detailed filing. Detailed filing data is available for this year.$0.90$0.11$0.79$2.23$1.98$0.25
2015Detailed filing. Detailed filing data is available for this year.$0.56$0.03$0.53$1.11$0.90$0.21
2014Detailed filing. Detailed filing data is available for this year.$0.34$0.01$0.32$0.85$0.93$0.08
2013Detailed filing. Detailed filing data is available for this year.$0.42$0.01$0.40$1.13$0.73$0.40
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.02$0.01$0.01$0.52
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.04$0.01$0.04$0.38
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.06$0.01$0.05$0.41
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
May 8, 2025
Return Version
2024v5.1
Gross Receipts
$6,158,296
Mission and Program Overview

Mission

The mission of the jett foundation is to increase worldwide awareness of duchenne muscular dystrophy with the purpose or raising and appropriating funds for programs, education, research and advocacy that will find treatments, realize a cure for this fatal disease and ensure that all affected by duchenne have the opportunity to enjoy a full life.

Provides direct service and support for families affected by duchenne muscular dystrophy.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$1,837,047$2,103,091▲ $266,044
Savings and Temporary Cash Investments$515,727$1,214,943▲ $699,216
Pledges and Grants Receivable$39,960$520,500▲ $480,540
Cash and Non-Interest-Bearing Accounts$2,080,142$395,970▼ $1,684,172
Prepaid Expenses and Deferred Charges$24,026$31,586▲ $7,560
Intangible Assets$32,160$23,040▼ $9,120
Land, Buildings, and Equipment, Net$3,429$19,264▲ $15,835
Total Assets$4,677,789$6,489,532▲ $1,811,743
Other Assets Total$145,298$2,181,138▲ $2,035,840
Liabilities
Accounts Payable and Accrued Expenses$106,998$135,927▲ $28,929
Other Liabilities$136,338$70,728▼ $65,610
Grants Payable-$50,000-
Total Liabilities$243,336$256,655▲ $13,319
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$1,855,003$4,160,100▲ $2,305,097
Net Assets With Donor Restrictions$2,579,450$2,072,777▼ $506,673
Total Net Assets Fund Balance$4,434,453$6,232,877▲ $1,798,424
Total Liabilities and Net Assets / Fund Balance$4,677,789$6,489,532▲ $1,811,743

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$19,264$47,438$66,702
Equipment$0$34,743$34,743
Other Assets Org$2,096,339--

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2024$1,110,767$50,000▲ $131,510-$1,292,277
2023$982,836-▲ $127,931-$1,110,767
2022-$1,000,000▼ $17,164-$982,836
Compensation and Service Providers
Top Officer PayScore unavailable

Employees

NameTitleFull / Part TimeBaseOtherTotal
Eric SnyderExecutive DirectorFT$198,343$36,619$234,962
Maura CarrollDirector of DevepolmentFT$115,189$5,145$120,334
Allison CaputoDirector of FinanceFT$100,256$10,846$111,102

Board Members and Trustees

NameTitle
Alfred JacksonChair
Ellen HansonVice Chair
Adrian KielhornDirector
Chris SchlechtyDirector
Colleen PikeDirector
Diana JohnsonDirector
Leo RobinsonDirector
Melissa PaigeDirector
Christine McsherryFounder and Director
Mike MullinTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$4,815,724
Program Service Revenue
$0
Investment Income
$292,426
Other Revenue
$11,533
All Other Contributions
$4,737,528
Change in Net Assets
$1,747,565

Audited Revenue Reconciliation

Revenue per Audited Statements
$5,119,683
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$50,859
Total Revenue per Audited Statements
$5,170,542
Total Revenue per Form 990
$5,119,683
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$1,407,999
Salaries, Compensation, and Employee Benefits$1,159,154
Other Expenses$788,765
Total Fundraising Expense$508,772
Professional Fundraising Fees$16,200

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Individuals$1,322,999--$1,322,999
Other Salaries and Wages$360,129$116,402$230,248$706,779
Current Officers, Directors, Trustees, and Key Employees$90,091$87,441$87,441$264,973
Office Expenses$71,889$56,708$38,484$167,081
Other Employee Benefits$43,220$15,727$28,532$87,479
Grants to Domestic Orgs$85,000--$85,000
Payroll Taxes$39,543$17,483$27,688$84,714
Travel$71,511$1,165$9,627$82,303
Occupancy$36,381$16,085$25,473$77,939
Fees for Services Accounting-$27,102-$27,102
Insurance$9,234$4,083$6,465$19,782
Fees for Services Other-$2,510$16,291$18,801
Fees for Services Professional Fundraising--$16,200$16,200
Pension Plan Contributions$8,088$2,175$4,946$15,209
Depreciation Depletion$6,056$2,678$4,241$12,975
Fees for Services Legal-$6,979-$6,979
Other Expenses$354,590$5,319$1,492$6,811
Total Functional Expenses$2,498,731$364,615$508,772$3,372,118

