Civic Intelligence

Batten Disease Research

EIN 04-3551431 • 501(c)3 • Westport, MA

Profile

To raise funds and promote reserach

265 American Legion HighwayWestport, MA 02790

www.battendiseaseresearch.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

59th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • <$500k nonprofits • Source year 2023

Liabilities / Revenue

61st percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • <$500k nonprofits • Source year 2023

Net Margin

12th percentile

-63%

Higher net margin than 12% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2023

Top Officer Pay

84th percentile

$0

Higher top officer pay than 84% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

501(c)3 • <$500k nonprofits • Source year 2022

Asset Growth

25th percentile

-29%

Faster asset growth than 25% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2022 to 2023

Revenue Growth

48th percentile

-2.9%

Faster revenue growth than 48% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2022 to 2023

Balance Sheet
Liabilities / Assets59th percentile

Assets

Up

$49,857

Up $10,828 (+28%) from 2023

Liabilities

Flat

$0

Flat from 2023

Net Assets

Up

$49,857

Up $10,828 (+28%) from 2023

Operations
Liabilities / Revenue61st percentileNet Margin12th percentile

Revenue

Down

$10,828

Down $13,787 (-56%) from 2023

Expenses

-

No earlier filing loaded for comparison.

Net Income

-

No earlier filing loaded for comparison.

Trend Graphs

Balance Sheet Trend

Asset Growth25th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$100K$50K$0Assets 2013: $43,832Liabilities 2013: $02013Assets 2014: $45,785Liabilities 2014: $0Net Assets 2014: $45,7852014Assets 2015: $27,576Liabilities 2015: $0Net Assets 2015: $27,5762015Assets 2016: $7,343Liabilities 2016: $0Net Assets 2016: $7,3432016Assets 2017: $42,756Liabilities 2017: $0Net Assets 2017: $42,7562017Assets 2018: $80,079Liabilities 2018: $0Net Assets 2018: $80,0792018Assets 2019: $52,403Liabilities 2019: $0Net Assets 2019: $52,4032019Assets 2020: $53,468Liabilities 2020: $0Net Assets 2020: $53,4682020Assets 2021: $29,418Liabilities 2021: $0Net Assets 2021: $29,4182021Assets 2022: $54,591Liabilities 2022: $0Net Assets 2022: $54,5912022Assets 2023: $39,029Liabilities 2023: $0Net Assets 2023: $39,0292023Assets 2024: $49,857Liabilities 2024: $0Net Assets 2024: $49,8572024

Highlighted filing

2024

Assets$49,857
Liabilities$0
Net Assets$49,857
Open 2024 Filing

Operations Trend

Revenue Growth48th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$100K$50K$0-$50KRevenue 2013: $68,717Expenses 2013: $65,640Net Income 2013: $3,0772013Revenue 2014: $52,132Expenses 2014: $50,179Net Income 2014: $1,9532014Revenue 2015: $44,791Expenses 2015: $63,000Net Income 2015: -$18,2092015Revenue 2016: $25,629Expenses 2016: $50,108Net Income 2016: -$24,4792016Revenue 2017: $35,507Expenses 2017: $94Net Income 2017: $35,4132017Revenue 2018: $37,393Expenses 2018: $70Net Income 2018: $37,3232018Revenue 2019: $37,553Expenses 2019: $65,229Net Income 2019: -$27,6762019Revenue 2020: $1,229Expenses 2020: $164Net Income 2020: $1,0652020Revenue 2021: $16,133Expenses 2021: $40,183Net Income 2021: -$24,0502021Revenue 2022: $25,354Expenses 2022: $181Net Income 2022: $25,1732022Revenue 2023: $24,615Expenses 2023: $40,177Net Income 2023: -$15,5622023Revenue 2024: $10,8282024

Highlighted filing

2024

Revenue$10,828
Expenses-
Net Income-
Open 2024 Filing

Filings

Most recent year

2024 • Form 990EZDetailed filing. Detailed filing data is available for this year.