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$3,372,118
Total Expenses per Audited Statements$3,372,118
Total Expenses per Form 990$3,372,118
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
University of Florida FoundationGainseville, FL501c3Research$75,000
Umass Chan Medical SchoolShrewsbury, MA501c3Research$10,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
Yes

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$73,854
Fundraising Direct Expenses$62,321
Professional Fundraising Fees$16,200

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Jett Golf Classic$140,201$73,854$8,764$65,090
Team Jett$11,849-$1,419-
Total Events$152,050$73,854$62,321$11,533
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Operating Lease Liabilities$70,728
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The governing body reviews the form 990 for accuracy and completeness before being filed with the internal revenue service.”

Form 990, Part VI, Section B, Line 12C

“The organization's governing body requires an annual declaration from all board members and senior management as to the existence and disclosure of any potential conflicts of interest. The board members sign a disclosure statement. Any potential conflicts are discussed by the dis-interested board members, while the party in potential conflict is required to leave the room. Board meeting minutes will document the discussion and decision making process. In the event of a potential conflict, procedures to obtain competitive bids and diligence on fair market value will be established.”

Form 990, Part VI, Section B, Line 15

“The organization's governing body reviews salary data, market conditions and other applicable data for determining the compensation of the ceo and key employees when necessary.”

Form 990, Part VI, Section C, Line 19

“Another's website/upon request”

Filing and Contact Details

Filer

Filer Name
Jett Foundation Inc
EIN
04-3563445
Phone
7815855566
Address
390 CIRCUIT STREET, NORWELL, MA 02061

Signing Officer

Name
Eric Snyder
Title
President & CEO
Phone
7815855566
Signed
2025-05-08
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Eric Snyder
Formed
2001
Legal Domicile
Ma
Voting Board Members
10
Independent Board Members
10
Employees
13
Volunteers
52

Preparer

Firm
Smith Sullivan & Brown Pc
Address
80 FLANDERS ROAD SUITE 302, WESTBOROUGH, MA 01581
Preparer
Sandra M Brown CPA
Phone
5088717178
Raw XML AppendixShowing 400 of 663 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0PROVIDES DIRECT SERVICE AND SUPPORT FOR FAMILIES AFFECTED BY DUCHENNE MUSCULAR DYSTROPHY.
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IRS990/Desc0DIRECT SERVICE:CAMP PROMISE - JETT FOUNDATION'S SUMMER CAMP, CAMP PROMISE, HAS BEEN THE ONLY CAMP IN THE COUNTRY FOR KIDS, TEENS, AND ADULTS WITH MUSCULAR DYSTROPHY AND NEUROMUSCULAR DISEASES SINCE 2009. WITH NO UPPER AGE LIMIT AND A COMPLETE ON-SITE, 24-HOUR MEDICAL TEAM, JETT PROVIDES A FREE AND UNIQUE OPPORTUNITY FOR CAMPERS TO EXPERIENCE A WEEK OF INDEPENDENCE, FREEDOM AND NEW OPPORTUNITIES AWAY FROM THE ROUTINE OF DAILY LIFE. CAMP PROMISE PROVIDES CAMPER-FOCUSED PROGRAMMING THAT BUILDS INDEPENDENCE, CONFIDENCE AND LIFE SKILLS THROUGH TRADITIONAL CAMP ACTIVITIES AND BY BRINGING CAMPERS NEW EXPERIENCES THROUGH ADAPTATION, TECHNOLOGY, CREATIVITY, AND SPECIAL GUESTS. IN 2020, JETT ADDED TWO NEW RETREAT CAMPS IN ARIZONA AND OHIO FOR INDIVIDUALS 18 YEARS AND OLDER; THESE RETREAT CAMPS CONTINUE TO GROW IN POPULARITY. IN 2024, JETT FOUNDATION ADDED TWO ADDITIONAL CAMPS IN SOUTHERN CALIFORNIA AND SOUTH CAROLINA. CAMP PROMISE SERVED 148 CAMPERS IN PERSON AT SEVEN LOCATIONS AND ONE WEEK OF VIRTUAL CAMP SERVING 113 CAMPERS. IN TOTAL WE SERVED 261 CAMPERS WITH THE SUPPORT OF 200 VOLUNTEERS. MORE THAN 62% OF CAMPERS WERE OVER THE AGE OF 18 (AND HAVE AGED OUT OTHER CAMP OPTIONS). JETT CONTINUES TO HOST MONTHLY EVENTS INCLUDING TRIVIA NIGHTS, GAME SHOWS AND MORE.JETT GIVING FUND - JETT FOUNDATION ESTABLISHED THE JETT GIVING FUND TO ASSIST FAMILIES AFFECTED BY DUCHENNE MUSCULAR DYSTROPHY IN PURCHASING UNAFFORDABLE, BUT VITAL MEDICAL AND ACCESSIBILITY EQUIPMENT. HEALTH INSURANCE OFTEN WON'T COVER ALL SPECIALIZED MEDICAL AND ACCESSIBILITY EQUIPMENT SUCH AS SCOOTERS, SHOWER CHAIRS, RAMPS, ROTATIONAL BEDS AND ACCESSIBLE VANS; ITEMS NEEDED WHEN SUFFERING FROM A PROGRESSIVE MUSCLE WASTING DISORDER. WITHOUT THESE NECESSITIES, THOSE WITH DUCHENNE STRUGGLE TO PARTICIPATE IN THE KINDS OF ACTIVITIES THAT MOST PEOPLE TAKE FOR GRANTED, SUCH AS GETTING TO AND FROM SCHOOL, OR GOING TO THE MALL WITH FRIENDS. THROUGH THE GENEROSITY OF INDIVIDUALS, CORPORATE AND FOUNDATION SUPPORTERS, JETT ACCEPTED 14 FAMILIES INTO THE ACCESSIBLE VEHICLE PROGRAM IN 2024.
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IRS990/Form990PartVIISectionAGrp/PersonNm2ALLISON CAPUTO
IRS990/Form990PartVIISectionAGrp/PersonNm3CHRISTINE MCSHERRY
IRS990/Form990PartVIISectionAGrp/PersonNm4ALFRED JACKSON
IRS990/Form990PartVIISectionAGrp/PersonNm5ELLEN HANSON
IRS990/Form990PartVIISectionAGrp/PersonNm6MIKE MULLIN
IRS990/Form990PartVIISectionAGrp/PersonNm7COLLEEN PIKE
IRS990/Form990PartVIISectionAGrp/PersonNm8MELISSA PAIGE
IRS990/Form990PartVIISectionAGrp/PersonNm9DIANA JOHNSON
IRS990/Form990PartVIISectionAGrp/PersonNm10ADRIAN KIELHORN
IRS990/Form990PartVIISectionAGrp/PersonNm11CHRIS SCHLECHTY
IRS990/Form990PartVIISectionAGrp/PersonNm12LEO ROBINSON
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IRS990/Form990PartVIISectionAGrp/TitleTxt0EXECUTIVE DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt1DIRECTOR OF DEVEPOLMENT
IRS990/Form990PartVIISectionAGrp/TitleTxt2DIRECTOR OF FINANCE
IRS990/Form990PartVIISectionAGrp/TitleTxt3FOUNDER AND DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt5VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt6TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