Open filing
Assets
$49,857
Liabilities
$0
Net assets
$49,857
Revenue
$10,828
Expenses
-
Net income
-
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$49.9$0.00$49.9$10.8
2023Detailed filing. Detailed filing data is available for this year.$39.0$0.00$39.0$24.6$40.2$15.6
2022Detailed filing. Detailed filing data is available for this year.$54.6$0.00$54.6$25.4$0.18$25.2
2021Detailed filing. Detailed filing data is available for this year.$29.4$0.00$29.4$16.1$40.2$24.1
2020Detailed filing. Detailed filing data is available for this year.$53.5$0.00$53.5$1.23$0.16$1.07
2019Detailed filing. Detailed filing data is available for this year.$52.4$0.00$52.4$37.6$65.2$27.7
2018Detailed filing. Detailed filing data is available for this year.$80.1$0.00$80.1$37.4$0.07$37.3
2017Detailed filing. Detailed filing data is available for this year.$42.8$0.00$42.8$35.5$0.09$35.4
2016Detailed filing. Detailed filing data is available for this year.$7.34$0.00$7.34$25.6$50.1$24.5
2015Detailed filing. Detailed filing data is available for this year.$27.6$0.00$27.6$44.8$63.0$18.2
2014Detailed filing. Detailed filing data is available for this year.$45.8$0.00$45.8$52.1$50.2$1.95
2013Summary only. Only limited summary data is available for this year.$43.8$0.00$68.7$65.6$3.08
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Mar 25, 2025
Return Version
2024v5.0
Gross Receipts
$22,665
Mission and Program Overview

Mission

To raise funds and promote research

To raise funds and promote reserach

Program Services

DescriptionGrantsExpenses
TO RAISE FUNDS FOR THE SUPPORT OF THE ORGANIZATIOH AND TO PROMOTE RESEARCH ON BATTEN DISEASE-$0
TO MAXIMIZE THE OPPORTUNITIES OF PERSONS WITH BATTEN DISEASE THROUGH MEDICAL, EDUCATION, VOICATIONAL, HABITATIONAL, FINANACIAL MEANS-$0
TO COOPERATE AND ASSIST WITH A REGISTRY OF INDIVIDUALS WITH BATTEN DISEASE AND THEIR FAMILIES ON STATE, NATIONAL AND INTERNATIONAL LEVELS-$0
Compensation and Service Providers
Top Officer Pay84th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
MAURICE ST GELAISPresidentPT$0--
ELAINE LEBEAUTreasurer-$0--
RAYMOND ST GELAISClerk-$0--
JEAN MARIE ST GELAISVice PresidentPT$0--
ROBIN BECKDirectorPT$0--
KATHLEEN BECKDirectorPT$0--
LAURIE ABELDirector-$0--
Fundraising, Events, and Gaming

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Golf Tournam----
Filing and Contact Details

Filer

Filer Name
Batten Disease Research
EIN
04-3551431
In Care Of
% MAURICE ST GELAIS
Phone
5086366375
Address
265 AMERICAN LEGION HIGHWAY, WESTPORT, MA 02790

Signing Officer

Name
Maurice St Gelais
Title
President
Phone
5085093400
Signed
2025-03-25
Discuss with paid preparer
Yes

Preparer

Firm
Affordable Payroll
Address
179 GLEN AVE, BERLIN, NH 03570
Preparer
Elaine Lebeau
Phone
6039151735
Supplemental Narrative

Additional Explanations

List of grants and similar amounts paid Part I line 10

“Activity payments to affiliates grantee massachusetts general hospital street 165 cambridge st city, state, zip boston, ma 02114relationship none”

Raw XML Appendix163 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990EZ/ActivitiesNotPreviouslyRptInd0false
IRS990EZ/BooksInCareOfDetail/PersonNm0MAURICE ST GELAIS
IRS990EZ/BooksInCareOfDetail/PhoneNum05086366375
IRS990EZ/BooksInCareOfDetail/USAddress/AddressLine1Txt0265 AMERICAN LEGION HIGHWAY
IRS990EZ/BooksInCareOfDetail/USAddress/CityNm0WESTPORT
IRS990EZ/BooksInCareOfDetail/USAddress/StateAbbreviationCd0MA
IRS990EZ/BooksInCareOfDetail/USAddress/ZIPCd002790
IRS990EZ/CashSavingsAndInvestmentsGrp/BOYAmt039029
IRS990EZ/CashSavingsAndInvestmentsGrp/EOYAmt049857
IRS990EZ/ChgMadeToOrgnzngDocNotRptInd0false
IRS990EZ/ContributionsGiftsGrantsEtcAmt07152
IRS990EZ/DonorAdvisedFndsInd0false
IRS990EZ/EngagedInExcessBenefitTransInd0false
IRS990EZ/ExcessOrDeficitForYearAmt010828
IRS990EZ/FiledScheduleAInd0true
IRS990EZ/ForeignFinancialAccountInd0false
IRS990EZ/ForeignOfficeInd0false
IRS990EZ/Form1120PolFiledInd0false
IRS990EZ/Form990TotalAssetsGrp/BOYAmt039029
IRS990EZ/Form990TotalAssetsGrp/EOYAmt049857
IRS990EZ/FundraisingGrossIncomeAmt015500
IRS990EZ/GrossReceiptsAmt022665
IRS990EZ/InfoInScheduleOPartIInd0X
IRS990EZ/InvestmentIncomeAmt013
IRS990EZ/LandAndBuildingsGrp/BOYAmt00
IRS990EZ/LandAndBuildingsGrp/EOYAmt00
IRS990EZ/LobbyingActivitiesInd0false
IRS990EZ/MadeLoansToFromOfficersInd0false
IRS990EZ/MethodOfAccountingCashInd0X
IRS990EZ/NetAssetsOrFundBalancesBOYAmt039029
IRS990EZ/NetAssetsOrFundBalancesEOYAmt049857
IRS990EZ/NetAssetsOrFundBalancesGrp/BOYAmt039029
IRS990EZ/NetAssetsOrFundBalancesGrp/EOYAmt049857
IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt010.00
IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt13.00
IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt21.00
IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt35.00
IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt45.00
IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt55.00
IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt63.00
IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt00
IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt10
IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt20
IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt30
IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt40
IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt50
IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt60
IRS990EZ/OfficerDirectorTrusteeEmplGrp/EmployeeBenefitProgramAmt00
IRS990EZ/OfficerDirectorTrusteeEmplGrp/EmployeeBenefitProgramAmt10
IRS990EZ/OfficerDirectorTrusteeEmplGrp/EmployeeBenefitProgramAmt20
IRS990EZ/OfficerDirectorTrusteeEmplGrp/EmployeeBenefitProgramAmt30
IRS990EZ/OfficerDirectorTrusteeEmplGrp/EmployeeBenefitProgramAmt40
IRS990EZ/OfficerDirectorTrusteeEmplGrp/EmployeeBenefitProgramAmt50
IRS990EZ/OfficerDirectorTrusteeEmplGrp/EmployeeBenefitProgramAmt60
IRS990EZ/OfficerDirectorTrusteeEmplGrp/ExpenseAccountOtherAllwncAmt00
IRS990EZ/OfficerDirectorTrusteeEmplGrp/ExpenseAccountOtherAllwncAmt10
IRS990EZ/OfficerDirectorTrusteeEmplGrp/ExpenseAccountOtherAllwncAmt20
IRS990EZ/OfficerDirectorTrusteeEmplGrp/ExpenseAccountOtherAllwncAmt30
IRS990EZ/OfficerDirectorTrusteeEmplGrp/ExpenseAccountOtherAllwncAmt40
IRS990EZ/OfficerDirectorTrusteeEmplGrp/ExpenseAccountOtherAllwncAmt50
IRS990EZ/OfficerDirectorTrusteeEmplGrp/ExpenseAccountOtherAllwncAmt60
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm0MAURICE ST GELAIS
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm1ELAINE LEBEAU
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm2RAYMOND ST GELAIS
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm3JEAN MARIE ST GELAIS
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm4ROBIN BECK
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm5KATHLEEN BECK
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm6LAURIE ABEL
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt0PRESIDENT
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt1TREASURER
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt2CLERK
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt3VICE PRESIDENT
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt4DIRECTOR
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt5DIRECTOR
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt6DIRECTOR
IRS990EZ/OperateHospitalInd0false
IRS990EZ/Organization501c3Ind0X
IRS990EZ/OrganizationDissolvedEtcInd0false
IRS990EZ/OrganizationHadUBIInd0false
IRS990EZ/OtherAssetsTotalDetail/BOYAmt00
IRS990EZ/OtherAssetsTotalDetail/EOYAmt00
IRS990EZ/PartVIHghstPdCntrctProfSrvcTxt0NONE
IRS990EZ/PartVIOfCompOfHghstPdEmplTxt0NONE
IRS990EZ/PoliticalCampaignActyInd0false
IRS990EZ/PrimaryExemptPurposeTxt0TO RAISE FUNDS AND PROMOTE RESERACH