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IRS990/MissionDesc0JETT FOUNDATION EMPOWERS PEOPLE AND FAMILIES IMPACTED BY DUCHENNE MUSCULAR DYSTROPHY THROUGH THE DEVELOPMENT OF TRANSFORMATIVE PROGRAMMING, EDUCATIONAL OPPORTUNITIES, AND ONGOING SUPPORT FOR EVERY STAGE OF A DUCHENNE JOURNEY.
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IRS990/ProgSrvcAccomActy2Grp/Desc0COMMUNITY AND EDUCATION:FAMILY WORKSHOPS/COMMUNITY WEBINAR SERIES - JETT FOUNDATION FAMILY WORKSHOPS ARE A NATIONAL EDUCATIONAL PROGRAM THAT BRINGS CLINICIANS, RESEARCHERS, AND FAMILIES AFFECTED BY DUCHENNE TOGETHER TO LEARN ABOUT CARE, CRUCIAL INFORMATION AND RESOURCES IN MANY CITIES EACH YEAR. THE MISSION OF THIS PROGRAM IS TO EMPOWER PATIENTS AND FAMILIES WITH THE KNOWLEDGE NEEDED TO BE THEIR OWN BEST ADVOCATES, SPREAD AWARENESS ABOUT DUCHENNE IN THE MEDICAL FIELD, AND HELP ACCELERATE RESEARCH AND DEVELOPMENT. IN 2024, JETT FOUNDATION WAS ABLE TO CONTINUE IN PERSON EVENTS AS WELL AS HOSTING VIRTUAL OUR COMMUNITY WEBINAR SERIES. JETT HOSTED 22 WEBINARS FEATURING CLINICAL TRIALS, DUCHENNE CARE AND WELLNESS WITH OVER 400 REGISTERED PARTICIPANTS.THE COMMUNITY AMBASSADOR PROGRAM - LAUNCHED IN 2017, THIS PROGRAM SPREADS AWARENESS ABOUT DUCHENNE AND THE PROGRAMS AND SERVICES THAT JETT FOUNDATION PROVIDES, THROUGH COMMUNITY AMBASSADORS (MOMS, DADS, GRANDPARENTS, AND SIBLINGS) WHO ARE ALREADY FAMILIAR WITH THE DUCHENNE LANDSCAPE. IN 2024, 31 JETT FOUNDATION AMBASSADORS FROM 23 STATES ENGAGED WITH FAMILIES AFFECTED BY DUCHENNE THROUGHOUT THE COUNTRY.FAMILY SUPPORT/PORCH NITE - LAUNCHED IN 2018 BY TWO JETT AMBASSADORS AND MOMS OF CHILDREN WITH DUCHENNE. THIS NATIONAL CAREGIVER SUPPORT PROGRAM FOCUSES ON BUILDING STRONGER SUPPORT SYSTEMS FOR FAMILIES AFFECTED BY DUCHENNE IN THEIR LOCAL COMMUNITY THROUGH STORY-TELLING, EDUCATION, AND GRIEF-MANAGEMENT. IN 2024, WE HOSTED 10 VIRTUAL PORCH NITES WITH 273 PARTICIPANTS. ADDITIONALLY, JETT FOUNDATION HOSTED THREE IN PERSON PORCH NITES SERVING 29 PARTICIPANTS. EDUCATIONAL CARE PACKAGES/NEWLY DIAGNOSED FAMILY EDUCATION MATERIALS/SERIES - A DUCHENNE DIAGNOSIS IS INCREDIBLY OVERWHELMING FOR A FAMILY. JETT FOUNDATION EDUCATIONAL CARE PACKAGES PROVIDE CRUCIAL EDUCATIONAL MATERIALS TO NEWLY DIAGNOSED FAMILIES, CAREGIVERS, TEACHERS AND CLINICIANS THAT ARE SEEKING MORE GUIDANCE ON DUCHENNE. JETT FOUNDATION PROVIDED OVER 250 CARE PACKAGES IN 2024 TO THOSE WHO REQUESTED THEM FROM THE ORGANIZATION'S WEBSITE OR ATTENDED JETT EVENTS OR PROGRAMS. THESE FREE EDUCATIONAL RESOURCES INCLUDE SUPPORT LETTERS FROM THE COMMUNITY, JETT FOUNDATION BROCHURE AND WELCOME LETTER, HEALTH INSURANCE FLIGHT PLAN, CLINICAL TRIAL FLIGHT PLAN, GENE THERAPY FAQ, TRANSITION OF CARE CHECKLIST, CLINICAL TRIAL CHEAT SHEET, DAN AND DMD CHILDREN'S BOOK, STANDARDS OF CARE AND DURABLE MEDICAL EQUIPMENT BOOKLET.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0180039
IRS990/ProgSrvcAccomActy3Grp/Desc0ADVOCACY AND RESEARCH:THE JETT FOUNDATION'S CONTINUED WORK IN ADVOCACY HAS BEEN FOCUSED ON EDUCATING REGULATORY AND INDUSTRY PARTNERS ABOUT DUCHENNE IN HOPES TO ACCELERATE THE PATHWAYS TO FINDING TREATMENTS FOR THIS FATAL DISEASE. ALTHOUGH MINIMAL IN 2023 AND 2024, JETT FOUNDATION CONTINUES TO SUPPORT RESEARCH. JETT'S EFFORTS IN RESEARCH HAVE LED TO AN INCREASE IN CLINICAL TRIALS, WHICH HAS EXPANDED THE ORGANIZATION'S EDUCATIONAL PROGRAMMING TO INCLUDE INFORMATION ON INNOVATIVE RESEARCH AND DRUG DEVELOPMENT.
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IRS990/ProgSrvcAccomActyOtherGrp/Desc0RESEARCH--JETT FOUNDATION CONTINUES TO SUPPORT RESEARCH. JETT'S EFFORTS IN RESEARCH HAVE LED TO AN INCREASE IN CLINICAL TRIALS, WHICH HAS EXPANDED THE ORGANIZATION'S EDUCATIONAL PROGRAMMING TO INCLUDE INFORMATION ON INNOVATIVE RESEARCH AND DRUG DEVELOPMENT.
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