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt0TO RAISE FUNDS FOR THE SUPPORT OF THE ORGANIZATIOH AND TO PROMOTE RESEARCH ON BATTEN DISEASE
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt1TO MAXIMIZE THE OPPORTUNITIES OF PERSONS WITH BATTEN DISEASE THROUGH MEDICAL, EDUCATION, VOICATIONAL, HABITATIONAL, FINANACIAL MEANS
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt2TO COOPERATE AND ASSIST WITH A REGISTRY OF INDIVIDUALS WITH BATTEN DISEASE AND THEIR FAMILIES ON STATE, NATIONAL AND INTERNATIONAL LEVELS
IRS990EZ/ProgramSrvcAccomplishmentGrp/ProgramServiceExpensesAmt00
IRS990EZ/ProgramSrvcAccomplishmentGrp/ProgramServiceExpensesAmt10
IRS990EZ/ProgramSrvcAccomplishmentGrp/ProgramServiceExpensesAmt20
IRS990EZ/ProhibitedTaxShelterTransInd0false
IRS990EZ/RelatedOrganizationCtrlEntInd0false
IRS990EZ/ScheduleBNotRequiredInd0X
IRS990EZ/SchoolOperatingInd0false
IRS990EZ/SpecialEventsDirectExpensesAmt011837
IRS990EZ/SpecialEventsNetIncomeLossAmt03663
IRS990EZ/SubjectToProxyTaxInd0false
IRS990EZ/SumOfTotalLiabilitiesGrp/BOYAmt00
IRS990EZ/SumOfTotalLiabilitiesGrp/EOYAmt00
IRS990EZ/TanningServicesProvidedInd0false
IRS990EZ/TotalProgramServiceExpensesAmt00
IRS990EZ/TotalRevenueAmt010828
IRS990EZ/TransactionWithControlEntInd0false
IRS990EZ/TrnsfrExmptNonChrtblRltdOrgInd0false
IRS990EZ/TypeOfOrganizationCorpInd0X
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt04707
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt016152
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt020876
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt013669
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt01203
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt056607
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt0138
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt025
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt017
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt019
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt026
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt0225
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.99600
IRS990ScheduleA/PublicSupportPY170Pct00.99870
IRS990ScheduleA/PublicSupportTotal170Amt056607
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt04707
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt016152
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt020876
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt013669
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt01203
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt056607
IRS990ScheduleA/TotalSupportAmt056832
IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0GOLF TOURNAM
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0ACTIVITY PAYMENTS TO AFFILIATES GRANTEE MASSACHUSETTS GENERAL HOSPITAL STREET 165 CAMBRIDGE ST CITY, STATE, ZIP BOSTON, MA 02114RELATIONSHIP NONE
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0List of grants and similar amounts paid Part I line 10
ReturnHeader/BuildTS02025-03-06 01:10:19Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd0true
ReturnHeader/BusinessOfficerGrp/PersonNm0MAURICE ST GELAIS
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0PRESIDENT
ReturnHeader/BusinessOfficerGrp/PhoneNum05085093400
ReturnHeader/BusinessOfficerGrp/SignatureDt02025-03-25
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0BATTEN DISEASE RESEARCH
ReturnHeader/Filer/BusinessNameControlTxt0BATT
ReturnHeader/Filer/EIN0043551431
ReturnHeader/Filer/InCareOfNm0% MAURICE ST GELAIS
ReturnHeader/Filer/PhoneNum05086366375
ReturnHeader/Filer/USAddress/AddressLine1Txt0265 AMERICAN LEGION HIGHWAY
ReturnHeader/Filer/USAddress/CityNm0WESTPORT
ReturnHeader/Filer/USAddress/StateAbbreviationCd0MA
ReturnHeader/Filer/USAddress/ZIPCd002790
ReturnHeader/IRSResponsiblePrtyInfoCurrInd0true
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0833357904
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0Affordable Payroll
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt0179 GLEN AVE
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0BERLIN
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0NH
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd003570
ReturnHeader/PreparerPersonGrp/PhoneNum06039151735
ReturnHeader/PreparerPersonGrp/PreparationDt02025-03-25
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0ELAINE LEBEAU
ReturnHeader/ReturnTs02025-03-25T18:15:56-04:00
ReturnHeader/ReturnTypeCd0990EZ
ReturnHeader/TaxPeriodBeginDt02024-01-01
ReturnHeader/TaxPeriodEndDt02024-12-31
ReturnHeader/TaxYr02024

Document Assets

No mirrored PDF or thumbnail assets are attached yet.